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PowerPoint Presentation · Pitt Hopkins Syndrome is a genetic disorder characterised by learning disabilities and developmental delay from moderate to severe, unusual breathing episodes,

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  • 70 disease-specific communities

    across 5 languages

    70.000 monthly unique visitors

    from 186 countries.

    +60,000 words translated monthly on average

    584 international patient groups

    partners

    256 volunteer moderators

  • 6

  • http://www.rareconnect.org/en/community/behcet-s-syndrome/article/behcet-s-syndrome-community-maphttp://www.rareconnect.org/en/community/behcet-s-syndrome/article/behcet-s-syndrome-community-maphttp://www.rareconnect.org/en/community/behcet-s-syndrome/article/behcet-s-syndrome-community-maphttp://www.rareconnect.org/en/community/behcet-s-syndrome/article/behcet-s-syndrome-community-maphttp://www.rareconnect.org/en/community/behcet-s-syndrome/article/behcet-s-syndrome-community-maphttp://www.rareconnect.org/en/community/behcet-s-syndrome/article/behcet-s-syndrome-community-maphttp://www.edsregistry.org/http://www.edsregistry.org/http://www.edsregistry.org/http://www.edsregistry.org/http://www.edsregistry.org/

  • http://eurordiscloud.s3.amazonaws.com/moderators.rareconnect.org/RareConnect_RC_EMM_final.pdfhttp://eurordiscloud.s3.amazonaws.com/moderators.rareconnect.org/RareConnect_RC_EMM_final.pdfhttp://eurordiscloud.s3.amazonaws.com/moderators.rareconnect.org/RareConnect_RC_EMM_final.pdfhttp://eurordiscloud.s3.amazonaws.com/moderators.rareconnect.org/RareConnect_RC_EMM_final.pdf

  • http://moderators.rareconnect.org/tip-of-the-week/use-followerwonk-to-find-other-rare-disease-patients/http://moderators.rareconnect.org/tip-of-the-week/use-followerwonk-to-find-other-rare-disease-patients/http://moderators.rareconnect.org/tip-of-the-week/use-followerwonk-to-find-other-rare-disease-patients/http://moderators.rareconnect.org/tip-of-the-week/use-followerwonk-to-find-other-rare-disease-patients/

  • http://moderators.rareconnect.org/tip-of-the-week/using-thunderclap-to-unite-your-crowd-on-social-media/http://moderators.rareconnect.org/tip-of-the-week/using-thunderclap-to-unite-your-crowd-on-social-media/http://moderators.rareconnect.org/tip-of-the-week/using-thunderclap-to-unite-your-crowd-on-social-media/http://moderators.rareconnect.org/tip-of-the-week/using-thunderclap-to-unite-your-crowd-on-social-media/

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