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THE AUTISM GUIDE: The Only Guide you will ever need autism treatments, methods, organizations and approaches from Around the World Updated every 6 months! LASTEST UPDATE : January 2015 FEATURING: Organizations: Autism Organizations some well known, some not - all helpful to families and teachers. Approaches: Behavioral, Educational, and Psychological CAM Therapies: Aromatherapy, Hyperbaric, Vision, Music, Art, Equine, Massage, biofeedback, holistic, diet Treatment: Speech, OT, PT, Sensory Integration, Auditory Integration Parent Organizations: Support, Advocacy, safety issues Over 14 Pages and updated every 6 months or sooner! Compiled and Edited by: Sally J. Colletti Advocates For Autism, NY Copyright 2013

THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

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Page 1: THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

THE AUTISM GUIDE: The Only Guide you will ever need

autism treatments, methods, organizations and approaches from Around the World Updated every 6 months!

LASTEST UPDATE : January 2015

FEATURING:

Organizations: Autism Organizations – some well known, some not - all helpful to families and teachers.

Approaches: Behavioral, Educational, and Psychological

CAM Therapies: Aromatherapy, Hyperbaric, Vision, Music, Art, Equine, Massage, biofeedback, holistic, diet

Treatment: Speech, OT, PT, Sensory Integration, Auditory Integration

Parent Organizations: Support, Advocacy, safety issues

Over 14 Pages and updated every 6 months or sooner!

Compiled and Edited by:

Sally J. Colletti

Advocates For Autism, NY Copyright 2013

Page 2: THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

2

Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

APPROACHES - BEHAVIORAL, EDUCATIONAL, PSYCHOLOGICAL

The Incredible 5-Point Scale www.5pointscale.com

E-mail either Kari or Mitzi at:

[email protected] or [email protected]

Applied Behavioral Analysis

550 West Centre Avenue, Suite 1 Portage, MI 49024

(269) 492-9310

www.abainternational .org

Center for Autism Spectrum Disorders

Institute for Child Development

Dr. Raymond G. Romanczyk Binghamton University campus

4400 Vestal Parkway, Vestal NY, 13850

http://icd.binghamton.edu

Autism Treatment Center of America

www.autismtreatmentcenter.org

1-877-766-7473 or outside the U.S. at 001-413-229-2100

The Miller Method www.millermethod.org

LCDC, Inc.

154 Wells Avenue, Suite 5

Newton, MA 02459

USA Tel: (800) 218-LCDC (5232) or (617) 965 0045

E-mail: [email protected]

DIR/Floortime Model

Stanley I. Greenspan, M.D.

7201 Glenbrook Road

Bethesda, Maryland 20814

(301) 657-2348

www.stanleygreenspan.com

TEACCH – Treatment and Education of Autistic and Communication Handicapped Children

For general information about the TEACCH Program, please contact

www.teacch.com

Relationship Development Intervention

4130 Bellaire Boulevard suite 210

Houston, Texas 77025

Toll-Free: 866.378.6405

www.rdiconnect.com

Integrated Self-Advocacy Cirriculum

Page 3: THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

Valerie Paradiz, PhD

4182 Adams Avenue, San Diego, CA 92116

Tel: (619) 961-7210 || Fax: (619) 563-6840

Email: [email protected]

Social Stories™ – Carol Gray 4123 Embassy Dr. SE

Kentwood, MI 49546

616.954.9747

Fax: 616.954.9749

[email protected]

www.thegraycenter.org

Jed Baker, Ph.D. 29 Collinwood Road

Maplewood, New Jersey 07040

www.jedbaker.com

Tony Attwood, Ph.D.

The Asperger's Syndrome Clinic

PO Box 224

Petrie QLD 4502

Australia

Phone: (61) 7 3285 7888

Valerie Paradiz, Ph.D.

Autism Consulting, author

www.valerieparadiz.com

Linda Mood Bell Learning Process

416 Higuera Street

San Luis Obispo, CA 93401

800-233-1819

www.lindamoodbell.com

The Advanced Brain

5748 South Adams Avenue Parkway

Ogden, Utah 84405, United States

Email: [email protected]

Phone: 801-622-5676

Toll Free: 888-228-1798

Page 4: THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

LANGUAGE/COMMUNICATION

American Speech & Hearing Association National Office

2200 Research Boulevard

Rockville, MD 20850-3289

301-296-5700

www.asha.org

SECRTS- (Social Communication, Emotional Regulation and Transactional Support)

Barry M. Prizant, Ph.D., CCC-SLP PO Box 973

Wilbraham, MA 01095

Phone: (508) 965 - 5705

Fax: (413) 279 – 1361

www.barryprizant.com

Soma® Mukhopadhyay's Rapid Prompting Method HALO PO Box 303399

Austin, TX 78703

Toll-Free: (866) 465-9595

www.halo-soma.org

Spectronicsinoz

PO BOX 88 Rochedale Q 4123

AUSTRALIA

Phone: (07) 3808 6833

Fax: (07) 3808 6108

Email: [email protected]

www.spectronicsinoz.com

Picture Exchange Communication Systems

Available worldwide

1-888-732-7462

www.pecs.com

Facilitated Communication -

350 Huntington Hall

School of Education Syracuse University

Syracuse, NY 13244

315-443-5268

www.inclusioninstitutes.org/fci/

Picture This – (Real Photos)

[email protected]

888-777-0876

www.silverliningmm.com

Page 5: THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

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Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

DynaVox – Mayer Johnson (ACC Devices with Picture Symbols)

Available in US, UK, CA

2100 Wharton Street

Suite 400

Pittsburgh, PA 15203

866-396-2869

Visual Strategies – Linda Hogdon

QuirkRoberts Publishing

P.O. Box 71

Troy, MI 48099-0071 248-879-2598

www.usevisualstrategies.com

Applied Verbal Behavior

Dr. Vincent Carbone

614 Corporate Way Suite 1

Valley Cottage, NY 10989

845-267-0920

Continued on next page

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

COMPLEMENTARY AND ALTERNATIVE SERVICES (CAM)

The National Center for Complementary Alternative Medicine http://nccam.nih.gov

Autism Research Institute

4182 Adams Avenue San Diego, CA 92116

1-866-366-3361

www.autism.com

Dr Kenneth Bock

Rhinebeck Health Center

(845)-876-7082.

www.rhinebeckhealth.com

Massage Therapy

American Massage Therapy Association

500 Davis Street, Suite 900

Evanston, IL 60201-4695

Toll-Free 1-877-905-2700

Phone 847/864-0123

Fax 847/864-1178

www.amtamassage.org

Aromatherapy

National Association for Holistic Aromatherapy

3327 W. Indian Trail Road PMB 144

Spokane, WA 99208

PH: (509)325-3419 (PST)

FAX: (509) 325-3479

www.naha.org

Hippotherapy – Therapeutic Horseback riding

Southern Tier Alternative Therapies, Inc.

PO Box 1567

Binghamton NY 13902

www.statinc.org

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

Biofeedback

Association of Applied Psychophysiology and Biofeedback, Inc. 10200 West 44th Avenue Suite 304

Wheat Ridge, CO 80033

(800) 477-8892

www.aapb.org

International Stress Management Association (ISMA)

www.isma.org

US: University of Nebraska - Lincoln

135 Mabel Lee Hall

Lincoln, NE 68588-0229 USA

Dietary Approaches and Gastroenterology:

Timothy M. Buie, MD

Associate in Pediatrics, American Board of Pediatrics

Timothy Buie, MD is a pediatric Gastroenterologist at the Lurie Center for Autism, a multidisciplinary program that treats

children, adolescents and adults with autism spectrum and other neurodevelopmental disorders.

Massachusetts General Hospital Phone: 617-726-8705

Or at Lexington: Lurie Center for Autism; Newton: Newton-Wellesley Hospital

The Gluten Free & Casein Free Diet (GF/CF)

The GFCF Diet Support Group

PO Box 1692 Palm Harbor, FL 34683

www.gfcfdiet.com

Talk About Curing Autism – Diet Tips page

http://gfcf-diet.talkaboutcuringautism.org/

Feingold Association of United States and International

554 East Main Street Suite 301

Riverhead, NY 11901

800-321-3287 (U.S. only)

1-631-369-9340 (Eastern Time)

www.feingold.org

Occupational Therapy and Sensory Integration:

American Occupational Therapy Association

4720 Montgomery Lane

PO Box 31220

Bethesda, MD 20824

www.aota.org

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The Spectrum Center

4715 Cordell Avenue, 3rd

Floor

Bethesda, MD 20814

(301) 657-0988

www.spectrumcenter.com

Occupational Therapy Associates

124 Watertown Street

Watertown, MA 02472

www.otawatertown.com

Sensory Integration Global Network – Ayres Sensory Integration ®

www.siglobalnetwork.org/asi.htm

Music Therapy

American Music Therapy Association, Inc. 8455 Colesville Road, Suite 1000

Silver Spring, Maryland 20910, USA

Phone: (301) 589-3300

www.musictherapy.org

Stanley Jordan Music Therapy

This has a full list of all international programs

http://www.stanleyjordan.com/Links/MusicTherapy.html#IntlOrg

Vision Therapy

Vision Help

www.visionhelp.com/autism/

The Optometrists Network ATTN: Rachel Cooper

93 Bedford Street, Suite 5D

New York, NY 10014

www.visiontherapy.org

American Optometric Association

http://www.aoa.org/

Page 9: THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

College of Optometrists in Vision Development

215 West Garfield Road, Suite 200

Aurora, OH 44202

P 330-995-0718 | 888-268-3770

www.covd.org

Art Therapy:

Listing of Art Therapy Links by Country: www.art-therapy.us/links.htm#International

HippoTherapy/Equine Therapy

American Hippotherapy Association, Inc.

136 Bush Road

Damascus, PA 18415

888.851.4592

www.americanhippotherapyassociation.org

Auditory Integration AIT Institute for Berard Auditory Integration Training (Berard AIT)

Available worldwide www.aitinstitute.org

AIT Resources

Auditory Integration Training (AIT) Services throughout the United States, Australia, Indonesia & Malaysia

P: +1.206.463.5237

25947 Gold Beach Dr. SW

Vashon Island, Washington 98070

www.aitresources.com

Hyperbaric Oxygen Therapy

International Hyperbaric Medical Association

Dr. Kenneth Stoller, Medical Director

4 Brunn School Rd.

40 Santa Fe, NM 87505

Phone: +1 505 955 8560

www.hbotnm.com

The Hyperbaric Therapy Center

Phone: (877) HYPERTC

www.hypertc.com

Page 10: THE AUTISM GUIDE...Contact: Advocates For Autism, Inc. – Sally J. Colletti College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

PARENT/INDIVIDUAL INFORMATION & SUPPORT

The American Epilepsy Outreach Foundation

P.O.Box 31078

Chicago, IL 60631

www.epilepsyoutreach.org

Stephen Shore, Ed.D.

www.autismasperger.net

Autism Support Network

Autism Support Network

Box 1525

Fairfield, CT 06824 (USA)

Tel: (203) 404-4929

SafeMinds

16033 Bolsa Chica St. #104-142

Huntington Beach, CA 92649

Telephone: 404-934-0777

www.safeminds.org

The National Society for Epilepsy

Chesham Lane Chalfont St Peter

Bucks SL9 0RJ

UK

01494 601 300

www.epilepsysociety.org.uk

Epilepsy Action Australia

1300 37 45 37

www.epilepsy.org.au

The Epilepsy Foundation 8301 Professional Place

Landover MD 20785

(800) 332 1000

www.epilepsyfoundation.org

The Autism Society of America

7910 Woodmont Avenue, Suite 300

Bethesda, Maryland 20814-3067

1-800-3-autism

www.autism-society.org

Autism Independent UK www.autismuk.com

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

Families for Early Autism Treatment

www.feat.org

USA and Canada

Asperger Syndrome Support (for those with AS in UK)

www.assupportgrouponline.co.uk

Talk About Curing Autism (TACA)

3070 Bristol Street, Suite 340

Costa Mesa CA 92626

949-640-4401

www.talkaboutcuringautism.org

Autism Speaks – USA, UK, Middle East and Australia

2 Park Avenue 11th Floor

New York, NY 10016

Phone: (212) 252-8584

www.autismspeaks.org

National Autism Association

1330 W. Schatz Lane

Nixa, MO 65714

877-622-2884

www.nationalautismassociation.org

Autism Network International

P.O. Box 35448

Syracuse NY 13235-5448

First Signs, Inc.

P.O. Box 358

Merrimac, MA 01860

978- 346-4380

www.firstsigns.org

Ahead with Autism PO Box 599

Riva, MD 2114

410.956.5882

www.aheadwithautism.com

Generation Rescue

1-877-98autism

www.generationrescue.com

Talk Autism

Box 1348

Princeton, NJ 08540

www.talkautism.org

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Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

ASPEN – Asperger Syndrome Education Network

9 Aspen Circle

Edison, NJ 08820

Phone: (732) 321-0880

www.aspennj.org

Autism United 100 W. Nicholai Street

Hicksville, NY 11801

www.autismunited.org

INDEPENDENT LIVING

Advocates For Autism

Sally J. Colletti

Twitter, Facebook

www.advocatesforautism.com

Canadian Centre on Disability Studies

56 The Promenade

Winnipeg, Manitoba, CANADA R3B 3H9

Telephone: (204) 287-8411

www.disabilitystudies.ca

TASH

My Life-Going FAR c/o : TASH

1025 Vermont Ave., Suite 300

Washington, DC 20005

Phone: 202-540-9020

www.tash.org

Center for Self Determination

www.centerforself-determination.com

The Marquette Group

www.themarquettegroup.com

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

SAFETY ISSUES:

4 Paws for Ability

253 Dayton Ave.

Xenia, Ohio 45385

www.4pawsforability.org

Autism Service Dogs of America

4248 Galewood Street

Lake Oswego, Oregon 97035

www.autismservicedogsofamerica.com

Assistance Dogs International

0114 261 7800

www.support-dogs.org.uk/ADUK.htm

Autism Risk Safety Management Mr. Dennis Debbaudt

2338 SE Holland Street

Port St. Lucie FL 34952

772 398-9756

www.autismrisksafetymanagement.com

Online and Print NEWS AND MEDIA

Schafer Autism Report by Lenny Schafer - www.sarnet.org

Autism One Radio - www.autismone.org/radio

Autism Spectrum Quarterly- www.starfishpress.com

Autism Spectrum News - www.mhnews-autism.org

Age of Autism – Editor Dan Olmstead – www.ageofautism.com

Examiner: Sally Colletti

continued on next page

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com

RESEARCH and TREATMENT CENTERS FOR AUTISM AND EPILEPSY

Mark R. Geier, M.D., Ph.D., FACMG, FACE

Genetic Centers of America The Institute of Chronic Illnesses

14 Redgate Ct., Silver Spring, MD 20905

(301) 989-0548

Clinic for Special Children Dr. Holmes Morton

Specializing in Amish and Mennonite 535 Bunker Hill Road

Strasburg, PA 17579

Phone: 717-687-9407

www.clinicforspecialchildren.org

Hardy Healthcare

Dr. Paul Hardy

62 Derby Street, Suite 3

Hingham, MA 02043

(781) 740-8300

www.hardyhealthcare.com

Manuel Casanova, MD University of Louisville Department of Psychiatry

500 S Preston St Bldg 55A Ste 217

Louisville, Kentucky 40292-1702

502-852-4077

Fernando Miranda, MD

Bright Minds Institute

1199 Bush Street, Suite 350

San Francisco, CA 94109

Phone: (415) 561-6755

www.brightmindsinstitute.com

Boyd Haley, Ph.D.

Chairman of Department of Chemistry Kentucky University

(859) 257-2300 x246

http://www.chem.uky.edu/research/haley/

Jim Adams, Ph.D. Arizona State University

PO Box 876006

Tempe, AZ 85287

(480) 965-3316

www.eas.asu.edu/~autism

Allan Sosin, M.D. Institute for Progressive Medicine 4 Hughes #175

Irvine, CA 92618

Telephone: 949-600-5100

Website: www.iprogressivemed.com

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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:

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University of Minnesota S. Hossein Fatemi, MD, PhD

321 Church Street SE

Minneapolis, MN 55455

http://www.neurosci.umn.edu/faculty/fatemi.html

University of Texas-Houston Medical School. Richard Frye, MD, PhD

Department of Pediatrics, Division of Neurology

6431 Fannin Street MSB 3.153

Houston, TX 77030

(713) 500-7113

http://ped1.med.uth.tmc.edu/faculty/bio-Frye-Richard.html

Illinois Magnetoencephalography (MEG) Center

Jeffrey Lewine, PhD

847-981-3690 or e-mail [email protected]

The Kilee Patchell-Evans Autism Research Group

University of Western Ontario – Department of Psychology Dr. Derrick MacFabe, Director

1151 Richmond Street

London , Ontario , Canada

N6A 5C2

www.psychology.uwo.ca/autism.htm

Athens Neurological Associates Dr. Jon Poling

1086A Baxter Street

Athens, GA 30606

800-929-9502

www.athensneuro.com/index.html

Center for Excellence in Autism Research Dr. Nancy Minshew

Webster Hall, Suite 300,

3811 O’Hara Street, Pittsburgh, PA 15213

866-647-3436

www.wpic.pitt.edu

Dr. Darold Treffert St. Agnes Hospital

430 E. Division Street

Fond du Lac, WI 54935

(920) 921-9381

The United Mitochondrial Disease Foundation The United Mitochondrial Disease Foundation

8085 Saltsburg Road, Suite 201

Pittsburgh, PA 15239

1-888-317-UMDF (8633)

www.umdf.org

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Centers for Autism Treatment in the U.S. as recommended by the National Institute of Health

Research Centers

Mount Sinai School of Medicine (Multigenerational Families and Environmental Risk for Autism

Network)

University of California, Davis (Intervention Effects of Intensity and Delivery Style for Toddlers with

ASD)

University of California, Los Angeles (Adaptive Interventions for Minimally Verbal Children with ASD

in the Community)

University of California, Los Angeles (Autism Genetics: Increasing Representation of Human Diversity)

University of North Carolina at Chapel Hill (A Longitudinal MRI Study of Infants at Risk for Autism)

University of North Carolina at Chapel Hill (Study of Oxytocin in Autism to Improve Reciprocal Social

Behaviors [SOARS-B])

Yale University (Multimodal Developmental Neurogenetics of Females with ASD)

Evaluation and Treatment in addition to the above who also perform evaluations:

Lurie Center/MassGeneral Hospital (Lexington, MA) Contact: Christine Ferrone Phone: (781) 860-1715

Seaver Autism Research Center

Icahn School of Medicine at Mount Sinai

Department of Psychiatry

Box 1668

One Gustave L. Levy Place

Ne Tel: 212-241-0961

New York, NY 10029

University of Pittsburgh Medical Center (Pittsburgh, PA) Contact: Cathy Wolfe Phone: (412) 235-5412 [email protected]

University of Rochester (Rochester, NY)/Gollisano Children's Hospital - ask for Dr. Susan Hyman Contact: Alison Diehl Phone: (585) 275-7701 [email protected]

Children's Hospital of Philadelphia (Philadelphia, PA) Contact: Kathy Pinzone Phone: (267) 426-3023 [email protected]

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Cincinnati Children's Hospital Medical Center (Cincinnati, OH) Contact: Terry Mitchell Phone: (513) 636-1665 [email protected]

University of Missouri (Columbia, MO) Contact: Alicia Curran Phone: (573) 884-7544 [email protected]

Nationwide Children's Hospital (Columbus, OH) Contact: Amy Hess Phone: (614) 355-8315 www.nationwidechildrens.org/autism-treatment-network

Arkansas Children's Hospital / UAMS (Little Rock, AR) Contact: Hannah Feild (501) 364-4665 [email protected]

Vanderbilt University Medical School (Nashville, TN) Contact: Nina Harris Phone: (877) ASD-VUMC (273-8862) [email protected]

Children's Hospital of Los Angeles (Los Angeles, CA) Contact: Kathryn Smith Phone: (323) 361-6102 The Center for Autism & Neurodevelopmental Disorders at UC Irvine (Irvine, CA) www.thecenter4autism.org (Santa Ana, CA) Contact: Maureen Dillon, LCSW Phone: (949) 267-040 [email protected]

Toronto ATN Site (Holland Bloorview Kids Rehab, Surrey Place Centre, Hospital for Sick Children) (Toronto, ON, Canada) Contact: Salina Eldon Phone: (416) 925-5141, ext 2270

University of Alberta and Glenrose Rehabilitation Hospital (Edmonton, AB, Canada) Contact person: Barb Traill Phone: (780) 735-8285 [email protected]