Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013

8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013

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aprojectof

Taking Charge:

Tips for Self-Advocates

Presented by Self Advocates Becoming

Empowered


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Taking Charge: Tips for Self-Advocates

If you find it hard to give

feedback to your support

staff This webinar is for you!

By Self-Advocates Becoming Empowered

Max Barrows, Nicole LeBlanc and Katy Griffith hire and supervise their own

staff. The experience can be a rewarding one. Learn how to get your support

staff to do what you need them to do. We share tips on how to be your ownboss. Learn about hiring and firing staff and being in charge of your services.

It is important to be proactive (not just reactive) in managing your staff.

Presenters draw from personal experience to provide tips on training,

supervising, giving feedback to your team and guide you through challenging

situations that you may potentially encounter. This webinar may be helpful for

family members who hire and supervise support staff. 2


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ResourcesA toolkit For People With Disabilities: Find, Choose and Keep Direct Support

Professionals

http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf

Self-Directing Supports in North Dakota

http://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdf

Oregons - How Do I Hire and Direct Employment Support Providers?

http://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdf

Your Life Your WaySelf-Directed Supports in Florida

http://www.fddc.org/sites/default/files/file/publications/10001009.PDF

A Guide For Self-Directing Services from Georgia

http://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF

%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdf

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http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdfhttp://www.fddc.org/sites/default/files/file/publications/10001009.PDFhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://www.fddc.org/sites/default/files/file/publications/10001009.PDFhttp://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdfhttp://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf


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ResourcesNational Resource Center for Participant-Directed Services

http://www.bc.edu/content/bc/schools/gssw/nrcpds/whoweare.html

University of Minnesota: Consumer/self-directed services

http://ici.umn.edu/index.php?topics/view/29/

We Have Choices: A free video by Self Advocates of New York State

Http://rtc.umn.edu/rtcmedia/wehavechoices/

Connecticut Self-Directed Supports Free Toolkit

https://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asp

Self-Directed Services ToolkitNew Yorkhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdf

Kansas Self-Direction Tool Kit

http://www.kacil.org/self-direction-toolkit/

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http://www.bc.edu/content/bc/schools/gssw/nrcpds/whoweare.htmlhttp://ici.umn.edu/index.php?topics/view/29/http://rtc.umn.edu/rtcmedia/wehavechoices/https://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asphttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttps://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asphttps://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asphttp://rtc.umn.edu/rtcmedia/wehavechoices/http://rtc.umn.edu/rtcmedia/wehavechoices/http://rtc.umn.edu/rtcmedia/wehavechoices/http://ici.umn.edu/index.php?topics/view/29/http://ici.umn.edu/index.php?topics/view/29/http://www.bc.edu/content/bc/schools/gssw/nrcpds/whoweare.html


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Webinar Agenda:1. The Basics: Knowing Yourself (What You Want To Do And

What You Need Help With) And Advocating For Yourself

2. Communicating With Your Support Worker

3. Role Play Communicating When Things Are NOT Going Well

4. Finding And Hiring Someone To Assist You

5. Role Play How To Communicate What You Need During An

Interview

6. Max Barrows Interviews Katie Griffith From Arizona

7. Training And Evaluating

8. You Have Choices

9. Realities And Responsibilities Of Being An Employer

10. The Pros And Cons Of Managing Your Own Services

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So You Want To Be In Charge

When It Comes To Your Support Staff?

Begin by asking yourself

What do I need?

How do I want someone to

assist me?

Am I going to get along with

the person?

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It Is All About Building Relationships!

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The Hard Stuff

Communicating while things

are NOT going well!

Making an I Statement.

I feel____________

when you_______________.I need you ______________.

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Role Play

You have set the expectation that there will be no cellphone use on your time. Your support worker is

texting or talking on the phone all the time. How

would this make you feel?

Happy

Annoyed

Frustrated

I feel annoyedwhen youre on the

phone all the time.

I need you not to do that

when you on the clock. 10


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Communicating when things are going well is

just as important. You may ask why?

Creates a better work environment

Show trust

It helps your support worker feel they aredoing their job well

Helps them continue doing things the wayYOU want.

Helps maintain a good relationship.

Communicating with your

Support Worker

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Steps To Figure Out What Kind Of Person You Want To Hire

Step 1: Describe your current and past staff.

What do you think they liked about working with you?

What do you think they disliked about working with you?

What was important to them?

Step 2: Describe yourself

What is important to you?

What do you like to do?

What are the good and hard parts about working with you?

Step 3: Identify reasons people have left their job with you

Why have people left their job with you in the past?

Is there anything you can change so this will not happen again?

Step 4: Where can you find the people you are looking for?

Step 5: Here are some ways to let people know about the job

Spread the word by talking to friends, family members, relatives and co-workers. If you meet someone who seems right for the job, ask them to consider interviewing for it.

Post flyers that describe who you are, the type of support needs you have and the kind of person

you want to work with you.

Write and place articles in local newspapers or bulletins about who you are and what type of

support you are looking for.

Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionalshttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 12

Before

You

Interview
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf


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Nicoles Hiring Tips

Think about your favorite staff personWhat did you like about the person?

What was going on in their life?

Where did they live?

Were they a man

or a woman?

How old were they?

When did they leave

and why?

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Before

You

Interview


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Maxs Hiring TipsMake a list of what you want the person

to know and be able to do? Be Good with computers

Interested in traveling

Make of list of your requirements Be on time

Be willing to work extra if my other staff are not

available

Be specific, describe what is really

important to you What things do you do everyday?

What accommodations work best for you?

What really bothers you?

What embarrasses you? 14

Before

You

Interview


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More Tools For Recruiting Support StaffCircle the qualities you are looking for in a person!

Assertive

Balanced

Calm

Caring

Committed

Common sense

Communicative

Compassionate

Conscientious

Consistent Cooperative

Creative

Decisive

Dependable

Determined

Diplomatic

Empathetic

Encouraging

Enthusiastic

Flexible

Good sense of

humor

Honest

Insightful

Takes initiative

Mature

Modest

Objective

Organized

Patient

Positive

Professional

Punctual

Resourceful

Respectful

Self-directed

Sincere

Smart

Understanding

Visionary ______________

______________

______________

Adapted from: A toolkit for people with disabilities looking for

quality, caring and committed direct support professionals

http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf15

Before

You

Interview


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Describe the Job

Interviews

Check references

Find out what experiences a person has that

are directly related to what your needs are

Criminal background checks

Learn about Non-Discrimination

Finding and Hiring Support Staff

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A Few of Nicoles Interview Questions

1. Tell me about Yourself2. I see you have experience with

working with adults with ASD andyou are computer savvy can youtell me more about this?

3. Give me an example of how youhandled a person with ASD have apanic attack, energy release, andor exhibiting extreme stress?

4. Do you have experience withdealing with adults who are pickyeaters?

5. Are you good at teaching people

how to deal with finances? 17


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More Sample interview questions

Why do you think you would like this job?

Tell me about where you have worked in the past and how long you

were there. What was your reason for leaving?Describe a typical day in your most recent job working with people

with disabilities. What was your favorite thing to do? What was your

least favorite?

What goals do you have for your future career?

Describe a disagreement or conflict you had at your most recentjob. What happened? What did you do to resolve it?

Tell me about the most difficult situation you have ever

encountered and how you dealt with it.

Describe a time when you helped someone you supported

advocate for something they really wanted. What was the situation?

What did you do and say? What happened? What did you learn?

My friend wants to learn how to cook but her mother is afraid she

wont be safe in the kitchen. If you worked with my friend, how

would you help her learn to cook? What would you say to her

mother about her safety concerns?

Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionalshttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 18


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Max Barrows Interviews Katie Griffith From Arizona

1. We have been talking about different ways

people manage their services. Do you manageyour services or do you have an agency do it?

2. What led you to that decision?

3. Do you have support staff?

4. Do you hire your own staff or does thecooperative give you a list to choose from?

5. How do you supervise your support staff?

6. If your support staff is late all the time, how

would you handle it?7. What advice do you have to communicate

with their support staff effectively?

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In Most States

You Have A Choice

Services managed by an Agency

Shared Management of Services

Self/Family managed services

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Realities And Responsibilities Of

Self/Family Managing Your Services

You are not alone! Each state has organizations

who can help. For example:

Supportive Intermediary

Service Organization (SISO)

Fiscal (Money) Intermediary

Service Organization

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Paperwork you need to do: Emergency facts sheet

Guardianship documentation Initial Assessments/evaluations supporting eligibility

Annual needs assessments/periodic review

Individual Support Agreement (ISA).

Responsibilities

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Budgets:

ISO will help you create abudget every year

Keeping track of how muchyou have and how muchyouve spent

If your budget faces a cut, youhave to prioritize yourspending.

Responsibilities

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Why Choose To Self-manage Your Services?

To take charge of their life. You have knowledge and

control of your budget.

You have control of who isinvolved in your life.

You have control overmeetings.

Less system paperwork

Pay your staff a livable wage

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Welcome Your New Support Person And Begin Training

What skills and values does a support person need to help you reach your dreams?

What do you need and want the support person to do?

Ask the support person to show you or tell you how they would support you.

For example, you could ask the support person the following

How would you assist me to save up for a trip?

How would you help me get a tattoo?

What would you do if I wanted your support to go on a date?

Build on the knowledge, skills and attitudes that your support person already has

KnowledgeA support person may know what a catheter is, but maybe needs

to learn more about what community inclusion means.

SkillsA support person may be able to make meals and follow directions, but

may need to learn how to clean your room the way you want it done.

AttitudesA support person respects your beliefs and choices and supports youto do things that are important to you, even if he or she does not agree with the

importance of an activity.

How can you best teach the support person to support you the way you want?

Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionals

http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 25


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More Suggestions For Giving Staff Feedback

Giving feedback is a positive way to support the staff person

Review how the support person's is doing often, like every

month or two.

Tell the support person what he or she is doing well.

Explain what the support person could do better.

Listen to the support person's concerns about the work

situation.

Ask questions about how the support person can support you

better. Be clear about what you expect on the job and how to do it.

Provide the right tools so the support person can do the job

better.

Celebrate the support person's good work.

If you need to tell support persons how to do something better, askyourself the following questions

How would you like to hear the feedback you are giving?

How will you tell your support person about the things they

could do better?




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EVALUATION: Work Review And Improvement Plan

List the top three things you want your support person to do:

How well is the support person supporting your needs and wants?

List the tasks or duties that the support person knows and can do best:

List the tasks or duties that the support person might be able to improve on:

List some ways that the support person has continued to grow

List some duties or responsibilities the support person would like to or needs to

know more about:

Work and professional growth plan. Do this plan together with your support person.Use the information you and your support person have talked about in the support

persons performance review to help guide you in creating this plan.

Describe 2 or 3 goals to help the support person improve their work and continue to

grow professionally.

State specific action steps the support person will take to meet their goals:Describe the resources and supports the support person will need to meet their

goals. How will you help the support person achieve these goals?

How will you and the support person celebrate when the goals are achieved?




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Website:

www.autismnow.org

Information & Referral Call Center:

1-855-828-8476

PowerPoint/Recording:

Email Phuong ([email protected]) to requestmaterials!
http://www.autismnow.org/http://www.autismnow.org/mailto:[email protected]:[email protected]://www.autismnow.org/http://www.autismnow.org/