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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 1 Ontario Renal Reporting System (ORRS) Release 6 (R6) Data Dictionary Effective: April 1, 2017

Ontario Renal Reporting System (ORRS) Release 6 (R6) Data ...€¦ · Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised:

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Page 1: Ontario Renal Reporting System (ORRS) Release 6 (R6) Data ...€¦ · Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised:

Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 1

Ontario Renal Reporting System (ORRS) Release 6 (R6) Data Dictionary

Effective: April 1, 2017

Page 2: Ontario Renal Reporting System (ORRS) Release 6 (R6) Data ...€¦ · Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised:

Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 2

Heading Definitions

Heading Titles Definitions

Entity Name of the business entity corresponding to the data element.

Data Element Name Data element name in the User Interface Application / Upload Tool, etc.

Data Element No. Data element number assigned for reference.

Definition Description of the data element.

Format Description of the data format (e.g. Alphanumeric, Numeric, or Character).

Completion Requirement Indicates if the field is Mandatory/Required or Optional.

Valid Values List of acceptable values for the specific data element.

Validation Rules Edit checks for the data element based on the business rules for data validation.

Purpose and Use Purpose or use of the data element (e.g. date of birth is used to determine patient’s age).

Notes Additional comments, changes to the data elements over time, etc.

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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 3

Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

COMMON DATA ELEMENTS for Pre-Dialysis, Chronic and Acute Patient Registration

Patient Source Record ID

1.1

Unique Identifier for a record assigned at the provider location The Record ID assigned to a record should remain unchanged throughout the entire submission process Record IDs cannot be reused within a provider location

Alphanumeric (20)

Mandatory

Combination of letters, numbers and/or special characters

To identify a unique record for matching purposes

This applies to Chronic, Acute, Pre-dialysis Registration and Treatment Events

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Source Patient ID

1.2

Unique Identifier for a Patient This is used by the provider location to uniquely identify a patient (e.g., medical record number, health care number, birth registry, etc.) The Patient ID is required in all record types It is important that the same patient identifier for a particular patient be used across all record types. For example, the same Patient ID assigned to a particular patient in a registration record must be used in all the Treatment Event records associated with that patient

Alphanumeric (20)

Mandatory To identify a unique patient

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes

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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 5

Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Source Patient ID Issuing Location

1.3

The Patient ID Issuing Location indicates the location responsible for assigning the record’s Patient ID This will enable data providers to reuse the same Patient ID across provider locations

Character (3) Optional

See Appendix for 'Location Codes’, ‘IHF Location Codes’, ‘Self-Care Location Codes’ and ‘Long-Term Care (LTC) Location Codes’ Lists

This data element will be used when the same Patient ID is shared among multiple locations and/or when the same information system is used across various locations to maintain their renal patient data. For example, the same Patient ID can be used across multiple sites within the same facility

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes

Patient Location 1.4 Name of the Location

Character (4) Mandatory

See Appendix for 'Location Codes’, ‘IHF Location Codes’, ‘Self-care Location Codes’ and ‘LTC Location Codes’ lists

The record’s Location must equal the specified Location of the file

This is used to identify the treatment location

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes

Patient LastName 1.5 Patient Last Name

Character (50)

Mandatory Accepted Characters: A-Z, space, ‘ , -

‘Last Name’ field under patient identification on patient registration This field accepts only characters

This data element is a link to Patient Profile on Patient Search Results and is used to uniquely identify a patient

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes

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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 6

Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Former Last Name

1.5.1 Patient's Former Last Name

Character (50)

Optional Accepted Characters: A-Z, space, ‘ , -

‘Former Last Name’ under patient identification on patient registration This field accepts only characters

NOTE: This

data element pertains ONLY to ORRS Application (Basic Facilities) This applies to Chronic, Acute, Pre-dialysis Registration and Treatment Events

Patient FirstName 1.6 Patient First Name

Character (50)

Mandatory Accepted Characters: A-Z, space, ‘ , -

‘First Name’ field under patient identification on patient registration This field accepts only characters

This data element is a link to Patient Profile on Patient Search Results and is used to uniquely identify a patient

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes

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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 7

Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Health Card Number (ORRS Linking)

1.7

Patient's Health Card Number Numeric portion of the health insurance card number assigned by the provincial government Health card number is the patient's health insurance number assigned by their provincial government of residence

Alphanumeric (12)

Optional

Provincial Validation Rules AB - 9 numeric BC - 10 numeric MB - 6 or 9 numeric NB - 9 numeric NL - 12 numeric NS - 10 numeric NT - 8 alphanumeric NU - 9 numeric ON - 10 numeric PE - 8 numeric QC - 12 alphanumeric SK - 9 numeric YT - 9 numeric

‘Health Card Number’ field under patient identification on patient registration must align with provincial validation rules. Mod 10 check is for Ontario Health Card Numbers only. Note: Ontario Health Card version values are not included in this check

To support changes in the responsibility for payment over time

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes This field is only applicable to Standard facilities to support changes in the responsibility for payment

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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 8

Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Payment Health Card Number

1.7.1

Payment Health Card Number Numeric portion of the health insurance card number assigned by the provincial government Health card number is the patient's most recent health insurance number assigned by their provincial government of residence

Alphanumeric (12)

Conditionally Mandatory

Provincial Validation Rules AB - 9 numeric BC - 10 numeric MB - 6 or 9 numeric NB - 9 numeric NL - 12 numeric NS - 10 numeric NT - 8 alphanumeric NU - 9 numeric ON - 10 numeric PE - 8 numeric QC - 12 alphanumeric SK - 9 numeric YT - 9 numeric

This field becomes mandatory if ‘Payment Health Card Number Not Available’ field’s value is identified as ‘No’

Used to identify the patient insurance status

This applies to Chronic, Acute, Pre-dialysis Registration and, Treatment Events, such as TI, TR-IN, RR, RP and F Field labelled as Health Card Number within Basic application and Payment Health Card Number within Standard upload templates

Patient Province of Health Card Number

1.8 Province of Health Card (if not Ontario)

Character (2) Mandatory

NL, PE, NS, NB,QC, ON, MB, SK,AB, BC, NT, YT, NU, CA, Not Applicable

‘Province Of Health Card Number’ field under patient identification on patient registration becomes mandatory if ‘Patient Does Not Have A HCN’ is unchecked and becomes inactive if ‘Patient Does Not Have A HCN’ field’s value is checked

Used to identify the patient insurance origin

This applies to Chronic, Acute, Pre-dialysis Registration and, Treatment Events

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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 9

Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Payment Health Card Number Not Available

1.9

Indicates that the patient had no health card available at the time of service

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: Y - Yes (True - HCN is not available) N - No (False - HCN is available) Blank: Required

‘Patient does not have Health Card Number” field must accept only one of the two valid values This field’s default value will be ‘Unchecked’

Data quality

This applies to Chronic, Acute, Pre-dialysis Registration, and Treatment Events

Patient Reason for No or Invalid HCN

Records dated on or after April 1, 2017 are not required to report this data element. The User Interface will be disabled and upload will reject files if there is a value in the file. Refer to ORRS R5 Technical Specifications and/or ORRS R5 Data Dictionary for data element details.

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Responsibility for Payment

1.9.2

Used to indicate the primary source responsible for payment of services

Character (2) Mandatory

01 –Provincial/territorial responsibility 02 – Workers’ Compensation Board/Workplace Safety and Insurance Board (WCB/WSIB), Workers’ Service Insurance Board or equivalent 03 – Other province/territory (resident of Canada) 04 – Department of Veteran Affairs (DVA)/Veterans Affairs Canada (VAC) 05 – First Nations and Inuit Health Branch 06 – Other federal government (Department of National Defence, Citizenship and Immigration), or penitentiary inmates 07 – Canadian resident self-pay 08 – Other countries resident self-pay

To determine the primary source for payment over the course of the CKD patient journey

This applies to Chronic, Acute, Pre-Dialysis Registration and Treatment Events: RP, RR, TI, TR-IN, F

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Date Of Birth 1.10 Patient Date of Birth

Date (10) Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

‘Date of Birth’ field’s value must be selected from the calendar provided in the application. This field’s value must be earlier (less) than the current date

Used to identify a patient and calculate age of the patient

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes

Patient Gender 1.11 Patient's gender Character (1) Mandatory M - Male F - Female O - Other

‘Gender’ field under patient identification on patient registration must be a value from a pre-populated list

Used to identify patient special demographic characteristics - gender/sex

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment Events and CKD Service Volumes

Patient Race 1.12 Patient's race Character (2)

Mandatory (for Pre-

dialysis and Chronic)

Optional

(for Acute)

1 - Caucasian 2 – Asian /Oriental 3 - Black 5 - Indian Sub-Continent 8 - Pacific Islander 9 - Native American/Aboriginal 10 - Mid-East/Arabian 11 - Latin American 12 - African Origin 98 - Unknown 99 - Other/Multiracial

‘Race’ field under patient identification on Pre-Dialysis patient registration is mandatory ‘Race’ field under patient identification on Acute & Chronic patient registration is optional

Used to identify patient special demographic characteristics - race

This applies to Chronic, Acute and Pre-dialysis Registration

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient If Other, Specify 1.13

Patient's race to be specified, if not identified from the predefined race options

Character (50)

Optional Open text field

‘If Other, Specify’ field under patient identification on patient registration must auto-refresh every time the value for ‘Race’ field is updated

Used to identify patient special demographic characteristics - race

This applies to Chronic, Acute and Pre-dialysis Registration

Patient

Aboriginal Classification

1.13.1 Type of Aboriginal classification

Character (2) Conditionally Optional

1 - First Nations 2 - Inuit 3 - Métis 99 - Other

Becomes optional on selection of “Native American/Aboriginal" in ‘Race’ field. It must be a value from a pre-populated list

Enhance ‘Race’ for capturing Aboriginal information to support access to service priority

Patient Other Aboriginal Classification

1.13.2 Type of other Aboriginal classification

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory on selection of “Other” in ‘Aboriginal Classification’. Accepted Characters: A-Z, space, ‘ , -

Enhance ‘Race’ for capturing Aboriginal information to support access to service priority

Patient Settlement Area 1.13.3

Area of settlement if ‘Native American/ Aboriginal’ is selected as Race

Character (1) Conditionally Optional

1 - On reserve 2 - Off reserve

Becomes optional on selection of “Native American/ Aboriginal” in ‘Race’ field. It must be a value from a pre-populated list

Enhance ‘Race’ for capturing Aboriginal information to support access to service priority

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Patient Address – City

1.14 Patient's current city/town of residence

Character (30)

Optional

‘City’ field under patient identification on patient registration must be a value from a pre-populated list ‘City’ field’s pre-populated list will be based on the value selected for ‘Province’ field ‘City’ field’s pre-populated list will auto-refresh every time the value for ‘Province’ field is updated

Used to identify patient special demographic characteristics -location

This applies to Chronic, Acute and Pre-dialysis Registration

Patient Patient Address – Province

1.15 Patient's province of residence

Character (2) Mandatory

NL, PE, NS, NB, QC, ON, MB, SK, AB, BC, NT, YT, NU, 99 (Out of Canada)

‘Province’ field under patient identification on patient registration must be a valid value from the pre-populated list

Used to identify patient for geographic analysis

This applies to Chronic, Acute and Pre-dialysis Registration

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Patient Address - Postal Code

1.16

Patient's postal code of their home address A postal code is a series of letters and/or digits appended to a postal address for the purpose of sorting mail Format for Canadian Postal Code: A#A#A#

Alphanumeric (6)

Mandatory A#A#A#

‘Postal Code’ field under patient identification on patient registration must accept only alpha-numeric characters. (No special characters are allowed)

Used to identify patient for geographic analysis

This applies to Chronic, Acute and Pre-dialysis Registration

Patient ORRS Patient ID 1.17

This is an ORRS system generated identifier on initial registration of the patient This is used in conjunction with other patient credentials (i.e. last name, first name, date of birth, gender and health card number) to match to a patient in ORRS

Numeric (10) Optional

Used to identify and match with a patient in ORRS

This applies to Chronic, Acute, Pre-dialysis Registration, Treatment events and CKD Service Volumes

Patient Registration Type

1.18

This indicates if this is an initial or secondary registration in ORRS and pertains to Registration (Acute, Chronic and Pre-dialysis) only

Character (1) Mandatory I - Initial Registration S - Secondary Registration

Used to identify whether the registration is initial or secondary

This applies to Chronic, Acute and Pre-dialysis Registration - ONLY for the ORRS Upload Tool (Standard facilities)

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Street Address Line 1

1.19

This is an additional address field to capture detailed address for all registration types

Alphanumeric (100)

Mandatory

Used to identify the complete address of the patient to support quality improvement initiatives

Patient Street Address Line 2

1.20

This is an additional address field to capture detailed address for all registration types

Alphanumeric (100)

Optional

Used to identify the complete address of the patient to support quality improvement initiatives

Patient Address Is Not A Private Residence

1.21

Flag to indicate that residence is not a private residence

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N - No Y - Yes

Identify patients residing in LTC homes, Rehab Facilities and/or Complex Care Centres to understand the demand for assisted dialysis given travel from LTC, CCC or Rehab to in-facility

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Ontario Renal Network | Effective: April 1, 2017 | ORRS R6 Data Dictionary | Released: August 8, 2016 l Revised: November 30, 2016 16

Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Type Of Residence

1.22 Residence type if not a private residence

Character (2) Conditionally Mandatory

1 - Complex Continuing Care Centre 2 - Long Term Care Home 3 - Rehab Facility 99 - Other

Becomes mandatory when the address is not a private residence. It must be a valid value from the pre-populated list

Identify patients residing in LTC homes, Rehab Facilities and/or Complex Care Centres to understand the demand for assisted dialysis given travel from LTC, CCC or Rehab to in-facility

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Patient Other Type Of Residence

1.23 Other type of residence

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory when the address is not a private residence and "99 - Other" is selected for ‘Type Of Residence’. Accepted Characters: A-Z, space, ‘ , -

Identify patients residing in LTC homes, Rehab Facilities and/or Complex Care Centres to understand the demand for assisted dialysis given travel from LTC, CCC or Rehab to in-facility

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

CHRONIC REGISTRATION

Chronic Registration

MRP 2.0

Most Responsible Physician (MRP): Nephrologist who is responsible for the care and treatment of the patient for the majority of the visit/treatment to the health care facility. The MRP assumes responsibility for any treatment provided resulting from his or her written or verbal order. If the physician is not physically present in the health care facility but provides orders for treatment, he or she will continue to be responsible for the patient’s care and should be recorded as the MRP. For chronic dialysis patient registration, the most recent MRP is the physician who provided outpatient pre-dialysis care prior to initiation of dialysis care.

Character (10) Optional

For an individual physician, the MRP is The College of Physicians and Surgeons of Ontario (CPSO) number 00000 - ‘Physician

Shared Care Model’ when a single physician is not

applicable 00002 - ‘Prior outpatient pre-dialysis care at other program’

00016 - ‘MRP Nephrologist is not in ORRS’ if physician is not available in pre-populated list 00999 - ‘No prior outpatient Nephrologist care’ if patient did not receive outpatient pre-dialysis care

ORRS Application It must be a valid value from the pre-populated list ORRS Upload Tool It must be a valid value within pre-defined back-end values

Ability to identify the Most Responsible Physician over time at key points in the patient journey

Do not report the physician that initiated acute or chronic dialysis The ORRS application provides the ability to retrieve the ‘MRP’ and ‘Date First Seen by MRP’ within your program as reported in a Treatment Event or Pre-dialysis registration (use the ‘Find Recent MRP’ button)

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Date First Seen by MRP

2.0.1

The most recent date on which the Most Responsible Physician (MRP) provided outpatient pre-dialysis care prior to dialysis initiation in either a private office or a specialty/ multidisciplinary clinic

Date (10) Conditionally Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

Becomes mandatory when MRP value is provided The Date First Seen by MRP must be greater than the patient’s Date of Birth The Date First Seen by MRP must be on or after Date First Seen By Nephrologist

To identify period of patient follow-up to support quality improvement initiatives

The ORRS application provides the ability to retrieve the ‘MRP’ and ‘Date First Seen by MRP’ within your program as reported in a Treatment Event or Pre-dialysis registration (use the ‘Find Recent MRP’ button)

Chronic Registration

Patient Transferred Into Ontario?

2.1

Indicates if the patient was transferred into Ontario

Character (1) Conditionally

Optional N – No Y – Yes

Used to identify if the patient was transferred into Ontario

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Date Of Referral To Nephrologist

2.67 The date of referral to see a Nephrologist

Date (10) Optional

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

The Date Of Referral To Nephrologist must be greater than the patient’s Date of Birth The Date Of Referral To Nephrologist must be on or before the date when the patient was first seen by a Nephrologist Date Of Referral To nephrologist will be pre-populated between the Pre-Dialysis and Chronic registrations. Because it represents the first referral date provided, the system will accept new or modified date of referral dates on only one registration. Date of referral subsequently provided on the other registration will be ignored

To track the date of referral to nephrologist on initiation of chronic dialysis to support quality improvement initiatives

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Date First Seen By Nephrologist

2.2 The date first seen by Nephrologist

Date (10) Optional

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

The date when the patient was first seen by a Nephrologist must be greater than the patient’s date of birth The date when the patient was first seen by a Nephrologist must be less than or equal to the current date

Used to identify pre-dialysis care and CKD status

Chronic Registration

Creatinine When First Seen By Nephrologist

2.3

Creatinine value at first Nephrologist visit The lab test performed at first nephrology visit The initial result for creatinine (µmol/L) when followed by Nephrologist

Numeric (4) Conditionally Mandatory

9999

IF ‘Date First Seen By Nephrologist’ is not blank THEN ‘Creatinine When First Seen By Nephrologist’ cannot be blank

Used to identify pre-dialysis care and CKD status

Chronic Registration

Patient Followed By Nephrologist Prior To Dialysis?

2.4

Patient followed by Nephrologist in an outpatient clinic prior to initiating dialysis

Character (1) Mandatory N - No Y - Yes U - Unknown

‘Patient Followed By A Nephrologist Prior To Dialysis’ field under pre-dialysis and initial blood work group on Chronic patient registration must be a value from a pre-populated list

Used to identify pre-dialysis care and CKD status

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Where Was Patient Followed?

2.5

Where the patient was seen before the start of dialysis

Character (1) Conditional

Optional

1 - Office 2 - Clinic 3 - Both

‘Where’ field under pre-dialysis and initial blood work group on Chronic patient registration must be activated only if ‘Was the patient followed by a Nephrologist” field’s value is “Yes” “Where” field under pre-dialysis and initial blood work group on Chronic patient registration must auto-refresh every time the value for “Was The Patient Followed By A Nephrologist Prior To Dialysis’ field is updated

Used to identify pre-dialysis care and CKD status

Chronic Registration

Followed In Multidisciplinary Clinic?

2.6 Patient was followed in CKD specialty clinic

Character (1) Optional N - No Y - Yes U - Unknown

‘Followed In Multidisciplinary Clinic’ field under pre-dialysis and initial blood work group on Chronic patient registration must be a value from a pre-populated list

Used to identify pre-dialysis care and CKD status

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Date Of Referral To Multidisciplinary Clinic

2.7

Date of first referral to multidisciplinary (specialty) clinic

Date (10) Optional

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

The ‘Date Of Referral To Multidisciplinary Clinic’ must be greater than patient’s Date of Birth

Used to identify pre-dialysis care and CKD status

Chronic Registration

Patient Receiving Erythropoietin Prior To Initial Dialysis?

2.8

Erythropoietin (EPO) received prior to dialysis treatment

Character (1) Optional 2 - No 3 - Unknown 4 - Yes – Eprex 5 - Yes – Aranesp 6 - Yes - Other

‘Patient Receiving Erythropoietin Prior To Initial Dialysis’ field under pre-dialysis and initial blood work group on Chronic patient registration must be a value from a pre-populated list

Used to identify patient clinical characteristics

Chronic Registration

Hemoglobin (g/L) 2.9

Hemoglobin test results prior to starting dialysis; the latest results for hemoglobin (g/L) for the patient

Numeric (3) Optional 999

‘Hemoglobin’ field’s usual range of values is 60-140 g/L (inclusive)

Used to identify patient clinical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Hemoglobin Test Not Done

2.9.1 Flag to identify if Hemoglobin test was not done

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N- No Y -Yes

Enhance data quality for Chronic Registration lab values by providing an option to indicate whether labs were not available. Lab tests that are marked “Test Not Done”, will not appear in the missing data report

Chronic Registration

Creatinine (μmol/L)

2.10 Creatinine test result prior to starting dialysis

Numeric (4) Mandatory 9999

‘Creatinine’ field’s usual range of values is 300-1500 μmol/L (inclusive)

Used to identify patient clinical characteristics

Chronic Registration

Urea (mmol/L) 2.11

Urea test result prior to starting dialysis; the latest results for urea (mmol/L) for the patient

Numeric (3,1) Optional 999.9

‘Urea’ field’s usual range of values is 15-40 mmol/L (inclusive)

Used to identify patient clinical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Urea Test Not Done

2.11.1 Flag to identify if Urea test was not done

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N- No Y -Yes

Enhance data quality for Chronic Registration lab values by providing an option to indicate whether labs were not available. Lab tests that are marked “Test Not Done”, will not appear in the missing data report

Chronic Registration

Serum Bicarbonate/CO2 (mmol/L)

2.12

Serum bicarbonate test result prior to starting dialysis; the latest results for Serum Bicarbonate or Serum CO2 (mmol/L) for the patient

Numeric (2) Optional 99

‘Serum Bicarbonate/CO2’ field’s usual range of values is 20-30 mmol/L (inclusive)

Used to identify patient clinical characteristics

Chronic Registration

Serum Bicarbonate/CO2 Test Not Done

2.12.1

Flag to identify if Serum Bicarbonate/CO2 test was not done

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N- No Y -Yes

Enhance data quality for Chronic Registration lab values by providing an option to indicate whether labs were not available. Lab tests that are marked “Test Not Done”, will not appear in the missing data report

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Serum Calcium (mmol/L)

2.13

Calcium test result prior to starting dialysis; the latest results for Serum Calcium (mmol/L) for the patient

Numeric (1,2) Optional 9.99

‘Serum Calcium’ field’s usual range of values is 2.20-2.60 mmol/L (inclusive) if “Corrected” is selected in drop down ‘Serum Calcium’ field’s usual range of values is 1.19-1.29 mmol/L (inclusive) if “Ionized” is selected in drop down ‘Serum Calcium’ field’s usual range of values is 2.10-2.60 mmol/L (inclusive) if “Uncorrected” is selected in drop down

Used to identify patient clinical characteristics

Chronic Registration

Serum Calcium Type

2.14 This is to identify the Serum Calcium Type

Character (1) Optional 1 - Corrected 2 - Uncorrected 3 - Ionized

Used to identify patient clinical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Serum Calcium Test Not Done

2.14.1

Flag to identify if Serum Calcium test was not done

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N- No Y -Yes

Enhance data quality for Chronic Registration lab values by providing an option to indicate whether labs were not available. Lab tests that are marked “Test Not Done”, will not appear in the missing data report

Chronic Registration

Serum Phosphate (mmol/L)

2.15

Phosphate test result prior to starting dialysis; the latest results for serum phosphate (mmol/l) for the patient

Numeric (1,2) Optional 9.99

‘Serum Phosphate’ field’s usual range of values is 1.5-1.8 mmol/L (inclusive)

Used to identify patient clinical characteristics

Chronic Registration

Serum Phosphate Test Not Done

2.15.1

Flag to identify if Serum Phosphate test was not done

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N- No Y -Yes

Enhance data quality for Chronic Registration lab values by providing an option to indicate whether labs were not available. Lab tests that are marked “Test Not Done”, will not appear in the missing data report

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Serum Albumin (g/L)

2.16

Albumin test result prior to starting dialysis; the latest results for albumin (g/L) for the patient

Numeric (2) Optional 99

‘Serum Albumin’ field’s usual range of values is 25-50 g/L (inclusive)

Used to identify patient clinical characteristics

Chronic Registration

Serum Albumin Test Not Done

2.16.1

Flag to identify if Serum Albumin test was not done

Character (1) Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N- No Y -Yes

Enhance data quality for Chronic Registration lab values by providing an option to indicate whether labs were not available. Lab tests that are marked “Test Not Done”, will not appear in the missing data report

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Serum Parathormone (PTH)

2.17

Parathormone test result prior to starting dialysis; the latest results for serum parathormone for the patient

Numeric (3,1) Optional 999.9

‘Serum Parathormone’ field’s usual range of values is 1.3-7.6 pmol/L (inclusive) if “pmol/L” is selected in drop down. ‘Serum Parathormone’ field’s usual range of values is 18-73 ng/L (inclusive) if “ng/L” is selected in drop down. ‘Serum Parathormone’ field’s usual range of values is 10-65 pg/ml (inclusive) if “pg/ml” is selected in drop down

Used to identify patient clinical characteristics

Chronic Registration

PTH Units of Measure

2.18 Unit of Measure (Flag for the type of PTH test)

Character (1) Optional 1 - pmol/L 2 - ng/L 3 - pg/ml

Unit of measure for Serum Parathormone

Chronic Registration

PTH Test Not Done

2.19 Flag to identify if test not done

Character (1) Optional N - No Y - Yes

Used to identify if the PTH test was not done

Chronic Registration

Comments 2.20 Place to record additional comments, if any

Character (255)

Optional Open text field

This is an open text field to record additional information

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Access Used At Time Of First Dialysis

2.21

Body/venous access type used at first chronic dialysis treatment

Character (2) Mandatory

1 - Temporary catheter non-cuffed 2 - Temporary catheter cuffed 3 - Permanent catheter non-cuffed 4 - Permanent catheter cuffed 5 - AV fistula 6 - AV graft 7 - PD Catheter

‘Access Used At Time Of First Dialysis’ field under Initial & Intended Dialysis Treatment on Chronic patient registration must be a value from a pre-populated list. This is the access used to receive the dialysis treatment/modality identified in the chronic patient registration form

Used to identify the access type used at the start of chronic dialysis treatment

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Dialysis Treatment Start Date

2.22 To identify start of the chronic dialysis treatment

Date (10) Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

‘Dialysis Treatment Start Date’ field under Initial & Intended dialysis treatment on Chronic patient registration must be greater than ‘Date Of Birth’ field’s value. ‘Dialysis Treatment Start Date’ field under Initial & Intended dialysis treatment on Chronic patient registration must be greater than ‘Date When Patient First Seen By Nephrologist’ field’s value ‘Dialysis Treatment Start Date’ field’s value must not occur during the month for which the census period has been closed

Used to identify length of treatment

Chronic Registration

Initial Dialysis Treatment Code

2.23 Type of Dialysis Modality

Character (3) Mandatory See ‘Treatment (Modality) Codes – Chronic Specific’ list

‘Level Of Care’ field’s value must be a valid combination in conjunction with ‘Location’ and ‘Type’ fields’ values

This is to identify and track the type of dialysis modality

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Intended Long-Term Treatment?

2.24

To identify if the initial dialysis treatment is intended long term treatment

Character (1) Optional N - No Y - Yes U - Unknown

‘Is this initial treatment intended long-term dialysis treatment for this patient’ field under Initial & Intended dialysis treatment on Chronic patient registration must be a value from a pre-populated list

Used to identify the modality of initial dialysis treatment

Chronic Registration

Reason For Not Intended Long-term Treatment

2.25

Reason why initial treatment was not intended long term treatment

Character (1) Conditionally

Optional

1 - No facilities/space available 2 - No mature access 3 - Unforeseen change in patient status leading to sudden dialysis start 4 - Other

‘If not, why not’ field under Initial & Intended dialysis treatment on Chronic patient registration will be applicable only if ‘Is this initial treatment intended long-term dialysis treatment for this patient’ field’s value is “No”

Used to identify why initial treatment was not intended for long term treatment

Chronic Registration

Other Reason For Not Intended Long-term Treatment

2.26

If not the intended treatment, specify other treatment

Character (50)

Conditionally Mandatory

Open text field

‘Other’ field under Initial & Intended dialysis treatment on Chronic patient registration will be activated only when ‘If not, why not’ field’s value is “Other”

Used to identify other treatment

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Intended Long-term Treatment Code?

2.27

Type of the intended dialysis treatment. Consists of treatment location code, treatment type code and level of assistance care code. Treatment Location

Character (3) Conditionally

Optional

See Appendix for ‘Treatment (Modality) Codes – Chronic Specific’ list

“Level of Care” field’s value must be a valid combination in conjunction with “Location” and “Type” fields’ values

Used to identify intended modality treatment

Chronic Registration

Not Home HD Modality Reason 1

2.28 Reason for Not Home HD Modality

Character (2) Conditionally Mandatory

See Appendix for 'Home HD Reason Codes' list

IF Initial Dialysis Treatment Code in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home HD Modality Reason 1 cannot be blank

To identify primary reason for why not Home HD Modality

Chronic Registration

Not Home HD Modality Other Reason 1

2.29 Reason for Not Home HD Modality

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 1 = ‘55’ THEN Not Home HD Modality Other Reason 1 cannot be blank

To identify other primary reason for why not Home HD Modality

Chronic Registration

Not Home HD Modality Reason 2

2.30 Reason for Not Home HD Modality

Character (2) Conditionally

Optional

See Appendix for 'Home HD Reason Codes' list

IF Initial Dialysis Treatment Code NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home HD Modality Reason 2 must be blank

To identify secondary reason for why not Home HD Modality

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Not Home HD Modality Other Reason 2

2.31 Reason for Not Home HD Modality

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 2 = ‘55’ THEN Not Home HD Modality Other Reason 2 cannot be blank

To identify other secondary reason for why not Home HD Modality

Chronic Registration

Not Home HD Modality Reason 3

2.32 Reason for Not Home HD Modality

Character (2) Conditionally

Optional

See Appendix for 'Home HD Reason Codes' list

IF Initial Dialysis Treatment Code NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home HD Modality Reason 3 must be blank

To identify tertiary reason for why not Home HD Modality

Chronic Registration

Not Home HD Modality Other Reason 3

2.33 Reason for Not Home HD Modality

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 3 = ‘55’ THEN Not Home HD Modality Other Reason 3 cannot be blank

To identify other tertiary reason for why not Home HD Modality

Chronic Registration

Not Home PD Modality Reason 1

2.34 Reason for Not Home PD Modality

Character (2) Conditionally Mandatory

See Appendix for ‘Home PD Reason Codes’ list

IF Initial Dialysis Treatment Code in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home PD Modality Reason 1 cannot be blank

To identify primary reason for why not Home PD Modality

Chronic Registration

Not Home PD Modality Other Reason 1

2.35 Reason for Not Home PD Modality

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 1 = ‘55’ THEN Not Home PD Modality Other Reason 1 cannot be blank

To identify other primary reason for why not Home PD Modality

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Not Home PD Modality Reason 2

2.36 Reason for Not Home PD Modality

Character (2) Conditionally

Optional

See Appendix for ‘Home PD Reason Codes’ list

IF Initial Dialysis Treatment Code NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home PD Modality Reason 2 must be blank

To identify secondary reason for why not Home PD Modality

Chronic Registration

Not Home PD Modality Other Reason 2

2.37 Reason for Not Home PD Modality

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 2 = ‘55’ THEN Not Home PD Modality Other Reason 2 cannot be blank

To identify other secondary reason for why not Home PD Modality

Chronic Registration

Not Home PD Modality Reason 3

2.38 Reason for Not Home PD Modality

Character (2) Conditionally

Optional

See Appendix for ‘Home PD Reason Codes’ list

IF Initial Dialysis Treatment Code NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home PD Modality Reason 3 must be blank

To identify tertiary reason for why not Home PD Modality

Chronic Registration

Not Home PD Modality Other Reason 3

2.39 Reason for Not Home PD Modality

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 3 = ‘55’ THEN Not Home PD Modality Other Reason 3 cannot be blank

To identify other tertiary reason for why not Home PD Modality

Chronic Registration

HD Catheter Reason 1

2.40 HD Catheter Reason 1

Character (2) Conditionally Mandatory

See Appendix for ‘VA Reason Codes - Milestone 4’ list

IF Access Used at Time of First Dialysis in (1, 2, 3, 4) THEN HD Catheter Reason 1 cannot be blank

To identify primary reason for HD Catheter

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

HD Catheter Other Reason 1

2.41 HD Catheter Other Reason 1

Character (100)

Conditionally Mandatory

IF HD Catheter Reason 1 = ‘55’ THEN HD Catheter Other Reason 1 cannot be blank

To identify other primary reason for HD Catheter

Chronic Registration

HD Catheter Reason 2

2.42 HD Catheter Reason 2

Character (2) Conditionally

Optional

See Appendix for ‘VA Reason Codes - Milestone 4’ list

IF Access Used at Time of First Dialysis NOT in (1, 2, 3, 4) THEN HD Catheter Reason 2 must be blank

To identify secondary reason for HD Catheter

Chronic Registration

HD Catheter Other Reason 2

2.43 HD Catheter Other Reason 2

Character (100)

Conditionally Mandatory

IF HD Catheter Reason 2 = ‘55’ THEN HD Catheter Other Reason 2 cannot be blank

To identify other secondary reason for HD Catheter

Chronic Registration

Patient Informed About Kidney Transplantation

2.43.1

Indicate whether the patient has been informed about the option of kidney transplantation

Character (1) Mandatory N - No Y - Yes

Capture minimal data related to transplant assessment/ education

Chronic Registration

Patient a candidate for Kidney Transplantation

2.43.2

Indicate whether the patient is or will be a candidate for kidney transplantation

Character (1) Optional

N - No Y - Yes P – Not until - patient must meet following precondition(s)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Patient not a candidate for Kidney Transplantation Reason

2.43.3

The reason why the patient is not a candidate for kidney transplantation

Character (2) Conditionally Mandatory

1 - Severe uncorrectable cardiac disease 2 - Severe uncorrectable peripheral vascular disease 3 - Short life expectancy 4 - Severe uncorrectable cognitive impairment 5 - Severe uncorrectable diagnosed psychiatric condition 6 - Severe uncorrectable impaired physical condition 7 - A cancer that makes patient permanently ineligible for transplant 8 - Patient totally unwilling to receive a transplant 99 - Other – permanent contraindication to transplant, please specify

Becomes mandatory when patient is not a candidate for kidney transplantation (2.43.2 - “N- No”)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Patient not a candidate for Kidney Transplantation Other Reason

2.43.4

Other reason why the patient is not a candidate for kidney transplantation

Character (100)

Conditionally Mandatory

Becomes mandatory when “99 - Other – permanent contraindication

to transplant, please specify” is selected within ‘Patient not a candidate for Kidney Transplantation Reason’(2.43.2 – “N – No”)

Capture minimal data related to transplant assessment/ education

Chronic Registration

Patient not a candidate for Kidney Transplantation Preconditions

2.43.5

The precondition(s) that must be met before the patient is a candidate for kidney transplantation

Character (2) Conditionally Mandatory

50 -Must lose defined amount of weight 51 - Must show adherence 52 - Must complete cardiology assessment 99 – Other - please specify (e.g. dental work, stop smoking etc)

Becomes mandatory when patient must meet precondition(s) to be a candidate for kidney transplantation (2.43.2 – “P Not until - patient must meet following precondition(s)” )

Capture minimal data related to transplant assessment/ education

Chronic Registration

Patient not a candidate for Kidney Transplantation Other Preconditions

2.43.6

The other precondition(s) that must be met before the patient is a candidate for kidney transplantation

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory when “99 - Other” is selected within “Patient not a candidate for Kidney Transplantation Preconditions” (2.43.2 – P- Not until - patient must meet following precondition(s)”)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Patient aware of Living Kidney Donor and willing to accept that kidney

2.43.7

The patient is aware of a family member or friend who is interested in being a living kidney donor and is willing to accept that kidney

Character (1) Optional N - No Y - Yes

Capture minimal data related to transplant assessment/ education

Chronic Registration

Patient not aware of Living Kidney Donor and / or not willing to accept that kidney Reason

2.43.8

The reason why the patient is not aware of a family member or friend who is interested in being a living kidney donor and/or is unwilling to accept that kidney

Character (2) Conditionally Mandatory

1 - Patient has not yet been informed about living donor transplant option 2 - Patient has no potential living donor 3 - Patient has potential living donor but has not yet discussed with family or friends 4 - Patient has potential living donor but patient unwilling to accept donation 5 - Patient unwilling to have any kind of kidney transplant (deceased or living donor) 99 – Other - please specify

Becomes mandatory when patient is not aware of a family member or friend who is interested in being a living kidney donor and/or is unwilling to accept that kidney (2.43.7 – “N – No”)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Patient not aware of Living Kidney Donor and / or not willing to accept that kidney Other Reason

2.43.9

The other reason why the patient is not aware of a family member or friend who is interested in being a living kidney donor and/or is unwilling to accept that kidney

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory when “99 - Other” is selected within ‘Patient not aware of Living Kidney Donor and / or not willing to accept that kidney Reason’ (2.43.7 – “P - Not until - patient must meet following precondition(s)”)

Capture minimal data related to transplant assessment/ education

Chronic Registration

Active On Deceased Donor Transplant Waiting List

2.43.10

Flag whether the patient is currently active on the deceased donor transplant waiting list

Character (1) Optional N - No Y - Yes

Capture minimal data related to transplant assessment/ education

Chronic Registration

Not on Deceased Donor Transplant Waiting List Reason

2.43.11

The reason why the patient is not currently active on the deceased donor transplant waiting list

Character (2) Conditionally Mandatory

1 - Patient suitable and currently undergoing work-up 2 - Patient has not yet been informed about transplant 3 - Patient suitable, but unwilling at present 4 - On deceased donor list but “on hold” at present 5 - Patient pursuing living donor transplant instead 6 - Workup complete but eGFR > 15 mls/min (pre-dialysis patient only) 99 – Other – please specify

Becomes mandatory when patient is not currently active on the deceased donor transplant waiting list (2.43.10 - “N - No”)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Not on Deceased Donor Transplant Waiting List Other Reason

2.43.12

Other reason the patient is not currently active on the deceased donor transplant waiting list

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory when “99 - Other” is selected within ‘Not On Deceased Donor Transplant Waiting List Reason’

Capture minimal data related to transplant assessment/ education

Chronic Registration

Deceased Donor Transplant Waiting List On Hold Reason

2.43.13

The reason why the patient is on the deceased donor transplant waiting list but on hold

Character (2) Conditionally Mandatory

1 - Acute illness 2 - Recent cancer diagnosis 3 - Patient choice to go on temporary hold 4 - Ongoing test requirements not met 99 – Other – please specify

Becomes mandatory when patient is on hold on deceased donor transplant waiting list (2.43.11 - Option 4)

Capture minimal data related to transplant assessment/ education

Chronic Registration

Deceased Donor Transplant Waiting List On Hold Other Reason

2.43.14

Open text field for other reason the patient is on the deceased donor transplant waiting list but on hold

Character (100)

Conditionally Mandatory

Becomes mandatory when "99 - Other” is selected within ‘Deceased Donor Transplant Waiting List On Hold Reason’

Capture minimal data related to transplant assessment/ education

Chronic Registration

Height At First Dialysis Treatment (cm)

2.44 Height (cm) of the patient at the time of dialysis

Numeric (3,3) Conditionally Mandatory

999.999

Becomes mandatory when ‘Height And/or Weight Cannot Be Provided Because Patient Is’ field is blank

Used to identify patient physical characteristics

Chronic Registration

Weight Within First Month Of Treatment (kg)

2.45

The patient's actual weight in kg during treatment for chronic renal failure

Numeric (3,3) Conditionally Mandatory

999.999

Becomes mandatory when ‘Height and/or Weight Cannot Be Provided Because Patient Is’ field is blank

Used to identify patient physical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Height And/or Weight Cannot Be Provided Because Patient Is

2.46

Reason Height and/or Weight cannot be provided

Character (1)

Conditionally Mandatory

1 - Double leg amputee 2 - Other

Becomes mandatory if Height and/or Weight are blank

Data quality

Chronic Registration

Height And/or Weight Cannot Be Provided Because Patient Is, Other Reason

2.47

Open text field for other reason why Height and/or Weight is not available

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory if “2 - Other” is selected within ‘Height And/or Weight Cannot Be Provided Because Patient Is’ field

Used to record other reasons for missing height and/or weight

Chronic Registration

Primary Renal Disease

2.48

Primary Renal Disease (PRD) or the disease condition which caused renal failure that needed renal replacement therapy

Character (2) Optional See Appendix for 'Primary Renal Codes' list

“Primary Renal disease code” field under primary diagnosis and risk factor history on Chronic patient registration must be a value from a pre-populated list

Used to calculate End-Stage Renal Disease (ESRD) Primary Renal Disease

Chronic Registration

Other Primary Renal Disease

2.49

Other disease condition which caused renal failure - i.e. when PRDtype code=99

Character (100)

Conditional Mandatory

IF Primary Renal Disease = ‘99’ THEN Other Primary Renal Disease cannot be blank

Additional disease information

Chronic Registration

Angina? 2.50

Indicates whether patient has suffered from angina at the time of initial renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's existing specific comorbidities

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Myocardial Infarct?

2.51

Indicates whether patient has confirmed myocardial infarct on the basis of an EKG, cardiac enzymes, echocardiogram or thallium scans prior to beginning renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's existing specific comorbidities

Chronic Registration

Coronary Artery Bypass Grafts/ Angioplasty?

2.52

Indicates whether patient has had previous coronary artery bypass graft surgery prior to beginning renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's existing specific comorbidities

Chronic Registration

Recent history of Pulmonary Edema?

2.53

Congestive Heart Failure (CHF)/ Pulmonary Edema - If the patient has a recent history of pulmonary edema prior to beginning renal replacement therapy. This includes episode(s) of congestive heart failure or severe fluid overload within six months prior to start of dialysis

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's clinical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Cerebrovascular Disease?

2.54

Cerebrovascular Disease (Stroke or Transient Ischemic Attack)- Indicates whether patient has had previous cerebrovascular event such as transient cerebral ischemic attack, carotid surgery, cerebral infarct, cerebral hemorrhage, stroke prior to beginning renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's clinical characteristics

Chronic Registration

Peripheral Vascular Disease?

2.55

Peripheral Vascular Disease (Ischemic muscle pain precipitated by exercise, amputation, gangrene) - Indicates whether patient has been described as having intermittent claudication at rest or, on exercise or, has had aorto-femoral bypass surgery prior to beginning renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's clinical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Diabetes Type I? 2.56

Indicates whether patient had diabetes type 1 prior to beginning renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's clinical characteristics

Chronic Registration

Diabetes Type II?

2.57

Indicates whether patient was diagnosed with Type 2 diabetes prior to beginning renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's clinical characteristics

Chronic Registration

Malignancy? 2.58

Malignancy (existing prior to dialysis) - Indicates whether patient had a malignancy that existed prior to the first treatment for chronic

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's clinical characteristics

Chronic Registration

Malignancy Site 2.59

Indicates the malignancy site under primary diagnosis

Character (2) Optional See Appendix for 'Malignancy Site Codes' List

Used to identify patient's existing specific comorbidities

Chronic Registration

Other Malignancy Site

2.60 Other site of malignancy

Character (100)

Optional

Used to identify patient's existing specific comorbidities

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Chronic Obstructive Lung Disease?

2.61

Chronic Obstructive Lung Disease (COLD)/ Emphysema/ Chronic Bronchitis - Indicates whether the patient had clinically significant chronic chest disease requiring medical. Management prior to beginning renal replacement therapy; This will usually be described as chronic obstructive lung disease, chronic bronchitis or emphysema

Character (1) Optional N - No Y -Yes U - Unknown

Used to identify patient's existing specific comorbidities

Chronic Registration

Receiving Medication For Hypertension

2.62

Indicates if the patient was receiving medication such as calcium blocking agents, vasodilators, ACE inhibitors (e.g. captopril, enalapril) in order to control hypertension at the time renal replacement therapy was initiated

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's existing specific comorbidities

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Chronic Registration

Other Serious Illness?

2.63

Indicates if the patient has had any other illness, which may shorten life expectancy (e.g. aortic aneurysm, AIDS, etc.), at the time of starting renal replacement therapy

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient's existing specific comorbidities

Chronic Registration

Specified Other Serious Illness

2.64 Indicates specific other illness

Character (100)

Optional Open text field

IF Specified Serious Illness = ‘Y’ THEN Specified Other Serious Illness cannot be blank

Used to identify patient's existing specific comorbidities

Chronic Registration

Current Smoker? 2.65

Current smoker (within the last 3 months) - Indicates if the patient is a current smoker

Character (1) Optional N - No Y - Yes U - Unknown

Used to identify patient lifestyle - smoking

ACUTE REGISTRATION Treatment Information

Acute Registration - Treatment Information

Treatment Start Date

3.1 Date when treatment was started

Date (10) Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

“Treatment Start Date” field under treatment information on Acute patient registration must not be greater than “Date of Birth” field’s value

Used to identify length of treatment

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Acute Registration - Treatment Information

Acute Treatment 3.2

Indicates the type of acute treatment for the patient

Character (3) Mandatory

Acute HD (AHD) CRRT-SLEDD (CSD) CRRT-CVVHD (CCV)

“Acute Treatment” field under treatment information on Acute patient registration must be a value from a pre-populated list

Used to identify the type of acute treatment the patient received and to track patient's health condition over time

Acute Registration - Treatment Information

Care Setting 3.3 Indicates the patient's care setting

Character (1)

Mandatory (Acute

Registration)

Conditionally Mandatory (Treatment

Event)

1 - Emergency Department 2 - PACU/Recovery 3 - Isolation room 4 - Inpatient care (ICU/CCU) 5 - Inpatient care (Non-critical) 6 - Inpatient care (dialysis in unit)

“Care Setting” field under treatment information on Acute patient registration must be a value from a pre-populated list

Describes settings in the hospital where acute dialysis is provided

This is common to Pre-dialysis registration and Treatment Event; NOTE:

Completion requirement is Mandatory for Pre-Dialysis Registration and Conditionally Mandatory for Treatment Event in Clinic Visits

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

PRE-DIALYSIS REGISTRATION

Pre-Dialysis Registration

MRP 4.0.1

Most Responsible Physician (MRP): Nephrologist who is responsible for the care and treatment of the patient for the majority of the visit/treatment to the health care facility. The MRP assumes responsibility for any treatment provided resulting from his or her written or verbal order. If the physician is not physically present in the health care facility but provides orders for treatment, he or she will continue to be responsible for the patient’s care and should be recorded as the MRP.

Character (10)

Optional

For an individual physician, the MRP is The College of Physicians and Surgeons of Ontario (CPSO) number 00000 - ‘Physician Shared Care Model’ when a single physician is not applicable 00016 - ‘MRP Nephrologist is not in ORRS’ if physician is not available in pre-populated list

ORRS Application It must be a valid value from the pre-populated list ORRS Upload Tool It must be a valid value within pre-defined back-end values

Ability to identify the Most Responsible Physician over time at key points in the patient journey

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Pre-Dialysis Registration

Date First Seen by MRP

4.0.1.1

The date when the Most Responsible Physician (MRP) first provided outpatient pre-dialysis care in either a private office or a specialty/ multidisciplinary clinic

Date (10) Conditionally Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

Becomes mandatory when MRP value is provided The Date First Seen by MRP must be greater than the patient’s Date of Birth The Date First Seen by MRP must be on or before the First Clinic Visit Date

To track the date first seen by MRP on initiation of outpatient pre-dialysis care to support quality improvement initiatives

Pre-Dialysis Registration

Height And/or Weight Cannot Be Provided Because Patient Is

4.0.2

Reason Height and/or Weight cannot be provided

Character (1)

Conditionally Mandatory

1 - Double leg amputee 2 - Other

Becomes mandatory if Height and/or Weight are blank

Data quality

Pre-Dialysis Registration

Height And/or Weight Cannot Be Provided Because Patient Is, Other Reason

4.0.3

Other reason why Height and/or Weight is not available

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory if “2 - Other” is selected within ‘Height And/or Weight Cannot Be Provided Because Patient Is’ field

Used to record other reasons for missing height and/or weight

Pre-Dialysis Registration

Patient Height (cm)

4.1 Height (cm) prior to starting dialysis

Numeric (3,3) Conditionally Mandatory

999.999

Becomes mandatory when ‘Height And/or Weight Cannot Be Provided Because Patient Is’ field is blank

Used to identify patient physical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Pre-Dialysis Registration

Patient Weight (kg)

4.2

The patient's actual weight in kg at the start of the first ever dialysis, treatment for chronic renal failure; Weight (kg) prior to starting dialysis

Numeric (3,3) Conditionally Mandatory

999.999

Becomes mandatory when ‘Height And/or Weight Cannot Be Provided Because Patient Is’ field is blank

Used to identify patient physical characteristics

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Pre-Dialysis Registration

Date Of Referral To Nephrologist

4.2.1 The date of referral to see a Nephrologist

Date (10) Optional

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

The date of referral to Nephrologist must be greater than the patient’s date of birth The date of referral to Nephrologist must be on or before the date when patient was first seen by a Nephrologist Date Of referral to nephrologist will be pre-populated between the Pre-Dialysis and Chronic registrations. Because it represents the first referral date provided, the system will accept new or modified date of referral dates on only one registration. Date of referral subsequently provided on the other registration will be ignored

Enable referral wait time determination from point of pre-dialysis registration to enable earlier capture of data for patients that enter ORRS in pre-dialysis

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Pre-Dialysis Registration

First Clinic Visit Date

4.3

Date when the patient first came to the pre-dialysis clinic with the eGFR qualifier for ORRS new pre-dialysis patient registration

Date (10) Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

“First Clinic Visit Date” field’s value must be greater than “Date of Birth” field’s value. First Clinic Visit Date must be within the specified file submission period

Used to determine when the patient first came to pre-dialysis clinic for treatment and with the eGFR qualifier

Pre-Dialysis Registration

Clinic Visit Type 4.4

Type of the clinic the patient visited during pre-dialysis care

Character (1) Mandatory

1 - Regular 2 - Education 3 - Body/Vascular Access

“Clinic Visit Type” field under treatment information on Pre-dialysis patient registration must be a value from a pre-populated list IF Client Visit Type = 2, THEN Delivery Mode cannot be blank IF Client Visit Type = 3, THEN Access Visit Type cannot be blank

Used to identify the type of the clinic visit for funding purposes

1 – Regular is also captured as a Treatment Event. VR – Pre-Dialysis Clinic Visit

Pre-Dialysis Registration

Creatinine (umol/L)

4.5

Result of the Creatinine for the patient at the pre-dialysis clinic

Numeric (4) Mandatory 9999

The clinical range of values can be between 120-1500 µmoll/L

Used to calculate eGFR when patient registered as pre-dialysis patients

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Pre-Dialysis Registration

Creatinine Sample Collection Date

4.5.1

The date when the Creatinine test was administered

Date (10) Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

Sample Collection Date must be on or before the current date and greater than the patient’s date of birth

Used to calculate eGFR when patient registered as pre-dialysis patient

If Creatinine is coded as '9999 - value is unavailable' report the Pre-dialysis Clinic Visit Date as the Creatinine Sample Collection Date

Pre-Dialysis Registration

eGFR 4.6

Estimated Glomerular Filtration Rate (eGFR) may be used to identify kidney disease

This data element is not applicable in the ORRS Upload Tool.

This appears as a calculated value in the ORRS Application

Pre-Dialysis Registration

Proteinuria 4.7 Patient’s proteinuria lab result value

Numeric (4,2) Mandatory 9999.99

“Proteinuria” field’s value can be between 100 and 4000 (inclusive)

Used to measure progression of chronic kidney disease (CKD)

Pre-Dialysis Registration

Proteinuria Test Type

4.8 Proteinuria test type – fixed as ACR

Character (1) Mandatory

ORRS Application: Value fixed as “ACR” ORRS Upload Tool: Select “2 - ACR”

Used to measure progression of CKD

Pre-Dialysis Registration

Proteinuria Sample Collection Date

4.8.1

The date when the Proteinuria test was administered

Date (10) Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

Sample Collection Date must be on or before the current date and greater than the patient’s date of birth

Used to measure progression of chronic kidney disease (CKD)

If Proteinuria is coded as '9999 - value is unavailable' report the Pre-dialysis Clinic Visit Date as the Proteinuria Sample Collection Date

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Pre-Dialysis Registration

Delivery Mode 4.9 Delivery mode for Education Clinic Visit

Character (1) Conditionally Mandatory

1 - Group 2 - Individual

IF Client Visit Type = 2, THEN Delivery Mode cannot be blank

Used to identify the type of the clinic setting

Pre-Dialysis Registration

Access Visit Type

4.10

Type of access visit for Body/Vascular Access - i.e. for initial assessment or, for follow-up

Character (1) Conditionally Mandatory

1 - Initial Assessment 2 - Follow-up

IF Client Visit Type = 3, THEN Access Visit Type cannot be blank

Used to identify and track the patient's treatment access and related changes

This field is common to Pre-dialysis Registration and Treatment Events

Pre-Dialysis Registration

Initial Assessment Type

4.11 Indicates the type of assessment

Character (1) Conditionally Mandatory

1 - Pre-Dialysis Patient 2 - On dialysis at time of first visit

IF Access Visit Type = 1, THEN Initial Assessment Type cannot be blank

To determine if patient is on dialysis at first visit or is a pre-dialysis patient

This field is common to Pre-dialysis Registration and Treatment Events

Pre-Dialysis Registration

Assessment Reason

4.12 Reason for initial assessment

Character (1) Conditionally Mandatory

1 - Surgical consultation for PD access 2 - Surgical consultation for HD access 4 - Other

IF Access Visit Type = 1, THEN Initial Assessment Reason cannot be blank

To determine the reason for assessment at pre-dialysis

This field is common to Pre-dialysis Registration and Treatment Events

Pre-Dialysis Registration

Follow-up Type 4.13

Type of Follow-up for Body/Vascular Access

Character (1) Conditionally Mandatory

1 - First follow-up visit 2 - Further pre-operating assessment 3 - Complication related/challenge to maintain access 4 – Other

IF Access Visit Type = 2, THEN Follow-up Type cannot be blank

To determine and track the type of follow-up for body/vascular access

This field is common to Pre-dialysis Registration and Treatment Events

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

TREATMENT EVENT

Treatment Event

Same Day Event Order

5.1

The Same Day Event Order specifies how treatment events that occur on the same day are ordered for a given patient

Numeric (2) Optional

If the Order is not specified, incomplete or invalid, ORRS will automatically order the same day events as they are presented in the file from top to bottom for a patient. For example, the first same day event record is given a value of 1, the second a value of 2 and so forth for a given patient

To identify and track the sequence of events in a day

This field pertains ONLY to ORRS Application (Basic facilities)

Treatment Event

Treatment Event Code

5.2

Identifies the applicable treatment event for the patient - for example, Access change, Modality change, Recovered, Returning, Transplant etc

Character (6) Mandatory See Appendix for 'Treatment Event Codes' list

To identify the treatment event for the patient

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Treatment Date 5.3 Date of Treatment

Date (10) Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

The Treatment Start Date must be within the specified file submission period The Clinic Visit Date must be greater than patient’s Date of Birth

Used to identify length of treatment

Treatment Event

Treatment (Modality) Code

5.4 Type of Dialysis Modality

Character (6) Conditionally Mandatory

See Appendix for 'Treatment (Modality) Codes' (all applicable codes)

IF Treatment Event Code is not ‘NC’ THEN Treatment Code cannot be blank

Treatment Event

Reason For Change Code

5.6 Reason for treatment/status change

Character (2) Conditionally Mandatory

See Appendix for 'Reason for Change Codes' list Note: codes 18 and 20 are only applicable for a Treatment Event of ‘TO’

IF Treatment Event Code in (‘M’, ‘L-OUT’, ‘TR-OUT’, ‘TO’) THEN Reason for Change Code cannot be blank IF Treatment Event Code = ‘TO’ THEN Reason for Change Code must be in (18, 20)

Used to track reasons for treatment changes and for treatment practice analysis

Treatment Event

Other Reason For Change

5.7 Other reasons for treatment change

Character (50)

Conditionally Mandatory

Open text field

IF Reason For Change Code = ‘99’ THEN Other Reason For Change cannot be blank

To identify and track other reasons for treatment changes

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Reason For Withdrew Code

5.8 Primary reason for withdrawal

Character (2) Conditionally Mandatory

See Appendix for 'Reason for Chronic Withdrew Codes' and 'Reason for Pre-dialysis Withdrew Codes' list

IF Treatment Event Code = ‘W’ THEN Reason For Withdrew Code cannot be blank

To identify the primary reason for withdrawal

Treatment Event

Other Reason For Withdrew Code

5.9 Other reasons for withdrawal

Character (50)

Conditionally Mandatory

Open text field

IF Reason for Withdrew Code = ‘7’ THEN Other Reason For Withdrew Code cannot be blank

To identify other reasons for withdrawal

Treatment Event

Transferred From Location

5.10 The location from where the patient has moved from

Character (3) Conditionally Mandatory

See Appendix for 'Location Codes’, ‘IHF Location Codes’, ‘Self-care Location Codes’ and ‘LTC Location Codes’ lists

Used to identify patient movements and volumes by provider in different timeframes

Treatment Event

Death Type Code

5.12 Cause of Death Character (2) Conditionally Mandatory

See Appendix for 'Death Type Codes' list

IF Treatment Event Code = ‘D’ THEN Death Type Code cannot be blank

Used to analyze the major causes of death

Treatment Event

Transplant Hospital

5.13 Transplant hospital name

Character (3) Conditionally Mandatory

See Appendix for 'Hospital Codes' list

IF Treatment Event Code = ‘TX’ THEN Transplant Hospital cannot be blank

Used for transplant analysis

Treatment Event

Transplant Type 5.14 Indicates the Transplant Type

Character (3) Conditionally Mandatory

C - Cadaveric Donor (old term) D - Deceased Donor L - Living Donor UNK - Unknown

IF Treatment Event Code = ‘TX’ THEN Transplant Type cannot be blank

Used for transplant analysis

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Access Used 5.15

Indicates patient's access type used for dialysis

Character (2) Conditionally Mandatory

1 - Temporary catheter non-cuffed 2 - Temporary catheter cuffed 3 - Permanent catheter non-cuffed 4 - Permanent catheter cuffed 5 - AV fistula 6 - AV graft 7 - PD Catheter

IF Treatment Event Code = ‘AC’ THEN Access Used cannot be blank

Used to track patients' access changes

Treatment Event

Other Access Used

5.16 Other Body/venous access used

Character (1) Conditionally

Optional

1 - Temporary catheter non-cuffed 2 - Temporary catheter cuffed 3 - Permanent catheter non-cuffed 4 - Permanent catheter cuffed 5 - AV fistula 6 - AV graft 7 - PD Catheter

IF Treatment Event Code <> ‘AC’ THEN Other Access Used must be blank IF Access Used in (1, 2, 3, 4 THEN Other Access Used must be blank IF Access Used = 5 THEN Other Access Used cannot be in (5, 6) IF Access Used = 6 THEN Other Access Used cannot be 6 IF Access Used = 7 THEN Other Access Used cannot be 7

Identifies if patient has other access used. This would be considered dual access

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Dialysis Training Type

5.17 Indicates the type of home dialysis training

Character (1) Conditionally Mandatory

1 - Home Hemodialysis 2 - CAPD 3 - APD

IF Treatment Event Code in (‘TS’, ’TE’, ’RS’, ‘RE’) THEN Dialysis Training Type cannot be blank

To identify the type of home dialysis training for the patient

Treatment Event

Not Home HD Modality Reason 1

5.18

Primary reason for patient not eligible for Home HD

Character (2) Conditionally Mandatory

See Appendix for 'Home HD Reasons Code' list

IF Treatment Event Code in (‘ID3’, ‘ID6’) THEN Not Home HD Modality Reason 1 cannot be blank

To identify the primary reason for why patient is not eligible for Home HD

Treatment Event

Not Home HD Modality Other Reason 1

5.19

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 1 = ‘55’ THEN Not Home HD Modality Other Reason 1 cannot be blank

To identify other primary reason for why not Home HD Modality

Treatment Event

Not Home HD Modality Reason 2

5.20

Secondary reason for patient not eligible for Home HD

Character (2) Conditionally

Optional

See Appendix for ‘Home HD Reasons Code' list

IF Treatment Event Code not in (‘ID3’, ‘ID6’) THEN Not Home HD Modality Reason 2 must be blank

To identify secondary reason for why not Home HD Modality

Treatment Event

Not Home HD Modality Other Reason 2

5.21

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 2 = ‘55’ THEN Not Home HD Modality Other Reason 2 cannot be blank

To identify other secondary reason for why not Home HD Modality

Treatment Event

Not Home HD Modality Reason 3

5.22

Third reason for patient not eligible for Home HD

Character (2) Conditionally

Optional

See Appendix for ‘Home HD Reasons Code' list

IF Treatment Event Code not in (‘ID3’, ‘ID6’) THEN Not Home HD Modality Reason 3 must be blank

To identify tertiary reason for why not Home HD Modality

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Not Home HD Modality Other Reason 3

5.23

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 3 = ‘55’ THEN Not Home HD Modality Other Reason 3 cannot be blank

To identify other tertiary reason for why not Home HD Modality

Treatment Event

Not Home PD Modality Reason 1

5.24

Primary reason for patient not eligible for Home PD

Character (3) Conditionally Mandatory

See Appendix for ‘Home PD Reasons Code' list

IF Treatment Event Code in (‘ID3’, ‘ID6’) THEN Not Home PD Modality Reason 1 cannot be blank

To identify primary reason for why not Home PD Modality

Treatment Event

Not Home PD Modality Other Reason 1

5.25

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 1 = ‘55’ THEN Not Home PD Modality Other Reason 1 cannot be blank

To identify other primary reason for why not Home PD Modality

Treatment Event

Not Home PD Modality Reason 2

5.26

Secondary reason for patient not eligible for Home PD

Character (2) Conditionally

Optional

See Appendix for ‘Home PD Reasons Code' list

IF Treatment Event Code not in (‘ID3’, ‘ID6’) THEN Not Home PD Modality Reason 2 must be blank

To identify secondary reason for why not Home PD Modality

Treatment Event

Not Home PD Modality Other Reason 2

5.27

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 2 = ‘55’ THEN Not Home PD Modality Other Reason 2 cannot be blank

To identify other secondary reason for why not Home PD Modality

Treatment Event

Not Home PD Modality Reason 3

5.28

Third reason for patient not eligible for Home PD

Character (2) Conditionally

Optional

See Appendix for ‘Home PD Reasons Code' list

IF Treatment Event Code not in (‘ID3’, ‘ID6’) THEN Not Home PD Modality Reason 3 must be blank

To identify tertiary reason for why not Home PD Modality

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Not Home PD Modality Other Reason 3

5.29

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 3 = ‘55’ THEN Not Home PD Modality Other Reason 3 cannot be blank

To identify other tertiary reason for why not Home PD Modality

Treatment Event

HD Catheter Reason 1

5.30 Primary Reason for HD Catheter

Character (2) Conditionally Mandatory

See Appendix for ‘VA Reason Codes - Milestone 5’ list If VA3 - please refer to 'VA Milestone 5 Code' list For VA9 - please refer to 'Milestone 6 Code' list

IF Treatment Event Code in (‘VA3’, ’VA9’) THEN VA Reason 1 cannot be blank

To identify primary reason for HD Catheter

Treatment Event

HD Catheter Other Reason 1

5.31 Other Primary reason for HD Catheter

Character (100)

Conditionally Mandatory

IF VA Reason 1

= ‘47’ or ‘14’ THEN VA Other Reason 1 cannot be blank

To identify other primary reason for HD Catheter

Treatment Event

HD Catheter Reason 2

5.32 Secondary Reason for HD Catheter

Character (2) Conditionally

Optional

See Appendix for 'VA Reason Codes - Milestone 5 Code' list

IF Treatment Event Code NOT in (‘VA3’, ’VA9’) THEN VA Reason 2 must be blank

To identify secondary reason for HD Catheter

Treatment Event

HD Catheter Other Reason 2

5.33 Other Secondary Reason for Catheter

Character (100)

Conditionally Mandatory

IF VA Reason 2

= ‘47’ or ‘14’ THEN VA Other Reason 2 cannot be blank

To identify other secondary reason for HD Catheter

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Treatment Event

MRP 5.34

Most Responsible Physician (MRP): Nephrologist who is responsible for the care and treatment of the patient for the majority of the visit/treatment to the health care facility. The MRP assumes responsibility for any treatment provided resulting from his or her written or verbal order. If the physician is not physically present in the health care facility but provides orders for treatment, he or she will continue to be responsible for the patient’s care and should be recorded as the MRP.

Character (10)

Optional

For an individual physician, the MRP is The College of Physicians and Surgeons of Ontario (CPSO) number 00000 - ‘Physician Shared Care Model’ when a single physician is not applicable 00002 - ‘Prior outpatient pre-dialysis care at other program’

00016 - ‘MRP Nephrologist is not in ORRS’ if physician is not available in pre-populated list

ORRS Application It must be a valid value from the pre-populated list ORRS Upload Tool It must be a valid value within pre-defined back-end values

Ability to identify the Most Responsible Physician over time at key points in the pre-dialysis patient journey

The ORRS application provides the ability to retrieve the MRP within your program as reported in a Treatment Event or Pre-dialysis registration (use the ‘Find Recent MRP’ button) The MRP should be reported for pre-dialysis patients within the following Treatment Events: VR: Pre-

dialysis Clinic Visit VA:

Body/Vascular Access Clinic Visit VE:

Education Clinic Visit L-IN:

Location Change In TR-IN:

Hospital Transfer In TI: Transfer

Into Region

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

RR:

Returning Patient F: Failed

Transplant M: Modality

Change

Treatment Event

For IHF Patient? 5.35

Flags whether Follow-up Clinic Visit (VF) was for a patient at an Independent Health Facility (IHF)

Character (1) Conditionally

Optional

ORRS Application: Checked () Unchecked () ORRS Upload Tool: N - No Y - Yes

Applicable to Follow-up Clinic Visit events (VF)

Used to identify Follow-up Clinic Visit for IHF patients

Capture volume data at a patient level for future funding purposes

Treatment Event

Visit Type 5.36

Type of clinic the patient visited during Follow-up Clinic Visit (VF)

Character (1) Conditionally Mandatory

1 - Renal Program 2 - Independent Health Facility (IHF) 3 - Telemedicine

Becomes mandatory upon selection of Follow-up Clinic Visit (VF)

Used to identify type of clinic the patient visited during Follow-up Clinic Visit

Capture volume data at a patient level for future funding purposes

Treatment Event

Creatinine (umol/L)

5.36.1

Result of the Creatinine for the patient at the pre-dialysis clinic

Numeric (4) Mandatory 9999

The clinical range of values can be between 120-1500 µmoll/L

Used to calculate eGFR when patient registered as pre-dialysis patients

Creatinine (umol/L)

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Creatinine Sample Collection Date

5.36.2

Sample collection date for Creatinine test captured in VR clinic visit for pre-dialysis patients

Date (10) Conditionally Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

Sample Collection Date must be on or before the current date and greater than the patient’s date of birth

Used to calculate eGFR in VR clinic visit

If Creatinine is coded as '9999 - value is unavailable' report the current Pre-dialysis Clinic Visit Date as the Creatinine Sample Collection Date

Treatment Event

Proteinuria 5.37

Patient’s Proteinuria lab result captured in VR clinic visit for pre-dialysis patients

Numeric (4,2) Optional 9999.99

‘Proteinuria’ field’s value can be between 100 and 4000 (inclusive)

Used to measure progression of chronic kidney disease (CKD)

Unit of measure is ACR

Treatment Event

Proteinuria Sample Collection Date

5.39

Sample collection date for Proteinuria test captured in VR clinic visit for pre-dialysis patients

Date (10) Conditionally Mandatory

ORRS Application DD-MMM-YYYY ORRS Upload Tool DD-MM-YYYY

Sample Collection Date must be on or before the current date and greater than the patient’s date of birth

Used to measure progression of chronic kidney disease (CKD)

If Proteinuria is coded as '9999 - value is unavailable' report the current Pre-dialysis Clinic Visit Date as the Proteinuria Sample Collection Date

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Comprehensive Conservative Renal Care

4.9.1

Identification if education related to comprehensive conservative renal care (CCRC) has taken place See Appendix D for detailed definition

Character (1) Conditionally

Optional

Y - Yes N - No

Only one valid value can be selected

Used to identify if education specific to comprehensive conservative renal care has taken place

Treatment Event

Patient Informed About Kidney Transplantation

5.40

Indicate whether the patient has been informed about the option of kidney transplantation

Character (1) Conditionally Mandatory

N - No Y - Yes

Becomes mandatory on selection of “TU -Transplant Update” Treatment Event

Capture minimal data related to transplant assessment/ education

Treatment Event

Patient a candidate for Kidney Transplantation

5.41

Indicate whether the patient is or will be a candidate for kidney transplantation

Character (1) Optional

Y - Yes N - No P - Not until - patient must meet following precondition(s)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Patient not a candidate for Kidney Transplantation Reason

5.42

The reason why the patient is not a candidate for kidney transplantation

Character (2) Conditionally Mandatory

1 - Severe uncorrectable cardiac disease 2 - Severe uncorrectable peripheral vascular disease 3 - Short life expectancy 4 - Severe uncorrectable cognitive impairment 5 - Severe uncorrectable diagnosed psychiatric condition 6 - Severe uncorrectable impaired physical condition 7 - A cancer that makes patient permanently ineligible for transplant 8 - Patient totally unwilling to receive a transplant 99 - Other – permanent contraindication to

transplant, please specify

Becomes mandatory when patient is not a candidate for kidney transplantation (5.41 - “N- No”)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Patient not a candidate for Kidney Transplantation Other Reason

5.43

Other reason why the patient is not a candidate for kidney transplantation

Character (100)

Conditionally Mandatory

Becomes mandatory when “99 - Other – permanent contraindicatio

n to transplant, please specify” is selected within ‘Patient not a candidate for Kidney Transplantation Reason’

Treatment Event

Patient not a candidate for Kidney Transplantation Preconditions

5.44

The precondition(s) required to be a candidate for kidney transplantation

Character (2) Conditionally Mandatory

50 -Must lose defined amount of weight 51 - Must show adherence 52 - Must complete cardiology assessment 99 – Other - please specify (e.g. dental work, stop smoking etc)

Becomes mandatory when patient must meet precondition(s) to be a candidate for kidney transplantation (5.41 - “P”)

Capture minimal data related to transplant assessment/ education

Treatment Event

Patient not a candidate for Kidney Transplantation Other Preconditions

5.45 Open text field for other precondition(s)

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory when “99 - Other” is selected within “Patient not a candidate for Kidney Transplantation Preconditions”

Capture minimal data related to transplant assessment/ education

Treatment Event

Patient aware of Living Kidney Donor and willing to accept that kidney

5.46 Character (1) Optional N - No Y - Yes

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Patient not aware of Living Kidney Donor and / or not willing to accept that kidney Reason

5.47 Character (2) Conditionally Mandatory

1 - Patient has not yet been informed about living donor transplant option 2 - Patient has no potential living donor 3 - Patient has potential living donor but has not yet discussed with family or friends 4 - Patient has potential living donor but patient unwilling to accept donation 5 - Patient unwilling to have any kind of kidney transplant (deceased or living donor) 99 – Other - please specify

Becomes mandatory when patient aware of Living Kidney Donor and willing to accept kidney (5.46 - “N - No”)

Capture minimal data related to transplant assessment/ education

Treatment Event

Patient not aware of Living Kidney Donor and / or not willing to accept that kidney Other Reason

5.48 Character

(100) Conditionally Mandatory

Open text field

Becomes mandatory when “99 - Other” is selected within ‘Patient not aware of Living Kidney Donor and / or not willing to accept that kidney Reason’

Capture minimal data related to transplant assessment/ education

Treatment Event

Active On Deceased Donor Transplant Waiting List

5.49

Flag whether the patient is currently active on the deceased donor transplant waiting list

Character (1) Optional N - No Y - Yes

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Not On Deceased Donor Transplant Waiting List Reason

5.50

The reason why the patient is not currently active on the deceased donor transplant waiting list

Character (2) Conditionally Mandatory

1 - Patient suitable and currently undergoing work-up 2 - Patient has not yet been informed about transplant 3 - Patient suitable, but unwilling at present 4 - On deceased donor list but “on hold” at present 5 - Patient pursuing living donor transplant instead 6 - Workup complete but eGFR > 15 mls/min (pre-dialysis patient only) 99 – Other – please specify

Becomes mandatory when patient is not currently active on the deceased donor transplant waiting list (5.49 - “N - No”)

Capture minimal data related to transplant assessment/ education

Treatment Event

Not On Deceased Donor Transplant Waiting List Other Reason

5.51

Other reason the patient is not currently active on the deceased donor transplant waiting list

Character (100)

Conditionally Mandatory

Open text field

Becomes mandatory when “99 - Other” is selected within “Not on Deceased Donor Transplant Waiting List Reason”

Capture minimal data related to transplant assessment/ education

Treatment Event

Deceased Donor Transplant Waiting List On Hold Reason

5.52

The reason why the patient is on the deceased donor transplant waiting list but on hold

Character (2) Conditionally Mandatory

1 - Acute illness 2 - Recent cancer diagnosis 3 - Patient choice to go on temporary hold 4 - Ongoing test requirements not met 99 – Other – please specify

Becomes mandatory when patient is on hold on deceased donor transplant waiting list (5.50 - Option 4)

Capture minimal data related to transplant assessment/ education

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

Treatment Event

Deceased Donor Transplant Waiting List On Hold Other Reason

5.53

Other reason the patient is on the deceased donor transplant waiting list but on hold

Character (100)

Conditionally Mandatory

Becomes mandatory when "99 - Other” is selected within “Deceased Donor Transplant Waiting List On Hold Reason”

Capture minimal data related to transplant assessment/ education

VASCULAR ACCESS (VA) AND INDEPENDENT DIALYSIS (ID) ASSESSMENT

VA and ID Assessment

Source Record ID

6.1 Alphanumeric

(20) Mandatory

Must be the same Record ID used in the reported Clinic Visit Treatment Event Record, where its Treatment Event Code in (VR, VA, VE)

To identify a unique record for matching purposes

VA and ID Assessment

Update ID Assessment

6.2 Flag for assessment update

Character (1)

Mandatory (Pre-dialysis)

Optional

(Treatment Event)

N - No Y - Yes

Indicates if ID assessment update occurred

This is common to Pre-dialysis registration and Treatment Event; NOTE:

Completion requirement is Mandatory for Pre-Dialysis Registration and Optional for Treatment Event in Clinic Visits

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Update VA Assessment

6.3 Flag for assessment update

Character (1)

Mandatory (Pre-dialysis)

Optional

(Treatment Event)

N - No Y - Yes

Indicates if VA assessment update occurred

This is common to Pre-dialysis registration and Treatment Event; NOTE:

Completion requirement is MANDATORY for Pre-Dialysis Registration and OPTIONAL for Treatment Event in Clinic Visits

VA and ID Assessment

Patient Eligible For Home HD

6.4 Confirm patient is eligible for Home HD

Character (1) Conditionally Mandatory

N - No Y - Yes

IF Update ID Assessment = ‘Y’ THEN at least one of the following fields cannot be blank: - Patient Eligible for Home HD - Patient Eligible for Home PD - Patient/Family Education Provided - Patient Modality Choice

Used to calculate if assessment of eligibility of Home HD has been complete

VA and ID Assessment

Not Eligible For Home HD Reason 1

6.5

Primary reason for patient not eligible for Home HD

Character (2) Conditionally Mandatory

See Appendix for ‘Home HD Reasons Code' list

IF Patient Eligible for Home HD = ‘N’ THEN Not Eligible For Home HD Reason 1 cannot be blank

Used to classify the type of barrier for not adopting Home HD

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Not Eligible For Home HD Other Reason 1

6.6

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Eligible for Home HD Reason 1 ‘55’ THEN Not Eligible For Home HD Other Reason 1 cannot be blank

Used to classify the type of barrier for not adopting Home HD

VA and ID Assessment

Not Eligible For Home HD Reason 2

6.7

Secondary reason for patient not eligible for Home HD

Character (2) Conditionally

Optional

See Appendix for ‘Home HD Reasons Code' list

IF Patient Eligible for Home HD <> ‘N’ THEN Not Eligible For Home HD Reason 2 must be blank

Used to classify the type of barrier for not adopting Home HD

VA and ID Assessment

Not Eligible For Home HD Other Reason 2

6.8

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home HD Reason 2 = ‘55’ THEN Not Eligible For Home HD Other Reason 2 cannot be blank

Used to classify the type of barrier for not adopting Home HD

VA and ID Assessment

Not Eligible For Home HD Reason 3

6.9

Third reason for patient not eligible for Home HD

Character (2) Conditionally

Optional

See Appendix for ‘Home HD Reasons Code' list

IF Patient Eligible for Home HD <> ‘N’ THEN Not Eligible For Home HD Reason 3 must be blank

Used to classify the type of barrier for not adopting Home HD

VA and ID Assessment

Not Eligible For Home HD Other Reason 3

6.10

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home HD Reason 3 = ‘55’ THEN Not Eligible for Home HD Other Reason 3 cannot be blank

Used to classify the type of barrier for not adopting Home HD

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Patient Eligible For Home PD

6.11 Confirm patient is eligible for Home PD

Character (1) Conditionally Mandatory

N - No Y - Yes

IF Update ID Assessment = ‘Y’ THEN at least one of the following fields cannot be blank: - Patient Eligible For Home HD - Patient Eligible For Home PD - Patient/Family Education Provided - Patient Modality Choice

Used to calculate if assessment of eligibility of PD has been complete

VA and ID Assessment

Not Eligible For Home PD Reason 1

6.12

Primary reason for patient not eligible for Home PD

Character (2) Conditionally Mandatory

See Appendix for ‘Home PD Reasons’ code list

IF Patient Eligible for Home PD = ‘N’ THEN Not Eligible For Home PD Reason 1 cannot be blank

Used to classify the type of barrier for not adopting PD

VA and ID Assessment

Not Eligible For Home PD Other Reason 1

6.13

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Eligible for Home PD Reason 1 = ‘55’ THEN Not Eligible For Home PD Reason 1 cannot be blank

Used to classify the type of barrier for not adopting PD

VA and ID Assessment

Not Eligible For Home PD Reason 2

6.14

Secondary reason for patient not eligible for Home PD

Character (2) Conditionally

Optional

See Appendix for ‘Home PD Reasons’ code list

IF Patient Eligible for Home PD <> ‘N’ THEN Not Eligible For Home PD Reason 2 must be blank

Used to classify the type of barrier for not adopting PD

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Not Eligible For Home PD Other Reason 2

6.15

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Eligible For Home PD Reason 2 = ‘55’ THEN Not Eligible For Home PD Reason 2 cannot be blank

Used to classify the type of barrier for not adopting PD

VA and ID Assessment

Not Eligible For Home PD Reason 3

6.16

Third reason for patient not eligible for Home PD

Character (2) Conditionally

Optional

See Appendix for ‘Home HD Reasons Code' list

IF Patient Eligible for Home PD <> ‘N’ THEN Not Eligible For Home PD Reason 3 must be blank

Used to classify the type of barrier for not adopting PD

VA and ID Assessment

Not Eligible For Home PD Other Reason 3

6.17

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Eligible For Home PD Reason 3 = ‘55’ THEN Not Eligible For Home PD Reason 3 cannot be blank

Used to classify the type of barrier for not adopting PD

VA and ID Assessment

Patient/Family Education Provided

6.18

Confirm patient/family education complete

Character (1) Conditionally Mandatory

ORRS Application N - No Y - Yes ORRS Upload Tool Checked - Complete Unchecked - Blank

IF Update ID Assessment = ‘Y’ THEN at least one of the following fields cannot be blank: - Patient Eligible For Home HD - Patient Eligible For Home PD - Patient/Family Education Provided - Patient Modality Choice

Used to provide the information on when education has been completed

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Patient Modality Choice

6.19 Type of Dialysis Modality

Character (3) Conditionally Mandatory

See Appendix for 'Treatment (Modality) Codes - Chronic Specific' list Barriers/ Reasons for not adopting ID or VA need to be included at 3, 6 and 9 months - see Appendix for specific triggers

IF Update ID Assessment = ‘Y’ THEN at least one of the following fields cannot be blank: - Patient Eligible for Home HD - Patient Eligible for Home PD - Patient/Family Education Provided - Patient Modality Choice

Used to report patient decision on modality choice.

VA and ID Assessment

Why Not Home HD Modality Reason 1

6.20

Primary reason for patient not eligible for Home HD

Character (2) Conditionally Mandatory

See Appendix for 'Home HD Reasons Code' list

IF Patient Modality Choice in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home HD Modality Reason 1 cannot be blank

Used to classify the type of barrier for not choosing Home HD

VA and ID Assessment

Why Not Home HD Modality Other Reason 1

6.21 Why Not Home HD Modality Other Reason 1

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 1 = ‘55’ THEN Not Home HD Modality Other Reason 1 cannot be blank

Used to classify the type of barrier for not choosing Home HD

VA and ID Assessment

Why Not Home HD Modality Reason 2

6.22 Why Not Home HD Modality Reason 2

Character (2) Conditionally

Optional

See Appendix for 'Home HD Reasons Code' list

IF Patient Modality Choice NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home HD Modality Reason 2 must be blank

Used to classify the type of barrier for not choosing Home HD

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Why Not Home HD Modality Other Reason 2

6.23

Why Not Home HD Modality Other Reason 2 (open space for comments)

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 2 = ‘55’ THEN Not Home HD Modality Other Reason 2 cannot be blank

Used to classify the type of barrier for not choosing Home HD

VA and ID Assessment

Why Not Home HD Modality Reason 3

6.24

Third reason for patient not eligible for Home HD

Character (2) Conditionally

Optional

See Appendix for 'Home HD Reasons Code' list

IF Patient Modality Choice NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home HD Modality Reason 3 must be blank

Used to classify the type of barrier for not choosing Home HD

VA and ID Assessment

Why Not Home HD Modality Other Reason 3

6.25

Why Not Home HD Modality Other Reason 3 (open space for comments)

Character (100)

Conditionally Mandatory

IF Not Home HD Modality Reason 3 = ‘55’ THEN Not Home HD Modality Other Reason 3 cannot be blank

Used to classify the type of barrier for not choosing Home HD

VA and ID Assessment

Why Not Home PD Modality Reason 1

6.26

Primary reason for patient not eligible for Home PD

Character (2) Conditionally Mandatory

See Appendix for 'Home PD Reasons Code' list

IF Patient Modality Choice in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home PD Modality Reason 1 cannot be blank

Used to classify the type of barrier for not choosing PD

VA and ID Assessment

Why Not Home PD Modality Other Reason 1

6.27

Open space comment about additional reasons

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 1 = ‘55’ THEN Not Home PD Modality Other Reason 1 cannot be blank

Used to classify the type of barrier for not choosing PD

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Why Not Home PD Modality Reason 2

6.28

Secondary reason for patient not eligible for Home PD

Character (2) Conditionally

Optional

See Appendix for 'Home PD Reasons Code' list'

IF Patient Modality Choice NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home PD Modality Reason 2 must be blank

Used to classify the type of barrier for not choosing PD

VA and ID Assessment

Why Not Home PD Modality Other Reason 2

6.29

Why Not Home PD Modality Other Reason 2 (Open space comment about additional reasons)

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 2 = ‘55’ THEN Not Home PD Modality Other Reason 2 cannot be blank

Used to classify the type of barrier for not choosing PD

VA and ID Assessment

Why Not Home PD Modality Reason 3

6.30

Third reason for patient not eligible for Home PD

Character (2) Conditionally

Optional

See Appendix for 'Home PD Reasons Code' list'

IF Patient Modality Choice NOT in (111, 312, 322, 332, 311, 321, 112, 211, 221, 122, 121, 131) THEN Not Home PD Modality Reason 3 must be blank

Used to classify the type of barrier for not choosing PD

VA and ID Assessment

Why Not Home PD Modality Other Reason 3

6.31

Why Not Home PD Modality Other Reason 3 (Open space comment about additional reasons)

Character (100)

Conditionally Mandatory

IF Not Home PD Modality Reason 3 = ‘55’ THEN Not Home PD Modality Other Reason 3 cannot be blank

Used to classify the type of barrier for not choosing PD

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

AVF Or AVG Surgical Assessment

6.32

Confirm patient is eligible for AVF or AVG Surgical Assessment

Character (1) Conditionally Mandatory

N - No Y - Yes

IF Update VA Assessment = ‘Y’ THEN at least one of the following fields cannot be blank: - AVF Or AVG Assessment - Adequate VA Education Provided - Patient Intended Initial Access

Used to calculate if assessment of Vascular Access has been complete

VA and ID Assessment

Surgical Assessment Reason 1

6.33 Surgical Assessment Reason 1

Character (2) Conditionally Mandatory

See Appendix for 'VA Reason Codes - Milestone 1' list

IF AVF or AVG Surgical Assessment = ‘N’ THEN Surgical Assessment Reason 1 cannot be blank

Used to classify the type of barrier for not referring for surgical assessment

VA and ID Assessment

Surgical Assessment Other Reason 1

6.34 Surgical Assessment Other Reason 1

Character (100)

Conditionally Mandatory

IF Surgical Assessment Reason 1 = ‘47’

or ‘14’ THEN

Surgical Assessment Other Reason 1 cannot be blank

Used to classify the type of barrier for not referring for surgical assessment

VA and ID Assessment

Surgical Assessment Reason 2

6.35

Secondary reason for no surgical assessment

Character (2) Conditionally

Optional

See Appendix for 'VA Reason Codes - Milestone 1' list

IF AVF or AVG Surgical Assessment <> ‘N’ THEN Surgical Assessment Reason 2 must be blank

Used to classify the type of barrier for not referring for surgical assessment

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

Surgical Assessment Other Reason 2

6.36

Surgical Assessment Other Reason 2 (Open space comment about additional reasons)

Character (100)

Conditionally Mandatory

IF Surgical Assessment Reason 2 = ‘47’

or ‘14’ THEN

Surgical Assessment Other Reason 2 cannot be blank

Used to classify the type of barrier for not referring for surgical assessment

VA and ID Assessment

Adequate VA Education Provided

6.37 Confirm VA education complete

Character (1) Conditionally Mandatory

N - No Y - Yes

IF Update VA Assessment = ‘Y’ THEN at least one of the following fields cannot be blank: - AVF or AVG Assessment - Adequate VA Education Provided - Patient Intended Initial Access

Used to provide the information on when education has been completed

VA and ID Assessment

Patient Intended Initial Access

6.38 Type of Intended Vascular Access

Character (1) Conditionally Mandatory

1 - Temporary catheter non-cuffed 2 - Temporary catheter cuffed 3 - Permanent catheter non-cuffed 4 - Permanent catheter cuffed 5 - AV fistula 6 - AV graft 7 - PD Catheter

IF Update VA Assessment = ‘Y’ THEN at least one of the following fields cannot be blank: - AVF or AVG Assessment - Adequate VA Education Provided - Patient Intended Initial Access

Used to report intended initial access for dialysis

VA and ID Assessment

HD Catheter Reason 1

6.39 Primary reason for using a catheter

Character (2) Conditionally Mandatory

See Appendix for 'VA Reason Codes - Milestone 3' list

IF Patient Intended Initial Access in (1, 2, 3, 4) THEN HD Catheter Reason 1 cannot be blank

Used to classify the type of barrier for not adopting AVF/AVG

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

VA and ID Assessment

HD Catheter Other Reason 1

6.40

HD Catheter Other Reason 1 (Open space comment about additional reasons)

Character (100)

Conditionally Mandatory

IF HD Catheter Reason 1 = ‘47’

or ‘14’ THEN HD

Catheter Other Reason 1 cannot be blank

Used to classify the type of barrier for not adopting AVF/AVG

VA and ID Assessment

HD Catheter Reason 2

6.41 Secondary reason for using a catheter

Character (2) Conditionally

Optional

See Appendix for 'VA Reason Codes - Milestone 3' list

IF Patient Intended Initial Access NOT in (1, 2, 3, 4) THEN HD Catheter Reason 2 must be blank

Used to classify the type of barrier for not adopting AVF/AVG

VA and ID Assessment

HD Catheter Other Reason 2

6.42

HD Catheter Other Reason 2 (Open space comment about additional reasons)

Character (100)

Conditionally Mandatory

IF HD Catheter Reason 2 = ‘47’

or ‘14’ THEN HD

Catheter Other Reason 2 cannot be blank

Used to classify the type of barrier for not adopting AVF/AVG

CKD SERVICE VOLUMES Captured in the Self Reporting Initiative (SRI) system and reported in ORRS at a patient level

CKD Service Volumes

Month 7.1 Month service was provided

Numeric (2) Mandatory MM Capture month service was provided

CKD Service Volumes

Year 7.2 Year service was provided

Numeric (4) Mandatory YYYY Capture year service was provided

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

CKD Service Volumes

Acute Hemodialysis Level III Treatment

7.3

Hemodialysis treatment performed on acutely ill patients in the Emergency Department, ICU, CCU, burn unit, or isolation room. May also apply to hemodialysis performed in the dialysis unit for inpatients requiring 1:1 nursing. Direct patient care staff to patient ratio is 1:1. An outpatient in a regular dialysis unit does not qualify as a Level III under any circumstance

Numeric (3) Optional 999

Capture volume data related to Acute level III treatments at a patient level for future funding reimbursement purposes

Measured by the number of treatments For further details please reference the CKD Funding Guide

CKD Service Volumes

Continuous Renal Replacement Therapy (CRRT) Treatment Days

7.4

Continuous Renal Replacement Therapy (CRRT) is performed on acutely ill patients in an ICU or equivalent area. Includes hemodialysis backup for the ICU staff for starts or restarts

Numeric (3) Optional 999

Capture volume data related to CRRT treatments at a patient level for future funding reimbursement purposes

Measured by the number of treatment days (complete or partial) For further details please reference the CKD Funding Guide

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

CKD Service Volumes

Slow Extended Duration Dialysis (SLEDD) Treatment Days

7.5

Slow extended duration dialysis (SLEDD) is performed on acutely ill patients in an ICU or equivalent area. It is performed for 8-12 hours per day using a hemodialysis machine

Numeric (3) Optional 999

Capture volume data related to SLEDD treatments at a patient level for future funding reimbursement purposes

Measured by the number of treatment days (complete or partial) For further details please reference the CKD Funding Guide

CKD Service Volumes

In-Hospital CAPD Exchanges

7.6

Manual peritoneal dialysis bag changes performed in-hospital for patients on continuous ambulatory peritoneal dialysis (CAPD)

Numeric (3) Optional 999

Capture volume data related to In-Hospital CAPD exchanges at a patient level for future funding reimbursement purposes

Measured by the number of procedures/exchanges For further details please reference the CKD Funding Guide

CKD Service Volumes

In-Hospital CCPD (APD) Treatment Days

7.7

Automated peritoneal dialysis exchanges using a continuous cycler device

Numeric (3) Optional 999

Capture volume data related to In-Hospital PD exchanges at a patient level for future funding reimbursement purposes

Measured by the number of treatment days For further details please reference the CKD Funding Guide

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

CKD Service Volumes

CAPD Training - Initial Training Days

7.8

Intensive education for a dialysis patient (with or without a family member) undertaking to learn to manage peritoneal dialysis at home. The training may occur in a patient’s home or in facility. If training occurs in a patient’s home, it is considered training and does not qualify as nurse or technician home visit hours. Incident patients only

Numeric (3) Optional 999

Capture actual home training days for future funding reimbursement purposes

For further details please reference the CKD Funding Guide

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

CKD Service Volumes

CAPD Training - Retraining Days

7.9

Intensive education for a peritoneal dialysis patient for subsequent training after the initial training is completed. The training may occur in a patient’s home or in facility. If training occurs in a patient’s home, it is considered training and does not qualify as nurse or technician home visit hours

Numeric (3) Optional 999

Capture actual home retraining days for future funding reimbursement purposes

Measured by the number of days of retraining For further details please reference the CKD Funding Guide

CKD Service Volumes

CCPD (APD) Training - Initial Training Days

7.10

Intensive education for a dialysis patient (with or without a family member) undertaking to learn to manage peritoneal dialysis at home. The training may occur in a patient’s home or in facility. If training occurs in a patient’s home, it is considered training and does not qualify as nurse or technician home visit hours

Numeric (3) Optional 999

Capture actual home training days for future funding reimbursement purposes

For further details please reference the CKD Funding Guide

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

CKD Service Volumes

CCPD (APD) Training - Retraining Days

7.11

Intensive education for a peritoneal dialysis patient for retraining. The training may occur in a patient’s home or in facility If training occurs in a patient’s home, it is considered training and does not qualify as nurse or technician home visit hours

Numeric (3) Optional 999

Capture actual home retraining days for future funding reimbursement purposes

Measured by the number of days of retraining For further details please reference the CKD Funding Guide

CKD Service Volumes

Home HD Training - Initial Nocturnal/Daily Days

7.12

Intensive education for the hemodialysis patient who will subsequently be able to manage their own treatment in the home. Incident patients only

Numeric (3) Optional 999

Capture actual home training days for future funding reimbursement purposes

For further details please reference the CKD Funding Guide

CKD Service Volumes

Home HD Training - Initial Conventional Days

7.13

Intensive education for the hemodialysis patient who will subsequently be able to manage their own treatment in the home. Incident patients only

Numeric (3) Optional 999

Capture actual home training days for future funding reimbursement purposes

For further details please reference the CKD Funding Guide

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Entity Data Element

Name

Data Element

No. Definition Format

Completion Requirement

Valid Values Validation Rules Purpose and

Use Notes

CKD Service Volumes

Home HD Training - Retraining Daily/Nocturnal And Conventional Days

7.14

Intensive education period for the periodic retraining of hemodialysis patients, both daily/nocturnal and conventional, who manage their own treatment in the home

Numeric (3) Optional 999

Capture actual home retraining days for future funding reimbursement purposes

Measured by the number of days of retraining For further details please reference the CKD Funding Guide

CKD Service Volumes

Self-care HD Training – Initial Days

7.14.1

Intensive education period for the initial training of hemodialysis patients who manage their own in-facility treatment

Numeric (3) Optional 999

Capture volume data at a patient level for future funding reimbursement purposes

For further details please reference the CKD Funding Guide

CKD Service Volumes

Self-care HD - Retraining Days

7.15

Intensive education period for the retraining days of hemodialysis patients who manage their own in-facility treatment

Numeric (3) Optional 999

Capture actual home retraining days for future funding reimbursement purposes

Measured by the number of days of retraining For further details please reference the CKD Funding Guide

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Appendix A: Reference Codes and Descriptions

Hospital Codes

Code Description

BMH WILLIAM OSLER HEALTH SYSTEM

CVH TRILLIUM HEALTH PARTNERS

GRH GRAND RIVER HOSPITAL CORPORATION

HRR HUMBER RIVER REGIONAL HOSPITAL

JHH ST. JOSEPH'S HEALTHCARE - HAMILTON

KGH KINGSTON GENERAL HOSPITAL

LHC LAKERIDGE HEALTH CORPORATION

LHS LONDON HEALTH SCIENCES CENTRE

NBH NORTH BAY REGIONAL HEALTH CENTRE

NHS NIAGARA HEALTH SYSTEM

OSM ORILLIA SOLDIERS' MEMORIAL HOSPITAL

OTM HALTON HEALTHCARE SERVICES

PET PETERBOROUGH REGIONAL HEALTH CENTRE

RVV RENFREW VICTORIA HOSPITAL

SAH SAULT AREA HOSPITAL

SBG LAKE OF THE WOODS HOSPITAL (KENORA)

SBK SUNNYBROOK HEALTH SCIENCES CENTRE

SGH THE SCARBOROUGH HOSPITAL

SJH ST.JOSEPH'S HEALTH CENTRE TORONTO

SMH ST. MICHAEL'S HOSPITAL

SRH HEALTH SCIENCES NORTH

TBH THUNDER BAY REGIONAL HEALTH SCIENCES CENTRE

TDH TIMMINS AND DISTRICT HOSPITAL

TOH THE OTTAWA HOSPITAL

UHN UNIVERSITY HEALTH NETWORK

WHD WINDSOR REGIONAL HOSPITAL

YCH MACKENZIE HEALTH

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Location Codes

Code Description Hospital Code

ALL STEVENSON MEMORIAL (ALLISTON) OSM

ALS ADAM LINTON DIALYSIS UNIT LHS

AMG ALEXANDRA MARINE AND GENERAL HOSPITAL – GODERICH LHS

BDC BURLINGTON DIALYSIS CENTER OTM

BDD BELLEVILLE DIALYSIS CLINIC KGH

BGH THE BRANT COMMUNITY HEALTHCARE SYSTEM JHH

BHS BLUEWATER HEALTH – SARNIA LHS

BMH BRAMPTON CIVIC HOSPITAL BMH

BPH BRIDGEPOINT HEALTH SGH

CGH CORNWALL GENERAL TOH

CHA CHATHAM – KENT HEALTH ALLIANCE LHS

CNI SUNNYBROOK SATELLITE SBK

COB NORTHUMBERLAND HILLS PET

COL COLLINGWOOD GENERAL & MARINE OSM

CRC COMMUNITY RENAL CENTRE SJH

CVH TRILLIUM HEALTH PARTNERS – CREDIT VALLEY HOSPITAL CVH 1EG (December 2014 data and earlier) [HISTORICAL] TORONTO EAST GENERAL HOSPITAL EGH

EGH

(January 2015 data onwards) TORONTO EAST GENERAL HOSPITAL SMH

ETG ETOBICOKE GENERAL HOSPITAL BMH

GBH GREY-BRUCE HEALTH SERVICES – OWEN SOUND LHS

GFS FREEPORT SITE GRH

GGH GUELPH GENERAL HOSPITAL GRH

GRH GRAND RIVER HOSPITAL CORPORATION GRH

HDH HANOVER AND DISTRICT HOSPITAL LHS

HDM MUSKOKA ALGONQUIN HEALTHCARE OSM

HGH HAWKESBURY GENERAL HOSPITAL TOH

HHG HAMILTON GENERAL HOSPITAL JHH

HPH HURON PERTH HOSPS PARTNERSHIP (STRATFORD) LHS

HRR HUMBER RIVER HOSPITAL HRR

HSU SCARBOROUGH HD SATELLITE UNIT SGH 1HW (December 2014 data and earlier) [HISTORICAL] HEADWATERS HEALTH CARE CVH

HWH (January 2015 data onwards) HEADWATERS HEALTH CARE BMH

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Code Description Hospital Code

JGE ST. JOSEPH’S GENERAL HOSPITAL (ELLIOTT LAKE) SRH

JHH ST. JOSEPH’S HEALTHCARE – HAMILTON JHH

JUH JURAVINSKI HOSPITAL JHH

KDH KIRKLAND AND DISTRICT HOSPITAL (KIRKLAND LAKE) SRH

KGH KINGSTON GENERAL HOSPITAL KGH

LDM LEAMINGTON SATELLITE WHD

LHC LAKERIDGE HEALTH CORPORATION LHC

LHS LONDON HEALTH SCIENCES CENTRE LHS

LIN ROSS MEMORIAL HOSPITAL (LINDSAY) PET 1LW (December 2014 data and earlier) [HISTORICAL] LAKE OF THE WOODS DISTRICT HOSPITAL SBG

LWD (January 2015 data onwards) LAKE OF THE WOODS DISTRICT HOSPITAL TBH

MFS MOOSE FACTORY – SATELLITE OF KINGSTON GENERAL HOSPITAL KGH

MHC MANITOULIN HEALTH CENTRE (LITTLE CURRENT) SRH

MNH MOUNT SINAI HOSPITAL UHN

NBH NORTH BAY REGIONAL HEALTH CENTRE NBH

NDC (December 2016 data onwards)

NAPANEE SATELLITE DIALYSIS UNIT KGH

NHS NIAGARA HEALTH SYSTEM NHS

NFS NIAGARA FALLS SITE NHS

NLT NEW LISKEARD – TEMISKAMING SRH

NWH NORTH WELLINGTON HEALTH CARE – PALMERSTON SITE GRH

NWS WELLAND SITE NHS

OAK OAK RIDGES SATELLITE YCH

OHI OTTAWA HEART INSTITUTE TOH

OSM ORILLIA SOLDIERS’ MEMORIAL HOSPITAL OSM

OTM HALTON HEALTHCARE SERVICES OTM

PCC (November 2016 data and earlier) [HISTORICAL] PROVIDENCE COMPLEX CARE KGH

PET PETERBOROUGH REGIONAL HEALTH CENTRE PET

PGG PEMBROKE GENERAL HOSPITAL RVV

PGH PENETANG GENERAL HOSPITAL OSM

PRH PRINCESS MARGARET HOSPITAL UHN

PSF PERTH AND SMITHS FALLS KGH

QCH QUEENSWAY CARLETON HOSPITAL TOH

QHB QUINTE HEALTHCARE (BANCROFT) KGH

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Code Description Hospital Code

QHP QUINTE HEALTHCARE (PICTON) KGH

RCC RENAL CARE CENTRE CVH

RVH ROYAL VICTORIA HOSPITAL (BARRIE) OSM

RVS ROUGE VALLEY HEALTH SYSTEM SGH

RVV RENFREW VICTORIA HOSPITAL RVV

SAH SAULT AREA HOSPITAL SAH

SBK SUNNYBROOK HEALTH SCIENCES CENTRE SBK

SCO SISTERS OF CHARITY OF OTTAWA TOH

SGH THE SCARBOROUGH HOSPITAL SGH

SHK SENSENBRENNER HOSPITAL (KAPUSKASING) SRH

SJH ST.JOSEPH’S HEALTH CENTRE TORONTO SJH

SMB ST. FRANCIS MEMORIAL HOSPITAL (BARRY’S BAY) RVV

SMG ST. MARY’S GENERAL HOSPITAL GRH

SMH ST. MICHAEL’S HOSPITAL SMH

SOS OHSWEKEN – SIX NATIONS JHH

SRH HEALTH SCIENCES NORTH SRH

SSC STONEY CREEK JHH

SSH SOUTH STREET HOSPITAL LHS

STH SOUTHLAKE HOSPITAL YCH

TBH THUNDER BAY REGIONAL HEALTH SCIENCES CENTRE TBH

TCS CIVIC SITE TOH

TDH TIMMINS AND DISTRICT HOSPITAL TDH

TEG TORONTO GENERAL – EATON GROUND UHN

TFF FORT FRANCES TBH

TGG (March 2016 data and earlier) [HISTORICAL] TORONTO GENERAL – GERRARD GROUND UHN

TGH TORONTO GENERAL HOSPITAL UHN

TIP (March 2016 data and earlier) [HISTORICAL] TORONTO GENERAL – IN PATIENT UHN

TMH TILLSONBURG DISTRICT MEMORIAL HOSPITAL LHS

TMS TRILLIUM MISSISSAUGA SITE CVH

TOH THE OTTAWA HOSPITAL TOH

TRI TORONTO REHAB INSTITUTE UHN

TRS RIVERSIDE SITE TOH

TSL SIOUX LOOKOUT TBH

TWH TORONTO WESTERN HOSPITAL UHN

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Code Description Hospital Code

TWT TRILLIUM WEST TORONTO SITE CVH

UHN (March 2016 data and earlier) [HISTORICAL] UNIVERSITY HEALTH NETWORK

UHN

VAU VAUGHAN SATELLITE YCH

WDG WINDSOR SATELLITE WHD

WGH WOODSTOCK GENERAL HOSPITAL LHS

WHD WINDSOR REGIONAL HOSPITAL WHD

WKC WESTMOUNT KIDNEY CARE CENTRE LHS

WMH WINCHESTER MEMORIAL HOSPITAL TOH

WPS WEST PARRY SOUND HEALTH CENTRE SRH

YCH MACKENZIE HEALTH YCH

YHS YEE HONG SATELLITE SGH

IHF Location Codes

Code Description

BCB BAYSHORE CENTRES - BROCKVILLE CLINIC IHF

BCS (August 2016 data and earlier) [HISTORICAL] BAYSHORE CENTRES - STONEY CREEK IHF

CEO CORNWALL EASTERN ONTARIO DIALYSIS CLINIC IHF

DMA DMC - AJAX/PICKERING

DMM DMC - MARKHAM

DMP DMC - PETERBOROUGH

LCD LION'S CAMP DORSET CORPORATION

OCD OTTAWA CARLETON DIALYSIS CLINIC IHF

Self-Care Location Codes

Code Description

SHP SHEPPARD CENTRE

SUS SUSSEX CENTRE

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Long-Term Care (LTC) Location Codes

Code Description Hospital Code

LCCT LEISUREWORLD CAREGIVING CENTRE, MISSISSAUGA CVH

FHLG FOREST HEIGHTS LONG-TERM CARE CENTRE GRH

RTEG ROYAL TERRACE GRH

SHLG STIRLING HEIGHTS LONG-TERM CARE CENTRE GRH

WTLG WELLINGTON TERRACE LONG-TERM CARE HOME GRH

CCHG CARESSANT CARE - HARRISON GRH

CCFG CARESSANT CARE - FERGUS GRH

CCAG CARESSANT CARE - ARTHUR GRH

ACLH ARBOUR CREEK LONG-TERM CARE CENTRE JHH

IMAH IDLEWYLD MANOR JHH

SJLH ST. JOSEPH'S LIFECARE CENTRE JHH

JMPK THE JOHN M. PARROTT CENTRE KGH

CARK CARVETH CARE CENTRE KGH

HESL HILLSDALE ESTATES LHC

CPKL CHELSEY PARK LHS

CTEL COUNTRY TERRACE LHS

OLTL ONEIDA LONG TERM CARE HOME LHS

GPHO GROVE PARK HOME OSM

SMBO SIMCOE MANOR - BEETON OSM

TMAO TRILLIUM MANOR OSM

LCCO LEISUREWORLD CAREGIVING CENTRE, MISSISSAUGA OTM

WMAO WYNDHAM MANOR OTM MSRS MON SHEONG SCARBOROUGH LONG-TERM CARE CENTRE SGH YHCS YEE HONG CENTRE - SCARBOROUGH FINCH SGH RNHS ROCKCLIFFE NURSING HOME SGH DRSM DRS. PAUL AND JOHN REKAI CENTRE SMH SJVH ST. JOSEPH'S VILLA SRH SGVH VILLA ST. GABRIEL VILLA SRH BNHT BETHAMMI NURSING HOME TBH

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Code Description Hospital Code

BMNO BAYFIELD MANOR NURSING AND RETIREMENT HOME TOH

SLRO ST. LOUIS RESIDENCE TOH

TOCU THE O'NEILL CENTRE UHN

SPHD SUN PARLOR HOME, COUNTY OF ESSEX WHD

MHRM MARIANN NURSING HOME AND RESIDENCE YCH

MSRM MON SHEONG RICHMOND HILL LONG-TERM CARE CENTRE YCH

SHAM SIMCOE MANOR HOME FOR THE AGED YCH

Treatment (Modality) Codes

Code Description Alerts/Triggers in ORRS Application

Chronic Specific Codes

040 CAPD & HD

044 CAPD & HD - Assistance

050 APD & HD

054 APD & HD - Assistance

060 (March 2017 data and earlier) PD & HD

064 (March 2017 data and earlier) PD & HD - Assistance

111 Acute Care Hospital - Conventional HD - Total Care Alert/Trigger at 3rd and 6th month

112 Acute Care Hospital - Conventional HD - Limited Self Care Alert/Trigger at 3rd and 6th month

121 Acute Care Hospital - Short Daily HD - Total Care Alert/Trigger at 3rd and 6th month

122 Acute Care Hospital - Short Daily HD - Limited Self Care Alert/Trigger at 3rd and 6th month

131 Acute Care Hospital - Slow Nocturnal HD - Total Care Alert/Trigger at 3rd and 6th month

141 Acute Care Hospital - CAPD - Total Care

151 Acute Care Hospital - APD - Total Care

171 Acute Care Hospital - Transplant - Total Care

211 Chronic Care Hospital - Conventional HD - Total Care Alert/Trigger at 3rd and 6th month

214 Chronic Care Hospital - Conventional HD - Assistance

221 Chronic Care Hospital - Short Daily HD - Total Care Alert/Trigger at 3rd and 6th month

224 Chronic Care Hospital - Short Daily HD - Assistance

241 Chronic Care Hospital - CAPD - Total Care

244 Chronic Care Hospital - CAPD - Assistance

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Code Description Alerts/Triggers in ORRS Application

251 Chronic Care Hospital - APD - Total Care

254 Chronic Care Hospital - APD - Assistance

281 Chronic Care Hospital - CAPD (Nursing Home) - Total Care

284 Chronic Care Hospital - CAPD (nursing Home) - Assistance

291 Chronic Care Hospital - APD (Nursing Home) - Total Care

294 Chronic Care Hospital - APD (Nursing Home) - Assistance

311 Community Centre - Conventional HD - Total Care Alert/Trigger at 3rd and 6th month

312 Community Centre - Conventional HD - Limited Self Care Alert/Trigger at 3rd and 6th month

321 Community Centre - Short Daily HD - Total Care Alert/Trigger at 3rd and 6th month

322 Community Centre - Short Daily HD - Limited Self Care Alert/Trigger at 3rd and 6th month

332 Community Centre - Slow Nocturnal HD - Limited Self Care Alert/Trigger at 3rd and 6th month

341 Community Centre - CAPD - Total Care

351 Community Centre - APD - Total Care

412 Home - Conventional HD - Limited Self Care

413 Home - Conventional HD - Total Self Care

414 Home - Conventional HD - Assistance

422 Home - Short Daily HD - Limited Self Care

423 Home - Short Daily HD - Total Self Care

424 Home - Short Daily HD - Assistance

432 Home - Slow Nocturnal HD - Limited Self Care

433 Home - Slow Nocturnal HD - Total Self Care

434 Home - Slow Nocturnal HD - Assistance

442 Home - CAPD - Limited Self Care

443 Home - CAPD - Total Self Care

444 Home - CAPD - Assistance

452 Home - APD - Limited Self Care

453 Home - APD - Total Self Care

454 Home -APD - Assistance

Non-Chronic / Other Modality Codes

AHD Acute HD

CSD CRRT-SLEDD

CCV CRRT-CVVHD

PDS Pre-dialysis Services

NDT No Dialysis Treatment

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Primary Renal Disease Codes

Code Description

0 Chronic renal failure - etiology uncertain

5 Mesangial proliferative GN

6 Minimal lesion GN

7 Post strep GN

8 Rapidly progressive GN

9 Focal GN - adult

10 GN - Histologically NOT examined

11 GN - Severe nephrotic syndrome - focal sclerosis (peds)

12 GN - IgA Nephropathy (proven)

13 GN - Dense deposit disease (proven)

14 GN - Membranous nephropathy

15 GN - Mebranoproliferative mesangiocapilliary GN Type 1

16 GN - Idiopathic crescented GN (diffuse proliferative)

17 GN - Congenital nephrosis or nephrotic syndrome

19 GN - Histologically examined

20 Pyelo/Interstitial Nephritis - cause not specified

21 Pyelo/Interstitial Nephritis - neurogenic bladder

22 Pyelo/Interstitial Nephritis - cong. obstruct. uropathy

23 Pyelo/Interstitial Nephritis - acqu. obstruct. uropathy

24 Pyelo/Interstitial Nephritis - vesico-ureteric reflux

25 Pyelo/Interstitial Nephritis - urolithiasis

29 Pyelo/Interstitial Nephritis - other specified cause

30 Nephropathy - drug induced - cause not specified

31 Nephropathy - drug induced - analgesic drugs

32 Cisplatin

33 Nephropathy - drug induced - Cyclosporin A

39 Nephropathy - drug induced - other specified drug

40 Cystic Kidney disease - type unspecified

41 Polycystic Kidneys - adult type (dominant)

42 Polycystic Kidneys - infant type (recessive)

43 Medullary cystic disease - including nephronophthisis

49 Cystic Kidney disease - type specified

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Code Description

50 Hereditary/Familial Nephropathy - type unspecified

51 Hereditary Nephritis - Alport's Syndrome

52 Cystinosis

53 Primary oxalosis

54 Fabry's disease

55 DRASH Syndrome

56 Sickle cell Syndrome

57 Wilm's tumour

58 Posterior urethral valves

59 Hereditary Nephropathy - other

60 Congenital renal hypoplasia - type unspecified

61 Oligomeganephronic hypoplasia

62 Segmental renal hypoplasia - Ask-Upmark kidney

63 Congenital renal dysplasia - urinary tract malformation

66 Agenesis of abdominal muscles - Prune Belly Syndrome

70 Renal Vascular disease - type unspecified

71 Renal Vascular disease - malignant hypertension NO PRD

72 Renal Vascular disease - hypertension NO PRD

73 Polyarteritis nodosa

74 Wegener's Granulomatosis

78 Atheroembolic renal disease

79 Renal Vascular disease - classified

80 Diabetes - Type I

81 Diabetes - Type II

82 Myelomatosis/Multiple myeloma

83 Amyloid

84 Lupus Erythematosus

85 Henoch-Schonlein purpura

86 Goodpasture's Syndrome

87 Scleroderma

88 Haemolytic Uraemic Syndrome (Moschcowitz)

89 Multi-system disease - other

90 Cortical or acute tubular necrosis

91 Tuberculosis

92 Gout

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Code Description

93 Nephrocalcinosis & hypercalcaemic nephropathy

94 Balkan nephropathy

95 Kidney tumour

96 Traumatic or surgical loss of kidney

97 HIV nephropathy

99 Other:

NR Not reported (to date)

Malignancy Site Codes

Code Description

11 Two or more primary malignancies

20 Squamous cell carcinoma

21 Basal Cell Carcinoma

22 Squamous and basal cell carcinoma

23 Malignant Melanoma

25 Myeloma

26 Acute leukemia

27 Chronic leukemia

29 Reticulum cell sarcoma

30 Kaposi sarcoma

31 Lymphosarcoma

33 Plasma cell lymphoma

34 Hodgkin's disease

35 Lymphoreticular tumours

36 Histiocytic reticulosis

40 Lip

41 Tongue

42 Parotid

43 Oesophagus

44 Stomach

45 Colon

46 Rectum

47 Anus

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Code Description

48 Liver- primary hepatoma

49 Liver- primary lymphoma

50 Gallbladder and bile duct

51 Pancreas

53 Larynx

54 Thyroid

55 Bronchus

56 Lung, Primary tumour

60 Kidney- Wilm's Tumour

61 Kidney- Hypernephroma of host kidney

62 Kidney- Hypernephroma of graft kidney

63 Renal pelvis

64 Ureter

65 Urinary bladder

66 Urethra

67 Prostate

68 Testis

69 Penis

70 Scrotum

71 Perineum

72 Vulva

73 Vagina

74 Uterus- cervix

75 Uterus- body

76 Ovary

80 Breast

81 Muscle

82 Bone

83 Brain- primary lymphoma

84 Brain- other primary tumour

85 Other tumour of central nervous system

90 Metastatic carcinoma, primary site unknown

99 Other primary tumour

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Treatment Event Codes

Code Description

AC AC (Access Change)

M M (Modality Change)

R R (Recovered)

RR RR (Returning Patient)

TX TX (Transplanted)

F F (Failed Transplant)

TI TI (Transfer Into Region)

TO TO (Transfer Out of Region)

L-IN L-IN (Location Change In)

L-OUT L-OUT (Location Change Out)

TR-IN TR-IN (Hospital Transfer In)

TR-OUT TR-OUT (Hospital Transfer Out)

TS TS (Home Dialysis Training Start)

TE TE (Home Dialysis Training End)

RS RS (Home Dialysis Re-training Start)

RE RE (Home Dialysis Re-training End)

VR VR (Pre-Dialysis Clinic Visit)

VA VA (Body/Vascular Access Clinic Visit)

VE VE (Education Clinic Visit)

D D (Died)

W W (Withdrew)

X X (Lost to Follow-up)

ID3 ID3 (Independent Dialysis 3-Month Status)

ID6 ID6 (Independent Dialysis 6-Month Status)

VA3 VA3 (Vascular Access 3-Month Status)

VA9 VA9 (Vascular Access 9-Month Status)

NC No change reported for Patient in period

VF Follow-up Clinic Visit

TU Transplant Update

RP Change Responsibility for Payment

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Reason for Change Codes

Code Description

01 Peritonitis

02 Other abdominal complications

03 Inadequate dialysis

08 Intended Treatment

13 Not reported

14 Patient initiated - choice or unable to cope

15 HD access failure

16 Other complications related to PD

17 Cardiovascular instability

18 Resource/geographical (non-medical)

19 Requires increased care

20 Left country

11 Lost to follow-up

62 Body/Vascular Access Procedure

70 Starting dialysis

80 Exit site/tunnel Infection

81 Peritoneal dialysis catheter related problems

82 Inadequate solute clearance

83 Inadequate salt and water clearance

84 Psychological/ Social/ Financial reasons

85 Medical/ Psychiatric reasons

99 Other, specify

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Reason for Chronic Withdrew Codes

Code Description

1 Psychosocial

2 Vascular (stroke, PVD, etc.)

3 Heart disease

4 Infection

5 Cancer

6 Dementia

7 Other

Reason for Pre-dialysis Withdrew Codes

Code Description

71 No treatment (comprehensive conservative renal care)

72 Discharged to general nephrology care

73 Discharged back to primary care setting

74 Transfer of care to another service

7 Other

Transplant Hospitals

Code Description

HSC HOSPITAL FOR SICK CHILDREN

JHH ST. JOSEPH'S HEALTHCARE – HAMILTON

KGH KINGSTON GENERAL HOSPITAL

LHS LONDON HEALTH SCIENCES CENTRE

SMH ST. MICHAEL'S HOSPITAL

TOH THE OTTAWA HOSPITAL

UHN UNIVERSITY HEALTH NETWORK

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Death Type Codes

Code Description

0 Cause of death uncertain/not determined

2 Gastro-intestinal tumour with or without perforation

3 Infection (Bacterial)

4 Infection (Viral)

5 Infection (Fungal)

6 Cytomegalovirus

7 Epstein Barr Virus

8 Pneumocystic Carinii Pneumonia (PCP)

9 Protozoal/Parasitic infection (includes toxoplasmosis)

10 Wound infection

11 Myocardial Ischaemia and Infarction

12 Hyperkalaemia

13 Haemorrhagic Pericarditis

14 Other causes of cardiac failure

15 Cardiac arrest, cause unknown

16 Hypertensive cardiac failure

17 Hypokalaemia

18 Fluid overload

19 Acute Respiratory Distress Syndrome

20 Acute Gastroenteritis with dehydration

21 Pulmonary Embolus

22 Cerebrovascular Accident

23 Gastro-intestinal haemorrhage

24 Haemorrhage from graft site

25 Haemorrhage from vascular access or dialysis circuit

26 Ruptured Vascular Aneurysm

27 Haemorrhage from Surgery (Not codes 23, 24 or 26)

28 Other haemorrhage (Not codes 23-27)

29 Mesenteric Infarction

30 Hypertension

31 Pulmonary infection (bacterial)

32 Pulmonary infection (viral)

33 Pulmonary infection (fungal)

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Code Description

34 Infections elsewhere (except Viral Hepatitis, see Codes 41-42)

35 Septicaemia/Sepsis

36 Tuberculosis (Lung)

37 Tuberculosis (elsewhere)

38 Generalized viral infection

39 Peritonitis

40 Diabetic keto acidosis (DKA)

41 Liver, due to Hepatitis B virus

42 Liver, other Viral Hepatitis

43 Liver, Drug toxicity

44 Cirrhosis (Not viral)

45 Cystic Liver Disease

46 Liver failure, cause unknown

49 Bronchiolitis Obliterans

50 Drug abuse (excludes alcohol abuse)

51 Patient refused further treatment

52 Suicide

53 Therapy ceased for any other reason

54 Alcohol abuse

55 Vascular Thrombosis

56 Pulmonary Vein Stenosis

57 Stent/balloon complication

58 Drug-related toxicity

62 Pancreatitis

63 Bone Marrow Depression

64 Cachexia

65 Unknown

66 Malignant disease possibly induced by immunosuppressive therapy - specific primary site

67 Malignant disease (not code 66) - specific primary source

68 Perforation of peptic ulcer

69 Dementia

70 Sclerosing (or Adhesive) Peritoneal Disease

71 Thrombocytopenia

72 Perforation of colon

73 Thrombosis – specify

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Code Description

74 Liver, due to Hepatitis C virus

75 Drug Neurotoxicity

76 Status Epilepticus

77 Neurologic infection

81 Accident related to treatment

82 Accident unrelated to treatment

90 Multi-system failure

99 Other identified cause of death – specify

NR Not reported

Home HD Assessment Reason Codes

Code Description

1 Support not available (i.e. CCAC)

2 No LTC with hemodialysis provision

3 Unreliable / no electricity available at home

7 No Home HD program

8 Limited resources available to train patients for independent modalities (human, capacity, supplies etc. resulting in long wait list for training)

9 Acute start (initiated dialysis as an inpatient and discharged without modality education)

11 Difference in opinion within the renal team.

15 Medical contraindication

16 Psychiatric contraindication

17 Temporary medical contraindications

18 Has living donor, transplant expected soon

19 Medical or psychiatric contraindication - as a result cannot cannulate

20 Intercurrent illness requiring acute start

23 Accommodation challenges (homeless)

24 No home support

25 Home is deemed unsuitable by health care team

26 Limited space at home

27 Family does not want home dialysis (despite potential patient's choice)

28 Landlord prohibition

29 Patient feels treatment should be done by health care professionals

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Code Description

30 Language barriers

31 Unable to afford the extra utility cost

32 Poor water quality (no solution available)

33 Unable to attend lengthy training sessions at centre

34 Unable to bear the cost of attending lengthy training sessions at centre (i.e. transportation, accommodations)

37 Problematic delivery of supplies

38 Unable to do home HD temporarily (moving in a few months, changing job etc.)

39 Convenient location of facility based HD

42 Fear of burdening the family

43 Is not convinced of the benefit/inconvenience ratio

44 Fear of a catastrophic event

45 Feeling too overwhelmed by acute start dialysis to consider ID

46 Other psychological factors

47 Unaware of Home HD options

48 Fear of needling

49 Cultural reasons

50 Feels Home Hemodialysis would infringe on their lifestyle (i.e. travel, swimming, sports)

51 Failed HHD training

52 cannot learn

53 Failed HHD previously

54 Conservative management

55 Other

56 In the process of switching to HHD

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Home PD Assessment Reason Codes

Code Description

1 Support not available (i.e. CCAC)

2 No LTC with PD provision

3 Long wait list for LTC (with PD provision)

7 No PD program

8 Limited resources available to train patients for independent modalities (human, capacity, supplies etc. resulting in long wait list for training)

9 Acute start (initiated dialysis as an inpatient and discharged without modality education)

10 Inability to get PD catheter in timely manner

11 Difference in opinion within the renal team.

15 Medical contraindications

16 Psychiatric contraindication

17 Temporary medical contraindications, e.g. PEG tube

18 Has living donor, transplant expected soon

19 Previous major abdominal surgery

20 Intercurrent illness requiring acute start

21 Large polycystic kidneys

22 Inability to establish PD access

23 Accommodation challenges (Homeless)

24 No home support

25 Home is deemed unsuitable by health care team

26 Limited space at home

27 Family does not want home dialysis (despite potential patient's choice)

29 Patient feels treatment should be done by health care professionals

30 Language barriers

31 Unable to attend lengthy training sessions at centre

34 Unable to bear the cost of attending lengthy training sessions at centre (i.e. transportation, accommodations)

37 Problematic delivery of supplies

39 Convenient location of facility based HD

42 Fear of burdening the family

43 Is not convinced of the benefit/inconvenience ratio

44 Fear of treatment

45 Feeling too overwhelmed by acute start dialysis to consider ID

46 Other psychological factors

47 Unaware of PD option

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Code Description

48 Body image - does not want PD catheter

49 Cultural reasons

50 Feels Home PD would infringe on their lifestyle (i.e. travel, swimming, sports)

51 Failed PD training (unable/slow to learn)

52 cannot learn

53 Failed PD previously

54 Conservative management

55 Other

56 In the process of switching to PD

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VA Assessment Reason Codes

Code Reason

Milestone 1: Eligibility cannot go for AV Assessment

9 High comorbidity risk - Life expectancy < 12 months

10 High comorbidity risk - Severe peripheral vascular disease

11 High comorbidity risk - MI in last 3-6 months

12 High comorbidity risk - LV function <20%

13 High comorbidity risk - Cognitive decline

14 High comorbidity risk - Other

15 No vessels appropriate for access - Nephrologist assessment only

19 Unexpected start for hemodialysis - Chronic kidney disease was not expected to progress

20 Unexpected start for hemodialysis - Risk of death before dialysis exceeded progression of CKD

33 Hemodialysis not intended modality - Living related transplant within 6 months

34 Hemodialysis not intended modality - Intends to start PD

30 Patient refusal - Assessed by Nephrologist but refused surgical assessment

38 Hemodialysis not intended modality- Patient chose comprehensive conservative renal care

47 Other

48 Patient awaiting recovery

Milestone 3: Intended Access if HD catheter is selected

9 High comorbidity risk - Life expectancy < 12 months

10 High comorbidity risk - Severe peripheral vascular disease

11 High comorbidity risk - MI in last 3-6 months

12 High comorbidity risk - LV function <20%

13 High comorbidity risk - Cognitive decline

14 High comorbidity risk - Other

15 No vessels appropriate for access - Nephrologist assessment only

16 No vessels appropriate for access- Surgeon assessment - US mapping/venography NOT done

17 No vessels appropriate for access - Surgeon assessment - US mapping/venography done

18 No vessels appropriate for access - Multiple failed attempts/ no other available vessels

19 Unexpected start for hemodialysis - Chronic kidney disease was not expected to progress

20 Unexpected start for hemodialysis - Risk of death before dialysis exceeded progression of CKD

33 Hemodialysis not intended modality - Living related transplant within 6 months

34 Hemodialysis not intended modality - Intends to start PD

36 Hemodialysis not intended modality - Deceased transplant expected

28 Patient refusal - Surgical assessment

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Code Reason

47 Other

Milestone 4, 5, 6: Access at X - If HD Catheter is selected (X= Initial Access, 3 Month or 9 Month)

25 Modality/VA education - Not offered

26 Modality/VA education - Offered but not attended (patient refused/cancelled)

27 Modality/VA education - Attended but delay in decision making

2 AV Access not created - Not yet referred to surgeon

3 AV Access not created - Referred to surgery waiting for vessel mapping

4 AV Access not created - Referred to surgery waiting for surgical assessment

5 AV Access not created - Surgical assessment done - Waiting for VA surgery

33 Hemodialysis not intended modality - Living related transplant within 6 months

34 Hemodialysis not intended modality - Intends to start PD

35 Hemodialysis not intended modality - Initial choice was PD but failed or patient no longer suitable

36 Hemodialysis not intended modality - Deceased transplant expected

37 Hemodialysis not intended modality - Temporary transfer from PD (i.e. peritonitis, leak etc)

15 No vessels appropriate for access - Nephrologist assessment only

16 No vessels appropriate for access- Surgeon assessment - US mapping/venography NOT done

17 No vessels appropriate for access - Surgeon assessment - US mapping/venography done

18 No vessels appropriate for access - Multiple failed attempts/ no other available vessels

9 High comorbidity risk - Life expectancy < 12 months

10 High comorbidity risk - Severe peripheral vascular disease

11 High comorbidity risk - MI in last 3-6 months

12 High comorbidity risk - LV function <20%

13 High comorbidity risk - Cognitive decline

14 High comorbidity risk - Other

19 Unexpected start for hemodialysis - Chronic kidney disease was not expected to progress

20 Unexpected start for hemodialysis - Risk of death before dialysis exceeded progression of CKD

21 Unexpected start for hemodialysis - Acute event requiring urgent start dialysis

28 Patient refusal - Surgical assessment

29 Patient refusal - Patient refused further intervention

30 Patient refusal - Assessed by Nephrologist but refused surgical assessment

31 Patient cancelled/delayed surgical assessment

32 Patient cancelled/delayed surgery

40 AV access created - Failed, not amenable for intervention, not cannulated

41 AV access created - Cannulation attempted and failed

42 AV access created - Not yet mature for cannulation

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Code Reason

43 AV access created - Requires 2nd stage

44 AV Access created - AV access ligated – access induced ischemia

45 AV access created - Patient refused cannulation

47 Other

48 Patient awaiting recovery

49 Patient not known to CKD clinic - acute kidney injury requiring urgent start of dialysis

50 Transplant to HD - requiring HD after failed transplant

Responsibility for Payment Codes: Code Description

01 Provincial/territorial responsibility

02 Workers' Compensation Board/Workplace Safety and Insurance Board (WCB/WSIB), Workers' Service Insurance Board or equivalent

03 Other province/territory (resident of Canada)

04 Department of Veteran Affairs (DVA)/Veterans Affairs Canada (VAC)

05 First Nations and Inuit Health Branch

06 Other federal government (Department of National Defence, Citizenship and Immigration), or penitentiary inmates

07 Canadian resident self-pay

08 Other countries resident self-pay

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Appendix B: Lab Value Ranges

Element Name Unit Valid Values

Chronic Registration

Hemoglobin g/L 60 <= hemoglobin result <= 140

Creatinine μmol/L 300 <= creatinine result <= 1500

Urea mmol/L 15 <= urea result <= 40

Serum Bicarbonate / CO2 mmol/L 20 <= serum bicarbonate result <= 30

Serum Calcium (Corrected) mmol/L 2.22 <= serum calcium corrected result <= 2.60

Serum Calcium (Uncorrected) mmol/L 2.10 <= serum calcium uncorrected result <= 2.60

Serum Calcium (Ionized) mmol/L 1.19 <= serum calcium ionized result <= 1.29

Serum Phosphate mmol/L 1.50 <= serum phosphate result <= 1.80

Serum Albumin g/L 25 <= serum albumin <= 50

Serum Parathormone (PTH) pmol/L 1.30 <= serum parathormone result <= 7.60

Serum Parathormone (PTH) ng/L 18 <= serum parathormone result <= 73,

Serum Parathormone (PTH) pg/mL 10 <= serum parathormone result <= 65,

Pre-dialysis Registration

Creatinine μmol/L 300 <= creatinine result <= 1500

eGFR mls/min

eGFR lab value range validation for records dated on or after April 1, 2017 is not applicable. Refer to the ORRS R5 Technical Specifications and/or R5 Data Dictionary for lab value range details for records dated before April 1, 2017.

Proteinuria ACR 100 <= proteinuria result <= 4000

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Appendix C: Height and Weight Value Ranges Element ID Element

Name Unit Age Valid Range

Chronic and Pre-dialysis

C51, D1 Height cm Less than 6 25 <= Height <= 125

6 to less than 10 75 < Height < 150

10 to less than 15 100 < Height < 200

Older than 15 120 < Height < 220

C52, D2 Weight kg Less than 4 0.454 < Weight < 30

4 to less than 9 9 < Weight < 50

9 to less than 15 20 < Weight < 100

Older than 15 35 < Weight < 160

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Appendix D: Definitions

Name Description

Follow-Up Dialysis Clinic Visit for Independent Health Facility (IHF) Patient

A multi-disciplinary team clinical assessment for patients receiving regular hemodialysis at an IHF, which may include diagnostic testing, treatment and/or intervention. The visit may occur at a Regional Centre, at the IHF or via telemedicine. Measured by the number of clinic visits.

Follow-up Clinic Visit for Home Peritoneal Dialysis Patient

A multi-disciplinary team clinical assessment which may include diagnostic testing, treatment and/or intervention of the patient having peritoneal dialysis at home. The visit may occur in person or via telemedicine.

Follow-up Clinic Visit for Home Hemodialysis Patient

A multi-disciplinary team clinical assessment which may include diagnostic testing, treatment and/or intervention. The visit may occur in person or via telemedicine.

Education Clinic Visit For patients at the point of making decisions regarding dialysis modality choice or those who have started dialysis without education about modality choice, i.e., patients must be pre-dialysis (eGFR< 30) or on dialysis. These patients may also be separately followed in a pre-dialysis or nephrology clinic. Visits are dedicated to education about chronic kidney disease, its complications and treatment options. The goals are to promote patient self-management and to support informed choices on renal replacement therapy, including dialysis treatment modality. Note: Treatment Event is currently collected in ORRS

Education Clinic Visit: One-on-one Individualized Sessions

Provided as an individualized 60-minute 1:1 education session with any level nurse working in an educator capacity (e.g. Nurse Practitioner, Nurse Educator, Nurse Coordinator, Registered Nurse). This does not include the nurse providing dialysis treatment. A 60-minute education visit may be spread over a maximum of 3 encounters with the patient. However, the program should only report, and will only be reimbursed for an equivalent, one visit. Education clinic visits may be reported as follows: 1 visit = 1 encounter of 60 minutes or greater 1 visit = 2 encounters of 30 minutes or greater 1 visit = 3 encounters of 20 minutes or greater Measured by the number of visits. Note: Treatment Event is currently collected in ORRS

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Name Description

Education Clinic Visit: Group Sessions

Group education sessions provided by more than 1 health care educator to a group of patients. Measured by the number of group sessions. Note: Treatment Event is currently collected in ORRS

Pre-Dialysis Clinic Visit

Interdisciplinary clinic dedicated to the optimal care of patients with a progressively declining eGFR< 30. The goal of the pre-dialysis clinic visit is to provide management to: slow progressive eGFR decline; prevent, monitor and treat the multisystem complications of CKD and co-morbid illnesses; and prepare for renal replacement therapy. Requires that patient be seen by at least 3 of following health professionals: Nurse or Physician Assistant, Dietitian, Social Worker, Pharmacist/Pharmacy Technologist, or Physician. Note: service recipients include patients with failing transplants and eGFR<30. Note: Treatment Event is currently collected in ORRS

Total Care Under full care of trained staff affiliated with a nephrology unit. Note: Care required is currently collected in ORRS

Limited Self Care Receives a minimal amount of assistance from trained staff affiliated with a nephrology unit (not including family member(s)). This level of care can be utilized when patient is undergoing home training. Note: Care required is currently collected in ORRS

Total Self Care Patient is completely responsible for his/her own treatment, with no assistance from nephrology trained staff. A patient may be classified as total self-care if he/she receives assistance from family member(s) or home care worker who is not a trained staff affiliated with a nephrology unit. Note: Care required is currently collected in ORRS

Comprehensive Conservative Renal Care (CCRC)

Comprehensive conservative renal care (CCRC) is planned holistic patient-centred care for patients with stage 5 CKD that includes the following:

Interventions to delay progression of kidney disease and minimize risk of adverse events or complications;

Shared decision-making;

Active symptom management;

Detailed communication including advance care planning;

Psychological support;

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Name Description

Social and family support; and

Cultural and spiritual domains of care. Comprehensive conservative renal care is full renal care that does not include dialysis.

Being informed about comprehensive conservative renal care as a treatment option means the care team has educated the patient or has had, at a minimum, a discussion about the option of comprehensive conservative renal care with the patient. The content of the education or discussion may vary depending on the status of the patient.

Appendix E: Modality and Census Groups Modality Group Census Group Treatment (Modality Codes)

Acute Acute Dialysis AHD, CCV, CSD

Acute HD AHD

CRRT CCV, CSD

CRRT-CVVHD CCV

CRRT-SLEDD CSD

Assistance Assistance 044, 054, 064, 214, 224, 244, 254, 284, 294, 414, 424, 434, 444, 454

Chronic Care APD Assistance 254

Chronic Care Assistance 214, 224, 244, 254

Chronic Care CAPD Assistance 244

Chronic Care HD Assistance 214, 224

Chronic Care PD Assistance 244, 254

HD Assistance 214, 224, 414, 424, 434

Nursing Home PD Assistance 284, 294

PD Assistance 044, 054, 064, 244, 254, 284, 294, 444, 454

Chronic Care Chronic Care 211, 214, 224, 224, 241, 244, 251, 254, 281, 284, 291, 294

Chronic Care APD 251, 254

Chronic Care APD Assistance 254

Chronic Care APD No Assistance 251

Chronic Care CAPD 241, 244

Chronic Care CAPD Assistance 241

Chronic Care CAPD No Assistance

241

Chronic Care HD 211, 214, 221, 224

Chronic Care HD Assistance 214, 224

Chronic Care HD No Assistance 211, 221

Chronic Care PD 241, 244, 251, 254

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Modality Group Census Group Treatment (Modality Codes)

Chronic Care PD Assistance 244, 254

Chronic Care PD No Assistance 241, 254

Nursing Home PD 281, 284, 291, 294

Nursing Home PD Assistance 284, 294

Nursing Home PD No Assistance 281, 291

Facility-based PD Community APD 351

Community CAPD 341

Community PD 341, 351

Facility-based APD 151, 351

Facility-based CAPD 141, 341

Facility-based PD 141, 151, 341, 351

Hospital APD 151

Hospital CAPD 141

Hospital PD 141, 151

HD Chronic Care HD 211, 214, 221, 224

Chronic Care HD Assistance 214, 224

Chronic Care HD No Assistance 211, 221

Community HD 311, 321

Community Self Care HD 312, 322, 332

HD 111, 112, 121, 122, 131, 211, 214, 221, 224, 311, 312, 321, 322, 332, 412, 413, 414, 422, 423, 424, 432, 433, 434

HD Assistance 214, 224, 414, 424, 434

HD No Assistance 111, 112, 121, 122, 131, 211, 221, 311, 312, 321, 322, 332, 412, 413, 422, 423, 432, 433

Home HD 412, 413, 414, 422, 423, 424, 432, 433, 434

Home HD Assistance 414, 424, 434

Home HD No Assistance 412, 413, 422, 423, 432, 433

Hospital Self Care HD 112, 122

Hospital Total Care Conventional/Short Daily HD

111, 121

Hospital Total Care HD 111, 121, 131

Hospital Total Care Nocturnal HD 131

Independent Dialysis Home HD 412, 413, 414, 422, 423, 424, 432, 433, 434

Home HD Assistance 414, 424, 434

Home HD No Assistance 412, 413, 422, 423, 432, 433

Home HD & PD 040, 044, 050, 054, 060, 064, 141, 151, 241, 244, 251, 254, 281, 284, 291, 294, 341, 351, 412, 413, 414, 422, 423, 424, 432, 433, 434, 442, 443, 444, 452, 453, 454

Home HD & PD Assistance 044, 054, 064, 244, 254, 284, 294, 414, 424, 434, 444, 454

Home HD & PD No Assistance 040, 050, 060, 141, 151, 241, 251, 281, 291, 341, 351, 412, 413, 422, 423, 432, 433, 442, 443, 452, 453

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Modality Group Census Group Treatment (Modality Codes)

PD 040, 044, 050, 054, 060, 064, 141, 151, 241, 244, 251, 254, 281, 284, 291, 294, 341, 351, 442, 443, 444, 452, 453, 454

PD Assistance 044, 054, 064, 244, 254, 284, 294, 444, 454

PD No Assistance 040, 050, 060, 141, 151, 241, 251, 281, 291, 341, 351, 442, 443, 452, 453

No Dialysis No Dialysis NDT

PD Chronic Care APD 251, 254

Chronic Care APD Assistance 254

Chronic Care APD No Assistance 251

Chronic Care CAPD 241, 244

Chronic Care CAPD Assistance 244

Chronic Care CAPD No Assistance

241

Chronic Care PD 241, 244, 251, 254, 281, 284, 291, 294

Chronic Care PD Assistance 244, 284, 284, 294

Chronic Care PD No Assistance 241, 251, 281, 294

Community APD 351

Community CAPD 341

Community PD 341, 351

Facility-based APD 151, 351

Facility-based CAPD 141, 341

Facility-based PD 141, 151, 341, 351

Home APD 452, 453, 454

Home APD Assistance 454

Home APD No Assistance 452, 453

Home CAPD 442, 443, 444

Home CAPD Assistance 444

Home CAPD No Assistance 442, 443

Home PD 442, 443, 444, 452, 453, 454

Home PD Assistance 444, 454

Home PD No Assistance 442, 443, 452, 453

Hospital APD 151

Hospital CAPD 141

Hospital PD 141, 151

Nursing Home PD 281, 284, 291, 294

Nursing Home PD Assistance 284, 294

Nursing Home PD No Assistance 281, 291

PD 040, 044, 050, 054, 060, 064, 141, 151, 241, 244, 251, 254, 281, 284, 291, 294, 341, 351, 442, 443, 444, 452, 453, 454

PD Assistance 044, 054, 064, 244, 254, 284, 294, 444, 454

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Modality Group Census Group Treatment (Modality Codes)

PD No Assistance 040, 050, 060, 341, 351, 442, 443, 452, 453

PD & HD APD & HD 050, 054

APD & HD Assistance 054

APD & HD No Assistance 050

CAPD & HD 040, 044

CAPD & HD Assistance 044

CAPD & HD No Assistance 040

PD & HD 040, 044, 050, 054, 060, 064

PD & HD Assistance 044, 054, 064

PD & HD No Assistance 040, 050, 060

PD & HD (Historic) 060, 064

PD & HD (Historic) Assistance 064

PD & HD (Historic) No Assistance 060

Pre-dialysis Pre-dialysis PDS

Transplant Transplant 171

Appendix F: Revision History

Version Date of Revision Revision Description

V2 Wednesday, November 30, 2016 Revisions Made to Existing Data Elements: Common Data Elements for Pre-Dialysis, Chronic and Acute Patient Registration

1.7 - Health Card Number (ORRS Linking)

1.7.1 - Payment Health Card Number

1.9.2 - Responsibility for Payment Treatment Events

4.9.1 - Comprehensive Conservative Renal Care

Revisions Made in Appendix A - Reference Codes and Descriptions: Location Codes

IHF Location Codes

Treatment (Modality) Codes

Reason for Pre-dialysis Withdrew Codes

VA Assessment Reason Codes

Revisions Made in Appendix D - Definitions: Comprehensive Conservative Renal Care

New: Appendix E - Modality and Census Groups