60
Chronic Illness Inclusion: consultation on chronic illness, disability, women and healthcare SurveyMonkey 1 / 60 100.00% 180 0.00% 0 Q1 ELECTRONIC CONSENT Please select your choice below. Clicking on the "agree" button indicates that: • you have read the above information • you voluntarily agree to participate • you are at least 16 years of age If you do not wish to participate in the research study, please decline participation by clicking on the "disagree" button. Answered: 180 Skipped: 0 TOTAL 180 Agree Disagree 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% ANSWER CHOICES RESPONSES Agree Disagree

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Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

1 / 60

100.00% 180

0.00% 0

Q1 ELECTRONIC CONSENT Please select your choice below. Clicking onthe "agree" button indicates that: • you have read the above information •

you voluntarily agree to participate • you are at least 16 years of age If youdo not wish to participate in the research study, please decline participation

by clicking on the "disagree" button.Answered: 180 Skipped: 0

TOTAL 180

Agree

Disagree

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Agree

Disagree

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

2 / 60

81.11% 146

10.00% 18

3.89% 7

3.33% 6

1.67% 3

Q2 Where do you normally live?Answered: 180 Skipped: 0

TOTAL 180

England

Scotland

Wales

NorthernIreland

Outside the UK

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

England

Scotland

Wales

Northern Ireland

Outside the UK

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

3 / 60

0.00% 0

1.11% 2

7.22% 13

25.56% 46

30.56% 55

16.11% 29

19.44% 35

Q3 What is your age?Answered: 180 Skipped: 0

TOTAL 180

Under 18

18-24

25-34

35-44

45-54

55-64

65+

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Under 18

18-24

25-34

35-44

45-54

55-64

65+

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

4 / 60

0.00% 0

99.44% 179

0.56% 1

Q4 What is your sex? (This question is about the sex you were assignedon your birth certificate, or is on your Gender Recognition Certificate. The

next question asks about your gender identity.)Answered: 180 Skipped: 0

TOTAL 180

Male

Female

Prefer not tosay

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Male

Female

Prefer not to say

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

5 / 60

0.00% 0

98.33% 177

1.11% 2

0.00% 0

0.56% 1

Q5 What is your gender? (This question is about what gender you identifywith.)

Answered: 180 Skipped: 0

TOTAL 180

Male

Female

Non-binary

Prefer not tosay

Prefer toself-describe

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Male

Female

Non-binary

Prefer not to say

Prefer to self-describe

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

6 / 60

97.78% 176

1.67% 3

0.00% 0

0.00% 0

0.00% 0

0.00% 0

0.56% 1

Q6 What is your ethnicity? Choose one option that best describes yourethnic group or background

Answered: 180 Skipped: 0

TOTAL 180

White

Mixed/multipleethnic groups

Asian/BritishAsian

Black/African/Caribbean/Bla...

Gypsy, Roma orTraveller

Prefer not tosay

Other ethnicgroup

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

White

Mixed/multiple ethnic groups

Asian/British Asian

Black/African/Caribbean/Black British

Gypsy, Roma or Traveller

Prefer not to say

Other ethnic group

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

7 / 60

5.00% 9

11.11% 20

7.78% 14

11.11% 20

5.00% 9

6.11% 11

7.22% 13

18.33% 33

10.00% 18

18.33% 33

Q7 Where in England do you live?Answered: 180 Skipped: 0

TOTAL 180

North East

North West

Yorkshire &Humber

East of England

East Midlands

West Midlands

London

South East

South West

Outside ofEngland

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

North East

North West

Yorkshire & Humber

East of England

East Midlands

West Midlands

London

South East

South West

Outside of England

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

8 / 60

0.56% 1

0.00% 0

3.89% 7

92.22% 166

1.11% 2

2.22% 4

Q8 Please select your sexual orientationAnswered: 180 Skipped: 0

TOTAL 180

Lesbian/ Gaywoman

Gay man

Bisexual

Heterosexual/straight

Prefer not tosay

Prefer to selfdescribe

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Lesbian/ Gay woman

Gay man

Bisexual

Heterosexual/straight

Prefer not to say

Prefer to self describe

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

9 / 60

Q9 Please tell us about any health conditions you have. Please tick all thatapply and list any health conditions not listed here in the box marked

'Other'Answered: 180 Skipped: 0

Adenomyosis

ADHD

Anxietydisorders an...

Asthma

Autismspectrum...

Cancer

Chronic KidneyDisease

Coronary HeartDisease

Chronic LymeDisease

ChronicObstructive...

ComplexRegional Pai...

Depression

Diabetes

Dysautonomia/POTS

Dyslexia

Dyspraxia

Eating disorder

Ehlers-Danlos

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

10 / 60

Syndrome...

Endometriosis

Epilepsy

Fibroids

Fibromyalgia

Gastroparesis

Hearing loss

Heart condition

Hypertension

Hypothyroidism

InflammatoryBowel Disease

IrritableBowel Syndrome

Learningdisability

Lipoedema

Long Covid

Lupus (SLE)

Mast CellActivation...

ME/ChronicFatigue...

Migraine

Musculoskeletalcondition...

Multiplesclerosis

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women and healthcare

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Obstructivesleep apnoea

Other mentalhealth...

Otherneurological...

Polycysticovary syndrome

Stroke orTransient...

Visualimpairment/b...

No formaldiagnosis

Other

Other (pleasespecify)

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

12 / 60

0.56% 1

3.33% 6

27.22% 49

16.11% 29

3.89% 7

0.56% 1

1.11% 2

1.67% 3

0.56% 1

2.22% 4

1.67% 3

26.11% 47

4.44% 8

1.67% 3

5.00% 9

2.22% 4

6.11% 11

11.67% 21

3.33% 6

1.11% 2

5.00% 9

18.89% 34

0.56% 1

9.44% 17

4.44% 8

10.00% 18

20.56% 37

2.78% 5

22.22% 40

0.56% 1

100.00% 180

2.22% 4

ANSWER CHOICES RESPONSES

Adenomyosis

ADHD

Anxiety disorders and stress

Asthma

Autism spectrum condition

Cancer

Chronic Kidney Disease

Coronary Heart Disease

Chronic Lyme Disease

Chronic Obstructive Pulmonary Disease

Complex Regional Pain Syndrome

Depression

Diabetes

Dysautonomia/POTS

Dyslexia

Dyspraxia

Eating disorder

Ehlers-Danlos Syndrome (hypermobility)

Endometriosis

Epilepsy

Fibroids

Fibromyalgia

Gastroparesis

Hearing loss

Heart condition

Hypertension

Hypothyroidism

Inflammatory Bowel Disease

Irritable Bowel Syndrome

Learning disability

Lipoedema

Long Covid

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

13 / 60

0.56% 1

0.56% 1

7.22% 13

15.00% 27

18.33% 33

0.00% 0

4.44% 8

2.78% 5

3.33% 6

3.33% 6

1.11% 2

2.22% 4

1.67% 3

5.00% 9

17.78% 32

Total Respondents: 180

Lupus (SLE)

Mast Cell Activation Syndrome

ME/Chronic Fatigue Syndrome

Migraine

Musculoskeletal condition (including Arthritis)

Multiple sclerosis

Obstructive sleep apnoea

Other mental health condition

Other neurological condition

Polycystic ovary syndrome

Stroke or Transient Ischaemic Attacks

Visual impairment/blind

No formal diagnosis

Other

Other (please specify)

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women and healthcare

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Q10 Please tell us about your type of impairment or disability. This is abouthow your health condition affects you. Please select all that apply.

Answered: 179 Skipped: 1

None of theabove

Hearing (forexample...

Vision (forexample...

Mobility (forexample walk...

Dexterity (forexample lift...

Learning orunderstandin...

Memory

Mental health

Energyimpairment...

Socially orbehaviourall...

Other (pleasespecify)

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

15 / 60

9.50% 17

9.50% 17

3.91% 7

73.18% 131

20.11% 36

5.03% 9

16.76% 30

44.13% 79

50.28% 90

8.38% 15

13.41% 24

Total Respondents: 179

ANSWER CHOICES RESPONSES

None of the above

Hearing (for example deafness or partial hearing)

Vision (for example blindness or partial sight)

Mobility (for example walking short distances or climbing stairs)

Dexterity (for example lifting and carrying objects, using a keyboard)

Learning or understanding or concentrating

Memory

Mental health

Energy impairment (problems with fatigue or stamina)

Socially or behaviourally (for example associated with autism spectrum disorder (ASD) which includes Asperger’s, orattention deficit hyperactivity disorder (ADHD))

Other (please specify)

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

16 / 60

99.44% 179

0.00% 0

0.56% 1

Q11 Have you had your health condition(s) or impairment(s) for 12 monthsor more, or do you have a condition that is expected to last for 12 months

or more?Answered: 180 Skipped: 0

TOTAL 180

Yes

No

Not sure

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Yes

No

Not sure

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

17 / 60

7.22% 13

47.22% 85

45.56% 82

Q12 Do your condition(s) or illness(es) reduce your ability to carry out day-to-day activities?

Answered: 180 Skipped: 0

TOTAL 180

Not at all

Yes, a little

Yes, a lot

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Not at all

Yes, a little

Yes, a lot

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18 / 60

Q13 Please tell us what you would consider to be your main healthcondition or impairment. We understand that if you have more than onehealth condition it can be difficult to say which is the main one. For the

purposes of this survey please think about the condition that you feel hasthe biggest impact on your life, or restricts your activities the most.

Answered: 180 Skipped: 0

Adenomyosis

ADHD

Anxietydisorders an...

Asthma

Autismspectrum...

Cancer

Chronic KidneyDisease

Coronary HeartDisease

Chronic LymeDisease

ChronicObstructive...

ComplexRegional Pai...

Depression

Diabetes

Dysautonomia/POTS

Dyslexia

Dyspraxia

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women and healthcare

SurveyMonkey

19 / 60

Eating disorder

Ehlers-DanlosSyndrome...

Endometriosis

Epilepsy

Fibroids

Fibromyalgia

Gastroparesis

Hearing loss/Deaf

Heart condition

Hypertension

Hypothyroidism

InflammatoryBowel Disease

IrritableBowel Syndrome

Learningdisability

Lipoedema

Long Covid

Lupus (SLE)

Mast CellActivation...

ME/ChronicFatigue...

Migraine

Musculoskeletalcondition...

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women and healthcare

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20 / 60

Multiplesclerosis

Obstructivesleep apnoea

Other mentalhealth...

Otherneurological...

Polycysticovary syndrome

Stroke orTransient...

Visualimpairment/b...

No formaldiagnosis

Other

Other (pleasespecify)

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

21 / 60

0.00% 0

0.00% 0

1.11% 2

0.00% 0

0.00% 0

0.00% 0

0.00% 0

0.00% 0

0.00% 0

0.00% 0

0.56% 1

0.56% 1

0.00% 0

0.56% 1

0.00% 0

0.00% 0

0.00% 0

2.22% 4

0.00% 0

0.56% 1

0.00% 0

1.67% 3

0.00% 0

0.00% 0

0.56% 1

0.00% 0

0.56% 1

0.00% 0

0.00% 0

0.00% 0

82.22% 148

0.00% 0

ANSWER CHOICES RESPONSES

Adenomyosis

ADHD

Anxiety disorders and stress

Asthma

Autism spectrum condition

Cancer

Chronic Kidney Disease

Coronary Heart Disease

Chronic Lyme Disease

Chronic Obstructive Pulmonary Disease

Complex Regional Pain Syndrome

Depression

Diabetes

Dysautonomia/POTS

Dyslexia

Dyspraxia

Eating disorder

Ehlers-Danlos Syndrome (hypermobility)

Endometriosis

Epilepsy

Fibroids

Fibromyalgia

Gastroparesis

Hearing loss/ Deaf

Heart condition

Hypertension

Hypothyroidism

Inflammatory Bowel Disease

Irritable Bowel Syndrome

Learning disability

Lipoedema

Long Covid

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

22 / 60

0.00% 00.00% 0

2.22% 4

0.56% 1

2.22% 4

0.00% 0

0.00% 0

0.00% 0

0.56% 1

0.00% 0

0.00% 0

0.00% 0

0.00% 0

1.11% 2

2.78% 5

TOTAL 180

Lupus (SLE)Mast Cell Activation Syndrome

ME/Chronic Fatigue Syndrome

Migraine

Musculoskeletal condition (including Arthritis)

Multiple sclerosis

Obstructive sleep apnoea

Other mental health condition

Other neurological condition

Polycystic ovary syndrome

Stroke or Transient Ischaemic Attacks

Visual impairment/blind

No formal diagnosis

Other

Other (please specify)

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

23 / 60

2.33% 4

2.91% 5

3.49% 6

2.33% 4

15.70% 27

6.98% 12

58.14% 100

8.14% 14

Q14 Thinking about your main health condition, how long was it from firstexperiencing symptoms to receiving your diagnosis?

Answered: 172 Skipped: 8

TOTAL 172

Less thanthree months

3 to 6 months

6 to 12 months

1 to 2 years

3 to 5 years

6 to 10 years

More than 10years

I do not havea formal...

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Less than three months

3 to 6 months

6 to 12 months

1 to 2 years

3 to 5 years

6 to 10 years

More than 10 years

I do not have a formal diagnosis

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

24 / 60

13.02% 22

36.09% 61

22.49% 38

6.51% 11

21.89% 37

Q15 Who diagnosed your condition?Answered: 169 Skipped: 11

TOTAL 169

NHS GP

NHS specialist

Privateconsultant

Alternative/complementary...

Other (pleasespecify)

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

NHS GP

NHS specialist

Private consultant

Alternative/complementary therapist

Other (please specify)

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25 / 60

Q16 Before you obtained your current diagnosis were you given any of thefollowing explanations or diagnoses for your symptoms that have proved to

be incorrect? Please tick all that applyAnswered: 168 Skipped: 12

None of theabove

Anxiety

Depression

Stress

Personalitydisorder

Functionaldisorder

Medicallyunexplained...

Time of life(e.g....

Challenginglife events

Other (pleasespecify)

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

26 / 60

20.83% 35

9.52% 16

18.45% 31

13.69% 23

0.60% 1

2.38% 4

18.45% 31

20.83% 35

9.52% 16

60.71% 102

Total Respondents: 168

ANSWER CHOICES RESPONSES

None of the above

Anxiety

Depression

Stress

Personality disorder

Functional disorder

Medically unexplained symptoms

Time of life (e.g. menopause)

Challenging life events

Other (please specify)

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

27 / 60

3.03% 5

0.00% 0

0.61% 1

9.09% 15

64.24% 106

23.03% 38

Q17 If you were given any of these explanations or diagnoses beforereceiving your current diagnosis, how helpful did you find this previous

explanation or diagnosis?Answered: 165 Skipped: 15

TOTAL 165

Extremelyhelpful

Very helpful

Somewhathelpful

Not so helpful

Not at allhelpful

Not applicable

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Extremely helpful

Very helpful

Somewhat helpful

Not so helpful

Not at all helpful

Not applicable

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

SurveyMonkey

28 / 60

70.00% 119

12.94% 22

7.65% 13

7.06% 12

2.35% 4

Q18 Have you ever received either a talking therapy (e.g. cognitivebehavioural therapy),or a behavioural therapy (e.g. exercise) for the

treatment of physical symptoms such as pain or fatigue? (This question isnot asking about talking therapy for mental distress or a diagnosed mental

health condition, only for physical symptoms)Answered: 170 Skipped: 10

TOTAL 170

No

Yes - talkingtherapy

Yes -behavioural...

Yes - bothtalking and...

Not sure

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

No

Yes - talking therapy

Yes - behavioural therapy

Yes - both talking and behavioural therapy

Not sure

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29 / 60

0.00% 0

2.50% 3

5.83% 7

9.17% 11

22.50% 27

60.00% 72

Q19 If you answered yes, how helpful did you find the talking therapy inalleviating physical symptoms?

Answered: 120 Skipped: 60

TOTAL 120

Extremelyhelpful

Very helpful

Somewhathelpful

Not so helpful

Not at allhelpful

Not applicable

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Extremely helpful

Very helpful

Somewhat helpful

Not so helpful

Not at all helpful

Not applicable

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women and healthcare

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Q20 Please use this space to explain your experiences further if you wishAnswered: 57 Skipped: 123

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31 / 60

54.94% 89

19.14% 31

14.81% 24

8.64% 14

2.47% 4

Q21 Have there been any instances where you felt you were not listenedto by health or care professionals?

Answered: 162 Skipped: 18

TOTAL 162

Very often

Often

Sometimes

Occasionally

Never

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Very often

Often

Sometimes

Occasionally

Never

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Q22 Please select the nature of the discussion selecting all that applyAnswered: 158 Skipped: 22

Seekinginformed...

Discussingsymptoms

Asking formore...

Seekingreferral to ...

Discussingdiagnosis of...

Discussingtreatment...

Being askedfor consent ...

Follow-up care

Raisingconcerns or ...

Don't know

Not applicable

Other

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

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women and healthcare

SurveyMonkey

33 / 60

6.96% 11

74.68% 118

55.06% 87

65.82% 104

60.13% 95

65.82% 104

6.33% 10

39.24% 62

21.52% 34

0.63% 1

1.90% 3

2.53% 4

Total Respondents: 158

ANSWER CHOICES RESPONSES

Seeking informed consent

Discussing symptoms

Asking for more information about an issue or condition

Seeking referral to a specialist

Discussing diagnosis of a condition or disability

Discussing treatment options

Being asked for consent to a procedure or course of action

Follow-up care

Raising concerns or a complaint

Don't know

Not applicable

Other

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Q23 Have there been any instances where you felt you were not listenedto in relation to specific health issues or conditions? Enter up to 2

examplesAnswered: 120 Skipped: 60

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35 / 60

Q24 Example 2Answered: 86 Skipped: 94

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36 / 60

47.20% 76

22.36% 36

11.80% 19

12.42% 20

6.21% 10

Q25 Have there been instances where you felt your account of how yourcondition affects you and impacts on your life was not believed by a health

or social care professional?Answered: 161 Skipped: 19

TOTAL 161

Very often

Often

Sometimes

Occasionally

Never

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Very often

Often

Sometimes

Occasionally

Never

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37 / 60

90.67% 136

32.67% 49

11.33% 17

10.67% 16

Q26 Was this experience of being disbelieved in relation toAnswered: 150 Skipped: 30

Total Respondents: 150

A GeneralPractioner (GP)

A specialistdoctor

A social careprofessional

Other (pleasespecify)

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

A General Practioner (GP)

A specialist doctor

A social care professional

Other (please specify)

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Q27 Has your experience of being disbelieved by a health or careprofessional had a negative impact in any of the following areas?

Answered: 157 Skipped: 23

Your selfesteem

Yourrelationship...

Yourrelationship...

Yourrelationship...

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women and healthcare

SurveyMonkey

39 / 60

72.73%112

17.53%27

3.90%6

2.60%4

3.25%5

154

1.36

54.19%84

31.61%49

5.81%9

4.52%7

3.87%6

155

1.58

25.32%39

35.06%54

28.57%44

3.90%6

7.14%11

154

1.93

19.35%30

23.23%36

30.32%47

4.52%7

22.58%35

155

2.30

29.22%45

12.99%20

15.58%24

7.79%12

34.42%53

154

2.47

26.62%41

14.94%23

18.83%29

9.09%14

30.52%47

154

2.44

Yes, a lot Yes, a little No Not sure Not applicable

Your access todisability...

Your identityas a disable...

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

YES, ALOT

YES, ALITTLE

NO NOTSURE

NOTAPPLICABLE

TOTAL WEIGHTEDAVERAGE

Your self esteem

Your relationship with health and careproviders

Your relationship with friends andfamily

Your relationship with an employer

Your access to disability benefitsand services

Your identity as a disabled person

Chronic Illness Inclusion: consultation on chronic illness, disability,

women and healthcare

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Q28 If you wish you can tell us more about your experiences of beingdisbelieved in relation to:1) your self esteem

Answered: 78 Skipped: 102

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Q29 2) your relationship with health and care providersAnswered: 81 Skipped: 99

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42 / 60

Q30 3) your relationship with friends or familyAnswered: 66 Skipped: 114

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43 / 60

Q31 4) your relationship with an employerAnswered: 59 Skipped: 121

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44 / 60

Q32 5) your access to disability benefits and servicesAnswered: 61 Skipped: 119

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45 / 60

Q33 6) your identity as a disabled personAnswered: 55 Skipped: 125

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46 / 60

2.60% 4

4.55% 7

10.39% 16

7.14% 11

11.69% 18

20.13% 31

43.51% 67

Q34 How much do you agree with the statement: "I feel supported by theservices available for women with my health condition or disability"?

Answered: 154 Skipped: 26

TOTAL 154

Strongly agree

Agree

Somewhat agree

Neither agreenor disagree

Somewhatdisagree

Disagree

Stronglydisagree

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Strongly agree

Agree

Somewhat agree

Neither agree nor disagree

Somewhat disagree

Disagree

Strongly disagree

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Q35 Would you like to share examples or provide suggestions as to howservices can be improved for your specific condition or disability?

Answered: 112 Skipped: 68

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0.66% 1

7.24% 11

7.24% 11

11.84% 18

73.03% 111

Q36 This question is about what social care support you need and receive.Social care support is help provided by your local authority for daily living

activities such as washing, dressing, feeding yourself, getting toappointments or parenting responsibilities. Have you been able to access

the care and support you need from the social care system?Answered: 152 Skipped: 28

TOTAL 152

Yes – I getsocial care...

Yes – I getsocial care...

No - I haverequested...

No - I needsocial care...

No - I don'tneed help fr...

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Yes – I get social care support that meets all my needs

Yes – I get social care support that meets some of my needs

No - I have requested social care support but was refused help

No - I need social care support but have not requested it

No - I don't need help from social care services

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Q37 How much do you agree with the statement: "I have received the helpI needed" in relation to the following:

Answered: 153 Skipped: 27

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SurveyMonkey

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Strongly agree Agree Neither agree nor disagree Disagree

Strongly disagree Not applicable/not needed

Mental Healthsupport

Adequate painrelief

Referral to aspecialist

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

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0.67%1

10.67%16

24.00%36

16.67%25

26.67%40

21.33%32

150

4.22

1.34%2

13.42%20

18.12%27

33.56%50

20.13%30

13.42%20

149

3.98

3.29%5

23.68%36

15.79%24

16.45%25

39.47%60

1.32%2

152

3.69

STRONGLYAGREE

AGREE NEITHERAGREE NORDISAGREE

DISAGREE STRONGLYDISAGREE

NOTAPPLICABLE/NOTNEEDED

TOTAL WEIGHTEDAVERAGE

MentalHealthsupport

Adequatepain relief

Referral toaspecialist

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52 / 60

7.84% 12

73.20% 112

17.65% 27

1.31% 2

Q38 Do you consider yourself to be housebound or bedridden according tothe above definition?

Answered: 153 Skipped: 27

TOTAL 153

Yes

No

It varies

Not sure

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Yes

No

It varies

Not sure

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Q39 Have you received any of the following domicilary services (at home)when requested?

Answered: 144 Skipped: 36

3.47%5

28.47%41

68.06%98

144

2.65

0.69%1

28.47%41

70.83%102

144

2.70

3.50%5

24.48%35

72.03%103

143

2.69

2.10%3

25.87%37

72.03%103

143

2.70

Yes No Not requested

GP home visit

Domiciliarydental care

Domiciliarycervical...

Opticianservices

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

YES NO NOT REQUESTED TOTAL WEIGHTED AVERAGE

GP home visit

Domiciliary dental care

Domiciliary cervical screening (smear test)

Optician services

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Q40 Would you like to tell us about any experience of requesting orreceiving domiciliary services?You can also use this box to tell us aboutany requests you have made for special arrangements or reasonable

adjustments for hospital visits for procedures that can't be carried out athome.

Answered: 23 Skipped: 157

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55 / 60

2.58% 4

4.52% 7

27.10% 42

23.87% 37

37.42% 58

3.87% 6

0.65% 1

Q41 Do you feel that the COVID-19 pandemic has had a positive ornegative effect on your health?

Answered: 155 Skipped: 25

TOTAL 155

Positive

Mostly positive

Neitherpositive or...

Mostly negative

Negative

Don't know

Prefer not toanswer

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Positive

Mostly positive

Neither positive or negative

Mostly negative

Negative

Don't know

Prefer not to answer

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56 / 60

1.94% 3

3.87% 6

20.00% 31

18.06% 28

52.90% 82

3.23% 5

0.00% 0

Q42 Do you feel that the COVID-19 pandemic has had a positive ornegative effect on your ability to access healthcare services?

Answered: 155 Skipped: 25

TOTAL 155

Positive

Mostly positive

Neitherpositive or...

Mostly negative

Negative

Don't know

Prefer not toanswer

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Positive

Mostly positive

Neither positive or negative

Mostly negative

Negative

Don't know

Prefer not to answer

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Q43 Are there any aspects of healthcare have you particularly struggled toaccess during the COVID-19 pandemic?

Answered: 87 Skipped: 93

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58 / 60

81.94% 127

13.55% 21

4.52% 7

Q44 Have you been able to obtain a vaccine against Covid-19?Answered: 155 Skipped: 25

TOTAL 155

Yes

No

Notapplicable/I...

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

ANSWER CHOICES RESPONSES

Yes

No

Not applicable/I have not wanted a vaccine

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women and healthcare

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Q45 Are there any service changes that you would like to see continued inthe future?

Answered: 57 Skipped: 123

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Q46 Is there anything you would like to share regarding research, evidenceand data relating to women’s health and healthcare?

Answered: 55 Skipped: 125