Upload
nicholas-gibson
View
213
Download
0
Tags:
Embed Size (px)
Citation preview
Outcomes of Targeted, Tailored Outcomes of Targeted, Tailored Outreach to Older Adults Affected by Outreach to Older Adults Affected by Cancer and their Family CaregiversCancer and their Family Caregivers
Paula Klemm, PhD, RN, OCNPaula Klemm, PhD, RN, OCNVeronica F. Rempusheski, PhD, RN, FAAN, FGSAVeronica F. Rempusheski, PhD, RN, FAAN, FGSA
Janet Teixeira, MSS, LCSWJanet Teixeira, MSS, LCSWClaudine Jurkovitz, MD, MPHClaudine Jurkovitz, MD, MPH
Wei Zhang, MSWei Zhang, MSJessica R. Perry, MHPJessica R. Perry, MHP
Marissa Alligood-Merson; Amy ExnerMarissa Alligood-Merson; Amy Exner
September 14, 2012: CANS Conference, Washington, D.C.September 14, 2012: CANS Conference, Washington, D.C.
This project (Academic-Community-Clinical Engagement for Support and Successful outcomes – ACCESS) was supported by grants from the National Center for Research Resources - NCRR
(5P20RR016472-12) and the National Institute of General Medical Sciences - NIGMS (8 P20 GM 103446-12) from the National Institutes of Health. 9/3/09-9/2/12
College of Health SciencesSchool of Nursing
Acknowledgment
Research Team MembersResearch Team Members
Paula Klemm, PhD, RN, OCN, Professor, UD School of NursingVeronica Rempusheski, PhD, RN, FAAN, FGSA, Professor, UD School of NursingJanet Teixeira, MSS, LCSW, Executive Director, Cancer Care Connection (CCC)Claudine Jurkovitz, MD, MPH, Director of Operations, Christiana Care Center for Outcomes Research (CCOR) Wei Zhang, MS Biostatistician, CCORJessica Perry, MHP, Cancer Resource Coach©, CCCMarissa Alligood-Merson; Amy Exner; Research Assistants
2
Presentation OutlinePresentation Outline• Background & Significance• Purpose• Building & sustaining research team• Hypothesis• Methods• Measures• Data Analysis• Results• Conclusion
College of Health Sciences
School of Nursing
BackgroundBackground• Cancer is the 2nd most common cause of death in
the US. In 2012, ~ 1.6 million new cancer cases will be diagnosed in the US & >577,000 people will die of this disease (Cancer Facts & Figures, 2012).
• Increasing age is a risk factor for most types of cancer (i.e. most often a disease of older people)
• Gaps in communication between HC professionals & the community to meet the social, economic & cultural needs of persons with cancer.
• Focused outreach is needed to support persons affected by cancer & their family caregivers.
College of Health SciencesSchool of Nursing 4
DE is among the top 10 states in # of persons who get cancer
DE is ranked 11th in cancer death rates
8 cancer clusters identified in Delaware: 6 in New Castle County 1 in Kent County 1 in Sussex County
~13% of DE’s population is 65+ years old
By 2030, DE a top 10 state by age: older adults projected to comprise 30% of population Largest % in 85+ y/o
College of Health SciencesSchool of Nursing 5
Background Background
New Castle County
Kent County
Sussex County Most growth of elderly
(>200% from 2000)
College of Health SciencesSchool of Nursing 6
Background Background
SignificanceSignificance• Older adults with cancer may receive the best
cancer treatment, but lack awareness about where to find answers to everyday economic, lifestyle & social concerns.
• Aging Americans (who have higher rates of cancer) will benefit from partnerships between community organizations & researchers to meet psychosocial & informational needs.
• Of crucial relevance are the economic, healthcare & psychological benefits that can result from this partnership.
College of Health SciencesSchool of Nursing 7
PurposePurpose
Evaluate outreach strategies using a community-based participatory research (CBPR) approach to older adults and their family caregivers in Delaware’s eight (8) cancer clusters.
College of Health SciencesSchool of Nursing 8
Project AimsProject Aims
1. Expand outreach to older adults affected by cancer and their family caregivers in Delaware
2. Evaluate outreach to older adults affected by cancer and their family caregivers in Delaware
3. Develop a model to sustain outreach to older adults affected by cancer and their family caregivers in Delaware.
College of Health Sciences
School of Nursing
HypothesisHypothesis
Tailored and targeted outreach to older adults and their family caregivers in Delaware’s 8 cancer clusters will increase the number of telephone calls to Cancer Care Connection (CCC) from older adults affects by cancer and their family caregivers.
College of Health Sciences
School of Nursing
The Research TeamThe Research Team
• Partner # 1:• University of Delaware,
School of Nursing:• Researcher #1:
Expertise in oncology and recruitment in the community
• Research #2: Expertise in gerontology and community outreach
• Partner #2: – Cancer Care
Connection: with large multi-year database (iCarol) http://www.cancercareconnection.org/
• Partner #3: – Christiana Care Center
for Outcomes Research: large data base & statistical experts http://www.christianacare.org/CenterforOutcomesResearch
College of Health SciencesSchool of Nursing
BackgroundBackground
Cancer Care ConnectionCancer Care Connection
Telephone-based support to persons affected by cancer including the patient and their caring circles
In 2008, of 500 calls received @ CCC, estimated that <31% were from or for older adults
College of Health SciencesSchool of Nursing 12
Methods: Methods: Community-Based Participatory Community-Based Participatory
Research Research (CBPR)
CBPR principles:Start at the community level – stakeholders
Emphasize & build on community strengths & resources
An authentic self & dialogue dominate
College of Health SciencesSchool of Nursing 13
Role of The Steering Role of The Steering CommitteeCommittee
Six community stakeholders met quarterly to:
o Guide the researchers in expanding outreach to the elderly with cancer in Delaware
o Identify individuals (e.g., residents, family caregivers, employees) at older adult sites (nursing homes, assisted living facilities, senior centers) located in the 8 Delaware cancer clusters
o Engage these individuals collectively & individually to generate additional recommendations for outreach
o Participate in outreach strategies
College of Health SciencesSchool of Nursing 14
MethodsMethods
Outreach strategies recommended by the community stakeholders (i.e., the Steering Committee) were:
– Delivered in English and Spanish….– To 67 sites (senior centers, assisted living
facilities, community centers, nursing homes, senior sporting events)….
– In Delaware’s 8 cancer clusters
College of Health SciencesSchool of Nursing 15
MeasuresMeasuresiCarol caller database developed by CCC
Electronic form that guided caller intake and included:Caller demographics (age, gender, relationship to
patient, location)Patient demographics (age, gender, insurance type,
employer)Disease related information (diagnosis, type of
cancer)Call/case description (problem presented,
assessment, intervention, referral)
College of Health SciencesSchool of Nursing
ProceduresProceduresiCarol databaseiCarol database
• De-identified data transferred to CCOR pre-outreach (9/2/2009); cleaned & organized for analysis
• Subcategorized 65+ age item to increase specificity by decades
• De-identified data transferred to CCOR post-outreach (5/31/2011); cleaned & organized for analysis
College of Health SciencesSchool of Nursing 17
ProceduresProceduresOutreachOutreach
Campaign 2nd Quarter
3rd Quarter
4th Quarter
5th Quarter
Senior Centers (began with Newark Senior Center, NCC)
Preparation & pilot
Implementation
continued continued
Nursing Homes &
Preparation Pilot Implementation
continued
Assisted Living Preparation Pilot Implementation
continued
Hispanic & nursing communities
- Preparation Pilot Implementation
General community
- Preparation Pilot Implementation
Campaign phases: preparation, pilot, implementationStrategies: Developed outreach data collection form; contact form; journaling; activities inserted into Goggle DocsActivities: E-mail/phone/letter contacts, visits, radio, TV, facebook, twitter; health/community fairs; special interest grps; practices/offices; organizationsCollege of Health Sciences
School of Nursing
Outreach Campaign PhasesOutreach Campaign Phases
I. Preparation phase • Create pilot plan with Steering Committee
members• Develop timeline for pilot delivery• Identify and obtain tools – create materials
(flyers, posters, giveaways, brochures, etc.)• Determine distribution channels within campaign• Develop media plan
College of Health SciencesSchool of Nursing 19
Outreach Campaign PhasesOutreach Campaign Phases
II. Pilot Phase• Deliver outputs as identified with Steering
Committee members: Distribute materials, presentations, press releases, website, other media
• Evaluate campaign effectiveness
III. Implementation Phase• Approach & schedule other identified locations
within campaign• Deliver outputs for each location
College of Health SciencesSchool of Nursing 20
New Castle
County
6 Cancer Clusters
Sites: N= 45
• 14 NH
• 9 ALF
• 22 SC
Kent County
1 Cancer Cluster
Sites: N=14
• 6 NH
• 4 ALF
• 4 SC
Sussex County
1 Cancer Cluster
Sites: N= 9
• 2 NH
• 2 ALF
• 1 NH/ALF
• 4 SC
Delaware Cancer Clusters & 68 Outreach SitesDelaware Cancer Clusters & 68 Outreach Sites
Key:NH = Nursing Homes ALF =
Assisted Living Facilities
SC = Senior Centers NH/ALF = combines NH &
ALF
College of Health Sciences
School of Nursing
Distance note:85 miles from Newark (NCC) to Lewes (SC)
Results: Results:
Between 9/3/09 & 5/31/11, CCC received 725 calls from persons in 33 states, Washington D.C., & Canada Compare to baseline, 650 calls received
between 4/2/08 & 9/2/09
• Results of comparison to baseline: Tables 1-4
College of Health SciencesSchool of Nursing
Table 1. Patient’s Table 1. Patient’s ageage
Among those who called after Sept. 3, 2009:Age 65-75: 56 (7.7%); Age 76-85: 25 (3.5%); Age 86-95: 10 (1.4%)Age ≥65 (not specified): 67 (9.2%)
ResultsResults
Targeted, tailored outreach significantly increased access of, and use by older adults affected by cancer and their family caregivers to a telephone-based support program (p = <.0001)
Hypothesis supported
College of Health SciencesSchool of Nursing 28
ConclusionsConclusions
This study advanced knowledge about targeted, tailored outreach using a CBPR approach AND about the optimal use of a telephone-based support service by older adults affected by cancer and their caregivers
College of Health SciencesSchool of Nursing 29
ImplicationsImplicationsResearch
Informational needs of older adults with cancer & their family caregivers are not being met.
States with high cancer rates are projected as possible testing sites for the ACCESS Outreach Sustainability Model.
College of Health SciencesSchool of Nursing 30
Conclusions: Impact of ACCESS grant Conclusions: Impact of ACCESS grant on Cancer Care Connectionon Cancer Care Connection
ActivityActivity1. Staff hires
2. Access to communication experts
3. Community exposure
4. Engagement
5. Evaluation
6. Leveraged ACCESS grant to obtain additional funding
7. Marketing materials
ImpactImpact1. Expanded needed resources &
timely2. UD OCM advice on marketing
materials3. Multi-media message of CCC
services to greater audience 4. Re-energized staff & BOD; hope &
enthusiasm; vote of confidence5. Quantified & added electronic
access to caller satisfaction survey6. Positive responses to requests for
$ to maintain & build on NIH-funded outreach >$190K
7. ACCESS-funded brochures, bags, etc
College of Health Sciences
School of Nursing
Contextual Antecedents Phase I: Identification of Individual Attributes
“who”
Phase II: Identification of System Attributes
“what” & “where”
Phase III: Implementation“when” & “how”
Phase IV: Outcomes
Characteristics of Population of Interest -Live in Cancer clusters-System Structure -Senior Centers -Assisted Living Facilities -Nursing Homes-Age-Potential for cancer diagnosis
Characteristics of Person/Organization Providing Outreach -Knowledgeable about topic of interest-Bilingual-Persistence-Intuitive-Articulate-Good interpersonal skills-Resourceful-Flexible-Seizes opportunities/maximizes opportunities-Credibility-Mission-focused
-Environment -Institution -Community -Culture, race or ethnic group -Language -Beliefs-Activity level of population of interest -Sedentary -Action-oriented-Geography & transportation-Networks-Resources -People -Money -Marketing materials-Educational background-Technology available
-Stakeholders-Entry structural rules & process-Power structure & process-System entry points-Layers of access -Complexity -Privacy -Security -Trust-Vulnerability of population of interest-Visibility of population of interest-Perceived need
-Engagement-Interaction-Presentation-Timing of encounters-Matching schedules
Population of Interest Accesses Organization
Population of Interest Receives Needed Services & Resources
FEEDBACK LOOP
KEY Roadblock necessitating feedback loop & return to previous phase Two-way communication between phases
Financial Characteristics-Organizational operations -Funding-Sustainability
Recognition of Organizational Branding
Recognition of Organizational Mission
FEEDBACK LOOP
ACCESS Outreach Sustainability Model