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SURROGATE DOCUMENTS
Honoring the rights and wishes
of residents with diminished
decision-making abilities
© 2016 Husch B lack we l l LLP
INTRODUCTION
Purpose of Surrogate Documents: ensure
wishes are carried out, appropriate care and
treatments are given, peace of mind and sense of
security for residents and family, avoid need for
the appointment of a guardian, compliance by
facilities with applicable laws and regulations
Patient Self-Determination Act & F-Tag #155
42 U.S.C § 1395cc(f) & 42 C.F.R. § 483.10(b)
Starting the conversation . . . https://www.youtube.com/watch?v=1B3otefmrjA
© 2016 Husch B lack we l l LLP
OVERVIEW
• Patient Self-Determination Act and Survey Implications
• Determining Capacity
• Applicable Standards
• Surrogate decision-making
– Durable Power of Attorney
– Guardianship / Conservatorship
• Advanced Health Care Directives / Living Will
• Privacy Rules & Exceptions
• HIPPA Authorizations
• Emerging Issues & Legislative Changes
© 2016 Husch B lack we l l LLP
PATIENT SELF-DETERMINATION ACT
“Require[s] hospitals, skilled nursing facilities, home health agencies, hospice programs, and health maintenance organizations to: (1) inform patients of their rights under State law to make decisions concerning their medical care; (2) periodically inquire as to whether a patient executed an advanced directive and document the patient's wishes regarding their medical care; (3) not discriminate against persons who have executed an advance directive; (4) ensure that legally valid advance directives and documented medical care wishes are implemented to the extent permitted by State law; and (5) provide educational programs for staff, patients, and the community on ethical issues concerning patient self-determination and advance directives.” Summary of the Congressional Research Service (CRS), Library of Congress
© 2016 Husch B lack we l l LLP
F-TAG #155
483.10(b)(4): “The resident has the right to refuse
treatment, to refuse to participate in experimental
research, and to formulate an advanced directive as
specified in paragraph (8) of this section;” [see below]
483.10(b)(8): “The facility must comply with the
requirements . . . relating to maintaining written policies
and procedures regarding advance directives. These
requirements include provisions to inform and provide
written information to all adult residents concerning the
right to accept or refuse medical or surgical treatment
and, at the individual’s option, to formulate an advanced
directive . . .”
© 2016 Husch B lack we l l LLP
The need for a healthcare
surrogate, such as a DPOA, to
make decisions arises with
loss of capacity . . .
© 2016 Husch B lack we l l LLP
DETERMINING CAPACITY
Observations and Interactions
Mental Status Examinations
Who decides?
What are the implications of that decision?
© 2016 Husch B lack we l l LLP
APPLICABLE STANDARDS
Substituted judgment standard – surrogates must follow
the individual’s known or probable wishes (Quinlan)
Missouri Department of Health and Human services may
require clear and convincing evidence of the individual’s
actual wishes before removing life support (Cruzan)
– Cases involving withdrawal of artificial nutrition and hydration
Surrogates must act in the best interests of the
individual: analyze the benefits and burdens of the
options (fallback in most states, but not in Missouri)
© 2016 Husch B lack we l l LLP
SURROGATE DECISION MAKING
Durable Power of Attorney
Guardianships and Conservatorships
© 2016 Husch B lack we l l LLP
DURABLE POWER OF ATTORNEY
• Types: General, Healthcare, Financial
• Execution: (1) signed (when principal is of sound mind);
(2) dated; (3) signed by two witnesses; and (4) notarized
• Must include a provision that the durable power
remains in effect if principal is disabled/incapacitated
• Effective immediately or after two licensed physicians
certify incapacity (can specify only one physician)
• Authority to withdraw hydration and nutrition must
be expressly granted: RSMo. § 404.820
• Physician Serving as Attorney in Fact: RSMo. § 404.815
• “Conscience” exception: RSMo. § 404.830
© 2016 Husch B lack we l l LLP
GUARDIANSHIPS AND CONSERVATORSHIPS
Guardianships (for personal affairs)
Conservatorships (for financial affairs)
Court ordered or appointed:
– Must file petition in the probate division of circuit court
– Hearing on respondent’s inability to make decisions and need for appointment of guardian/conservator
– Petitioner can nominate him or herself as guardian and/or conservator and has the burden of proof
– Involved and often complex legal process
© 2016 Husch B lack we l l LLP
ADVANCED DIRECTIVES / LIVING WILL
• Specific instructions (directives) for treatment
• Execution: (1) signed; (2) dated; (3) signed by two
witnesses (if a form is used); and (4) notarized
• DNR (Do Not Resuscitate Order)
• POLST (Physician Orders for Life Sustaining
Treatment)
© 2016 Husch B lack we l l LLP
DNR• Do Not Resuscitate Order
• Requirements for an outside the hospital DNR: RSMo. § 190.603
• Executed by the patient or patient’s representative & the patient’s attending physician in the form promulgated by rule of the department
• Maintained as first page of patient’s medical record in facility unless otherwise specified in facility’s policies
• Must be transferred with the patient when the patient is transferred from one health care facility to another; must be provided to any other facility, person, or agency, responsible for the medical care of the patient or to the patient or patient’s representative
• DNR Order should be in the beginning of the resident’s chart
• DNR should follow the resident and DNR status should be included in report
© 2016 Husch B lack we l l LLP
CARDIOPULMONARY RESUSCITATION (CPR)
CPR is required if a resident is found
pulseless unless:
(1) A valid DNR is in place; (2) there are
obvious signs of clinical death (e.g., rigor
mortis); or (3) initiating CPR could cause
injury or peril to the rescuer
© 2016 Husch B lack we l l LLP
POLST
Physician Orders for Life Sustaining Treatment
Documentation of patient’s wishes and advance
care planning decisions that results in
physician’s orders
© 2016 Husch B lack we l l LLP
PRIVACY RULES & EXCEPTIONS
HIPPA
Consent to share information
Emergency Situations
© 2016 Husch B lack we l l LLP
HIPPA AUTHORIZATIONS
HIPPA Release for Medical Information
Who can sign? Patient / Resident,
Guardian, Personal Representative, DPOA,
Plaintiff ad litem
© 2016 Husch B lack we l l LLP
EMERGING ISSUES
Need for greater emphasis on advance care planning and palliative care in the healthcare field
– Enhance palliative care and end of life training
– Medicare coverage of advance care planning as a separate service provided by physicians and other healthcare professionals (e.g., NPs)
© 2016 Husch B lack we l l LLP
LEGISLATIVE CHANGES & PROPOSALS
Death with Dignity bill (HB 307) considered for
the first time in Missouri in 2015: the bill received
no hearings & did not make it out of committee
Nurse Practitioners and Physicians Assistants
may now complete death certificates: RSMo.
§ § 193.015, 193.145 (2015)
© 2016 Husch B lack we l l LLP
SOURCES
Cruzan v. Harmon, 760 S.W.2d 408 (Mo. 1988), aff’d sub nom. Cruzan v. Dir., Mo. Dept’ of Health, 497 U.S. 261 (1990); In re Quinlan, 70 N.J. 10, 355 A.2d 647 (1976 N.J.)
Zehr, Martin, Ph.D, J.D., The Assessment of Capacity in Civil Setting, Journal of the Missouri Bar (March-April 2012)
Benson WF and Aldrich N., Advance Care Planning: Ensuring Your Wishes Are Known and Honored If You Are Unable to Speak for Yourself, Critical Issue Brief, Centers for Disease Control and Prevention (2012), available at: www.cdc.gov/aging
National POLST Paradigm, Physician Orders for Life-Sustaining Treatment Paradigm (2016), available at: www.polst.org/advance-care-planning
U.S. Department of Health & Human Services, Health Information Privacy, available at: http://www.hhs.gov/hipaa/for-professionals/faq
National Hospice and Palliative Care Organization, Missouri Advance Directive, Planning for Important Health Care Decisions (2005, revised 2015), available at: http://www.caringinfo.org/files/public/ad/Missouri.pdf
Missouri Bar, Durable Power of Attorney, Guardians and Conservators Under Missouri Law, available at: www.mobar.org
Leo, Raphael, M.D., Competency and the Capacity to Make Treatment Decisions: A primer for primary Care Physicians, Prim. Care Companion, J. Clin. Psychiatry (Oct. 1999)
Sabatino, Charlie and Wood, Erica, Commission on Law and Aging, American Bar Association, Surrogate Decision-Making and Advance Directives – Nuts & Bolts, National Aging and Law Conference (Dec. 2010)
CMS Memorandum, Cardiopulmonary Resuscitation (CPR) in Nursing Homes (October 2013), available at: https://www.cms.gov/Medicare/Provider-Enrollment-and-Certification/SurveyCertificationGenInfo/Downloads/Survey-and-Cert-Letter-14-01.pdf
Kaiser Family Foundation, 10 FAQs: Medicare’s Role in End-of-life-Care (Nov. 2015); available at: http://kff.org/medicare/fact-sheet/10-faqs-medicares-role-in-end-of-life-care/
© 2016 Husch B lack we l l LLP
CONTACT INFORMATIONHarvey Tettlebaum
Husch Blackwell LLP
235 East High Street
P.O. Box 1251
Jefferson City, MO 65102
Phone: 573-761-1107
E-mail: [email protected]
Liz LaFoe
Husch Blackwell LLP
235 East High Street
P.O. Box 1251
Jefferson City, MO 65102
Phone: 573-761-1118
E-mail: [email protected]