PREAKNESS AT THE PIAZZANEW FUNDRAISER FOR 2013

PHILADELPHIA , MAY 2013

The theme for this year’s annual report, Making Every Connection Count, is appropriate: connections have been the key to the success of the National Multiple Sclerosis Society since Sylvia Lawry first founded the organization in 1946 in an effort to help her brother.

It all started with a simple act: an ad placed in the New York Times asking if anyone had found a way to treat the disease called “multiple sclerosis.” Hundreds of people responded, connections were formed and a movement was launched.

The MS community has come a long way since then because of the connections made by volunteers like Sylvia and the thousands that came after her. Locally, the Greater Delaware Valley Chapter has grown to become one of the most successful chapters in the country because of the hard work and determination of very committed individuals.

The undeniable value of key volunteers was acknowledged in a public and permanent way by the chapter board of directors when it, for the very first time, bestowed trustee emeritus status on four long-serving board members. Mike Bogdonoff, Marc Brownstein, Lenore Milhollen and Larry Kane are four remarkable individuals who played key roles in the success of our chapter over the past few decades, enabling it to achieve so much on behalf of the 14,000 local families affected by MS in our area.

These four people used every personal and professional connection at their disposal to help build a foundation for success over the years. This past year, not only did staff and volunteers work together to raise record amounts, but many strides were made through outreach and direct service initiatives. None of this would have been possible if not for the standard of excellence set by our trustees emeritus.

It is in this spirit that I dedicate our 2013 annual report to Mike, Marc, Lenore, Larry and the countless other volunteers who have made an indelible mark on the MS movement.

Sincerely,

Tami L. Caesar President

TAMI CAESAR,CHAPTER PRESIDENT

Year in Review: Making Connections, Making Progress

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• We held 36 social and educational programs that attracted more than 1,600 people, including those living with MS, families affected by MS and service providers; the events included family fun days, a series for the newly diagnosed and informative updates on disease modifying therapies

• We provided four scholarships to first-time college students who either live with MS or have a parent living with MS

• The HomeAble program provided major home modifications for 30 clients who needed to make their residences more accessible, totaling $115,000

• Through our counseling program, we served 52 clients who could not afford emotional or psychological support

• Through our care management program we served 69 people with one-on-one in person support tailored to each person’s individual needs

• The chapter awarded $250,000 in community impact grants to MS Centers and other collaborative partners that provide care for people living with MS

• Our chapter was host to 35 MS Connections Groups (self-help groups) throughout southeastern Pennsylvania and South Jersey. In addition, we also hosted three professionally-led support groups and initiated a newly-diagnosed professionally led telephone support group

• 24 community outreach days and two community resource fairs were held at varying locations within our chapter boundaries, giving people ready access to services staff; our strategy of partnering with health care providers for 20 of these events resulted in a 56% increase in client attendance and improved engagement with service providers

• 11 presentations were conducted with chapter service providers and community groups, providing an in-depth understanding of MS to a total of 288 people

• 12 allied health professionals enhanced their understanding of MS through the support of the Know MS Professional Education Scholarship. This service provides funding for certification fees or attending an MS-related conference

• The Greater Delaware Valley Chapter continued to expand MSWorks in collaboration with the Delaware Chapter of the Society, an employment program for individuals living with MS in Pennsylvania, Southern New Jersey and Delaware

» More than 70 employment consultations were provided through MS Works at our local chapter and 131 at the three other chapters served by our employment specialist

» 12 employment educational programs were held for 132 attendees

NEW HORIZONS RESEARCH AND RESOURCE FAIR READING, PA , SPRING 2013

Addressing the daily challenges of everyone living with MS is at the core of the National MS Society’s mission. It is our goal to connect people living with MS and their families to an array of programs and services to meet their individual needs. Highlights from 2013 include: Increasing connection

through outreach and direct services

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MS SERVICE DAY, FALL 2013

The National MS Society continues to propel research forward with a comprehensive strategy aimed at stopping MS, restoring function and ending MS forever. This year the Society invested $48 million in over 350 new and ongoing projects from discovery research to the Society’s drug development efforts through Fast Forward®. There were many research highlights, but none were more important than the first meeting of the International Progressive MS Alliance, the largest effort to date to speed research to stop progressive forms of MS.

At the local level, our chapter devoted 28% of funds raised locally -- more than $2.7 million dollars -- to research projects, one of the highest percentages among chapters across the country. The chapter fulfilled its funding commitment of $1.3 million to the vitamin D clinical trial led by Dr. Ellen Mowry. This clinical trial continues thanks to the generous support of our chapter board and donors.

Other research highlights included:

• The oral therapy Tecfidera was approved for relapsing MS by FDA, and positive results of peginterferon beta-1a in relapsing MS led to an application to FDA for its marketing approval

• The first Phase 2 trial was launched of “anti-LINGO” investigational therapy aimed at stimulating myelin repair in people with MS

• Studies in the U.S. and Italy showed potential of stem cells derived from the skin for growing new myelin and for reducing nervous system damage

• A global consortium identified 48 new MS risk genes, with funding from the National MS Society and others, which better define the biological pathways leading to MS and may ultimately lead to ways to prevent the disease and enhance the design of better treatments

• A study suggested that the MS incidence is higher in African-American women than previously thought, and researchers pinpointed genetic differences between African-Americans and Northern Europeans who have MS

Making connections count through research

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3ANNUAL MEETING PHILADELPHIA, DECEMBER 2013

Raising funds and making lasting connections through fundraising events

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4 Nationally, the MS Society is known for its ability to hold successful and meaningful fundraising events that attract mass audiences, raise awareness and have a significant impact on the fight against MS. In 2013, the chapter raised more money and attracted more participants than ever before. In short, it was a memorable year for everyone in the Greater Delaware Valley MS community who wants to see a world free of MS.

• Bike MS: City to Shore Ride 2013 generated $5.8 million in revenue, celebrating its most successful year to date. The 2013 ride brought the event’s fundraising total to more than $60 million in its 34-year history

• MuckFest MS, raised over $635,000. Held in Newtown Square, this boot-camp style obstacle course drew over 6,000 runners, most of them new to the MS Society and the event forged several important new community and volunteer partnerships

• Another relatively new event, Zumbathon® for MS, raised $55,000 in only its third year

• Walk MS generated nearly $2 million in revenue and attracted 13,000 walkers and volunteers making it the largest and more accessible event

• 2013 was a year of transition for Challenge Walk MS. After 10 years of building connections through this two-day, 30 mile walk, the final local Challenge Walk MS event was held in October of 2012, raising $240,000; our chapter is now working with the Maryland Chapter on its Chesapeake Challenge event

• RUN MS, a do-it-yourself athletic fundraising program that allows people to raise money at an athletic event of their choice, generated over $20,000

• The MS Leaders Circle recruited 50 Philadelphia area leadership volunteers to raise $150,000 and launch two annual community service projects to help families with MS

• The Women Against MS (WAMS) Luncheon honored Molly D. Shepard, the President and Chief Executive Officer of The Leader's Edge/Leaders By Design . The event generated more than $200,000 in revenue

MUCKFEST MS SUMMER 2013

CHALLENGE WALK MS FALL 2013

ZUMBATHON FOR MS SPRING 2013

Advocacy: connecting our voices to make an impact

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5The past year was an extremely active one for MS advocacy at the state and federal levels. Our government relations committee was hard at work lobbying for the rights of people living with MS with elected officials at every level. Some highlights include:

• NJ MS Task Force, created by Governor Christie, is currently working on recommendations, including potential legislation, designed to increase access to care for people living with MS

• MS Caucus launched in Pennsylvania; General Assembly Representative Marguerite Quinn is Chair and it includes 27 members

• 12 activism volunteer speakers trained from PA and Southern NJ

• Launch of the Pennsylvania Coalition of MS Nurses

In 2013, the chapter continued to integrate volunteers at every level of our organization. Volunteers support the chapter through roles that range from packing supplies at the warehouse to serving our special committee or our board of directors. They truly are the heart and soul of our organization.

Volunteers: engaging our community in meaningful ways

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• More than 2,900 volunteers assisted in our fundraising events and 350 volunteered on committees, as self-help group leaders, as activists, at our office, warehouse and on special projects

• The PA Government Relations Committee members helped identify and build key relationships with legislators

• Members of the MS Leaders Circle along with over 100 family and friends volunteered as part of MS Service Day, helping 20 local South Jersey families living with MS with a variety of household and yard tasks

• The chapter’s intern program continued to grow in 2013 with 44 undergraduate and graduate-level college students working alongside our staff in every department, gaining valuable work experience and supporting chapter initiatives

• Youth groups such as the National Honor Society, Key Club, Jr. ROTC, fraternities, sororities and other service clubs helped set up and clean up at events, assembled mailings and rider numbers for Bike MS and brought youthful energy and enthusiasm to their assignments

BIKE MS: CITY TO SHORE SEPTEMBER 2013

ANNUAL CONFERENCEWINTER, 2012

For complete financial information, please call the chapter at 1-800-548-4611. A copy of the official registration and financial information for the National Multiple Sclerosis Society, Greater Delaware Valley Chapter may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999. Registration does not imply endorsement.

STATEMENT OF ACTIVITIESFISCAL YEAR 2013

FUNCTIONALIZED EXPENSES

Special Events ...................................................................... (Net of Benefit to Donor expenses of $1,446,224)

Individual & Corporate Support .........................................Legacies & Bequests ................................................................Interest & Investments ...........................................................

TOTAL REVENUE..........................

8,754,311

888,808160,494147,286

9,950,899

Research & National Programs .........Local Programs & Services .................Fundraising ..............................................Management & General .........................

TOTAL EXPENSES ...........

4,430,0173,290,8451,384,159

511,574

9,616,595

46%38%14%

5%

CHANGE IN NET ASSETS 334,304

MUCKFEST MS SUMMER 2013

2013 Financial Results

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RAIN PRYOR, ANNUAL MEETINGDECEMBER 2013

14%FUNDRAISING

38%LOCAL PROGRAMS

& SERVICES

46%RESEARCH &NATIONALPROGRAMS5%

MANAGEMENT&GENERAL

The Greater Delaware Valley Chapter thanks all of its donors and affirms its commitment to take every step possible to ensure that funds are used responsibly and effectively. The National MS Society is an extremely well-respected organization that meets or exceeds the standards of all leading organizations that monitor non-profit groups.

2013 Board OfficersMarianne Jackson, ChairValli Baldassano, Vice ChairRoger J. Dennis, Vice ChairPaul D. Kinmartin, Jr., CPA, TreasurerBradley J. Korman, Secretary

2013 Executive StaffTami Caesar, PresidentMegan DiPanni, Vice President, DevelopmentStephen R. Ledyard, Vice President, FinanceKristina Fransel McGraw, Vice President, Community OutreachKevin Moffitt, Vice President, Services, Marketing & Operations

2013 Board MembersRomona Riscoe BensonJerry J. BlockMichael A. Bogdonoff, Esq.Lawrence A. Brownstein, MBAMarc A. BrownsteinGina ClarkWilliam S. CoffeyNathaniel R. CohenBrian R. DiDonatoPatrick J. Dugan, CPAPatrick J. EidingLaura Grossi-Tyson, Esq.Ian HarrisPari M. Hashemi

David JohnstonLarry KaneRobert B. KimmelLinda G. Kraemer, PhDBradley A. Krouse, Esq.Charles D. KurtzmanNicholas J. Maiale, Esq.Linda J. McAleerLenore MillhollenWilliam T. MonahanJames L. Murray, Esq.Jeff A. PettyMolly D. ShepardMichael D. SpaederRenaat Van den Hooff

MISSION STATEMENT: We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

30 South 17th Street, Suite 800 • Philadelphia, PA 19103

Ph: 215-271-1500 • F: 215-271-6122 • E: pae@nmss.org • Web: nationalMSsociety.org/pae