O

Ref. Ares(2Û 13)3097739 - 23/09/2013

LUMOS Working to transform the Sives

oř disadvantaged children

Request for payment of the balance.

05,09.2013.

For the attention of Olivier Rouland, Head of Unií

'{"his request for payment of the balance is under the Grant Agreement between European Commission, DC) Employment, Social Affairs and Inclusion and Lumos foundation. UK for impiemenlalion of the project "Turning Words into Action: enabling the rights and inclusion of children with intellectual disabilities in Europe"*

European Commission ref VS/2011/0161 Commitment no. SÍ2.598413 Call for proposals Ref.no. VP/2010/007 Application Ref.no. VP/2010/007/ÖQ3 5

Name and address of the Partner: Ms. Georgette Mulheir, CEO Lumos Foundation I .BCf Berry Street 12-14 London EC IV ü AU United Kingdom

Request for payment number: 3

Dear Sir,

1 hereby request a remaining balance of the payment under the Partnership Agreement mentioned above. I certify that the information provided in this request tor payment is full, reliable and tme. The costs incurred are eligible in accordance with the agreement, and all receipts have heen declared. The request for payment of the balance is substantiated by adequare supporting documents thai can be cheeked.

The amount requested is j EUR 49 266.38 ] based on the budget below.

Please find attached the following supporting documents: - Λ final Report on the implementation of ¡he aeiion. - A fimi financiai statement of the eligible costs actually incurred.

A f ull summary statement of the receipts and expenditure of the aciion. -· A certificate by an external auditor approving the action 's financial statements

and underlying accounts.

12-: 4 Berry Street, London. FOV 0AU, Unneű Kwqdam -AĄ 20 7253 6464 r: ^4-i 20/2S3 D')63 ¡n?G#Urroí.orq.uk .-vvv.-v ч.гпс··- πτς.ί Y

ľ: .'·:*·« ·\Ь'у\· :_·>.> :· V \<куи <> O/í-r« Λ—: .'.'•.ν',.,.-.νί,'-νί Κ.;. ,чсч: "> iv f: -> ' Γ ; .0. ·'· «ί<»:ν·Λ Ι" ixr ; Ví"-.u:.;r · ,'ч< - \·. '· .-Ν Ν ; Í.'L'"· Λ' ·Ί·"<; R.. - .R .5 RV·-«-· ·-Τ,; :· -'-·Ο ' - »V -U -Λ· '-4 ' '>.· UV ĮИ"" : '' K''- Е. 4· 4 ' V". Y¡. -

if

The payment should be made to the following bank account;

í LS β C Bunk PLC 22, Victoria Street, London, United Kingdom. Lumos Foundation IBAN„ ONLY

Yours faithfully.

Georgette Muihei r / f——— ' for and on behalf of Lumos FouodationVX^

Chief Executive

European j EUROPEAN COMMISSION Commission I DG Empioymem, Socia! Affairs and inclusion

Eraptoy-maìf socia! affairs and equal opportunités inciüSiürr. socio-poisìcai aspects of miration. sočiai integiaitcit

: Call for proposals: Cali for proposals for Social Expérimentations : Reference; VP/2010/007

Budget Heading: 04,04 01 02

FINAL TECHNICAL IMPLEMENTATION REPORT Application reference: VP/2010/007/0035

Agreement réf.: VS/2011/0161 SI2.598413

QUALITATIVE INFORMATION

Resuíts

Original goafs

L:s* me- oramai goats ara ohjec?;í/es of the ácson as set oiit sn lbů g.ar>ţ agreement, and explain novv they ла c m-t. cfefüig thè impisiruwtancn pefìod. Please.

- baa on tíi« sesulis/oiiicomes of уош acton {¡.e , benefits io !heta¡get ütoupc's) addressed by your action).

• ii'ïciuds ċsttài! on what change your action has Lirougnt «bout:

- expiain tíVi adàsd v-aíue oí tí?e ааюп. i.e. nie :-asnny зграа and/o? m¡;;tipiier elfed.

'•roinia:·*: please noře tìiat aü activées anti •jtìh?t.iìbies piust ijQ pf&sermđ nm ime DUÍ in the rmxi box,

Turning Word» into Action (TWIA): Enabling the Rights and inclusion of Children with intellectual Disabilities in europe

This miai technic sì impiemenraiion leport covers the wn between 19 September 20il and iý June ¿023.

pioļect ренос!

Througħaui rins rapan, firings irom iħe клал- letítje, Afbn/úe and Practice {KAP) sarv ¡¿у ùa>/e ùeen HKfudeci ю àfuslmie impaci pf fre proreci and htęh'igbt s/eas of concern, ľhe KAP SUWY <V as compieteci by Шюпв! Workøig Group Members and Chri&en ana Young Peopíe vuih nueíieeiaal disabilities, it ¡š explained m marc· detail in '<ес;>ст 2 ot Φι$ repon.

Objectives of the TWiA.

Project Objective A: To provide opportunities for the genuine inclusion of the voices of children and young people with intellectual impairments and their families and carets. To demonstrate implementation of inclusive polietes by providing a modei of good practice in consultative participation and what is both possible and apposite for children with intellectual impairments.

Activities undertaken to meet the objective and their benefits

The following acavsies. η avs ï aken piace;

; outlined

1, Child Participation Activities

•'e proţect öesenpten for tn¡s objects.

Grmps aí chiidien and young p&opie&mi íníelfemsal dísaöásms -¿vere formuj in Bulgaria, Czech Repubfic and Serbia and üte groups met regularly. Г-о«>чше children and young people wšľ. intellectual disabilities шок pan.The chiidcen and young people lived ome ι r, iesidår-iias institutions οι wah the? tamices ar¡d s<uiuded Roma chiidrai. Ovei isne the group co-ordinatofs exrfcred new wavs of working \mP. children л«П ^i&ieaņāi asaöimias so they conici expt ess tneh opinions and views more widely: Th¡s ¡sfoccss -s further đcscnmd ¡p. Sect-ол 2 ',ί tbs report and me experiences of the co-ordšrsaiors nave been coil atee! ¡n tne online publication. 'listening Together". Tlie impaci on the self-esteem and confidence of the children io excess trmi om thoughts ana ¡deas has been neted by the children themselves, parents, stali who äoíí< v/aħ the children, lhe ««anai e/ÄÍu?ioí arid poiicy PeJcars and evidenced tv ťoe KAP Survey.

'Tħmks ro die proiect í teameä mai·.-; e., aï young people äna sāks can tgbi for our voters in be hemd. " Testimony from а уоищ participant in Serbia

"T!bs ¡xo¡e& óeíimmy changed my üaoghïe*. Fm! oi пч, she 6 písese# »· an aú ħe/ new contacts ma ùienashm. ?-he ¡jew- -ехре?чег?се.> sñe got from гпее.^пд psopfe. Because of thi« chänte, she iocľ/s mo^ř? жг>?х<ек ncń? &¡m self-esteem. She is surpnwg nie tħ her пе~л: kno.v i&age, sr*n ďtm tħe ne* Шдияде tħzι sm »las s¡япеа' го esa SЛе š rs.ís;n-g -ie;' and o-.n е>рпсшюлг< form future. Stie snared neiecentfy. 'Шт. ι .varn io cominee my

rröucanopi' '• Parent of a young person with intellectual disability

KAPSuve/ At the beginnmg of me c rojee? o;>ly2ū% oi me Buìganan ami 50% o' the C/een cMüren ana yœog people surveyed agreed vv'm iħe statement. "Everybody fs different; >fs OK to ?*avea íí^nbibiy." A; ¡be end of trie pio/eci ties figure had risen íe SOK/.n eofgauk&nd SO?--h m í¡>e Сг&сп Republic. Tħis cmi be luken as un mitcaitin at me nse </; se>t-esiæm and 'sea-exarepess of me chiidtee and young p-eopie WHO rook pan m lbe ¡yoßd

The child paníopassan жштч aisa enabk-đ ihs cnâcren snvofead to imoiőve cher skils, iar &r;zmp<e φ. соктижаЬоп and soa&mg vv.-fr? mn&s·.

' ЬЛу daugtim ħa<s ро$ш\>е ezpzotai&ns for each group ecùvìfy She can ha^iPy '•ifãít md keeps mting me -.'Pen ¡he next one :··.·,>¡7 й» Foi years, myńmosnd

s-K&fsGíf, 21 мзде 2 oi 54

aod ! faced big tameí s /,<; зароогрпд ím convmnic-mop s net 50С£т;щ л уп oïh&s. Thanks tú itis рщеа im consign-,cânon bas gor a i&ħetiei. Ά mother speaking about chiW participation activities in Varna, Bulgaria

2. Children's Feedback on the Better Health, Better Lives (SHBL) Declaration

Beser Health. Better uves isa Wond Hea;th Organization Í.VVHÜ) Furane Déclaration which Í grounded HI Internatiostai humaii lights Conventions including die coDvei'Sor on ms Rights of the Ch MŰ ала «ie Convention on to« Rights of People wáh DsaPfees. -ts ier¡ pnooaes offer a common frarrieworK for a)· Qu opean courir iee ю approach demsiu'uuonaíäaBor,. establish comnumîy-based services and promote respect ία The ncjhts -J cdiichen and yoürnj people -.vuħ мпеНеаш dìsab'ihoes. ?r also coníams an ааюп pan sha gives a generai framework for building thé Decía;lion's priorsies ¡mo nat>or-ai policy зло practice.

Children and young people were supported to be arde to understand and give tne« opinions ahoutme WHO'S B>eîies Health Betta üvesi.aHBLí Cecïaation i hese vtevŕs have beer co:;sföd in the easy-read children's publication "Our Words Our Actions" whicħ-ari ħe widely disseminated io rase maievess of tins íiiUiinaíoraf agreement as an important tooi to deltei equality sr<! hun%n tigrus ¡o? chiiđien and young people with uneilectua disabilities.

KAP Surrey Reidi: Ai ine beginning ot аго.е-а, ЗС:У of!;^e ßrvpaoen. ¿ceń q! me Cm c,d a.ori S7% of im S&tusn сШ&еп -and узьг>д peoo/e еогеео ?óá,\ "The government m my cooooy iskes good care ot enmrer -:;¡<h A cřojr.yí?,'es. ' 1Ък ńgure frac! ekoppeđ 'o 0¥. :n fkíígaoa ano' C,ľ ech Rep;mc and -Í3?-Í n~> Serbia by the end of ιhe proiect. Γ.-Ό S Š « significant resu à ·\ n¡cft indicate· s thai by 'earning moie abatí tШ' rkjhts as coitame-d >o tľ-e SHBL cscìamòn. ine young people соиШ assess ínai sóer countnes n&eő го efe пнуе te ensuæ tnar ih&r rights ¿ve respected. This can ar.so be raken as an dektanon л tos ese in confidence Ü! the cniícb er: and young pyouie TO spmik .jof ÜÖOW, then tmec's ana аепжю пю>е -of îhea governmönts. lìm t$ a 'mi sieo kv/ätüs becoming active 'Mù ens.

3. Child Participation « National Working Group Meetings

Cħàdten aridyouny ptupse w,\h saateduai cfeabirofes acöv%:y paiticipateJ âr.d shafftd Лед views about tne Bhöl Declaration at Naiional Workng G;oup "•Лоеапдз ш ar aquaí í^asís with poiicy-makere .ind omor bey stakeholders. These worksrK} G> ot;ps dedicated themselves to de/ežopüKj nat-ana; ¡de® and [tiansiū sriipiement the ВчВ· Decision ín each count!у In Serb« tills has ;ed to a Katanai Асгюп p^n for Bs-Bi. nnpiementatïon which has been endorsed by tite Mrüssy of Headh, m tiie Czech R.epubcc, ciU4r,.:jos in practices wirin ins!Jtut:on.>at theiocai ievei and <n Bulciaoa. specsiic oomm«r'ients un «relusse eđucatcn ¡yoíiaes ano youth рашарлюм. (These outcomes are fu.'ther described under objective S of rids repott.)

The »(Vor/en-ent of chiid?en ww disaiülmes .·η 4ich a return ?epïe^ent&d e ne« way of WH king in each or die project countries wtuch >V.AS widely piaïœd l?y al! psiticipants. řor example a clsecîof o? a special school -o the Czco: Rapmync. ¡тошй k¡ «ις h;at»n«; Woťamj Gimp meetingu Sä»ü· ' ï-o< !№-ууе&·,s ;ve"?& t/een ¡earwig ali these āifeieni rætitocis and ^вуь o-t ;·, о< *,K¡ \~Лd v4ibeů:

now í umferítanő thär;;e n-e<« missing &!>e main pieco. 0>o s a&mons find participation,"

KAP Survw Rssuiv .At the Ъ&дг-питд ef Ûia píO/ect 369: or S^üian Ajvíiw'ví '//ormgGmm ге.чрапает ¿gteeütvdh ste stacer,'Peopse-th disaüMtös cpjtnot cofiífiöote to Pie ЙСОГЮПТ/". By die entí of me шс/ecr íŕns Pad íatíeit ία 364. Tilis couíd be explained by the posime <;οηιπΰυΐ·ο:ίϊ madä by ītie children and young oecp/eaž praj&cinieetmys :rħKh ¡jeir.jfi^att-d "h.e-< caps ctfm.

4. CWM Participaţioo at the Steering Committee Meetings and Transnational workshops

Cimisan and young people v>nh intelectual dtsabilûïfâ also aoib'äy parîictpated m toe three Stee?»tg Commni&e yeeufigs and me γλό Transnstioriai Workshops Tr¡ese uitsrnatbnai fot mm gave toe young people jnvck'ed an oppominsy to share ťnes views w-nħ experts and "Peir ре«?з ŕiom ûihei countries. They -.veie atte !ů ехогезз vŕt-sat mey пс-од^' governments

гщ& J ol

sncuid úö ю implement ine SH8ù ūecīdtāma heemst the Oeđarahrv: ало' ¡ле Í oie ot the government io rnpiernenong ч bad already heen wídeíy discussed ¡n fhs regular child рагюрагюп rneeUigs

rńrojgń meeting cthor seif-advccatestiom other coin-tries indud-ruj experienced aduit advocates v/fth írjteiíectuaJ сьаЬшьея. mey wets ¿'¡spired and supported io promote ¡he figms af trien peer's, specia! sitentior was pad í io preparing rie young people for oaeh of mess events so theri involvement was not token««:. ¡ his в funher decayed onder objective c beíow

ín paiticuías ;he impact ori politicror-s of v,us aew way ol woiking d¡?sciíy wird a marginalised moet group was no'e-rf. FO? examp/e, st the Trsnsnavo^ai Workshops, politicians spoke o-'Hy afte: ¡he emitter had formally opernu į ¡he event, meeting agendas were on ¡y provided m easy-real iorm-iis arc! m. speakers were asked to adaat their s¡»eches to thèrii audiente.

Th» íoíiowmg anote hom a Bulganan poäbearr speaking aí the 'as! transnatsonaiworkshop rilustratesbowthe new opporti-niiies provided byti-s pro;ecr charged arwudes among pohey-makers ond provided а tosum wheie she abilities ofenüdren win inrefte ísial disables oould be demonai ed. ¡; s hoped inat this nas ¡aid ¡he foundations ío< a new way oí working >п p¡e furore,

"SvcaswcncÌennghOtv ίο Редег dut hy.eomg юуоиг -.YQrd¿ reminded ms • toy rnuoħ ïjeim đv/e: poí/иаат, spore ìess &nđ vou. ctnkícen snel young реорт. spoke mere. we -л Ш undêrsumí w>d toiůi то meaning ana purpose of eħftdmrscàsuon neuer -mön<s sbhnei dnsńunúemooő concepì .·.·? mooy countries, nororíym Europe 'ouíároi/iyi xhe ;v<x¡o' iisreoing ίο yen. ï ňaw ίο scimi· ¡was very r,:ovc-ő. decáese žfie -'s-a/e of oivkì'efi and ¿zajog yeouíe í'.'ifft inteihcíoai điSiHMiiBS ¿s Γ,ΰΐν,-ei! unü&stood. í v-ss renmded no:, cäucn nme meaivngtL'! onci pov/edol it is e her you "he peo píe areotiy ātfecred. speak about ¡h¡s issue ro сооюоое theoе ν.-οα afe not yo: 5.Jíta&nty prepa-eo' ¡o understand your problems eed -ccept you as pas-of soc-oty ¿o, voe v/oidy mp. diverse capens riiæ you Are. ил? озпт to near your op.nhns: for you, з'Лс 'a№ cc-naeïe /cieas, ίο töík instead oi us, so ihat o 9 can execute- your suggestions, your so/utoos aod your 'л tes. because si-e bavs hx¡en ejected ¡o wak for you. "ШЯЯВШЯНШ*, Chairman of the Bulgarian Agency for Chiid Protection speaking at tne TW¡A Transnational Meeting i ñ Sofia. September 2012

5. child choree Events

Chsd-Choice evenxs ¡Aureoígarüs^d si each ot rhe ¡hi ee proiect cou oti ies These óventswe¡e p¡aniied and cteif/eréd пче cfc:c?¡eo tnemsaivss o>v:;?çj new ievets o t v«stOÉty tos chofer wrtľ; d¡sacfóües m tľeif coraniuíimos aod паоопазу. These Events, wiico a«e тикпег detailed ш Sectroo 2 or this r®oii. mciuded: a bas rour "The "Гош ci iOsnan^' то «hase rnéü vtaft'S vmb yoatl! groups ana poiiosns ¡o ícr.vns across Виждана, ouii^snahng wsiïi a msemgvwmtħeStatfi Agency torched ^raection in Scria: а ^дИзго1;е awareness-füísíng evem τ· astioooiog cairse ;o Seib'swheie children vvìth and wíthOM? disah^ries oanīed messages oí soíidarííy m a pubis:, ad project ätxi a comoiuoírydacii sed evän; Л1?п a ¡ock cancón by a bancs n¡ads up oi people with and without d'saa^i^es m the C2ech Repui:dc.

Each event in adtffeic-oi vvay. fenxighr СИКЬЙП WHR ¡nreiSectua: dssabiiitte.s greater visibility üí me« comiViur-Ríes a^d ;a.sed awatdn&sy oí the daiy eh aderiges thai they and tneü ¡arer-ts ¡ate Lvery «vem was covered by trio medra Tke rene r. Serbiafsaruiad statements oí suppes? hom senior poirtcians. The Tour of Draarros ¡н 8и;да?;а wurjd -мФ. o! suppo;t from vťis State Agency tor Child r^oweiion. Sptaksr-a y rk« Chiid Oma Ξν-em io Selgi ade =n Deoernöer 2d S ľ Zoran Kovaf.Ąvir, ïîspcry Minrsior ni Health Seibrn. said. This project, by зпол-пд h^ we can лтлк together, create ioęjeińer and livo togetŕer. not oníy axiíiains wliõí ao -ocíusive soc-,е.(у is «t also shows how wortancjtîïisvvay ü the bes? way io break davn ban sees and prejudice."" These events are currortiy boiocj captured m an «rárr¡a:¡or>, voiced by aie of The chilciren from йе р»з:есс giaop Φ Buigana. ï IVÆ vvdl he posted on ¡he !..umos web sne în A'aru¡r¡r ?0j 3

S. Publications

hi une wsth tne project đescoosion. various publicarroos nave Desn produced arid wil bsKiïdo. avarabìe oblius аг^л^ло/.-еагеклпоз.огдйшлд Aorurnn 20í 2- : These arc owtnnsd ¡n faff, tógechenvâíh ä diSserrünaRDn pian w section 4 ot nos ι

'OiiiOó23 2i. i/ Page 4 ci 54

ι sport. f'hese »lunde: Tiífnír.g words >пю Acnen". acwaieío uscitine внBt.. Declaration fer ^aitìnai Parnog ¡nvoiving children »visn hteheoaai disables which contains a stämma^ of hc-л lhe proļscī influenced policy in each coamry; "Our Words, Cm Actions", a cheers pubina·©?· h easy isâd tonnát sharing ¡he ď, teen's view of the Decision che» expenence of the proiect and their messages 10 policy makets and 'listening Together a web based resource oonuunng psacttcai adv,c® ancivaaas'os ueamg a suüatïe arviiom-nera lor child uauicŕparrcn. Each oí these publications. and otnsf project ixsfpuïs, sie (mended to ciemonssats the benefit of me mode; of eonaciatrve paixsapatrcn whsch wis pro;;fecttr¡ased.

The added vai u e of these activities is:

Thsi. project írialíed, 1 r a teiaoyeiy smai? scale oyer a sno?' |>з? -od of tsrne, a rmwway OÍ-логктдvvittí children ЙШ .ateiieaual d¡s«bilr«s ro õest înikience poiicy and p¡rtCtiee. Tftess ехрепеясей h«vebeer. geaheveö together irt three rn«än publications and other ontpars ¡n ouder sc· ensuit- ¡hat ine ¡еалппу sid experience can inform «rd guide others seekrg to ЬУМ new r.nm.wve modsis oi cüasüiiaave Klopama.

Aii of lhe activées of-hispfoļec* shared the same uümae asm. toösar-c? afoout «Tipíover.iemr, й\е quaisy oi '.śe «»ä äie ьеплсеа ¡ecewed ty ciliaren ana young people vviíh ¡"rtelleo'uaí гггазМшеа and r>ip¡r famsíies. To rasse avvattìness among polity- makers oftho leeds and concerns of their cîirens ¡n thts a:ea and to empowet chMren and meis farmid to express the* views. actios vves a taken co estaohsh a completely new mode: of consultative parfíepate" ¡n each of the proiect countries. A gaidrny рвпесев br ús;S wo¡k was ¡hafan increased awareness of the reeds of chüdren ivith intellectual cfeadaiiies -лойid Sead to moíscosr effective, süstäinaae serpees wbìcn vWjuid be·elevan? ю cmìcisen and farmiies.

Chiđ patiopaiior' m Maiioaal wo; king Group meetings led ro an increased awareness of the reeds oi chticUen >mn r.testeaual disabilities ano rh'S should lead to better quality and more ;ncus!ve pohcy and dectsion-making 'ti the future For exampie, the Serbian УИгозву d h-ealth nas committed to ìrnpfèriì^nting the Nationai Action Pian Co¡ implernen'aaon of the 8HBL Đedaradori c-vhica was drafted by the project's National W01 long Group wuh a-stp/e invořvemert cf children a«đ young people.

" People snú esœ-aaiiy abitimi wľJi ;r¡lekeeiuaí üísaüéües aiv nested m Serbian society s-л s {jtouow-ruchrhwdH czesne! mv Siate !<ň$ < ime aiot ?o improve the heiß ftąy ¡ecetve. Sur frie г-ąonfy of ïhsse rwasures а/e planned foi ¡hem noi ,·>·?ΓΛ îheni We уазкате ;ħe Tunvag Wows SKQAcüoii rmiative

preCíSörV öscsuso ŕ >'eqw&z the fui! рзгисфжгог- o! the s&naffcwy group und v/e <юре Ф!£ the ßtachce wňi become a modei rot the te/iļņ» Швмик Social inclusion and Poverty Reduction Unit of the Ministry of Health, Serbia (SiPRU) Representative speaking at the first NWG meeting.

• Rétalas child partiapaoan aciwaes buia ·ηα confidence of children and young peoĐie wth intefieauaf disabilities anci this, rogerfiar -mii iħek ¡nvolvement in дявола! Workmg GroiuK. rraranarional acrivines ann child choice eveiîis havs exposed chem го new possfeáms and enabfeü fiiern to demand bener hea'.th. ecàjcaiion asid smplc-yfneoi oppomirptias As a re5u:L =t is hoped iħat Πΐ»ψ more ot these chloren -м» beai;-¡e. as aduäts tor аке up meanmçtui empìoyrnerìt and » comnbufe tolhei cornrrHtnPses' deveiopmect Tb:g s ßvtßasKed oy riie inemase rn cosifsdenc« aiuichaogīng aswrawjr^ oí she yoursg people íavob/ed, m ir,y oí vmc'". ate co-iated ·π she pubitaron. " our Wonts. Om Actions", cne such« quo® s «t.'uded beïow

'Since í ffåve been ρ&ι oi this mořecr ì feei gravo vp, f;ke a ГУ presert&f.

! ieamfftí sbcaf'he dre&ms of yw^g ìjeopie ano' tmse at rry fa&iđs. sbovi ih&r ūesirę ю яогх snđ the,1? üewe for a smuti, almos: mo-misting opponw-ny to scheve üm. Young person '»vi th an Intellectual disatbifity from a etnici Participation group.

• Beier ¡eiawcnshsps bet-.vseri people \?aih ¿vid without disables in me community were achievad. as evidenced by the three child crmce e/e^ts, each of vvħicħ focusea an rais^g ¿wareaess агпдад the genetai pübiie about me needs of chärife» wtm latehecsua: disabňrtíes and chsoren Флпу m ¡nbtäücor--s.

P3ņ-'i b of 54

¡"Hese events received posuve rr-sd¡a coveiage. a ю hoped that sucí> changes ift aniOiiieswci contnbutetoinasased visibiiirysnd imprese! sccöi inclusion of cMiiţen -тФ. ¡neUscíUcJ ch$ah¡óí&s.

KAP Sutvey Posait There is sow evuienoe of а sivii ¡n the ¡xrcecvon oí the zubte îiUivjôe îQA'aiVs disaháry ckinng the project pet ΌΟ. Αι ; he Ье-даъпд of the pioject or,ly 50% of Czech Nmmti wo/king Group espandenti agteeő ¡ħaioe-op-'e tn 'Jie# soùety :?e« екооищ to sitírndums o- ľo mie-facr-mt disabt'hiBS". Tms figure hsđ ¡naea^eő lo в* X, al the· eod of me protect. Hooevet. such а change oos no? noted ¡n Ш- c.thw premeet cooo'.nes.

KAP Survey Result in ine Czech Republic, S (fii or tí ie chiíd'oc anã yoong peoņk* voin <ж-Яес&я1 ös abtäes uu estníoeo' м the begí'in<rvj of tOep-roject agæ&jihai 'otopte often ι goors и avoid r> ш". th* (igine ħaa ikopved saľO^ by the end of the p>o¡ect. >n Setbu nw-wNie, thè ligure draweü f'oro ι OOK ю S >%. r/us noternes а roapt oOifTio ί/te vorkiieirs percept*«)· of the amorres of the ¡videi community v/ħicħ couto' be a roįieouon oí then poswve rr/oertertees of eoņagtog w;v> it se c оттготту 'ino ugh tħe child cnoice ovents mvi other acfMrœs. Hckvem·. tf >s irorsh noting ¡nat S.-OTÍ.W rosans -л-ere nei rpcoiđerfir Dolgana.

Propet Objective B: Using the Better Health, Better Lives Declaration as a framework, assist countries to develop and understand how to Implement national plans for deinstitutíonaüssíion, through the development of community based Health, education and social s sovice alternatives. To ensure countries considerând are sole го accommodate the specific challenges of meaningfully including children witn •ntellectuaJ disabilities.

Activities undertaken to meet the objective ana their benefits

The Mowing activities ħa-лз (aKen place:

1. Formation of a multi-sector National Working Group in each country.

f и amer to estabfeíi r/te тетЬпгвоф ci ¡ho Nesonn- working g raupea cx coumry, 53 individuai ard group meetings ла?» Celo ¡n die prosci coontras ?o introduce №a piojGCt aid iti ofeieaive ofg«oing me SHBL Dacia atiof omu íi;a national з-çfjriú,г Once ìh.ess nwowgs had икес pisce, The Vatsonai MVciking Groups «ere-formed. Ал detailed m Secbon 2 зf this report, membersmp -.vas different ¡n each counir у ю reflect tbs irs.·,on-¿é po;ìey context. !» each case, ήοwft'e», öiey compfiseü а сго?л-зеглю« of pacy makers >r. vanous ¡<?ve;s of government and ¡oca! AWhOfites, series peoviciers r-.GOs- insefp-asonai organisations such as WHO and и Ni CEF. 'amines oř chfdsen wish «itebecwaí citóabiìities and ynsincj peopis .vá irueiiecaial disabilities themseives.

Oríes sstablteried, eacit Naücnai wosking Group sea to work to identity and influence poüaes and PS ЙСЙСОЧ fr«· THE ßENEFE D! chadrsn «nrj ycxmo neopi E v/fth ;nteìieciuai disaJ3îfces. N ÍÍNS witn MA SHBL DßCIÄFÄISON.

2. National Action / Nati onaf Working Group Meetings,

¡n each country, the Nsmonai v-.'omm Gia¡p ana:yS8dihe ensi. Ое:-»!апоп to iítentify vvhei e ¡tationai įnip;prn&!tf?J;oi> was iaci^i{ļ. An analysis of :he poiiîcai enxnrcfimemand aipoRun.íes fer rdiuesKe ü i ead-, counts y enabled cn-a Natanaï Working Groups ю ояеспуел/ ra¡gei me¡f ¡jrupesed aciro-:s.

ти«·» caü ^or action s.oaktne forni ci-a Maläoriai А::ГЮП Plan r. Se-'bia focusing an the Declare-tan ss а v/hő&: suggested .:mpïovioneots ю sxismg pi.Wí aná polieses ?n Ршдиия. ru'vsftbiy ! natad m есюсашп policy ana spseifte, iinprovemetìts to ÌGC&Ì polieses and prachces SÌ ïnsfcm:cns and a HST cf tecotmtiënôaiiœs to «aliona! acnoo v. ifţ» C.?ed) R^puDüc Chilciriirvs and young peupte's views on U;e ОесШ&юп and hew ns QOOHHZS ae irnpieme-nse-d •n thftii Isves aavs been í effected ¡п шъе .jocuments.

Each coiHUty's expen^nce and key cuicomas art- detailed ¡P cum by-ow:

Serbia

Kay RecomtTiendations for Naöonal Action from the Serbian National Working Group

! -Osate competiöc-ft Petweea NGOs sn se'v-cs provsíon ш ¡frtpíove the quanty of r.ne services

•improve rondoens lot nealt» and soosi .vork pracmonere

arnptove support tø pasems and case>s

-Create a common ¡eijmet tor -iii ohiidran and yo my peopie wirr imanactuai ciisatsi'iiiss

-Estaöisn 'aađiera gi ave' s'¡u¡.:;tj?es of caj e focused on ihe reeds of the i'nclwiduai

-Wake wanspot and fec^ties acosaste

-Open crias centjes

• Provide soc!a: sen/tees tøf those over the age of ID

-Creste pan-tima wotk opportunities for pa:en?s ало for young ρедр:е wp.h disabilities

The National woiking Group «ï Bulgare coked a aisting posers and pationa! acpon plans and vvaysto >п1шеоса třte;r implementation, in hrua-лят r PS ngrns contained m tPe 8H8i Decíafňťoa. As a Natia' ai fien on Иап io? ViîSn«abte Chilien æready existed. it was ^си «ppiopnafe io develop a new pian. Howfiver riie goup ;dentif¡fid ^ppaH-jnmes to ¡vn^sio inai tħa naads&f cmioren ши f-iteíisctoa; disaospes coutoPa oester ¡^presentatir)·,e ¿-y·,sting pí an andin paisetes anei practsce. го; oxarnp?e. trt? çifoap đeveiopeđ asedes ot key recommendations for irrntűvng the axsstr-g ^assonai Actwr Pi-an to addiess the -'ack of nracfeaì measures th#y ¡uvi kior.Wied reP-ted tn children wftħ mteüöcaial disabilities. Following discussions witii National Working Gtciip mombers, the; M rastry of Education agreed to include measures addressing ¡he support needs of children vm disables within the inc.u&ive aducaaon seceon oí ite new Diati Kducatims Act This -'Aú oeei¡ iđenraieđ by lhe National vVoiking Gsoup as a key asea oi concai n. Anuirá ои?и>те oí the batonai Action sctivtfy of еш Buiganan Naaona; vparfeng Gtoupivas a cornin ¡tmeM' it an the gavemmeia ю develop vocâtioriăi aüd independe: -л iiaing opportunities for young people with nt«;ectuai dsabrmies. A working eļiaus Pas aeen ?et <;p ?o davetop these plans

"pQëQ&ing our ¡nvohsn-eoi m -fie TIVÌA р;о,ес1 S.>ħer>·· ŢNE State Agency for \ Ctifiđ Proi&iiiian ma the Agancy fa Somt Asssiance πει e arso mohsü.

& e Ve RX|c!ińe? se; υρ η •<>· arki.ng groιψ ia devete# a ne,v р?одзт>т :>з пеф civJúfen and yotuig pemiev-niħ disabń^ Duntí óküis 'or an >ndepenc;ên? hfe. " Mrs ii ι fiīi 111 in ι ι Head oř the Department of Child Protection -Ministry of Labour and Social policy/Agency for social Assistance anc a member oftheTVVJA National Working Group íspeakníj ui 'viay 20ii}

Mote: Λί the urns of wusi«a: (JU;y 2013). poiitscai ^stabesty m Bulgaria is causing some и^.сепаюгу ¡egaíding the ¡aresšaisve ümstablc 'or rhese poíicy ileveíopmaits. ¡t ¡s aoped tiiai ŕs пиий-ьесю) and co^seiauaí nаинe oi tile Nation ai Waking Оюир wili errore taat these ixwrumerns ase Hpheid. Lumoís íousvjed aad s aca^eiy panicipairKj m a nsw соа^юп of organisations 'Chádren 2025' wh¡c:h ís a^ekmg хо tn«? oí;»;díen's nUţm ar.ddomstiüitsartaiisaüori ramsinon tas porcai agença.

Czech Reputóse:

Key Recommendations for Nations! Action from the Czech National Working Group

-mciease autancmy and seif-derøntinapon ot cnsklíon л-irh intaiíonuai disžtbiisies both ST tss?đenaai saswuposìs and ín family enysmrmamb

- Change the armadas af ssrøce provida?-а

- iaersasį; cocpeíãQcst üatweeri education snd soesa proteciЙП providers

- Farbate the shar'ng of good pł^ciir.e ħaiween pea;s. a^peaaiìy rPro^gh i~m vrsis to sodai cara hornes aađ services.

- suppûn seif-háp arid seíf-aoVocacy įiroups for cnhdîfci as-d pa ants

- Establish Ά Children's Ombudsman

• Update the Framework education progi amme toi special school

Ban anyfwther placing oí chsdren ¡n ňshtutsons on ете basis oř contracts with parents

in the Czech Republic üimos worked wäh project parr,ier Pardubice County to implement thaxW;A psoieec Seme юо kġ&meires from Prague, Pcudïibce County is a psiot county ín a Nations Project wotking on ?he transfosmapon of systems ol care foi vulnerable chsdssn. :t is home to á iaige-scaie residential institution vibici'. fias baon identified аз аратоЛаг arioíüy tor demstøutionaiisarion given rharchiicííen «v« ineietogethei адь adulís, рпшпо them autók oí harm. Cfiüdrcn ¿tvíny rhaesre currency being preparc-tífoí a new Hře SÌ family-based settings anei smaii group homes.

National Group roemtasaitieed on the neeci fos aam anđ fe« а vvorkmg group 10 coordinale ü. bu; also tei? stroncy ina! the process aneuid be a Czech one «1 orí íet m meet trse specific reeds or ¡ne country Atttuidss towards cieinstiiutionateation sn Iii?» Czech Repubśc are "sometimes negative and the grotĺp feit thai a dear bass for ü in ¡ocal practice and ¡oca) advocacy rseeaeđ to be developed wtuch ¿дам the?! influence and inform naaursai processes Aft« trie pi osa! had already begun. tne ceitra? government tn the Czech Republic made a commitment 10 de¡nsotutionairsation under the* 2012-2Ü15 Mationsf Stxatepy to Proiect children's Rights. This opened up the way for more íruitíui асът at nascosi iever buüding upon the work done м Pardubice County.

This optimism was confirmed fry the cornm'tmeni ¿игдап by high-level government ?epfesentalo« ai me second transnational wo¡kshop in Prague. Key-noie presentations highlighting the impanante oí Pie rights 0? chsidren with intellectual disabilities included: Head of tne European Commission Representation in the Czech Republic. Jan čichal; Deoufy Minister of E ducati ori. Jinciíích Fryč: Government ombudsperson foi Hunian Rights, Momka Stműnkwa; Deputy fvfimstei of labour and Sočiai Aífairá for social mclusran and equal opportunities, ian Dooeš .and Vice-President oř tne Senare and membei 0? the project's National working Group. Wsiuśe Horská.

As a resi)if of rim project. Pardubice County háve nvtöe commitments to snar e their experience. toom and methods i ear n t en Chál Participation «th other counnes and children's irjstrturøns. in so-doing. it has ¡aici the foundations. '01 poiicy aid praciice improvements aaoss tne cavmy The Nations Working Qroap has developed draft recommendations which s is hoped car: be usod to improve »ištinę National pians and policies íeganling chádien wtih mreiiectuai &аашша >л we fotům. The project ехреиеасе oi we Czech Repuöhc is

ļ notable fa' ihe direct impact mat was noted on star? behaviour and procedures ι j mîfnn mstiturionç. as evidenced hy !he ío¡krmK¡ quotes ;

j 'Weňouidífke lo keep up these aatwîœs. msryi>ey¡sth s ôigger дюир, and į ever? exteiKl tnem ¡rđo otter resident/si care services. И/е ω e aireacr/ ФтКтд

about ûiesusiainabiiity ai 'hese activities Sor c'Metren атусятд peonie пюге generally. (Gvenapргтпеле sof/porfs ;i-er-o¿;/oi(fee IG create a kindof nekvork ! of w atkers vnth pedagogică! ti &тпд e,t experience inv.-otkmg v/uh efrktien We could tñQii BssiĶ' soreaa rins ¡míiswe ro orh&r insumons m PūrJuoice County, tor examßie. Oor manuai codii !ïe i-&y useful ·ιχ them щ providing soaie iaca of-χ here tö stau, d'hai m t-,¡cus on ar>ő xmt to achieve.' Head of Direct care, Pardubice County

"Ουr experience of comnxmicatiog ν.·ιώ children with adúcuítm ¿¡xi laemfang tħ&f vi&A's »s gray mg, Wesre đorigcur bes: tornière ¡ta common pun of Oüi cojMy e>rpeoence. We see ii as apnaity ίο ¡crepaie young p&jple fy

ļ reintegration. We vwJő hke to use [¡he chid раг{ю?ра-:юп zpproacħ} in other ļ insmumm snú shsw ii w Φ wMmnt stakeholders ;n nzighboumg covme^ " ļ Director of the Social Affairs Department in Pardutsce County I j KAP Sui vw RSSLÍ'Í: An mmesiing civmge m aibiuae ot cħi'dren and young I people to institutions ;v us notea m rħe Citaci: йерюеж rk,-mg the praect At the beginning ΐΟΟΨί of tie dvktreii mű young people sví vevetí agreed liiai "Children ж verned werì m ¡nsutvmns- " 'rm fgvre nací 'alien to 50h üy tne end af iħe s uivey. &vm inai s orne oí ti'*e Czecħ dvtóen and усюпд people surveyed Uveo in ipstčuooi's. i.his соиШ be a refi&:A¡να G? ars ir&tihéo'.vésed G'Jilure '¡vnese it ¡eie y,:t'ie p^vajusiy íe·.·,· vpouitaotivs ?о exoreis оргг?г/пч.

page ä oí 54

t Fohy.ving the ρ/ο/βΰ! äcmíies arra ¡he- Piango m щ:гоасп ot Ae msvivrmn staff ю enooni ege ræanit-gfaioanicipivon aü outimec· abeve, their conihler.-c io s/we ¡lies owr> optons vůuící appeat to have tnoeaseü in аасШкт uns change in aniteće coniò be expímeő by m$ proveí ъжng ¡noeased their axaisness of their r»n rights and aitemmves to ¡nstñittms (for s.mm&'e by ha'-'iÍiQ met ctiilüfen atiü adv.ìts xith ип&ИесаШ ar>;.tbľí:es timi aher countres w ño gr&iV up irt fciíTHíy envrennmms) ¡t conti mo be "Лае irtose сШКтя süfwyeő '.v'ho đo noi iive /n insstuitons, атщеб thmr ßas<üve maudôs towards invasions· airer кх&жИпд-хкп rimu peers '¡on> mmalierns.

3. Transnational workshops

AS envisaged m Фе pw/eef ćesaipwn. -wo T; ansnaponai vvoíksHopsweíe hslciíiuiíng me p: o.ect cycie. (Sofa Вшдапа. sn sepærntef ¿Oí 2 a-d Plague. tn ¡he Czech R&ţyabhc m J-n'iuasy 2013). i^Síe were more man eí> pmapz-vs at each avent, including serkor ga/eiKT^ni officiaił and representatives ot ;ńe European Ccwnvssim {лтсЬ ?>asređ FLIP rneeong ;n Pragu Í?), «S -ле!! as (;n Prague) Baroness Sheila Hoiüns, chaiï oí ¡rath the steenng Comnmtee for ?he BHBL ютша mä oi ïhe TWíA Sieeí aig commstee.

Tħese workshops дае mienđed to šupkou the aim of the social Open. Method of Co-ordination (OtáC) otme European Ui-on 'to repove coordinaran, cooperation and agreement of the recsssarypurrapies and actions Petweer aíi s-akehofeiers involved m iħe .1е^дапе;«. impiememai-on ai>đ тапеопгк; o' sočiai pufces."

Specifically, ihey offered balsenei Wos.-ing Group mernbersímm all three proleet countries, incuamg yotmg seir-ađvocates. an opportunity ю stwe ?heif experiences oí imjsemer.tiffy the рггДесл and influencing narønai policies mtì pra cesses. Expat menrors andsCeeungcommstee пюпшегз aso provided insights and kw.-vierige from ошег councnes v/hïCh had airead/ ynderaone rsřotms οι ;jses institutionai systems ořcaro

The Tismsfiësionai Woiksbcrps sisa picvídeci a fosum л-пеге senìoi govoriRH-m officiais pubi iety deniofisira'ed :η&κ «ιρρο;? tor the notits oŕ cnsdien vviih ¡meileclual amatM&s. Anħeftrsr ivo?ksħDp. тв en aii oithe£U;íganan Siate Agency fór Cħict Ptijteaion deiwiued a įuppomve speech cw tehaíí oi'Μ government, ¡n Prague a vernal гхяшктш to tne gqaaJay ap.d humar: щтъ uf cħidren wish ínteiiecixjal disables was provided ny die Deputy Ministers ol šáucai'm mú of labosi? snd Sobäi Affa« s as -^eií ss, а Са^ем^г^нг Omöuclspason for Human Rgħis,

A Significant outcoìne of tlissi m§DtĮngsv-/asxbat t-e >татд self-advocates invoked were supported to p'oduce Oit'r own соп^тоя policy lacommendations ciuf^'cj rsse events. îecommendabiis ħiwe bean suťnmansed in the child pubtscatrø, " Our Words, öar Actions". The psocess by !,vbicħ these meetings vrsie ocgamssd is sunimarised ín srerìon 2 of tf« í eport

4. Child Feedback on the Dsciąration

A children's pud?c?i«n «ï Ąasy read fosmst. '• Our Words. Oui Actior^". «as been üí<>-k¡c$atúshai& íhzãiiKherfz vţ&tjs oi ¡he ви81 Hecia/arson. expeneiice cf īre pr^c-ct and theď messa-gús ats đ key ι ecorn nidations to pQíky-mňiiúiS·. ¡i has been »arirtósdí^ovánoiis languages arid is intended to inform future national po»cy processes rs the project cooistpes arid elsewhere in the R&gtQti Noíabíy: related tomis spatißcpiojen· oojective riie children made strong -Jtatemens stressing the smpaitsnce ni cdHísumbnahsatíür·. 'os exampíe;

Promise, ł; Keep ali children safe

• "Cfbkten sponki hú protected at ñ¡¡ costsf

'Ciiddfën sħcuiö os aüie to pí&y, go tor ¡VS/ÀS cioJ fee/ rnte every»h&$r'

''Bisure thm ai? ßmnts usa; meu chiîaren aéřf

Promise 2. Support children to grow up with families

- "i iħink neping f&r.biiss sbc-uiü be a fßioray • rι hen f: ctM ;s íjotn ,ν/ή a i йгойгет pwe-nis ħsy& so ör? deaeri Oy specialists. ' i

.: JÍC9/2Q13 21 :} 7 ?age 10 of 54

- 'Evetyaæy sho'Jd have a family οοΰ hve .v>tji ihm fa:rĄy

"When yoińerridi year mr,iiy you fee/ sa/e ono more ¿ve peonie vou сап :'eíy ony

Promise 3: Mo child should live in an institution

• "Every dmi needs a kiss goodnight "

- "We-аШ ю be supporrei to »Ve u^uendentiv in ου> c&oinumvbs пя segregateci in argo res'Jenëâ.1 ¡nstdutíons.

"Oose ät <nsmuiïons. ¡he chkuor-'s p/ace is ir, ;hs iwmiyr

S. Sgtf-Evaiuaîion Tooi

Aweb--bas<sd seif-evakiadon too* has been developed to he*p Matnnal Waking Gioup membeisand otľ-es s assess a counm/s levei of implementat«!'? ci the 3NBL Decías attor, o? poney snd practice Or-ginaiìy intended to ae de--eìuped ax •hp hegc¡mng oí the pielec? si« also aa as a project monitoring too' τη® юо; ; -¿vas developed over me coursa of the perfect incorpoi ating we ieamang śmi îhe Natona! Working Grasps and me Transnational Worksliops with a y'm* to it hawwg sustains#,е >.m.oaa aite·, the pv&ect.

liigas been tested in Ser'oìa, the c?ech Repubbc and cantío) counts y Moiclava and will he ìestea In. Sutana betose Oeing finahsod to aitumn 7011, irnnes ¡s córom eted to tieveiopsag tnss tool as an aid for mose who e.isn tOidsnuly gaps in p;:»icy and practice ¡eSatsd totime ngruso? chíSdren, with imei-ectuai disabilities. The rool has been 1 tar-sfaJ.eđ smo various languages and AIJ be dissenwiated waieiy after cemg finalised.

The process ard the Soyc for me change ¡e'ateöio the project description aie űesenbed umher ¡n Беаюп 2.

The adtíed value of these activrtiesis;

• The project was designed tc aliav Navoňal Works'iij йюирз ro »esoonđ appropriately to dii'íenny narmna; cont aas -.vhen deadmg N ai ion al Ac-ran Each National Woskmg Gictip. formed tí people who knew mm awn napori context -mb, was sfcie to pur r, piace the best strategy toi nav^.g the most poienoai impaci an snfiuencrng policy aod precoce. Th-s ss reflected «5 the th f ee diferent approaches taken to Matrona; Axion ·η each country when a;eruппш desenbed m the peöhcation "Tuning Words into асгюп."

• The mum-stakeholder η а?ше of lhe ''¿«¡κ.»·as working Gsoiips (merrøersNp included polary makers, cm society, academics, practitioners. cNdten anes parents) was newm each country. Raròcipsnis ieaint and demorsi rated new ways of -AOs ksng together Ψ. a muhrdisopiinary way

• The invoSvemfint of cr-td^en. aiready ptspared-Aith tn m key messages about the Deciafason and mspired afcou? its paentiai. gme the meetings »r.niedkicy anű füísuied lii^ сеу -л-еге focused on outcomes.. (Tî;e cieat massages ριο'/iđed Dychiidïen cr ti-.e b^bl Cecìaiahon r>ave Peen summarised m ŕ>e ¡Xíteícahosi. Our Vŕcrcis. Our Aaionl

• it is h jped t.h&retofe ihat the prajed i:«s established a psecedenf wnch could lead to such а (гшш-згакеЗДйе; mode: b ang adopted as a sustainable approach anpóetrer ¡wüey dessgs ar¿t ^mpismentatron ¡n ;nevuíi.¡e."rhs iclHOÄing quote expresses the added vaiue uf the prqecrs -my of vvo-kmg in terms oí btìttei pehey oatcomes for chádret; Vvíh «ие.Г1есша1 dìsafoiiàws:

V/b&t Un? Aíamx'w; pian for tne neaňree/e οι ;·νΰηνβη c.îvki-eo a¡xí youfr aĠopieav.-Bkne^ Ρνα ·,νοί& w us needed ΐσ яШгеъs 'he ^aftnerne neen? of iħe mos' vuinoi apie groiiöS- ihr rung Worös тю лелюп w ¡tí soh^n^e these efforts amgutüe t/s го tíevebp other m?;c .'ŕsaao'res. ·:ν,ι·!ίí s/so шо os stress ню imrxniiir-ce of aeveioping beffe/ umr-aeprimeoìa! cooperation so -ïmr » e сап Oöhv&f ã hvhstic approach to ro-síca tlie needs o' eacft сто лоо each kim b'." Or. !за^Швпвгг Deputy Minister oí Health, Serbia speaking ai the slæt of the protect

• The Self-Evaluation too! was designed to be a asetu! resoui ce iď a:í Ешореаг! cour-mes {gcwfntnenis má c iy*i soaeiy alike) seeking to evaksate r.hp ¡тгйетепт^нш c? 5пй RHBL Dec;af3t!0i· anrí aas«? in pianring nat iona!

Page i i ol 54

action or advocacy canipaígr¡s on related teernes sver, after tae propet s inîshed,

Project Objective C: To increase mutually beneficial partnerships and ¡earning including transnational cooperation and tn-counny collaboration j of stakeholders.

Activities undertaken to meet the objective

The íoüowing actívales nare taken place-

1. Formation of multi-sector collaborative Steering Committee, National Working Groups and Chiiđ Participation Groups

Xr-.idd tssaiionai VÄrteig Groups weie^iinetí compiling peie·/ ^ decaor makers troni diferent m rn-sti ţes. serv¡ce paladee:·, NGOs. united rations fiQérsäas. such as WHO aro UNFCPF *srmi¡es of children wth »NELIEČIA d-sannes and yoyng шзйе ·ΛΊΠ ineiieauai -d&afciSme^. These g? oaps ч-&>. e supported by export mento-s. wna as datateci in the project design. provided řiierr »canica/ expemse and advice to me gmups.

Members of lhe Vatsonai Woiking Qioups engaged ss* a unique puicece лИеге (bey- đessgneđ pians togeřte? -vitħ chiiđien vsíícíí inteitecibai disables aid teann from tnstr. For example. ¡N rłie WOÍÜS of tne Seiösan ^aticnai Working Group iseif ín sts report. " in ïivs prosec: there í-as a ρ ev&itng sense oŕ psrureisfap öm· с-en яакепош&ь. От conclusion ¡s mat η s ďuwrtani ¿or> ίο <псШе as many stakeholders as passio# anđ :o ħ^v ае& leadership ny tne responsible ministry or eweemmty йес^юп-тпкег as vieil sa NOC fscii.iñtion "

A multi-sector Steering Committee was esiaohstied ro o-ersee me impisTientaion of the projecî. ¡t raei three times in London to discuss the progress of the pryže} and to pîovxie technical suppon towaíds successful achievement DÌ «S objectives.

M T-R; BEIS of the steenng COSTI mistes COMPRISED -»PERTS M ME ARE* oí mteilecTuai eisabs'-sy. mer,y uf vvfi-Jin coianbuted to the cfèveiöprnem cf the auginai BHBL Deciai'stioo ar-d ίο the dessşn oí tms project. AÍ! project pantas ΆΒίβ repiesented ar: die Sieenng. Corn saffies

This яю»р -.vas chased hy a member o! tne υ κ House o1 Loms ШЯШШ ЗвЯШЯЧЯШкМи; ¿¿SG icrtîy wrote the íoifovord to li'-e project pufrscatrøp 'Tuning words imo Acrorr together wiui a -nour.Q aeifaidvoeareisoni Bulgar şa Tne, m itself ÍS a strong denMnsöation e? the spir« oí i.o орегахгеп beavaer; paifcy-rn akers arid young people \vħ>c;i the project engendered.

2. Transitions Workshops

Two Transnational Waterkops were he¡d dūrina the project ¡!г|р;егг'емаг.юп Depód- They were attended oy OVÜI 6Ь participants each, This included chr'đfen and young peopíeíiarn ihfe ch>;.d particioatan gt oiips, f&pieseriünö •¿ach of th« three project couimfss. larni-ies and capisci enrdren wi?n mt&ileciua' disabilities series provider:-. aciÁíeitiics, piofessionaís pioiicy-· maters ffom senor govønimeru aíici the ptdįeci managanøi-tteam. f haae rfieewcís pi ovídea ап ©<сеНем opportunity for crdss-couniiyiearnng -χ:·ό sħaring ot experiences aid created a spa c« for a cciracoiacive. fun and yaiîcipatory appi oacn to teaming and роису piann;r;-g.

Ths foli owing quote from aniotrier o' ach^a iv-tft aí rmeiiectuai d^abĦty ľiiahirghta me posswe ¡mpact of s^isnat&ria! Ьаггнги;

"7ħe project has become iifce a school for us win ü cieat purpose, a/id < сал зее (ħe real ¡ esi/te even during ñ йюа iin is. Naív¡&3y / Stãneci сожж-.пд wr nm experiences sproaii ir Φ local soca/ s&v¡ces fix ¡ny d&ugiw at попш. Nm lesn seeiioiv mucli ¡Vidwhaumcrsieiy сос k', be o-'snooidbs dïsaged fe ФШгеп met уошд o&opie tn ckíí Ш'п: foi other children -ллй tor my daughter. ! fee? more confident J1 supporting ¡w v~!i% as apã-ent, ana > -•şven stsiteđ voiurà&eìmg t& Omer chitaren y,;ħ reliéeîusi üimáHives m >n/ country, More mei more young parems ň uh cħ-kim) vr nn ¡me;lecħia'> őísm'nim sime ъип nie ih&¡ concerns, anel í ;ry ;o support ihenvrntn кЧте knowledge ano experience ¡ have ποιν. " Parem of s child with irteiiectual disabiíity

3. Chiid Participation Activities

»aga i 2 o!

A specific соНшзсгашп, no? parr oí lhe origoa! project description, wmch has been ¡nvaioaníe ra me project's child uaniapaiion ас líviaes has been the !i!'-.'0?/eiTie'Ví of сн AWGE1 a UK baseei iulian rights oraan saßen led fey disabled people.

CHAKGE worked wsħ ¡he young people ;r· advance от each stee¡;ng commiiiee and nansnational woikshop to h ei ρ (Item prepare for -hose rr-eetmgs and aiso helped des^n accessible and appi oprare meepng fermais, agendas and matenais. s hey aiso developed īhe easy-read proiec: puoucauoü "Our WÛKÎS. Oui AcNons" wroet· encompasses the VISAS and opimons of lhe children and young people «bous »'e prqeci aed me OHÖL Declaration

ЧШЯЯШЯЯЯВ*·'·) а seif-advocate īvorr» CHANGE. As', ъ&М 'лтИ an уюжтт clisarshry JHBpe an experienced t/ames and Has spoken at manyhigľ!-ìevsi events Together WITH rhe CHANGS team^ļjn^^-rfeed aVerOy WTM the your,g peoøfe enabling rhem touse drengs, ps epa e speeches and engage in discussion :r· Sarge, mixed gr oops of professionals. arreates arid ромшзп$.

r or many o? cue chitii en and young people ¡nvoived ^HH^rvvas tñe irst adcit waň an intei;ecuiai disabitryiħa' they had ma? vvhn was confident snel hite, m speak about ăi e nyrus of peopse wsm imeiiecfeiai disabilities. As«|įBBFu.;dines belav, õus has encouraged and supponici tne young people. many of whom now WSH to contìnue so work to promote FIGHTS after tre completion of TW¡A.

"meonatí'-en and vour-g atħiiis oversea in ¡ne рю;еа ase Q'omщ ¡n cooticieiìce. They s¡e đeveiosvng stø'fe «- Ьесспжд m,ver!;.k seif-dc\-r)CMes, Ί he Р>о)ва hS4 y.ve/v iħesn reis moo&ís s.L-ch as n?/$e!f япй ihsy ·Λ ψ gù on ioDsfiße moaeisin ihm orm aghi. /rs ^ke passing un- t&cn on-гввяЯШ V· CHANGE, speaking at the Transnational workshop, Soff«, September 2012.

The added value of these activities is:

- that tøs Steering Committee was chaffed by and involved severa! experts -.vuo had also been nvon/od ¡n me drafting o' ?.ħe BHBi Dedavshnn. ¡ï ħeiped ihf?iri d% äďo ce to waöona! Woikäng G ι cups and the profeet f earn on project impíommrfatíon. ii s hoped Orat îTianfceis of nie committee v«i¡ commue to olier acMce related го ΒΉΒΐ. ¡трЮтетатюп. tof example by helping ю adapt and disaminate Ehe Seis' Evaluation rool.

- ' nevernem. ol sxpe«s fiom omer counmes whkh -ave aready undergone the process of deinsmmmansation (e g. CHANGE as a UK-Pased organisation and members of the Steering сотгяше) ensured ina these experiences oou'-d be snared

- Tie >;|ood practice as demons« mpxi by OHAHGF.. vanch л fuíther Oiítlinea in me publication ' Turning vVonis »¡to Action" and seciion 2 of this repor?, inspired bah the young seíbaüvocates and omer рашерапк ?η iha prøjec? counirres to adopt simaa? inclusive nraersres airi riuppcrr rhs younger seif-advocatss. The appasch heips co ouiM susramaMe chiiđ iHiiíCi|>3tion groups aid also should assist :nese oider young people involved ш tnov-e or¡ na Dppomjnstif-s aftei we project

• National Working Groups in each connoy wer e: new structures ńbich had oot etsted berøe The Geonp ;ri Serbės ÍS tóng nwitairied ny H;e Mntsïry oí Health, ¡n Bulgaria and me Örsen Repoble, Lnroos ràansto continue ю supplì tfrése grotips. so tnar 'ney can continue co inliuerce poiìcy aod puicfice. Regula? meetings of the Child Partcipaaon groups established by ?ha projed wiH be maintained 0y Lomos in Biikgaoa and the СгесО Republic and Oy the Chiid s^hts COf.trc n Serbia and hmnw ïmsr^SLKjsi opponenssel teï уангд ¡«opie mvoweo nave a:teaüy been fjfantied. (See the contkrjit/ section (ó) of repor : fo? more oe-aC1

Prcjest Objective D: To strengthen the understanding, interpretation and implementation of International fegísíatfve and rights-cased frameworks in meeting the needs of children vÂth intellectual disabilities and their families. For target countries to understand the harmful effects of ímíítutíomJisãtíon and agree vaiues and principles oř inclusive living, inciuüing the right of all children to HÍM with their families.

Activities undertaken to meet the objective

The foäowing activities. asouthrmd *> the projetí tíesccptón ?or tms objective. j Have faken piatm

1. Nation&t Working Group Meetings

A muque feature of the nations; WmkiiHj Group meetings was inat tne cnudren ; ami Rüting people vAo r.^asisc.spated were aiteaöy informed of then «ants under the 8M8L Đecaranon (tiirø-jgh the- cMđ p-aißcipascn acmtties) so ASÍÇ ready m isse che Dedaratmn as а toai шЬ vvmch they could advocate юг r.h<¡f!· »gms. ^ Tbethme IGO® Ccofđmaiors expìrjed exisonq iegis: atare and nghis spaseci framewoä ks win íŕse cľnitíien .n a disaoJ% and ayem^pr onnare way.

They worked wsh emidi err and yotmg people to heip them understand haw [he ugrus comaned m them are reievam to űsex :K-es. ^ar èxampis « ngħt to tiQãiíh means seeing a сшсг v'mo <s mca ю you a-mi exam¡m?s yea ρm>pe<¡y'. Tneythen assisted me yesmg oeoyle to communicate the? ng:ib arel ίοακ a! ways to deliver this unae¡ standing to professionals and ронсу makers.

This translation' of she ten enemies mm easy to understand and vocalised 'promises' enabled the children and young people involved to snare their v-ÄVUS on the Đedaratre-ñ at National чадюгд Group Weermgs, Notably, the children made pa neudily strong statements related to tne importance a! ciiowatg no ; in a family and not m ait institution- Pohcy-makets íh.emfoie ^ţnesssd m ļ persom ítc« these- international: agreements can come to ite ¡f advócalas ase í empowered to clam the ι igms thai tb ev contain !

The cmltììen and young peepte s views intve bee" summarised in the promet publications Our words. OurAcncm" and " Шгтю b¥orct> into Action' Fliese publications wê! ba translated and wkleiy dissimi arad to policy makers in other comitnes and at the .Strotan Union ievel to stiemidmo me awareness of the BHBL Declaration ana asso sitae expsnsnees on now smwaí international t,uman rsgnts agreements саг-d bebrougm to ;;!e and aemysmied through simte comstiicative and pas¡юраюгу processes.

2. Transnational Meetings

Participants oí Transna&orml Wm fcshops catœ together to shai e thea expanetmæ of imei ptepny ide BH Bt Declaration and ίο corne ro a common imđeistanding of how test to involve children m «s ìmpiememaron.

Butħ workshops v/sce opened and dosed Py children and уоищ people v.trn intsilecwat disaPhstre-s so thai -aii workshop participants cotcd get a Ош idea of what ssif-advoeaies thought about m« proper and dm Оесагашп and how they vvould äke the« irves te cľ-ange.

Antie 1rs st workshop, chi dr en p¡epa>ed barmes s andpiesemed mem atme end of the event, in the seconő /jotksħoix idey delivered a irray te^ng me stoty of the Timing Words <гю Action Project vvfuch ¡nterporated sřnpie demandsbasedon each o-f сле BHSĽ's 20 prkmües wmeh л-аге-лгкйп on paper aeroplanes and senf r> tc »íe aud^nce

These meetings, theíeíore, demonstiated a modai of Child participation iinlad so the implementation c<f ast imemaíiDna! human ntóns agteemeni wîiich cojiđ act as ìnspnaìon foi othats. т^лу also demonstrálod raat oîiletent ia-igaaqes Į aeatí not be a bai ner and messages căit Ре conveyed ifirough psctuies, ! acibns m simple stogarti ļ

3. CNid Visibility through National Action and Child Choice Events ;

ргютy 7 ofine BH8Ł Declaration desabes гйе importance oí inveivo ig children and voting people inte^ectiial distiitioes and diesi' farnáies ¡o es ímpí^nemation, it-s key the! ©fare mat the af crnici en and young peapie w5t'¡ mreîleciiiăî dis^iî^esateirt public cîornain so ihat policy-makers сач · be held to account.

The views expressed by tne Ch.iicheit and Young people involved r·. tue piOįect have been cohated in sie publication 'Om words Dus Actions' Sirrdady the Child Choce Events pimmü and -mpíememsd by the Young ueope themselves, sho^ased the vie-.«, ami demands of the ch-^ren and yOimg people ω the yeneiai puaiic artd were covered by the media ο each coui^ry This «li neiptc raise eubüc awarer.ess of the ä,mei nation ai human ogms cammimerds made by govemmems and ;:te rights and asp¡íaions oí chrdten with «mefl&ctiiai djsateiiaam ¡ľ.ck;d?ig lhe importance that th ev aadress ю

P Hir. licí 54

dêitiSîstuBoriSisamn. ги« following qwrteiføstiatesihai desrre to change pu bac aultudes:

! ¡raní for aa aeooíe nat to avota pecpte глй disarms tu! ίο be aö/e κ­ι communicate a-ŕíi idem to weal idem, nofmaiiy ела >а accept tnem es d-eewy -, \ peopíe. ä ft ic π (Пе/acRiiïfc- a/e. " Young person with intellect«»! disabilities, i Serbia. •

* The added value of these activities is:

Media friendly aray^es. suer· as the rhiee ehnd craaor events were designed i ΐθ increase awat&^ess гевящ the pubic o! tae пдпк oř d^æen vjsh mtsiieaířa) disabilities. me sealses o! üte for children m msfcïutions apđ alsû or che international cornmmnants rita? nQnvernmenrs have made to then human ngľds.

• The snvdvemesiî ot cnndren boft hvin g w-m fan-rises and ;?/тд hí RISAPÌTÌON« ensured thaï the caddien and yoeng peuple wem able io expiare their difieren! ^ experiences and cleat iy expf ess ine drawbacks of an «sœiion» system of care. For example., me folicvvng quotes kom young people at a child participation group теешд reaied to· the lack o i educaţional opportunities m institutions:

' Щ' friends can't read or .-n ne because ihey nave no pareras. Thе tlumnou ccuiđrtтаке ep foi Vie èaci< ota ianvìvoO ihey bhou'dhnve 'he оррогги/щ-tornante fesa, .-nye snd do -ηе.!пч. ί nsve gye:.¡umed from iGtħ gradeai secondary schooi i ,vcviü kke re 'тоя aixì ¡ êsk nav сял ι соявпае ту education? Because л-Ьеп we (yaw up aur perente not oe around end we ññve focQtrnvje ou? ¡Se on our OÆ?>. My mends f>vm is~e meii eyotip dame csnoot /ear] and w næ. if drey ere gnsen « chance ic, bi:nty and ivork ¡dey :;ou¡d '' feeì¿mide useká kwam to !mish my edjeaaon and ¡veikm ňeéôŕa-yor

ůecOnie ā Singery Уоищ people with intellectual disabilities, segaría

• The various prosea armus PouDiicaponi;. animations, snor? riim? ete) wïîî i rase awareness of the SH Bl Declaration and the aghts ¡f comains among '• poky makeis and сгИдг key atakanoidess acioss Europe Τ?·%- w.l: aisu sase : ! awæeness of the key issues đ importance to children and yoimg people ; ^яИ írueüectual disaöiiiüss tnemselve? ¡iKJtsdmg better healthcare, more :

\ job opiíonuniiiss and an end ю instrtunanaiisaDon - ail key principies oí ?.he : I BHBL Deciaraßofi Finally., she piibHcат?и. trv- showcasmg tne participative ! mature oí me ï W:A pioļecf, УЛ11 setve as a reminds! of ma -importance ot í mesñrr-gSui paniCi{Äiosv copsoitation =r- any natwi·::»! implementatori o! ar.y ! saen interaationai адгзптет lne value of sfìaunge^peeences иу\зпаитаИу

a»d effet SÖI те guidance fm mose seekrin in IMPIEMERA eirn¡ÍA' pio>eas. ;

Summary of progress oř your action

reírse sum manse you! seiran as well as any dPctøiies you nave faced tn i№pfeme-:î<eg rt,

PscaiSfi report ssparateìy on eaea caoupcrf activsíeí arid.'» cumponont of yoiü action,

Acùviiy

Child Participation Activities ;

"ÁC'ŕyiuss -.'-i/V -±¡mto integram cn-idren bth ¡nrmiecrué! disc¿)¡k;e's ejy¡ then i fanyMes ň áh iheif ncn-a>ssöieö peers, rarsmg yonvvtutdy axdi&wss snd demystifying a<S5ôè"ty ?ħrougn cren;cns-vnvon oť meãivpQíu! pai ифяШ. ; lhe gutdtfígprriCipie ofídese w&kshops '.¿Ш de ω tr-ovnæ омюпише* \ m üMórer- -Aiîh rnteñectus; d^sdmlies л-ю' then fa.-nmes fo ftőve km, :

participate m eomnzimíy äviivstfes noi often altøefea ra (hematrd ю te j seen md ¡imrd cy me;vöe>~$ at tħen ошювгу eommum/es. irmamrdy. 1

àiìMOfksiiops ì'.'rh' a/so închide nme for consulraïcai cfehiďen vr Φ tmeíiecím!· diwñmties m the. ãcmtipían }d?ouçh tr-eaiwgtui oppaййшгт fe? communicate tpe.r iee:rs; needs Άηϋ withes m a mannet ¿чррщъчшв -ta ;neir indivídua! skđis and ccmr,iишвиоя styles. " {TVVÍA PÍ ОГШ Descfiptímj. Í

Piawied -•••eaye snopřy 01 ese;?! your prqect р^гшг-пь/ ö.a.í; ss <V4tn;ļed sr. t1,-e aopsnved action graai япгеетлпг

f age ι5 oí 54

Child Pârtiei palton

Шее Chĺíd Ралоравоп groups were formed, one irr «ach projo« cainpy. These groups consisted of chüdr«s« v^th intellectual usabilities Irving in instituions, iíving yyith lhe,; íairrtes. ?hsif s¡bmeß and peas --Mhou! disabilities, meiudmy cSüiűiei! from Roma constnumties ana cb»d?en hvin g m

' POVf;ļ'V.

! ι·· each couriUy, chuci ратарап-с-п acromas wer» designed co be open and . welcoming loinen wider cammunipes in οι de· to pi omote posuve wews ' ol disabled children snd younçj people. and better integrate cħiic'ien vvsth ; and atraut dsarJms. For example. ;n Saua cľsiitie" without drsabåties

fi dìo institutions and ine camnunity also шок pau :n rneetngs. s« Bulgaria ssħisngs and faenas aiso participated in tho Czech Republic and Bulgaria ;n

ι particular, parents were aiso actively myo^ed.

Taking imo accourt the naïbse ol the ngiđ system ot insmufeonssrd Lack of choices avaíadíe tos chi idi or· mere chiicäien ir· institutions wei e

. proviđeo wdi ¡rdsvtiuäi sessions at the beginning of me process Locai j Coordinators spent time assessing each dnld's <ndívíí&>ai reeds and : ai eíened communication methods Т\щ> oraar¡¡sed sessions thaï provided ; children vj«h opportunes to lea» n to πι «Ke choces so ieam testen ro

tríen own feeiings and che-ughís rathoi man try-пд no cuess wnat <s the Į tigt·? ansvar tnal the adu¡t ¡š tocfenņ !o<. Children were encouraged to tees i coíifsdem ω express positive ma nsqaw/e ieehags. to accept and to be

p.-ood ro foe who !t>sy a¡e. riva? is· individuate. wito potential and abilities to : be discovered

i Some children tat the test tiine «t then lives were «rnpawftieri to think . and say what mey .wis»:l like ro do w¡?h men spare "ото. what dreams

sna msnes they have and what is imponant foi ¡hem. Sessions ware . to-cosed posarveiy on ¡denarymg and suppes unci each mivr&ai's strengms ' ami potential father than on ¡heir disa&iny Over time the throe locai

cooránuT-of?. ořgaoísed acir/.sestoioug.h wrnch ihechsdren p¡ amsed sccsai ¡ skHlssuch as lisjenr.g. negotiating, showen respect and cornoiuiicaony in

different ways. and lifo skills SÜ ch as soring pr opiems. ТАКШД deosionâ : and anæysiny ¡nfcimation carers aod parents ooser/ed and reported

Φ,ах self-esæem an đ co ntøence cf eh su dvklcer, had been enhanced īram i knowieűye, пш skills, sMnoriaiior and supposi thai л-ete provided te them.

. Gssfbai;y when children were confortate win these new experiences .and ditte-rem group aahoties, r-hey itaci sessions ro ioat.·? about T.ïw ;'?ýi>tts,

: about fhfiBHBL Dedas айоп andito \en piiooöao and what st means íor ; rbem m rtieir everyday ¡«es.

' Two ot líese vourg people ¡n æch counsy Ά&Ζ »i-pDoi'eđfotake рап a . two Tfansnationai Workshops and atiaasäfoor raţionai Workarg Group

meetings v-viih рочеу ms.Kers and soivscs ora-/!ds<s ίο influence pohcy and :· practcfc ay expíessíiig rnsir v;ews and options on nuatoisthar alt sot . iħm uves. ~m ухшхд peopie шп uneíieairé Oísabľ'fôss paroapatođ and oontrfiijteđ to discussions at three Steeono Group Мч&ж<й$. rn«y st>ased

• not only tħet!· \'ì&№ on tńa płc.graas cf ?he proiect bor aiso 'oews and voices ' of chiicJren and young people m Chid Partícipation g?cops o Varna and

Belgi ada To enstae tnat then oaidcipatíon лаз not toKenstíC- spaesa: profÄ^atoty rríoetinos v«re otgaitiStKi tor rha уо,>пд peopśe, supported by ORANGE, ¡bese ate despised smiìm SÌ ïhe changes section of τη«

• chapter

' By participating at these high ;evei msetinos.. the young peopebecama ; aware of ditleterd perspectives, making compromises and o* how to : influence ciisnge. Tnrougt: ¡xactcai experiences and apporrunHies.

tl'.ây iearnt how co advoca.» (or"hos oť«o ngdrs anöaiso the nghts of other ycung peopie wri?t r-íeliectud tteaibdítes. ршюшаПу those :ш\§

• ir, insfetimorisof who we-ío ;ess t^adyto partie :1>лге. The-foil owing quota ; from a young person ín Buigaoa. illustrates the personal impact tne rħ.;d

ралюраиоп activities nad

"T'ho project helpednie ю gro,:< ana io ùe- meka io tne oiherí. / have become biav&r. nxn s ccniiüerd: í !eh thatpeocie ïsien to nsí / inul them Tbs ne peti me te be a moie 'nmk/ng, mdeærnJer-l ano m¿<yz¡ng úctson. The p< qecr opereti lo nie ;hs tíixv m soaety. gave ¡re ire o.ùpoi ivnity <o ïsaiize rry goaħ.

Thfough ¡he proįecl my ne,v ħ ·#ικί$ anel ¡ mot ¡юШюяп·^ am! 'iWjvnľsi people \o ••.'iħom ?.<e gave the rasк ια ihnk s-bout as arnj х> огжем os from heeonmgoecc-te without Фпесьоη a;xv furam .vhen ve gsednñie -'an: schoot," Young person from the Child Participation Group in Bulgaria.

! η a parali® pnxess, cfuinrg the profecř persoa the tńree loc® Coosdisatois empic-yed for this project organised approximately -.5 tneehnqs and fiamíng sessions íor family mambeis, peisc-mte; wciking ¡n lesid ennä xstnuticins. numheís oí Ehe Nsíso^ Workłrg Gioiíps and NiGOs to raisa -he«· awaí-eness an the oønts ot chĺoíenwyi! ^tehertuaí disabitata an n the Pasie principies oŕ Cii ¡Id pad.apahon. AJ rhese nteenrigs pareirs ar.d carers dtscyssed ch¿dren s aümties ano mei· сдаасзую oantopute io decagons about ii"S8 зле üves ana the need ro overcome me many negative stereotypes of disability Л#ч ЛФ-HJÍ :hey are oí ien cor·» cued.

"These child üa'tioßation activities are сРяпд;пд car r,vnášet, loo. ĂI /«ar ί v.-as shocked hm ¡ ¡tas as кей aPar my ¿or< can г/о. ¡i never occw-eo torne ihm ι tìstì wt thinkehoui -п!ш he œuief 'Jo; :·οι4ν ИюиуШ aooa/me icings he couiđn't oo." A moifier speaKmg about child participation activities in Varna. Bulgaria.

The Chid Přtíiidpacíor; activities »ï three commis cuimmateü ρ three im?que Ch re) Choice Everns in une wit'i ?he рго.ес deşcopţicn cľ «Sd? en and young perošs were provided v.ith sappest and resources io design, pian and cany cut a fun even? of ?пш choosing. m earn case íhís was highly yisibie te the germai public .and sought to detronarate Shar «elusion ï!? ¡he r;osr:?mi:i?ty' and ю highlight rue BHBŁ Deaaraííorťs priai mes. № aü three countries, a key fixus ol die child choice evem. -¿vas to ieadi Ш5 to me wsder cor.rrnu^üy denv;/stify disabMy and fcu;Id bodges. These are detailed in the f&? алщ; sector. which fur trier lustrâtes ho-л me psGjecrs approach to с?иУ paíricípatHXi v«s 3¡»¡ied π oach coiintry. ;

m Jyly 2013. after the ond of thepioje«, uiwc-s ari'æiged 'or : лр!о$вгчаг?-АЗь ífoin ma Seróran and Sisl;jànar groups m pa ¡topaie чг a n-ajDī irfërnaoonal woifenap m Swiszeriatiö, 'Gnidien as Actors ÍLV Tian?ícímr,g soci«/vijorgaresç-doy ír^sirwsüí ·η pai!r:e-sfr.p wiîh ths Chäkf to Quid Taist í his evmï fecngni díotips ot f.hiiđisn írom æound ůw. worídro «¡χβore novv ways oí tvork^g togeihei to influence chaise. Tre TWiArapieseniaévss asi ε-υπ?ν grouo n;acìe upor cnsidřen 'AiLh dlsabsirfc's arid wer<s 'Me to slöare the experiesrtes of this ptojea and caise a^aíeness oí thar^dts, cp cnsí®er; wfô disabilítíss m tnis mai?· stream ¡атпаиср.з1, ever u

A seiedion of methods used and 'essons ieann during me Child Peřticíprttíoo aasvfièç ¡n aii rńrea CQüsrnes have been documented r, she ригж:ааор Ί,:ъеп.чщ Together' ι< wui he wsiani* ťof p:aamr:ne:s •rnisfssted in C:*iřd Paíiítipaac^ ai Lu mos' -/vepsÆe '//íAv.vveaíe¡urr;Ds.o.g

Child Participation Experience m Bulgaria

Working alongada ptojea pannet the Kann Dom Poar.daiion. which hosted sonie ol ťne ¡;h8d panemat»on -^oiksheps, tne pi otec t tean souyħt ίο 'fiducie iS child! en fi c-m ¿i wide (ange uî üackyiounds^ those wRh hitsliectiíai disabšRīūs from aotn lesidentíai ^&mnons and fr си η famines, their síöinas. children nom mainstream schools and young activists The team then sal about engaging pai envs. pi pfessior.ais r.sisutio^s and staff and, erńsstirtgtr.e;! supportici -Λνίΐί paititspafcn pnntp&s and values Oncea proøi arah"!© ri activities h ad Peen devaiop-ecí, the lea m created a stimulating environment π .vhiph ihe ch-idrpn cothd p.articspate. have hm and accept this new experience as pa¡t ď~ riieir rcjnne.

prsentiai child participants visited at OcatíQus at when Í wa&fët theycouid comtortabiy be n!trodsiced to the concepr of participation Tney were then ¡nvaed ÎOICSI the group, А союшш!, pesc-itaiis&d ihviiatioo booklet was prepared for each child, presenting some base idea or what tr>echid mąiht expeiie.ece A tnegroyo. Th¡s aoprcac- was designed to

Farje 1 7 of 04

beipbuílda sense n each parne-,oa?n mař fe-y ovvneđ lhe .group and inai iheiř participation ;n it л«з valued. а Aías hoped th st rus approach vvouid contribuie to ousiđ me self-esteem and cordkience o? йш pasuapanís.

TħeChid Choce Evemthaí tne child? en organised was а öis ee· day b ψ ñon'! Vama around the сошау and m to Bofa, wmeh the chiidren caited their "Tour of Dreams." At stops «eng rhe way they me? and debated aViih groups đ young people • members uŕyouth comais ana vouintafy 01 ganisations. csvii society groups and pentxarf leprese^atr/es - advocating toi recognition of ¡neir (¡g'nüs and íet thecnacges rheytnaugnt ле:« neeaed to mate the BHBL Declaration sraaisyin Bulgarian law aid practice. The cfa-'đren prepared tdeir om msì&ià-s foi men ¡ow. m:h<1sKj posters arni a carper ¡ntü winch may -HOVS thea iMtspreiäitons oř īhe Declaration's pfîQHUôS

î'heit messages reseñad deal. ruüonas and tlvanks to the project's second transnational workshop even riteoiaríona audiences. An arimaoon of the experience væced py one of rne children vvno mok pasr nas been deveiopeđ and wili he placed o π die Lumos web sne autumn 20.13 ana «iii bé Widely disseminated.

Child Participation Experience in the Czech Republic

«o/ many-/ears '.v 5 ve аееп iesvntry aH these different me! K-cis anc' vsays of ¡forking i'jftn whu'Ġ-fi.ri. acni ì •.¡па&^ипо: rhñt ,ve ser e nrssmg ine niam pê»; r,-ie chi!di&rs oßimor-s ā>xi ps/scŕpaííon." Director ol s special school in Pardubice, Czech Republic

Xìost of m ft painrjßvns >n гЬе Oech ffepubJe from №e Onici Ршср&иоп Group were eüh e¡.

• young peopi-efaged 20-30 vearsrwah varyiruj decrees ri unsi Iscuri öísai3i(ity whov/ifö iň/ing «īri fancies ŰÍ m rti e insului;

• or cMcften (aged MO years) vaiu аюш eavere тшикьла ¡'щж-тетя and who were living irt the пзшат.

There were tbee obiecöves in Vroi king wim these young peopie:

1. ra nerodu ce the concep-! o? chid раторааог» loi" children ard young people Vfi»n Intelectual disabihöes so siaa and cfrtiđren. paniaiíaríy ία tħe cootext of d&nbiffij-ponëreaiiosi · a process Wr-ic'n was unde^vay tn Pardubice County:

2. to rMOduca.3« paii)Ctp«nts to ;he BHBL Declaration and i<s рпом>е$ and prepare the chsdren го he aotn/e sed-advocares for :ss adoptico and íiTipíementatioň, snouid mey ¿c wsh. and

3. to elect and prepare iwo таяшегз το represent die Child Pamcspatior Groupas mefnbers cfthe WoiKing Group and at tne aa^snaöena: meeiiricíb.

The coordinator MI ted VÚŮI the older members oí the groiîp ra oevaöp tłiea capacity ro express and maka decisions ?or rhenìseives, ;л:ва rrseeongs mok place ar a special school and kxysed α; gelang TC know sacri ctħer aлd loarmng to respect each orlrer's needs, deferences and aie &xpan&!¡ce.í> Afie·: a few sessions :ле (jraap gave -bei! a -"ame and fou-id a new piace for meetings, đeve-optng ils ;>ΛΙ? ¡¡шаь anu <ücní?,y

"rhcüdmies'hm staked loiaarnsng abou; rh e işnrsoi cnWren and young people and гхдапшпд a Chrd Cho;ce event. The young people had íhaíř owa 'easy read vision oř «ie S h BL C'eclaiădon anđ caros and a en an '¿vere made of the ņnonues, 7b~y rrsade signs naiKea 'ахяе»1. 'disagtee' and 'да not kno^' and placed thesn aseur-d the room. Fach siatemene was read аюпо snd ¡ndr-idnais \VOÜ¡;Í NIOVC between iha signs 'o exiaess the«· -espouse. ;n tree, rńs спй;еп md young peopie came tc focus on de^.№copaliSimor as an expression o? ¡heir hopes and heheto.

Wďi the younger group, a iocc-s on riie Cecìatatiao piove# ;mp;acr?caí; •nsiead, this group '.vete supposteci ¡n debeloprng msrr capacrsyfo! everyday рагкшиоп. ffegiiias meerüigs «vkc α week focused on games, the expiessM of wishes, being aclive and being tegeihei Tie chîidien's lieeüüni Ю ciscóse vWat апгу iki ;ed lo an ¡ncr«-:as=ng nymcer о-f

_3/09<20ii 21-U Page

activftiös ouisđe. indádig asps. walks ar.đ mesing vjíí-í chídi&n botri \ř:e community.

'Hie wosk ci the Сп-iđ Patidoamn Gmup culminated sn ?. СУ« Choce event Ätiích the group đeadeđ om designed an Ö organised tHems-sives. Tħe young peopie üti noi leeí ready to íabby poney makers arid decided msteađio í'űíd aconten ίοwħich they couìd invite thsirfnsn ds ami t^e corrnwntty. Tlie озгжвпагог arm schoo; staff assied Ï« ptennmg aciwtms and producing A poster about ME ВЬÖL mú sroiiar mauc-naís about mar s tghis and vysbes. tne diedre« anő young p&ûpíe beng responsos ίω me &cir-/№esthe^sëves. The hšíjhí;gíu was ар^итаяс^Ьу#!«?* lavnu-ráe imi sc tend, Oedñác;, w^csi tnckicfed young peopîe with drsab«s№s„ T?I;s event attracted the irter^st ο· Με focal media And a Hm of it was shown te pafţicHîaists a the sscanđ uansrratrøai workshop.

Child Participation Experience in Serbia

" There «ras nopfoťiími because o* age ő:!t&er,cs beween me sic: čním ;г,ег>юегз of :ħe group. Everyüooy ír> {Пе q<oup ^eiconiPö me mamiły ao.ő ι (ħink they like me. í feef hke an oicie' Droiħet ю tħeni í nke ì'Sierung ro l/w sí&ies and præ/en®, because κ miinus nie út the snusłtcns. ί experienced tnyselî io my ufe. Tt>ey üke ro íisren -отуъ-юпевюо. because í belėve iney сап imo; soneten# from rr-e &ici because íhpy г;ал ехрея sт№ things >.п '№( h/es " A young seiř-atívacate, member of the Steering group from Serbia describes his experiences with the Child Participation Group

Project partnei. the CMÀ Rights Cenne led TWLA child participation activates m S eibsa. in addtøn to <лв poi ¡cv >-'*ΌΙΚ tħs cantre bas constó«; able й?,п& mc? ¡n woïKsig dis sciV v«th cmUiran ю promom tf>*¡r participaron ¿mci safeguard in мг f «fits. Tńe Cem,«e couidţhus deploy its own siati and draw en s-s accumulated expanse., «s weil as that oí cooptami} ïi>stitutons, organsaoons and ¡ntíwduais ю designing snd conducting its cMd participator: åar/mes.

A group vas tomhed ol ¿5 chisten and ŕoung people \âged :л ·27 yeaís), most With some to?rn ořsii?e4ecaiai disaömty aid fsv?ng h psiùitîms. Membership and attendance vveie voitmtary. some felt and othais joined dt-usnjih t· process. Eacn workshop was attended hyskor seven cmkifen on ava age

rhe centre ъеуап vvotkshops in Api;i 20.!,?. locusaig on gettino to know each utheí and seii-expressron Дл öte îwâh-Gdaiocţv ;tòs tested, \мсяк%тт •AereéQvfiiOQècl in pteses;

1 strengthening ¡no'wdua; ca«»o.fees, estabksturuj ¡п№,(^а! ruíes, arci adapony ih© methodology (May-June 2012):

2 buiidwö individua? seil-awarenoss - "М-у {.jyly ZZ-Щ:

'3. teádsng gsaupcoħesion -"л1е «The Otüs-f Wiembesî' ÇAugust 2012),

4. o«iíííír«5 gioüp seí?-aŕ/an?ness - "We' íb-^ptember ľC12).

5. pšai-níng and arcamswg tlie Chsįd Choice evem (0-;tD&-eí-Döcernber cö.t2)..

Msewgs were axíaped over ьте ro m«et the- group's needs, shifting ftom highly süueryred. DAO· h OUR sessions łsekl ρ,vee a month RO MORÉ loosely-structured, h.aur-io!"i.a ^еейу frøetir.as with sots of dscuss«:.^ тлг.»й activities, -games, efiergíssrs and ommat -Αία-ac^/mss. Acjmm took píacö tn aűufc. as wâ;í asfhíouQti field tr-ск such as iene crnina or ħistoHcaS IFÍORIIMEJÍTS

Thecüfidiei wei«· gwen ctínsrdet'aöíe ;oom ю express íi'ernseives and totaSkti" fontol ośhess. ašíoŕánam.;mю vi&fđy « ii"& Gro-jp as a cosy, sale place vvnerç ihey am accepted and respected. ТМгц was ?«ü corildei>tiaifïy. Tne faciütasoist^&mselves v/ete swpfísed ai now hesitant the cniđren VVÔIS to tark ahoyi wemseVes. Napody had »er a^ked ?hs№ to do this before and <:t tooK time to i^arn to opc-;>, up. By tħe er.đ oi tħ& proiect perød, rlrsy nad begun ra taik řreeiy about aiâ-r opm¡ons. neetis and temiqs and even ¡sitíate discussions.

ï3/0mCl3 21:í ľ rage ¿3d 54

Some children also begat ία USÒ the gì nop as a farum :o discussine» proíJoms and ask foi advice aiid support. Before lhe o/orkshops. soms vvouid «α have coniúmce to go го schooi аюпе. Sy the end mey traveled аюпе ш Ш «workshops alone and wshout reminde!. Ciiildien who had oeen unwrJiing to express toe» ovm apurions were now ready to defend rhe ngnts

: of others.

: Common raies wereccueed by ine group pasm:¡pants The co-c-ídin-síocs í observed thai rese ιuíes helped io se ere boundaries fot group . communication and to bu ¡Id а чел se of responsibility and ownership

Μ· Serbia. giüup membership was based ort «nstiimiunalisaiien ;asne? ü!art i dosaKeyand mempeis. identsed as advocates oírhe DedAfatíon, í,mer ; than seïi-advocatas. The inek. sten a¡ ím¡s4t«afe(khhdsen m me group : reduced spgmatisaíron and ines easod »im; sondamy mih each other and

with sonety. :

' The children fourni s sense oŕ mrssron and usemmess in theo' ias* as advocates By¡&a?mna about rne Deciamtrom they came ω onderstand the basic mechanisms behind governmem асоогт and that they coula and s'nouiđ have a iole ai decísrjn-mafençi as weii as. to thesi considerai:;? interest their right to he consnłied or. the quafity of services offered to

: tnem. Ons consequence of tms is that fr>sy have hegun actively seeking • change m tn» snst«ufto.hs ·,Φ,·ete moy ave. starting '«ih me monos.

' AS m lhe other ΓΛΌ counties. the cmicften ож(ж two membess to anar d ; ifmNahonaJ Working Сюш andavo Тслпвпгтюпл Worksnops. íhe ovo ¡«embers chosen wers orvé r; addizionai training te prépaie them. \%łim the whole group contributed Jo defining rheíi message.

The CMQ P аШрайоп Gtou p dseidăd to mid its Chcd comee ~vem •& a major síiopp-ng centre in Belgrade ¡osí beŕc-ie f-cew Year 2013.

rňe ch līdi «η designed and painted tæ ¡arge cubei mh pictures and monos from 'heir discussions on TH« EHBL Déclaration, represenömy me¡r trncleistanding oí šie priorities They îistaiied the cubes aí the heai: or the

- shopping centre and handed m\ bags pmted yyim fheír drawings. logerne* ' wth New Year greetings cards they 'had designed themseivfts and 'easy ; r$aď versions of the Deelamitrxi

. Foi b Dih chwdren and the organisers. this truly rep; esemed ine cuimmanon ï of their уазгкоп aü the «voikshoös over the course oí the picket. A busy :. shopping censa was chosen as the most msfbte way to reach out to die i community and demystify disability

Changes •/Vas mere any variance trom the originar auion oían >

Describo any variance from the original action pian. Desenhe how snd why. provide justification of the changers} made and impact on project implemsntatian

3 Yes Mo

í n Serbia wh ere ¡..urnos does no! have an oftice and psojec-t activates were cMsveted by project paítr.eí rae CMú Righťa Ceaua. the soie of local Co-oromsdoi was prided by th,iee:iid,Viduä.« each perfo;n-i«iU different functions. Tinase were proiect managerrem. Natioaaì Working Group facilitation, ¡eporong. communscalion: woswrg with and preparing ih« children m the ínatitoräoa; co· ordin aton of tha en «¡ö pai?cipauon workshops. This split reffecced the dáteren: sksCses ι .¿ajitsd and ensured mař all tasks wete compíetoci.

Each of the t.cca CoOids?;atcrfS recruited 'or the ргарсс hi ought airfcaont skłiis æd experiences of chrid ра/всграсюп ¡n genera; ard methods oí с£ж\тш?ка.тп waft ctiidtet «tth iñteiaowaI «i pamcufat. το provide Locai Cootdinators mn common ?oois and skńs and to ens¿ne n.:gh quality et ch¡rd part;ci[»?ioo actroūeo. three days of ham mg was organised fa them on meíhodsand^ays of соттитсанотлйп cn¿uísn vvith rsííeiíeaaai drsabērtjes κι tomten They ieami how to cioate easy read matęsis and emlcned their khewiedoe a¡ i;c?,vto coiomsincate wířh chítdrsP. asutg pictures symbds. objects of reference, games ano

: ехе!cises. Thfc ггастз sas no; planned ^ Яч«> oi¡g¡na! pnąoc? pro,oosa¡.

.3(0=5/2023 Oi:-ľ ^age 20 oí 54

¿ I I I r: f § 5 tĎ 3 ms. Íl: ^ « ·

> 0

1

f

i ot sn actum plan specif« to стйпю -:;Kh :nit?ii?ciuäi chsaūiteos. These \ ñcmr¡ ρ!an-s -.v ø ae-a-k 'o Du.fr; op сипеш nznoneí pobcy snú ρι Όhlos ; foi lhe suas? piùìecuon and sočiai inouston of сШгеп, and emetic; the . >jìu;kìng ic spmncaüy consider bov,· io ensam ι hese sanw ngfcs are ' secut&i fot cNciremnti: ¡níelíeuuiaiaisabiħies. Esch .vorkrng prouo \ Witt öe envp&iveö to ¡cfcmífy couíur/s tipeah" ononties. ^aos and , ùvrgeoivng good pracuces upon .·/ hien ϋο hum. usn^g me Better ? reanh I Serier Uves Deci&abon pticom ss s trame,·/&'k un.- ens-vnng consistency ' Ά nii natiotm! 0-v»C paonnes, in m«· «'.sy. each country's tPanona! working . -Group oaay choose io tocos then аиьоп ptan on sttgnUy different sspecis . orsoaah;-KH.;s:űÍiandc-úniínuniiyir/iog. ľ. ¡s чпронат п^/еп tPsp^oī : risaie or ¡ne ßOjeci e.nrjlaisnvs-ty short umetab>e, ¡nei action lýeus • hatence on émn Ana the cktve for chanye r;m rn-aksn; anrj atiamahie

QGÌÌ's. Reft« raring an вг-лт system of care for tammen :«*№ tnđvkžmis c sn ' seem understanoiiĎř/ over.vhetm'-ng :Упеп lacea wth a ¡ony vacntcn of • ras atenţia! ca/e for vnineiaoie d Vitien ynd tiis segre-pekon ύ! ¡nđh'iđue.in WW obabìWes. Oten, ;he most oriíicuií aspee! o' íhis ттде ^ceJe reform is mamų a suat

'

NmoiìpJ working Groups w;3 гл>rre iogemer f¡ve tares >n tatai avar the ; fifteen months ot planned acph'Hies. ąjpfo>mnaieiy once svety ;ħree rnontns. 'nree meetings oi Sãch N&tiù'm Working 0¡oup uéi ne convened

' in-country ancì aH time a оФпд groups v,- ni siso coг:к> rog&îher fä? w o . tfäsisnaõonä meetings. " (Τ'·ΜΑ Project Deacnpöon).

implemented Γ *" " """ "" yìease tiesaibe the аалрез and U6ir/i-;aiy(is =n ! Nationai Working Groups "he дл!ов

ín t'Sal. 53 ;rdiv!ciuai âiid ^ciipn-^ai.r«así.\'eíúňc;<iš'j! iąjręspp-i*hve$QÎ Governments. NGOs, irţemaîionai Oiyanisasür-s sucľ· as ùisilCEF ш-й WHO ro gan мег cotrmiàmen? and supporv al tie galionai iívt' and íhesr

: ' 'nvosvemum in ÎH-Î Natönai vYcsk¡ng Gíoups This was essentia! te ensure ļ r'n^ithe ВНБ1 D6Cíâ!?)íson s rcorpofwccl 'SÍ'Q it¡i nauonaí C-.QSÍKÍ«S ¿mdíyr : each Marionai working Group to ¡¡ripiove vmmq national р!й.·^ ο­ι "ο cavHiop new naiionat аедюп pians (m ims wi?h the píoject desenpücn}. - This resimeli m. fer exampie. ïhe Msn-süy oí неа^п m Serbia сотгтшпд : tolha «npíementaífân >vįm>a SH8l. Г)еа&с.жкзп ;.mí :v.ak<vq a scatemenUe ι syppoít [¡те National Working Group and ta œnmue vie- piocess even after ' üieprojeaelrrsshed.

; . These indbaciuai ¡neemgs Vi«re foiiowed by the essbi.sńmem d ^a:icnal ' woìfòr>y Groups ¡n asi project CDornne?.-. Eaeħ gro.jp met ar, ¡nasi ioni tunes • ifi ľ-ibw om cc-un?p/and ä tv.-c· sar-snai^na; nieetings. The mee&ngs

involved çpvemrrienioffírrais, ¡x;icy exports, p^-crinoners. sell-advocates, par-eots and the гле m iar be is fiom the Citsa Partie-cation Group.

Į Chid paitKiomion n^ciianam&Ä&'e hu^ ΪΡΊΟ ÎIIS А-ay the groups жакпа l so tlist iie- three National vvorkinq Groups themse:ves ;еапн and modeííeö ; good practice in 5dcies.sr,g:heDaií!Gp«bíi ofchüdier, A«th «neüectuaí ¡ ; di:5afc'Mi%s in píai'rtívg s« vrtŕs εν;ü pacy rrsawncj. ""rus sesveđ co increase ; thes capac«yantícomsiíítírienrrnfoiti:Gi ¡ntivúe ρ-,e v«ivvs or exduaed ' chfldí en я aH aséeos- of Ēheir ĪUĪOIS vvorK

' As outlined tn ih·» pioįect ćeso^ov. řp. "ήγ.ρ%:ι Ment oc wass^aîiiiedH eacħ cöinrty. Esch ect^eíysupporiso and ε-tea ed ne-.vork cf tha Niecnej

: VVorteng Giani), shared natiorai едри sencis ai tran&naiic-ia! -ikshops, ; pasda'pâtsd in Steer«ìg С-тгтийес moefrgs and wcvtíed sr.ņut го ·?;β

vaiíous propet cuíputs. Two ül ìhetnree expert n^moishad keen invoíyed : ш the ongitia! V¡/HO-i«d process la draft int BH8Ł Dcc'arsJior. UQ vvefe

ateffto ofer c'arityabouţ tí>e -мат oi mø Deciarsticn''» vanou s pfîoriîiôs. ; : ¡n íine/ŕijb the p¡ojec? des!g;s. each кжюги*'· working Gs DU p went about , ! -ts улгкш tweern 'Wdy5 dependíísy. tor &xa«ip!e. on whether rt proved

posiate toga in ту mandare for ív.svvcik áom govsir.ir.ent os '.vhother ; the dia'ťng of a new Nations Actcn Pian -,vouiű be pom¡caÍíy jx-ssàie or , appropriate. Once ^acti дшьф ^ad beon formed. itthoiOughry revie-vvea ree : Щ&кше íar'iűscapa as it appüed to сйашап vViíŕ; inîci!ectual diçawitsíes : and the services the/ acci^ss. FbiSiiulticiedan^applcafc?® rational

strategies, [»¡¡cias arid actor? ptans a¡:ross ksy areas such as haa;?neara,

_j;-Q9G€i3 21. i Γ Pam 22

education ш sočiai ргогес-юг·, Each group л-as tbm able to assess νΦ at rhemo-y appropriate form of acrson vvouíd bem their nation si come«. These national experiences aie ű&scumá ·;η ţietail below.

National Working Group m Bulgaria

The anparemeiu yf memlKas to Buigarø's «ateonai Warkmg Gtoup aimed fo enswe b¡ oad lepresoriancŕi ecross key ar e«s to nraxmssa ¡he impact of the Group's work. K4emb«'<s ificiuđecr senior Qftwss horn ff e Mímsiryof Labcyr зю Sočiai Pohey. the Ministry oí Education (the inclusive Fđncaikm Exp eru aod ťne Mímsmes ot Health aid the interior юса: ШчЮпР and WHO representees and a ¡lumbs? of relevam natsoraH.eve; NGOs, including ri e Kñtífi Oom Fooridancii, the pái'ems of children with intfeiieauai disaMaie« from vam.« anet bo y-Düsxj seif· advocates imri the Cmid Partjtiparior? Group

VVníist not mandated by government, Butøana's National Working огсяш secuii svgmfecara governmental approva ar,d irr/oH-'enentfrosn ns outset and functioned as a foi «m for discussion. Advocacy aid the coordination of initiaties. The Siale Agesrey for Ch;)d Protection oř the Minsscry fot laboor and Soa al Policy (bah the атщотд and йе incoming chais oí che Ayency jomsđ the Working Group and attended nansnanond meemos) and riie

i; Mm¡s&y oř Education weis both n^Wv active pamirs.

Th« ¿xpert Mentor. based sn sotia, focused оа овзоРашое ,4fto government jTifcsöies andožher poterma; partner ana í ас í! «taf ea me wat k oí the BtóQãúar. Matíonai Woítefiy GÍC.UG

The group b.eío '.hre.e. Ш саосзлашя sessions гг. Scvha. ara aso nosieU a transnational workshop ita .mam wcni: was efiecsea tfiraugn lii e dernaats-ar-of tasks. individuai ad-ħoc meettngs and on-gowô етзй communication The Group conducted a policy ¡eviev*· exrsoied existing good practices prawned a forum ?os interaction between policy maker ŕ. a<-d service users and developed a sei ot proposais /огясьоп designed ¡o ensuiø adequate and appropriate implementation ol the Decíaraiön.

Τ he two maai a/eas on which tne group focused actuases леге: GrnpcM'eríng смота and young people with rjAitecxuai dtuatøiwes te comnixiteto decision-making aöouf di&'s uves and bidding capacity and conm'Æmtanito change Aitte, the stforarà rrcttutsons andworldoice,

The condrøotiS of ŕ·© r,-.røl colcy lovsew were;

• a temad aańonai acu OP, pian s '.voi Ý,BUCACI as an adequale solcy framework already exists regarairig chsrjreivs rights and demstiturøateatiom Howevei ehete s aisufoem charity on the posüiur- af children and young people win ш?е11е<-ша1 disabilities wiirn mosa poleies

• where good pciáľy' ebes ехвт, η ¡s not hp.keđ ю piamai measures es coftsisîent ütipiemomaiiori meohaDisnis. Ihisħas lesuited in afraciriiented sysrem and ascNaiinatioíí κι practice

• a rum ye? of targeted r¡ten-er¡i;ons are isq mvđ ro ¿rrpiave individuai iavÆ ¡η different fŘ>íds xc ensure ľ'x fíi-e ssvâiicr, ач the qïomû cou-ü æid ^oihd De changed n i«;e mīb die Deciaţaiiofi

A ser of priority acooŕis was drawn up ŕ; co operator, sAir.h the reièvant №fiísthes and gavenimcnt %$<iiu:íes Es en pnohry acriorì was enífustecí io ď·® stewiaidshţp of t;« гаей aűpiopnate mertbe! z4 iheg-ouo.'Tħe m«ti areas oi policy anc legisraocm idsr.bned as needr»^ ríc-iyanöoi" *is

the Reguiairøs. on Сш»а«а and Standards for social Seríeos for Cntóten

• the HeW taw OP Primary and 5s>conda¡y Education and the ustionai Education Standards

• the Mmtsmes' ïiiesnai ¡egriiaiiürrs

• iħe öy-ía>vs cKTvehiing sc"ooí councs?, ;

'n pancüiar, the днянз íooked а; ťne reađress of Tis.instream schools ¡ to genuifieìy ¡тгдше chiami ance the de:r;3?fet.Or:áfeähon p;oces> j í s řujíy urîdarway. as she· Gcos¡n was с-f tl·-?·; ofiinfen ihat íht-i« .n^cl ¡;ew f

Pafţe 23

! iittepiactícal preparano« arici no system of &ãcvce Í-.¿K! peen spec¡ícaisy approved. The Ministiy of Есш:а:к>п agreed to integrare cesici participation and inclusive education mìo ms plat-v^.Q orrđ wpi«1 mentanoti o? «з new Education AcrsfKî π ensore pufchc sa trun y o! tne new r agonal education standards. f-.'ois specifically. rňe vvoiKìng Group călind for a thoiíxigh review oí «íe scarda; ds far inclusive: education. professional framing, '•nspeeiior. aod гщгксиа from тНрйаресше ot ih» o&ods aod nghts of children y¿?r¡ ..'-»¡ecmia; disaPlmos mú il>eir rjariicipaíion. rhe gioup siso ¡ooked ai participation by studems >.<«tb «neiier-uai disabuses оч şchoai councils. Роноудпд the Child Cho¡oe. Event toe Siats Agency fot Ov.lcì protection hiis com-fiitced ίο snregraung child participation f& ctúüren vMit disabilities тю practices s; n aton ai .'evei anei erssunng onsd self· advocares witn meheaual disabïïies ara urctuci^d ¡n ih« Nauooai vourn Parhamenf.

KAP Survey ResuíV A change in piache oi pwctitòneis, $е>уке providers a«d carets in Sofejar^vrasnoteđ dump 8ie project. For example atiħe oeginimg of i^e pre,«α, ?CHi satí thai r¡ и<еж pmviice, 'chiidmrs pnvs.cy was respecieď: This had г&еп ífí Шт Py :пе end of ?/?«? piüjCd. Singly, ai lhe beginning of me project 24% s<s?đ tm tíiey nevef "Фом ch¡i>dren ю choose vj hat tu eal for imif otear. a ogu/e vdvch Pad dropped ю СРА üy vie end of the project, η c&ii therefore be said rhar the n>„ oivemeoí ot semce p/oviđers stxí cams <п baiħ tite chadparticipation cßGups ane: the Nattcnat Waking Group ;n SuSgaõa. imi* annoi ro.prnt on me way «>еу aooow \ coifQsgues orketí w<tħ ch/tőien. j

Mation»! Working Group in tne Czech Republic

"/ <ras urųvėSM-d by'.he paver oftne n ora s (ý these yaung peaps- л··#? mteìieami ürstiPíiies, " National Working Group Member, Czech Repitóic

VVoitanįj class*/ fřie awhonties m Päíciubice. äi-s5ü.u;;ov\ ола(ч?.с4<5газ(П aid staň. Ш locai coorffeaïoi took she seaű »i sétEing up both Quid Patorøtion Grexips æd ¡he National WofKing Gfoup, with technical support hom die Expert Мегмок vatio was based :,n London ar.đ Lumos office « Frique.

The Mation ai Working Gfoup consisted of representatives ílom šocai OÍgamsaiior-is, insmomrø, ^ч-е^лшгг, птъ\иьъ ræd agencies, ewi soctefy non-gavs?mnen® orgmmđims trr«·» otiier oa-sís of me country and a «ocaliy-oased Senaioi who vñs a¡so ine principal of r% i oca! Specr?J iysfeds schooi.

The eteadtft al mgb-ieveí ínembet&iiip of ins Naìiooal working Group provided an iniiuK meehamsnn to expand ihe activity ία s natoci píatton·. once a basic mode; nad Peei öei/öop8u. Tħ$ wooing Group examined she 8HSL Decía»aton apd earned out я Situation analysis borii on Фе φ ourai inside insisuíícrs mö at a ¡ocal sevei T hs Group m« ÎOUÎ umes. By тЬе time Prague- riosisd i-h.e T>econd wansnawmai meeting »n Oeoerroei 20:2. íepresentatíves ofine mmsims of i.atx)ji ami Sockii Affair aid fcdiîcation were KTv'ofved m tire 'Мюкт Group, with deputy rnšnsieřs foimng the panol of that event to endorse аявг. and κ;« TVVíA prose«.

таюпд a "oca! 'ève-I tirsi' aj.?pioach in the C?.ech Bsp^hèc тгжл thai pohey and ļīocossos developed at a sicrwo; isle thao in Sumisa and Serb'-n. However, ths app'oach ¡ïas we \i<mv,xm to p¡ oaäce ħsghiy pracfecai solutions based on specific situations :t is hoe&d thar i^sonq ideas ¡ís an rnstitoïhnfti envircoH'er^ wRh lhe rivoívemeat of prstuione^. ļiiofessiona staff, pareras ar\d cïMws Wi ie^.d Reatei ^äíqíu to īhe lecoiTimeRciations of the Natönai Worfcsng Group and incieasa fes likelihood of ihrnt sífcipric-n inwoatcan be a sceptica! eráronme;«

AS dôtaite) ín section one o- ντ,-.ч ießo-г. as a direct re&uii of the projea. irtîprovemeriïs were macie r¡ the way «af? »! ¡nstóu^nssvoikedwith c/niđren io the;r care. Pardubsce county ħss suü&equenüy committed to stia! ir;g t.neir experiences ¡n lbs proucí wss.h o:he; counúos.

After me piOįsct hæl already Ье-guri. camral govetninerr m the Czech Repítblic maűe a paper comm?mer-t to deinsiitüüooaiisaison unda ΐ·!& 2ϋΐζ·20ΐ5 National Stratftöy to P¡uteu Ca sdi епъ Paulus. Thìa may open

i2füS/?yi2 2í:17 Page 24 of 54

- up ¡heway íor mcaetíutfih асйоо aiooħonanevoi. buying upon lne ; modest А-CI k clone ^o Ш ?i Pssdotoe.

. The mernbefs of the VVoiking Q'oup ¡rrciwding representatives oí me : various rnnisines ir:vo,ved have comrn.-rœd to oontinoe their work' so

IMAMAI r ETWC-Т k -AITS? the ond uf me TWA PÍOJOC?. VVW the support o! Ŕ E ; Lumo*, offcem Prague. The group has prepared ^nsx ο! οίο» «y actions ю

•mplement the BHBL Dedarotioo го ¿a as tb« basis fo; 'odne? wo?* -;тв<ь : and wnen oppoitoröes te·· positive спйгсде сал Sk ¡d-oní^d. This 'i as : heen made «ποήοοηρίβ aornaom «sing pliures ď awn by the criaren i themselves,

; National Working Groupin Serbia

í Д fosmaí Natsöfiä Working Q'orn '.vas sei up w-der trs* oosptcos oí Ehe h\r,tsïiv of Heaito and -.vas responsie for ih e аеооюртео! o! ar officisi fasernd! Action psaí> fo? »HBi. -oipïemfeoïaiion Thg group included

' membetsoí theíeievam mn¡stoes(h?aí1h. sodas ?oí¡cy. Education. ; aođ tocai Government). the Сачгего: CPuđ Rjø^s. OOOSO'OP.í o! от:·.» • non-govcíiirneoíai orgarosahons. losmrtions »vofking with amhev. <м'о i iiiîefecnial diçabí^tes, íamíy organisations and se^ad/ocares. roe Group

oier łom limes. Members were ga-en specific tasks re persomi coocurreoOy i and deiiveiad updaes a? the maewtps.

: 01 the first phase, reptessmaavo-s QÌ the leievanr MiOísmes aod she emīs Rights Cernie ram&d out a re-ooov «Ίκι^άΐίοπ, pekaes, poogsomntes. department iepons sod fovsevvs. ai ó om loe perspective o= ch^feo d

: ngìus aod diád рз?г*ораооп The Expon Mentői aod cocodisuitO! usod ; these sesuítsio cr saie a discussion pape" On the nasis of tios 'ho gioup ' determined ooaraes ana, gives the muted time ¡wedaioe. oeađed to . ÍOCUS on reforms ш-ип the hsańhoare system апс oo the ceoidsnamo of _ services

The &зй^аюпа Acîctî Plan produced by ;ħo group s currently being , osvtsfd by tbeM«nstry of НЕЙtħ. Gww fi-.e dose «ovoivement of ГГНШЙОУ ! officiais some mcom.meidatíons aie already on тио.шу agendas anti _ scorporateci vMnm policy.

; AH rovDk'ed h the process hse made о'еш tnerr determination ίο ensure α does oot stop now. Tne t4ańor=ai Working Group ov;U cominoe rc meei

• fosmaiiy simr me eod of the tv-^a project to enso'.e the i'eoommeortemos ; ¡si the даюп Pian ore intospoiared imo polscy and lohowedtmough. a> i piacftoe at so iosoruoaiai ood community iovei. The Act so P-an ivas ι developed under the Ministry of b'e.ifth arid iis ¡ocQii-rneodanors for

other míH/otiies are not issoďrf); fiow&ver -ne ot с-yp. ¡nedido» '. çepseserdaôvos oí those n>m?sííi00 iv»i ooruínoeio οόνοοοκ ro; siffif . impiemeotatíoo

Changes

/vas ih or o aoy uaoaooű frort: che on^ai action '.ЯЙГ,?

Describe any variance from Che originai íctíon p'an Describe now and why. provide justitication -of the cnange(si made and impact on project implementation.

Д Yes PÍO

: Tne οι ojea dftsjgrţ апожеа tor Й dittæaniappioacri το окюоа; "Xtioo ® : bs raksn «n each country wxr- oaoh Mation^ Wo;ko4j Group ompovo^fcd í io шепиfy spsofic pnoiit^s aoc to rocw-s íhe» vvorkoi? Uiífefént aspeas • ot sedai ^c'usran aoc usíoinuioíy ip/io.y as cohtaiieđ ;n iho ВнВо

Dáciai mm ίο me wuh «rar /oas deemed possrbie or appropriai ¡n oath Į natśonai context. As outHred. by ?ħe prųen ftv^aiätci ю dis contobuüoo : íűinis íeport. the reutt. "Нмкоой Action Рож'," аз used by the WHO ioioe ; WXB accompOiiiy?og the Decíaraíion was not ť«<yly defined.

: Disrifig ttie project period, thrü lacs yt йащ< úö al l^es prompt :|oest¡oús ·. artîOpg Kationa' vvoiwrr-g Gtoup o-iombo-ss inat the oloscír/e of a Naöooal : Ааюп р\ж '«vas undoJioed tţ-o^ev©' z-s, tfeia-lsd sn ihę pmieot dr^cfrpüao Ι iefc:mmg ar', ENS e system oí Ca¡e ,'OÍ chídren oso SÔSO1. ooeiwłiośro-.fio, ; [..,] the most orffcoït aspect ;g otakiog o aart'. Eacn g¡oup theaters

focused itieff work oo vdiat was achievatte aod would íowe the most ; poīonoai forímpací. m Serbia, t'r-is was mđsed rf National Action PiOP

,>^¿OL3 2i.iV Page 05 of 54

&mana;ifig dirse!.:·/ from me loą&ci. r. Buigaua, a ïsevatü omowä шчж :

; plan already exsted SD me ушир (acuse;i instead oa irfiuenang a ar-cl ì oihef poleies ¡n (he Czech Republic. the group focused ьт-а on chaną>ng : pracüce ai me local ¡eve¡ ivrocíi -.vouid la?e¡ be císínansí??ie.á <& a damnai ' ' ievel. '

.

• Given that lbe Mimsrr/ of Hsaìln !"as con''inin.ed ísetf io taking íoivva¡d lhe ' ; ľvationai Action Plao ·η ЗеНаа and en su ι ing rhaíü has forrja! governneru ;

; endorsement, rh e dr=n of KIS :e;<í ss cuuemr·/ bsmg hnahsad m ла imem a! ; ! processes which a¡e ou? oí ¡ne oorøoi oi ine project team, n s meseíore ! . r.oÌappropusfòso shaseiħispub'iidy at ih>s time. Ones fris cocumenthas

beer; foímaíry adored, ê wíü be /kiite.? to ih e «du sue. ;

Given that firiahsed National AcRors o:ovs die nory« avariatile ;.rd the objective of a naposai aa юг plan was in fact «n iho Czech Rep;¡¡AC

. žmd Bulgaria đetvered !hfü-.icih зрееше nat-on.ai àcîions. ÄS detaíed m : аеаюп une o; th« lepoa. a пескьюг xas saken to produce a srpgie oimm : «vh eis combined r>c Guide to Natrons; F'ann.ng. an assesámr?«; of each : cou'inya oituaüon. the oaoorai act-on taken :n earn counoy and aisa the . рхрепеясе oi córki panippar?o·'' ah imKod ta înepiojecis oveiaícniog . $m. io turn the BH BL Decision's words тю асми it -.vas felt {hat such ; ' s combinaci puhheanon would -nere accuiatejy reflect the oxpe^ences

(β the im ee counties aid also be a more usefih $.;;de to other couniv¡es äivd the £C r, supponi s-ňYim itfiíAf.s a- lhe îuIuïîi

í ! .i ¡me win tits project description. &<s puirucauon -NOS ?!?st drafted by ; a member of the Steering cofnevaee :ol?owi?ig mei v-ews with piojėc-

pítfiäcspants. However. :ht- p^catim has ¡«luffed significa;» edmng ; and proof reading aod was not ¿uste to ne '¡паЬьоа ir> hoie for the ond oí vheprojectда iS June 2013 u; moshas meiefore committed to íurdrig the řsnai desgn, printing and reanslaco-i costs from m own funds. Tms publication wiił be available on the Lurnos web site -n autumr 2013 to

' oorociđe w¡th this report and w# be widely díssemínatec íse& bsiovv ?or ; ; dPAaáS OÍ Й1€ Й&Х81Ттаи№ p-ÄTi).

Activity

Planned ;yc-ase shodly pí.¿yomyou! pOjeapíân/actiVíty c-ar¡ as ouríH-ed ¡n the appsovecä action giant açjrse.'^enî

Sočiai Experimentation

"Cne ofine ратно/ ûutp-jis of this аю;еct. aese/éva is tóe : ci&veìQomeni cf а $<¡??pfe and aser fnz.nűíy '>e!f толтггпд and evaivnuon i ¡ooion me negree ;o vrh/ch fui! inclusion ioscnikMm\:¡m imeiieztcpj ' oi'sabsíies ВД5 bzen otmns-ú tn jxícy a;\¡pracme. 7ìi:s ;ουί:.!/ιΡ ņtcvim a setofeesity meíj,-reieü тсШйог^ Ш eacf) of ¡he IC p-imties i¡> toe

' Bener Hesft'n, Seilet uves Declara··un, P'-og^ess tùûwas sacīsiprc-re-cüon and soeíãh-ncfPSíOR -or children й;Гп inaUactííaí ósaívMues ¡n naivna;

. oùOcy zna programmes over -?>e öuiättoo oí :he oiopossö aroįęa .-;• Ji oe

.' oírtäiíieeo Gñ<;h offre voteci countries osvxf ihts 'seif-evMuatioi' iùoì : p r'Of Ά eoe1 upon cormitriion ot. project ясПлье s. B-y ustno th>s sartie 9βίί-

c-vaħtamo looi to evaluate üis Oaserne ptogress oł conooì countries ooi oivncipet'og io pio.¡eci acitvnitàs. ¡ñe too; otti tonnet serve as a toeinoo of social eo'peomenmioo, ewn toe piiot oaiwe OJ ihts gxperur-ertaucn. OÙ roīfree additions! Еоюрееп næonsoiiicompieie Ľvs iod Courané s •ŕ il h SÍOVÍ&Í ДЕООЩЖПО so СЮ-ШЪЛ'Я1 ood ес (Τ-οο.-,Κ: ¡ХОШЧ го rho ATOŞECI comrnes rtiiì be tdemmü a¡ ?ne beġnmng of -the project

A Koowieage,. Aimude s onú practice (t<APì survey и> >M Ре оооепакео et lhe h&ginmng aod end of ii¡& crocci fű âsseos the degree ίο ^htcmhis ρ/Ό¡ec( ¡s ай« io meet Voe Шж> caecwo. KAP stoties aiim tos^Pi от 'A-Ost ţy-opie knoA' oná яоо· tö-v feei entí oeíiave аюоой й g-veo toon·,, mis snafyss. Pelote Arni?Λ&prefect ac-rn^s, w>n ίο·< o¡n assessment of 'L~e changes TOS p-ojeoi resws tn for toese toree oanenstoos Q· HU^SC oxfjeoence wśft regatos lo соожеп -ooh ¡oadiocoos! OtsabíiOtes. 'this mí¡ then akro toturs sočiai exoeomeoraooo eod pwieei repì/cobon sunęli κ best sukea to moet ns ä-ros." (TWiA P¡o¡ec¡ Description).

ivob^Ü:¿ ?.i i7 Paçs 26 OÁ 54

ι ì'neTWA p'O't.·« explorad ¡nx avance ways ož öuiiiisng an mcusrvt process j ; inìougn wtiicíi some of шесотпшпник į" вмзс Dacia arion. ;ou:d te , ; iumoö ime асоог. ü was co pad msi ?h¡s experiment ул-ufd demonstran ! ' ¡Atar flappens when children wrtH irsrefçctua disaßtees are co-produce?;;

of policy and μ act.ee cnanga. together •*№ aduit деачюп~гч~,кег5

;n hnewiih ihe originai Pisteet Deser(poose .s Knowledge, Armides ana , Piaaice survey лйь developed and imđeitakeri η äi) pOje-a 5 couoirss Py project pai ricpa-irs műudsio young chilien fi om Chid

Psrrøpauon ţsiouns sonai с^рептенавог; ?eqy«es quanfrfiaPie maasu?cs . trsätshow tbedśtef&nce n¿w теР:Шо:од^5 maki; vVt¡ai «vas measured

hote was the exterø io wtvea paraapam-з' xm^iedrye and amtuetes aiiocc cnfldfsri -ind young psoipe with mresieauai đ:saoiiaes • and tb-s« oapacsry

. for meaningful indus-a· in -buch processes - ch-ingec ;

. Participants were surveyed betera and atte ι We propet A deereer y-'-rujo oi ¡ questions speoficai.y for ţn-a ciaidíec as\đyr>ungpeopi& tnvo ved was arso

used η os de' to capirne some of *be experiences and VÆWS et the усипд c-eüpiB memsehvs. A serenan of íes uns of this str-vcy ¡'-ave ¡зеел >:κ;;υρ<=α

! ļhrosicļhūuttns герои.. ;

; Tlie KßP survey đcmon^sasd; an тстеьж sr. cordrúaom arid ae^eŕreem • uf the cń?idren ana yauvg psoule ^ve^ediP the prasce, cranes »n аa-.wd? : ' among ШШпа! Working G>oup members ořthe capacsæ? of cnsldren : »iiii ¡яипадна! øsbaoitøies. cnanges « ргаетсе foi snow v«rkinçj directly ' wab children and changes m auricle or chiben and adu*:. ¿шко fov.aros :

-паедтогд and'ovvaros gov^mmen; policies rar спзйгеп mii ¡.nteíecíuai ' ciisaMsres. i re Łun.<«y «asfsieü in by « -, s^vsry smwi rarr-bej oí plucie ;

! aü af ¡ΛΐίοΓΠ ivere ¡nvoSved ;ľ tne p¡ oįpct d ca? rhet^oia not öe ratem ·ο ' be rdscative ci any en an ge m aîmude of the voider population я tne inres !

i countries, нcvÆver it clea'iy demontate* the impact cd ene pacioaadve :

rnfiihodoiogy of the Tiun-ncí words ;пш Acton on ïhose ¡nvcivrd. ;

i A ^eb-Qased seif-ewjwaso-'i íooi nas been d«vefcpeö ts neíp ?ч«рс-п.^ . working Grûupîpemijeisandomsisassessa cúuráiys teve: of ; : rnpemenîaùon AF TLIE BHSL Dedaranor, poùcy SND a асма. ОПУТА^У I intended to be developed at m·? Ь$дг.п;г<^ of rhe psojec; and aiso at; as • Ά píojea monitorine}®«, T ÄÓS developed с>уег dss course ol ше pc¡?cr Į . ;*ic0ip0t'0ii!ì'3 - íeamŕ-íj Uom vw H>rc,otu% vVoíKma Gi sups aed me • ; Trsnsnajional workshops av¡Svv ίο ¡i î;av<ng s.icirasna^ie ürpacr ať-er

rbftprqect It das been rescea ¡n ser&a Cľech R^-autíic andcc;ir;¡3i : ; coündy Moídova and >v» bs tesre-d in èu-gana before being r?näisft3 in ! suīumr; 2D13- These tēsīs vrne н-.rendsd ¡o №sr me сзаЬкггу oí the rool

bot;? w iesms oí coment &vá%c!imcs¡ seipecî-s Ροϋοννηα ö;s rs*SEs- :πβ ; ' cíüéstöRsi posed у. riie мси. -т\ Sx- &·νά socie smaii слапдйп tu : üaytgaöOR адйш the tool -a# te jriarie.

, Lumes is coniüiified ю developüii] а-к:;, tool ss an ad for those лг.а Vv'S-n ; : to ì&tfAiy gaps in pobey aid practice ¡e';ared ro :Pe r;g!ns o; enriaren wirn ' íüuíüeöüai disabiiftes. Tire too: паь uesr·· ¡.isi-.sis&d irsto s,>; ¡argunges te ú \ wsi lie dissemsiate« viděly dfier being knaüsed. Scmepsivors. -з? curuc.t : crafts ßf tíie rad AIÚ c^drssemínatedtogetr-er w,îh tres reţion

Implemented P:ea¿s deščice ¡iie жмлт and aei/yeraa^ c? !"? fiCdO!)

Changes '¿J vVtíř tree·, t йгу vftiíar-c&Tiom ťne onymaî action ^ i cian"1

Describe arty variartce from the originai action plan. Describe how and v/iiy. provide •^stHication of the changers) made and impact

Dn project imptemeníäMon.

-res Wy

Progress towards socrai protecdűn and sc¡c:ai ŕíícius'on c? cmitjien Äífír mitìleC'ua; aisspriitres «r nat^nai pc-lrcyandpiociramiries üver cr<e durseюп -D! the psoposed projeci v-,ss rfarirseđ to De measersd m oach oí Ш- project couvrit« using ŕ; s Mwy cfé\eîoped лзе i f - Hvaí tj л t ген Í rooi рпог to and «pen cô»v!p!eson oí pscyr-cí aa^^jes.

The expesimental nature oř tns ρ: ojea meant mai iheseif-svaiuatio^ rool was úeveicpeü and improved over π;e ccusse of tne p>o¡ec? ¡ eflecing ¡earning about the pamcipñííon o! cn&iren vum íívieiíettua! asahdities ш consuitative-policy making processes The complexity of ihe many poircy ¡arsasi ¡cis fai undt-? íl-е 8KBL meant ih st such atoo) needed to coves ай of these areas and yet str; ñe practical. vanous drafts oř this tooi weto mail ea by lhe Nation ai working tïroups and each one led io further smpi o/enisms.

As the project evolved, ncvvever. ii tesáme desi ília! the Pssí measui e of the progress cf the proiect would be to capture the interactive dialogue and expressions of ooniior-s w-hch ¡ç řad enabled Thss would ne a moi f? quaiästľ/fe man quantitative approach co evaluation Developing a !oci riiat reflected bats qtiarøatee changes ¡N pokey and practce as да&Р ÄS quaisaiix'e changes :iur¡«g "he ascşact pcesartea1 a mąpr challenge non change tn approach was agreed.

Ths projet::? team decided tìianhe <AP survey should instead ac; as the mase baselins measure for the pro¡ecrs impact anei inat the sed-evaiuatim tooi should incorporale me experiences of the prnjeci and öe tested m each of the piaject c.ountt res pius one aaditi-xiai country The tool would be used atte? thepioecì, as a useful way to snaie andfmther develop usable indicarois of BHBL impieirientaîiori Λίνα-, can have ¡eal sustainable usefulness afte! the profeet and as a means 0? assessing the incision of сШ;еп wen inte^ectuaídisables in poiey and practice

following lîţpur fsam several Steering Сскшгшее mambeis aod trie Externai Evalúalo,' oí iħe proįect še π&ν iveb'based Seii-moniohng aiţcJ evaluation -ooi has Deen developed and íransíäted into five Eatopeai« languies

Russian was selected as one ot these iariguages because of s« usefulness and potential impact Η Moldova and other Eut oprørs neighbouring courøtes where pi ogress or. the í ¡ghts of children win intellectual dísabMes ай on deinsMirssooaieaiiøn is urgently re-qu,red ft is hoped fnat rhrs tooi wél oe especiaiiy omeíy as corniti «s across Europe must lepo?! to WHO ;n 20.-.5 oft me progiess they have fnade «ú implementing the Declaration

Thss tool w»li be made available on >he tamos website w^weamiumos.org arid wüi ae akísív disseminated and shared with WHO Europe ro exp,ote me possibly of the too: imm ENDORSED and promoted though tøesr net v.orxs.

Transnational dimension Has vou; pioiec! had a traisnarøris? dimensies»? ft

''es tío

Describe the tf ansnational dimension of tħe action ' To «ncrease nmuaify 0eneteiai .mrbw stips ie-anvfkj ¡поиейпд

fiar-snmcm! n-iÆt-seaor cooosrmìon and ¡n €<x,ntry coiteöomionof -.rakefraicieľS' ;$ tne third obiective of ME project AS such, the results oř lhe transnational acidity have been detailed m the fis st section of this report, A stBTimaiy of the main rransr-ational aspects of the project follow

To meet mis ubjecfive. as envisaged iri the Project üescnarsc/i, a Steesng Corrrrtinee was official·.-estabhshed aixhe beejnoseg ď the projad. Th=s commitee was made up of inteinaitciraJ experts vvho had been ievrlved ml· the drafting of the BHBL Dedaiaan, lapresentanves oí the prqect parrots, young people -·ΜΦ isueiiecruai ásabmes and fam êy membet s.

Tite copirmttee rr>ei three tsnes oysinq ше Ш» of the proļ&:r on each occasion. CHANGE otfs¡ed suppût? and пшйance to ensure thai the young sethaih-tjoaies wei e prepared aaü uvt¡ (he agenda ;лошй eoatíe metr meahingfui irrvolvement.

Steedn-g Commmee memi»rs provided technics expeuise and ао/юе ю the project team on fie ¡mpíemenaňon 0! the ρ ojea. "".·νο metiibers oř ine

Сотпшее piovrdeđ then íec?;n<cal supposi ?о Ма;юп«1 Working Groups as Exoert Mentors. The Бик!»-¡an expert menrar.. wrnis. па officially a member ot the Siesmg Committee. also attended the meetinas.

When implementing internadona! standards, much can be gained from shanrtg experiences aaoss borders. Taking its inspiiamn from tha BHBL Declaration winch was itsesf agreed by 53 countries. Фе TWIA psajecī set cm to ensure that lea-m^g was shared between í.he thiee countries. α d?d is UirøuQh organsir-g twe iYansnatwna! workshops '«nere seif-advocatas and of har rr¡e«bers of the tivea '^аиоод! Wcskaig GÍOUDS' coirci come iogetlv« ar?đ discuss process.

riie fri SÌ such workshop was held :n ño?;a r- ñepre^bar ¿o:;: and ?о;-«?-,ЕСГ on four key ateas: sharing and teaming íiom each othei. key elements cJ р-яку arid ptaoiCe piomoong child participation ana how to maks change riappesi.

The secono workshop rn Piagne hi January 3013 mauded presentations • about ih& Ci"'íö Choies s/erts and their -¡r pact on the children, of policy ; makes and on The pubke. T.*«s meeting was aaended by eight senior ; govemmen officiais and lepresensatves ci dis Еишреап Commission. as . weil as by Baroness Sńelia Hoilrns. Chair of both tne Steering convmiee for ; the BHBL inaiale and of me rwi A Sceenng Commrøse.

: Progress Derween the two svems -.vas very marked As rhe S.o?»a лси-ЬчЬор there ivere oot" paiŁ-iei and joint sess,ons. with serf-advocates and adtns workmg separately at fîmes, m Pragye ¡hese was no næci fût separato

' sessions because a common agenda w«h з сопапоп approach to working ; together iistđ been agreed. ?л advance of each workshop. CHANG £ worked ; intensively with thÊseif-advocaresto prepare then* toi the joint. SŐSSÍORS and supported them to preoaieand ifehver {heir presentations pídines,

: manes and simple slogans we'e used ?o overcome ian;ju,«jebamers and ; demonstrare rhs common concerns of ch-iiciien with snisifechiai disabilities

across the, tncee cour.u«s

; The transnational dimension ořmeprojecihas also beer: assuied-n ; the proiect outputs, each oř which bongs together the different national ; experiences mú pesspectíves tó а common summai of tóm ρ,ojea mú \ its »npaa. the demands of the chrdren and young people involved and common peispectsves on the BHBL Declaration. The publications and ihe

i seli evaluation tooi have been translated inro tne various proiect langiřaoes i pius Sngfeħ and Fieneiì. Погггатаг; and Russian versens hayo aisofcsen : proceed of the Our Words Cor Actons publication and ine Self Evaluation ' Tool io ensure thai tr.e messages of m« yroject ¡each as many people as • possible m those EU and г-.щтотщ eoumties where instsutíonalsation

ot cheđren remains a seitous challenge- ю pakcy makers and where рагшраюгу modeis of consuming cħktren wth snteitectvai disatiiiflses or: rnes; rights as triodeiied by this project remain in the« mfancy.

Partners or stakeholders ü We-īe there an\ partners or stakeholders involved in i -y(m fjU);ect?

P lease hst here all partners or stakeholders and debcfibe the contribution rħey rriävde to the Action Has the roie af any partner changed during implementation? U yes. please explain how and why.

Yes Ko

Karin Oom is a Day centre lot Re^aDiirtaw;« and Soc-ai ιr:telation of Ch>idr«n with Special Needs and their Families m vaina. Byigaia. AS a pr ąsa paßner. since tne begi-mfeiy of the project rhey provided rivaiu^bìe supRortto tnernpieimnsiiori ot tne project Fhay noipedía eswtMh a Child Participation gtoup by identifying сгш!гоп with inieiiectuai dtósbfhtíss, disseminating infoi mation about chrŕd рагосчзагадп initiaties and providing AOľktng and meeting space to-i child participator! acttvitics. iney designated vm saff to men-ibats of tire St^nny Constnstee and the Kakeoai VVOikrng Group, wno conlriPiitecl by providing their esperóse to the projsc! impen'fantatson and Nasî'ona Working Grotrp naoetír¡i|s^ Гяеу aisa facsíitatad one of №e sessions aí tne first nansnarønal Workshop

íitfpii'feannöomoíg/engíisW

Pardubice County siso s p:ofeci pàrtner. ¡s 5 >o>:rì аогтуйу ¡n the Czach Republic. -Arb ich is undfetgaü-g t sforni of its residerne «угл&г. ot ose? ',q¡ children wsth disabilities through ťne deveram snt ol comrnuniry based sei vices. 1 hey provided support wi^ pco;ee andconmPuted by ca:cgai¡Pu¡ a staff member to corünbufó to the wosk of !he National vvni king Group and by bi«ííifí.j partneisfiips -.viih г;«шш;о«5 and specist schools, Tney provided a working space for lhe tocai coordinator and supposed ho: m her everyday wotk. They aiso anendeo tue Steering Ооггнтикее murings. u «nouki ha noted that me project started síigntíy iates m the Czech Repudile due ;α a changa m staff ги Pa? dubce County ¿ince tne enyinai project pi opusai was drafted. It took fimo to re «stabi¡sh contacts and iosge agt eemonto wich new memb^so? staff

Centa/ za Prava Deteta ter Chitó Rigbis Centre ri tntMSh; ;s an Association đ СЯЕЗП«. founded as a r, on-party ало Кюп-ргом Association sn Serbia Lurnos does not have a ötanen once ir; Serbia "íhe>e;0«"e ?Pe Chiįd Rignts Ceñir.3 and curnos synetí a conti act ss paine s -.o tne irnpiementaiion cl the Гшпшу words --то Acuon pioiea With the suppod o- ?he oroject team ¡ŕ. Landou and a member of ne Steering Conama the Cluld Rights Centi - in-perneníeri ali of 'ħe requiert steps in рнуес? HtípíemenraiscRi. Thsy pj oved to Pe effective aid eîfioent by eta ¡nino eruca) potece.í сопитошги arche N um sì i ever го Pie wo;ko? Pie kanonai Woiking Group йлс! by !vrip;oy¡ncj a skilled processionai to work ai lhe ¡ccaí revel №¡ü"i children

гперщесг started th: ee motuos iate: man er>v&agetí sn 5о*1ж? dueto :ho ract tiìai Líenos ή «ci to estaPush these new eesmaas and agreements Pio Sefösa« ракпе: nad Deen identified r, me project desa ipiion).

hPp.v'/v/tw/cpd. u· g J s·

CHANGE is a leading international humar: rights organisation Oaeed ;n the UK. CHANGE employs ņeope ivsiP jnîsîiecîuâi rssafennss ю campaign, s un pioiectü. research ¡bsues, tíei«v« паттд snd cc·· produce easy read ! esodi ces about issues thai affect the !ks of people -ΛΙΙΙΊ .otekecaial tásaPötes, Te piornote ¡rv/cìvenient 0* seîf-sdvocafès sn tne »югеа >t was

ļ vítal diat they -.veie provided «vith ^"«mation wnjeb was easy to ι ead and ; accessible tor people wíh riteKecuai di^Híes. CHAÍVGE washest-piaced ' 10 facilitate this ^postám pece of toe ptaje« work and ei ¡sured that <ì\n ; pärtopatson ot young seif-advecates v.as sincere. As outhneù m section 2 of ; tħfe report, tj-fs cQ'iaJiorâîion -Můi C^-ange. wan not etws&geć· -n the cugoaì Í project descupībn.

hríp;iA.wŕA',ohangepeopíe orcfí'

Equality H.;AV öid yon r,)?Áe sure that equality consideíatioos •,vrás {ehm »nt0 accouni ¡n your vrørk'5 ^hese cae roíòíc· ro ejvsoiíoú an appropriate ;Η<Χ CI pei>pře in your i&a:n. ensunng tha ail aonvKies sse acce^Die ю m. nateng sure thai ai dimensions, in рге^аНв! îhe gender dHstensc-n. ·iveie taken ih?o accDunb-i your .VOI I«.

WoP-dwide ehiidten and young ţx-opie ait¡· mie^cma' ciísab-iií¡es are one oř the most marc,snaked anü disadvantaged groups ir, àOCíery. ('¿rowaig up in ¡nsúaitioi's ii-creastístiussegiegaieri rtom society ľhis nrcsect чтеого ;nduae ali enldsen by mak~*:g its acliví.es ncces&i>.&and ecbvery seeking thetí 'oev.s, ÄI every stage, we soaghi ю piovide equal opportunes toi boys aí'd ijirìs. Яотй chïören and enuđsev -,адт vatvi.K? соттипк-пьог asm aecessiPíiňy neeos. We paid poiiicuiar attention to ensuring tn«t crnhiïen к-лпд ¡n instrtütions f· ad d-.e prepa?atron tfiey need ю Pe sole to рапв:;рате fuíiy «1 'he emití pä!Bupat!üii aetp/ides.

Each ot the iocaì c.o-ord¡?iaK>rs paid specific attention to engaging -MIL·· those children Λ4ΙΟ weis less ms to parucipate ir iba group aaivisea doe to ш. seventy of tfteir dtsai>il(t№s. Rot exarnpie chiki participation acöudws for

i yixmger chiben vvitf; severe communicator! diffkülues v/ere organsed ¡n the ! Czech Reuuoifo and chidrer, m Bulgaria were encouraged 10 seetnemseives i as advocates tof those less abte ro propate, и -.vouid Ре of benefit ¡? lutuce Į ptojöcts ot th ts пашпз соиШ focus on developing msfíiodoťogíás to íüíqw k« : the meaijrrgfui perßeipation of chcđren wirft nevese intsüscaiai ot physical i disaPlií6s and ccrr.mürication diffcuittes Thisr-ugges-üon ^as aso nade oy ! theyoyrig saif-ađvocates themseives at the sscondTiansnationai wortenopm 'l Prague.

Page 30 of 54

Į ine composition of me Nagona! Working Croups provided opportunities io? fepresenrstîves ci vanaus ОА.СЧАОШН)? to COMAoute IG sooal ¡x·,;v;Y and

I decisions Tne Steering Согнгвпоо aso Oad « dresse mesribei-s-nsp of policy ·' makets, academics. crvii somt-/ experts. servce powders and herataanas ; Třie· sises rig committee meralmshspwas macie up oř ten .vomeri and we me,· ; tí on'! a? least seven different European iiariortaiiües. Of mese. three лен:; sei?-- advocates with ¡гкепесша; disables anđ a' least ono was a parent of a en;!« . a disaWiy.

. Asdesonped sa tne Pioţecî ĐescHDooft.themoi ana i>an<:" telom cńho : system oř сля? oí cmìdren hom а sta^deđ. institution-»asea model te-.„ins : designed around the individua needs and ognts c! ai cnilďen car be a : daunting task and "often ®e most dtftVcu!t aspect of such large scaie íefòrm ι is mafông a start," T h s preiset A-as tneetere always intended to ato the íhieeťountrses invoked to tanio a foundation io? Püther action Devono ;tte

. ¡¡mescale oí m-s relatively short ar;d smaü-3ca;s proset

: Child Participation: The p^ec-i estaoiishea a way oj seeding tne input ' of children wsöi sntenecr^ai ossabiíitíes ;n poi¡cy and practico by supporting I anđ enabling mos genune РАПАРАГЮВ -Lamos ÍS deveJep;ng А 'eng tenu ; strategy te bu ¡id on tue ptc-ţi ess arid acir/mes s-tarreo Py sie TWt A plajea anđ hetp to make úvere ausiasnaPfe.

The positive impact on me iives or the children. you^g people and pa? ens ; ¡rivoived in ihfs project ¡r a reiatsvsty sfiorì tune as demonstrated elseuvoere ' ¡n mis report, was something mat even/tody in voived ¡n the pre/ea tei? a • >wM оьидаши егпаш:п Anotaoíe îeattne nírns saeor-d rtansnationai wotkstiopwas t.nat it ended wröi a pußisc commtmientfrom alf of tie project

i team steering comnirttee members and nateci 'ЙОГКСН) group memPeas to ; cormnue supporrriy the л<схк OÍ the chiki participation groups after the end o! i №o proseče

: Bor. of the tumos- locat cc-otdinarors rc-cri-aoo for tn¡s proiect wili сошнше ' their '.vork as decicaxeü fuit nme chia райк*раРоп oscars sn ďse 5лаmos . teams m Prague and Вогга. i hen rotes wní dote ensure the susta;nabiiity ' oí the chütí pamemasron groups estabulen oy tre prqsct and to suppe;? ; these chloren and young people involved so have new opportunes and ' build on tħaif experiences tîOîTUfie proiect, ntey де,!! also ensate mat the : ieairnnş and methodology olma project ísoPycaotnted and «aed ¡n other

areas oř tu OÍOS vvoikwitħ cmldren anđ pdicy-maKsrs. for exasape iístenmg ana асш-g or; child!en's леда vvnea розраопз em-diee 'o? ute outs>de oí

• ;osoüitions or supporting cnsldren ro npt-ak out а· pää ic events, lamos ' iolenđs !o include chiidren чшп mote compe:< neecs ane comrnunicaoon . iffîpairmenîo n this л-ork m toe fut ure and ¡s developing a Véaiogy ίο oost - achieve ihis.

i The elisiti Rights Centre sn Beígrade ñas aiso cont.-naed io supporr the сЬ>,6 l participation group ;n Serbia s,nce tire ena of the proiect and nan nomnorand

to integr^aø tn;s group tmo «s future plans and pro,acts

in, ,îuiy ?Cit s i.utr.cîs oîStViseii toi aoioupot wo Serbian а.аоюи·· ВиЦ}ааая : children arsđ уоищ peojie mh inte:¡ec,;ual drsapiiees troo) this pmject, pins : P-m otiħe íűcai co-orű^ators and soms? parse:κ io take part m а ФЗ(ОГ göna! ι workshop in Swtzenand ors ca-id aanscípaston. t'histìverti enütied'COiidrea ·· as Acmrs for the isansforoiation o? Saciety' was o¡gan<sed by imrlsttveм ot : Change and the Omi to Chácj Trust. Th;s deiagísoon *rom die Turning words : smo Action project vveî's tne or,¡y pa-íícipaxits мпеНесиьа! disaSaütíes I atvd presented this pvojeet ar;-d aso -:a?sed awatenaass annon-g tn e orner , children oí he?«v r,o lOđuae oniídren \wrj; siiteiiectu^ ciisaMtfis^. lumos pians ι ш alce patt et ďas event agam next year and w¡lí work wsn tne -nqm-s^ss to ; ensuiô rf?at the event is accessßle as poss;bfe 10 children wín .mehectaa1

! drsasrtşes.

Pleas® expían the next steps.

C3-?V.:J Ш 1 of &4

in addition, ¡..urnos mil use sħe expertem:« ui mo ptojsci to >1ч>/еюр .ch«đ parrepaaon metbodoarøy tn Võidava. a couniryvvah an omgomg aucc castri demaiitutionafeation programme buí as vet даШ Istele -гмревопсе of the kj:đ at рагшр«(р/е Pv'tcy rnafeo g demonstrated öv r lus рщеа Prosea outputs werp prepared in Romanian (and Russian) anclwśi be ш^у disseminated än MoiGcva. Ch «'dien wíŕi disaùihdcs are cun etaty twng ¡x epate J hy Lamos in Ní0löövat0p3ftícspéa8 &! an smemaiionai ccnterencű OP inclusive education organised Py Lamos and ëte Moidovars h-'unsi/y of Fáucamn m Auiumn 2013. usr¡g some erf fie methods тайза ¡o rh Is piojoci.

National Action:

• us hoped cha? the-new ni«:?icíiscipiiriáťy way oí woik'ng, as exempiriied by the Нашпа! Working Gtoiips hnked EO cNđ paroopat-on groups. ·>νίϋ :eađ to siìstsinabte change· ш each ешлоу. External supporr ?or example m &«? form of future programmes irom the Emopaan umom fe« the maintenance and development of such naüoraS consultative structures ¡nay" De required.

These;'&m v,amnyot Heätr. ¡ias conwfaedw sustam and buüa o» ine «Qìk d the. project by supporting cis impmmentatioR oí ite nev,- Nar>onai Acima Piar, foi cridren w¡üi mislit,-c-uai esabììmes and me N^sonaí woiking Gioupstructure üi Bulganaand trecheen Repubke the ?Узвопa! Working Groups arucimes aiso Nave tne potenti». ro üe marma^ad

m Ву-лана Lumos ¡s a founding membe? o!' a nev« ошшоп sr.[Hied O!'¡iüi&'¡ 5ű25 which seeks to fe;ep dsr-siHutior^iissson aro crnki ngntsoi· the political agenda ät a ftme đ significam pccrøca· ¡osíabiiity.

The publications of {his project «id i?e used ;n aii mree countries to advocate for та fiűíics contained in me BHSi and by e>iьтюп. berief sočiai cohesscn m lnie MB the ocyaetsv-as of die European onion's Soaai Ope« Meü:od of co-o(óìnanm.

European Union and international Action:

in order ю ensate that. tit« sasasnapilíry of rhe projsci outcomes ÍS assumed: tumos has committed to formais/ engaging r. another European Comrasaon fundeei prăjea snitted "Hea·· our voices". This proreci {JUST/20il/FRAø AG/2735) is coüídsnaied by müusmn Ешоре and funded ą- De Fundame^aJ Rights progi amme ot Ешореал Commíssrc-n Oîvectarate Ger,arai lo· Justice Re optìictfing partners аг'е Binocħkl The Cedar Fs-jmLxHon - 3ukjä>!A QUIP- Л$5оамюп f а Change - Czech Пе puD!¡c and the ctøvn Syndrome Foíindaraon. Spař?

Thè mar, focus of tms project rs to gather totjetha expertise ·η chuci pariiCipation for chèdren with Hiteiiectua! disab-uiies. ro support groups of children in »>3cħ country to aď/ocaie řor rPasr rígňtr» and advocate ai ine European \тюп iovei for ffnprøvemienis to chál parycipaiìun poicy and practice. itísMCipedthattormaiiy shsíüxj ri-i« outcomes ol ГУУА through ÚÍ.S

: prewar? ariddïsssmûiât'ori of oytpots rhiotjgh theiwae Easopean networks a? tha partcipfgini] oiga;;:aaao;;s '.vai bori- ensu«e 5ustaŁ'!ai>% ar4 t;oaden the project's impact

А ¡опи semsnar targeting Fyropaart pG'icy· rnafcera vv44 Ре ощапязй sn Brusseísín ìalé autumn / winter 2013 to P«h shovvcasa the woik of the Turning vvofds глсАсиал ρ«ρα and üisa íDiioit ihe тш fasşarch o? ma неа? our voseas project ко good practico -л the ŕieíc oí paacąiar-on tor сШгеп wh iPOsUeăuai ú^abims. ChmMn ard young paopia fi om me Tu! rang Words >nto Action pfo<sct р-шпешге at th-s event and aia'í tvs 'ntegimeåir-io avió ma toyat<oîi activities of 8ie н-eai oüí voseos mö-jaet ¡a Bucaisaarid -.ЬеСгесп Repubiic. f·.1 aten а! -sena.nois m Bulpaoa, the Ozecì? Rapåiötc ann international workshops valí also take piace ^hich WÍH Pe ari opportunity to revisrt the poicy demands oí riteTurnng vyoi cis into Асвоп н auon ai working Grouţ>s.

Lianos av?!! aiaosoBkto engage at irs° appoppate >aval -A-s.h tne WortdHeaiij' Organizai son - £игоре to йпше nie psOjSCí outputs ard a^ptora -а/зуа in Ά'ηί-ch they can æ used to resivigotate and $típpon. oto ^ork oí the WHO to monitor and ptomota r$ ;mpSe;neaa[ton ¡3t tó &H&L Oeclaiâtion za oss the European Region This ¡eínvígoraiion is of partKtuiar importatice įivea the fact thai ai; european ccsuntries. mi ňave to report w tite WTiO an :hes implementation, ot tha BHBL Decsaiatioü a 20i5.

Pag® 32 c4 54

;

Lessons [earned and dissemination of results

Outcomes and lessons learned

Vil·# ¿¡eves raaat írnposiaatотсетиara.Pessæs ! aa¡ г κ,j h c«τι ihe асаоп

WM s; a; s ¡re ггпрадиопз for rei evant siaKełrddeis? .'CUCf ..Vi tkS ΕχίΓΟρβΑ!4, CO(T,m;SGtCA: ГчГоСГ^Л£П!ОП&./ Gcsä кч-ρί pdicy-rnakeľs; sociăi pài t-'?«s: apmon-raaka^s nrrakig n,ass raeaie. рглааРпа: nor -ciovv;:iū":-(:-;!!.ėj arusaisanona academia, ?os>-4vch asataîiaaa th>nk :anks arpare лаее lefeaan)

As oadined .n >ec«po 1 o? taa repoa. oves tne comae ot tre p:a¡.,tc? p;cQ:ass »vas .-nađe ¡n fünfte?¡ny ®e agîits of chorea »vith iraeaactua! diSäöriiiea η aap а of ŕo »ree cüü'-íiiás. This pragaass ca· be suairaaiaaed under Sie rürowaig tour oaîcnmas:

cstipcvÆsvrsnt oí chśdien ano ycung peapte líassupk mraarangluì ратараРоа

• action taks-i tewards impie?neru.atton of me BH3L Oeoaļaaoa

ebbaren and pauaç) pecaìa wsa ;Ще^есшй; diaaorticaa, po!k:у глакега and caá soaiaty "P.akePdders have --aü роайй? eapaaen:;esoi «oikaQicgeiPa! m new ways

• раису arid p¡ actcas nave osen ¡n-tiuencec: .ri each cptmüy

тг;е key outcome;-, ot UMS разред st« ao^-ve! kest axpíoasad by we ¡gcornnienciations ci ше cküdsea and voimci peap'e themselves. in třteií олг= words, as laken hom tře рийгедюп Oar Worda. Ош Actions'

1. Tije Вейег неаеР beim L,ves Dedam^n ;·>• vsYy и-.еЧ/; arc umcuc^L 2. ъирргльгф cacarea .rik1 young peopíeaapí атгекеогоа; OiWPáües w be

mvoiveci is v¡?fY /npoffacī. 3 .'nctiüii'g children ênc уоь-пд peoole ¡щж; eveiyoue ¡o ;eaa> rz-g&ne* 4. řVecvone· ;s iMeæpf. Ever/ с&.тКгусч Дй7а'ш P'ans musí ги a-/«

а c-k best ¡o >?acl'> сооой}·: Г.'>е /aosa αχψοηοηΐ nvnj 'У not й înece of pñpeívaih Aûiâi: on n Tne аюа? <гаро/гааг raap ķ ;,γ eveiyor-e io*o>k rog&insí го ,тйле redi charge >щ.>реп,

5. /; îâKës ít;ľ:e !o паш- fsúi đntnge íщореп. a /s .-/v.ooriBnt :o -nvoh-e såterns M evêr/irmg г/iař :s rfor-e Tiiey ÍWŮC; -yjppoi; to become-'smpmü.

6. /í is >jrpos:3fit kv eve-y-0,·;« to r/огк iogeñe¡. ;t ¡s жропж-! tħat pmpiů * no&& costing v:uh rjnoan snö murg veopie ľôb-e tħeъжегшпееavőskwsroboti;:,í-¡!h cnudren, 'ħey seotud De ι '-amm' and sappe* ied íc> dc tñis ·;· o/ k

8 rí takes larg to supçoa ctntfrm ю Гя? нг/ΰiveö artìgrox ¡n corñaerce. 9. Pjeno c ħikiwn wan oui eisãbiUv.fb z'nc-uicì ce ;nch;öeú mx· ľrďve а cńance

ю -.-¿a-k :oge!het:JÍnr> cfnklæn ivisi aisñiti&m.

Lessens Learned tn Cfiütí Participation

Tke foiìcwrr'u are a SOISCÌK-'i ci sortie oí ihe most ímpotfai'd lessc-'is ;^arr^d by ше proiect team r dë^ermg ttie cħiid ра!?<сшгшсп aciivres. Sonic of 're mahodsiissdriy-iriecsa.ii have в«еп creiated ¡n üie 0!-.:¡ne fesource 'Lï-tenrng Togeîhe!.' wiřňí.si noi an exhaustive «si otiocis. л s oped rhat this wì;ì p?ov!dê aseħil exarľiptec loNùQs and govî«nrnsr?s aüko as ìhc-y seek ño angage íTíeaniPcřjlly vVKň chiidrei ^di intaiiííc: Ü äi usahnite;;..

i. invoke children and young people in designing activities

Ул/eryone snvöwed Î!I tńe TVVÍA p¡o¡ect aąeed ?ħar rh π c-ati«: ¡nvoivsrnsíir of ffia children ar=d vOuag peuple n ike acts!«! d>3s;gn oi tke partK/pador acrwiues was kay. The actuai ахремег.са o' со-рюаиигд act:-.at;es tuilt k-sií con'iđPnce ¡n tne process aađ arse enctai-il diat tľie v¡ews axpíassea vve¡β yėf.ur^iy trose tdat taey ín-та -Aaated to anas s. · a tun':, pv,·;- e^sut ed that tria -««s expressed hjgki-gh-ed c/inat r.¡oíscies and p ¡acocea most тдуущ nfieded го cnange ia inse; tftaa' :ie?-ds. Sacaüsa tke acüvgea л«ге dev&cped aagedìPs with the chldrer- and yo;¡ag peopřa. the pace maicpcd ths? naeds and capacrtias а?к1 öuiit ap ovar ama ia a aasiaínaPie «ay.

Maiy aciiviræs focused on biiiiđsag oppostti.isit-s 'as ine сп-ю;еa to s^prass ?he¡f rhougnrs ai>aut their daaiy iävas, tħeif ursams anc Paai v.-orries : apiaüy these opraons være iaigéy about tħeii -r-drarduai esa asas Ovar tm?.. ¡a:>wevec ásense of gioup identity was ba üt up ¿snd they bagars fa express

Paga 33 o? 54

tíioif Qpsiüon;! and vVf~í?esfor ai· crtórm and youag peopre wti· :rucaeauai cíisatontíos- n ibeíf own соиптпеа ar-d a<or.md the «oria

2. Ensure adequate ti me to prepare The children for meetings

Enough «me Vvas given to paspare tru? cm dren and young people овю?е cvsry meeting at v\4i¡ch îhey might be snaring thesi аюлзчтеп othas. kanonai WoHóng Groups and Transnational Heelings wers orgamsad according vu tne ¿nviionment and stiuctuie rnos? atrac-pr-aceto íha needs cl rh e se;f-advccaaís sioï ft e conveni sns arai convenience οι ite aduli wo ¡1st. j

3. Create a supportive environment

A friendly envíionment. an inclusive «¡itine arid mm ooimcai гхяппжпепс are essential for child parncçanon Such a culturo change taws ume it requires ti:icieřStai-.d=Bp and a ccmmsņ-nenr ot oN revels tc salcie new A-avs of working •»Vilii ci-aáren. starörg vssrħ carera. families, professoral and poiscy makers

4.invdve parents, families ши carers

just as children and young neap:« need robe pn-pai ed to pintipare -·π -·&ν and inclusive processes, so must tħe-з famsiy menili í and caters. whose mia sn supporting day-to-day ¡JÍCÍUs?an in -hè eormmnnty ;s so important. Ti·e experiences ard oDservanons o? parents ~nd casara atxiur :"ηβ senerca mak children access and tre¡r own reeds win be virai m reform-raj séracs«·:.

"To be hatvani, m ¡ha üegsrui-ng [the p^erjsì r? er e conino cnły !n songo·' v>a¡r chitöf&i Then may sisìtea LO w сан: on ír#ir oa-n ana naeania varv ¡aíonomve «od engagea. Γνο of them pa ttcipmeđ ;n working а>що and řansra!,οοάί ¡veetmas fi'rhicħ v> as h&'oM as rday couki see tłm iľwe aie ¡rthnv сиш ppopfe vying >ϋ fíeip). Toese parents CQAÍ&SS&Ó ¡hsr ¡r iħs beo¡n;vrg ¡he/ лег& л ¡th us omy because of 'h&?t tívM-en ovi ;?on- they ά arm·:! co gei engaged in g öfQaóer sense • iot ah Шкиеа '

Lumos local coordinator. Bulgaria on parent participation

5. More work is needed to prepare and engage with children w<th severe intellectual disabilities and communication difficulties.

There ssa ask that crnioparticipation woík гаш»а«у nom forward rħe aaìdien who are mes? aöle to tomrnuraoate to tne de:? smení o' toose 'ess ab· a ш pã/Wipãie without suppen. Speaal ausiпюп \s needed го логк л-кП тоя-а ; ciiMren wab diaat-áüíes -mo faquire ¡raie Sime to develop their comrnun.caüor; \ skiiìs or io express 0p!nä0'~a. many or A^om i-ave grown up ;n jasiiaü^is •A'iīticur aösf^are mema! āuniulanoa or suppn;' so ara panicaiaày vuinstable. w iltį out mis. trey ask 'urmef ísoiaao·' aau soc»«! excias;on.

РУШГЕ Eīircļjeari Union fejadeű ¡nciaîrves oi THÆ type, snou;d SÔSK to oui.d expertise, knov^feđge and good pracisa Ü; iľ-is b&ú and aliorø ernxnjb arna for tnsm ш be developed Arynafśonaf government seeking то pur ;n praca systams for consuiîiag 'Aiih crnloren ÄSh ia'.eileaual disatelæes ':eeds to ; ' ensure that aii dikken wiih ¡r^aiiacrüá d!sa«(! =t¡es as ?nráiríad ia ihasa processss.

Lessons Learned ir? implementation of the BHBL Declaration

1. The Structure of the Declaration is Helpful

AS outlined in me very iirst recomwendrsion oftnecħ!:dren 4vv0lvac3 in aaa projecx tnose savošveđ found rhs SH3L Oőcüyaíion io be a useiui too, By expressing human txjais tei oaa зросзУе ia; get yi oap «n tan easy te. Q-.<ņlm piiontiés. ih.ft Deoiaratìcn lendsitseítwei; toseir-advoracyc-f the rypo explora by Ш£ praj#«, a is aiso rííia^iyaasy io narrate these ten pnor^os aito easy-read staiements Aiuoa the envidren wsfs atóa to uraarstand -as paoiaa^s, ìvhtcìi ¡hÊn øøvemmems nad mide to tnem Т!ю eáiBL íaeciaraaon (neroloa.· :esìds asełf well to paiticipsrory consultation prøcasaa^ itivo^ng ciaidrsn ¿-am. ittteitecwai üísabíiües ot ше tónd mased ·η thů praaxtt

2. The importance of ownership and raising awareness

a s important loi ¡ata! national raanan c-ęjhts agreements o* mis ryæ to bu wei: piiPlKssed so that the target groups .va a^a-e of rie corarn^-neras that f}¡er' contain sa raa tìwy can had pcixy makers ю тхонт. ШкЬоь! ¡ħ-s i

Page 34 of

proiect, many afino siakcľoíôäís. children, young ^opie and paienís rvotved •.votjïd rio? nave beeil aware oí to existence or at; ри <-;-bc¿ as a 'ever for pohcy f har,ge. F-ЛУГЙ irimahves ot THÈ European urvon conici seek to píomoce a.vareness aí such cuetnaoenai 'тшпал ogius insti um-snts aí mo naooual levei and provido supporta coundresto c-ui v р!аео ais-ainaoie national mecħanisrns for involving be rofteanes HÍ monitoring toeir ¡mpíemertatton. Τΐίβ Nations! VVofK'i-g Groups of mrs project couki projde a ri orlei for sucn mecnaorsrris.

Lessons Learned in Waking Together

I... Everybody benefits from ne·;/ways of v.ork'.ny

The project brougnttogether groups ¿'»tio had iute cx no e>:p«i<ence of o-odoog wegmei betol e. The ;.hí ci en youig people ano parems wora sfc·« to eypsass ?hei¡ vsè'A'â directlyto me ondey makers ar-d pokry makes w&;* adieto cí»w.üv acar ine >oeas of troso b-e¡'¡Gücia¡;e3 expressed r: tha¡r oш words, one» ¡P a non-forms way Th¡s íníorrrrsiryv.as (stosning to: ail mvoivod ane napęd •nose ("vofyédîc understand wnai tne mosi шоет ccaryjes to poney and í psactice should De in -'e tvoras of voo ch;-đter-"s owi: iecoiTirnerdatłons young people helped everyone -.eai n tcyetho-r.

2. bitNJ ways of working together take time to establish Į

Đesign.-fig a p«itc>pa!.oiy process foi dialogue between ohiioren v-rn :ntfei!eauai disainides snd policy rnaxeis takes time and prepa· аооп Tms design piocess should ;nch¡rie evetyhødy and. aa ídenoheu oy the cord; en themsefves in íhs¡r теезгптепааооаа, enough space and time ancuki ós grvento enaĎ'etnechídreii involved ίο rjicw m confluence Convc-rsey. ponev maker s aíso r-sed ume to adapt to noo-íradaona! v>àys of логк.од

Lessons Learned in National Action

1. international agreements need to be made relevant to national contexts

As. outlined i« Sections £ and 2 of №131 aport. гуш агоУуь.!пд ms natscrai poney eiwiionment. the national догюпд groups ν each ¡.ou'ury pursued CP Itetene paths to vry to miiaenee nationaì polity processes m hne wsb dio BHBL. This ïiexipiiiywas Importam and ensured înaspr ogress co¡.-id he mada ¡ŕ each country eve« dur^g а ъШ tor о-ест,

2 Public support is important

io each country. thech?d eh osca «vem sparkoo posftrve macia covo·ago aooia the rights of ctt¿'diyt¡ ν*ιίη meitecaiai dioabrüdes and each event ; cached ou? to tne commi,-nity as a malter 0? pnonty. As >ìoted by the expert mantos m tne Czech Repudile nat¡onaí xoon car; ordy bo- successili! and scstaioaoie if thora :5 püfohe support for ¡t and greatei awareness ci the iîveo aid ciai; enyes of chíiűien v.ïîh íotelfeciuai đoaimies.

"Of coasse, mge-sc&'bį changa m cMciæn s hve-з t cquuos n^mnai scïion expressed m iegsisuoo. oeī'e? noho tes ano the а/юоадго? o' i-esowces :>о •rnpiemer.t tħess. Sul ¡he rraosroí α,&ιοη tavarat &juùt arueusnn:, ίο? c.'vteeři diXi vauiig деср/е · ггхче$<;пр!у 'огй:г-.агу wes'"кв thed non-úszb&ú peers • oaorto? be clehveæ-a oη>γ or rnvníy now me ίορ ao-л·η ¡n C¿ech scc-erp Рсчоу push' niíjstòe corrpsneoied. %*<ì nxieeaanven t:y "camæunoyp;ah" ОгСН^^ЩЕхрегг Mentor, Czech Republic - speaking at the end of the project

Sustaneű púlase campargris snotžđTharstorft lift organised aooasîho Region | ю increase the vbiPíl'.y с-f poops wth dicabiüiíos m comnonsies and ¡arse- ; awarsRC'SS oí lhe cnyiwngas they tace \

3. NÄksnäi working groups benefited from transnational experiences

The two trananasona1 worksħoas provided vaíuaiío opportunities tor participaros to share their perspectives ánd s>:pet ¡enees orr itrpisOvsnt-'to the SHBt D&ciai'afton at ше oatsonar rove; \m'·· ρ ess fruir, sirma? coiinrnes As courdma across tne Region prepaţe ro ;opoo ¡o who Europe or; ¡hou rationa, impleíoentatjoi·! of BhBL >x\ 20iõ, натоег brums snouid he orąarnsed vii ere oou.ntrres cá'! ana re vom experiences so ra: and renew ihofí ccnmiiroera to . iíT;piemenhn{í the 8H8L Decision. í

Evaluation of tlie action ¡¿j y··», »«ernsi evaluation :ľ/ía /cv (.¿-siv-'xi siyevaiuasöi: ofine actio« ..J Yes- ΐΠΙ№·«ί DI:' ·ΟΓΗΐ0Ϊ> "Í

Fiease outline the key findings anei conclusions r~ """ ļ of such evaluation. External Evaluation

The <C\e. of che externa: evaiuawr was outoeü as fotiows ¡n the P^OĮOOI - O©sct«pB0i5: " An externai oo/fpuator is reoonreci : c enune ina; oijcchve ,¿nd _ :nőei3ei)aeoi feedback fo rho svojec; - ş promded Неон¡ghom. ЧВЯШВь • ШШЯШпа0 be-en ¡demised io fubü this cds for ľviT&o}ect. ШЩЯШЛьепаЬ^о ; independent nionsionng of irle aa&utv of ¡be proecî nr-cì dee ecP'eveœrn of • ãctwiiBs accorosng ю ¡be proreci oo-escae, ЩШЯШШ s 'sen-orpractsmw

ло?Ь signàr.aoi eţpsnence m boto poney н?епаа ano « mcuoding peonie : μ· srp ашща/jai clisaońues ¡n íbe pfenning process. ft>¡ obiecos-íty ЩШ ; ЩЩШШ ren es-gage cr.recîy mit: r-aweJ o-· vsoboaoooai acrøn ono c iviri -, p-aiuapat-cin activities trní. acra? as -m observei enei "anca! fnend-i to '/¡ese ^ activities ano ţa the Sîetyog Cопутиее, Evaluaron vres ae embeodad.

•nie'&cíñ/e process ?тсодпош tne piolet snauw evakseror ш> efore '• ortenden Steenng Cannnmee rneeenge го obseioe and make or-gang ! reconvmndãúons. ' (ÏVVIA Project Dascnpi-oni

; SBBBFaKeritjed each of me '-tees по committee meetings oř t? ι e pc cj-ec ; . both «ansnanor.ä! vcorksíiops ¿n Suío-wa еяс· Creen ftşpi.ibiir and ^so acs ; Äffh iha Serbian Natūrai WO; king Gioii;:- ¡r. Belade -e >лаз the! edos e . adíe to vsít aü oi Poe pfoiea caunrries once ЩЩ|¡pfov-ded ' feedback anei *CVK.S ai ea"H evem and ¡egnieo input aod suppôt*, "o ide • piteet team, не corauđed dss логк wrm a presentation ai rh e ftnal steedeg

committee meetc-g ir June 20i3. на finai tncug'nrs are dc-a^ed. ci ha own words, below

" The fondamental obaHençte so rħ>spni/ecl is. ao oio'pty desoobeoj m tne nue, one of ησ,ν m n;m me ·α· mts ζηΊ ïhçioac of oecwavons <гг,й conv^vns imo magpie and öemcn«raö(/ ænel·c-r-a/ h.-soks fa caiuren ж/ νουηα pBople ¡l'Uh inreiiect'jai s and гле>/ Дагум·??. Tbe ngpis anc ^akm

; base conmmeö-n v-e principi# of (xxpov.er<ng сРнле··· ítn:i ¡/omų р-зоре • mtë/lwJuvii riisnt^ues "o capirete te iteásion n~amíg aöout îtetr ш • -'s of íirrŕev-a/ue 'л:^н«г;17еу ге;гй;,-:- as vuvdson ?. pâçe-, il -'s or-iy л-ner, trese ι osas act as й pic-mtâ cr vrgţţйг ?ű s?/?ec!ive '¿¡е;; vriju» ;s -^ahseu. : i'Vhâf ¡s лог cfe-й-', a,nd'-vr¡at rh;sproiect bers orsdoovoi^eő ю q-/L>íüe and I väidate, »s -.е nar die ос.гчорепоп ci ct'Mien &ηϋ peopie shúuid ¡аокике, • НО1,·/ САГ? Шу SE NASI elíecuvwy апдщеР A~Ů Ю V-IÌE.!? Wim exaeny IS !/IE • added value in remns o' pnycesses or г«йж ź d/üü^í Cíóülí ,"jy ' íi>íS ínvoh'äpen; and *ľ>at "/pes of ¡ГА-теают at c· most ůíleeuv-e ¡n n mi

circwmmnces.

} Amdier cbãiierxps bæ beer, one of ¡гщщще. Noi VSÍ DIE QÜVOUS aifrersr-eps in ine spoken Шпдиаде of те ρρτηοφ^ηίο ÖLT те Шьдиаде

• aï cai'uieî. societies, rustonma. exaecral;ons, poitucs. Fading convoye • iangusge md ondersīsn-ūmos r,eio eil a í:>c® ¡eva1 w; *•< roe ичнг-пер-с-па! ' я oíkHiQ gioiios nâs consumed a comoderao/e armam or mne e.na en.enjy. \ One of the ¡'r?-r r eaksatioiB of íbese cimientes vv-ss lbe v-rďied ;mó ' sometimes mcmю;е<е undersmocrnQs of -mi peooie monger mey -nemt^v

'гшйогшaction piam', ibis ;s no: saVřVnp-obíen) tor ;ms oioįeci ¡be WHO : cieaaraïton uses tbe :wm repoaieďy but ooes not oía: úy Ш a "; Ì acíxm pían" ö end v/e bave io, ab^wn»? глаг ir sx>es r>cx се?5с to eoe meai«:

bíd la s дееегжМоп Ά ab евдага io pians, simeg>e<. grp.oes and me / escorces required ro imoíernen; ¡barn <I~-¡и rmy e>.<zî eo dirent -eväs o!

; suđe Cfgao.satøi aonmm οώοη anő :eyZi>eiioa

; Gne oí me bsnem of tne invevemení of crmđren ono young peopíe oooio . appear ю ċ* tbaí heng a onbđ aiQ>v> one io аооптмьсв;?. m, nncorrpiieoieo. : ooeeiiea aod mow ľ,ones; n&ps nm mote ¡е.-ц^у reea ю the obznng of \ smpie yet ¡uodaroentaí €onoe;o?s îi'sî ore qoickiy uivJetstood ano sbafed

net oss tìMiunui and mcMddoaitcvndfVies.

; TGOOÍTŐS THE, eoo O! itie ΡΙΦΟΙ HIERE ERO&MD a g¡ o:X OG seo sa oi ide need \ to ñnPsome .оюое> beyorár m.ei of doéòpa^címuon íbm conid adcauoieiy

Ρ&ζβ За ot 54

describe víirňľw&s being áscovweá and ^rdmmdħom näíidually and colk-cr.veķ Sonie of tne principios of co-prcductkur v.-ete aôte to t-nr-g cms

¡ coherence and rc 'valicate' VÍYWÍÍ ¡.IO rn rfm porr% r-: as hnginn.mg to teei m • some :л ays cndsfineú, aí unes eptienieraí anti concerning* nen livnkirņ í uhoat ï.ustaimhiiity and ц>е noeo fo¡ mach пю<еfuture ocveiopmem of We

foomoids airi achèvements gained

ín livsmode!. the principies of werking ¡n genome c-mtn№<hps, cf seeing dvtøw ami young people -v uh loteiiGoiual disaWities md rfttw feniks as resources, ss hungers af experiences amt ír&gnis míher.'Mn these ;ľi» need ro be ahrays ¡n recepì of lhe ;v tsdoni uni gmonnee OÍ orħntc Dung a strength to theptą&ets cotiecùve ¡Ьтюпд ond ю те h/lure drectio;ι

. This has been a sim ed and пег&ше process and the,· efure ;•! is onķ ÎQ tre expected a>ben чотешт$ w>tħ tne йепеШ ot ħmdsxM mat the purpose and а''геаюп of >be proiect 'nas in n?sr,y n ąvs ?iw?s ss ir piogiessed and ľne ending ņnint may <n some ¡rays de drffeieni to ihat which -.VAS opgineir/ expeeieй Yet (his >s perhaps che mosi importam coovibauon tixn me chiidren апаусипд people ana their famines hxve sæ. Thek very presence, ana cotìntioraùon has aíianed greater emioramn nnő'QU:<.y"r;it'n ou? angami iám?, япа concepts and лай? snapsü Sie aciones in eäch country and across courtines, in such s χ ay thai ťnei&is arguably a more neatthy and trdxisi рШогт of experience, of shnrecf knoć íeúge. o* neu- partnerships

; and ι eietiípröhips oi influence ano. above o¡t a girnter presence φ ihs nvb"C • domain.. ;ħa? can conwue ίο de i>.nh φα;' raid Strengthened in the roture. " I : ШШШШЯршю. мау 2013 ;

in adásion, >л\ sne wrfh the Pîoject Desoipnon an oMernai aud» cf the budgw and financial r spor. of the p-rojea took piace on 31 Juty 2013. тпе fesuüso? this sudit cöífiirrn ihm che. "costs presented л the ímanc-a! statemams as

; acairaíery recorded and eisę>b:e snd iha aii i oæip& been declared irs accordance with ihe agreement." Ths has been iKiuđed m annexe io ^e

; íilHWKíSÉ ! epijļ I«

internal Evaluation

in imev/eh lhe Project Descriptors, the following mtemai processes weie foilcwed throughout Ше project to evaiuaie me anion.

. R&guiaf meetings vvese íígíü deivvean F;cşeet мапауег. Psoįeci Cootäinaw? and Financa and Ađrmmssаюп Oflnreä ctecusstrg the йтч^&шепжюп o! me piaect

! · The Píoja:t Coordinala! bad regnia? ¡eieconievencei aad maetsncjs Aim . tocai CooidínatoíSin me veven, coumiìes moníDüng that aotr^ie^ \>-mn ас-гпд ' according to po^ct pian a&đ also disajs^sig atìy piaaìcai chařiengss

. · Planned and ad hr?:. meeörKjsvvere urrdermken berreen tre P;o¡ací : Managemsnï Team and members or the S«?e; ing Comrr.reee.

; · Тг-лее Steenng Commrttee meetings look place to e/auate me iiTip:emrøration o' me ue-įsa. The cummsitaa ůn»e ír.ne s durili í ne :i?e

: OI the project- They ixovíded {¿crnńcaJ sxpsiiis-ä ÓCÚ acä-лсе ю ibe projed ! íeam on the ;rnpien> emanen oime Project, T'wo rne¡ní.H;4 ot the Convxmee : pisicieü lhes? tschriicai support to Natior^ai Working Gioups as Expert . Mentors ifi Serbia a¡stí rhe czecn R-spuijiic and lhe Buiganan Ex?)«! Mentor

aisa DäítCipated ¡n these meetings,

• Tne three Expert Mentore pjovicad oivøomg æcnnrc-nl sup-pat to ;he ¡vosi-: of tne moonal Working Gioups.

13к]9,?0:.а 21:11 Page ¡7 ni -54

News/success/best practices we ase oery keen to hear aöout any success OÍ goad педе ffoiTi the actions that ле fund. P'ease use the suaca below to teil -us ac-ocii any syet" news OÍ ¡Í you •-ave developed p¡ anices that yon think others may vvai?!D№ow ай mi or coy id benefit from, Pi ease attach any relevant supportino ^formation or roatei iai 0! expiam Vüt'üre others can access it (e.g ^ebsrø)

Dissemination of findings

Adequate dissemination of findings and ies,-ons ¡s essentia! -n ensuong the Ev added vakse of me acoon.

Tbesefore. idease expiam and describe how you ir;yo:v9d relevant stakeholders tiin sn g ¡he action ала •writhe· there was any feedback.

Tlie successes and iearmng from the project have seen documented ?:• four main project outputs and various additional outputs eacn one tailored fora sightly duetem audience, They will ne subject to tre post-pi øjet! dissemination strategy and are summarised m Section 4 below.

- —______

; m я;1 rieserrunatíon, special attention voti be patì to ensamtg mar no cvid ¡s placed ¡n ha ms way by any extes na! wrim'tynscation and Lumos w¡ll acpíy ÍVÁ

• poiiciés ĪSI îhts a¡ea.

Gf,'»n the experimentai nay re of the work and the vulnerability of the cNidfen : and young peopte involved, we have taken mois üme ťnan ongs^aity envisaged in the project dsscnption ro finalise and puohdy disseminate me vanous outputs of tn ď probet so mat tney accurately ¡'effect the experiences oí the children arid those working vviţn tnem. m so domo. we aimed to ensure that mey wti te usefu; as possiöe zurces of advice and i;isp#arcm to ofhecs iong : afret the project ends.

! Diinncj the piojea. interna! disseminaiюп oí proiect progress nas taken : : piace at steering committee meeritujs naiíon&i working group meetings :

: andtransnawr-a) wokshops. The Cfihd Choice Everns nave, ;n each case 1

piűducedrnsenals, designed by the chikte^ themselves which лее | tncuraeci io lhe generai pobke After the end oř in κ pmect, representatives

' from Sarto an đ Bulgaria resented the рш^еа to parr.oipants ficm around tne :

world ai Lhe Children as Aaorsfor Pie Tranalorncarinri of Society Conference Φ : SwiLzeiiand(seethe conth-imty section asxjve ici moce deta^).

: Summary of Projed Outputs:

- "Turning words inw Action" β a guide to national ойппюд '.ohich is intended to inspire and assist civil society and governments in it sn slating the Better Health Better lives Ded,-«afrors -.voids mio nauonal action, :ts;s0 'eatures more infon-nahan about the project m each cc-unny and the «т-pact on, national pelees and practice, in the ongna; provecí desci Iption tms ws s envisaged as two sepaiate outputs·' An updated Nafrara: Annon р-зп and a Gnide to oanslamg the Bh'Bi «>fn Ac non. îl'«as combined ro nes· rsflec: the reaiitæs of She nationÆ action aspects af fte project and to summans*? ;

1 th« teaming io one doctírnent. Fsitewingfoccfcaok from stesi mg cornn»n.ee ; : inanPêis foliov^rig its ptesentation at she ónaí steering conrmitee ineetmy r<

June 2013, this publication ;s teing tean-sed уунпд feiçjust 2ûi3 with a vie& ?,o !

it being piibfciifed and translated st the aykimn. í

"Listening Together" pro-cides a ьипнпагу с-f processes. Naming and iows | used by tlte p;ojsot teams to nei p đeveiop an епонеяппет conducrce to tne parscípaiion of children and young people with mteltectuai disables. This püblicatior, wp. be avasa&e onine at Lomos' visite m Auwnin 2G13 and ¡s intended to offer pracftcal advsa atui «isas, >л coi ¡ espornfe to the Guidance Manual on the Participation of Chiídíen wrt.n íntsüe-ctuai Disaöilëies ňsted m chs projsci đesoriptron. in rji de; to make Uns fesourcį as usźśm aspossbe fot practitioners, r! will be a web-based sestxuce and v.nll be :»gy;a¡1y improved and adapted то Inciude new ieainmy and exp^rfânces,

; Our words. Our Actions" is an easy read Duplication wmen by clttfdion ' and young people -Aitħ iniëiectuai disabáñ-e^ and ¡ells the stosy of t.ħe project :

from tnei perspective, η яь-mmaftses mei: v.evjs on each of me ten pr=oo!tes of the Oedaration ard canciudes шЬ die« most urgent ieconime<ìdai«n5. : This report is for poüísaams. foi pa;erus. for people who care for chiidien with imsitectual disaöintes snd ÎOI chsdren and young people mih ìtteHectuaì ; dîsataiSres, to gÁře tliem »deas about how they can get »nvoiveci and push, fot change. This герои v-лС i>e Kipishedanddisi.^juted >.«de¡y at npcoi-nng ^ tumos events, it has been translated «iro Renen, Bulgarian, czech. Seisin ; Romanian ami Reissuin and edited tø ensote that rhe wngnage <s easy to understand, in the nriginaí project tlescnpoon >f -.'/as envrsaged to have easy sead versions of ah p;ojecr popications. On advice í¡om CHANGE, Ьол«№г ; ¡i -.vas decided to produce a smgíis Βδ,-sy read puoiicatioo vvriich captured ail asnecrs of -he project nofetbly trie chiidien and y'our-ii people's v-kws nn

,3/ó9hi:f¡í3nr:? "-age- .18 of 54

ihe BHBL Declaration. tneir key ¡ecoInrnendÄUons to ρmakas and the highlights of tne project from tneir pe-ispeaste

• Self-evaluation Tool; A new -.veb-based tool has been developed π 5 PROGRESS Counîiy languagesandari be ¡nade available on the webs?» m autumn ,?012 when írnatóed, it will also been ¡nade avaiiaide in .Russia?? because of ine païen ùaf impaci such а юо! could »ave in pie-accessrœ aad European пвдИрооапд courńnea. ima too; s mended to be userai to avs society, academics and governments sn assessing ;he« соилауа level at impienentaßon of the BHBL Dec;a¡aoon. ü aisu features examples øtaooci pracśice lor each of the Declaration s pionti-as, f ne fina? product ra a result ol input and feedback ň om sien-ring commnìee rnerrbenā and tne externai evaluator Foüoving testing <n Serbia, Вшдапа. the aíech Repuba: and coat! o: coti r,« y Moldova, final changes are Ь^щ made to the tool during summet 2013. P;g-a$eseetne soa&l exp&tnmnation chapter w section two то? пю:е aeiâii

ir; addition io ihe mam outputs œtained ateve, lhe 'öRowhw; publications and outputs hava also bec-η produced ш showcase differ ent aspects öl the prqect and -Λ-«! also be widery disseminated ;n Une vwth rhe pest-project disseminai»?·, strategy dimmed below į

• Once finalised йу the Sedran M.nistry oí 4*akh the h-aaonal Acu on Hai ' produced hy that ívamna· working Giono wH he upinaded e^-to ihe Luinos i web Site.

- Videos asid anrnatror-spioducea rkiüng tne project vvtn he svajade 'er rae »«tet public ai Lumoa vvebsie. 'Pte »ibjects of dseae íhros aie as foücn-.s

L. Suítjanan parems spe?¿an§ ahauithë -vepa-a oi tae project o-n in el? cuadren and what the BHBL Deđaration means to meni. (i'his «asfirst shown atrae transnational ivoiksnop m Soha «ι September 2012 and demonstiates aie impact on parents oi the project)

2. Czech Raţionai Working Group's priorities fos a rational Action Plan. (This was shown at the tnird stesnng согптгпее rn-iietoo in Jure 2013 and đenioastrates away af sharing poíicy demands in an easy to understand -лау)

3. Voces of einlösen snamg sfies dreams and snteipietaüon of ňe řIgnis in. the S И Bi Declaration. (The «vas íü'Sí shovel ax the third steee-iKi commi-te« шжд m June 20 i3 and Шк< pictures da-Mi öv the chilien with thorr voice·';.)

4 A film maűö ¡aya'-oca! co-oidinat-ai in -the Czech f<<aputäi:c and a chad "Mn as's íp.tsiíeaaá йййЬггеу showcas-ng a øanieipatree approach to ahanng tae voices of children with communication difficulties. {Tas 'naa yet гл be shaved ; beyond rhe project tean ) |

: 5, Д fini showni) the Crech en ild Choice event feaiuing mteív¡e«s aatíi participaras aöouí mea \ne-m ol rhe tv/IA project. ; i'ms a/as snewn at tne transnational tvntkshop ir- Pfetgae tn Jaau¿iiy

6. Tour tí Orearos /Cháđ Choce ¿u-ent Animation í'irs fe-aunes the actual пя essaies ré cmi-dren mvoived in ťie p; aferi and is vacad by one of tha Bu-iganàn children wnoiookpaít. íThe ¡s oetnes í¡n®sed m August 2013)

LeaHeis. oosters and general advocacy maie-tíaje vveie produced in eacn ¡ country to supp-ori aie messages gì the c'aid participation actívales ane; c r· sid \ Cho tes everts advocating for ¡né nghts and needs oí i'uü rcieSior, tor cn-rdfen ι "'Mh lateíiecumi điaSMiaes. Tn ev 'were svřdeiy đisseranated at each i Mc, Choice Event. Examples of these ;naienis nave oser ïeni to the Líimo« '"trice and where possible examples have aeer; sent together with !his teixxi

A posí'-projfÄt dîssermnafion síraíecí·/ is Ьеяк) c^siofÄc1 ю use rese proiect publications and outputs sfrategscaiíy, This svii! I^egrn in earnest with me '-au-xh of the project >mb %i!e »ï sepeernheţ 20! 3 atad conaraie ',v«h an ev-en! m Siusssís. ü.nted to the Hear octr -haces pr-ajed. tatocatraj právyymakers iftí.ev m tne year (See stetson ô shove ιοί reare deta«}. Fimftei events ¡ti 20:3 and ; ;-:üi4 will aiso be used to disseminate the pubSnaaaors ¡o a .vide audience.

• September 20-13: Launch of project web pages with ail project outputs

;:;os»'aci3 гап г'аде 39 ot 54

Τ he dedicated ·Λ·?ί) pages wsil noeta«! PDP vekors of each af the c-^cpuis-<n aii -:зngnege venaan and luiks ю o?e Seit Svskrasoí; Tccŕ r. лчслие ířmuuages. it eothd. subject io dsscur^onsvvftn WHO Em оре. aso pctentraHy serve as a commi рогд of ídarmatipn fortne :repien.entappn cr the SH BL snrøjve in the future. Tn ese weú pages aie eunonpy oéng dev&opeđ ivici оа» be nested en she Luinos vväösrteivAvv.v-eaiekimos yp

5 November 2013 (Date tbc]: Turning Words into Action Dissemination event in the European Parliament Srussda. (Linked to the Hear our Voices EC funded project led by inclusion Europe}

This event vvoy be organised to snare aH oi me project outputs ítom Terning words mio Action and target European poire v makeis :t <«<! Pe a ionit event íogefhöi with ок.узюп Etiope and aiso ínuech rh e mp:<a research oí cnex FC førded pioļea "Hsa? oui Voices" wo good practice h cMo рааордаоп i-viih chîtdien й» sntoPectuai casab^.ties í.umas ¡s îonoaliy conaboraüng wich •jus prDţea to ensere os broad as oosstbve d^sernsnaoon ci th¡= findings ai ¡be TV vi A protect snd sosrawahrihy öS me ieamanj ¡ses ti« continuity section above for more information). Ουππρ 201-1 onder ms 'Bea¡. oui voleos" project, еегшпалз on the oghts o! chairen йй intelectual dïsaorirttes Λ« be planned in Switzerland, Brussels, Buíqaoa Czech RepüDiíc ard Spam TV.'ÍÄ mareas wii also te widey dísse¡rirna:ed a? these evems. il o eanngfuí padtDpanon cao be assured, enripien vėio participated m oio projscx w¡íí Ьа supported by Lu rios :.ņ contribute [o these stents.

. S November 2013: From the Kennedy Law to the Sariin Wali; Enäintj trse

instrtuiionatisätian of Chiidren. European Parliament, Brussels :

TЬ is event wil; öö co-hosted by LUÍMOS suci the Chaà of tne European Parliament Qrsabîiify imergroup Adam Kosa t'.EP. This ever:? в mended to mar k the Bum annívcrsasy ol dr e us Kennedy ¡aw mat Pegan w-з de^stŕU№nansoi»o psoc-ss in pie USA and one year beto? e the 25th amwersary of the fail of the i¿e:!sn wail, vwo ssarked a wave of deinstcufionáfôatícn aaoss Centra &r.d Eastern Fur ope. it irsaongfoi paitic'ipalioo can be assured, cħdciisn >vho paitbpawd ¡n the project -¡val Ре supported by inmos to contribuie.

-13-15 November 2013 (Date tbc): Lumes and Ministry of Education international conference on met usi vs education, Chişinău, Moldova

Romanian tand Russian) ^iguage vestons oř :ne project ptoiicaoonş -.«ľ be deserom atad Ch¡!a;sn vvsi be ps epared ano supported to tako part in m¡s evenř ίυ sřiovvcass còrd parücipäßor? oiediodoíogy.

• soci aj Média: fh и PAO evems m Brusseis wt¡s bo promoted on socia: :»s«3ia coup!ed wstħ a strong meosaęie of the i?npo:fanoe of onci:r,g №t? iPShŁitrona.KsaKin of aoidreo acioss Dxme iun-,<.ñ η as aoce-is to a Sigrof'caoi üUfnber of fofcwers aitd supporters on stoaa? nv-üa a¡ouno tiis wond. roí$ люийг! ensuis an Korneciiao oiouai ¡eacii ?ot ara pubocaoons aod me οίοβί project oPîpuis. i

Other opportunities: t.urnos rs a founding n-emoer oľ f h» Boigař-.a- coa^tion ļ Chėdrer· 2025. ilie European Expert Grwp on [he г-аггшоп fooni i rs? aotico'-d ю Crømur,itv eased Care. '.Pe-bNoCrTF OOobai Рагяеrshtp śc< the melosi of Chšdren vváň Dwaötóues hí Qeveioprnenr ,τ-d раРс^аееs з* ο«|ο·' cow&trces aođ su tornes asour.đ the -."/oPci Every a^ïiop^ate oppoouniry vvtP be take« ю d'ssemŕnate the project oMtpnts at these forums among the ^her starei·oío^s involved Specs ai «¡тепгю-г· ^iii also'ое pad to seeking an opportunity with r.e vvoiirf Neaito organ¡zation ^leretPe aripuis and amones of this pioyoct coord be {ornia^y and pubiKhy ptesanted. Th^ řenevoed focus on the BHB; Deciarat ron oomđ be pariiciiiarly ta-nely gwn Ц-a; countries ar e due to report to who ost their rrnpiernemauon of tne Đe<dai aáan :n 20:5.

EU visibility ¡r; the foun of the FU >Щ and tne appropriate te>t »ss beer; ; assured a aii events ar,d so ah родее; ptíóoícatsons Vh at the ps ojoot ļ -.vas fundèö py tne£oropea.n ünron was йео annoy need a? ¿vi,saponai : and liănsnaaona: meetings and farted on meetino üccomentaüor Alf oommtmcatäootn inc;ndiog the «asite. ;Л-oieapy indicate taar toe soie tesooHStbiìity des ootti the Pene^cary and mat the Союткхгоп is noi responsive for w y uso that may be made of the .rhorroatioo contained inereti.

Page ¿ú of 54

·>1

SUMMARY OF QUANTITATIVE INFORMATION

Pisase note timi quantitative performance information must be submitted m relation ίο ali outputs delivered during the implementation of the action grant

Were there any REPORTS (which inciude written • i i Ves outputs such as reports, analyses. studies, Γ Į No rev;ws. manuais, v^oriòng papers, tooi kits, etc,) produced as part of your action?

Toial number of reports : i4.

Piepse provide the iota; пштк»! o? independent •лт.тге« oütpisiï. lússpecoveof whetřteř tlseyvwe osisíshetíof not An output »ođuced m sevŕraj 1 spaces counts ss ä <®>j» output,

'\qh üQ/лЧв lha lota! nuiTibe? «iioihe subcategories movkted acccrđr-g ro'he-wste« outouf's p; wary objectie A Sîtigie vUípíit -nay fa:! :mo servei» cafógoriesfe.g., asmdy may aim atprodyce po»cy ambice anđ af žnesaiTisiimeto a<möfy gcodpiaaice).

Reports mmt-ú at providing policy advine, research and analysis

Reports aimed at identifying good practices.

Monitoring and assessment reports m the implementation of laws ot policies-

Scope of dissemination she imports béé» sesvc-ry GsmbuWiP

Total number of material copies distributed

ā v'9S NO

Reports aimed at the development oř appropriate statistica} tools, methods and indicators.

IO®

Stesse píovŕáe a vx'à annu'aíWô 1 Й"й

EU leveţ poiìcy and decision-makers

50 Nattonaittegiomi/ S iocai-levei poíícy am decision-makers

3D

Socia!. economiei business partners

Civil society, NGOs

Academia, experts, think tanks

90 Medía. Journalists 90

if the reports have been published online, please also provide the total number of their downloads by unique users

90

X3C)ā2 0Ľi2Li? -'age 42 oí 44

information / promotional material / website

Were there any INFORMATÍQN/PROMOTÍONAL [Ą\ YSS MATERiALS (including ieaflets. brochures. RÍO newsletters. websites, articles m media video material, etc ; produced as part erf your action?

Total number of pieces of such f information and promotional material

.-íeasfe pí4T/;ŰS the COIAI numba' Oivasien

.р^пгижюп ая^рц^йю« maie^ai-s «i&spsct-ve ^ίΐΐ'βι ċo?m/tyofe ol putó.imng (video &;ее?;отс ;IOCYM&?4. DÖNTETI ДА Р&Р*Т, BIC), AA AUCPUR p:o-;feíce<í m s?ve?í3l ísnyuaDK. coimes as s «-«'¡aie

Tetai «umber of printed materia] copies Í .ICO

Number of copies in msy-to-tead language for ; disabled people '— — ~-~

Number oř copies in each language

Language -- SELECT A IANGUACIE -

JF ENGLISH - J tienen

GENNARI : ORE' LANGUAGES

Language Copies : --SÄ&O.AIANPÜÊGE-· : J ER.GÍÍSRI

4 KERIIN <¿E?¡"NAN oner iaoţşiiaoes

Languag« Copies •J; • - SEÍECI A LANGII-ACJE -- | Ľ00

CR;(|I¡T;H 1 - - -Π EN C ÎI --»•¿ГТ-ЧЛ

и ' 0MEI ÍAR«3'.ÍAGES

Seepe of dissemination

ř>!í:xí dea-śs troldene ratas' numfoö of Φ.* dßs.am«aiöö copiés oi mess-mateliais \~.ų- pwrt*.'í/puL4isr«¡copi2S ;ii--,í!iŕ5ufôtí го уош !.a¡a« -audiences, numtø t# d'jwnlosösoí ŕb eSectiûn;.'; copies, pußisbeti on webs*«*, mmfe-f o' unique ;о VC!.." TdrjnöU<ïC-:№Qa'>mv"!\?J· ^йЬзЯСКз). 3Κ,>,

Tota! number of materia! copies ; веда • distributed

National/region«/ ; ,^0 : í ocal-level polic/ тй '— — ' decision-makers

Civil society; NGOS __ ; ľiíJ j

2vi-íevd policy &nö ' , -decision-makers ~ — '·

Social, economia •BUSINESS PARTNERS

Р.ЧУЕ 'C><Ã 54

Academia, experts, i Ii{7; Media. Journaliste think tanks "--··•

Total number of visits to websites related to information and promotional (e.g.. the website of your action). The »/stage no. of unique visits per month during the reporting period.

Training / mutual learning

were them any TPAiNi^G/MUTUAL LEARNING EVENTS (which melude various trainings, peer reviews and other forms of mutuai learning) organised as past of your action?

'.ij ve3

Number of trainings -sessions, peer reviews and other mutuai learning events

Total cumulative duration of these events ^ fiabe <мп-· up du< ali-on :>i lhe above :.OP«erted into tuii working day aqu»/a*er>!. ? e . 3 ¡'oui?. ~Qt «ya;npÆ, i rotn-riay кшгщ (4 íl«ys) ami

hïKi.w iounrj-íabíe aiæusston ;0.ċ- ciayįi ¡»suif in r.^tïîi c.ufTKiìaave đuraiion oř 4.5 days.

Number of individuals who participated m these events

Number of women among these participants

231

2W :

Survey resuits

You-.verfe asKStHDCany oui asAust on-fte-spot participais ááüsíacéon su-л-еу te-f -each- e/snt c«ç;ar,íseci. P'ease Į ÍÄilítS.

Event

Title af the event

Totai number of participants

:i\ thy sor*oy

Tf&r;¿na!.íonai йо!ksnop

63

B A -Total number of participants ! responding to at least one compulsory question

r-.<?>;r p¡ease tepou q¡i k;;paj^!s satisfaction cètained írom sise sta-пcfatdeed q-jes?¡orm3ir«.

Did the event match your needs?

Share of respondents having responded as 5 "yes, agree strongly", per cent

62 Sfmr® oí responde ins having responded as 4 "yes, somewħat ayves', psr ceni

ĽSÔ

Did you gain relevant knowledge and information?

Share of respondents having responded as 5 "yes. agree strongly". per cent

Í-Ü Share of respondan» («vuig responded as 4 "yes. somewhat agree", per cent

Wiii you be a bie to apply such knowledge and information in your work?

Share of respondents having ¡espondeo as 5"yes. agree strongly", per cent

Share of respondents having responded as л "yes. somewhat agree", per cent

Foüow Uø Tfāii&n.ffiûnai WORKSHOP

B/enî

Title of the event

Tomi number of participants

Total number of participants responding to at least o fie compulsory question

fÄ'äs« sepon on parixipaussäfislactto« rèt&jned frani *ħe srani^sedque^onnase.

Did the event match your needs?

Ġ5

37

Share of respondents having responded as 5 "yes, agree strongly**, per cent

Share of respondents naving responded as 4 "yes, somewhat agree", per cent

Did you gain relevant knowledge and information?

Share of Share of respcncents having — respondents having responded as 5 "yes. responded as 4 "yes. Agree strongly", per somewhat agree", cent per cent

WHI you be able to appiy such knowledge and information in your work?

Share of respondents having responded as S "yes, agree strongly", per cent

Event

Share of respondents having responded as 4 "yes. somewhat agree", per cent

Totai number of participants : 26 '

Toiat number ol participants ! ;« -responding to aí Seast one compulsory question

'•¿их? piasse ľ spo ft on participants saiisfacîiùr; oo? &?ied from the štanda1 osseci quesnoRoara

Oíd the event match your needs?

Share of respondents having responded as 5 "yes, agree strongly", per cent

Did you gain relevant knowledge and information?

Share of ' ' ; ) respondents navi rig responded as л "yes. somewhat agree"-, per cent

Will you be able to apply such knowledge and information in your work?

Share of respondents having ' · -responded as 5 "yes, agree strongly", per cent

Share of respondents having responded as 4 "yes, somewhat agree", per cent

Share of , respondents having '· responded as 5 "yes. agree strongly", per cent

Share of respondents having responded as 4 "yes. somewhat agree", per cent

j other information and communication events

Were there any OTHER INFORMATION AMD Pp ves COMMUNICATÍOM EVENTS (which indude various Η uo seminars, conferences, rotind tables, networking «•yents. etc.) organised as part of your action?

Number of information and ¿ communication events

Тога} cumulative dotation of these į events ~ .-'»ease surr, up ć-jtasjor. ot fħs -bov? ħv&rs. ORRR-ZEN-SD ;гло 'uli -AÍOÍKÍщ day ^QUWAIERS, LŁ. S houiS. - or example, i toui-day !¡air>sng (4 days} ь?к1 L -day ..ounö-tare điscas^ioa (O.S day) sēsim. m '.o'.ä eumuiñi'ive cìurason of 4Л days,

Number of individuals who participated ' " ^ -in these events —-

Number of women among these : .so i participants

Survey results

Y->j «-srš ask'eci so cai.-y our ñ àhíM orr-f :â-spot participants' satir,íñc'jcr, suivšyíor saen sr^c-ni Oigarr.seđ Picase гер<л! c-п m<ş чнгч-еу ; ESU·«

Event

Title of the event

Total number of participants

Total number of participants responding to at least one compulsory question

\р.ш ргедзе report on paii'apdrïs йг«я'асюп obtained *rom tne Kardas đ?sed qus«io;ira>re.

Dici the event match your needs?

Steering Сшппшее .«ееш.д

respondents having !

responded as 5 "yes, agree strongly': per cent

Share of respondents having responded ss 4 "yes, somewhat agree" per cent

Did you gain relevant knowledge anđ information?

Share of respondents having responded as s "yes, agree strongly", per cent

:>O Share of respondents having responded as 4 "yes, somewhat agree", per cent

iC

Will you be able to apply such knowledge and Information in your work?

Share of respondents having responded as S "yes. agree strongiy", per cent

Share of respondents having responded as 4 "yes, somewhat agree", per cent

2 ü

Even r

Title of the event Steenng Согпгпщзе

Totai number of participants

Total number of participants responding to at least one compulsory question

25 ·

IS

н~гд piease «кюп on yartïcms^s satisiac;«.® ошапесНгет tne standardsed questìonr-Me.

Did the event match your needs?

Share of respondents having responded as 5 "yes, agree strongly", per cent

Did you gain relevant knowledge and information?

Share of respondents having responded as 4 "yes. somewhat agree", per cent

Share of respondents having responded as S"yes. apee strongly", per cent

Share of respondents having responded as 4"yes, somewhat agree" per cent

УУЩ you be afole to apply such knowledge and Information in your work?

respondents having responded as 5 "yes, agree stromky", per­cent

Event

Share of respondents having responded as 4 -yes, somewhat agree", per cent

Title of the event ; ^&TOfi«y/oíwngGíOupmge:ings

Total number of participants : 37

Totai number of participants 32".

responding to at feast one compulsory question

hu>-T pieacö 'epon ou p&¡nc¡pa^?s saic-facdof. obtasted iiom the stai^ianlseđ quesvom^awe·

Oíd the event match your needs?

snare of ! ' " -y i Share of respondents having respondents having responded as S "yes, responded as 4 "yes, agree strongly", per somewhat agree", cent per cent

Did you gain relevant knowledge and information?

Sbare of - -r-c j Share of respondents having 1 respondents having responded as S "yes. responded as 4 "yes. agree strongly, per somewhat agres", cent per cent

Wí!í you be able to appiy such knowledge and information in your werk?

sitare of ; respondents having s· responded as S"yes, agree strongiy", per cent

Share of , respondents having L

responded aa 4 "yes, somev/hai agree", per cent

Steem'j Comm-ime røsrøg

tvm\ Title of the event

Total number of participants

Totai number of participants responding to at least one compulsory question

idease ¡epoit on participants ^¡%;'б»сиоп ^.нгипеи Crew īfte staccia clisad сшейдаг.&ие

Did the event match your needs?

20

Share of j responderos having ' 'espomśsd ss S "yes, agre® strongly". per c ent

Share of respondents having responđsđ&s A "yes, somewhat agree", per cent

Did you gain relevant knowledge and information?

Share of j " " CJ0 j Share of respondents having - — —J respondents having responded as S "yes. responded as 4 "yes. agre« strongly'·, per somewhat agree" cent per cent

WHI you be able to appiy such knowledge and information in your work?

RESPONDENTS HAVING responded as 5 "yes, agree s-rongiy". per cent

Share of respondents having responded as 4"yes, somewhat agree", per cent

EXECUTIVE SUMMARY

ϊ'ν'Φ 5 -лъч; s disseminating aH =as;..tòs дааюай and outputs dsHvated ondeï tne gi am agiearnent ш oonetaanes a¡e reauosiad to provide ari E*ecua/e .Summary which vall be poleei an the wabsñe of ö: e Džeaorate-Genemi ka Employment Soca Aįrairs and inclusion.

coon a seasoned and duly suhstamiat-d request by the beneficíay.. rhe Commission may а^ее ro forgo such pupily. й düsdosofe of sne .nfoïnvsiion indicated above »να.; i d ¡'¡sk саиркнтпагх} the aenriftaatys secimty α projudicnq ms comme! c;al rreiests.

Sarn «summary should Ъелпзоп ¡n English, κ should ae a staici-alone summary of tne action s-nfj as implications mus ¡srnazi te wen •hougń? out and presented as ¡Í nay œ a onщт CĘpouunity κ publicise yonr woikand уош organisation.

Short description of the action

A COV'DSS đeOCHOtSDO Oí ΟΛΟ C.ö!":?S>3 if! AtsKjO ţha ŁCi-or·· -Aas can^d uut. rhe target yio«p(s> of the ac!!í>'· as &еУ as the key activées and deliverables.

i-Т nage гнзхнтшт

Executive Summary · Timona Wotds soto Action: Елашпд ¡ne Pigius ara' indfjym oí Ciaren -,.пг. mteihrrjosi Dsshéues ;r< Eu/ope

Name of Project: Гишета WADS INTO ЛСРОП (TWIA)

• Duration of Project: ¿9 BeproTöer 2ϋϋ to .S June 201.3

Agreement Refe« erice- V3/20¿L0i&¿

• Application Reference: УР;201СЛ;С-?/Ш35

• Lead Agency: unnos .-oundason

Partners: Chad R'.għ'a Cente/ Cama? ?a osava deieta. ЗКРД. -aa-r Dom PoundaciGn Bulgaro-; snd ^aidutwce Сшпгу Cz«ch Rocubic.

Summary

Tľ.e TWiA project brought iacje?he¡' cíaídseo and young people -Miħ r ÍS¡ i sotua disabilities. their parants. poney mateis aod health arid eoucationai pressionais in Buigatsa, trio Czech Repobüc a t· d Serbia wíľ· the aro or ormçp-g me vVofid Hesŕih Organizator» з Settes Healin Bett« ¡.¡vas' -внви Deciaiaoœi и 'ile tncougħ maas-nyht! ¿¿i« efective cr ¡id оагшраооп activities and outcomes.

Acknowledging the пш;рр1е discnam-anon and exclusion faced by children with ínteiteapal disables across Etn ope, ine ВНЗс Decorador mofe on the nynts contained <n the Convention on the Rights oí the C::ta (CRCí and the Convention oo íb?; Rights of <"Ч-( sons Dtsabiìgies (€P~Oj. ors Đeđatalson, swned ty 53 coumnss sn 2010 th.al ar ä commuted vo jr.piemer;? this, ccHipied with jps EU Deal^üy Strategy provici« the řoundaoor ujxo Silicií chiíá-en wRh d^aöiitíies can тш pSitrCipaœ !u:-y a· Fmopean soo;ary The rvviA projeci hasooy/iaed a ¡ampíate foi other co;oii:'ri;(ï!ofo:-i.wwiicr Will onsuíe that chodre-n iobs families and pfofes^onas aii '.«rk íoaornef to identify and design services Piac soses ih&¡¡ r>eeds asid WOcn support them to acn^rti iħeir potential. TOIS was done ,r. TPE toiiovving ,vays.

1.=staeiishing Naiional VVofktog Groups, íha mai ι eçiuiariy :o o«co,os üie ¿pips rsq^iiedfoi iroptemertiaöon oř iheBHäl Decíaiaiion and censi«¡og oí gove{R;r¡en! officials, ropreseoiaio'es of ük agencies such as W-ïCE? mc WHO. civil soc;ery.. poney exporta, роадтпео',. seif-advocates, pa/anío and sn oveiy case tv/o chilot en o? yaung рчор:е hom thachkd parfiCípapoo ¡.jt'oop :

2. Child Participation Activities törött aioopSiü each coonfry win toe csfîjecîîve of iuiidiog t'ìo- coofiofetioo. cdpacî.es ard skills of cmdren so -Hat •oey could express iïm VÄVS and advocara for cľiaoge. Aonvmes m eaoO couorry cuniisi^ared r¡ toree 'coíd-cooica' e%'©ntsvvhcn -.-veis des;goeo and of-ganísad by the chüdien şnemseiyes each with í h e objectoío oHoacníog out TOFFIESROCIPÎTSUNGIES.

Key DeiK'erabtes

Vanoas pubiicatsons raiÆ been protfeced, and m* bo made avaliabe io ; oovarai languages or; i<ra at-Mv/r'Aearelurno5.oH:dunn§ automc ton. Thosa :

include; ;

Turmng woid5 into Ас?ад' a guide to us¡ny rhe ВН8;„ De-oará'ion fr,t National : Piaomsxi TA'OV-mg съккт -mï< ¡oieiSsoßsaS disaci-^ieo «í-.sí; ooo.ia»'^ a su;nm?5!>- of novo· the pOject milaeticed policy я· each country:

j ;;/P^2G: 3 2í: 17 50 ď 54

, - Oi» 'й/Oícís. Our ACííííns. a chfìdrcn s puíscanon ¡;i easy read format shai n g the children's view of rhe BHBL онсанааоп. tPea eap^aenca o'ata Ö;Q;&cí arai thea messages co poiicy-mafe s-

• 'Listenmg together a web cased lesouice contarana praeigai .iciv.ee sid ; ideas fer creating a su-iaPie enaüaameñt 'ot crwî participation

- Toni -ofDisam¿\ Ash0nan?meí!0nňľKímínepí0jecrfed!Mf>ngvie;s/s of thy :

, đaidren învoi vid raaaateđ by ona ot the «Paid; en fi oir the Brhgaaaa uroup,

• Д wptvbaseü se;Peva:uat;on moi has besa developed :.o help 'rübor-&' ¡apressaíatives assess a cot/nays íevei CÂ IMPIFEMENTÒTION UI ns Bhül Deeiäfarson PI pohey and pascace. ;

Main objectives of the action J.-'2 PiSie ia&Ximura Tne aimot τ·„ψΛ was. To improve the 'rrocn&acea incision. access te- agars

arai $ocġiM paaapatain aí aaPuen aava young peoøie -«sa aa anemsauaŕ d;Sãú>!(ty üi Ешоре tíaoagh mear;/ fgfoi daid pai tit ¡pation activées vvti.ch caá sjppoiî ¡he ;ii?vf'Sop:rierií af •servees and nai^nai povoes

K e y resu l t s - Paantadurconies /aPiOta iac>adiag

:..afící«!sia; ¡г>з<п auois aao uage* greup(S) • Adáad »aJüS uf lia action, -.e. ira i-asf/n.j aapapi

a¡4!-'a¡ mu ьат effect

- -pao?. •r.asvín'.rT:

1 Empowerment of children and young people through participation

forty оцвд chíinran ar J yonng реорч with aaePectua rfisabsnaes -лго participated si: the çionps set ap L'y tři ¡a project wara ap;e re ieaa; sno-s about tŕeir ngňts, supíxsrf th ei! ушпдаа peas and ro express íha»· nee-a for qiiaïsy psaahcafe. cananumty hvsng e^pio/rnaaí. aíeíong ааиапд ead ađucasa^i opportunities based on fhe>r own personai ехрепепеез. are ¡m&act on ne sad·· erpeera and confidence o! <he campeo to express the» oччп ;.Ρο·,;glus aad aäeaa has been noted by Ida children ihranselves. parents. staff who л-ork vvirh tie chĺidien, the externa; eaaiuažo? pohcy arrets and in t-а Knowledge Sacude an ü Practice (KAP) survey w* en vvas car n«d out io assess 're ¡nsaai ol the píOjecL The opinions, daas and expenenaos ot the «¡oups and then faairtatots Pave formed she eo>e pai? of iwo раЬРсаРОП!'; Our words. Oui Actions' and libteniriQ Togø?heP.

2. Preliminary action towards implementation of the BHBu Declaration through influence on policy and practices

The ľ'#A profot was aö€ tö atan the process of ¡праепсгпд panesas and ptaüces fe aneast promote commirna'aa to future actOn) -n each o? tne íhíae ccamtnes. They iixade me deveiopment of a Matronai Acaon Par: řocussed oa BHBL »t yer&rawsh ctass-mr^-afrv аирроя and оШс;аРу i-nandāteo Dy'hé Mntstryail netaár a comm4ìr;aììt frorntíra yrasüy cj £d!.;cat!«t ín aüganato «icìade maaauraa ;e¡aíngro mcHiswG aduca-aon aad dušo lartiaipation in rha кигс-.оггш^ .Varions; Edacation Aci an ci to astaiàsi s WQfkiPíj gioüp io daaetop a naw ршдгатп^е απ aioaDindant ia-aą for yaang реорщ л€Ь disahiicras: a cammü-r-ant hopi paalubaa County ir, a-e Craca Republic io (naher Ъхпй cPPrl p;a?icipaton aiacpces mra thi·· cu-ara p-.aparaueas %c raiatagtae-yotiag pao|.«a »ara -гаади^жз m o-a cavnr^uniry rtíicito chare tae» a<pe¡ieaees vath ahe? coimies Asan-marvof Ьол- d-a proļecr infiuencc'd pofrcy ¡a each соапгг/ cao. he toraid :a Ше pubaca.üoa Taming iv&as imo Action.

3. .\ev/ ways of working: positive experiences of working together

The enviiontnent and Mmawo;* lo? tris та&мир. supported Py ί··ικ·· baseai human п-дгдз utaanisaìion ChfliiCv. avere atea1,a ctes;a!'ed ш encourage the ратфавол af she young seifatíveeatas: ¡r was act simply a case ot op-onng •aduit melnos крт chid ^r^cip-mior,. Tnftj^i-jren and young peopte ;a the project had no previous ахре^-апса o' pat^ipatoiy c»igagetPera es žxíd.hc spaakfliy they ¡acked continence aađ had pi ev-ataay ахрагатсес! oc-:as;ons :?> which they had aot bean expeaea to oxptccs the« posas of view or hste-aai io. A řtAP saivey meaaufađ ave posÆve cPaa-aas %.'^ьу eapeaanced liuuoyt' tha pinįecr

fhs ptofőcf ï cpreseaied â sjgraficaat ateo torwaid. if ir. hoped that th« ещж-,ег,с~ж and processes ¡i tríshed ml ^rđoan opasa алгкгпд to спр^т-зл?

lãdíaPuIJ 2а IPsí}® 5í oí 54

poicy snö ï»bcticö cnangelos chüüfsn antí young pecore vv«h ¡мйос-иа disaœttes thioygħ гпейжпдкй c!?s!cJpäii!C:paöon аагу&е*.. in рал:сiHa¡, ¡ï ¡¿ hoped thaï '¡essons ¡eame-ď ?¡cm ?''ÜS pí o,'ee vvill ňeíp count! ies «йк-лд ?o

: advance & ŰSVSÜP -ħesr ora āci©n plans tö impíemert ihü ΒΗδι Dcc Viaton ; oř other sinnini human ngîus^eemt-rrs

; Foi F¡M!IS¡ infoi rTiaüü" piense consci:

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Translations

>"3>·. 'cm acid ihr» translations ot '.he »r^wcutivc· su;rimar/entered betere. TS-is nfct^isî-ot. ,VH s:sa be pi>bi;f-bea or. me «ehi-·;« í .C'.vi.'ìg rno¿ peopíeta ¿nov* аЬсчп your acbJn.

COMPULSORY MENTIONS OF EUROPEAN UNION SUPPORT

n ao: odaoce ¡.vU1 ŕe Geoeiňí сопжюг-s. ай ħeiciioan&s a?e undar ťw obligation co ^X'¡cvAeüg-úinsíü\e ршь&;и ¿-;с tivüy n as rsrgived ňr-:o'i(4j on-, tne,· ϋΓϋοη m ali «ûcarp?cnsanc!r\eiiapHjducôd m рашЛаг finai (tótve^c! смр uis rsfcted repe-nü. di ocmi-nss p¡sss leases, viÆcs software etc. зд.исзг-с; as coi^e^nces or sėmiau. :r- the context ¿i tne European Уп;сп r-7fnguť.>ime iov Ernpfcyrnent ^по &ош yoHdwiţy - PROGRESS, i h î: <сшж>пд forrn ton shaíi b? used

~ie ί:Άίΰ;κa:ic:ï confeT·!;.;·-. -juiťtng sess/ση eie) >s supposed by tfie ешасел:· Οινόη Ргууе^глп^ b¡ Вт^оужрг and sаан> sonaœny -f'ŕľúí?* £SS <βέϋϋ?-2.$ί%).

τ o i o ç í a m i n e i s ч о , £ л « л ' . | ' е а ' 0 > ' t n & Е ! ж о ; : е а п C o m ^ i ì s s t o r · . f ; ¡ v a s e s t e o f i s n e đ t a f / n & n a ů h y ъ ю о о / ! ; n ć > i n i ū ' c r r ^ n ī a J j o e o f - n e ' Л i / ^ c í - r í - ő t v < ? f !he i ¡л&п ¡o I¡ÍG ë-rr^o^venî, sociäí A'faifs як* opcuaw'iies £0?A. ar-.a ν·αη-ογ contrич:!е to Hie acňieveree^t Ü/ -Ite Виюое УС20Sbf>:egygo3Í'; χ'ι ìhestìì^m,

he seven-vm; ñmrsiwie waers iïi si-nkehy'ders г/>гю сяп ne-'o simpe ¿ne ciewíoonw.n of motov« ηί'ο ane; z'w'we &'wJwnìet,:. sx> soc.s?? ev'Uií-üi: sti po&em. âùoss ms £υ·2;'. EFTA t£A m¿ ЕисаШШе and fue-canope «witjes.

rnüO <>tor:',íií;o.·? see; ¡пюУ/ос. ва<оо-хеифгсдге:a,

or рупледгюг-я Λ ¿s siso r»3C6Sfta»v to melude mo fü¡!üW№<g lefeiencé, 'The ^онпзшп cìntMVKS sn ms aub-íCatíO';·. does not lecąssaniy s^üct :лг: ¡.К&ШПП Oi Op^iO"! O? tfii ЕуГОрвйЯ СОтЯ!!55ЮП

vVítn į s-;;ajci ·ο р^Фотсг· ana члу сос^лх^сат^. pí&n Hnkeöto iħe preseci activity, iho B»neříc®ry vail insert ¡'ne Влореап Umon :ogo •'•ísrtíQp -У» EíJíOpean Cumrns^on as uvjCo-ritiőüv'Kí Aurhcîày to, ?.veţy pyb'.ïcr.tiü-r- es -.s!-ă;&d :ΐΐ.ά9··>δ! cteveíopsu unest t'·:s pìssen; ¿ļrar.t -OSĆGFL:?LM

SIGNATURE

Declaration

Title

First name

Surname

Georgette

Muiheir

Position held in the organisation

Organisation name

Chief Executive

LUMOS Foundation

I confirm that í am duly authorised to sign thrs declaration on behalf oř the organisation named. í certify that the information given in tui: report is correct, and confirm that the enclosures are current, accurate, and adopted or approved by the пшяпкяКпкь&зг which \ lead. i understand thai you may contact me to darify any details in this report, including providing any supplemá applicable, I confirm thai I am authorised hy the organisation for this purpose.

Have you responded within the required deadline? Have you made sure titat all your published material acknowledged support from the EU? Have you attached tie documentation as required in your grant agreement:

- The print-out of the duly completed, validated and submitted on-line final budget form SWIM wh» - Executive summary of your work írt English in no more of 2 pages (see proposed structure). As indicated below, the Executive

summary must contain a 1-page section on "Key resuite" of the action. The key results should be concise, sharp and easily undeistandahle;

- Printed and electronic copies of information and promotion al materials funded by the grant, (articles, leaflets, brochures, programme, stickers, posters, tapes, calendars, etc);

• Printed and electronic copies of the reports, analyses, studies, reviews, manuals, working papers, attendance lists, toolkits, computer discs with information if available etc.) produced under your work;

- For ai! eyents, the list of participants with original signatures of all participants.

Have you completed the declaration with the correct signatories? Have you submitted ONE origina! and ONE hard copy of the final activity and financial reports as weil as the supporting evfdence and ONE electronic copy of aii documents?

13/09/2013 21:17 Page •

European ļ EUROPEAN COMMISSION Commission I DG Employment, Socia! Affairs and Inclusion

Employment, social affairs and equal opportunities ' inclusion, socio-politica! aspects of migration, .social integration policies

Cali for proposais: Call for proposals for Socia) Expérimentations Reference: VP/201Q/007 Budget Heading: 04.04 01 02

FINAL FINANCIAL STATEMENT Application reference: VP/2010/007/0035

Agreement ref.: VS/2011/0161 SI2.598413

Budget

Total eligible costsJD + [) _ 218 833.14

Heading 1 - Staff costs

Management 37 843.49

Administration 42 637.65

Secretariat 0.00

Accounting 7 985.60

Other staff. 7 265.45

Total - Staff costs 95 732Д9

Heading 2 - Travel, accommodation and subsistence allowances

Travel 43 669.27

Subsistence allowances (accommodation, meals, etc.) 17 472.26

Total - Travel, accommodation and subsistence allowances 61141.53

Heading 3 - Costs of services

Information dissemination 2 244.00

Translations 8 161.61

Reproductions and publications 16 393.09

Specific evaluation 0.00 ι ·

Interpretations 6 895.93

External expertise 0.00

Otiier services 0.00

Total - Costs of servlces 33 694.63

Heading 4 - Administration costs

Depreciation for purchase of equipment 0.00

Hire of rooms 1 429.25

Hire of interpreting booths 4 735.29

Audits 1168.63

Financial services 0.00

Other administrate costs 11 760.21

Total - Administration costs ^ 093.38

Heading 1 - Staff costs

Management/Coordination (transnational and national)

'NAME ШШ '«»«RY

ЩвЩрШШ ΓΟΙΓΓΙ MIT

Project cootdmatcr (To be hired for this project if grant awarded)

Lumos, Project Manager: Words irto Action

.5 time (17.5 hrs/week) for 16 months-Temporary Part-Time position for purposes cđ this project

18L04 143.00 25 888.72)

Į Three Seeing Group ! Members to act as expert jmentois to local working groups

One mentor per country to attend local working group meeöngs and provide distance support Assignment of Steering Group Members as expert mentors will occur in cor sutt aion v«ħ local working groups at the beginning of the project- see description of action for additional detals

( ä least) 7 menter days per country. Total 30 days

173.69 30.00 5 210.70 One mentor per country to attend locai working group meetings and

¡previde distance support ¡Assignment of Steering ¡Group Members occurred iin consuRaħon vAħ locai ¡working groups af the ¡beginning of lhe project- D Towefl ( Czech RepubSc), jvïspancvic (Serbia) & HaraJan Afexandrov ( Bulgaria) see description of action fen aüötoonaä details

¡Two steering Group í M embers to faciiaie ¡transnational workshops

Al project partnets здй steering group members vdl participate h planning and designng the workshops, 2 Steering Group members wtl facilitate the first transnational 4 day workshop, 1 Steering Group member wfi (acirate the 2-day fcflow up transnational meeting. Both meetings wa also be supported by tfie with Project Manager

transnational meetri g: 3 days ( 2 people) 1 day at follow up meeting.

286.31 7.00 2 004.17 2 Steering members (ЩИИИВ

ЩЯЯШЩ tacāftaied ¡the first transnational 14 day workshop and Upostoło Apostolov ¡headed ι session, ι [steering royp member ¡I^HMpacSftated a ¡further meeting.

'Steerfig Group Members ¡and Project Par&iers to ¡contribute ro production of loot puts and reports

Al Зее ring Group Members and Project Partners to contrbute-i day to proiect out pu tsfl publication.

days in total 22 215-45 22.00 4 739.90¡VBHBBDOflSUKant ¡prepared the first draft

of the Self a»aluation Tool (2 days). ЯЮ ••A, steering group member researched and drafted the Guide To National Planning ( Bìtìett "Turning words into Action") - 20 days

į Project Manąjyr, Lumos, Oeector of operations l day per month time to manage project over lømcnths-Pait of Lumos Contribution to funding

350-00 0.00 0.00 not used

Total coat of ManagemenÜCoordlnfttlon. 37 043.49

Administradon/impfementatlon of the project

föime

щщтщшт

Local Coordinator Buřgaria-post b be Hied:

Lumos, Local Coordinator Bulgaria: Temper ary Full-WAxds into Action Project Time position

for purposes

54.5sJ 366.05 ί

19 982-87 extended for 3 additional months to continue

Heading 5 · Overheads

Overheads 9 171.41

Total eligible Indirect costs (I) θ 171Λ1

Income^ ______ _218^833.14

Income

Beneflciarys contribution in cash (C) 43 855.00

Revenue generated by the action (R) 0.00

Union Grant (S) 174 978.14

Total Income = C + R + S 218 833Д4

ι

sea descrittori of action section 3.6.2 for detals

lof this project. Full Tkne (35 jhrsAweeŕO for IS {months

:

į

support to children after 12 montfi contract

Local Coordinator Czech Repubtic-post to be filled see description of acöon section 3.62

Lumos. Local Coordinator Czech Republic: Words into Action Project

Temporary Rjli-Trie posiion for purposes of this prcţect. Full Time (35 hrs/weeiO for 12 months

54.55 213.63 11 553.52

Local Coordinas« Serbia- post to be ffiled; see description of acdon section 3.6.2 for detals

Lumos, Locai Coordinator Serbia: Words into Action Project

Temporary Ful^-Trne position for purposes of this projea. Full Time (35 hrstøeeW for 12 months

54.46 202.01 11001.46 Taste of rołe spät into 3 posts, no budget im pí teabes.

Total cost of Admlrtetradionñrnplemtrtiijon ottħ· project... 42 637.65

Secretarial costs [ N o data entered] Total cost of Secretarial costs.

Accounting

ШМ: ШЩЩ .c: Pafp тшттмм -J ás?!;· IfS—gSS щШШ

'S^ĽŔXU :ľ-Tŕ~ Finance and Administration officer - post to be Med wtt proįect funds

Lumos. Finance and Aäninístrabn Officer. Words into Acticn Projea

Temporary pan-Time position for purposes of this ргфа. .25 time (8.75 hrs/ weetøforM months

114.08 70.00 7 985.60

.

Post was recruited ä Λρτϋ 2012. 14 months contract. {Not leas in project descripâon.)

Total coet of Accounting , - ? 985-60

otħer staff

-ľť

ι i

I

5 days total óme fot projea partner tocai soff to assist with nattonal and chid participation actwities localy. AJsoto'mdude assistance wth dala coa action, evaluation and social experimentation

5 days total over duration of project

150.00 4.80 720-00

í 1 ł í ļ

5 days total time for preyed partner local staff to assist vAh national and chid participation actMties localy. Also to ridude assistance with data collection, évaluation and social experimentation

5 days totai over duration of project

150.75 5.00 753.75

1

Lumos Consultat, Externai Evaluator юг lhe project

17 days: indudes St eer rig commitees.tran mtgs, neonai meeting Serbia äc

305.08

.national

17.00 5 186.36 17 days in total. Meetings plus ad hoc ach/ice and reperting.

jCarers/süpport workers i I

s

The «ndwiduał carers and support workers of eft i dren and self-advócales MS necessaify provide sųjport at steering Committee. National and Transnational Meetings

Support workers/carers of specific children. Hired ae needed frø

100.89 6.00 605.34 Z Support workers foi participation at project nestings in Serbia

Î i days of support ! ¡services by

¡tumos

Total cosi of Other staff 7 265.45

Total staff costs 35 732.19

Heading 2 - Travel, accommodation and subsistence allowances

Travet, accommodation and subsistence allowance Pfease enter in "DaSy cost per person" accommodation and daily subsistance allowance (DSA) costs

Purpose of the travel шт ttayelšą

ШШ |ЩОШ

Шшш ".'--¿g % ť-i·*. ΖΛΧ.

person

Mmbër:

шЦ

•Subsistence ard

sub-totai

Told! 1 Purpose of the travel шт ttayelšą

ШШ |ЩОШ

WMĚ person

Mmbër:

шЦ

•Subsistence ard

sub-totai

Told! 1 Purpose of the travel шт ttayelšą

ШШ |ЩОШ

WMĚ SiSiil person

Mmbër:

шЦ

•Subsistence ard

sub-totai

Told! 1

3 in-country woridng group meaings- Each meeting win host 10 local delegates for l day, travei inctoded in DSA

Bulgaria 280.87 8.00 2 246.96 29,99 2.00 3.00 179,94 2 426.90

3 in-country working group meetings. Eaďi meeting wM host 10 local delegates for 1 day

Czech Republic

227.10 3.00 681.30 19.47 2.00 3.00 116.82 798.12

3 in-country working group meetfftgs. Each meeting wiß host 10 local delegates for 1 day

Serbia 251.26 1-00 251.26 30.00 0.00 3.00 0.00 251.26

Attendance at in-country working group meetings for ι International delegates/ faclitator per meeting (9 in totaî, 3 per country)

3 meetings each in Bulgaria. Czech Republic and Serbia

210.25 zoo 420.50 128.55 1.00 10.00 1 285,50 1 706.00

1

Anendance aí in-country working group meetiig for external evaluator to attend 1 meeting per country over project (3 in total)

l meeting in serba

302.67 гоо 605.34 130.00 0,00 3.00 0.00 605.34 Вд and CZ visits covered by trannational workshops

Steering group meetings. 13 in-perscm meetings over ¡the 18 month project for ю aeeriig group members + 2 сдаегs/supporters for persons jwth disabilities).

London 254,00 45.00 11430.00 20.00 45.00 3.00 2 700.00 14 130.00

(Transnational action planningworkshop. Meeting participants indude 10 local delega es (travel inducted in DSA) and 24 international

¡delegates (10 each iron ¡Czech and Serbia vrerking 'groups, facilitators and i ¡external evaluator)

Bulgaria 297.11 46.00 13 667.06 30.00 60.00 3.00 5 400.00 19 067,06

1 Follow up transnational ;workshop. Meeting ¡participants include 10 local [delegates (travei included in IDSĄ and 23 attemsffional Sdetegaies (10 each from ¡Bulgaria and Serbia working groups internal facilitators

[and 1 external evaluator}

Czech Republic

29453 45.00 13 271.85 37.50 60,00 3.00 6 750.00 20 021.95

1 Project Coord naor to visà leach counoy to meet with Local Coordinators and

'monitor and support project lactwities. 2 visits per country •for 2 days each over project ¡duration

3 visits № addition to travel for tran sn ali on workshops

273.75

i

4.00 1095.00 104.00 2.00 5.00 1040.00 2 135.00 Bulgaria. Serbia and Brussels for EC Conference on social Experimentation

'Travel tor Disabled Steering London 200.00 0.00 0.00 13Q.00 0.00 3.00 0.00 0.00 Not used ' [Group Members to attend jtefeconference meetings iin person with PMT to 'ensure accessibility and theŕ ¡meaningful inclusion

Total of travel costs

Tesal of subsistence and accommodation costs.

Total - Travet, accommodation and subsistence allowances.

43 669.27

1? 472.26

61 141.53

Heading 3 - Cost of services

Information dissemination

ЩЩШ Website, to be hosted on tumos' ste (wwwlumos.orfl.uk) cost for 4 days production and associated fees

0.00 250.00 0.00 Al project outputs wifl be hosted on tfie Lumos web site. No cost to project

Production oí easy tead documents- to ensure ali information ard results are accessible TO children and to individuals vuih disables

2. CO 1 029.X 2 058.0D This is an average, it is spSt between an easy read алгпасл about the Bulgarian chid choice event and easy read verston of the BHBL Declaration produced in Serbia.

Production of CD-ROM's wth ali document outputs, chid participator tools, reports aid additional maenate a/aiiabiein aH project languages

0.00 0.50 0.00

leaflets/posters for child participation act too es to increase visfciity & bdusCn in community (500 per country)

372.00 Û.50 186.00 Leaflets and posiers dtesemřiated Λ the cfiid choce events in Serbá and ecSľng of a video of parents ŕ Bulgaria talkħg about trie project.

Totai toformatfon doemtnotlon 2 244.00

Translations Total number of languages fthe document is translated to), Cost per page (1 page=150Q characters without blanks)

Шщшш WĚĚ&ě.

СШреШ Р*3Н

comment

Guide tp national planning; a pragmatic guide to national planning using the Better Health. Better Lives Declaration as a framework, sharing of experiences, reporting on the process, nighËgh'ting innovative aspects in planning and implementing change for crödren wflt rteüeauaJ cflsabiœes. :

Englisft · Bulgarian Engfish - Serbian English - Czech

3.00 20.74 20.00 1 244.40 Used for transtation of materials and documents at Nadon at Working Group Meetings. This publication, to be caned "Turning Words into Action" is being finalised after the the project and wíl be translated into BG, FR. CZ & Serbian using Lumos1 owi kinds.

An Easy Read Versien of the above prcįect report to ensure aH resuis and information are accessi bie to chBdren and individuāls with inteflectud impaivmerte. The E asnead verston will have sjgniícanöy less words per page, reducing the pages cost ed for.

Engfisħ - Bulgarien LOO 25.77 LOO 25.77 Bulgarian translation cf easy read materials about the BHBL Declaration used at NWG meetings. 1 invoice

'A guidance manual and tracing module ion how to ensuring the effective ¡participation of chidren and young people with intellectual disabiides

iin national planning and decisions regarding the'mves. To "neiude tie process followed during this project and lessons learned

English - French En£>sh- Bulgarian English * Serbisi Englidi - Czech

о.оо 15.00 50.00 αοο These experiences wil be captured η the Turning Words bito Action publication ( which wtl be translated using Lumos funds) and an online resotffce "listening together.

An Easy Read Versi cri of the above guidance manual focused on how children can be ri dud ed and wħ aito expect in this process. The EasyRead version wil have siţpiificantly less

English - Bulgari?) 1.00 15.40 11.00 1ба40 Used to translate easy read materials for child

[participation meetings. January 2013 Bulgaria. Easy read guidance incorporated rito chid

words pet page, reducing the pages costad for.

ipublcaöon below on [advice of easy read ¡experts

A child written publication demonstrating their thoughts and feedback on the Dedćration. This wil largely take the form of pictures or drawings or video with tew words needing translation.

EngSsh - French English - Bulgarian English - Serbian English - Czech

4.00 15.08 24.00 1 447.68ÍTranslatíon into protect [languages plus French. ¡(Based on average costs) [Document doser to 50 j pages but pages have few words.

A self-evaluatìon monitoring and evaluation tool which provides a set of indcatcsfof each of the 10 priorities io the Better Health Better Lives Declaration and al оле countries ta track their own progress and plan neri steps.

From English to French, Romanian, Bulgarian, Serbian, Russian, Czech

6.00 17.94 49.00 5 274.36įPermissiort received from EC to reduce number

[of ffansłations m ine ļwth project realities and ¡where tool can have most [impact !

translation of draft action plans from prcţsct country language into English for review bysteering committee and PMT. ^

Bulgarian- English Czech-English Serbian- English

0.00 15.00 30.00 O-CK^Not used

i

Total translations 8 161,61

Reproductions and publications

Docum«« 1

Guide to National Planning; 100 ccoies each BG, CZ & SR Đ. 200 copias EH FR (total 700)

30.00 46.75 1402.50 This document has been edited in advance of риЬЙсаЙог entitled, Turning Words into Action*. ( 2 days editing at £600 por day)

child participation manual; 100 copies BG, CZ & SRB, 250 copies EN, FR (total 800)

30.00 6.80 204.00 This document has been proof- read In advance of being finalised ( Fee of £175)

sełf-assessmem MÃE toot; 100 copies alf EU lang, 50 copies remaeting PROGRESS lang (tota) 2800)

•48.00 170.59 8 358-91 Development of Seif evaluation tool into an interactive web based resource. Also Includes testtig of the tod by the National working Group ir Serbia June 2013

50 colour copies of each EasyRead action plan far 3 project couraries (total 150)

3 000.00 0.00 0.00

colour copies oí chid publication 50 copies BG, CZ &SRB. 1EN,FR( 1000 total)

I

42.00 153.04 6 427.68 Will be printed in 5 languages. Figures based on average of invoices.44000 pritted pages in total

icokxjt coptes ot EasyRead guidance marnih 50 copies FBG, CZ & SRB. 100 EN, FR(t0öl 350)

7 000.00 0.00 0.00 incorporated into the child publication

50 copies of each action plan for chidren with intellectual dis. BG, CZ« SRB (total 150)

3 000.00 0.00 0.00 incorporated into the Turning Words into Action publication to be printed witfi Lumos own funds

Total reproductions and publication» 16 3Θ3.09

specific evaluation [ NO data enterad J Total specific evaluation

interpretations

Meeti-rç uOngi«ħf-'<

IjføfpnIi

ШЩШш ofdayķ:?u;; еЯ&ре&щ

Totol

3 focal working group meetings. 1 day per meeting - Bulgaria

Bufgar Ian-English i.oo 1.00 201.01 201.01

3 beat working poup meetings, l day per meeting- Czech Republic

Czech-English 0.00 3.00 2ÛQ.00 0.00

3 tacal working group meetings, L day per meeting- Serbia

Sertjian-Erţgtsh 0.00 XÛÛ 200.CÛ 0,00

Transnational Action Planning woffcsrop

Engl sh - Bulgarian Entfisħ - Serbian English - Czech

6.00 3.00 231.32 4 163.76

Transnational Follow up Workshop English - Bulgarian Éftgíisň - Serbian English - Czech

6.00 2.00 210.93 2 53L16

Tbíal Interpretations 6 695.93

External expertise [ No data entered ] Total external expertise. 0.00

Other Services [ No data entered] Totel other services..... 0.00

Total - Costs of services. 33 694.63

Heading 4 - Administration costs

Depreciation for purchase of equipment [ N o data enterad] Total depredation. 0.00

Hire of rooms

Mľrtľig ШтШт

SāņKierlof Totd С01ПП1РП'

¡Steering group meedoes f I

i i

zoo 227.89 LOO 455.78 Used for meetings to prepare self advocates and group members for tfie steering group meetings. {Average ol 2 invoices)

[Transnational Action Planning Meeting-ļczech Republic

3.00 324.49 1.00 973.47 Heidin Bulgaria

jFottow up transnational meeting- Bulgaria 0.00 250.00 1.00 0.00 Heid in Czech Republic -included in overheads

Total hire oI rooms , l 429.25

Hire of interpreting booths

Щр cf days

comment

Transnational Action Ptannrg Meeting [Bulgarian jsetbia 'English ļCzech

1.00 3.00 1 168.63 3 505.89 includes interpretation of préparation activities for fre self advocates.

Follow up transnational meeting [Bulgarian [Serbia [English iC2ecft

L00 2.00 614.70 122940 deludes interpretáljon of preparation activates for the self advocates.

Total Ure of Interpreting booths. 4 735.29

Audits

Externai audā .

1 168.63 1 i68.63ļConucted and paid afterthe ļend ołthe projea

Total audits. 1168,63

Financial costs [ No dată entered ] Total financial costs

Other administrative coste

Chid participation actìvities: maieriałs, transportation, suppon workers, etc. (2250 per country)

4 582.21

Chïd-choce event budget (1000 per country^ 7 178.00

Total Other Administrative costs.

Total - Administration costs.

Heading 5 - Overheads

Amount. Θ 171.41

Heading 6 - Income

Total Income (T) 218 833.14

Revenue generated by the action (R) 0.00

Union grant (S = Τ - C - R) 174 978.14

Beneficiary's contribution In cash (C) 43 855.00

Own contribution 43 855.00

Partner's contribution 0.00

Amount of the Interest yielded by the pre-flnancing (Artdes J.6 and ILIE.4 0.00 of th« grant ayeemmt) Compulsory field: tf not applcabie put a "0".

Certification

f. the undersigned authorised to represent the beneftóary, certify that:

- the financiai documents submitted to rie Commission comply with the franciai provisions of toe agreement,

- the costs declared are the aciuai costs

- ali. receipts have been declared.

Name,«гйneme:

Tifle or position in the organisation: ūk·, ef f Date: €^.О^.ХО\Ь

Signaale and official stamp of beneficiary:

¿A/W

- . • J . · ' . . . '

Raf. Arasi

Lumos 12-14 Berry Street London EC IV OAU

6 September 2013

Our ref L0085/EAF/DT

Dea

Turning Words Into Action: Enabling the Rights and inclusion of Children with Intellectual Disabilities in Europe

1 enclose our audit report, on the TW!A project for the period ended 18 June 2013, for you to send to the European Commission with the final financial statement.

•r·-.- primeGlobai ^zzacott LLP is a fir-msn fiabiiity partnership anc! is Keterai m fngianđ and Wales wŕin regisisred number OC329Ô37 A list of LLP msmbers is available at our registered office scdrass as above Registered Μ«*ηγ ott! audit work by Ite Institut oí Chartered Acccunarts m England aodWstes. VAT Number. GB 243 1SST 53

for 8uz?acott LLP « Email • Direc,

Buzzacott ' : ľ : i ' - ' l· ; · - : ,:···

European Commission Directorate-General Employment.. Social Affairs and Inclusion EMPL.D.4 8-Í049 Bruxelles (Belgium}

8 September 2013

Our reí Q0531 /ASF/DT

Dear Sirs.

Accounting No: SI2.598413 Turning Words into Action; Enabling the Rights and Inclusion of Children with Intellectual Disabilities in Europe

We have been appointed by Lumos Foundation to audit the financial statements for the Turning Words Into Action project in accordance with article 11.15.4 of the project agreement. We confirm that we belong to an internationally recognised supervisory body for statutory auditing.

We have audited the financial statements of the project for the period 19 September 2011 to 18 June 2013 in accordance with International Standards on Auditing and the provisions of the agreement. Having carried out such tests as we considered appropriate and having obtained explanations as we have considered necessary, we certify the following:

In our opinion, the costs presented in the projects financial statements for the period ended 18 June 2013 are rea!, accurately recorded and eligible and that ali receipts have been declared in accordance with the agreement.

PrimeGiobai S^zacotî UP Is a hrnited liabiftiy paíinership and Is regisSercű in Engend snd Wales with registered numoer OC32S68? A f:Si of LLP members !» »vatSaUíe at our registered office address ss sħove Registered to carry ou! audit work by me instituí« of Chartered Accountants in bngisn« and Waias. VAT Number GB 243 19δ7 S3

Yours faithfully

i

Ref. Aresi20i3)309?739 - 23/05/2013

A Summary statement of the receipts and expenditure of the TWIA project.

Budget by:Lyrda Agboola

Heading 1 - Staff costs StsTus . . ~ ~ — Uaily Salary Co« ' .

Number of Days Total summaryofrecerptsandsj^ertdrturs - Comment . ' - .. ' ..

егЛ Coorcħnatwm 37,84387% Project Coordinator 0.5 time ( 17.5 hours per week)

for 16 months. 181,4t 143 25,888.74 € £1303.12 salary per month for 17 months (November 2011 - March 2013)

3 SGM mentors to national working groups (At least) 7 mentor days per country provided. (Total 30 days)

173.69 30 5.210.94 € •••••fcvoices Sept 12-£480.?1. Nov 12 - £435.» invoices Dec 12: £141« & Apr 13: £346

2 SGM facilitators to transnational meetings

transnational meeting: 3 days ( 2 people) 1 day at follow up meeting.

286.31 7 2,004.21 € Invoices Sept 2012:£881.29 4 April 2013 -£342

ЧВВВДЗ«.12 -£246.59

SGM & partners contribute to outputs & reports 22 days in total 296.24 16 4,739.98 € ••M Invoice Dec 12 - £600 НШМ: Invoice May 13 -£3456.32

Proiect Manager 1 day per month - Lumos contribution to funding 350.00 0 0.00 6 Not used

Administration, Accountina and other staff costs 57,888.28«

Bulgaria local coordinator temporary full time position, 12 months + 3 months 54.59 366 19,982.47 € A^HHHMBãaiarv from Jan 12 - March 13

Czech Republic local coordinator temporary full time position, 12 months 54.56 214 11.653.62 € 9tB^^MMB*6alarv from March 12 - February 13

Serbia local coordinator temporary full time position, 12 months 54.46 202 11,001.52 €

ЯВЯ - Salary (rom May. June, Sept, Nov. Dec 2012 & Feb 13 = €5244 IMOTMBNIMt: Salary from Mar, may, June, Sept, Nov, Dec 12 and Feb 13 -€2271 MMMMs: Salary from Mar. May, June, Sept, Nov, Dec 12 and Feb 13 -

The amount incurred is shared among 3 co­

ordinators as listed.

Finance and administration officer

temporary part time position .25 time (8.75 hrs/week) for 14 months. 114.08 70 7,985.27 € Monthly Salary from April 12 to June 13

May 2012 increased due to missing payroll cut off

date as staff member started April 17 and June ÎQ1Î

salary was more with unpaid holiday pay added. 14

months contract from April 2012. Partner 5 days 150.00 5 719.88 € Invoice of November 2012 £616GBP

Partner 5 days 150 75 5 753 77 € Invoice of May 2013 E645GBP

External evaluator

17 days: includes Steering Committee mtgs, transnational mtgs, national meeting in Serbia, advice and reporting 305.08 17 5,186.40 € Invoices from D s - Oec 12: £2563 anet Kay 13: £tS75

Carers/Support Workers

Support WorKersJcarers of specific children. Hired as needed for days of support services 100.89 $ $05.35 € attended in Feb 13: 230.59 Euros Support Workers for Serbian meetings

TotalHeadinal . . SS,7iZ.U€

Key Facts 1£ = € 1.1686338 at 19/06/2013 when updating SWIM version - some difference in XR between time of recording expense in internal accounts and uploading to final report The total is rounded up to 2 decimal places.

1.1686338

Heading 2 - Travei, Subsistence & Accomodation • · : · ' = : - v - "

Placeoftteeveni

National Working Group Meeting Bulgaria

3 in-country working group meetings Each meeting will host 10 (ocal delegates for 1 day, travel included in DSA Bulgaria 2,427.00 €

Α ттшяЩтт&Га^е! Feb 12 - £285.98, Mar 12-£117.92, Арг.12-£б 11, May 12-££65.37 & £297.53, June 12-£107 52, July 12 - £1065.52

National Workinq Group Meeting Czech Republic

3 in-country working group meetings. Escfi meeting will host Ю local delegates for 1 day Czech Republic, 798.18 €

June 12 WnMMMrtravel toCZ - £137.22, Oct. 12 travel -£104.13, Nov 12 - £275.37+, Jan 13 - £52.07

National Workinq Group Meetinq Serbia

3 in-country working group meetings. Each meeting will host 10 local delegates for 1 day Serbia 251.26 €

Feb. 13 Serbian Bill 213-IPL-806 227.92euros, 23117 -1 79euros, 25650-4.20euros, 19490 - 2.86euros, 30193 -10.25 euros, 27919 - 8.33 euros. 189282 -3.22 euros

international delegate attending NWG meeting (facilitator), ä in total, 3 per country

3 meetings each in Bulgaria, Czech Republic and Serbia

Czech Republic, Bulgaria 1,706.00 €

Aug 12-E267, Sept 12-£588, Nov 12-£422 Credit note -£149, BG Aug 12-Σ21

External evaluator attending NWG meeting (3 in total) 1 meeting in Serbia Serbia 605.3S € uct. Ί z flS^HRtravei & Accommodation to Belgrade-£192+251 70

Steering Group Meetings London

3 in person meetings for Ю Steering Committee Members +2 carers London 14,130.00 €

Travel and accommodation for SC members in November 2011. Apnl 2012 and May 2013.

Transnational Meetinq Bulgaria

10 local delegates (travel included in DSA) and 24 international delegates (10 each for Cz + Serbia + facilitators + 1 external evaluator Bulgaria 19,067.17 €

Sept 12 - £13,568 & Aug 12 - £2,501+£247 were travel costs for participants at the workshop m Bulgana.

Follow-up Transitional Meeting Czech Republic

10 local delegates (travel included in DSA) and 23 international delegates (10 each for Cz + Serbia + internal facilitators + 1 external evaluator Czech 20,022.17 €

Feb 13 Prague Event: £320 08, £246.4, £ 14.22, £186.72, £60.47, £14 22, £211 15, £428.81=£1481.07 and additional Travel ticket to CZ - £409.50 S Cateringin Prague£770 67=£1180.17. Travel toCZ meeting - Dec 12- £2786.88+ £69.35+£2187+£36.89 and Jan 13 - £4110.70, £468 57+119.54+E4691.52

Project Coordinator Travei to countries 3 visits for 2 days each Bulgaria, Serbia and Brussels 2,135.01 €

Nov 11 ¿¿и4.ЬЗ, Jan 12 -£10Ь2 У8, July r¿ £У2./1 & £181.60 and June 12 - £295.65 were travel between the 3 countries by Project Co-ordinator/s.

Self-advocates travei to teleconference SGM London London 0.00 €

Total travel, accomodation and subsistence allowance ' : ' v"··".'.. · 61,142.14 € / . · v . : . ; 1 . · · V

A breakdown of July 2012 national spend is found m the Bulgaria folder "Financial report July 2012" 3 Countries

Breakdown is found in Financial Report/3 Countries June & Oct. 12 & Jan.13

Breakdown is found in CZ Financial report. The credit note is recorded on Sage as a refund and in the relevant BG financial report.

Recorded on Sage Report - Oct 12 Transactions are found in SAGE report for November 2011, Dec 2011, March 2012, April 2012, M ay 2013 &June20 13

Found m SAGE report for both August and Sept 12 (internal Note £13,568: was originally miscoded on SAGE as 5161 when it should be 5163)

Recorded in Sage Report - Dec 12, Jan 13 &Feb 13,

Recorded in SAGE for the relevant months Brussels travel is to attend EC Social Experimentation Workshop.

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Headings -Administration costs į-v Number of Unit cost

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Comment:;

Hire of rooms 1,429.24 €

Steering Group Meetings 2 200.00 1 455.77 €

Room hire on 26/03/13-TWIA planning meeting £78 Invoice from Saint Luke's Centrs & £312 for Serbia Preparatory Meeting

Recorded on SAGE Feb/ March 2013

Transnational Meeting 3 324.49 1 973.47 €

Room hire in BG Sept 12 -£833.33

BG Sept 12 monthly expenditure

Follow-up transnational meeting 0 250.00 1 0.00 €

Hire of interpreting booths 4,735.29 €

Transnational Meeting (Buigarian Serbian Eng/ish Czech) 3 1,168.63 1 3,505.89 €

Transnational event in BG Sept 12 - £3000 - included in the total £5043.71

Please see BG Sept 2012 monthly expenditure for breakdown

Follow-up transnational meeting (Bulganan Serbian English Czech) 2 614.70 1 1,229.40 €

Split charge £1052.2 out of total invoice of £1481.07

SAGE Report on Feb 13

External Audit 1 1168.63 1,168.63 € charge for external auditor To be paid after June, as agreed by email

Other Administrative costs 11,759.96 €

Child participation activities: materials, transportation, support workers, etc. (2250 per country) 4582.21

CP,65.68-CP,85.64-TNM СРД76-ШВ······) Local

coordinator) trip to Varnaf86.28-Admin & Finance,27.38-Conference

Proof SAGE, BG, CZ, & Serbia monthly Expenses

Child-choice event (1000 per country) 7178

Serbia - £2268.81 & £74.29, CZ-£564.74,475.47 & £404 and BG-£622.49, £647.23, £73 and £1011.91

Proof found in Oct 12, Nov 12 and Dec 12 monthly expenses report

, ' * . · 19,093.12 €

Summary Receipts Comments

Heading 5 - Overheads

ζ:.:'.'.·';. ···:·";.···.·; "·-····.·;:v

• f·"'-:·ν·=-·ϊ · •·· · 'Æ- 9 ,171 .44 € See SAGE

London Bulgaria Czech Republic Serbia

4,581.04€

1,762.30 €

2,624.75 €

203.34 €

£3,920

£1,508

£2,246

£174

Ref. Ares(2013)3097739 - 23/09/2013

A Summary statement of the receipts and expenditure of the TWIA project.

Budget by:Lyiida Agboola

Heading 1-StafFcosts suaus . · . '. " : . / -Datly Salary Cost

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summary cŕ receipts and expenditure - -- - - . . . : -- Λ:

. . ;—;

Comrønt . * " - - - '. Management Coordination 37 843.87 € Project Coordinator 0.5 time ( 17.5 hours per week)

for 16 months. 181.41 143 25,888.74 € £1303.12 salary per month for 17 months {November 2011 - March 2013)

3 SGM mentors to national working groups (At least) 7 mentor days per country provided. (Total 30 days)

173.69 30 5,210.94 € ew*e4*etelfiVOicesSepŁ12-£480.71. Nov 12 - £4S5.40 Veronika ЦДНЦДМИ. Invoices Dec 12: £1418 & Apr 13: £345

2 SGM facilitators to transnational meetings

transnational meeting: 3 days ( 2 people) 1 day at follow up meeting.

286.31 7 2,004.21 € HUM* Invoices Sept 2012:£881.29 «April 2013 -£342

If—·ι— -·> -£246.59

SGM & partners contribute to outputs & reports 22 days in total 296.24 16 4,739.98 € BSSK invoice Dec 12 -£600 MWKr Invoice May 13 - £3458.32

Project Manager 1 day per month - Lumos contribution lo funding 350.00 0 0.00 € Not used

Administration, Accounting and other staff costs 57,888.28«

Bulgaria local coordinator temporary full time position, 12 months * 3 months 54.59 366 19,982.47 € AwEEB^SbSalary from Jan 12 - March 13

Czech Republic local coordinator temporary full time position, 12 months 54.55 214 11,653.62« BMOMMMbSalary from March 12 - February 13

Serbia local coordinator temporary full time position, 12 months 54.4« 202 11,001,52 €

Mg·» - Salary from May, June, Sept, Nov, Dec 20128i Feb 13 = €5244 УЙММ··: Salary from Mar, may, June, Sept, Nov, Dec 12 and Feb 13 -€2271 4ИММШВВ1··: Salary from Mar, May, June, Sept, Nov, Dec 12 and Feb 13-€3486 The amount incurred is shared among 3 co-

ordinators as listed.

Finance and administration officer

temporary part time position .25 time {8.75 hrs/week) for 14 months. 114.08 70 7,985.27 € LļnMkļbM»-Monthly Salary from April 12 to June 13

May 2012 increased due to missing payroll cut off

date as staff member started April 17 and June 2013 salary was more with unpaid holiday pay added. 14 months contract from April 2012.

Parineri: Karin Dom 5 days 150.00 5 719.88 € Invoice of November 2012 £616GBP

Partner 2: Pardubice County 5 days 150.75 5 753.77« Invoice ot May 2013 £645G8P

External evaluator

17 days: includes Steering Committee mtgs, transnational mtgs, national meeting in Serbia, advice and reporting 305.08 17 5,186.40 € Invoices (rom ЯННШН^В*- Dec 12: £2563 and Mav 13: £1875

Carers'Support Workers

Support WorkersJcarers ot specific children. Hired as

services 100.89 6 605.35« ff^BEØSMB^vsalary for Sept 12:180 Euros and Nov 12: 218.13 Euros. Uros attended in Feb 13: 230.59 Euros Support Workers for Serbian meetings

Total Heading t . .85.732.1« " · · : · " • · - - . . . .

Key Facts 1£ = € 1.1686338 at 19/06/2013 when updating SWIM version - some difference in XR between time of recording expense in internal accounts and uploading to final report The total is rounded up to 2 decimal places.

1.1686338

Heading 2 - Travel, Subsistence & Accomodation Place of ttìe event Totai

; ; : ——— — Π ~———

summary ot receipts and expendam . :,V

National Working Group Meeting Bulgaria

3 iri-country working group meetings. Each meeting will host 10 local delegates for 1 day, travel included m DSA Bulgaria 2,427.00 €

А ravel Feb 12 -£285 98 Mar 12 -£117.92, Apr 12-£6.11, May 12- ££65.37 S £297.53. June 12-£107.52, July 12 - £1065.52

National Working Group Meeting Czech Republic

3 in-country working group meetings. Each meeting will host 10 local delegates for 1 day Czecn Republic, 798 .18 €

June 12 MvaMMHravel to CZ - £137.22, Oct.12 travel -£104 13, Nov 12 - £275.37+, Jan 13 -£52.07

National Working Group Meeting Serbia

3 in-country working group meetings. Each meeting will host 10 local delegates for 1 day Serbia 251.26 €

Feb 13 Serbian Bill 213-IPL-806 227.92euros, 23117-1.79euros, 25650-4.20 euros. 19490 - 2.86 euros, 30193 -10.25 euros, 27919 - 8.33 euros, 189282 -3.22 euros

International delegate attending NWG meeting (facilitator), 9 in total, 3 per country

3 meetings each in Bulgaria, Czech Republic and Serbia

Czech Republic. Bulgaria 1,706 00 €

Aug 12-E267, Sept 12-£588, Nov 12-E422 Credit note -£149. BG Aug 12- £21

External evaluator attending NWG meeting (3 in total) 1 meeting in Serbia Serbia 605.35 € Oct 12 ÄpetaÉts travel & Accommodation to Belgrade-£192+251.70

Steering Group Meetings London

3 in person meetings for 10 Steering Committee Members +2 carers London 14,130.00 €

Travel and accommodation for SO members in November 2011, Apnl 2012 and May 2013.

Transnational Meeting Bulgaria

10 local delegates (travel included in DSA) and 24 International delegates (10eachfor Cz+ Serbia + facilitators + 1 external evaluator Bulgaria 19,067.17 €

Sept 12 - £13,568 & Aug 12 - £2,501+£247 were travel costs for participants at the workshop in Bulgaria

Follow-up Transational Meeting Czech Republic

10 local delegates (travel included in DSA) and 23 international delegates (lOeachfor Cz + Serbia + internal facilitators + 1 external evaluator Czech 20,022.17 €

Feb 13 Prague Event £320.08, £245 4, £14.22, £186 72, £60.47, £14.22, £211.15, £428.81=£1481 07 and additional Travel ticket to CZ - £409.50 & Cateringin Prague£770.67=£1180 17. Travel toCZ meeting - Dec 12- £2786 88+ £69.35+£2187+£36.89 and Jan 13 -£4110.70, £468.57+119.54+£4691 52

Project Coordinator Travel to countries 3 visits for 2 days each Bulgaria. Serbia and Brussels 2,135.01 €

Nov 11 £204.53, Jan 12 - C1ÖS2.ÖÖ. July 12 £0271 & £181.60 and June 12 - £295.65 were travel between the 3 countries by Project Co-ordinator/s.

Self-advocates travel to teleconference SGM London London 0.00 €

Totat travel, accomodation and subsistence allowance • ' ' . . 61,142.14€ · · • . · · ' · · ' ' · • :

-—-—-——_.— —— •—— —

:ommentś;:-"; Ŕ' ! · • ' - -• '

A breakdown of July 2012 national spend is found m the Bulgaria folder "Financial report July 2012" 3 Countries

Breakdown is found in Financial Report/3 Countries June & Oct 12 & Jan.13

Breakdown is found in CZ Financial report. The credit note is recorded on Sage as a refund and in (tie relevant BG financial report.

Recorded on Sage Report - Oct 12 Transactions are ίουrd in SAGE report (or November 2011, Dec 2011, Maren 2012, April 2012, M ay 2013 &June 20 13

Found in SAGE report for both August and Sept 12. (Internal Note £13,568: was originally miscoded on SAGE as 5161 when it should be 5163)

Recorded m Sage Report - Dec 12, Jan 13 &Feb 13,

Recorded in SAGE for the relevant months. Brussels travel is to attend EC Social Experimentation Workshop.

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Heading 4·-Administration· costs = Number of Days

Unit ÇÓSt per day

Number of-Rooms/boothS:

Hire of rooms 1,429.24 €

Steering Group Meetings 2 200.00 1 455.77 €

Room hire on 26/03/13-TWIA planning meeting £78 Invoice from Saint Luke's Centre & £312 for Serbia Preparatory Meeting

Recorded on SAGE Feb/ March 2013

Transnational Meeting 3 324.49 1 973.47 €

Room hire in BG Sept 12 -£833.33

BG Sept 12 monthly expenditure

Follow-up transnational meeting 0 250.00 1 0.00 €

Hire of interpreting booths 4,735.29 €

Transnational Meeting (Bulgarian Serbian English Czech) 3 1,168.63 1 3,505.89 €

Transnational event in BG Sept 12 - £3000 - included in the total £5043.71

Please see BG Sept 2012 monthly expenditure for breakdown

Follow-up transnational meeting (Bulgarian Serbian English Czech) 2 614.70 1 1,229.40 €

Split charge £1052.2 out of total invoice of £1481.07

SAGE Report on Feb 13

External Audit 1168.63 1,168.63 € charge for external auditor To be p aid after lune, as agreed by email

Other Administrative costs 11,759.96 €

Child participation activities: materiais, transportation, support workers, etc. (2250 per country) 4582.21

CP,65.68-CP,85.64-TNM CP,276-I—№ ( Local coordinator) trip to Varna,86.28-Admin & Finance,27.38-Conference

Proof SAGE, BG, CZ,

& Serbia monthly Expenses

Child-choice event(1Q00 per country) 7178

Serbia - £2268.81 & £74.29, CZ-£564.74,475.47 & £404 and BG-£622.49, £647.23, £73 and £1011.91

Proof found in Oct 12, Nov 12 and Dec 12 monthly expenses report

««««•мм*·«.; ·: ·· ν;.:· 19,093.12 €

Summary Receipts Comments

==· h;; ' ·.= : v··..···-;:· : ··.·=; '· •:·- -r -ľ·:··· :·=;·=· ; .V·' .. V"· v

Heading 5 - Overheads

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See SAGE

London Bulgaria Czech Republic Serbia

4,581.04 €

1,762.30 €

2,624.75 €

203.34 €

£3,920

£1,508

£2,246

£174