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Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
1 / 60
100.00% 180
0.00% 0
Q1 ELECTRONIC CONSENT Please select your choice below. Clicking onthe "agree" button indicates that: • you have read the above information •
you voluntarily agree to participate • you are at least 16 years of age If youdo not wish to participate in the research study, please decline participation
by clicking on the "disagree" button.Answered: 180 Skipped: 0
TOTAL 180
Agree
Disagree
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Agree
Disagree
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
2 / 60
81.11% 146
10.00% 18
3.89% 7
3.33% 6
1.67% 3
Q2 Where do you normally live?Answered: 180 Skipped: 0
TOTAL 180
England
Scotland
Wales
NorthernIreland
Outside the UK
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
England
Scotland
Wales
Northern Ireland
Outside the UK
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
3 / 60
0.00% 0
1.11% 2
7.22% 13
25.56% 46
30.56% 55
16.11% 29
19.44% 35
Q3 What is your age?Answered: 180 Skipped: 0
TOTAL 180
Under 18
18-24
25-34
35-44
45-54
55-64
65+
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Under 18
18-24
25-34
35-44
45-54
55-64
65+
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
4 / 60
0.00% 0
99.44% 179
0.56% 1
Q4 What is your sex? (This question is about the sex you were assignedon your birth certificate, or is on your Gender Recognition Certificate. The
next question asks about your gender identity.)Answered: 180 Skipped: 0
TOTAL 180
Male
Female
Prefer not tosay
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Male
Female
Prefer not to say
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
5 / 60
0.00% 0
98.33% 177
1.11% 2
0.00% 0
0.56% 1
Q5 What is your gender? (This question is about what gender you identifywith.)
Answered: 180 Skipped: 0
TOTAL 180
Male
Female
Non-binary
Prefer not tosay
Prefer toself-describe
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Male
Female
Non-binary
Prefer not to say
Prefer to self-describe
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
6 / 60
97.78% 176
1.67% 3
0.00% 0
0.00% 0
0.00% 0
0.00% 0
0.56% 1
Q6 What is your ethnicity? Choose one option that best describes yourethnic group or background
Answered: 180 Skipped: 0
TOTAL 180
White
Mixed/multipleethnic groups
Asian/BritishAsian
Black/African/Caribbean/Bla...
Gypsy, Roma orTraveller
Prefer not tosay
Other ethnicgroup
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
White
Mixed/multiple ethnic groups
Asian/British Asian
Black/African/Caribbean/Black British
Gypsy, Roma or Traveller
Prefer not to say
Other ethnic group
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
7 / 60
5.00% 9
11.11% 20
7.78% 14
11.11% 20
5.00% 9
6.11% 11
7.22% 13
18.33% 33
10.00% 18
18.33% 33
Q7 Where in England do you live?Answered: 180 Skipped: 0
TOTAL 180
North East
North West
Yorkshire &Humber
East of England
East Midlands
West Midlands
London
South East
South West
Outside ofEngland
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
North East
North West
Yorkshire & Humber
East of England
East Midlands
West Midlands
London
South East
South West
Outside of England
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
8 / 60
0.56% 1
0.00% 0
3.89% 7
92.22% 166
1.11% 2
2.22% 4
Q8 Please select your sexual orientationAnswered: 180 Skipped: 0
TOTAL 180
Lesbian/ Gaywoman
Gay man
Bisexual
Heterosexual/straight
Prefer not tosay
Prefer to selfdescribe
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Lesbian/ Gay woman
Gay man
Bisexual
Heterosexual/straight
Prefer not to say
Prefer to self describe
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
9 / 60
Q9 Please tell us about any health conditions you have. Please tick all thatapply and list any health conditions not listed here in the box marked
'Other'Answered: 180 Skipped: 0
Adenomyosis
ADHD
Anxietydisorders an...
Asthma
Autismspectrum...
Cancer
Chronic KidneyDisease
Coronary HeartDisease
Chronic LymeDisease
ChronicObstructive...
ComplexRegional Pai...
Depression
Diabetes
Dysautonomia/POTS
Dyslexia
Dyspraxia
Eating disorder
Ehlers-Danlos
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
10 / 60
Syndrome...
Endometriosis
Epilepsy
Fibroids
Fibromyalgia
Gastroparesis
Hearing loss
Heart condition
Hypertension
Hypothyroidism
InflammatoryBowel Disease
IrritableBowel Syndrome
Learningdisability
Lipoedema
Long Covid
Lupus (SLE)
Mast CellActivation...
ME/ChronicFatigue...
Migraine
Musculoskeletalcondition...
Multiplesclerosis
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
11 / 60
Obstructivesleep apnoea
Other mentalhealth...
Otherneurological...
Polycysticovary syndrome
Stroke orTransient...
Visualimpairment/b...
No formaldiagnosis
Other
Other (pleasespecify)
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
12 / 60
0.56% 1
3.33% 6
27.22% 49
16.11% 29
3.89% 7
0.56% 1
1.11% 2
1.67% 3
0.56% 1
2.22% 4
1.67% 3
26.11% 47
4.44% 8
1.67% 3
5.00% 9
2.22% 4
6.11% 11
11.67% 21
3.33% 6
1.11% 2
5.00% 9
18.89% 34
0.56% 1
9.44% 17
4.44% 8
10.00% 18
20.56% 37
2.78% 5
22.22% 40
0.56% 1
100.00% 180
2.22% 4
ANSWER CHOICES RESPONSES
Adenomyosis
ADHD
Anxiety disorders and stress
Asthma
Autism spectrum condition
Cancer
Chronic Kidney Disease
Coronary Heart Disease
Chronic Lyme Disease
Chronic Obstructive Pulmonary Disease
Complex Regional Pain Syndrome
Depression
Diabetes
Dysautonomia/POTS
Dyslexia
Dyspraxia
Eating disorder
Ehlers-Danlos Syndrome (hypermobility)
Endometriosis
Epilepsy
Fibroids
Fibromyalgia
Gastroparesis
Hearing loss
Heart condition
Hypertension
Hypothyroidism
Inflammatory Bowel Disease
Irritable Bowel Syndrome
Learning disability
Lipoedema
Long Covid
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
13 / 60
0.56% 1
0.56% 1
7.22% 13
15.00% 27
18.33% 33
0.00% 0
4.44% 8
2.78% 5
3.33% 6
3.33% 6
1.11% 2
2.22% 4
1.67% 3
5.00% 9
17.78% 32
Total Respondents: 180
Lupus (SLE)
Mast Cell Activation Syndrome
ME/Chronic Fatigue Syndrome
Migraine
Musculoskeletal condition (including Arthritis)
Multiple sclerosis
Obstructive sleep apnoea
Other mental health condition
Other neurological condition
Polycystic ovary syndrome
Stroke or Transient Ischaemic Attacks
Visual impairment/blind
No formal diagnosis
Other
Other (please specify)
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
14 / 60
Q10 Please tell us about your type of impairment or disability. This is abouthow your health condition affects you. Please select all that apply.
Answered: 179 Skipped: 1
None of theabove
Hearing (forexample...
Vision (forexample...
Mobility (forexample walk...
Dexterity (forexample lift...
Learning orunderstandin...
Memory
Mental health
Energyimpairment...
Socially orbehaviourall...
Other (pleasespecify)
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
15 / 60
9.50% 17
9.50% 17
3.91% 7
73.18% 131
20.11% 36
5.03% 9
16.76% 30
44.13% 79
50.28% 90
8.38% 15
13.41% 24
Total Respondents: 179
ANSWER CHOICES RESPONSES
None of the above
Hearing (for example deafness or partial hearing)
Vision (for example blindness or partial sight)
Mobility (for example walking short distances or climbing stairs)
Dexterity (for example lifting and carrying objects, using a keyboard)
Learning or understanding or concentrating
Memory
Mental health
Energy impairment (problems with fatigue or stamina)
Socially or behaviourally (for example associated with autism spectrum disorder (ASD) which includes Asperger’s, orattention deficit hyperactivity disorder (ADHD))
Other (please specify)
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
16 / 60
99.44% 179
0.00% 0
0.56% 1
Q11 Have you had your health condition(s) or impairment(s) for 12 monthsor more, or do you have a condition that is expected to last for 12 months
or more?Answered: 180 Skipped: 0
TOTAL 180
Yes
No
Not sure
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Yes
No
Not sure
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
17 / 60
7.22% 13
47.22% 85
45.56% 82
Q12 Do your condition(s) or illness(es) reduce your ability to carry out day-to-day activities?
Answered: 180 Skipped: 0
TOTAL 180
Not at all
Yes, a little
Yes, a lot
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Not at all
Yes, a little
Yes, a lot
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
18 / 60
Q13 Please tell us what you would consider to be your main healthcondition or impairment. We understand that if you have more than onehealth condition it can be difficult to say which is the main one. For the
purposes of this survey please think about the condition that you feel hasthe biggest impact on your life, or restricts your activities the most.
Answered: 180 Skipped: 0
Adenomyosis
ADHD
Anxietydisorders an...
Asthma
Autismspectrum...
Cancer
Chronic KidneyDisease
Coronary HeartDisease
Chronic LymeDisease
ChronicObstructive...
ComplexRegional Pai...
Depression
Diabetes
Dysautonomia/POTS
Dyslexia
Dyspraxia
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
19 / 60
Eating disorder
Ehlers-DanlosSyndrome...
Endometriosis
Epilepsy
Fibroids
Fibromyalgia
Gastroparesis
Hearing loss/Deaf
Heart condition
Hypertension
Hypothyroidism
InflammatoryBowel Disease
IrritableBowel Syndrome
Learningdisability
Lipoedema
Long Covid
Lupus (SLE)
Mast CellActivation...
ME/ChronicFatigue...
Migraine
Musculoskeletalcondition...
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
20 / 60
Multiplesclerosis
Obstructivesleep apnoea
Other mentalhealth...
Otherneurological...
Polycysticovary syndrome
Stroke orTransient...
Visualimpairment/b...
No formaldiagnosis
Other
Other (pleasespecify)
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
21 / 60
0.00% 0
0.00% 0
1.11% 2
0.00% 0
0.00% 0
0.00% 0
0.00% 0
0.00% 0
0.00% 0
0.00% 0
0.56% 1
0.56% 1
0.00% 0
0.56% 1
0.00% 0
0.00% 0
0.00% 0
2.22% 4
0.00% 0
0.56% 1
0.00% 0
1.67% 3
0.00% 0
0.00% 0
0.56% 1
0.00% 0
0.56% 1
0.00% 0
0.00% 0
0.00% 0
82.22% 148
0.00% 0
ANSWER CHOICES RESPONSES
Adenomyosis
ADHD
Anxiety disorders and stress
Asthma
Autism spectrum condition
Cancer
Chronic Kidney Disease
Coronary Heart Disease
Chronic Lyme Disease
Chronic Obstructive Pulmonary Disease
Complex Regional Pain Syndrome
Depression
Diabetes
Dysautonomia/POTS
Dyslexia
Dyspraxia
Eating disorder
Ehlers-Danlos Syndrome (hypermobility)
Endometriosis
Epilepsy
Fibroids
Fibromyalgia
Gastroparesis
Hearing loss/ Deaf
Heart condition
Hypertension
Hypothyroidism
Inflammatory Bowel Disease
Irritable Bowel Syndrome
Learning disability
Lipoedema
Long Covid
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
22 / 60
0.00% 00.00% 0
2.22% 4
0.56% 1
2.22% 4
0.00% 0
0.00% 0
0.00% 0
0.56% 1
0.00% 0
0.00% 0
0.00% 0
0.00% 0
1.11% 2
2.78% 5
TOTAL 180
Lupus (SLE)Mast Cell Activation Syndrome
ME/Chronic Fatigue Syndrome
Migraine
Musculoskeletal condition (including Arthritis)
Multiple sclerosis
Obstructive sleep apnoea
Other mental health condition
Other neurological condition
Polycystic ovary syndrome
Stroke or Transient Ischaemic Attacks
Visual impairment/blind
No formal diagnosis
Other
Other (please specify)
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
23 / 60
2.33% 4
2.91% 5
3.49% 6
2.33% 4
15.70% 27
6.98% 12
58.14% 100
8.14% 14
Q14 Thinking about your main health condition, how long was it from firstexperiencing symptoms to receiving your diagnosis?
Answered: 172 Skipped: 8
TOTAL 172
Less thanthree months
3 to 6 months
6 to 12 months
1 to 2 years
3 to 5 years
6 to 10 years
More than 10years
I do not havea formal...
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Less than three months
3 to 6 months
6 to 12 months
1 to 2 years
3 to 5 years
6 to 10 years
More than 10 years
I do not have a formal diagnosis
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
24 / 60
13.02% 22
36.09% 61
22.49% 38
6.51% 11
21.89% 37
Q15 Who diagnosed your condition?Answered: 169 Skipped: 11
TOTAL 169
NHS GP
NHS specialist
Privateconsultant
Alternative/complementary...
Other (pleasespecify)
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
NHS GP
NHS specialist
Private consultant
Alternative/complementary therapist
Other (please specify)
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
25 / 60
Q16 Before you obtained your current diagnosis were you given any of thefollowing explanations or diagnoses for your symptoms that have proved to
be incorrect? Please tick all that applyAnswered: 168 Skipped: 12
None of theabove
Anxiety
Depression
Stress
Personalitydisorder
Functionaldisorder
Medicallyunexplained...
Time of life(e.g....
Challenginglife events
Other (pleasespecify)
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
26 / 60
20.83% 35
9.52% 16
18.45% 31
13.69% 23
0.60% 1
2.38% 4
18.45% 31
20.83% 35
9.52% 16
60.71% 102
Total Respondents: 168
ANSWER CHOICES RESPONSES
None of the above
Anxiety
Depression
Stress
Personality disorder
Functional disorder
Medically unexplained symptoms
Time of life (e.g. menopause)
Challenging life events
Other (please specify)
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
27 / 60
3.03% 5
0.00% 0
0.61% 1
9.09% 15
64.24% 106
23.03% 38
Q17 If you were given any of these explanations or diagnoses beforereceiving your current diagnosis, how helpful did you find this previous
explanation or diagnosis?Answered: 165 Skipped: 15
TOTAL 165
Extremelyhelpful
Very helpful
Somewhathelpful
Not so helpful
Not at allhelpful
Not applicable
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Extremely helpful
Very helpful
Somewhat helpful
Not so helpful
Not at all helpful
Not applicable
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
28 / 60
70.00% 119
12.94% 22
7.65% 13
7.06% 12
2.35% 4
Q18 Have you ever received either a talking therapy (e.g. cognitivebehavioural therapy),or a behavioural therapy (e.g. exercise) for the
treatment of physical symptoms such as pain or fatigue? (This question isnot asking about talking therapy for mental distress or a diagnosed mental
health condition, only for physical symptoms)Answered: 170 Skipped: 10
TOTAL 170
No
Yes - talkingtherapy
Yes -behavioural...
Yes - bothtalking and...
Not sure
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
No
Yes - talking therapy
Yes - behavioural therapy
Yes - both talking and behavioural therapy
Not sure
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
29 / 60
0.00% 0
2.50% 3
5.83% 7
9.17% 11
22.50% 27
60.00% 72
Q19 If you answered yes, how helpful did you find the talking therapy inalleviating physical symptoms?
Answered: 120 Skipped: 60
TOTAL 120
Extremelyhelpful
Very helpful
Somewhathelpful
Not so helpful
Not at allhelpful
Not applicable
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Extremely helpful
Very helpful
Somewhat helpful
Not so helpful
Not at all helpful
Not applicable
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
30 / 60
Q20 Please use this space to explain your experiences further if you wishAnswered: 57 Skipped: 123
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
31 / 60
54.94% 89
19.14% 31
14.81% 24
8.64% 14
2.47% 4
Q21 Have there been any instances where you felt you were not listenedto by health or care professionals?
Answered: 162 Skipped: 18
TOTAL 162
Very often
Often
Sometimes
Occasionally
Never
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Very often
Often
Sometimes
Occasionally
Never
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
32 / 60
Q22 Please select the nature of the discussion selecting all that applyAnswered: 158 Skipped: 22
Seekinginformed...
Discussingsymptoms
Asking formore...
Seekingreferral to ...
Discussingdiagnosis of...
Discussingtreatment...
Being askedfor consent ...
Follow-up care
Raisingconcerns or ...
Don't know
Not applicable
Other
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
33 / 60
6.96% 11
74.68% 118
55.06% 87
65.82% 104
60.13% 95
65.82% 104
6.33% 10
39.24% 62
21.52% 34
0.63% 1
1.90% 3
2.53% 4
Total Respondents: 158
ANSWER CHOICES RESPONSES
Seeking informed consent
Discussing symptoms
Asking for more information about an issue or condition
Seeking referral to a specialist
Discussing diagnosis of a condition or disability
Discussing treatment options
Being asked for consent to a procedure or course of action
Follow-up care
Raising concerns or a complaint
Don't know
Not applicable
Other
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
34 / 60
Q23 Have there been any instances where you felt you were not listenedto in relation to specific health issues or conditions? Enter up to 2
examplesAnswered: 120 Skipped: 60
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
35 / 60
Q24 Example 2Answered: 86 Skipped: 94
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
36 / 60
47.20% 76
22.36% 36
11.80% 19
12.42% 20
6.21% 10
Q25 Have there been instances where you felt your account of how yourcondition affects you and impacts on your life was not believed by a health
or social care professional?Answered: 161 Skipped: 19
TOTAL 161
Very often
Often
Sometimes
Occasionally
Never
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Very often
Often
Sometimes
Occasionally
Never
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
37 / 60
90.67% 136
32.67% 49
11.33% 17
10.67% 16
Q26 Was this experience of being disbelieved in relation toAnswered: 150 Skipped: 30
Total Respondents: 150
A GeneralPractioner (GP)
A specialistdoctor
A social careprofessional
Other (pleasespecify)
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
A General Practioner (GP)
A specialist doctor
A social care professional
Other (please specify)
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
38 / 60
Q27 Has your experience of being disbelieved by a health or careprofessional had a negative impact in any of the following areas?
Answered: 157 Skipped: 23
Your selfesteem
Yourrelationship...
Yourrelationship...
Yourrelationship...
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
39 / 60
72.73%112
17.53%27
3.90%6
2.60%4
3.25%5
154
1.36
54.19%84
31.61%49
5.81%9
4.52%7
3.87%6
155
1.58
25.32%39
35.06%54
28.57%44
3.90%6
7.14%11
154
1.93
19.35%30
23.23%36
30.32%47
4.52%7
22.58%35
155
2.30
29.22%45
12.99%20
15.58%24
7.79%12
34.42%53
154
2.47
26.62%41
14.94%23
18.83%29
9.09%14
30.52%47
154
2.44
Yes, a lot Yes, a little No Not sure Not applicable
Your access todisability...
Your identityas a disable...
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
YES, ALOT
YES, ALITTLE
NO NOTSURE
NOTAPPLICABLE
TOTAL WEIGHTEDAVERAGE
Your self esteem
Your relationship with health and careproviders
Your relationship with friends andfamily
Your relationship with an employer
Your access to disability benefitsand services
Your identity as a disabled person
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
40 / 60
Q28 If you wish you can tell us more about your experiences of beingdisbelieved in relation to:1) your self esteem
Answered: 78 Skipped: 102
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
41 / 60
Q29 2) your relationship with health and care providersAnswered: 81 Skipped: 99
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
42 / 60
Q30 3) your relationship with friends or familyAnswered: 66 Skipped: 114
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
43 / 60
Q31 4) your relationship with an employerAnswered: 59 Skipped: 121
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
44 / 60
Q32 5) your access to disability benefits and servicesAnswered: 61 Skipped: 119
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
45 / 60
Q33 6) your identity as a disabled personAnswered: 55 Skipped: 125
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
46 / 60
2.60% 4
4.55% 7
10.39% 16
7.14% 11
11.69% 18
20.13% 31
43.51% 67
Q34 How much do you agree with the statement: "I feel supported by theservices available for women with my health condition or disability"?
Answered: 154 Skipped: 26
TOTAL 154
Strongly agree
Agree
Somewhat agree
Neither agreenor disagree
Somewhatdisagree
Disagree
Stronglydisagree
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Strongly agree
Agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Disagree
Strongly disagree
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
47 / 60
Q35 Would you like to share examples or provide suggestions as to howservices can be improved for your specific condition or disability?
Answered: 112 Skipped: 68
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
48 / 60
0.66% 1
7.24% 11
7.24% 11
11.84% 18
73.03% 111
Q36 This question is about what social care support you need and receive.Social care support is help provided by your local authority for daily living
activities such as washing, dressing, feeding yourself, getting toappointments or parenting responsibilities. Have you been able to access
the care and support you need from the social care system?Answered: 152 Skipped: 28
TOTAL 152
Yes – I getsocial care...
Yes – I getsocial care...
No - I haverequested...
No - I needsocial care...
No - I don'tneed help fr...
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Yes – I get social care support that meets all my needs
Yes – I get social care support that meets some of my needs
No - I have requested social care support but was refused help
No - I need social care support but have not requested it
No - I don't need help from social care services
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
49 / 60
Q37 How much do you agree with the statement: "I have received the helpI needed" in relation to the following:
Answered: 153 Skipped: 27
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
50 / 60
Strongly agree Agree Neither agree nor disagree Disagree
Strongly disagree Not applicable/not needed
Mental Healthsupport
Adequate painrelief
Referral to aspecialist
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
51 / 60
0.67%1
10.67%16
24.00%36
16.67%25
26.67%40
21.33%32
150
4.22
1.34%2
13.42%20
18.12%27
33.56%50
20.13%30
13.42%20
149
3.98
3.29%5
23.68%36
15.79%24
16.45%25
39.47%60
1.32%2
152
3.69
STRONGLYAGREE
AGREE NEITHERAGREE NORDISAGREE
DISAGREE STRONGLYDISAGREE
NOTAPPLICABLE/NOTNEEDED
TOTAL WEIGHTEDAVERAGE
MentalHealthsupport
Adequatepain relief
Referral toaspecialist
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
52 / 60
7.84% 12
73.20% 112
17.65% 27
1.31% 2
Q38 Do you consider yourself to be housebound or bedridden according tothe above definition?
Answered: 153 Skipped: 27
TOTAL 153
Yes
No
It varies
Not sure
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Yes
No
It varies
Not sure
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
53 / 60
Q39 Have you received any of the following domicilary services (at home)when requested?
Answered: 144 Skipped: 36
3.47%5
28.47%41
68.06%98
144
2.65
0.69%1
28.47%41
70.83%102
144
2.70
3.50%5
24.48%35
72.03%103
143
2.69
2.10%3
25.87%37
72.03%103
143
2.70
Yes No Not requested
GP home visit
Domiciliarydental care
Domiciliarycervical...
Opticianservices
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
YES NO NOT REQUESTED TOTAL WEIGHTED AVERAGE
GP home visit
Domiciliary dental care
Domiciliary cervical screening (smear test)
Optician services
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women and healthcare
SurveyMonkey
54 / 60
Q40 Would you like to tell us about any experience of requesting orreceiving domiciliary services?You can also use this box to tell us aboutany requests you have made for special arrangements or reasonable
adjustments for hospital visits for procedures that can't be carried out athome.
Answered: 23 Skipped: 157
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
55 / 60
2.58% 4
4.52% 7
27.10% 42
23.87% 37
37.42% 58
3.87% 6
0.65% 1
Q41 Do you feel that the COVID-19 pandemic has had a positive ornegative effect on your health?
Answered: 155 Skipped: 25
TOTAL 155
Positive
Mostly positive
Neitherpositive or...
Mostly negative
Negative
Don't know
Prefer not toanswer
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Positive
Mostly positive
Neither positive or negative
Mostly negative
Negative
Don't know
Prefer not to answer
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
56 / 60
1.94% 3
3.87% 6
20.00% 31
18.06% 28
52.90% 82
3.23% 5
0.00% 0
Q42 Do you feel that the COVID-19 pandemic has had a positive ornegative effect on your ability to access healthcare services?
Answered: 155 Skipped: 25
TOTAL 155
Positive
Mostly positive
Neitherpositive or...
Mostly negative
Negative
Don't know
Prefer not toanswer
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Positive
Mostly positive
Neither positive or negative
Mostly negative
Negative
Don't know
Prefer not to answer
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
57 / 60
Q43 Are there any aspects of healthcare have you particularly struggled toaccess during the COVID-19 pandemic?
Answered: 87 Skipped: 93
Chronic Illness Inclusion: consultation on chronic illness, disability,
women and healthcare
SurveyMonkey
58 / 60
81.94% 127
13.55% 21
4.52% 7
Q44 Have you been able to obtain a vaccine against Covid-19?Answered: 155 Skipped: 25
TOTAL 155
Yes
No
Notapplicable/I...
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
ANSWER CHOICES RESPONSES
Yes
No
Not applicable/I have not wanted a vaccine
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women and healthcare
SurveyMonkey
59 / 60
Q45 Are there any service changes that you would like to see continued inthe future?
Answered: 57 Skipped: 123