The Global Action Plan on the Public

Response to Dementia 2017-2025:Why we need to do

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Paola BarbarinoChief Executive OfficerAlzheimer’s Disease International (ADI)

Source: World Alzheimer Report 2018

About Alzheimer’s Disease International (ADI)

• Established in 1984• The umbrella organisation of Alzheimer associations

around the world• 100 member associations & federations (Deutsche

Alzheimer Gesellshaft in Germany)• 16 associations on the Membership Development

Programme (MDP)• Official Relations with WHO

Our vision is prevention, care and inclusion today, and cure tomorrow.

ADI’s objectives

• Raise global awareness about dementia• Build and strengthen Alzheimer associations

throughout the world • Support associations so they are better able to

meet the needs of people with dementia and their carers

• Advocate for people with dementia and their carers on a global level

• Stimulate research, especially in lower and middle-income countries

What we do

• Global and national advocacy• World Alzheimer’s Month/Day• World Alzheimer Reports• Publications• Alzheimer Universities• International conferences• Regional meetings• Twinning programme• Involving people with dementia• Research

WHO Global action plan on dementia

National Dementia Plans

National Dementia Plans

Case study: Germany

• January 2019: Work on development of national dementia plan commenced

• 4 fields of action: strengthening social participation of people with dementia; supporting people with dementia and their carers; further development of medical provision and care; and supporting excellent research

• Good stakeholder engagement Pictured: the announcement event of Germany’s national plan. Photographer: Herber Jennerich/BMFSF

Action area 2 – Awareness and friendliness

www.worldalzmonth.org

• World Alzheimer’s Month held around the world since 2012

• World Alzheimer’s Day, 21 September

• Global importance of World Alzheimer’s Month following adoption of Global Plan on Dementia in May 2017

• 2018: Activities held in over 80 countries - and growing

Action area 2 – Awareness and friendliness

www.paho.org/lets-talk-dementia

• 2019: ADI-PAHO awareness campaign for region of the Americas

• ‘Let’s talk about dementia’ theme

World Alzheimer Report 2019

• World’s largest survey on attitudes to dementia

• Commissioned London School of Economics (LSE) with analysis

• Almost 70,000 respondents from 155 countries

• Essays and case studies in addition to survey analysis

www.alz.co.uk/worldreport

World Alzheimer Report 2019

A taster of the findings:• 2 in 3 people think that dementia is

caused by normal ageing• 1 in 4 people think that there is

nothing we can do to prevent dementia

• 1 in 5 people attribute dementia to bad luck, almost 10% to God’s will and 2% to witchcraft

www.alz.co.uk/worldreport

34th International Conference of ADI

www.adi2020.org

Abstract topics

New directions: Awareness through formal education

Argentina –Amigabuela by María Eugenia Gentile

Israel – The Power of Joy Nurit Schonman

South Korea’s Dementia awareness education

programme

Elementary & middle school

Action area 3 – Dementia risk reduction

Action area 3 – Dementia risk reduction

Lifestyle & behaviour interventionsPhysical activity, smoking cessation, healthy diet

Interventions for health conditionsObesity, raised blood pressure, diabetes, etc

Cognitive training

Recommends:

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Going forward:

All governments should do more to inform their population of the

strong links between certain lifestyle factors and dementia

• Target: diagnostic rate of 50% of those affected in both LMIC and HIC

• Health system must be prepared for diagnostic breakthrough

• OECD primary care doctors correctly identify only around 50-75% of dementia cases

• Only 2 OECD countries (Denmark & UK) have set targets to improve diagnostic rate

• Dementia registries e.g. South Korea

Action area 4 – Diagnosis, care, treatment, support

Action Area 4 and 5: Post-diagnostic support

• A critical and neglected area

Scottish National Dementia Carers Action Network

NDCAN: An advocacy group in Scotland, alongside the Scottish Dementia Working Group

1 year + post diagnostic support

Action area 5 – Support for carers

WHO iSupport

Carer advocacy groups

Dementia Care Skills training in Indonesia

Action area 5 – Support for carers

• 24-hour caring can have a negative impact on employment, finances, family, psychological and physical health, and leisure time.

• Dementia care is particularly stressful - changes in the person with dementia’s cognition and abilities, behavioural and emotional changes can challenge and strain relationships.

• The carer may experience loss due to changes in the relationship between the carer and person with dementia.

New directions: support through Labour legislation• In 2015 informal carers provided 82

billion hours of care for people living with dementia

• This is the equivalent of more than 40 million full time workers – and will increase to 65 million full time workers by 2030

What’s the answer?

• Employment laws - ILO

Source: https://www.alz.co.uk/adi/pdf/global-estimates-of-informal-care.pdf

• Global Dementia Observatory launched • 35 indicators aligned to 7 Action Areas• Data from only 21 countries – 80

countries now engaged but no data published yet

Action area 6 –Information systems

Action area 7 – Dementia research and innovation

• For every 12 cancer studies there is only 1 on cognitive disorders

• Calls for all governments to devote 1% of the societal cost of the disease to research

www.alz.co.uk/worldreport

Action area 7 – Dementia research and innovation• Innovation showcase at ADI Conferences• Collaborations focusing on technology

and entrepreneurship

ADI & Global Coalition on Aging Dementia Innovation Readiness Index

IKEA workshop on range of dementia friendly products, Chicago 2018

Global partnerships

World Alzheimer’s Month 2019

Follow ADI on Twitter @AlzDisInt

Like us on Facebook/alzheimersdiseaseinternational

Visit our websitewww.alz.co.uk

Thank you!