The Home Haemodialysis Guide – One year of Experience€¦ · 47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy The Home Haemodialysis Guide –

47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org

The Home Haemodialysis Guide –One year of Experience

Presented bySiobhan Gladding & Michel Roden

A Joint Project between EDTNA/ERCA and NxStage Medical


SIOBHAN GLADDING

Siobhan has been a nurse for nearly 30 years working in renal, critical care and paediatrics. Before her role with NxStage she was the matron at Queen Alexandra Hospital in Portsmouth

Siobhan has been working with NxStage since 2011 and she is passionate about home haemodialysis and offering life changing benefits to the patients and their families

Siobhan is today the Director of Clinical Education


ONE YEAR OF EXPERIENCE...


TIMELINE

2016 Q3 Q4 2018 Q1 Q2 Q3

PHASE 1

Q4

PHASE 2

• Start up of the Collaboration

• Development of the Content & Design of the Book & Application

PHASE 32019

2017

2018

Q1 Q2Q3

Q4Q32016

• First Workshop with the Project Team

• Launch at the 46 EDTNA/ERCA Int’l Conference, Krakow

• Launch at the 47 EDTNA/ERCA Int’l Conference, Genoa


THANK YOU ALL!

This Project have been brought together

thanks to the involvement of several

volunteers’ who have the expertise in this

treatment modality.

All of YOU deserve to be acknowledged!


Evgenia Golland

Sophie Halldin

Nicola Thomas Carol Rhodes

Debbie Fortnum

Karen Pugh-Clarke

Maria Cruz Casal

Nicola Pacy

María F. Slon Roblero

Marie-Louise Bodin


Anki Davidson

Natalie Borman

Pedro BaptistaKalliopi-Anna Poulia

Katey Atkins

Monica EdströmTony Goovaerts

Gunnar Malmström


Michel Roden

Michel Lambotte

Dozo

Anna Junque

Angela DrähneAnna Marti i Monros


Siobhan Gladding

Leigh Mortier Eric Weinhandl

Laura StevensJeff Burbank

Julien Gautier



MICHEL RODEN

1982 started to work as a nurse

33 years working with dialysis - HD; PD; HHD education

23 years as Nephrology nurse 2005 - EDTNA/ERCA Volunteer (KM, KMM, EC, Pres.

Elect, Pres., BA)

2018 - DOPPS CRA for Belgium


OBJECTIVES

The benefits of this modality of renal replacement therapy are clearly demonstrated in the literature and the ability to perform Frequent Home Haemodialysis is clearly a key contributing factor to positive outcomes

THE AIM Of this Project is to reach all renal healthcare professionals caring for Chronic

Kidney Disease patients, offering them the chance to learn from experts about caring for patients who choose HHD treatment, focusing on FHHD

For Patients who take responsibility for their dialysis treatments are empowered and this can improve the quality of their life


NO BARRIERS...ONLY OPPORTUNITIES


DR. ROSEMARIE BAILLOD STORY...

Dr. Rosemarie Baillod, who worked alongside with Dr. Shaldon in the 60’s, explained how the machines were developed:

“I had to develop alarm systems and I had to go to a shop called Radio Spares, and I had to buy relays, light bulbs and little alarms. We got some monitoring from Cambridge Monitors – if the pressure went too high it would alarm, if it went too low it would alarm, and it was in a box about 2 feet square, it looked very smart. The first time we arrived at the patient’s home –everything leaked!”


THE EARLY DAYS OF HEAMODIALYSIS



Monday, September 17th

9.00 – 0.30W 05 Round Table Discussion

A Guide to Implement Home Haemodialysis– Meet the Authors & Translators

Chairs: Debbie Fortnum (Australia)Maria Cruz Casal (Spain)

Welcome!


THANK YOU VERY MUCH FOR YOUR ATTENTION!

Documents

The Home Haemodialysis Guide – One year of Experience€¦ · 47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy The Home Haemodialysis Guide –