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SHOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC? DR BENEDICT RUMBOLD

S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

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Page 1: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

SHOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC?

DR BENEDICT RUMBOLD

Page 2: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

‘PAY NO ATTENTION TO THE MAN BEHIND THE CURTAIN!’

• At present, priority setting process is

semi-public; the curtain has been drawn back,

but not completely.

• The public are aware that priority setting takes

place but not:

– Who is responsible for decision making

– What basis decisions are made on

• We need to decide whether to either:

a) Make the process more transparent

b) Publicly endorse an obscurity – be ‘explicitly

implicit’ (Chinitz, 1998)

Toto reveals the Wizard - The Wizard of Oz (1939)

Page 3: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

CURRENT PRACTICE IN THEENGLISH NATIONAL HEALTH SERVICE

• Questionnaires sent out to all 152

Primary Care Trusts in England.

• 115 responses from 74 out of 152 PCTs

(49%).

• Survey results suggest that 70% of PCTs

have a formal priority setting boards.

• Respondents asked to highlight which

aspects of the priority setting process

PCTs make available to the public.

Page 4: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%91%

44% 45%42%

50%

22%

3%9%

QUESTION: WHICH OF THE FOLLOWING ASPECTS OF THE PRIORITY SETTING PROCESS DOES YOUR

PCT MAKE EXPLICIT TO THE PUBLIC?

Page 5: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

THE CASE FOR PUBLICITY

© Getty Images

• Argument from rights - Public has a

‘right to know’.

• Argument from democracy and

fairness – Publicity is necessary for

informed consent and fair dealings.

• Argument from pragmatism -

Publicity guards against

inconsistency, unjust preferences

and groundless exceptions.

Page 6: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

WHY DO PRIORITY-SETTERS MAKE THE PROCESS SO

UNCLEAR?• Interviews yet to take place – but working hypothesis is they

want to avoid blame.

• But what is blame and why are priority-setters so concerned

about it?

• Blame:

– Perception of harm

– Perception of responsibility

• Worry of priority-setters is that, by its very nature, priority-

setting involves causing harm – e.g. by denying healthcare to

people who would benefit from it.

• So, blame is seen as inevitable, hence their interest in strategies

of blame-avoidance (especially limiting perceptions of

responsibility).

Page 7: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

PRIORITY-SETTING AND VAGUENESS

• Within the priority-setting process, who makes the decisions,

and the basis on which decisions are made is not always clear

cut.

– E.g. a decision may be the result of many actors working

together and/or independently, each of whom may be

relying, say, on moral intuition rather than a definitive set

of principles.

• However, in the public sphere, vagueness in either the decision-

making process or on the part of the decision makers

themselves is usually frowned upon.

• As such, actors may be unwilling to take responsibility for their

part in a vague system, given vagueness is accepted within the

system but castigated outside it.

© Getty Images

Page 8: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

PERSUADING ACTORS TO MAKE THE PRIORITY SETTING PROCESS EXPLICIT

• Raise the possibility of praise? Unlikely to be effective …

a) Typically, decision-makers are so fearful of blame they would prefer to avoid taking any

responsibility even if that meant giving up possibility of praise (Weaver, 1986)

b) In order for priority-setters to be praised there needs to be some perception of benefit.

But, as established, priority-setting always results in some kind of harm.

The best a priority-setter can hope for is the public praising them for fairly

distributing harms – unlikely to receive much praise for this.

• Instead, priority-setters need to be persuaded either:

a) That allowing for the possibility of blame is a price worth paying.

b) Not all publicity need lead to blame.© Getty Images

Page 9: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

Hood suggests blame can:

• Encourage decision-makers to ‘win the

argument’.

• Improve the delegation of responsibility

within decision-making hierarchies.

• Encourage decision-makers to follow set

rules and processes – to ‘take care’. (Hood, 2010)

PUBLICITY CAN BE GOOD, EVEN IF IT MEANS MORE BLAME

National Library NZ

Page 10: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

COMPLETE PUBLICITY HAS COSTS• Complete publicity can negatively effect the decision-making process:

– Moving from private, particularistic reasons to truly public reasons may then often have an

associated price, i.e., shifting from profound (private) reasons to shallow or manipulative (public)

reasons (Chambers, 2004).

• Also, complete publicity rarely allows for vagueness, and vagueness in the priority-setting

process may not only be necessary but also something we want to hang on to (e.g.

Mechanic, 1997).

The villagers confrontFrankenstein –Frankenstein (1931)

Page 11: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

RATIONING AND REACHING THE POINT OF TRUST

• Need a level of publicity that allows for

responsibility and public knowledge but

which also allows for the possibility of

vagueness.

• One possible option is combining an explicit

model with a sustained effort to increase

public trust in priority-setters themselves.

• Trust may give priority-setters the elbow

room to be vague, and to avoid shallow or

manipulative (public) reasons – i.e. to be

explicitly implicit.

© Getty Images

Page 12: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

www.nuffieldtrust.org.uk

[email protected]

Page 13: S HOULD WE MAKE THE PRIORITY SETTING PROCESS MORE EXPLICIT TO THE PUBLIC ? D R B ENEDICT R UMBOLD

REFERENCES

• Chambers, S (2004) “Behind Closed Doors: Publicity, Secrecy, and the Quality of

Deliberation”, Journal of Political Philosophy 12(3): 389-410

• Chinitz, D., Shalev, C., Galai, N. & Israeli, A. (1998) ‘Israel’s basic basket of health

services: the importance of being explicitly implicit’, BMJ, 317, 1003-7

• Hood, C (2010) ‘Risk and Government: The architectonics of blame-avoidance’,

Darwin College Lecture Series - February 2010

• Mechanic, D., (1997), ‘Muddling Through Elegantly: Finding the proper balance in

rationing’, Health Affairs 16 (5) 83-92.

• Weaver, R K (1986) ‘The Politics of Blame Avoidance’ Journal of Public Policy 6 (4):

371-98.