PHEN Educational Programs –

National Outreach

Rally Against Prostate Cancer (RAP Cancer) Initiatives – PHEN Survivor Network (2003) – PHEN Monthly Support Group (2003) – PHEN Television (2007) – Annual Father’s Day Rally (2009) – Monthly Webcasts (2011) – Educational Symposia (2013)

1

•  Foundation for PHEN education & outreach programs •  Started in 2003 •  200+ members nationwide •  Lead and support ongoing educational efforts

PHEN Survivor Network

2

PHEN Monthly Meetings in Partnership with Dana-Farber Cancer Institute

•  Since 2003 •  Support Group Functions

– For newly-diagnosed men and survivors – For caregivers, spouses, and families

•  Coordinate community outreach activities – Education and awareness events

•  Train members of the Survivor Network

3

PHEN Monthly Meetings and Webcast  

 •  Spring 2015 survey of men in MA who attend Monthly Support Group Meeting –  78% attended to learn about new treatments –  72% wanted to receive support from other men –  67% wanted to provide support to the recently diagnosed –  53% wanted assistance in managing survivorship –  22% sought to improve their knowledge of health issues

•  PHEN Webcast –  Virtual attendance and accessibility to benefit men

nationwide

4

www.rapcancer.org

•  PHEN Television and Monthly Webcasts •  Archived footage of webcasts, summit presentations,

Father’s Day Rally and symposia –  123 presentations to support & inform survivors and their

families •  Frequent topics include:

–  Caregivers, Clinical Trials, Early Detection, Partnerships, Sexual Dysfunction, Survivorship, Treatments

PHEN Online Resources

5

•  Education and outreach partners since 2009 •  400+ church partners nationwide •  Churches have a real thirst for knowledge

–  88%: PHEN increased knowledge & awareness prostate health –  75%: parishioners received supports & benefits from PHEN –  100%: pleased with information provided to their congregants –  69%: requested more education and awareness activities

 

Church Partnerships-Community Outreach

6

•  Father’s Day Event started in 2009 to increase prostate cancer awareness

•  Hundreds of churches nationwide register for the rally •  Survey of Father’s Day Rally church leaders in 2014

•  95% of churches report success •  94% of survivors/loved ones pleased with recognition •  98% want to participate in the FDR next year •  91% want to participate in additional PHEN activities

The Father’s Day Rally-Community Outreach

7

•  13 symposia in 10 states –  Educate about risk, early detection, treatments & survivorship –  Led by volunteer medical faculty, organized by church volunteers

 

3rd Annual Prostate Health Educational Symposia

8

2015 Symposia Church Partners •  Ben Hill United Methodist Church (Atlanta, GA) •  Sixth Avenue Baptist Church (Birmingham, AL) •  Twelfth Baptist Church (Boston, MA) •  St. Luke Missionary Baptist Church (Chicago, IL) •  Friendship-West Baptist Church (Dallas, TX) •  The Lighthouse Church (Houston, TX) •  Greater Grant Memorial AME Church (Jacksonville, FL) •  Bethel AME Church of Los Angeles (Los Angeles, CA) •  Second Baptist Church (Miami, FL) •  Carver Memorial Presbyterian Church (Newport News, VA) •  Acts Full Gospel COGIC (Oakland, CA) •  St. Matthew Baptist Church (Raleigh, NC) •  The Saint Paul’s Baptist Church (Richmond, VA)

9

2015 Symposia Volunteer Medical Faculty

Clinicians •  26 Volunteer Faculty

–  The Importance of Knowledge & How to Use It

•  Represented –  Internal Medicine –  Urology –  Urologic Oncology –  Hematology/Oncology –  Radiation Oncology

Topics Covered –  Early detection –  Screening –  Diagnosis –  Treatment options –  Incontinence and erectile

dysfunction –  Diet and nutrition –  Clinical trials –  Financial resources

10

3rd Annual Symposia, Continued

•  ~900 attendees –  34% identified as at-risk for prostate cancer –  14% were prostate cancer survivors –  13% were wives or caregivers –  71% learned of symposia through churches –  89% satisfied with topics and speakers –  99.5% plan to/recommend someone attend in 2016

11

 New Partnerships and Services  

 •  FREE prostate cancer screening •  Prostate Conditions Education Council (PCEC)

–  Helen Diller Family Comprehensive Cancer Center at UCSF –  Dana-Farber Cancer Institute and Men’s Health Boston –  GA Prostate Cancer Coalition & Emory Saint Joseph’s Hospital

•  223 men were screened –  21 men needed follow-up care –  Two men have been diagnosed with prostate cancer

 

12

3rd Annual Symposia Partners

All efforts made possible through the support of PHEN’s partners.

13