Get Infused!Semi-Annual Newsletter

Serving the bleeding disorder

community in Arizona for over 45 years

Summer 2015

In this Issue

Executive Director News 3

AHA Events 4-7 AHA Programs 8-13

Advocacy & Healthcare 14-15 AHA Updates 16-22

Upcoming Events & Programs 23

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Board of Directors Steven Helm President Jim Durr Vice President Victor Alonzo Treasurer Frank Schaffer Secretary

Mark BoesenButch BrownGreg Brown

Robert KerriganSteven Miller Al Schmeiser

AHAStaffCindy Komar Executive DirectorChastity Fermoile VP Development & MarketingYleana Hughes Director of Client ServicesLindsey Bogard Director of Operations Josh Traulsen Program DirectorMillie Dillman Resource & Tech CoordinatorJessica Jackson Client Services CoordinatorGretchen Pacheco Development CoordinatorSteve Pond TEAM Outreach CoordinatorJ. David Cabrera Administrative AssistantJoan Gustin Conference CoordinatorBrent Davila Advocacy Coordinator

Contact Us Today! (602) 955-3947 826 N 5th Aveinfo@arizonahemophilia.org Phoenix, AZ 85003

The Arizona Hemophilia Association is dedicated to enhancing the quality of life for people with inherited bleeding disorders, while advocating for a cure.

Do you want to MakeaDifference?We would not be able to accomplish all that we do each year without the help of so

many wonderful contributors! The Arizona Hemophilia Association depends on the generous support of individual donors and volunteers as well as corporate sponsors

to provide essential programs and services. If you or someone you know is interested in making a difference, please contact us today!

The Arizona Hemophilia Association is a 501(c)(3) non profit organization as well as a Qualifying Charitable Organization in the state of Arizona. Tax ID 86-0209257.

Thank you to all of our donors and sponsors who have contributed this year. We are grateful for

your continued support!

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Message From our Executive DirectorHello Friends!

We have been very busy throughout the start of 2015! We are excited to announce the re-opening of the Arizona Bleeding Disorders Health and Wellness Center (ABDC) to provide primary care to any and all adults. We started the clinic to provide family-based medical care that can treat the whole person. Adults with bleeding disorders are fortunately living longer, but are now facing the other complications that happen as we age. Our medical providers understand the chronic disorder process, the unique needs of our community and how to manage the complications that can arise as we age with a bleeding disorder.

The best part is that ALL revenue made will go back to support the clinic and our bleeding disorder community. So tell your friends, neighbors and family to use our clinic and help us support you! The clinic is across the street from the Arizona Hemophilia Association, to make it convenient and community focused. Stop by and check it out! Call 602-680-7722 today to schedule an appointment.

In the newsletter you will see several ways to get involved in the Arizona Hemophilia Association. You can attend our many programs, volunteer to be on a committee, volunteer at our events or in the office, or give back through donations or helping get your employer involved. We have social groups that provide opportunities to make friendships and share with others who are coping with a bleeding disorder. We have committees you can join including the following:

Advocacy – this committee meets once a month and keeps abreast of the legislative and policy decisions that affect all of us. Ensuring access to healthcare is paramount to the quality of life for anyone affected by a bleeding disorder. It also looks for opportunities to create greater awareness with the general public, including outreach to school nurses and other medical professionals.

Fundraising – this committee spearheads our fundraising efforts. Without fundraising, our organization would not exist. This committee is critical in continuing to build relationships with individuals and companies who provide donations to our organization.

Special Events – there are currently 3 committees that organize our special events throughout the year: Salsa Challenge, Walkathon, and Golf. Each committee begins meeting about 6 months before the particular event. It is a great opportunity to learn the ‘behind the scenes’ of these large events as well as meet others in our bleeding disorder community.

Camp Committee – We organize, staff and manage our summer camp called Camp HONOR. It is a week-long camp for kids with bleeding disorders and their siblings. All of our staff are volunteers who make the camp fun, meaningful and memorable for the kids!

You can volunteer by giving your time to help at a particular event, in the office or as a speaker in our volunteer speaker’s bureau. You can get together a walk team for our Walkathon, or simply let others know about our events so they can also come. We are always looking for members who want to help organize our programs, come up with new ideas and help us make sure we are meeting the needs of our community.

Don’t have much time but want to help? You can get your company to contribute to us through jean’s day, 50/50 raffles, or becoming a sponsor for one of our events. You can help us get silent auction items donated to our golf tournament or the Salsa Challenge. You can ask your company for matching funds (many will match whatever you donate). You can donate items for camp, clothes, or even a car!

In whatever way you can or want to get involved, we hope to see more of you! We are here to create a community of sharing , whether it is providing you help when you need it, or having you help others in need. We are here to serve you and to build a strong bond among all of us coping with living with a bleeding disorder.

We hope to see you at the Annual Statewide Meeting on August 28th! Make sure to register today.

With gratitude,

Cindy KomarExecutive Director

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Salsa ChallengeThis year, for the first time ever, the 31st annual My Nana’s

Best Tasting Salsa Challenge took place over TWO days! Held on the 7th & 8th of March, 2015 at Steele Indian School Park, this event is the largest fundraiser for the Arizona Hemophilia Association, raising over $145,000 this year alone to help fund programs and services provided to those living with chronic bleeding disorders. This is a culinary festival where contestants compete for the best tasting salsa! Each year we have over 100 salsas entered to be judged for the honor of becoming the Grand Champion salsa.

The grand champion receives $1,000 cash, a retail opportunity

through El Sol Foods to manufacture, distribute and retail their salsa for one year and the title as the best tasting salsa!

This is all possible

because of the wonderful volunteers and sponsors that we have! Special thanks to My Nana’s Best Tasting Tortilla Chips, Title Sponsor, for donating over 4,000 lbs of chips for the event! Thanks also to El Sol Foods, Macayo’s, Fry’s Foods, SRP, New Belguim, Dos Equis, Patron, Casino Arizona, and Pepsi.

We had over 600 volunteers that were critical to the success of the event!

Special thanks to General Dynamics and all of our Salsa and Margarita Mix-Off Judges!

We look forward to seeing you at next year’s event on March 5 & 6, 2016!!

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INDIVIDUAL HOT1st Brian Hay2nd Kristen Miesel3rd Sommer Greene

INDIVIDUAL MILD1st Sommer Greene2nd Brian Hay3rd Robert Davis

INDIVIDUAL ANYTHING GOES1st Theresa Castillo2nd Joe Carlson3rd Tie- Troy Kirk & Bea Salas

BUSINESS HOT1st Pfizer (Rebecca Carillo)2nd Mouth of the South Salsa (Andrea McGowen)3rd Biogen (Martha Bojorges)

RESTAURANT HOT1st Garcia’s2nd El Palacio3rd Milagro’s Grill

BUSINESS MILD1st SRP (Monserrat Sotello)2nd Mouth of the South Salsa (Andrea McGowen)3rd Pfizer (Rebecca Carillo)

RESTAURANT MILD1st Garcia’s2nd Milagro’s Grill3rd El Palacio

BUSINESS ANYTHING GOES1st Pfizer (Rebecca Carillo)

BEST OF SHOW Mouth of the South Salsa - Andrea McGowenBEST BOOTH Parrot Heads - Julie LockwoodPEOPLE’S CHOICE Parrot Heads - Julie Lockwood

Salsa Challenge 2015 SATURDAY Winners!

Saturday Salsa ChampionSommer Greene

MargaritaMix-OffChampionAdamVanflyke

Salsa Challenge 2015 SUNDAY Winners!INDIVIDUAL HOT1st Yasmin Cornejo2nd Theresa Castillo3rd Doug and Dotty Clark

INDIVIDUAL MILD1st Sommer Greene2nd Theresa Castillo3rd Brian Hay

INDIVIDUAL ANYTHING GOES1st Joe Carlson2nd Brandon Keenan3rd Theresa Castillo

BUSINESS HOT1st Mouth of the South Salsa (Andrea McGowen)2nd Pfizer (Rebecca Carillo)3rd SRP (Monserrat Sotello)

RESTAURANT HOT1st Macayo’s2nd Milagro’s Grill3rd El Palacio

BUSINESS MILD1st Pfizer (Rebecca Carillo)2nd SRP (Monserrat Sotello)3rd Mouth of the South Salsa (Andrea McGowen)

RESTAURANT MILD1st Milagro’s Grill2nd El Palacio -1st Recipe3rd El Palacio -2nd Recipe

BUSINESS ANYTHING GOES1st Pfizer (Rebecca Carillo)

BEST OF SHOW Mouth of the South Salsa - Andrea McGowenBEST BOOTH Michael Perez PEOPLE’S CHOICE Joseph Zapien

Sunday Salsa ChampionMilagro’s Grill

MargaritaMix-OffChampionAndrew Calisterio

RESTAURANT ANYTHING GOES1st Milagro’s Grill2nd El Ricky’s3rd El Palacio -2nd Recipe

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Salsa Challenge 2015 Overall Grand Champion!Sommer Greene- Individual Mild

The competition this year was steep, with contestants working hard over two days to prove that their salsa was worth the dip. For the second year in a row, the defending champion, Sommer

Greene, was named 2015’s Overall Grand Champion with her Individual Mild recipe of delicious salsa! Congratulations to Sommer and all of our 2015 winners!

Too Hot to Trot Salsa Challenge 5K

The Too Hot To Trot 5K took place on the morning of Sunday, March 8, the second day of the Salsa Challenge, and added to the fun of this year’s event! The course this year went around

Steele Indian School Park and all racers received a technical t-shirt, early entry to the Salsa Challenge in a special VIP Tent with breakfast, music, and

the racer’s choice of a margarita or beer.

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©2013 Bayer HealthCare Pharmaceuticals Inc. Todos los derechos reservados. BAYER y la cruz de Bayer son marcas comerciales registradas de Bayer. Impreso en EUA 11/13 KN10000913C

Compromiso,liderazgo einnovación

Y LA COMUNIDAD HEMOFÍLICA:

Questions About HealthInsurance?

We’re always available to point you in the right direction! Call us at (602) 955-3947

and we’ll assist by providing you with a list of patient assistance programs, health insurance options, and we’ll help guide you in the process so you don’t have to feel alone.

Valley Auto Dealers Association of Phoenix

The Arizona Hemophilia Association was chosen as the Charity of the

Year for the Fraternal Order of the Eagles. Throughout the year, they raised over $40,000 for the AHA!

Thank you to the Fraternal Order of the Eagles!

The Arizona Hemophilia

Association would like to thank the Valley Auto Dealers Association for their generous donation of a 15 passenger bus, which features

our logo along either side. With this bus, we’ll be able to help provide transportation for our community members to events and programs!

Fraternal Order of EaglesTHANK YOU!!!

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Camp HONORCamp HONOR (Hemophiliacs Overcoming New Obstacles Resourcefully ) is

a week long summer camp in Prescott, Arizona that is open to children ages 8-17 from the bleeding disorder community. This includes those who have a bleeding disorder, as well as their siblings. The mission of Camp HONOR is to enrich the lives of children affected by an inherited bleeding disorder by providing life-changing camp experiences that are exciting, empowering, and educational, in a physically safe and medically sound environment. Our camp is designed to allow children with medical needs the opportunity to experience the camp activities such as archery, camping, sports, team building games, arts and crafts, and swimming, in a loving environment that can meet the special needs of each child.

At Camp HONOR, we strive to:• Teach life skills.• Foster memorable friendships.• Develop medical independence. • Enhance self-worth and self-confidence.• Provide mentoring and leadership opportunities.• Create a community of peers facing similar situations.• Educate campers to become self-advocates for medical care. • Empower campers to gain acceptance of their medical condition.• Provide the highest quality medical care that is non-intrusive to camp life.

The theme for our 22nd year of Camp HONOR was SuperHeroes. The week was full of

activities that reminded the kids that they are their own personal superheroes! Campers participated in programs designed to help them discover their inner strengths and be comfortable with who they are. We discussed what it takes to become a superhero and how we can use our powers to help ourselves and others.

We served over 120 campers with the help of more than 100 volunteers and staff. All of our

camp staff are volunteers who have given up their week to make a difference in the life of a child. Thank you to all of our camp staff for taking the time out from your schedules to be with our community and make a huge impact on our campers!

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The Jeremy Storms’ STRAIGHT ARROW AWARD

Jeremy Storms loved Camp HONOR. As a hemophiliac, he attended from its very beginning until the year he passed away in 1996. He loved the fun,

fellowship and challenges. He always demonstrated respect for the camp staff. He was diligent in his efforts in the events and in the encouragement of others. One of the things Jeremy loved at camp was archery. The arrows

on the award are a symbol of that love.

This year’s recipient of

the STRAIGHT ARROW AWARD was Eric Johnson. He truly embraced the camp spirit and displayed what it takes to give your all as a camper at Camp HONOR. Congratulations Eric!!

Above is a photo of the “Straight Arrow Club”, featuring those who attended camp this year and were honored with the award in the past! Pictured are Eric Johnson, Marcos Bojorges, William

Post, and Josh Lebeau.

The oldest unit got to spend a day visiting the Out of Africa Wildlife Park this year.

Their safari tour took them within touching distance to giraffes, zebras, and other rare wildlife!

Our Camp HONOR medical staff team teaches campers with bleeding disorders how to self infuse. Learning the practice of self-infusion is

one of the most important skills to gain in the transition to independence. Our campers end up really wanting to learn and to help others learn which is what Camp HONOR is all about.

The ‘Big Stick’ award is given to campers who successfully infuse

on their own for the first time. This is a big deal at camp and is celebrated by everyone. This year we had 8 kids who received the award!!

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From Baxter’s BioScience to Baxalta…Baxter’s BioScience is expected to become Baxalta in mid-2015.At Baxter’s BioScience, we see a world of endless possibilities for our patients. And although our name may be changing to Baxalta, our commitment to you is as strong as ever. At our foundation is an enduring heritage of innovation and advocacy. Your life is our inspiration to make a meaningful difference, so you can dream big, and experience life. We are excited about the future and hope you are too!

Baxter is a registered trademark of Baxter International Inc. USBS/MG1/15-0020(1) February 2015

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CITs (Counselors in Training)Counselors in Training (CIT) is

our leadership program for Camp HONOR campers ages 16 and 17. The program prepares campers to become leaders in camp and life. This group is very cohesive and are great future leaders! The teens had the opportunity to participate in a full day team building program that included a high ropes course and zip line. They also got to cook some of their own meals and desserts

on a grill. In the evenings, the CITs participated in counselor skill building workshops rounded out with some relaxation by the camp fire before bed each night.

The Counselors in Training were given the respon-sibility to come up with their own activities for the

campers while at Camp HONOR. All the Counselors in Training successfully assisted in the evening activi-ties and daily life at camp. We encourage anyone who is interested in the CIT Program to contact Josh at our office!

Each year, in the spring, we host a New Family Picnic and a Camp Picnic for members of the bleeding disorders

community in Arizona. Our New Family Picnic was in March again this year and provided general orientation for families of children who have never been to camp. It also provided them with an opportunity to meet some of the camp staff and have questions answered. The Camp Picnic was in April and we invited the whole community out for this year’s picnic, along with dozens of members of the Fraternal Order of the Eagles, who had chosen us as their

charity of the year. The picnic gave both new and returning campers and their parents an opportunity to mingle and discuss camp with both camp staff and experienced campers. Campers enjoyed playing games while parents spoke with other parents and heard presentations from senior camp staff members.

The members of the Fraternal Order of the Eagles were able to see how valuable their fundraising is

to the AHA!

New Family and Camp Picnics

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BleedHERs, an adult social and educational group for women with bleeding disorders, as well as carriers,

mothers, wives, daughters and sisters of individuals with inherited bleeding disorders, offers educational and entertaining events through the year. In March, the ladies got together to prepare dinners for their family, then gathered for a meal of their own. On July 16, the

women will meet for a painting party and dinner at our AHA office and in October, they’ll gather again for the Women’s Retreat in Tucson. We look forward to all of the activities this social group has to offer to the women of the bleeding disorders community throughout the year!

BleedHERs

Men’s Retreat

The Men’s group gathered for a weekend retreat in April. The

group traveled to Prescott Pines. The camp offers 85 acres of forested land and is ADA accessible. The men who attended were able to take full advantage of educational activities

as well as bonding time, fun activities (check out the human foosball photo!) and a relaxing time fishing

and enjoying the beautiful scenery of the camp.

Contact Steve Pond at our office for more information or if you’re interested in becoming part

of the Men’s Group!

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EpicEpic is our teen program focusing on transitional education and networking. The teens in our

community have had a busy year, meeting in January for a trip to Tucson, then in March, several of our Epic members met to kick off the first ever Future Leaders Program, which is featured on page 16. Some members of our Epic group met again as CITs and campers at Camp HONOR. There

are several more Epic programs

scheduled for the year

including a c t i v i t i e s

planned for the Epic teens at our

Annual Statewide Meeting in August, an event planned for October, and a final get together in December. If your teens are interested in getting involved with this or any of our teen-targeted programs and services, give us a call at 602-955-3947!

Welcome Our New Administrative Assistant!

Meet Our New TEAM Mentor!

Steve Pond, our new TEAM Mentor, has been a member of the Arizona Hemophilia Association for six years. His experience includes teaching

and coaching for thirteen years in the west valley, where he taught Biology and Chemistry. Upon finishing his Masters in Education Steve took the position of TEAM Mentor with the Arizona Hemophilia Association. We are excited to have him on our team and hope you’ll help us in welcoming him! To contact Steve, give us a call at our office (602) 955-3947 or email him at Steve@ArizonaHemophilia.org.

David Cabrera has been working for the Arizona Hemophilia Association as the administrative assistant since April. Prior to

working with us, he has volunteered for various AHA events such as Camp Honor, Salsa, and Legislative Days. David and his family have been involved in the AHA for over a dozen years and we are happy to welcome David to the team! As administrative assistant, David will have the opportunity to help out with all our programs, services and events, while also be there to greet you, both in person and on the phone. Please help us in welcoming David to the AHA team! You can contact David by calling our office or emailing him at David@ArizonaHemophilia.org.

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Future Leaders Program

HOW WE SPELLCOMMITMENT

ALLIN

Actions are louder than words.When it comes to commitment, we believe you are either

“all in” or you’re not. There’s no in-between.

For a quarter-century, the people of Bayer HealthCare have been committed to helping people with

hemophilia A and their families with a wide array of community programs and support services.

For information on Bayer’s Educational Patient and Community Resources, contact your Hematology Account Executive by calling

1-888-79-BAYER.

©2015 Bayer HealthCare Pharmaceuticals Inc. All rights reserved. BAYER, the Bayer Cross are registered trademarks of Bayer. 5/15 PP-575-US-1724

The Future Leaders Program kicked off to a great start! For the first time ever, the AHA hosted

a teen specific Legislative Advocacy program, with fantastic results! Through this program, we gave a group of 8 high school age community members a two-night, two-day training session on bleeding disorder history, public speaking skills, advocacy strategies and the importance of advocacy.

The teens also spent time reviewing how the legislative process and state government works.

Then, at our Legislative Day, Lunch on the Lawn event, we put the teens to work networking with the legislators and meeting to discuss the advocacy efforts of the bleeding disorders community. We look forward to hosting this program on an annual basis! Give us a call if you're interested in getting involved!

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Legislative Day

Huge thanks to everyone that participated in the AHA’s Legislative Day & Lunch on the Lawn event this year! Your

consistent efforts have made our organization and our community well known and well liked at our State’s Capitol! Our community members attended scheduled meetings with Legislators in their voting districts as well as meeting with Legislators and their staff members over lunch.

The sincerity and the passion from members of our community truly

touched many of these elected officials. Legislators from both sides of the political aisle have voiced their support for finding ways to address some of the issues that families with bleeding disorders in AZ must face.

Please keep in touch with your Legislators, building that relationship so that our community remains in their hearts and minds. Use

the incredibly powerful tools that you already possess, keep telling your story honestly about how bleeding disorders affect your life. With your help, people will understand the challenges that the bleeding disorder community faces, we will be able to move forward with tackling those challenges, and improve the lives for people with bleeding disorders.

NHF Washington DaysThis year, the AHA was able to sponsor six key

members from the bleeding disorder community in Arizona to travel to the National Hemophilia Foundation’s Washington Days event in Washington D.C. Our members joined over 300 people from 43 different

states in meeting with our respective representatives in the US Senate and House of Representatives.

The group spent the first day training how to approach the national legislators. The issues

presented were to be focused on the federal hemophilia programs, ensuring access, and education and research. The group requested to maintain full funding for the federal hemophilia programs at the Maternal and Child Health Bureau and Center for Disease Control. The second request was to ask for the co-sponsoring of the bill PATA (Patients’ Access to Treatment Act), PATA would allow and enable patients’ access to treatments, reduce disability, and limit healthcare costs.

If you would like help contacting your legislators, please contact the Arizona Hemophilia Association!

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Arizona Hemophilia WalkOctober 18, 2015

Charity Golf Tournament

The 16th Annual Arizona Desert Classic Golf Tournament is a competitive golf tournament that benefits the Arizona Hemophilia Association. Registration includes 18 holes of Golf,

breakfast, lunch, drink tickets, tee gift, silent auction, raffle prizes and more!

Thursday, December 3, 2015 atOcotillo Golf Resort

Shotgun Start at 8am

Register by calling Gretchen at (602) 955-3947

December 3, 2015

Mark your calendars for this year’s Hemophilia Walk!Whether you wish to walk or simply register to be a fundraiser, collecting donations from family, friends and co-workers, your efforts will help improve the quality of life of those

individuals and families affected by bleeding disorders! Sunday, October 18, 2015 at

the Phoenix Zoo

Registration at 6:45 am/Walk at 8am

Online Registration is Open!!Walk.ArizonaHemophilia.org

UPCOMING EVENTS

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Back to School Community Picnic

UPCOMING PROGRAMS

August 1, 2015

Annual Statewide Meeting

The Annual Statewide Meeting is an education event that provides opportunities for individuals and families affected by inherited bleeding disorders to learn about their disorder

and how to better manage it as well as meet and share with other community members.

This year’s theme is Back to the Future. The 10th Annual Statewide Meeting will be held at the Hilton Phoenix/Mesa in Mesa. The weekend will be filled with fun and educational activities

including a trip to Sunsplash for dinner on Saturday evening (remember your swim suits!) and information on VWD, joint health, healthcare, family planning, and more! Childcare with age appropriate activities will be provided for children aged 17 years and younger. Participation is reserved for members of the bleeding disorder community and their immediate family members only.

Register on our website by August 7, 2015!

August 28-30, 2015

Join us for our 2nd Annual Back to School Community Picnic on August 1 from 10-2! We’ll be barbecuing and enjoying water slides, and other water activities, so remember to bring your

towels for the kids!

Food and drinks will be provided. Children between 5 and 18 years old will receive

a back to school backpack.

Please RSVP to Josh by July 31st!

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Mark your calendars for our annual Hispanic Heritage Day on Sunday, September 27, 2015!

Hispanic Heritage Day is an educational day sponsored by Baxter to not only bring Spanish speaking families

together that are diagnosed with a bleeding disorder but to also encourage these families to be active participants in their community.

Registration opens soon, give us a call if you have any questions!

Camp H.U.G. (Hemophilia Uniting Generations) is the only family camp in Arizona for people with inherited bleeding disorders.

This is an opportunity for you and your family to live a weekend of the true summer camp lifestyle with hiking, arts & crafts, and

much more! It also gives family a taste of what Camp HONOR offers their kids each summer.

Camp H.U.G. will be held this year October 23-25 at Prescott Pines in Prescott, Arizona. Transportation will be provided.

Online registration will open in August, call Josh

for more information!!

Hispanic Heritage Day

UPCOMING PROGRAMS

Women’s Retreat

Camp H.U.G.

The Women’s Retreat is an educational and social event focusing on issues faced by those

who have a bleeding disorder, as well as mothers, wives, daughters and sisters of inherited bleeding disorder patients. It provides support and education to women while enjoying a relaxing environment.

This year’s event will be held October 3-4, 2015 at the White Stallion Ranch in Tucson,

Arizona.

Online applications will be availablesoon! Check with Yleana or Jess for more information!

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Arizona Bleeding Disorders Health and Wellness Center

Dr. Ken Pettit comes to the Arizona Bleeding

Disorder Health and Wellness Center with over 15 years of experience providing comprehensive primary care treatment. His philosophy is to treat the whole person and work in collaboration with the patient and family to determine the treatment plan. Dr. Pettit has been a family practice physician since 1997. He received his medical degree from Western University of Health Sciences, College of Osteopathic Medicine of the Pacific.

Dr. Pettit is board certified and in addition to family practice, he has specialized in urgent

care, home health, hospice and wound care and has been voted “Physician of the Year” numerous times in Ahwatukee.

Dr. Pettit is the founding member of Comprehensive Wound Care, which became

the largest wound care program in Arizona, providing wound healing and hyperbaric medicine to the hospital based wound centers and skilled nursing facilities throughout the valley.

Meet Our Nurse Practitioner!Katerina Boukouvala, RN, MSN, FNP-BC

Nurse Practitioner

Meet Our Physician!Kenneth Pettit, DO

Medical Director

Katerina is a board certified family nurse practitioner (FNP). She comes to the Arizona

Bleeding Disorders Health and Wellness Center (ABDC) with over 16 years nursing experience in family primary care, urgent care, hematology and oncology. Prior to coming to the ABDC, Katerina worked at Ironwood Cancer and Research Centers helping patients manage their hematology and cancer healthcare needs.

Katerina has also received specialized training in

pain relief and control. In her years of experience, she has managed patients with different chronic illnesses and understands the importance of integrated, comprehensive care

personalized for each patient. She will partner with you and your family to ensure that your care is coordinated and managed.

Dr. Pettit and Katerina are both excited to help those living with bleeding disorders

and their families better navigate the health care system, improve access to quality care, coordinate and manage care with other specialists, and ensure integrated treatment of the whole person!

We provide primary care to ANY adult, 18 years and older. We also provide bleeding disorders care. We offer an integrated approach to treat the whole person and act as the conduit for all of your medical care needs. We partner with other specialists to

provide seamless, coordinated care.

The Arizona Bleeding Disorders Health and Wellness Center has officially reopened!

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De BioScience de Baxter a Baxalta…Se espera que la marca BioScience de Baxter se convierta en Baxalta a mediados de 2015.En BioScience de Baxter, vemos un mundo de posibilidades sin límites para nuestros pacientes. Y a pesar de que nuestro nombre esté cambiando al de Baxalta, nuestro compromiso hacia usted sigue siendo tan firme como siempre. La fundación de nuestra compañía cuenta con un legado duradero de innovación y apoyo. La vida de sus pacientes nos inspira para lograr una diferencia significativa, para que ellos puedan soñar en grande y disfrutar la experiencia de la vida. Estamos entusiasmados con las posibilidades que trae el futuro, ¡y esperamos que usted también lo esté!

Baxter es marca registrada de Baxter International Inc. USBS/MG1/15-0020(1)a Febrero de 2015

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Upcoming Events & Programs

For more information, visit our website:

www.ArizonaHemophilia.org

August (1) Back to School Picnic

(13-16) NHF Annual Meeting (28-30) Annual Meeting

September (13) Men’s Group

(27) Hispanic Heritage Day

October (3-4) Women’s Retreat

(10) Epic

(18) Arizona Hemophilia Walk

(23-25) Camp HUG

November

(6-8) NOW Conference

(12) Advocacy Summit

(14) HAPY

(19) Outreach Day

December (3) Golf Tournament

(5) BleedHERs (12) Holiday Party (Phoenix)

(13) Holiday Party (Tucson)

(19) Epic

Contact Information Update

Haveyoumovedrecently?Changedyouremailaddress?

We are constantly updating our database so if you receive any mail/email with incorrect information please let us know so we can fix it! Please call our office at (602) 955-3947 or email millie@arizonahemophilia.org with any updates.

826 N 5th AvePhoenix, AZ 85003

Come walk with us! October 18, 2015 at the Phoenix Zoo!

Create your own team or walk

virtually!Walk.ArizonaHemophilia.org

Thursday, December 3, 20158 am Shotgun StartOcotillo Golf Resort

16th Annual Arizona Hemophilia Association Golf Tournament