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Supporting self management for people with diabetes Lifting the words from the page Dr Simon Eaton Consultant Diabetologist, Northumbria Healthcare Clinical Lead for Long Term Conditions, NHS North East [email protected] All-Party Parliamentary Group for Diabetes, March 9 th 2010

Supporting self management for people with diabetes Lifting the words from the page Dr Simon Eaton Consultant Diabetologist, Northumbria Healthcare Clinical

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Supporting self management for people with diabetes

Lifting the words from the page

Dr Simon EatonConsultant Diabetologist, Northumbria Healthcare

Clinical Lead for Long Term Conditions, NHS North [email protected]

All-Party Parliamentary Group for Diabetes, March 9th 2010

Dilemma

• Numbers of people with diabetes rising ++• Costs attributable to diabetes rising +++• Burden of diabetes is huge• Much of the burden is preventable• Not just about access to new technologies• Decisions that people with diabetes make

every minute of every day…

…& the role that health services play in this

Pathways and Journeys…

Pathways and Journeys…

Consultations with Healthcare Professionals

‘Pathways’ – e.g. at diagnosis, treating foot

ulcer, pregnancy

Avoidable admissions or unplanned care

People with diabetes ‘self-manage’ >99% of the time

Quality & Productivity…

Consultations with Healthcare Professionals

‘Pathways’ – e.g. at diagnosis, treating foot

ulcer, pregnancy

Avoidable admissions or unplanned care

People with diabetes ‘self-manage’ >99% of the time

…support people to develop confidence and competence in managing the challenges of living with their condition(s), in order to have

a better quality of life and better clinical outcomes. This will also enable more

effective and appropriate use of health and social care resources.

Long term conditions clinical leads networkSeptember 2009

High Quality Care should…

‘We do that already…’

HCC National Patient Survey

‘We do that already…’

Picker Institute, 2007

‘We do that already…’

Lifting the words from the page

Pilot sites:Calderdale and Kirklees PCT

Tower Hamlets PCTNHS North of Tyne

Diabetes Year of Care Programme

Diabetes

Lifting the words from the page

Engaged,

informed patient

HC

P com

mitted to

partnership working

Organisational processes

Commissioning- The foundation

Information/Structured education

‘Prepared’ for Consultation

Emotional & psychological

support

Supportingself-management

I could focus on the important things for

me and get help

Time to read [results] and think about what to raise… you know

what was coming

Took the ‘cork out of the bottle’

I enjoy doing the clinic a lot more now… working with them rather than at them

It’s absolutely 100% better for me and for

the patients

People feel more

relaxed

Preparing? - why bother?

Engaged,

informed patient

HC

P com

mitted to

partnership working

Organisational processes

Commissioning- The foundation

Information/Structured education

‘Prepared’ for Consultation

Emotional & psychological

support

Consultation skills / attitudes

Senior buy-in & local champions to support & role

model

Integrated, multi-disciplinary team & expertise

Send test results beforehand

Contact numbers and safety netting

IT: clinical record of care planning & able to feed data into commissioning

Quality assure and measure

Procured time for consultations, training, & IT

Identify and fulfil needs

Develop market to meet current

and future needs

Establish & publicise

menu of care

Supportingself-management

Lifting the words from the page

• Huge burden of diabetes still to be addressed• Lack of support for a vital resource

– the person with diabetes• Need planned, proactive, anticipatory services• Designed around needs of users, not systems• Support people to make informed and personally

relevant decisions • Confidence and skills to manage challenges of

living with their condition(s)• Effective measures of progress & improvement

[email protected]

[email protected]

www.diabetes.nhs.uk

Engaged,

informed patient

HC

P com

mitted to

partnership working

Organisational processes

Commissioning- The foundation

Information/Structured education

‘Prepared’ for Consultation

Emotional & psychological

support

Consultation skills / attitudes

Senior buy-in & local champions to support & role

model

Integrated, multi-disciplinary team & expertise

Send test results beforehand

Contact numbers and safety netting

IT: clinical record of care planning & able to feed data into commissioning

Quality assure and measure

Procured time for consultations, training, & IT

Identify and fulfil needs

Develop market to meet current

and future needs

Establish & publicise

menu of care

Supportingself-management

Care Planning