The Beginning

Works in partnership with

Clients  Communities  State & Central Governments National  & International Agencies

1989

LEPRA Society registered under Andhra Pradesh Societies Registration Act 

1947Formation of  Hind Kusth Nivaran Sangh (HKNS) 

BELRA now LEPRA handed over infrastructure and responsibilities to HKNS

1924

The British Empire Leprosy Relief Association (BELRA) started leprosy work in India 

Mission Statement

• LEPRA Society, health in action; is a health and development organisation working to restore health, hope and dignity to people   affected by Leprosy, Tuberculosis, Malaria, HIV/AIDS, Blindness and other health conditions exacerbated by stigma and social discrimination”

4

BiharBiHAP Districts : Munger, Begusaria, Samastipur, BhagalpurRNTCP Districts: Banka, Begusarai, Bhagalpur, Jamui, Kaimoor,

Lakhisarai, Munger, Shekhpura and SamastipurTU’s in Banka, Samastipur, Jamui districts

OrissaRegional Office – BhubaneshwarKORALEP, KoraputJUNLEP, JunagarhBOLEP, SonepurMICHP, MayurbhanjBICHP, BargarhMNC, BirmaharajpurTU, MalkangiriSETU Project, BBSRLF Project, PuriTI Project, Koraput, BBSRTRU & SRS,BBSRSAKHYAM, BBSRCCC, KoraputSahayog, Koraput

Andhra PradeshHead Office, SecunderabadRegional Office, SecunderabadHIV Division, SecunderabadBPRC, HyderabadUMEED, HyderabadARTH, AdilabadKRISCHP ,VijayawadaSREYASSU, VijayawadaMHC, VijayawadaPSH-T, HyderabadCheyutha, HyderabadAvahan project - Hyderabad and Adilabad districtsCHAHA, Hyderabad

Madhya PradeshTRU-MP ;SJLC, Sanawad- Surgical unit ACSM, HFA, CCC

LEPRA Society - Geographic Areas of Projects

Initiatives in TB treatment and control LEPRA Society initiated its pilot project cum study on Joint Leprosy/TB and HIV awareness programme in  the year 1996

LEPRA Society is a member of NGO TB Consortium

LEPRA Society is a member of State TB Control Society and State TB‐HIV co infection committee in AP, Orissa and Bihar 

Also member in the district TB control Society and district TB‐HIV co‐infection committee in the states of our work.

Year of implementation 

of RNTCP

Schemes implemented

Name of the project

Coverage population (in Lakhs)

No. of MCs and TU

2001 Scheme 4 BPRC 1.1 1 MC

2002 Scheme 4 UMEED 5.9 5 MCs

2003 Scheme 4 KORALEP 0.5 1 MC (tribal)

2003 Scheme 4 ARTH 1.8 6 MCs (most of them in Tribal areas)

2003 Scheme 4 JUNLEP 0.4 1 MC

2004 Scheme 4 KRISCHIP 2 2 MCs

2005 Scheme 5 ARTH 4.7 1 TU

2006 Scheme 4 Bihar 5 1 MCs

2007-08 Scheme 5 Bihar 11 2 TUs

LEPRA Society ‐ Initiatives in  RNTCP

Areas of our work in TB controlDirect Participation in service deliver y through Sputum Collection Centres, DMCs, Tuberculosis Units (TUs)Provision of DOTS Outreach activities / Community MobilisationFacilitating the Involvement of NGOs, CBOs and PMPs (PPM)Operational ResearchField research linked with LabAdvocacy, Communication and SMMDR diagnosis (Culture & DST)

Involvement of LEPRA Society in TB Control

LEPRA Society involved in TB Control Activities in the year  1996(KORALEP) and  2001(UMEED) respectively in Orissa & AP

There are 20 DMCs (17 in AP,2 in Orissa and 1 in Bihar) and 4 TUs being run by the organisation in partnership with RNTCPThere are 74 Sputum Collection Centres (20 in MP, 3 in AP and 71 in Orissa). This is an innovative approach adopted to tackle TB problem in Tribal areasIn the year 2008‐09 there are 1965 no of DOT Providers working under LEPRA  projects  including formation of the Health Forums in  Krishna district (In partnership with TB Alert and VMM) and involvement of SHG groupsAbout 624 Private health care providers in these DMCs were sensitised and involvement in referrals of TB suspects and in provision of DOTSDuring the year 2009 (2nd quarter), 1232 patients were put under DOTS

Areas of operation ‐ ACSM

s

BTL

Shivpuri

SNI

Sidhi

SAG

CDWBLG

Chattarpur

KRG

RSN

MDL

STN

VDS

DHR

Panna

SJP

KND

DMH

Sehore

SOP

Ujjain

RJGSDL

DWS

JBP

Hosangabad

GUNRWA

Tikamgarh

NSP

MDS

KTN

Dindori

AKN

BHD

Indore

GLR

MRN

RTM

ANP

Barwani

Umaria

Neemuch

HRD

BHP

Bhopal

DTA

Buniyad implementation area

JHABUA1394561

KHARGONE1529562 BURHANPUR

634883

BUNIYADBetter choices for Better chances 

Arogya project area

Jhabuas

BTL

Shivpuri

SNI

Sidhi

SAG

CDWBLG

Chattarpur

KRG

RSN

MDL

STN

VDS

DHR

Panna

SJP

KND

DMH

Sehore

SOP

Ujjain

RJGSDL

DWS

JBP

Hosangabad

GUNRWA

Tikamgarh

NSP

MDS

KTN

Dindori

AKN

BHD

Indore

GLR

MRN

RTM

ANP

Barwani

Umaria

Neemuch

HRD

BHP

Bhopal

DTA

ACSM focus areas in MPSl.No. ACSM, M.P. 

Project DistrictsNo. of existing 

Tuberculosis Unit (TU)

Designated Microscopic Centers(DMCs)

No. of TUsselected

No. Of DMCsselected

1 Betul 4 19 4 19

2 Chhindwara 5 24 (3 pvt.) 5 24

3 Harda 1 6 1 6

4 Narsinghpur 2 11 2 7

5 Raisen 2 12 1 5

Shahdol 3 13  2 6

6 Ratlam 3 13 3 7

7 Sehore 2 10 2 7

9 Shajapur 3 13 3 7

10 Vidisha 2 11 2 7

Total 27 132 27 95

Target GroupTB PatientsService Providers – Public and PrivateParliamentarian, PRI Members, Village LeadersASHA, AWW and VolunteersTraditional Healers/QuacksNGOs, CBOs ; and People in general

Achievement – Till June 2009Activities Year 

TargetAchievement

Remarks

Objective 1:Engage and Empower Communities

1.3. Mobilize Communities through local NGO/FBO/CBO

Train Trainers at State level 1 1 10 DCs and 30 NGO rep. Trained 

Profile NGO/FBO and Sensitize for involvement in RNTCP 9 at district level II Training (Dist level)

10 (150) 10 (297) Target accomplished.  7 prgs. IIIrd quarter 

1.3.4. Sensitise Schools, PRIs and CBOs 400 749

(43575)

630 (36665) CBOs, 45 (2766) PRIs, 64 (4144) schools

Use adopt RNTCP Material Budget utilised for printing Stickers, pamphlets, referral books, Patient Charter, etc.

Meeting of Enrolled NGOs with DTO/DHS 40   13 Activity initiated in June 09

Observation of WTD & IWD 11 7 Observed at state as well as districts level

Lobbying at Legislative level with Politicians

5 In Shadol, Narsingpur and Vidisha around 386 Ward members sensitised10/5/2009 15

1.6. Build Capacity of Community Organizations.Activity Year

TargetAchievement

Remarks

Training in OD/Leadership for NGO/CBOs (Dist Level)

10 (200) 1 (27) 3 NGOs & 24 CBOs of Sehore

Participation of CBO/NGO in District Meeting (April to Sept)

30 3 61 Participants

Coordination Meetings of CBO/NGO with ASHA/ANM

200 43 3224 Participants

Stakeholder meetings in communities

100 9 431 participants

Translate/Adapt Patient Charter and RNTCP Communication Material

40 6 203 Participants

Achievement – Till June 2009 Continued

10/5/2009 16

Achievement – Till June 2009

Objective 2: Improve access to diagnosis and treatment2.1 Improve Involvement of Private Providers Activities Year Target Achievem

ent Remarks

Collection of Private Providers profile

10 Districts 10 Districts

-

PP Sensitization in Dist level (Level II Training)

10 (200) 6 241 PPs sensitised

Meeting of Enrolled PP with DTO (Once Quarterly0

40 -

Enrolment of PP for RNTCP Level II Training

200 - Applications submitted in two districts

10/5/2009

Qualitative achievements

• NGOs applied for various schemes at districts‐ 8 NGOs submitted proposals, 6 are in process of submission

• NGOs/ CBOs are motivated to work in the field of TB even Voluntarily

• Referrals initiated from sensitized bodies• LEPRA’s representation in TB‐HIV Co infection committee

• Increased media support and participation in raising the profile of disease

AWWs sensitization meeting at Kareli block, Narsingpur dist. NGO sensitization in Ratlam 

Puppet shows in Burhanpur IEC Activities

Sensitization of ANMs and general health staffSensitization of youth 

Objectives1.Engage and

Empower Communities.

2.Improve access to diagnosis & treatment.

Area of Intervention:

• 8DTC/31• 24TU/35• 61DMC/164

Bihar operations

LEPRA Society entered into MoU with Government of Bihar at two levels:

Strengthening Health System i.e. the Tuberculosis Units:Under scheme 5 of RNTCP, two Tuberculosis Units, Katoria(Banka district) and Singhia ( Samastipur district) placedwith LEPRA Society

Support to RNTCP: Support to RNTCP in nine districts ofBihar (Bhagalpur, Munger, Samastipur, Begusarai, Sheikpura,Lakhisarai, Banka, Jamui and Kaimoor

Duration of MoU : Three years

IEC Activities

IEC & Sputum Collection Activities Carried out in Mahadalit Camps in Banka District organised by Govt. of India

Participation in RNTCP Support – Andhra Pradesh

S.No PARTICULARS ARTH (Adilabad)

UMEED (Hyderabad)

KRISCHIP (Krishna) Total

1 Population Coverage 675850 537949 213459 14272582 No. DMCs 10 5 2 173 No. of Chest Symptomatic 

suspects  2011 1336 873 42204 No. of sputum examined  2011 1336 866 42135 Total sputum positive detection 336 226 146 7086 Total new Case Detection  557 373 204 1134

NSP  283 163 97 543NSN  250 63 71 384Extra pulmonary 24 130 36 190

7 No. put on DOTS 612 373 242 1227

8 Sputum conversation Rate NSP  92.74 93.25 92 92.69 Cure Rate of NSP patients  88.9 89 90.4 89.4310 Death rate of NSP patients  4.7 4.3 9.5 6.1611 Default rate of NSP patients  3.3 4.55 Nil 3.9

Performance of DMC under LEPRA Society up to June 2009 (2nd Quarter 2009), Andhra Pradesh

Study of 588 TB CASES ‐ SOURCE OF REFERRALS in  4 DMCs in  Hyderabad (study done in 2007)

2%11%

39%

11%

12%

13%

6%

6%

By Survey

IEC Activity

By PMPs

By Volunteers

By UHP Staff

By CDs

Oth.NGOs

Others

Project  Supported by 

Andhra Pradesh State

1. Andhra Pradesh Counsellors Project (APCP) APSACS/UNICEF

2. PPTCTC + APSACS – GFATM – NACO

3. Young People’s Initiatives Unit UNICEF

4. Jyoti Project  CDC, Atlanta

5. Samastha, AP Karnataka Health Promotion Trust/ University of Manitoba –USAID

6. District Project Management Support Unit LEPRA Society – in collaboration with APSACS

7. Partnerships for Sexual Health Project‐Truckers (PSH‐T) LEPRA 

8. Frontiers Prevention Project / Avahan Alliance India

9. Sreyassu Telugu Association of North America

10. CHEYUTHA LEPRA Society / America Indian Foundation / Alliance

11. CHAHA Project Alliance India

Orissa State

12. Targeted Intervention Projects – Koraput & BBSR OSACS

13. KNP+  LEPRA

14. SAHAYOG  ‐ Koraput European Commission in collaboration with LEPRA UK and LEPRA Society

15. SAKHYAM – Bhubaneswar EC

17. Community Care Centre ‐ Koraput CBCI

18. SETU In collaboration with CRS with LEPRA support

LEPRA Society - HIV Projects

TB Awareness through magic shows Observation of World TB Day at Narsapur‐G TU

Providing DOTS to a patient RNTCP training to PHI nurses

LEPRA Society ‐ Blue Peter Research CentreEvidence based support for diagnosis and management of Leprosy, TB and HIV/AIDS to community under BPRC and other LEPRA projects

Research and trainingIn the areas of infectious diseases with emphasis on TB, leprosy and HIV‐TB co infection PhD, short courses for LTs, University recognitionsOrganising research, bio‐safety and ethical committee meetings 

Networking with National and International research centres

Research collaborationTraining 

Communication of research activitiesPublications Presentations at the conferences/meetingGuest lectures

@ Blue Peter Research CentreDOTS PLUS & HIV ACTIVITIES

No. of Districts covered – 4 (Guntur, Krishna, East Godavari & West Godavari)

No. of MDR Suspects : 186

No. of patients completed the tests : 55

No. of MDR patients confirmed : 22

HIV Activities at BPRCServices

Clinical Services for PLHA, CD4 Count

ResearchHIV‐TB co‐infection, HIV drug resistance, Serodiscordance

LEPRA Society ‐ Resource Allocation for TB work in India

Year LEPRA Overall Budget

Allocation for TB Work

2009 Rs. 390,683,900.00 Rs. 54,031,220.00 (14%)

2010 Rs. 380,299,600.00 Rs. 40,597,327.00 (11%)

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Seeking your support in Restoring  more smiles