State Council on Developmental Disabilities San Bernardino Regional Office

Regional Advisory Committee Meeting

Saturday, October 12, 2019 9:00am – 12:00pm

ACTION:

INFORMATION:

San Bernardino

Regional Advisory Committee (RAC)

NOTICE/AGENDA Posted on

http://www.scdd.ca.gov/sanbernardino.htm

DATE: Saturday, October 12, 2019

TIME: 09:00 a.m. – 12:00 p.m.*

(*) ending time for these meetings is approximate and is intended solely for the purpose of travel planning. LOCATION: Vanderbilt Building 301 E. Vanderbilt, Suite 150 San Bernardino, CA 92408

**Added Location** LOCATION: Inyo/Mono Satellite Site 3627 Brookside Drive Bishop, CA 93514

Pursuant to Government Code Section 11123.1 and 11125(f), individuals with disabilities who require accessible alternative formats of the agenda and related meeting materials and/or auxiliary aids/services to participate in the meeting, should contact Regional Office by phone: (909) 890-1259 or e-mail: sanbernardino@scdd.ca.gov at least 5 days prior to the meeting.

[Note: Breaks will be announced as needed. Agenda items may be taken out of order to meet the Advisory Committee and its guests’ needs as necessary. Action may be taken under any agenda item]

THE PUBLIC MAY LISTEN IN BY CALLING: PARTICIPANT CODE:

1-800-839-9416 3396705

AGENDA

9:00 am– 9:01 am Call to Order Douglas Perkins, Chair

9:01 am– 9:02 am Establish Quorum Douglas Perkins, Chair

9:02 am – 9:15 am Welcome/Introductions Douglas Perkins, Chair

9:15 am – 9:20 am Approval of Minutes

• Saturday, August 10th, 2019

Committee Members

9:20 am – 9:25 am Handouts Provided to Committee

• Council Updates (May 21, 2019)

• Executive Summary

• DC Closure Update

• QA Update

• Bill Summary

SCDD Staff

9:25 am – 9:40 am Membership Committee Updates

• Vacant Seats

• Recruitment Efforts

SCDD Staff

9:40 am – 11:30 am • Regional Town Halls

Open Forum

1:45 pm – 2:00 pm Public comments on matters not on the agenda: This Section is for members of the public only; and is to provide the public an opportunity to comment and/or present information to the Advisory Committee on any matter that is not on the agenda. Each public member will be afforded up to five minutes to speak (unless, otherwise allowed by the Chair). Written requests, if any, will be considered first under this section. Additionally, the Advisory Committee will provide a public comment period not to exceed 5 minutes total for all public comments prior to Advisory Committee action on each item that is on the agenda.

Adjourn

Douglas Perkins, Chair

Next Meeting Date December 14, 2019

San Bernardino

Regional Advisory Committee (RAC) Minutes

08/10/2019

Location: SCDD, San Bernardino Regional Office 685 E. Carnegie Drive, Suite 125 San Bernardino, CA 92408

Posted on http://www.scdd.ca.gov/sanbernardino.htm

Members Present Kim Risser Carmela Garnica Julio Garnica Ernie Saldana Violet Arellano Member-At-Large Douglas Perkins, Chair Ronald Allan (via conference line) Maia Pawooskar, Secretary Members Absent Lannette Hollowell Cathy Rosas Cindy Cox Christina Christenson-Rockwell, Vice Chair SCDD Staff Tamica Foots-Rachal, Regional Manager Meeting called to order at 9:05 am

● Quorum established ● Welcome/Introductions

Approval of Minutes

● - Voting on the minutes – 06/08/2019, Carmela Garnica Motion to Approve the Minutes, Ernie Saldana 2nd, Minutes approved.

Handouts Provided to Committee ● Council Updates

○ Executive Summary, July 16, 2019 ■ Governor Newsom appointed six new council members

on June 14, 2019. ■ SCDD Projects o Excellence were presented by

managers Tamica Foots-Rachal and Yolanda Cruz ● San Bernardino Office: Disaster Preparedness ● Sequoia Regional Office: Law Enforcement and You

○ CRA/VAS Update Report ■ Fairview Developmental Center – December 2021

(unofficially October 2019) ■ Porterville Developmental Center – Closure December

2021 (General Treatment Area Only) unofficially September 2019

■ Canyon Springs Community Facility – No proposed Closure Date

○ QA Project Update Report ■ 11,000 Surveys received from families across California

with children 3-18 years of age living at home and receiving at least one Regional Center funded service.

■ Regional Centers covered by SCDD San Bernardino Regional Office:

● Inland Regional Center ● Kern Regional Center ● Tri-Countries Regional Center

○ LPPC Update/Summary ■ Governor Newsom signs State Council Sponsored

Apprenticeship Bill into Law. ● AB 1019 expands membership of the Division of

Apprenticeship Standards Interagency Advisory Committee on Apprenticeship to include the Director of the California Department of Rehabilitation and the Executive Director of the State Council on Developmental Disabilities.

■ 2019 Currently Active Bill Status – SCDD Sponsored or Supported

■ Current list of Bills was presented by RAC member Kim Risser that impact Individuals with Developmental and Intellectual Disabilities.

Membership Committee Updates ● Currently SBRO has no applications

o Vacant Seats ■ 2 seats - Mono County

● Recruitment Efforts o Regional Manager to travel to Bishop/Mammoth area to recruit.

Regional Office Strategic Plan ● The San Bernardino Regional office mission is to educate, motivate

and streamline services, so that self-advocates can be supported in their independence, individuality, advocacy and inclusion in the communities they live.

○ Regional Strengths – What do we do well ■ Trainings/Surveys (e.g.…IEP, Housing, Living Options,

Medications, Rights, SSI WYSW & More) ■ Self-Advocacy Groups (8) ■ Collaborative TA/Participation ■ Emergency Disaster Preparedness ■ Technical Assistance ■ Outreach Participation ■ Transportation Access Board ■ Special Populations – Employment SB County ■ WDB Participation

○ Who are our reliable partners and collaborators? ■ Autism Society of Inland Empire (ASIE) ■ United Cerebral Palsy (UCP) ■ Inland Regional Center (IRC) ■ Community Access Center (ILS Riverside County) ■ Rolling Start (ILS San Bernardino County) ■ Fiesta de Educativa ■ Exceptional Parents Unlimited ■ Housing (San Bernardino County) ■ PrepItForward

○ Regional Weakness – What do we need to improve ■ Increase trainings in threshold languages ■ Provide more trainings, outreach and increase

participation for outlying areas: ● Victorville/Barstow ● Temecula/Murrieta ● Bishop/Mammoth

■ Participate in vendor advisory committee ■ Peer trainings for self-advocates ■ Peer trainings for Parents ■ Person Centered Thinking (PCT) information

○ What are the gaps in how we serve our community? ■ Translation services impede ability to serve underserved

populations ■ Staffing needs impact ability to participate ■ Travel/Transportation limits SA participation ■ Person Centered Thinking (PCT)certified supports ■ Systems change activities minimal ■ Leveraging of services and funding ■ Technology

○ Threats/ Barriers – What are our Challenges What are our barriers to providing trainings, outreach and support?

■ Travel to outlying areas ■ Venues ■ Translation services ■ Leveraging of funds ■ Staffing ■ Transportation for families to participate ■ Competing events on the same day

○ Opportunities – What can we participate in Are there upcoming events we can participate?

■ Riverside County Employment EXPO – September 12, 2019

■ Epilepsy Center Conference – September 14, 2019 ■ Disability Sports Festival – October 5, 2019 ■ IRC Fall Festival - October 27, 2019 ■ Educate Advocate - TBD ■ IEHP – TBD (March 2020) ■ ASIE Walk- TBD (April 2020) ■ CVASA Walk – TBD (April 2020) ■ Elder Symposium - TBD ■ Day of the Child – TBD ■ DMSELPA Family Day - TBD

○ What do we want to achieve this next year? ■ Establish a Spanish speaking parent advocacy mentor

group (In Progress CV) ■ Develop a peer advocacy leadership (PAL) group

(In Progress CV)

■ Develop a parent advocacy leadership group (San Bernardino)

■ Develop a peer advocacy leadership (PAL) group (San Bernardino)

■ Go to Bishop and Mammoth at least once a quarter and provide trainings on leading systemic concerns for that region.

■ Establish community based self-advocacy groups in each county we serve (4)

○ What Meeting/Collaborations do we already participate and/or Support each month?

Goal 1 SDAC Meeting IRC – Tamica and Shannon SDAC KRC – Tamica Local SA Group (8) - Shannon OPARC Peppermint Ridge Desert Arc Canyon Springs Sheltering Wings

Goal 2 WDB (4) – Tamica (2) and Carol (2) Job Expo Planning – Tamica/Julie (CS) Special Pop. – Tamica EAC – Tamica Workability III – Carol/Valarie

Goal 3 SB Housing - Carol Homeless Care Team – Carol

Goal 4 IEDC (Health) - Carol CVRC (Health) -Tamica Safety Task - Tamica C.A.R.E. (4) - Tamica (1) Carol (2) Shannon (1) Julie/Robbin (CS)

Goal 5 WV SELPA - Tamica and Shannon DM SELPA - Shannon Ended this FFY PAC - Tamica and Shannon

Goal 6 RC Board – Shannon RAC (2) – Tamica (1) and Shannon (1)

1.1. SELF-DETERMINATION

1.1.1. Develop/Update SDP Curriculum 1.1.1.A. English 1.1.1.B. Spanish 1.1.2. Provide SDP Trainings; Self-Determination Overview, PCP Overview, Independent Facilitator Training 1.1.2.A. English

1.1.2.B. Spanish 1.1.3. Provide Support to SDAC 1.1.3.A. Statewide 1.1.3.B. Local SDAC 1.1.4. Handouts/Resources: 1.1.4.A. Hard Copies 1.1.4.B. Electronic 1.1.5.A. Provide Technical Assistance (TA); F/F, Email, Phone

1.2. SELF-ADVOCACY 1.2.1.A. PAL Academy (Prepare SA for peer trg./outreach) 1.2.2. SSAN 1.2.2.A. Develop/Update Curriculum 1.2.2.B. Provide Peer-led trg. 1.2.2.C. Provide Peer-led Outreach 1.2.2.B. Support SSAN Rep; Peer Trg. 1.2.2.C. Support SSAN Rep; Outreach 1.2.3. Collaborate w/ SA/peers to provide trg.; SA (Not SSAN)

1.2.3.A. Self-Advocacy 1.2.4. Convene Meeting (provide Support) 1.2.4.A SSAN 1.2.4.B. SAAC 1.2.4.C Local SA Groups 1.2.5. Handouts/Resources: 1.2.5.A. Hard Copies 1.2.5.B. Electronic 1.2.6.A. TA

2.1. EMPLOYMENT 2.1.1.A. Develop/Update Curriculum 2.1.2. Workshops/Trainings; 2.1.2.A. Dress For Success Why Work is Better Get the Job/Keep the Job 2.1.2.B CIE Expectations 2.1.2.C. CIE-related-for college/university teacher trg.

2.1.3.A. Job Expos (Collaborative planning for hiring events) 2.1.4.A. Innovation-gathering events 2.1.5. Handouts/Resources; 2.1.5.A Hard Copies 2.1.5.B. Electronic 2.1.6.A. TA

3.1. HOUSING

3.1.1.A. +Develop/Update Curriculum

3.1.2.A. -Provide Trainings; (Development/Provisions)

Housing Options - Affordable Housing Programs (HACSB)

Housing Rights/Barriers for the Disabled (LASSB)

3.1.3.A. - Collaborate W/Housing networks

3.1.4. Handouts/Resources;

3.1.4.A. - Hard Copy

3.1.4.B - Electronic

3.1.5.A - TA

3.2. HOUSING: 3.2.1.A. Develop/Update Curriculum 3.2.2.A. Provide Trainings; (Housing Rights, Decreasing Barriers, etc.) Living Options for Regional Center Individuals (SBRO12)

3.2.3. Handouts/Resources; 3.2.3.A. Hard Copies 3.2.3.B. Electronic 3.2.4.A. TA

4.1. SAFETY & HEALTH A. SAFETY: 4.1.1.A. Develop/Update Curriculum 4.1.2.A. Provide Trainings; Internet Safety Tips (SBRO12) Bullying/Enough is Enough (SBRO12) Emergency Disaster Preparedness (SBRO12) Fire Safety (Prep-it-Forward) Active Shooter (SBRO12 & Prep-it-Forward)

4.1.3.A. Prepare SA/FA as peer trainers 4.1.4.A. SA/FA collaborate w/provide peer-led trg's. 4.1.5.A. SA/FA Outreach 4.1.6 Handouts/Resources; 4.1.6.A. Hard Copies 4.1.6.B. Electronic 4.1.7.A. TA

B. HEALTH: 4.1.1.B. Develop/Update Curriculum 4.1.2.B. Provide Trainings; Health & Hygiene/Personal Care (SBRO12) Me & My Medications/Personal Care (SBRO12) 4.1.3.B. Prepare SA/FA as peer trainers

4.1.4.B. SA/FA collaborate w/provide peer led trg's. 4.1.5.B. SA/FA Outreach 4.1.6. Handouts/Resources; 4.1.6.B. Hard Copies 4.1.6.B. Electronic 4.1.7.B. TA

4.2. SAFETY & HEALTH PROFESSIONALS A. SAFETY-PROFESSIONALS: 4.2.1.A. Develop/Update curriculum 4.2.2.A. Prepare SA/FA Collaborate w/Trainings/Outreach for Professionals 4.2.3.A. Provide Trainings;

4.2.4.A. Engage in Collaborative Meetings 4.2.5.A. Engage in Community Events 4.2.6.A. Handouts/Resources Hard Copies & Electronic 4.2.7.A. TA

B. HEALTH-PROFESSIONALS 4.2.1.B. Develop/Update curriculum 4.2.2.B. Prepare SA/FA Collaborate w/Trainings/Outreach for Professionals 4.2.3.B. Provide Trainings

4.2.4.B. Engage in Collaborative Meetings 4.2.5.B. Engage in Community Events 4.2.6.B. Handouts/Resources Hard Copies & Electronic 4.2.7.B. TA

5.1. EARLY INTERVENTION 5.1.1.A. Develop/Update Curriculum 5.1.2.A. Provide Trainings; 5.1.3.A. Developmental Milestines 5.1.3.B. Early Start/Identificaion/Intervention 5.1.3.C. Service Resources/Support 5.1.3.D. Transition to School/IEP's/FAPE

5.1.3.E. Family/Self-Advocacy &Disability Awareness 5.1.4.A. Collaborative Meetings 5.1.5. Handouts/Resources; 5.1.5.A. Hard Copies 5.1.5.B. Electronic 5.1.6.A TA

5.2. INCLUSIVE EDUCATION 5.2.1.A Develop/Update curriculum 5.2.2. Provide Trainings; 5.2.2.A. Self-Advocacy & Disability Awareness; Due Process/Rights -SBRO12.OCRA.LASSB 5.2.2.B. FAPE/Inclusion; ABC's of the IEP (SBRO12) IEP Basics -SBRO12.OCRA.LASSB

IEP Advanced-SBRO12.OCRA.LASSB 5.2.3.A. Collaborative Meetings; SELPA's CRY-ROP 5.2.4. Handouts/Resources; 5.2.4.A. Hard Copies 5.2.4.B. Electronic 5.2.5.A TA

5.3. TRANSITION; Employment, Post and Edu, Indep. Living 5.3.1.A. Develop/Update Curriculum 5.3.2. Provide Trainings; 5.3.2.A. ITP 5.3.2.B. PCP 5.3.2.C. Employment Employment First Policy (SBRO12) CIE Trg.

5.3.2.D. Post-Secondary Edu 5.3.2.E. Self-Advocacy & Disability Awareness 5.3.3.A. Collaborative Meetings 5.3.4. Handouts/Resources; 5.3.4.A. Hard Copies 5.3.4.B. Electronic 5.3.5.A TA

6.2. FORMAL & INFORMAL COMMUNIY SUPPORTS (SDC MOVERS) 6.2.1.A. Inform SDC Movers about Community Options/Resources You & Your IPP Health & Hygiene/Personal Care Money Management Living Options Employment First Policy Why Work is Better

Self-Determination Program 6.2.2.A Inform SDC Movers about Civil Rights Your Rights Me & My Medications Anti-Bullying/Personal Safety Internet Safety/Personal Safety Let's VOTE 6.2.3.A. Handouts/Resources (Hard Copies) 6.2.4.A. Provide TA

6.3.3. Provide Trainings 6.3.3.A. Formal/Informal Community Supports Voting Rights (SBRO12) Social Security Incentives (SBRO12) 6.3.3.B. IPP Strategies Me & My IPP (SBRO12) 6.3.3.C. Complaints/Appeal Rights/procedures & Strategies RC Complaints & Appeals (SBRO12) 6.3.3.D. HCBS 6.3.3.E. IHSS 6.3.3.F. ABLE ACT/CalABLE

6.3.3.G. Disparity Data & POS Disparity trends 6.3.3.H. Systems Engagement, BoardsmanshipSA/FA Advocacy/Support groups 6.3.4.A. RC Voucher system 6.3.5. Handouts/Resources: 6.3.5.A. Hard Copies 6.3.5.B. Electronic 6.3.6.A. Provide TA

● San Bernardino Regional Office Community Outreach trainings

October 2018 to Present - 383 o 874 Self-Advocates o 735 Family Advocates o 1160 Others o 8,156 - Outreach materials provided

IRC Caseload Ratio Update

● As of June 27, 2019 IRC, has 39,206 Active cases. ● RC should have a staff ratio of 62:1 caseload, current caseloads 71:1 ● IRC currently has 773 employees 502 of those employees serve in

some capacity as case managers. ● Overall increase of 9 employees and 5 case managers.

Public Comments on Matters Not on the Agenda

● None Verified Meeting adjourn

● Kim Risser motions Maia Pawooskar 2nd’s adjourn 11:25am Next Meeting

● Saturday, October 12, 2019

1

September 17, 2019 State Council Meeting Summary

SIGNIFICANT ITEMS

• New Councilmembers Julio Garnica and Karen Millender sworn in. Julio is a self-advocate representing the San Bernardino/Inland Region. Karen is a family advocate representing the Orange County Region.

• The Council reviewed the Public Charge Rule. It is critical to have clear, accurate information: Disability Rights California’s overview Governor Newsom’s Guidance

• The Governor’s Office of Emergency Services and Pacific Gas and Electric talked about turning off electricity and gas during extreme weather to prevent fires Find out how it will work See what you can do

• The Council’s 2019-2020 Policy Platform includes: Self Determination Self-Advocacy Employment Housing Transportation Health Care Education Community Participation Transition to Adult Life Safety Quality/Rates for Service and Supports

• Council Chair Maria Marquez announced SCDD Committee assignments for Councilmembers

OTHER ITEMS

• During Public Comment, representatives from Disability Voices United offered comments regarding the Cycle 42 grants and concerns about the Statewide Self Determination Advisory Committee Goals

• Executive Director Aaron Carruthers gave a report including updates on the SCDD budget, DS Task Force progress, and the work of the State Plan. He also discussed employment and public safety, provided in-depth descriptions of the Cycle 42 grant projects, and welcomed new SCDD Information Officer Lea Park-Kim.

• Read more about the projects funded by the Council: 1) California Transition Alliance “Let’s Work, 2) California Supported Living Network “Quality Services Through Outcome-Based Measures”

COUNCIL ACTIONS

The Council:

• Approved the July 2019 minutes

• Approved the Sponsorship request from the FASD Network

• Approved the 2019 Executive Director Evaluation Tool and Timeline

• Approved the 2019-2020 draft legislative platform revisions with edits suggested by Councilmembers

• Approved the 2019 Nominating Committee

FUTURE MEETING

• November 14, 2019 – Crowne Plaza Sacramento Northeast, 10:00 am - 4:00 pm

Californians with developmental disabilities are guaranteed the same full and equal opportunities for life, liberty, and the pursuit of happiness as all Americans.

2020 Meeting Dates

MonthSelf-Advocates Advisory

CommitteeCouncil Meeting Location

January 27 28

Hilton Sacramento Arden West

2200 Harvard Street, Sacramento, CA 95815

March 16 17Doubletree Hotel Sacramento

2001 Point West Way, Sacramento, CA 95815

May 11 12

Hilton Sacramento Arden West

2200 Harvard Street, Sacramento, CA 95815

July 13 14

Hilton Sacramento Arden West

2200 Harvard Street, Sacramento, CA 95815

September 14 15

Hilton Sacramento Arden West

2200 Harvard Street, Sacramento, CA 95815

November 30

Hilton Sacramento Arden West

2200 Harvard Street, Sacramento, CA 95815

December 1

9/17/19

SCDD Committees 2019

Executive Administrative LPPC Employment FirstJulie Austin - Chairperson Lee Bycel - Chairperson Julie Austin - Chairperson Wesley Witherspoon - Chairperson

Catherine Blakemore Nicole Adler Diane Ambrose Barbara Boyd - CDE

Kilolo Brodie Kris Kent Jeana Erikson Cindy Chiu - DOR

Lee Bycel Francis Lau Connie Lapin (community) Sarah Isaacs - DRC

Jeana Eriksen Maria Marquez Michael Luna - DDS

Kara Ponton Julie Neward Olivia Raynor - UCEDD/UCLA

Maria Marquez Kim Rothschild Steve Ruder - UCEDD/M.I.N.D.

Wesley Witherspoon Wesley Witherspoon Larry Yin - UCEDD/USC

Membership State Plan SAAC CalABLEKara Ponton - Chairperson Kilolo Brodie - Chairperson Jeana Eriksen - Chairperson Sandra Aldana

Matthew Lagrand Nicole Adler Nicole Adler

Karen Millender Sandra Aldana Sandra Aldana SSAN RepRosie Ryan Robin Hansen Julio Garnica Wesley Witherspoon

Andrea Vergne David Pegos Matthew Lagrand

Maria Marquez SSDACKara Ponton Maria Marquez, Chair

Rosie Ryan

Wesley Witherspoon

Nominating DS Task ForceAndrea Vergne - Chairperson Maria Marquez - Task Force

Sandra Aldana Joyce Mcnair - Community Resources

Diane Ambrose Matthew Lagrand - Safety Net

Robin Hansen Diane Ambrose - Fiscal Reform

Rosie Ryan Lee Bycel - Transparency

Andrea Vergne - Access/Equity

Updated 9/16/19

Program Development Grant Cycle 42 Awardee

Name:

California Transition Alliance (Alliance)

Title:

“Let’s Work!”

Description:

Youth with IDD will make a documentary about

employment, which will be turned into six YouTube

videos and a social media campaign

State Plan Goal:

Employment

Project Summary The Alliance will produce a documentary, a series of videos, and digital content that will help individuals with I/DD reach their goal of achieving competitive integrated employment (CIE). To complete this project, the Alliance will be partnering with Inclusion Films and EIN SOF Communications. Inclusion Films’ role on the project will be to hire youth with I/DD to write, cast, produce, and edit a documentary that profiles a minimum of six youth and adults who have achieved CIE. They will also work with others who edit, contribute, and review production. This will employ approximately 16 individuals with I/DD who work in front of the camera and behind the scenes. Everyone employed will be paid at the minimum or prevailing wage. EIN SOF Communications will create How-To-Videos to complement the documentary. The videos will be short YouTube Clips to offer guidance on a wide variety of topics. Each video will be approximately 10-15 minutes.

The Alliance will assume the leadership role of the project. They will serve as the fiscal and programmatic office and the primary contact. In addition, they will recruit the CIE Stars and support all aspects of the project. The State Council on Developmental Disabilities (SCDD) will receive following from the Let’s Work! project:

• Documentary- Six California CIE stories, one business montage.

• How-To Webinars: Focusing on strategies to obtain CIE.

• Dedicated YouTube channel for all Let’s Work! media, including short videos with CIE teaching strategies.

• Lessons developed to support each concept.

• Business video: Employers sharing perspective and hiring strategies.

• Videos teaching the use of social media platforms as employment tools.

The videos will be captioned, audio-described, and available in English, Spanish, and Chinese. All the products created and/or produced under this contract will be created using authentic voice and distributed in plain language. All the resources will be available on CD for distribution to places in the state that lack connectivity. A social media campaign will be created using LinkedIn, Facebook, Twitter, and Instagram for the outreach and promotion. They will also be utilizing their email account which currently has 5,000 subscribers. Budget $255,348 Timeline October 2019 – September 2020 Background The CA Transition Alliance is a 501(c)(3) non-profit organization that was

founded in 2001. The Alliance's mission is to work with youth with

disabilities, their families, adult allies, and youth-serving adults to promote

successful transitions from high school to adult roles.

Inclusion Films was started in 2007 and teaches filmmaking to individuals with developmental disabilities in five dedicated production studios throughout California. They also travel the country doing short film camps for children and teens with autism. EIN SOF Communications is a leading disability-focused strategic marketing company specializing in branding, employment consultation for public, private, and non-profit sector clients. They specialize in disability-inclusive diversity and public policy.

Program Development Grant Cycle 42 Awardee

Name:

California Supported Living Network (CSLN)

Title:

“Quality Services Through Outcomes-Based

Measures”

Description:

Create a blueprint for an outcomes-based service

system, training for professionals, and ways to

measure these data outcomes.

State Plan Goal:

Formal and Informal Community Supports

Project Summary CSLN notes that in its letter regarding the rate study, SCDD wrote, “It is inconclusive as to whether this rate study when implemented would lead to a better quality of life. It is unclear if this rate study would lead to better outcomes or people with IDD. Also related to the rate study, the Legislative Analyst’s Office wrote, “When it comes to effectiveness goals, such as improving access and quality of services, assessing potential outcomes from rate reform is somewhat difficult. DDS and RCs do not currently collect data in a way that allows the state to systematically quantify gaps in access to services or unmet consumer need.” This project will (1) identify key service-level outcomes for support services, (2) outline direct support professional (DSP) training structure to support these outcomes, and (3) develop a plan for collecting, analyzing, and reporting data outcomes. At the conclusion of this project, SCDD will have a blueprint for moving California to an outcomes-based system that will impact the lives of all individuals with IDD and their families. To create this blueprint, CSLN will identify and convene a standing advisory group (AG) that will meet at least 8 times during the project period. The group will be comprised of approximately 20-25 members including service providers, representing multiple service lines and

geographical areas, individuals with IDD, family advocates, DDS, Regional Center staff, and SCDD staff. Half of the members will be people with IDD or family members. CSLN will create initial metrics that measure the efficacy of the advisory group’s identified outcomes. This metric design will be used to form a Request for Proposal for Total Quality Management consultants to design the surveys in accordance with TQM methodology. The surveys and data collection software development will not occur during this project year. The outputs that will result from this project are:

• Project Advisory Group (AG) • Work Paper: Proposed Outcomes and Outcome Definitions

• Work Paper: Outcome-Based Training Plan, DSP Credentialing, and Integration with Rates

• Final report CSLN will be partnering with Community Bridges Consulting Group, LLC. They will serve as a subject matter expert and provide report drafting. Budget $155,327 Timeline October 2019 – September 2020 Background Formed in 1996, CSLN is an association representing 110 agency members ranging from small to large in both revenues and number of individuals supported. The CSLN network is comprised of agencies supporting individuals with I/DD utilizing Personal Support Services (i. e. Independent Living, Supported Living, Respite, Supported Employment and Personal Assistance) which makes up roughly 55% of service recipients in California. Community Bridges Consulting Group works across the nation with government agencies, large health plans, provider organizations, and provider associations to analyze and develop person-centered and outcome-based policies.

1

State Council on Developmental Disabilities 5-yr State Plan Development: Open Meeting & Survey Questions

People with disabilities know what they need to be independent and an active part of their communities. The purpose of the State Council on Developmental Disabilities

(SCDD) is to make sure that people with intellectual/developmental disabilities and their families get the services and supports needed.

SCDD is developing the 2022-2026 State Plan What do you want us to work on?

1. Please put the following in order of importance from 1 to 11, where 1 is most important to you and 11 is least important to you1:

Service Areas (Please put in order of importance)

___ Child Care

___ Early Intervention (serving ages 0-3)

___ Education

___ Employment/Job

___ Formal and Informal Community Supports (generic services such as IHSS, MediCal, MediCare, faith-based & volunteer activities)

___ Health & Well-Being

___ Housing

___ Quality Assurance (things that would improve the quality of life)

___ Recreation/Social

___ Transportation

___ Other:

2. What did you put as #1 (most important)?__________________________

a. Why did you put this as most important to you?

1 We will work on Self-Advocacy, what else do you want us to work on?

Most Important

1 2 3 4 5 6 7 8 9 10 11

Least Important

2

b. What types of activities would you like the State Council on Developmental

Disabilities (SCDD) to focus on for this service area?

3. What did you put as #2? _____________________________

a. Why did you put this as the 2nd most important to you?

b. What types of activities would you like SCDD to focus on for this service area?

4. What did you put as #3? _____________________________

a. Why did you put this as the 3rd most important to you?

b. What types of activities would you like SCDD to focus on for this service area?

5. What types of Self-Advocacy activities would you like SCDD to do or “work on”?

6. How can SCDD help people with intellectual/developmental disabilities?

7. What else would you like the SCDD to know? (Use additional pages if you need to write

more).

3

8. Who are you? (Please check one)

Self-Advocate (a person with an Intellectual or other Developmental Disability)

Family Member of a Self-Advocate

Community Member

Service Provider

Other:

9. What city/town do you live in?____________________________

10. What age group are you in? Under 18 years old

18-55 years old

55 years or older

Do not wish to share

11. Which race do you identify with? (check all that apply)

White

Black or African American

American Indian or Alaska Native Asian

Native Hawaiian or Other Pacific Islander

Do not wish to share

12. Ethnicity: Hispanic or Latino

Not Hispanic or Latino

13. I am (check one): Male Female Other

For more information about SCDD’s activities, please visit scdd.ca.gov/stateplan/

Please return this survey to any of the following:

1. Your local SCDD Regional Office – (for locations see www.scdd.ca.gov)

2. Email: StatePlan@scdd.ca.gov 3. Fax: 916.263.7969

** This survey is anonymous. No information about you will be shared with any other agency or group.

September 2019

CRA / VAS Clients’ Rights Advocacy and Volunteer Advocacy Services

Census as of August 1, 2019 Total Population: 318

Northern STAR 3 Porterville DC 229

Fairview DC 38 Canyon Springs CF 48 Program Activity for June and July 2019

Northern STAR Unit formerly Sonoma Developmental Center

SDC placed the last individual on December 17, 2018. SDC campus will transfer to Dept of General Services from DDS on June 30, 2019. Northern STAR unit moved to the permanent residence in Vacaville. The VAS Program attended: 3 IPPs 2 Special team conference, 1 transition meetings, 1 day programming review, 19 community placement review meetings, 90 follow up contacts. CRA serves all clients in the Northern STAR.

Canyon Springs Community Facility As of August 1, 4 clients are admitted to Desert STAR. CRA reviewed 4 denial of rights; 2 human rights/behavioral meetings, 6 IPPs, 5 transition meetings, facilitated 2 self-advocacy meetings, attended 18 Emerging Risk Notification; assisted 9 clients with court communication, provided 6 rights and other trainings staff. VAS attended 9 IPPs, 10 special meetings, 2 transition meetings, 4 community provider visits at CS, 6 community home observations, 2 self-advocacy trainings conducted. VAS Coordinator attended 6 professional groups and/or trainings in the community.

Fairview Developmental Center

CRA attended following meetings: 14 transition, 10 IPPs or special team meetings, 2 denial of rights, conducted 5 FDC employee rights trainings; 7 acute crisis meetings, 3 human rights/behavior support committees, 1 court hearing. CRA serves all clients in the STAR unit. VAS Coordinator and advocates attended following meetings: 2 IPP, 22 transition, 2 denial of rights, 2 Human rights meetings, and facilitated a self-advocacy meeting.

Porterville Developmental Center CRA attended 8 human rights meetings, 13 IPPs, 16 transition meetings, 2 People First/human rights meetings, 7 escort reviews, 22 denial of rights reviews, 3 court appearances, 3 postural restraint review, and 1 bioethics meeting, 2 restricted access meetings, provided 1 staff trainings. VAS attended at PDC and in the community: 12 IPPs, 55 transition meetings, 6 escort reviews, 4 self-advocacy meetings, 1 human rights committee, 1 bioethics meeting, 1 advisory meeting, 2 self-determination, 12 court hearings. A CRA/VAS team member attends every transition meeting for PDC clients.

SCDD AT WORK INSIDE CALIFORNIA DEVELOPMENTAL CENTERS

SCDD provides comprehensive clients’

rights advocacy services (CRA) and

volunteer advocacy services (VAS) for

persons with I/DD who reside in or are

transitioning out of state

developmental centers and the state

operated community facility through

an interagency agreement with DDS.

Project Staff North Star - Sonoma Developmental Center

Ross Long, CRA/VAS

Michele Sloane, Office Tech

Porterville Developmental Center

Erika Flores, CRA

Judi Muirhead, VAS

Connie Wilson, Office Tech

Fairview Developmental Center

Laurie St. Pierre, CRA/VAS

Canyon Springs Community Facility

Robbin Puccio, CRA

Julie Hillstead, VAS

CRA/VAS Project Manager

Holly R. Bins

holly.bins@scdd.ca.gov

33

A PROJECT OF THE STATE COUNCIL ON DEVELOPMENTAL DISABILITIES

www.scdd.ca.gov/qap

Quality Assessment

Se

pte

mb

er 2

019

Child Family Survey Cycle Closed

SCDD has completed the

third collection cycle of

Child Family Surveys

(CFS). After mailing

surveys to 71,234

families, a total of 10,866

responses were received.

Those eligible to

participate in this cycle

are families across

California, with children 3-

18 years of age living at

home and receiving at

least one regional center

funded service.

The following pages break

down the response rates

by Regional Center,

language and type of

response.

HSRI and UC Davis will

continue to aggregate the

data collected and

compile public reports for

use by Regional Centers

and other stakeholders.

For more information on

the Quality Assessment

Project and National Core

Indicators visit:

www.scdd.ca.gov/qap

Scan QR Code to go

directly to QAP

Webpage

The National Core Indicators (NCI) are standard measures used across states to assess the outcomes of services provided to

individuals with intellectual/developmental disabilities (I/DD) and their families. Indicators address key areas of concern

such as employment, respect/rights, service planning, community inclusion, choice, health and safety. All responses

to the surveys are confidential. The aggregated data that results from NCI surveys are often used to inform strategic planning, produce legislative reports, and prioritize quality

improvement initiatives.

Deborah Kindley Support Staff: Marcie Yates Far Northern Regional Center North Bay Regional Center Redwood Coast Regional Center

Ron Usac ▪ Angel Wiley Support Staff: Valerie Buell Golden Gate Regional Center Regional Center of the East Bay San Andreas Regional Center George Lewis Support Staff: Marigene Tacan-Regan Alta California Regional Center Central Valley Regional Center Valley Mountain Regional Center Jenny Villanueva Support Staff: Dinah Pio de Roda ▪ Marina Bchtikian

East Los Angeles Regional Center Frank D. Lanterman Regional Center Harbor Regional Center North Los Angeles Regional Center San Gabriel Pomona Regional Center South Central Los Angeles Regional Center Westside Regional Center Nancy Dow Support Staff: Suza Szewiola Regional Center of Orange County San Diego Regional Center Carol Nakamura-Robinson Support Staff: Valarie Macias Inland Regional Center Kern Regional Center Tri-Counties Regional Center

QA Coordinator Regional Center Assignments

35

Chi ld Fami ly Survey Col lect ion Quick Look

s c d d . c a . g o v / q a pR e p o r t i n g t i m e f r a m e : N o v 2 0 1 8 - J u n e 2 0 1 9

Surveys Received by Mail

1953

1364

785

1887

1337 1365

472

Nov/Dec.. Jan 19 Feb 19 Mar 19 Apr 19 May 19 Jun 190

1000

2000

Paper surveys received Monthly8,274

272

S p a n i s h R e s p o n s e s

2,320

S u r v e y s R e c e i v e d b y M a i l

9,163 1,703D i r e c t E n t r y - S u r v e y s e n t e r e d O n l i n e b y

f a m i l y m e m b e r s

Total Child Family SurveyResponses

Available SurveyLanguages

71,234

10,866

13

English (76.15%) Spanish (21.35%)

Other Languages (2.50%)

8,274

2,320

272

Response Rate

Number ofFamilies WhoWere Mailed

Surveys36

AB 477 Cervantes (D) The California Emergency Services Act creates, within the office of the

Governor, the Office of Emergency Services, which is responsible for

addressing natural, technological, or manmade disasters and emergencies,

including responsibility for activities necessary to prevent, respond to,

recover from, and mitigate the effects of emergencies and disasters to

people and property. Existing law authorizes cities, cities and counties, and

counties to create disaster councils, by ordinance, to develop plans for

meeting any condition constituting a local emergency or state of

emergency, including, but not limited to, earthquakes, natural or

manmade disasters specific to that jurisdiction, or state of war emergency.

This bill would require a county, or a city and county, to include

representatives from the access and functional needs population, as

defined, in the next regular update to its emergency plan, as specified.

Health & Safety Support (Using Delegated

Authority)

5 x Support Letters

1 x Testimony by Council

Member Charles Nutt

AB 640 Frazier (D) Current law requires the Office of Emergency Services to establish an

advisory committee to develop a training course for district attorneys in

the investigation and prosecution of sexual assault cases, child sexual

exploitation cases, and child sexual abuse cases, including training in the

unique emotional trauma experienced by victims of those crimes. This bill

would require that training course to also cover the investigation and

prosecution of sexual abuse cases involving victims with developmental

disabilities.

Health & Safety Support (Using Delegated

Authority)

2 x Support Letters

AB 781 Maienschein (D) Current law provides that pediatric day health care is a covered benefit

under the Medi-Cal program and that pediatric day health care does not

include inpatient long-term care or family respite care. This bill would

specify that pediatric day health care services may be provided at any time

of the day and on any day of the week, so long as the total number of

authorized hours is not exceeded.

Health & Safety Watch N/A

SIGNED INTO LAW (9/5/19)

AB 1019 Frazier (D) Current law establishes the Interagency Advisory Committee on

Apprenticeship (committee) within the Division of Apprenticeship

Standards within the Department of Industrial Relations, and requires that

committee to provide advice and guidance to the Administrator of

Apprenticeship and the Chief of the Division of Apprenticeship Standards

on apprenticeship programs, standards, and agreements, as well as pre-

apprenticeship, certification, and on-the-job training and retraining

programs, in nonbuilding trades industries This bill would add to the ex

officio members of the committee the Director of Rehabilitation and the

executive director of the State Council on Developmental Disabilities.

Employment Support 4 x Support Letters

AB 23 Burke (D) Would establish a Deputy of Business and Workforce Coordination in the

Office of Small Business Advocate, to be appointed by the Director of the

Governor’s Office of Business and Economic Development. The bill would

require the deputy to collaborate and coordinate with the Labor and

Workforce Development Agency, State Department of Education, and

Office of the Chancellor of the California Community Colleges to engage

industry and business to better align career technical education courses,

workforce training programs, and pre-apprenticeship and apprenticeship

programs with regional and local labor market demand.

Employment Watch N/A

AB 365 Garcia, C. (D) Under current state civil service law, the Department of Human Resources

administers the Limited Examination and Appointment Program (LEAP) to

provide an alternative to the traditional civil service examination and

appointment process to facilitate the hiring of persons with disabilities.

Until January 1, 2021, the program includes persons with a developmental

disability, as defined. Current law, until January 1, 2021, specifies that

LEAP is a voluntary, additional method of applying for state employment

and is not a mandate on any state agency employer or job applicant,

except as specified. Current law also, until January 1, 2021, requires the

department to develop and create an internship program, in coordination

with specified state entities, and establish several related requirements to

that effect. This bill would extend all of the above described LEAP program

provisions indefinitely.

Employment Support

DRC Sponsored

2 x Support Letters

1 x ‘Me Too’ Testimony

STILL ACTIVE AS OF 8/19/2018

AB 1558 Ramos (D) Current law provides for the establishment of apprenticeship programs in

various trades, to be approved by the Chief of the Division of

Apprenticeship Standards within the Department of Industrial Relations in

any trade in the state or in a city or trade area whenever the apprentice

training needs justify the establishment. This bill would require a school

district or school to notify each apprenticeship program in the same

county as the school district or school of a career or college fair it is

planning to hold, as specified.

Employment Watch N/A

AB 34 Ramos (D) Would, commencing with the 2020–21 academic year, require each local

educational agency, as defined, to ensure that specified information on

bullying and harassment prevention is readily accessible in a prominent

location on the local agency’s existing internet website in a manner that is

easily accessible to parents or guardians and pupils. The bill would require

local educational agencies to include specified State Department of

Education policies and the policies adopted by a local educational agency

relating to hate violence, bullying, harassment, discrimination, and suicide

prevention and resources relating to these topics.

Education Support (Using Delegated

Authority)

4 x Support Letters

AB 605 Maienschien (D) Would require a local educational agency, including a charter school, as

defined, to provide, on a case-by-case basis pursuant to federal law, the

use of school-purchased assistive technology devices in a child’s home or

in other settings if the child’s individualized education program team

determines that the child needs access to those devices in order to receive

a free appropriate public education. The bill would also require a local

educational agency to be responsible for providing an individual with

exceptional needs who requires the use of an assistive technology device

with continued access to that device, or to a comparable device when that

individual, due to graduation or enrollment in another local educational

agency, ceases to be enrolled in that local educational agency.

Education Watch N/A

AB 1172 Frazier (D) Current law authorizes a master contract for special education and related

services provided by a nonpublic, nonsectarian school or agency only if the

school or agency has been certified as meeting specified standards.

Current law sets forth the certification process and procedures for the

nonpublic, nonsectarian schools or agencies that seek certification from

the Superintendent of Public Instruction. This bill would require a

contracting local educational agency to also pay to the nonpublic,

nonsectarian school or agency any applicable fees for individuals with

exceptional needs who are enrolled in programs provided pursuant to a

contract.

Education Support (Using Delegated

Authority)

4 x Support Letters

1 x Testimony by Cindy

Smith

AB 68 Ting (D) The Planning and Zoning Law authorizes a local agency to provide, by

ordinance, for the creation of accessory dwelling units in single-family and

multifamily residential zones and sets forth required ordinance standards,

including, among others, lot coverage. This bill would delete the provision

authorizing the imposition of standards on lot coverage and would

prohibit an ordinance from imposing requirements on minimum lot size.

Housing Watch N/A

AB 587 Friedman (D) Current property tax law establishes a welfare exemption under which

property is exempt from taxation if the property is owned and operated by

a nonprofit corporation that is organized and operated for the purpose of

building and rehabilitating single-family or multifamily residences for sale,

as provided, at cost to low-income families. This bill would authorize a

local agency to allow, by ordinance, an accessory dwelling unit that was

created pursuant to the process described above to be sold or conveyed

separately from the primary residence to a qualified buyer if certain

conditions are met.

Housing Watch N/A

SB 6 Beall (D) Would require the Department of Housing and Community Development

to furnish the Department of General Services with a list of local lands

suitable and available for residential development as identified by a local

government as part of the housing element of its general plan. The bill

would require the Department of General Services to create a database of

that information and information regarding state lands determined or

declared excess and to make this database available and searchable by the

public by means of a link on its internet website.

Housing Watch N/A

SB 329 Mitchell (D) Current law defines the term “source of income” for purposes of the

provisions relating to discrimination in housing accommodations as

specified, to mean lawful, verifiable income paid directly to a tenant or

paid to a representative of a tenant. This bill would instead define the

term for purposes of those provisions, to mean verifiable income paid

directly to a tenant, or paid to a housing owner or landlord on behalf of a

tenant, including federal, state, or local public assistance and housing

subsidies, as specified.

Housing Support (Using Delegated

Authority)

3 x Support Letters

1 x ‘Me Too’ Testimony

SB 611 Caballero (D) Would establish the Master Plan for Aging Housing Task Force, chaired by

the director or their designee, and composed of specified stakeholders and

representatives of government agencies to, among other things, make

recommendations to the Legislature for legislation that will help increase

the supply of affordable housing for older adults and reduce barriers to

providing health care and social services to older adults in affordable

housing.

Housing Watch N/A

AB 406 Limón (D) Current law establishes, within the state disability insurance program

administered by the Employment Development Department, a family

temporary disability insurance program, also known as the paid family

leave program, for the provision of wage replacement benefits to workers

who take time off work to care for a seriously ill family member or to bond

with a minor child within one year of birth or placement, as specified. This

bill, beginning January 1, 2025, would require the department to distribute

the application for family temporary disability insurance benefits, in

addition to the application in English, in all non-English languages spoken

by a substantial number of non-English-speaking applicants.

Health & Safety Watch N/A

SB 338 Hueso (D) Would eliminate the duty imposed on long-term care ombudsman

programs to revise or include in their policy manuals specified information

regarding elder and dependent adult abuse. The bill would also authorize

local law enforcement agencies to adopt a policy regarding senior and

disability victimization, as defined. The bill would require, if a local law

enforcement agency adopts or revises a policy regarding senior and

disability victimization on or after October 1, 2020, that the policy include

specified provisions, including those related to enforcement and training.

Health & Safety Support (Using Delegated

Authority)

ARC Sponsored

2 x Support Letters

1 x ‘Me Too’ Testimony

SB 512 Pan (D) Would establish the California Long-Term Services and Supports Benefits

Board (LTSS Board), to be composed of 9 specified members, including,

among others, the Treasurer as chair, the Secretary of the California

Health and Human Services Agency as vice chair, and 3 members to be

appointed by the Governor. The bill would require the LTSS Board to

manage and invest revenue deposited in the California Long-Term Services

and Supports Benefits Trust Fund (LTSS Trust), which the bill would create

in the State treasury, to, upon appropriation, finance long-term services

and supports for eligible individuals.

Health & Safety Support (Using Delegated

Authority)

DRC Sponsored

1 x Support Letter

1 x ‘Me Too’ Testimony

SB 398 Durazo (D) Would make various changes to the protection and advocacy agencies

access to facilities, program, and records by, among other things,

authorizing the protection and advocacy agency to monitor a facility,

program, or service providers compliance with respect to the rights and

safety of individuals with disabilities, requiring a facility, program, or

service provider to provide immediate access to interview any individual

with a disability unless providing immediate access would interfere with

treatment or therapy to be provided to the individual, and providing the

protection and advocacy agency with additional access to the records of

persons with a disability if the protection and advocacy agency determines

that there is probable cause to believe that the health or safety of an

individual is in serious and immediate jeopardy.

Health & Safety Support

DRC Sponsored

4 x Support Letters

2 x ‘Me Too’ Testimony

AB 1199 Petrie-Norris (D) Current law authorizes the Director of General Services, with the consent

of the State Department of Developmental Services, to let to a nonprofit

corporation, for a period not to exceed 55 years, up to 5 acres of real

property located within the grounds of the Fairview State Hospital, which

is also known as the Fairview Developmental Center, for specified

purposes and subject to certain conditions. This bill would require, if land

within the grounds of the Fairview Developmental Center is reported as

excess and the department determines that the land is needed by more

than one state agency, that the department conduct a public hearing and

receive public input regarding the use of the land before transferring it to

any state agency.

Formal & Informal

Community

Supports

No Position/Watch (Using

Delegated Authority)

N/A

AB 1287 Nazarian (D) Current law, including, among others, the Mello-Granlund Older

Californians Act, provides various programs to assist older adults and

people with disabilities. These programs include the Aging and Disability

Resource Connection program established to provide information to

consumers and their families on available long-term services and supports

(LTSS) programs and to assist older adults, caregivers, and persons with

disabilities in accessing LTSS programs at the local level. This bill would

require the California Department of Aging, in partnership with other

specified departments and in consultation with stakeholders, to develop a

plan and strategy for a phased statewide implementation of the No Wrong

Door system, as described, on or before July 1, 2020.

Formal & Informal

Community

Supports

Watch N/A

AB 641 Frazier (D) Current law establishes the Employment First Policy, which is the

policy that opportunities for integrated, competitive employment be

given the highest priority for working age individuals with

developmental disabilities, regardless of the severity of their

disabilities. Current law authorizes a consumer to choose a tailored

day service or vouchered community-based training service, in lieu

of any other regional center vendored day program, look-alike day

program, supported employment program, or work activity

program. This bill would authorize a consumer in a supported

employment program or work activity program who has the stated

goal of integrated competitive employment in their IPP to request to

use tailored day services in conjunction with their existing program

to achieve that goal, if specified criteria are met, including that the

type, amount, and provider of tailored day service allowed under

these provisions is determined through the IPP process. The bill

would specify the maximum hours of tailored day services that may

be authorized in conjunction with existing services under these

provisions.

Employment Watch N/A

FAILED DEADLINES - 2 Year Bills

AB 721 Grayson (D) Would require the California Workforce Development Board, in

partnership with the State Department of Social Services and the

Office of the Chancellor of the California Community Colleges, to

establish and administer the Lifting Families Out of Poverty

Workforce Training Supportive Services Program. The bill would

require the board, upon appropriation by the Legislature for that

purpose, to make $50,000,000 in grants available to consortia,

composed of combinations of local workforce development boards,

county welfare departments, community colleges, or other

stakeholders, that apply for funding to provide supportive services,

as defined, and are approved in accordance with the bill.

Employment Watch N/A

AB 216 Weber (D) Would limit an educational provider’s use of seclusion or behavioral

restraint to only control unpredictable and spontaneous behavior by

a pupil that poses a clear and present danger of serious physical

harm to the pupil or others, and when the behavior cannot be

immediately prevented by a response that is less restrictive. The bill

would require local educational agencies and nonpublic schools and

agencies to implement positive behavioral intervention and

supports, as defined, on all school sites, and would prohibit an

educational provider from using seclusion or behavioral restraint

before the provider receives emergency behavioral intervention

training.

Education Support (Using

Delegated Authority)

DRC Sponsored

1 x Support Letter

AB 236 Garcia, E. (D) Would revise and recast provisions related to Family Empowerment

Centers on Disability, including requiring the State Department of

Education to give priority to grant applicants in those of the 32

regions in the state that do not have a center, increasing the

minimum base rate for each center awarded a grant from $150,000

to $237,000 commencing with the start of the fiscal year after a

center has been established in each of the 32 regions, and,

commencing with the 2022–23 fiscal year, providing for an annual

cost-of-living adjustment of the grant amount, as specified. The bill

would also increase the base amount to be made available annually

to the council from $150,000 to $237,000.

Education Watch N/A

AB 428 Medina (D) Current law requires the Superintendent of Public Instruction to

determine the amount of funding to be provided for each special

education local plan area in accordance with specified calculations.

Current law requires the Superintendent, for the 2013–14 fiscal

year, to compute an equalization adjustment for each special

education local plan area for purposes of increasing the funding

rates for special education local plan areas with funding rates below

the 90th percentile, as specified. This bill would increase that

percentile to the 95th percentile and would require the

Superintendent to compute that equalization adjustment

commencing with the first fiscal year after funds are apportioned

pursuant to a specified formula and for each fiscal year thereafter in

which an equalization appropriation is made, as specified.

Education Watch N/A

AB 878Committee on EducationCurrent law establishes a system of elementary and secondary

education in this state under which local educational agencies

provide instruction and other services to pupils in kindergarten and

grades 1 to 12, inclusive, at school sites throughout the state. This

bill would express the intent of the Legislature to enact future

omnibus legislation relating to elementary and secondary education.

Education Watch N/A

AB 1021 Frazier (D) Current law requires that every individual with exceptional needs, as

defined, who is eligible be provided with educational instruction,

services, or both, at no cost to the pupil’s parent or guardian or, as

appropriate, to the pupil. A free appropriate public education is

required to be made available to individuals with exceptional needs

in accordance with specified federal regulations adopted pursuant

to the federal Individuals with Disabilities Education Act. This bill

would require school districts to provide summer school instruction

for pupils with intellectual disabilities or autism on weekdays from

the last day of the regular school year to the first day of summer

school and from the last day of summer school to the first day of the

regular school year.

Education Watch N/A

AB 1536 Gray (D) Would, no later than November 30, 2020, require the Office of

Planning and Research to develop standards for the formation of

Reinvestment in Infrastructure for a Sustainable and Equitable

California (RISE) districts. The bill would require that these standards

encourage equitable development in location-efficient areas

adjacent to public transit investments in passenger rail in order to

refocus growth toward city centers while reducing greenhouse gas

emissions and reinforcing community resilience.

Housing Watch N/A

AB 1562 Burke (D) Would require the Department of Housing and Community

Development to prepare the guidebook for use following the 2020

Census of Population and Housing and would require the guidebook

to be completed by December 31, 2023.

Housing Watch N/A

SB 4 McGuire (D) Would authorize a development proponent of a neighborhood

multifamily project or eligible transit-oriented development (TOD)

project located on an eligible parcel to submit an application for a

streamlined, ministerial approval process that is not subject to a

conditional use permit. The bill would define a “neighborhood

multifamily project” to mean a project to construct a multifamily

unit of up to 2 residential dwelling units in a nonurban community,

as defined, or up to 4 residential dwelling units in an urban

community, as defined, that meets local height, setback, and lot

coverage zoning requirements as they existed on July 1, 2019.

Housing Watch N/A

SB 15 Portantino (D) Would establish the Local-State Sustainable Investment Program,

which would be administered by the Department of Finance. The bill

would authorize a city, a county, or a specified joint powers agency

that meets specified eligibility criteria to apply to the Department of

Finance for funding for projects that further certain purposes,

including increasing the availability of affordable housing. The bill

would require that funding under the program be provided by an

allocation of ad valorem property tax revenues, as provided, and

would limit the amount of funding approved under the program to

$200,000,000 per fiscal year and $1,000,000,000 total.

Housing Watch N/A

SB 50 Wiener (D) Would require a city, county, or city and county to grant upon

request an equitable communities incentive when a development

proponent seeks and agrees to construct a residential development,

as defined, that satisfies specified criteria, including, among other

things, that the residential development is either a job-rich housing

project or a transit-rich housing project, as those terms are defined;

the site does not contain, or has not contained, housing occupied by

tenants or accommodations withdrawn from rent or lease in

accordance with specified law within specified time periods; and the

residential development complies with specified additional

requirements under existing law.

Housing Support (Using

Delegated Authority)

2 x Support Letters

1 x ‘Me Too’ Testimony

SB 384 Morrell (R) CEQA requires a lead agency to prepare a mitigated negative

declaration for a project that may have a significant effect on the

environment if revisions in the project would avoid or mitigate that

effect and there is no substantial evidence that the project, as

revised, would have a significant effect on the environment. CEQA

establishes a procedure by which a person may seek judicial review

of the decision of the lead agency made pursuant to CEQA. This bill

would establish specified procedures for the administrative and

judicial review of the environmental review and approvals granted

for housing development projects with 50 or more residential units.

Housing Watch N/A

AB 196 Gonzalez (D) Would revise the formula for determining benefits available

pursuant to the family temporary disability insurance program, for

periods of disability commencing after January 1, 2020, by

redefining the weekly benefit amount to be equal to 100% of the

wages paid to an individual for employment by employers during

the quarter of the individual’s disability base period in which these

wages were highest, divided by 13, but not exceeding the maximum

workers’ compensation temporary disability indemnity weekly

benefit amount established by the Department of Industrial

Relations.

Health & Safety Watch N/A

AB 300 Chu (D) Would require a law enforcement agency’s informational, incident,

and crime reports to include a check box indicating whether the

underlying incident in the report is a hate crime or hate incident, as

defined. The bill would require a law enforcement agency to

complete for each hate crime or hate incident, a supplemental hate

crime or hate incident report form that indicates the type of bias

motivation and any other identifying information to assist in the

prosecution of the hate crime or hate incident.

Health & Safety Watch N/A

AB 301 Chu (D) Would require the Department of Justice to carry out various duties

relating to documenting and responding to hate crimes, including

conducting reviews of all law enforcement agencies every 3 years to

evaluate the accuracy of hate crime data provided and agencies’

hate crime policies, implementing a school-based program in

conjunction with school districts and local law enforcement agencies

aimed at educating students regarding how to report all suspected

hate crimes to prevent future hate crimes, and submitting specified

hate crime reports to the Federal Bureau of Investigation for

inclusion in the national crime repository for crime data. The bill

would also include a statement of legislative findings and

declarations.

Health & Safety Watch N/A

AB 536 Frazier (D) Current law under the Lanterman Developmental Disabilities

Services Act defines a “developmental disability” as a disability that

originates before an individual attains 18 years of age, continues, or

can be expected to continue, indefinitely, and constitutes a

substantial disability for the individual. This bill would modify that

definition to mean a disability that originates before an individual

attains 22 years of age, continues, or can be expected to continue,

indefinitely, and constitutes a substantial disability for the

individual. The bill would make various technical and nonsubstantive

changes.

Health & Safety Support 1 x Support Letter

1 x Testimony by Cindy

Smith

AB 667 Muratsuchi (D) Current law establishes the Medi-Cal program, which is

administered by the State Department of Health Care Services, and

under which qualified low-income individuals receive healthcare

services. The Medi-Cal program is, in part, governed and funded by

federal Medicaid Program provisions. Under current law, healthcare,

as administered under the Medi-Cal program, is considered a

component of public social services. This bill would make technical,

nonsubstantive changes to those provisions.

Health & Safety Watch (Spot) N/A

AB 823 Arambula (D) Current law requires the State Department of Developmental

Services to establish policies and procedures for the development of

an annual community placement plan by regional centers. Current

law requires those policies to address statewide priorities, plan

requirements, and the statutory roles of regional centers,

developmental centers, and regional resource development projects

in the process of assessing consumers for community living and in

the development of community resources This bill would expressly

include mobile crisis services and paid employment for service

providers as a means for which the department is authorized to

establish guidelines for the usage of community placement funds.

Health & Safety Support (Using

Delegated Authority)

DRC Sponsored

N/A

AB 1764 Carrillo (D) Would establish the Forced or Involuntary Sterilization

Compensation Program, to be administered by the California Victim

Compensation Board for the purpose of providing victim

compensation to survivors of state-sponsored sterilization

conducted pursuant to eugenics laws that existed in California

between 1909 and 1979 and to survivors of coerced sterilizations of

people in prisons after 1979.

Health & Safety Support (Using

Delegated Authority)

1 x Support Letter

SB 135 Jackson (D) Current law prohibits an employer with 50 or more employees in a

75-mile radius to refuse to grant an employee a request to take up

to 12 weeks of unpaid leave for family care and medical leave if the

employee worked 1,250 hours in the prior 12 months. Current law

includes within “family care and medical leave” the birth, adoption,

or foster care placement of a child and the serious health condition

of the employee’s child, parent, or spouse. This bill would expand

the scope of those provisions to instead prohibit an employer with 5

or more employees to refuse to grant an employee a request to take

up to 12 weeks of unpaid leave for family care and medical leave if

the employee had 180 days of service with the employer.

Health & Safety Watch N/A

AB 261 Mathis (R) Current law requires the State Department of Developmental

Services, in consultation with stakeholders, to develop an

alternative service delivery model that provides an Individual Choice

Budget and suspends a regional center’s authority to purchase

certain services, including, camping services and associated travel

expenses, social recreation activities, educational services, and

nonmedical therapies, as specified, pending implementation of the

Individual Choice Budget and certification that the Individual Choice

Budget has been implemented and will result in state budget

savings, as specified. This bill would repeal the above-described

suspension of a regional center’s authority to purchase camping

services and associated travel expenses, or social recreation

activities.

Formal & Informal

Community

Supports

Support 1 x Support Letter

1 x 'Me too' Testimony

AB 229 Nazarian (D) Current law requires the State Department of Social Services to

translate a specified notice of action into all languages spoken by a

substantial number of the public receiving in-home supportive

services, as specified. This bill would clarify that the department is

required to provide translations of written content, as defined, and

transcriptions or captioning of videos, in languages spoken by a

substantial number of providers of in-home supportive services in

California. The bill would permit the department to work with

counties and the County Welfare Directors Association of California

to repurpose existing, county-produced translations of written

content and videos.

Formal & Informal

Community

Supports

Watch N/A

AB 311 Frazier (D) Current law requires the Director of Developmental Services to

establish, maintain, and revise, as necessary, an equitable process

for setting rates of state payment for nonresidential services

purchased by regional centers. Current law requires activity centers,

adult development centers, behavior management programs, and

other look-alike day programs with a daily rate to bill regional

centers for services provided to consumers in terms of 1/2 days of

service and full days of service, as defined, but authorizes a regional

center to change the length of the declared and approved program

day for a specific consumer in order to meet the needs of that

consumer. This bill would repeal those provisions relating to daily

rate billing.

Formal & Informal

Community

Supports

Watch N/A

AB 438 Frazier (D) The Lanterman Developmental Disabilities Services Act requires the

State Department of Developmental Services to contract with

regional centers to provide services and supports to individuals with

developmental disabilities and their families. Current law prohibits a

regional center from compensating designated programs and

transportation vendor services for providing any service to a

consumer on 11 specified holidays, including July 4, Thanksgiving

Day, and the 4 business days between December 25 and January 1.

This bill would repeal that prohibition, thereby allowing a regional

center to compensate those designated programs and

transportation vendor services for providing services on any of those

11 holidays.

Formal & Informal

Community

Supports

Watch N/A

AB 526 Petrie-Norris (D) Current law requires the former Managed Risk Medical Insurance

Board and former State Department of Health Services, in

collaboration with program offices for the WIC Program and other

designated entities, to design, promulgate, and implement policies

and procedures for an automated enrollment gateway system,

subject to appropriation, allowing children applying to the WIC

Program to obtain presumptive eligibility for, and to facilitate

application for enrollment in, the Medi-Cal program or the former

Healthy Families Program, to the extent federal financial

participation is available, as specified. This bill would delete the

above-described provisions relating to the automated enrollment

gateway system and would instead require the State Department of

Health Care Services, in collaboration with the same designated

entities, to design, promulgate, and implement policies and

procedures for an automated enrollment pathway, designating the

WIC Program and its local WIC agencies as Express Lane agencies

and using WIC eligibility determinations to meet Medi-Cal eligibility

requirements.

Formal & Informal

Community

Supports

Watch N/A

AB 627 Frazier (D) Would require the Director of Developmental Services to identify

regional centers that are in need of satellite offices in rural

catchment areas. The bill would require the director, on or before

July 1, 2020, to consult with each regional center identified by the

department for a satellite office to determine an appropriate

location for the satellite office. The bill would require a regional

center that is identified to open a satellite office, to inform the

public of its plans to open a satellite office, and to offer services to

individuals with developmental disabilities at that satellite office on

or before January 1, 2021.

Formal & Informal

Community

Supports

Watch N/A

AB 812 Frazier (D) Would require the State Department of Developmental Services, on

or before July 1, 2020, to convene a working group of consumers,

consumer representatives, and representatives of specified agencies

to examine topics related to oversight and accountability of the

developmental services system. The bill would require the

department, on or before January 1, 2021, to report to the

Legislature any findings and policy recommendations resulting from

working group’s examination.

Formal & Informal

Community

Supports

Watch N/A

AB 813 Frazier (D) Would require each regional center to establish a dispute resolution

program to hear and decide disputes between the regional center

and consumers regarding the provision of services and eligibility for

services. The bill would authorize the State Department of

Developmental Services to establish a grant program to provide

funding to regional centers to establish the dispute resolution

programs and enable regional centers to operate the dispute

resolution programs, as specified.

Formal & Informal

Community

Supports

Support (Using

Delegated Authority)

1 x 'Me Too' Testimony

AB 999 Patterson (R) Current law imposes minimum statutory damages for construction-

related accessibility claims if the violation of a construction-related

accessibility standard denied the plaintiff full and equal access to

the place of public accommodation on a particular occasion,

including by causing difficulty, discomfort, or embarrassment.

Current law, for claims filed on or after a specified date, presumes

that certain technical violations do not cause a person difficulty,

discomfort, or embarrassment for these purposes where the

defendant is a small business and has corrected all of the technical

violations that are the basis of the claim within specified time

periods. Under existing law, these technical violations include the

order in which parking signs are placed or the exact location or

wording of parking signs, provided that the parking signs are clearly

visible and indicate the location of accessible parking and van-

accessible parking. This bill would specify that the design of parking

signs is a technical violation under this latter provision.

Formal & Informal

Community

Supports

Oppose (Using

Delegated Authority)

1 x Oppose Letter

AB 1136 Nazarian (D) Would establish the California Department of Community Living

within the California Health and Human Services Agency to

consolidate leadership on issues and programs serving California’s

older adults, people with disabilities, and caregivers. The bill would

prescribe the duties of the department, including assisting older

adults and people with disabilities in connecting to specified services

including care coordination, health insurance counseling, peer-

based programs, and community transition services.

Formal & Informal

Community

Supports

Watch N/A

AB 1170 Frazier (D) Current law requires the Commission on Peace Officer Standards

and Training to establish a continuing education classroom training

course related to law enforcement interaction with mentally

disabled persons and to make the course available to law

enforcement agencies in California. This bill would require the

commission, on or before January 1, 2021, and in consultation with

the State Department of Developmental Services, the State Council

on Developmental Disabilities, and representatives of community

colleges, to incorporate in-person training provided by individuals

with intellectual and developmental disabilities into that training

course.

Formal & Informal

Community

Supports

Support (Using

Delegated Authority)

N/A

AB 1295 Quirk-Silva (D) Would require the California Health and Human Services Agency, in

consultation with specified stakeholders, to, upon the closure of the

Fairview Developmental Center, operate at the site of the former

Fairview Developmental Center a temporary housing program for

individuals with severe mental illness who are experiencing

homelessness. The bill would require the program to accommodate

up to 200 individuals and provide program participants with access

to housing and onsite services, as specified.

Formal & Informal

Community

Supports

Watch N/A

AB 1643 Garcia (D) Current law requires a service agency, defined, in part, as a

developmental center or regional center, to have a fair hearing

procedure that meets prescribed requirements, including adequate

notice standards, to resolve conflicts between the service provider

and recipients of, or applicants for, service. Existing law provides

that adequate notice be sent to the applicant or recipient and the

authorized representative in specified circumstances, including if

the service agency makes certain decisions, such as to reduce, to

terminate, or to change services described in an individual program

plan, without the mutual consent of the service recipient or

authorized representative. This bill would instead require the service

agency to provide adequate notice to the above-specified

individuals if the service agency makes specified decisions relating

to services, irrespective of whether the service agency makes this

decision without mutual consent of the service recipient or

authorized representative.

Formal & Informal

Community

Supports

Support (As

introduced) (Using

Delegated Authority)

DRC Sponsored

1 x Support Letter

SB 412 Stone (R) Current law requires a regional center to assess an annual family

program fee, as specified, from parents whose adjusted gross family

income is at or above 400% of the federal poverty level and who

have a child meeting prescribed requirements, including receiving

specified services from a regional center. Current law provides that

an annual program fee shall not be assessed or collected if the child

receives any respite, daycare, or camping services, and a cost for

participation is assessed under the Family Cost Participation

Program. This bill would repeal those provisions relating to regional

center fees. The bill would make technical, conforming changes and

other non-substantive changes.

Formal & Informal

Community

Supports

Support (Using

Delegated Authority)

ARCA Sponsored

2 x Support Letters

SB 683 Grove (R) Would, on or before July 1, 2020, require the State Department of

Developmental Services, in consultation with stakeholders, to

determine the most appropriate machine-readable format to be

used when disclosing numeric data and would, on or before January

1, 2021, require the department and regional centers to provide all

numeric data disclosed to the public in that format. The bill would

also, on or before July 1, 2020, require the department to develop,

in consultation with stakeholders, transparency guidelines for the

disclosure of information that regional centers are required to post

on their internet websites.

Formal & Informal

Community

Supports

Watch N/A

AB 1169 Frazier (D) The Personal Income Tax Law allows various credits against the

taxes imposed by that law. This bill would allow a credit against

those taxes for each taxable year beginning on or after January 1,

2020, and before January 1, 2025, in an amount equal to 40% of the

amount paid or incurred by a qualified taxpayer during the taxable

year for qualified wages of qualified employees, not to exceed

$6,000 per qualified employee. The bill would define “qualified

employee” to mean an employee who is hired on or after January 1,

2019, and who is a vocational rehabilitation referral, qualified SSI

recipient, or qualified SSDI recipient.

Employment Support 1 x Support Letter

1 x Testimony by

Council Member

Wesley Witherspoon

FAILED DEADLINES / DEAD

AB 36 Bloom (D) The Costa-Hawkins Rental Housing Act prescribes statewide limits

on the application of local rent control with regard to certain

properties. This bill would modify those provisions to authorize an

owner of residential real property to establish the initial and all

subsequent rental rates for a dwelling or unit that has been issued

its first certificate of occupancy within 20 years of the date upon

which the owner seeks to establish the initial or subsequent rental

rate, or for a dwelling or unit that is alienable separate from the title

to any other dwelling unit or is a subdivided interest in a subdivision

and the owner is a natural person who owns 10 or fewer residential

units within the same jurisdiction as the dwelling or unit for which

the owner seeks to establish the initial or subsequent rental rate,

subject to certain exceptions.

Housing Watch N/A

AB 192 Mathis (R) Would establish the California Integrated Community Living Program

in the State Department of Developmental Services. The program

would provide deferred payment loans to finance capital and other

specified costs for permanent supportive housing for individuals

who are regional center clients in order to maximize affordable

integrated community living opportunities within communities for

people with intellectual and developmental disabilities.

Housing Support 1 x Support Letter

1 x 'Me Too' Testimony

AB 416 Fong (R) Would, for each taxable year beginning on or after January 1, 2020,

and before January 1, 2025, allow a deduction in computing

adjusted gross income in an amount equal to the amount

contributed by a taxpayer during the taxable year to a CalABLE

account.

Formal & Informal

Community

Supports

Watch N/A

AB 736 Irwin (D) Would, for taxable years beginning on or after January 1, 2019, and

before January 1, 2026, would conform to those changes made by

the Tax Cuts and Jobs Act with respect to rollovers to ABLE accounts

from a qualified tuition program account.

Formal & Informal

Community

Supports

Watch N/A

AB 1434 Kalra (D) Current law provides for the State Supplementary Program for the

Aged, Blind and Disabled (SSP), which requires the State

Department of Social Services to contract with the United States

Secretary of Health and Human Services to make payments to SSP

recipients to supplement Supplemental Security Income (SSI)

payments made available pursuant to the federal Social Security Act.

This bill would reinstate the cost-of-living adjustment beginning

January 1 of the 2020 calendar year. The bill would also require a

maximum aid payment provided to an individual or a married couple

that does not equal or exceed 100% of the 2019 federal poverty

level to be increased to an amount that equals 100% of the federal

poverty level.

Formal & Informal

Community

Supports

Support (Using

Delegated Authority)

1 x ‘Me Too’ Testimony

SELF-DETERMINATION

UPDATE SEPTEMBER 27, 2019

“Suspended” Services Some individuals get confused when thinking about camp and

social recreational services and how they fit into the individual

budget and the spending plan. Camp and social recreational

services can not be included in the calculation of the individual

budget. However, camp and social recreational services may be

included in the spending plan. In 2009, in response to the impact

of the recession at the time, legislation was passed barring the

Regional Centers from purchasing camp and social recreational

services, “suspending” these services. The individual budget is

calculated based on the amount spent for services over the past

12 months. As planning occurs, adjustments can be made based

on individual circumstances. When reviewing these adjustments,

regional centers must consider if the service would have been

funded regardless of participation in the SDP. Services that

regional centers would not have funded cannot be included in

the calculation and final certification of the individual budget.

Due to that 2009 legislation, regional centers are prohibited from

purchasing camp and social recreational services. Therefore,

regional centers would not have funded these services so the

cost of such services cannot be included in the individual budget

calculation. However, once an individual is in the SDP, services

such as camp and social recreational services may be purchased

and therefore can be included in the spending plan. Read more

about the budget and spending plan at https://www.dds.ca.gov/

SDP/docs/IndividualBudget_Jan19.pdf

WANT MORE INFORMATION ABOUT SELF -DETERMINATION?

Visit the Self-Determination Page of the DDS website at https://www.dds.ca.gov/SDP/

Attend a Self-Determination Local Advisory Committee Meeting, contact your Regional Center or Local State

Council on Developmental Disabilities (SCDD) Regional Office

The State Council on Developmental Disabilities recently launched a Facebook page devoted to the

Self-Determination Program at https://www.facebook.com/groups/CA.SDP.Forum/

SDP Resource Fair The Westside Regional Center recently hosted a Resource Fair in Hawthorne for SDP participants. Participants from as far as Orange County turned out to learn about Person-Centered Planning, meet FMS agency representatives, Independent Facilitators, and talk with Los Angeles area Local Advisory Committee members.

Question of the Day

Q. Is there a cap on the budget? An amount that cannot be exceeded? A. Every individual budget is certified based on the expenditure history and needs of each individual. The individual budget amount cannot exceed the amount that services would have cost if the individual was not in the SDP. Read more about the Individual Budget at https://www.dds.ca.gov/SDP/faq.cfm

Financial Management Services Representatives

on hand to answer questions

South Central and Lanterman Regional Centers’ Local Advisory

Committee Representatives