Legacy Project & Be the Generation Bridge

Stephaun E. Wallace, MSProject Manager

Legacy Project‐ Fred Hutchinson Cancer Research Center 

BHAP ConferenceDallas, Texas

October 4, 2012

At a GLANCE

■ Legacy Project Overview■ Be the Generation Bridge Project Overview■ Questions and Answers

LEGACY PROJECT

Introduction: Office of HIV/AIDS Network Coordination (HANC)

HANC is a project that works with the five HIV/AIDS Clinical Trials Networks funded by the Division of AIDS (DAIDS) of NIH with the intent of creating a more integrated collaboration and flexible research structure.

Introduction: The Legacy Project

Mission: The Legacy Project’s mission is to build trust and collaboration among researchers, research institutions and historically underrepresented communities most impacted by the domestic HIV epidemic; to enhance cultural competence; and to initiate scientific investigation to increase clinical research participation.

Focus Areas:■ Research■ Capacity Building & Technical Assistance■ Engagement & Collaboration

Programs & Initiatives

Legacy EvaluationGoal: To conduct process and outcome

evaluations of all Legacy Project initiatives. 

House/Ball & ATN CollaborationGoal:To initiate dialogue with the HBC

and address research questions related to prevention messaging,

risk behaviors, and awareness of clinical research; and to form a coalition that

will spread the word about HIV prevention and therapeutic

research, encourage HIV testing, identify barriers and facilitators for

clinical trial participation, and provide culturally appropriate and scientifically

accurate information.

Hispanic/Latino CommunityConsultation Services

Goal: To increase the knowledge and awareness of HIV/AIDS

clinical research among Hispanic/Latino communities and to

examine barriers to participation.

CBA/CDC CollaborationGoal: To improve the capacity of minority community-based

organizations to integrate cutting-edge biomedical

approaches in their respective HIV prevention portfolios.

NAEHCR/NNAAPCCollaborative

Goal: To improve outreach and

collaboration between Native American

communities and HIV clinical research sites in

Seattle and Denver.

CATA (Creating Awareness Through Art)

Goal: To facilitate partnerships with artists,

clinical researchers, venues, and site staff to reach

communities most impacted by HIV in the U.S.

BTG BridgeGoal: To foster relationships with highly impacted communities in

order to promote awareness, understanding, dialogue, and

support for biomedical prevention research.

BCU/Lincoln UniversityCollaborative

Goal: To examine the knowledge, attitudes and

beliefs of students and administrators at HBCU.

Damon Humes Jessica MooneyParis Mullen

Jessica Mooney

Paris MullenJessica Velcoff

Denee McCloud

Damon Humes

Holly CoferHolly Cofer Anjali Desai

Jessica Mooney

Damon Humes

Damon Humes

Paris Mullen

Bertram Johnson

LETI (Legacy Expanded Testing Initiative)

Goal: To increase awareness of, and/or referrals to, HIV

prevention clinical trial sites for people of all ethnicities, gender

identities and sexual orientations that are most disproportionately

impacted by the domestic HIV epidemic.

Paris Mullen

Damon Humes

Michael Arnold

Damon Humes

Michael Arnold

Jeff Schouten

Initiatives

Legacy Project Initiatives & Programs

■ Native American Engagement in Clinical Research- A joint project with NNAAPC

■ Legacy Expanded Testing Initiative■ Historical Black Colleges and Universities Collaboration■ House/Ball National Coalition■ National Community Consultation Series■ Creating Awareness Through Art■ Be The Generation Bridge- increase understanding and

support for biomedical HIV prevention research

BE THE GENERATION BRIDGE

To foster relationships with highly impacted communities in order to promote dialogue,

awareness and understanding of biomedical prevention research, and increase support for

research participation.

Funded by NIAID: A partnership between the Legacy Project and FHI 360

Be the Generation (BTG) Bridge Project

■ Division of AIDS, National Institute of Allergy and Infectious Diseases (NIAID), National Institutes of Health (NIH).■ Legacy Project/Office of HIV/AIDS Network Coordination (HANC) – Seattle,

WA■ FHI 360/HIV Prevention Trials Network – Washington, DC

■ To continue building community partnerships and maintain momentum of the HIV Vaccine Research Education Initiative (NHVREI) a bridging project was funded.

■ HIV Prevention Methods – HIV Vaccines– Microbicides– Pre Exposure Prophylaxis (PrEP)– Treatment as Prevention (TasP)

BTG Bridge Partners - Local■ Gay City Health Project

Seattle, WA

■ Nashville CARES Nashville, TN

■ AIDS Alabama Birmingham, AL

■ AIDS Taskforce of Greater Cleveland Cleveland, OH

■ Community Education Group Washington, DC

■ Family Planning Council-SafeGuardsPhiladelphia, PA

■ Latino Health Institute, Inc. Boston, MA

■ MOCHA Center Buffalo, NY

■ Multicultural AIDS Coalition Jamaica Plain, MA

■ San Francisco AIDS Foundation San Francisco, CA

■ SisterLove, Inc. Atlanta, GA

■ Us Helping Us, People Into Living Washington, DC

■ AIDS Project of Los Angeles Los Angeles, CA

■ Bienestar Human Services Los Angeles, CA

■ Pittsburgh AIDS Task Force Pittsburgh, PA

■ Public Health Solutions New York, NY

■ PR Cultural Center – Vida/SIDA Chicago, IL

■ AIDS Alliance of Children,Youth & Families Washington, DC

■ AIDS UnitedWashington, DC

■ AIDS Advocacy Vaccine Coalition (AVAC) New York, NY

■ ASPIRA, Inc. Washington, DC

■ Black AIDS Institute Los Angeles, CA

■ Gay & Lesbian Latino AIDS Education Initiative (GALAEI) & House of BlahnikPhiladelphia, PA

■ Latino Commission on AIDS New York, NY

■ National Minority AIDS Council & National Black Gay Men’s Advocacy Coalition Washington, DC

■ REACH LA Los Angeles, CA

BTG Bridge Partners - National

House/Ball Partnerships

■ Gay & Lesbian Latino AIDS Education Initiative (GALAEI) & House of Blahnik; Philadelphia, PA

■ REACH LA; Los Angeles, CA

Event Sponsorships

4th Annual WNY Awards Ball & Health Forum Chicago Appreciation Ballroom Award Ceremony Dallas Black Pride Dallas Southern Pride Deeper Love Day in the Park Fame Monsters Ball Jackson Black Pride Harlem Pride, Inc. I Am Black Excellence: East Region Conference for Black LGBT Youth/Chicago

Midwest Region Conference/Los Angeles West Region Conference Ovahness Ball 8 Southern Regional Ball House and Pageant (B/HAP) Communities’ Health

Disparities and Leadership Conference Wrap it Up "Fantasy Awareness Hair Show"

Legacy Project Initiatives & Programs

■ Native American Engagement in Clinical Research- A joint project with NNAAPC

■ Legacy Expanded Testing Initiative■ Historical Black Colleges and Universities Collaboration■ House/Ball National Coalition■ National Community Consultation Series■ Creating Awareness Through Art■ Be The Generation Bridge- increase understanding and

support for biomedical HIV prevention research

ACKNOWLEDGEMENTS

Legacy Project & BTG Bridge TeamsAll of the BTGB Project Partners, including

REACH LA and House of BlahnikEach of the NIH Networks, Partners, and NIAID/NIH

Abounding Prosperity Staff, Represented Organizations & the Dallas Community

QUESTIONS

THANK YOU!

For more information:

Stephaun E. Wallace, MSProject Manager, Legacy Project

Fred Hutchinson Cancer Research Center(206) 667-3108

SEWallac@fhcrc.org