Programs Connection, Dec/Jan 2008-09

JOIN THE MOVEMENT

Programs CONNECTION

December 2008 — January 2009 • Vol. 8 No. 1

Capitol ConferenceCreate change through activism.

Women’s Getaway Girls in the city.

PlusTeen Holiday Bowling PartyManaging Fatigueand much, much more

Programs ConnectionPrograms Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S.Minneapolis, MN [email protected] EditorsTimothy HoltzEmily Wilson

MS NavigatorsSarah DanenJaclyn GronebergJill ParkinsonHeather Svenson

Vice President of ProgramsLinda Munson

Chapter PresidentMaureen Reeder

To obtain an audio tape of Programs Connection, call Timothy Holtz at the Minnesota Chapter. Promising treatments for MS Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

MOVING IS WHO WE ARE

“Unlikely activists took small steps to fuel momentum and

make big change.”Over the years I have heard people say things like “I could never be an MS activist,” or “I don’t know anything about politics.” In reality, anyone can become an activist for people living with multiple sclerosis. And sometimes, all it takes is for people to tell their stories.

This past year, the Minnesota Chapter received phone calls, e-mails and letters from more than 60 people who saw sudden spikes in prescription co-payments for MS disease- modifying drugs under some employer-based health plans. They shared their stories about how this affected their day-to-day lives and how they feared it would affect their futures.

Thanks to these people who expressed concern, we had plenty to talk about with the health insurance companies. MS activists wrote letters to their insurance companies and several people joined chapter staff in a meeting with health plan representatives. Last spring, we recruited Rep. Rod Hamilton, who lives with MS, to introduce legislation to cap co-payments for MS disease-modifying drugs.

Many of the people who took a stand on this issue didn’t consider themselves activists. But by speaking up, this group of unlikely activists took small steps to fuel momentum and make big change. As the chapter prepares for the 2009 legislative session, capping co-pays for MS drugs is a top priority.

Join your fellow MS activists and help put an end to co-pay increases. Learn about this year’s Capitol Conference on Page 13. I hope to see you there!

Maureen Reeder and former U.S. Rep.

Ramstad at the Capitol in Washington, D.C.

JOIN THE MOVEMENT

Table of Contents

Programs by topic

AdvocacyCapitol Conference 13

Healthy livingBack to Fitness 20MS Fitness Club and Team 5What’s online? 23

InspirationConnect Locally 19Women’s Getaway 15

Join the movementCapitol Conference 13MS Fitness Club and Team 5

Managing MS symptomsBack to Fitness 20Face Time with Your Local Neurologist 21Managing Fatigue 11What’s online? 23

Newly diagnosedClubs and groups 26Moving Forward with MS 9

Personal connectionsClubs and groups 26MS Camp 17Teen Holiday Bowling Party 7Women’s Getaway 15

TechnologyWhat’s online? 23

YouthTeen Holiday Bowling Party 7

Programs by location

HutchinsonConnect Locally 19

Maple LakeMS Camp 17

Twin Cities – Metro programsBack to Fitness 20Capitol Conference 13Connect Locally 19Managing Fatigue 11Moving Forward with MS 9Teen Holiday Bowling Party 7Women’s Getaway 15

4 National Multiple Sclerosis Society, Minnesota Chapter

Elizabeth Carlson — diagnosed with multiple sclerosis in 2002 — has been fighting to lower the cost of co-payments for prescription drugs for MS and other chronic illnesses under employer-based health plans.

In 2008 Carlson received notice from her health insurance company that her prescription co-payment for the MS disease-modifying drug Rebif would increase 1,500 percent — causing her annual out-of-pocket expense to jump from $160 to $2,400. After her MS diagnosis, she had to make many life adjustments, but now, Carlson worried she’d have to make drastic financial changes as well.

“Now people with chronic illness may have to make a choice between paying for rent or groceries and getting their medication,” Carlson said, “That’s not right.”

She felt disbelief, sadness and anger but realized she had the resources and abilities to reverse the change. Carlson took her first step toward becoming an activist; she wrote a letter.

Carlson has written eight letters to key state representatives, three of whom serve on the Health and Human Services Committee. She considers her activism on the issue to be

a routine part of managing the disease. Though Carlson knows it could be years before she and others with MS see a change in co-pays, she remains hopeful and strong willed.

“We don’t decide to get MS, but we can decide how we will approach it,” she said. “I have the strength. I am a finisher, I won’t quit until we see the change.”

Small steps toward big change

“We don’t decide to get MS, but we can decide how we will approach it.”

– Elizabeth Carlson, diagnosed in 2002

Elizabeth Carlson (center) with Becky Quinlan (left) and Carolie Collins at walk MS.

Get involved

Learn more about the Capitol Conference on Page 13.

The Minnesota Chapter offers two great ways to maintain fitness, connect with others and join the MS movement in 2009.

MS Fitness ClubThe first opportunity is the MS Fitness Club — a sharing group that gives people with multiple sclerosis a chance to discuss individual fitness goals and exercise programs. The club is open to anyone with MS who is presently exercising or who is interested in exercising. Tom Holtackers, a physical therapist who lives with MS, facilitates the sessions.

The MS Fitness Club meets the third Saturday of the month at the chapter office from 10 a.m. to noon.

Topics may include:

1. Fitness and exercise: what are they, how will they help me, how do I get started and how do I keep going?

2. How do I develop long- and short-term goals?

3. How much is too much or too little exercise?

4. What exercises help improve fatigue?

5. What exercises help improve strength?

6. What exercises help manage spasticity?

7. What exercises help manage bladder symptoms?

8. Exercise of the month

9. Nutritional tip of the month

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org 5

MS Fitness Club and TeamJoin the movement.

MS Fitness TeamThe MS Fitness Team provides people with MS an opportunity to connect with others throughout the chapter area from the comfort of their own home.

To be a member of the MS Fitness Team you must be a person with MS, commit to some form of physical exercise at least 30 minutes a day, five days a week, volunteer for the MS Society at least 25 hours a year, and raise $250 for the chapter.

Members of the team network with one another via message boards and telephone calls. Team members receive certificates of completion and T-shirts to wear at chapter programs and events.

Get involved

If you are interested in either of these programs, contact Timothy Holtz at 612-335-7930 or [email protected].

Equipment programsExchange or borrow the equipment you need, when you need it.

Equipment Exchange

The Minnesota Chapter Equipment Exchange is available to help people with disabilities purchase new equipment and sell or donate items they no longer need. Equipment ranges from accessible vans to stair glides.

Any donated equipment is a non-cash charitable contribution and you may apply it in part to your tax deductions. The Equipment Exchange is open to the public and viewed nationwide.

Equipment Loan Program

The Equipment Loan program allows people with MS to try out equipment before making an important purchase or to address the ever-changing nature of the disease. This program offers equipment in the Twin Cities metro area as well as Brainerd, Hutchinson and Duluth. It is a great way to try before you buy or use something while on vacation. The most popular loan items are three-wheel scooters, walkers and manual wheelchairs.

Borrow

The process is simple. Just call Scott at 612-335-7967. Equipment can be used from one week to three months depending on the type of equipment and your needs.

Buy, donate or sell

Visit www.MSsociety.org and click on Equipment Exchange under “MS Links.” To sell or donate an item, click to place the item on the exchange board. To browse available items for purchase, simply scroll down the page.



Teen Holiday Bowling PartyJoin other teenagers affected by MS for fun and friendship.

ADDITIONAL RESOURCES

Join the Teen E-connection e-mail list.

E-mail Nancy Dawn Van Beest at [email protected].

Talkin’ Teens Chat Room

A chat room on MSWorld for teens ages 13 to 18 with MS.

Visit www.MSworld.org.


Jan. 2 n Bloomington

The Minnesota Chapter invites teens with a connection to multiple sclerosis to the Teen Holiday Bowling Party. The fun includes cosmic bowling, pizza, refreshments, team bowling games and connecting with one another. Teens may bring a friend.

Teen Holiday Bowling PartySpace is limited. Registration form must be received by Dec. 29.

Register online at www.MSsociety.org.

Please printID# (from mailing panel) ________

Name________________________Age________Address_____________________City_________________________State________ ZIP_____________Home phone _____-_____-_____Work phone _____-_____-______E-mail_______________________



If you need any special accommodations, call 612-335-7970 (by the registration deadline).

Friday, Jan. 2 7:30–10 p.m.

LocationAMF Southtown Lanes 7941 Southtown Center Bloomington, MN 55431 952-888-9248 www.amf.com/southtownlanes

Program feeThere is no fee for this program.

RegisterOnline or by phone Visit www.MSsociety.org or call 612-335-7970.

By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

QuestionsFor more information, contact Nancy Dawn Van Beest at 612-335-7936 or [email protected] or Rachel Ring at 612-335-7937 or [email protected].

8 MNM0CKTW20090102BLO

Jan. 10 n Oakdale

If you or someone close to you has multiple sclerosis, you probably have a lot of questions and concerns. You may also feel overwhelmed and unsure of what questions to ask. This program gives you the information and support you need to live comfortably and confidently with this change in your life and help you make medical decisions about all aspects of your health.

n Learn about MS from an expert neurologist

n Team up with your health care providers

n Navigate the medication maze

n Consider clinical trials

n Understand how to talk about MS with your friends and family

n Gain information about resources available to you

n Learn how to cope with the anxiety MS may bring to your life

n Connect with other people whose lives are affected by MS

n Achieve optimal wellness

Moving Forward with MSMove forward together with family, friends,

health care providers and others affected by MS.

“I take one day at a time and continue to live life as normally as possible.”

– Natasha Frechette,

diagnosed in 2007


Information for people newly diagnosed with MS www.MSsociety.org (click on Living with MS)

South Metro Newly Diagnosed Self Help Group Meets the last Wednesday of the month at 6:30 p.m. at Jo Jo’s Rise & Wine, 12501 Nicollet Ave., Burnsville. For more information, contact Jennifer at 952-412-1296.


Made possible with a restricted educational grant from

Saturday, Jan. 10 9 a.m.– 4:30 p.m.

8:30 a.m. Check-in begins with continental breakfast

9–10:30 a.m. My life, my MS, my decisions — Timothy Holtz

10:45 a.m.–noon Understanding MS in your life — Sara Heinzen

Noon–1 p.m. Networking lunch

1–2:30 p.m. Learning about MS — Dr. Adam Carpenter

2:45–3:45 p.m. Connecting with others discussion groups

4–4:30 p.m. Conquering the anxiety and fear of MS — Sara Heinzen

LocationHilton Garden Inn St. Paul/Oakdale 420 Inwood Ave. Oakdale, MN 55128 651-735-4100 www.hiltongardeninn.hilton.com

Program fee$10 per person. Fee adjustments are available upon request. Make checks payable to MS Society. Do not send cash.



DVD or videoA DVD or video of the program is available in the chapter’s Lending Library. Visit www.MSsociety.org and click on Library and Literature or call 612-335-7938.

QuestionsFor more information, contact Timothy Holtz at 612-335-7930 or [email protected].

10 MNM0CNDW20090110OAK

Moving Forward with MSSpace is limited. Registration form must be received by Jan. 2.



Name________________________Address_____________________City_________________________State________ ZIP_____________Home phone _____-_____-_____Work phone _____-_____-______E-mail_______________________

_____ # of people attending@ $10 per person

$_______ enclosed

Complete names and addresses of others attending:

Name________________________Address_____________________City_________________________State________ ZIP_____________


Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

Jan. 15 n St. Paul

Fatigue is one of the most common symptoms of multiple sclerosis. It can severely interfere with both work and home activities. Learn how to manage fatigue and curb its effects on daily living at the Managing Fatigue program.

The Managing Fatigue program is a six-week group course designed by experts in the field of MS rehabilitation. Participants will learn ways to manage this common, complex and sometimes disabling symptom.

The series includes five videos highlighting the most important aspects of MS fatigue. There

will be six one-and-a-half-hour sessions led by Kathleen Matuska and occupational therapy students from the College of St. Catherine. The format includes video viewing, group discussions, individual goal-setting and homework activities designed to help you manage fatigue.


Managing FatigueGet tools for managing fatigue.


“Fatigue: What You Should Know”

Contact the chapter for a free copy.

12

Thursday, Jan. 15 6:30-8:30 p.m.

LocationFairview MS Achievement Center 2200 University Ave., Suite 140 St. Paul, MN 55114

Program feeThere is no fee for this program.



QuestionsFor more information, contact Jeannie Zank at 612-335-7939 or [email protected].

MNM0CWES20090115STP

Managing FatigueSpace is limited. Registration form must be received by Jan. 7.




Complete names and addresses of others attending:





Capitol ConferenceCreate change through activism.

Feb. 3 n St. Paul

Every year at the National MS Society, Minnesota Chapter Capitol Conference, Minnesotans come together to speak with lawmakers about issues affecting people with multiple sclerosis. At this year’s conference, MS activists will focus on two key issues: a bill to cap prescription co-payments for MS disease-modifying drugs under employer-based health plans and a tax credit for people who care for loved ones with disabilities.

This conference is for anyone who wants to speak up for people living with MS in Minnesota. No experience is necessary. Group leaders guide participants throughout the day. Before visiting the Capitol, activists must participate in one teleconference training and one in-person training.

New this year, the Minnesota Chapter offers three date options for both teleconference and in-person trainings. Training sessions include tips for meeting with legislators and an overview of this year’s hot issues.

Conference requirements:n Participate in one teleconference training

n Participate in one in-person training

n Commit to at least one follow-up meeting with your legislators

The chapter will provide:n Hotel accommodations for participants from

greater Minnesota

n Lunch at the Capitol

n Transportation from greater Minnesota where feasible

n Materials and supplies for conference visits

n Training materials and trainings

14

Tuesday, Feb. 3 9 a.m.–5 p.m.

MS activist trainingCapitol Conference participants must complete one teleconference training and one in-person training.

Teleconference trainingsWednesday, Jan. 21, 4–5 p.m.

Thursday, Jan. 22, 7–8 p.m.

Friday, Jan. 23, 10–11 a.m.

In-person trainingsSaturday, Jan. 31, 2-4 p.m., Bloomington

Monday, Feb. 2, 2–4 p.m. or 7–9 p.m., St. Paul

Tuesday, Feb. 3, 8–9 a.m., St. Paul*

*This session intended only for those who have participated in the Capitol Conference in previous years.

Program feeThere is no fee for this program. Transportation and lodging is provided to people traveling from greater Minnesota or outside the Metro Mobility service area where feasible.

RegisterIf you are interested in participating, complete the interest form. After registering, you will receive a detailed packet of program information.

Online or by phone Visit www.MSsociety.org or call 612-335-7968.

By mail Mail interest form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

QuestionsFor more information contact Kari Harju at 612-335-7968, 800-582-5296 or [email protected].

INTEREST FORM

Capitol ConferenceSpace is limited. Interest form must be received by Jan. 16.

Complete interest form online at www.MSsociety.org.





Women’s GetawayGirls in the city.

March 27–29 n Minneapolis

If you are a woman with multiple sclerosis, take advantage of this wonderful opportunity to socialize with other women affected by MS, have fun, build supportive relationships and learn ways to cope with the changes MS brings to life.

At the Women’s Getaway, speakers and activities provide participants with motivation, inspiration and positive ways to cope with MS. The weekend theme is “girls in the city.”

The getaway will be held at the Radisson Plaza Hotel — a prime location in the heart of

downtown Minneapolis just steps away from shopping and entertainment. The hotel offers warm hospitality, an inviting atmosphere and top-notch service.

Weekend includes:n Entertainment

n Fun

n Big city activities and cuisine

n Motivational, humorous and educational speakers

n Opportunities to build friendships

March 27-29 Minneapolis

Friday, March 27Check in, connect with other women and enjoy a “big city” dinner and show.

Saturday, March 28Learn positive ways to cope with MS in your life. Participate in afternoon activities or shop and then enjoy the evening dinner and special guest speaker.

Sunday, March 29Get inspired and motivated at the morning brunch.

LocationRadisson Plaza Hotel 35 S. Seventh St. Minneapolis, MN 55402 612-339-4900

Program fee$150 per person. Fee adjustments available upon request.

RegisterIf you are interested in participating, complete the interest form. Do not mail check with this form. After registering, you will receive a detailed packet of program information and a billing invoice.



QuestionsFor more information, contact Timothy Holtz at 612-335-7930 or [email protected].

INTEREST FORM16

Women’s GetawaySpace is limited. Interest form must be received by Feb. 20.

Complete interest form online at www.MSsociety.org.



Do not send payment with

this form.


MS Camp Connect with old and new friends.

Camp Courage — complete with an indoor pool, farm, health center, gymnasium and recreation area — is fully accessible, and cabins feature a comfortable lounge and sleeping area.

If you would like to learn more by speaking with past participants, contact the Minnesota Chapter. To see photos of MS Camp 2008, visit the MS Camp page at www.MSsociety.org.

May 4–8 n Maple LakeAug. 24–28 n Maple LakeMS Camp is a five-day program for people with multiple sclerosis at Camp Courage, near Maple Lake, Minn, May 4 to 8 and Aug. 24 to 28. MS Camp provides an opportunity to take a vacation from the challenges of the disease, connect with others and enjoy daily activities.

MS Camp includes outdoor activities, like canoeing or horseback riding, and indoor activities such as crafts, educational workshops and games. Professional entertainment and theme parties are just a couple of the exciting nighttime events.

MS Camp 2009 will be smoke free

To learn about smoking cessation resources, call the chapter or visit www.MSsociety.org or www.quitplan.com.

May 4-8 and Aug. 24-28 Maple Lake

LocationCamp Courage, Maple Lake, MN

AssistanceTrained volunteers are available to assist campers with personal care needs and recreational activities. Nurses are available to provide on-site medical care and a camp doctor will be on call. Home health aids are available in the morning and evening to provide personal care in the cabins. Campers are also invited to bring their own care helpers to provide personal care.

Program fee$200 per person. Fee adjustments are available upon request.

ApplicationsIf you are interested in participating, complete the interest form. Professional staff and volunteers review the applications to determine if the Minnesota Chapter can meet the medical and safety needs of participants. In some cases, individual medical needs may be greater than we can provide at MS Camp. Upon acceptance you will receive a billing invoice. Do not send a check with the interest form.


By mail Mail interest form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

QuestionsFor more information, contact Jeannie Zank at 612-335-7939, 1-800-582-5296 or [email protected]

Please note that we will make every effort to accommodate the camp of your choice, but we cannot guarantee space will be available. If a camp date has already been filled, you will have your choice of being placed on a waiting list or participating in the alternative camp.

INTEREST FORM18

MS CampInterest forms for the May and August camp sessions must be received by Feb. 13.



I want to participant in camp:

May 4-8 q Yes q No

Aug. 24-28 q Yes q No

q Both dates work for me, fit me in where space is available.

Do not send payment with

this form.

In 2007, the National MS Society launched an MS Film Festival to give people affected by multiple sclerosis a platform to tell their story and show the world how they move forward. A film committee made up of people with MS who work in the entertainment industry selected five finalists to be paired with a production company to help bring their stories to life.

Sharpen your movie critic’s tongue, find inspiration in other people’s stories or just sit back and relax. Join the St. Paul Care to Share self-help group or the Hutchinson self-help group for a screening of the five winning films. Popcorn will be served.

For information and to R.S.V.P. to the St. Paul self-help group, contact Beth at 612-825-7990 or [email protected].

For information and to R.S.V.P. to the Hutchinson self-help group, contact Ann at 320-824-7896 or [email protected].

Moving Forward Film Festival

St. Paul n Wednesday, Jan.14

Hutchinson n Monday, Feb. 9


Can’t make this program?

To view the five short films, visit www.YouTube.com and search for “Moving Forward Film Festival.”

Connect LocallyConnect with people in your community and learn about MS-related research,

symptom management and ways to cope with MS.


Back to FitnessDiscover the benefits exercise can bring to your life.

Physical fitness is an important aspect of your overall health care strategy. It is known to reduce pain levels, strengthen and stabilize muscles and improve work and recreational activities. Join others with multiple sclerosis by participating in the Back to Fitness program.

The Back to Fitness program at the Minneapolis Clinic of Neurology is a medically supervised therapeutic exercise program that helps people with medical conditions that require rehabilitation to improve functional tolerance for daily activities. The Back to Fitness program specializes in treating people with neurological conditions, including MS. Center staff work closely with the Schapiro Center for Multiple Sclerosis, with Dr. Randall Schapiro and Dr. Jonathan Calkwood, as well

as the Multiple Sclerosis Treatment and Research Center, with Dr. Gary Birnbaum.

Program participants receive instructions for home fitness, health club recommendations, lessons in body mechanics and posture, and education about their condition and how exercise plays an important role in managing symptoms.

How it worksn After a one-on-one consultation, the Back

to Fitness team develops a need-specific program just for you.

n The program generally runs six weeks or longer depending on how often you are able to attend sessions.

n The Back to Fitness team modifies the program in the event of insurance or financial issues or if participants need little supervision.

Centers are located in Burnsville and Minneapolis. Call to set up an appointment. Prescriptions are needed for services.

Back to Fitness Center Golden Valley The Minneapolis Clinic of Neurology, Ltd. 55422 Golden Valley Road, Golden Valley, MN 763-302-4102

Back to Fitness Center Burnsville The Minneapolis Clinic of Neurology, Ltd. 675 East Nicollet Blvd., Suite 100, Oak Ridge Professional Building, Burnsville, MN 952-989-5000



MS Treatment and Research Center at the Minneapolis Clinic of NeurologyJoin Dr. Gary Birnbaum and Jane Iverson, R.N.

Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105 Hwy. 55, Golden Valley, MN 55422, 763-591-4700

Topics: Jan. 14 Multiple faces of MS

Feb. 18 MRI, what it is, what it is not

Please R.S.V.P. at 763-302-8282, ext. 4823.Dr. Gary Birnbaum

Face Time with Your Local Neurologist

Get answers straight from the source. Neurologists from local

MS clinics host these informal, question-and-answer style sessions

about living with MS and research.

University of Minnesota MS CenterJoin Dr. Gareth Parry and Denice Wax, MS-certified nurse

Every other month at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N. Minneapolis, MN 55412

Topics: Jan. 12 Exercise and nutrition

For more information, contact the University of Minnesota MS Center at 612-626-2675.

Dr. Gareth Parry


The Schapiro Center for MS at the Minneapolis Clinic of NeurologyJoin Dr. Randy Schapiro and Dr. Jonathan Calkwood

Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750

Topics: Jan. 7 What is MS?

Jan. 14 Managing injectable medications

Jan. 21 The challenges of disability insurance and Social Security

Jan. 28 Exploring a new concept: group appointments

Feb. 4 The role of physical therapy in MS

Feb. 11 What is an MS attack?

For more information, contact the Schapiro Center for MS at 763-302-4199.

Dr. Randy Schapiro

Dr. Jonathan Calkwood

Face Time with Your Local Neurologist


MS Learn OnlineMS Learn Online is the National MS Society’s online educational webcast series featuring three channels of programming — Feature Presentation, Daily Minute and Question and Answer. Transcripts (.pdf) and podcasts (.mp3) are available for most programs.

Check out the latest webcast, Managing Your Symptoms featuring Dr. Patricia Coyle.

Coyle is acting chair, professor of neurology and director of the Stony Brook Multiple Sclerosis Comprehensive Care Center. Her areas of expertise include neurologic infectious disease, specifically Lyme disease and multiple sclerosis.

This video webcast series includes:

Part 1: Fatigue

Length: 12 minutes Topics:

n Different types of MS fatigue

n Effects of depression, heat and lack of sleep on fatigue

n Strategies for managing fatigue

Part 2: Numbness, dizziness and vertigo

Length of program: 11 minutes Topics:

n Numbness and tingling as initial symptoms

n Explanation of dizziness versus vertigo

n Managing numbness, dizziness and vertigo

How to stop smokingQUITPLAN® www.quitplan.com

Minnesotans have free access to this service, which provides tools and information to help you quit smoking.

What’s online?Resources for managing MS symptoms and smoking cessation.

ExerciseStudies show exercise not only improves your overall health and well-being, but

can also help to manage many MS symptoms. Read about people with MS who are

moving forward through exercise and find an exercise program in your community.


WATER EXERCISE

Albert LeaFamily YMCA Bill Villarreal, 507-373-8228 T/R, 1-2 p.m.

AlexandriaLakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W 4:30-5:30 p.m. T/R 9-10 a.m.

AndoverYMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon

BurnsvilleMinnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.

Coon RapidsEmma B. Howe Northtown YMCA Joel Giedlinski, 763-717-1859 T/R, 11 a.m.-noon

Detroit LakesDetroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 Call for details.

DuluthDuluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.

Featured group

Mankato water exercise

The Mankato water exercise group meets every Wednesday from 5 to 6 p.m. at the YMCA in Mankato. The group does water walking, stretching, balance and strengthening exercises.

What is your exercise group doing to move forward with MS?

If you want to be the next featured group, e-mail your stories and photos to Emily at [email protected].

EaganSouthwest Area YMCA Trenne Fields, 651-456-9622 T, 9-10 a.m.

Eden PrairieCommunity Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Golden ValleyCourage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.

Grand RapidsItasca County Family YMCA Sue Beer, 218-327-1161 T, 9:30-10:30 a.m.

Inver Grove HeightsThe Grove Amy Crary, 651-554-3420 M/W, 10:10-11 a.m.

MankatoMankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.

New HopeNorthwest YMCA Erin Thune, 763-592-5515 T/R, 11 a.m.-noon

PerhamCommunity Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.

St. CloudFamily YMCA Will Hurst, 320-253-2664 M/W/F, 9:30-10:30 a.m.

St. PaulHumboldt Senior High School Pam Weiss, 651-632-6020 M/R, 5:30-6:20 p.m. S, 8:30-9:20 a.m.

StaplesStaples Community Center Kevin Grondahl, 218-894-2553 W/F, 11 a.m.-noon

StillwaterCourage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

VirginiaMesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.

WaconiaSafari Island Sara Johnson, 952-442-0695 M-F, 8:30 a.m.

YOGA

BemidjiDionne’s OM Yoga Studio Dionne Daly, 218-766-9262 S, 10-11:30 a.m.

Eden PrairieEden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

MinneapolisKingsley Commons Jeanine Farrell, 612-925-8478 F, 2:30 p.m.

Uptown YWCA Lisa First 612-822-3504 F, Noon

New HopeNorthwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.

StillwaterCourage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.

GROUP EXERCISE

ShoreviewHarbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m.

TAI CHI

MankatoTai Chi for balanceCentenary United Methodist Church Rich & Pam Schreiner 507-388-7652 M, 5:30-6:30 p.m

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday



Clubs and GroupsJoin an MS club or group to

connect with other people

affected by MS, enjoy lively

discussions, learn valuable

information and ways to cope

with challenges, have fun and

be inspired. Read about groups

and clubs that are moving

forward together and find a

club or group in your community

that’s right for you.

BOOK CLUBS

Apple ValleyFirst Friday of the month 10 a.m. Barnes & Noble Cindy 952-891-5249

DuluthFourth Tuesday of the month 11 a.m. Barnes & Noble Betsy 218-724-9075

Maple GroveFourth Monday of the month 10 a.m. Barnes & Noble Mary 763-420-4562

MahtomediFourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna 651-762-4084 Mary 651-488-1688

MinneapolisThird Tuesday of the month 7 p.m. Kingsley Commons Pat 612-521-4654

Featured group

Mankato

“The Mankato

group offers

a positive

and uplifting source of support for

people living with multiple sclerosis.

The group is made up of people of

all ages who love to be social and

help new members become more

comfortable. They are always eager

to answer questions that new

members may have about MS.”

— Brenda Fruhwirth, group facilitator


RochesterFourth Tuesday of the month 7 p.m. Barnes & Noble Apache Mall Larry 507-281-2447

RosevilleFirst Tuesday of the month 10 a.m. Barnes & Noble Har Mar Carol 763-571-2290

SELF-HELP GROUPS

New group

MS Fitness ClubThird Saturday of the month 10 a.m. Chapter Office

For care partners

Bemidji Care PartnersThird Saturday of the month 10 a.m. North Country Regional Hospital

Elk River Care PartnersFirst Wednesday of the month 6:30 p.m. Senior Center

Men’s Care PartnerBreakfast Third Saturday of the month 10 a.m. Different restaurant each month Contact Dan for location at 651-779-9435 or [email protected]

Perham Care PartnersLast Tuesday of the month 1 p.m. Calvary Lutheran Church

St. Louis Park Care PartnersThird Tuesday of the month 6:30 p.m. St. Louis Park City Hall

St. Paul Care Partners at MSACSecond Tuesday of every other month 7 p.m. MS Achievement Center

For couples

Stillwater CouplesSecond Saturday of the month Noon Courage Center

For GLBT

St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and DisabilityFirst Tuesday of the month 6 p.m. Metropolitan Center for Independent Living

For men

Metro Area It’s Just Breakfast (with the guys)Various Saturdays of the month 10 a.m. Different restaurant each month Contact Rick for location at 763-208-8741 or [email protected]

For newly diagnosed

South Metro for Newly DiagnosedLast Wednesday of the month 6:30 p.m. Jo Jo’s Rise & Wine

For people of color

Metro Area MS Group for People of ColorSecond Saturday of the month 10 a.m. Wayman AME Church in Minneapolis

For people mildly affected by MS

Southwest Metro MS group for mildly affectedThird Saturday of the month 10 a.m. United Methodist Church in Eden Prairie

For professionals

Let’s Lunch: professionals living with MSThird Saturday of the month 11 a.m. Chatterbox Pub in St. Paul


For women

Maplewood Peer Emotional Support Women’s GroupThird Thursday of the month 6:30 p.m. Gustavus Adolphus Lutheran ChurchGeneral self-help groups

AitkinFirst Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m. Access North

Albert LeaSecond Monday of the month 7 p.m. Grace Lutheran Church

AlexandriaSecond Monday of the month 5 p.m. St. Mary’s Office Building

Apple ValleyFirst Thursday of the month 9:30 a.m. Christ Church

Arrowhead regionSecond Friday of the month 1 p.m. Babbitt Municipal Building

AustinFirst Monday of the month 6:30 p.m. Grace Lutheran Church

BelviewThird Thursday of the month 7:30 p.m. Parkview Home No meetings Nov.–Feb.

BemidjiThird Saturday of the month 10 a.m. North Country Regional Hospital

BensonFourth Tuesday of the month 7 p.m. Westwood Manor Apartments No meetings Nov.–Feb.

BloomingtonFirst Wednesday of the month 7 p.m. Nativity of Mary Church No meetings July–Aug.

Brainerd MS Breakfast at the MillThird Monday of the month 9:30 a.m. Sawmill Inn

Burnsville/Apple ValleyFirst Tuesday of the month 6:30 p.m. Fairview Education Center in Burnsville

CambridgeThird Thursday of the month 7 p.m. Cambridge Medical Center

CanbySecond Thursday every other Month, April through December 4 p.m. Sanford Canby Medical Center

ChaskaThird Tuesday of the month 12:30 p.m. Chaska Library

Coon Rapids North Suburban Second Wednesday of the month 7 p.m. Coon Rapids City Center

Detroit LakesSecond Monday of the month 6 p.m. Lincoln Park Assisted Living

DuluthFirst Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Eden PrairieThird Tuesday of the month 7 p.m. Wooddale Church

Fergus FallsSecond Wednesday of the month 11:30 a.m. United Church of Christ

Forest Lake AreaSecond Thursday of the month 6:30 p.m. The Meadows for Assisted Living


GaylordFirst Sunday of the month 7 p.m. Lakeview Home No meetings Nov.–Feb.

GibbonThird Saturday of the month 9:30 a.m. Gibbon Community Center

Golden ValleySecond Monday of the month 7 p.m. Golden Valley Lutheran Church

Grand RapidsSecond Thursday of the month 12:30 p.m. Grand Rapids Public Library

HibbingLast Thursday of the month 1 p.m. Open Door Church

HutchinsonSecond Monday of the month 6:45 p.m. Christ the King Lutheran Church

Inver Grove Heights/ West St. PaulFirst Monday of the month 7:30 p.m. Good Shepherd Lutheran Church No meetings Dec.–Feb.

Lake ElmoThird Wednesday of the month Noon Christ Lutheran Church

LitchfieldFourth Tuesday of the month 3 p.m. Meeker County Memorial Hospital

LuverneThird Thursday of the month 7:30 p.m. Rock County Family Services

MankatoSecond Thursday of the month 7 p.m. ISJ Physical Medicine, Madison East Center

Maple GroveSecond Saturday of the month 10 a.m. St. Joseph the Worker Church

Maple Lake/AnnandaleThird Monday of the month Noon Maple Manor East in Maple Lake

MinneapolisLast Saturday of the month 10 a.m. Kingsley Commons

MoraSecond Monday of the month 7 p.m. Kenebec Hospital

New HopeThird Saturday of the month 10 a.m. Caribou Coffee

New UlmThird Tuesday of the month 7 p.m. Oak Hills Living Center

OakdaleFirst Saturday of the month 10:30 a.m. Oakdale Library

PerhamLast Tuesday of the month 1 p.m. Calvary Lutheran Church

Pierz/Little FallsFirst Wednesday of the month 1 p.m. Bethel Lutheran Church

PrincetonThird Saturday of the month 10 a.m. Fairview Northland Regional Hospital

RochesterSecond Wednesday of the month 7 p.m. Meadow Lake Senior Living

RosevilleSecond Wednesday of the month 6:45 p.m. Roseville City Hall

St. Anthony/New BrightonFourth Tuesday of the month 6 p.m. Christ the King Lutheran Church in New Brighton

StaplesSecond Thursday of the month 3:30 p.m. Lakewood Care Center No meetings June–Aug.

St. CloudSecond Wednesday of the month 7 p.m. St. Cloud Public Library

St. Cloud-Granite CityFirst Tuesday of the month 4 p.m. Whitney Center

St. Croix FallsThird Saturday of the month 2 p.m. Good Samaritan Nursing Home

St. Paul Second Saturday of the month 10 a.m. Fairview MS Achievement Center

St. Paul Care to ShareSecond Wednesday of the month 7 p.m. Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location

StillwaterThird Wednesday of the month 6 p.m. Courage Center

SuperiorSecond Tuesday of the month 6 p.m. Superior Public Library

WasecaThird Tuesday of the month 7 p.m. Waseca Medical Center

Wayzata-Suburban West HennepinFirst Thursday of the month 1 p.m. Wayzata Community Church


Additional resources

Book clubs

For more information about book clubs, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Book Clubs. If you would like to start a book club in your area, contact Jeannie Zank at 612-335-7939 or [email protected].

Self-help groups

For more information about self-help groups, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Self-help Groups. If you would like more information about a group or would like to start one in your area, contact Jeff Fisher at 612-335-7951 or [email protected].

WillmarFirst Tuesday of the month 7 p.m. Bethesda Pleasant View Nursing Home

Windom/Cottonwood CountyThird Tuesday of the month 7 p.m. ALC Lutheran Church

Woodbury A.M.Second Thursday of the month 9:30 a.m. King of Kings Lutheran Church

Woodbury P.M.Fourth Tuesday of the month 7 p.m. St. Ambrose of Woodbury

Didn’t find what you’re looking for?Use this all-in-one directory to find the programs, services and

resources that are right for you.

Calling from Greater Minnesota? Call 1-800-582-5296.


AdvocacyKari, 612-335-7968

Camps and getawaysGetaways for care partners, couples, families, men and women

Timothy, 612-335-7930

MS Camp

Jeannie, 612-335-7939

Youth Camp

Nancy Dawn, 612-335-7936

Chore servicesKari, 612-335-7968

Clubs and groupsBook clubs

Jeannie, 612-335-7939

Self-help groupsJeff, 612-335-7951

Education programs Timothy, 612-335-7930

Emergency assistance Scott, 612-335-7967

Equipment programsEquipment Loan

Equipment Exchange

Scott, 612-335-7967

Exercise programsJeannie, 612-335-7939 Rachel Ring, 612-335-7937

Family, youth and care partner programs

Nancy Dawn, 612-335-7936

Giving to the MS SocietyShannon, 612-335-7928 Rachel Hughes, 612-335-7965

Housing Steve, 612-335-7974

Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification.

Scott, 612-335-7967

Information and Referral CenterMS Navigators can answer questions about living with MS and connect you to resources.

Heather, Jaclyn, Jill and Sarah, 612-335-7900

Inservices for companies and organizations

Steve, 612-335-7974

Lending LibraryHeather, 612-335-7947 Jill, 612-335-7938

Mentor Program Connie, 612-335-7964

Professional education Steve, 612-335-7974

Teen programs Rachel Ring, 612-335-7937

Volunteer opportunitiesTimothy (Programs), 612-335-7930 Will (Events), 612-335-7992

Walk MS, Bike MS and motorsport events

Cortney, 612-335-7971

Are you a Movement Ambassador?n Do you often talk with people about your involvement with the MS Society?

n Are you interested in sharing your story about how MS affects your life?

n Do you enjoy mobilizing and engaging people in the MS movement?

If so, you should be a Movement Ambassador.

The Movement Ambassador program is an exclusive opportunity for people who are committed to engaging others in the MS movement.

Learn more and sign up at MSsociety.org.

For more information, contact Jenna at 612-335-7981 or [email protected]

There are many ways to support the movement to create a world free of multiple sclerosis. But did you know you can make a significant gift through your insurance policy?

Let it go. Make an outright gift of a paid-up life insurance policy.

Start anew. Take out a new policy with the National MS Society as owner and beneficiary. Your continuing premium payments, usually gifted directly to the society, are income tax deductible. With small annual payments, you can yield a sizable gift to the society.

To learn more, contact Shannon at 612-335-7928 or [email protected].

LOOK AT LIFE INSURANCE IN A WHOLE NEW WAY

Documents

Programs Connection, Dec/Jan 2008-09