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Professor Mark Brosnan @Bath_CAAR [email protected] http://go.bath.ac.uk/CAAR Autism summer school: go.bath.ac.uk/ubass Autism employment school: go.bath.ac.uk/bessa

Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

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Page 1: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Professor Mark Brosnan

@Bath_CAAR [email protected] http://go.bath.ac.uk/CAAR

Autism summer school: go.bath.ac.uk/ubass Autism employment school: go.bath.ac.uk/bessa

Page 2: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Digital Autism:Participatory design and the

autistic community

Inclusion or intervention

Being digital

Social media

Robots

Digital Social Stories

Finding the right digital technology

Evidence-based decisions

Page 3: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 4: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

2018 PEW survey of US 743 teens (aged 13-17)

• 95% have a smartphone

Page 5: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 6: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 7: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 8: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 9: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Minutes per day on social media globally

Page 10: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Digital autism: Inclusion and intervention

• Within autism research and practice, autism is often characterised asa relative weakness in social processing (with other humans) andrelative strengths in non-social processing (with the physical world:e.g. Baron-Cohen et al., 2001; 2005; Klin et al., 2000; 2009).

• Intervention for autism can build upon these relative strengths toaddress these relative weaknesses.

• Autistic people may benefit from

using digital technology.

Page 11: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Digital Autism?

• Sally-Anne Task (Swettenham et al., 1996)

• Wisconsin Card Sorting Test (Ozonoff, 1995)

• Emotion recognition (Brosnan et al., 2015)

Page 12: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Using technology - guidance for parents

Page 13: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Using technology - guidance for parents

Page 14: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Mazurek (2013) 108 autistic adults (18+) from theUSA

Page 15: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 16: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Facebook groups/ communities

Page 17: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Autism Facebook study (Brosnan and Gavin, 2015)

• Autistic group, 45 active members, 108 posts, 48% contained emotionwords

• Cancer group, 41 active members, 102 posts, 49% contained emotionwords

Page 18: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Proportions of emotions expressed

Page 19: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Question:

• How has your autism changed since having the freedom to talk topeople online instead of face to face?

• 46 respondents, self identifying as having ASD.

Page 20: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Internet compared to face-to-face

0

5

10

15

20

25

30

Easier Wider group/ support Same Harder Other

Page 21: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Easier

• Although I’ve learned to talk to people face-to-face, it’s still ten timeseasier and more comfortable to talk on-line.

• I normally can talk to people on facebook but don’t face to face mostof the time…

Page 22: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Social cues

• When talking online I feel so much more ease and a lot less pressureto understand social cues.

• It is easier to talk behind a screen, because I don’t have to read anygestures, just smileys. :-)

Page 23: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Timing

• On-line is better for the same reason why I don’t use atelephone. I need time to think through my replies before typingor talking. On-line gives me the freedom to do that.

• I like the online stuff because I have the freedom to take thetime I need to respond, I can read better than I listen, so Imisunderstand less…

Page 24: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

But, generalising…

• …It’s much easier for me to talk online, email, text. Problem is, I gettoo comfortable with it and it makes it harder for me to people faceto face.

• …it’s better to talk online…but the internet does not help in learninghow to deal with people face to face – and for me at least doesn’tmake me feel less lonely.

• Yes it’s easier to socialize online, though I still have a lot of trouble ineveryday life, I keep very much to myself offline…

Page 25: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Ward et al. (2018)

• 106 autistic adults

• 51% reported using Facebook, 19% used Twitter

• Facebook users reported greater happiness than nonusers.

• No differences were found between Twitter users and nonusers.

Page 26: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Autistic culture online (Davidson, 2008)

• Of those autistics on the internet who discuss its use, we all agreethat its an amazing tool

• We’ve already got our own country. It’s a cybercountry called theInternet, and it’s perfect

• The Internet provides at least some of those on the spectrum with ameans to develop and maintain social relationships

• The Internet has begun to challenge stereotypes surrounding thecompetence of people with autism to communicate effectively

• The use of the Internet by individuals with autism and relatedconditions is part of a movement of self-advocacy

Page 27: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Digital Risks

• Compulsive use

• Cyberbullying

• Gaming addiction

• Hacking

• May be no different in autism (Shane-Simpson et al., 2016)

Page 28: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

• The positive thing about computers is that serendipity has meant thatthey are potentially the greatest ever asset for autistic people.

• They open up a new world of potential: friends, opportunity andemployment.

• It is perhaps the non-autistic world who has concrete thinking andneeds to accept change in terms of redefining friends and socialisingto include social media.

• The internet will not disappear so everyone must work together tomake it infinitely positive and beneficial for autistic people. This istheir great opportunity for choice and a more level playing field!

Page 29: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Robots

• The goal of Socially Assistive Robots is to create close and effectiveinteraction with a human user for the purpose of giving assistanceand achieving measurable progress in convalescence, rehabilitation,learning, etc. (Feil-Seifer & Mataric, 2005)

• ‘there is the possibility to create a new paradigm for the treatment ofASD’ (Cho & Ahn, 2016; also Feil-Seifer & Mataric, 2007; 2008;Scassellati et al., 2012)

Page 30: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 31: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Kim et al. (2012)

Page 32: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Scassellati et al. (2018) – at home

Page 33: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 34: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 35: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Kumazaki et al. (2018) found that autistic people preferred anddisclosed more to ‘visually simple’ robots compared to highlyhuman-like robots or actual humans.

Page 36: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Inclusion or intervention?

Damion Milton in Wired (2018):"Why machines? Are machines thebest things to teach socialinteraction to people?" he says."I'm not so sure." He suggests thatinstead of robots being designed tofix how people with autismbehave, perhaps such research canbe used to help everyone elseunderstand better what it's like tobe autistic, building empathy inboth directions.

Page 37: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 38: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Making the future together: Shaping autismresearch through meaningful participation(Fletcher-Watson et al., 2018)

• By participatory research, we mean incorporating the views of autisticpeople and their allies about what research gets done, how it is doneand how it is implemented

Page 39: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Participatory Design (PD)

• PD involves the people who will use a technology in the process ofdesigning, developing and evaluating the technology (Brosnan et al.,2016).

• PD has the potential to enable digital empowerment and socialinclusion of those involved and can be an effective forum fordeveloping interdisciplinary research and engaging with widercommunities, such as the autistic community (Brosnan et al., 2016).

• Digital Bubbles: http://digitalbubbles.org.uk/

Page 40: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

www.ascme-it.org.uk

Page 41: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Developing IDEAS: Supporting children withautism within a participatory design team(Benton et al., 2012; 2013)

Page 42: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Digital Social Stories

• IDEAS adapted to develop an iPad programme to addresschallenging behaviour in autism.

• Participatory design with children with autism and their parentsand teachers.

Page 43: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Social Stories…

Page 44: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Effective at achieving their goal?

Page 45: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

132 parents and teachers (Smith et al., under review)

• Social stories are widely used and acceptable

• Research has focussed upon reducing challenging behaviours

Goal of Social Stories Research studies Practitioners Parents

Increase appropriate behaviours 36 % 89.0 % 61.8 %

Reduce inappropriate behaviours 50 % 79.6 % 55.9 %

Teach academic/functional skills 5 % 29.1 % 29.4 %

Assist in transitions, novel situations, reduce anxiety 9 % 89.3 % 85.3 %

Page 46: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Digital social stories

http://go.bath.ac.uk/social-stories

Page 47: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Constantin et al. (2017)

Page 48: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 49: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 50: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line
Page 51: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

20 autistic children in naturalistic setting(school) Toms et al., (in prep)

Page 52: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

10 autistic children attending camp (Smith et al., in prep)(8 male; 2 female), aged 7-11.

Page 53: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

http://go.bath.ac.uk/social-stories(coming in 2019…)

Page 54: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

http://smart-asd.eu/

Page 55: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

https://www.futurelearn.com/courses/supporting-autism

Page 56: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Asdtech.ed.ac.uk/beta

Email: [email protected]

Page 57: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Digital Autism

• Inclusion or Intervention

• Participatory Design

Page 58: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Autism-units.eu (Sept 24th)https://www.futurelearn.com/courses/autism-education

Page 59: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

With thanks to the autistic community, and…

• Laura Benton

• Helen Brown

• Emma Chapman

• Aurora Constantin

• Sue Fletcher-Watson

• Jeff Gavin

• Judith Good

• Matthew Goodwin

• Beate Grawemeyer

• Ouriel Grynszpan

• Gerardo Herrera

• Hilary Johnson

• Denise Lengyel

• Sarah Parsons

• Patricia Pérez-Fuster

• Eleanna Skoulikari

• Elizabeth Smith

• Danae Stanton-Fraser

• Phoebe Toms

• Elise Triquell

• Nicola Yuill

• Vanessa Zervogianni

Page 60: Professor Mark Brosnan - Network Autism · 2019-07-18 · • Although I’ve learned to talk to people face-to-face, it’s still ten times easier and more comfortable to talk on-line

Professor Mark Brosnan

@Bath_CAAR [email protected] http://go.bath.ac.uk/CAAR

Autism summer school: go.bath.ac.uk/ubass Autism employment school: go.bath.ac.uk/bessa


FINAL YEAR PROJECT Trevor Brosnan BSc( Hons ) Computer Forensics 20039663@mail.wit.ie

FINAL YEAR PROJECT Trevor Brosnan BSc( Hons ) Computer Forensics [email protected]

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