Newsletter of the Patient and Family Advisory Program at Moffitt Cancer Center Fall 2016

More Articles Related to Coping with

Body/Image Changes on Pages 6-7.

1 Empowered to Rock My Baldness

2 UpComing Events

3 Co-Chair Column

4 Patient and Family Support Groups

5 Moffitt’s Mole Patrol Celebrates 20th Anniversary

6 Body Image, a Woman's Perspective

7 Coping with Body/Image Changes

7 Look Good Feel Better®: A Program for Women

8 Fertility Preservation Option: Sperm Banking

9 Moffitt International Plaza Flu Clinic

10 Moffitt McKinley Outpatient Center Celebrates Its First Year by Putting Patients First

11 ABCs of Home Health

12 Patient and Family Orientation

IN THIS ISSUE

IattendedtheLookGoodFeelBetter®programmysocialworkerrecommendedbecausebeingbaldmademefeel

differentfromeveryoneelseandIwantedtogetafreewig.Ifoundawig,butIalsofoundsomuchmore.Ifoundacommunity.

Iimmediatelyconnectedwithwomenofdifferentethnicbackgrounds,differenttypesofcanceranddifferentstagesofbaldness.Seeingallthesewomenwhowerealsobaldmademefeellikeitwasokay.Iespeciallyconnectedwithawomanmyagewhotriedonseveralwigsanddecidedto‘wearherbaldness’instead.Ithoughtshelookedbeautifulbeforethemake-upandwithoutthewig.Idecidedthento‘wearmybaldness’too.IrealizedIwasprettyokaywithhowIlooked.

Laterinmytreatment,awomangettinginhercaratgoldvaletlookedatmeandshouted‘Girl,yousurearerockin’thatbaldness!’Iwasempoweredbyastrangertocontinuetoacceptmyselfandtorememberthisistemporary.

Empowered to Rock My Baldness Janis Jordon, Breast Cancer Survivor

SPECIAL FEATURE

Janis Jordon

2PARTNERS | FALL 2016

I UPCOMING EVENTSARTS IN MEDICINE STUDIO 813-745-8407Openartsstudio:relax,create,express,discoverandshareinspiration

MCC - EveryMon.- Fri.,9:30a.m.-4p.m.,ArtsStudio,3rdfloor,elevatorB

MCC - Every Thu.,6:30p.m.–8:30p.m.,ArtsStudioRoom,4thfloor,elevatorC

MKC - Every Mon.- Fri., 8:30a.m.–5p.m.,PatientandFamilyCenter,1stfloor,byPublixPharmacy

AYA LOUNGE NIGHT Moffitt.org/AYA

MCC - Every Tue.,5-7p.m.,patients(ages15-39)andfamilyandfriendsareinvitedforpizza,Netflix,boardgamesandtomeetothers,AYALounge,4thfloor,elevatorC

GENTLE RESTORATIVE YOGA 813-745-4630

Hope Lodge – Every Wed. and Thur., 3–4p.m.,1stfloor

MRC – Every Tue.. 12–1p.m.,YogaRoom,1stfloor

MEDITATION / RELAXATION CLASS 813-745-4630

MCC – EveryWed.,12:15–1p.m.,DayRoom,5thfloor,useelevatorC

MEET THE EXPERT SERIES 813-745-5022

Cancerexpertsshareinformationonvarioustopics

MCC – EveryMon. - Fri.,10–10:30a.m.,PatientLibrary&WelcomeCenter,2ndfloor,elevatorB

MKC –Weekly,10:30–11a.m.,PatientandFamilyCenter,1stfloor,byPublixPharmacy

QI GONG 813-745-6052

Hope Lodge- EveryTue.-3-4p.m.,1stfloor

I Visit MOFFIT.org/calendar for More Upcoming Events!

DECEMBERThur. Dec . 1 – AYA Holiday Party, joinother18-39yearoldswithcancerandcelebratetheseason,FlyBarandRestaurant,RooftopTerrace,1202N.FranklinSt.,Tampa,RSVPAYA@Moffitt.orgor813-745-4736

Thur., Dec. 8, 15 and 22 –Coffee Connection,9:30–11:30a.m.,MCC,Owl’sDenMeetingRoom,1stfloor,(aroundthecornerfromBloodDraw)

Sat., Dec. 10– Families First Annual Holiday Gathering, afestiveeventforparentswithcancerandtheiryoungchildren(18yearsandunder),registrationisrequired,813-745-1811

Wed., Dec. 14 -Tools To Quit, freequitsmokingclassandfreenicotinepatches,2–4p.m.,MCC,Owl’sDenMeetingRoom,1stfloor,813-745-8811orTobaccoTreatment@Moffitt.org

JANUARYTue., Jan. 10 - Look Good Feel Better®, learnbeautytechniquestomanageappearance-relatedsideeffectsoftreatment,10a.m.–12p.m.,MCC,Owl’sDenMeetingRoom,1stfloor,(aroundthecornerfromBloodDraw),RSVP1-800-227-2345

Wed., Jan. 11 - Tools To Quit, freequitsmokingclassandfreenicotinepatches,2–4p.m.,MCC,Owl’sDenMeetingRoom,1stfloor,813-745-8811orTobaccoTreatment@Moffitt.org

Thur., Jan. 12, 19 and 26 –Coffee Connection,9:30–11:30a.m.,MCC,Owl’sDenMeetingRoom,1stfloor,(aroundthecornerfromBloodDraw)

ABBREVIATIONSACS-AmericanCancerSociety

AYA -Adolescent&YoungAdultProgram

MCC-MoffittCancerCenter,USFMagnoliaDrive

MKC-McKinleyOutpatientCenter

MRC-MoffittResearchCenter

SRB-VincentA.StabileResearchBuilding

USF -UniversityofSouthFlorida

Attend a

Every 2nd, 3rd, 4th and 5th Thursday of the Month • 9:30 – 11:30 a.m.Moffitt’s Magnolia Campus • 1st Floor, Owl’s Den Meeting Room

Sponsored by the Patient and Family Advisory Program

PARTNERS | FALL 20163

I CO-CHAIR COLUMN Ashley McGee, Co-Chair, Patient and Family Advisory Council

AstherecentlynominatedCo-ChairoftheCouncilandthirdyearserving,mygoalcontinuestoberepresent-ingpatientsandfamiliesthroughmyownexperience,observationanddiscussion.IrecentlyhadtheopportunitytoattendThe7thInternationalConferenceonPatient-andFamily-CenteredCareinNewYorkCityonbehalfoftheCouncilandasaMoffittpatient.Itwasawonderfulopportunitytoseehowotherinstitutesarestartingtoshapetheircarewiththepatientandfamilyattheheartofevery-thing.ItwasanaffirmationofthestrongalliancetheCouncilandMoffittstaffhashadformorethan10years;ourpurposecanbeacceleratedwithpartnership.

Ilookforwardtomanyyearsofworkingtogetherandwarmlywelcomeournewestpatientadvisorswhogenerouslygivetheirtimeandvoicetoourcommunity.IwouldalsoliketoacknowledgetheimmensededicationandpassionouroutgoingCo-Chair,BobWilson,hadforthisinstitute.Ihopetomakehimproud.

Editor’s note:AsAshleyendedchemotherapytreatments,shesetagoaloftakingatriptoMt.Everest.AshleyproudlycheckeditoffherlistinApril2016.

MyjourneytobecomingthenewCo-ChairofthePatientandFamilyAdvisoryCouncilbeganfiveyearsagoattheageof27whenIwalkedthroughthedoorsattheMoffittMagnoliacampusfortreatmentofAcutePromyelocyticLeukemia.Mylifeuntilthatpointwasthatofatypical20-something.ThatworldwastornapartwhenIwasdiagnosedwithanaggressive,buttreatablecancer.OverthenextfewyearsIwentthroughwhatseemedtobeanendlesscycleofappointments,chemotherapy,inpatientandoutpatienttreatments.

Duringaparticularlypainfulanddiscouragingperiod,mymotherandIstumbleduponThursdaycoffeehoursintheOwl’sDenontheMoffittMagnoliacampus(seeadvertisementforCoffeeConnectiononpage2).Imettwopeervisitorswhosatandlistenedtome.Wesharedafewlaughsandtearsoverthecourseofanhour.WhenIcametofindouttheywerecurrentpatientsandworkingprofessionalswhoweretakingtimetogivebackinthiswayIthought,“That’sgoingtobemewhenIgetthroughthis!”

WhenIwaswellenoughtoresumeworkpart-time,Ibeganvolunteeringasapeervisitorjustasthosetwowhogavemehopeduringmyoutpatienttreatmenthaddone.Thisopenedopportunitiesformetolistenandspeakwithmypeersgoingthroughsimilarexperiences,bepartofthevoiceforadolescentsandyoungadultswithcancer,providefeedbackonmarketingmaterialspermyworkingback-groundandeventuallyserveonthePatientandFamilyAdvisoryCouncil(theCouncil).

Ashley McGee with her husband at Mt. Everest base camp.

4PARTNERS | FALL 2016

I PATIENT AND FAMILY SUPPORT GROUPSThefollowingsupportgroupsareofferedatMoffittCancerCenter.

Tolearnmoreaboutanyofthesupportgroupsoffered,includingtimesandlocations,pleasecalltheSocialWorkOfficeat813-745-8407.

CANCER SUPPORT GROUPSupportgroupforpatientswithanycancerdiagnosis.MeetseveryTuesday,1-2p.m.,Magnolia campus,5thfloorloungeofthehospital.UseelevatorC.

FAMILY AND FRIENDS SUPPORT GROUPSupportgroupforfamilymembers,friendsandcaregiversofcancerpatients.MeetseveryTuesday,1–2p.m.,Magnolia campus,5thfloorofthehospital,room5140A.UseelevatorC.

BREAST CANCER SUPPORT GROUPSupportgroupforpatientswithbreastcancermeetsweeklyforsixweeksessionsthroughouttheyearattheMcKinley campus.Pleasecall813-745-8407formoreinformation.

METASTATIC BREAST CANCER SUPPORT GROUPSupportgroupforpatientswithStage4metastaticbreastcancer.MeetsweeklyforsixweeksessionsthroughouttheyearattheMcKinley campus.Pleasecall813-745-8407formoreinformation.

OSTOMY SUPPORT GROUPAllostomates(withcolostomy,ileostomy,orurostomy),familyandfriendsarewelcome.Every2ndWednesdayofthemonth2–3:30p.m.,Magnolia campus,5thfloorloungeofthehospital.UseelevatorC.

YOUNG ADULTS WITH CANCERMEET UP FOR PATIENTS: Joinothers(ages20-39)dealingwithcanceratthemonthly“Meet-Up.”2nd Wednesday of every month, 1 p.m. MoffittCancerCenter,Magnolia campus,4thfloorAYAlounge.UseelevatorC.

CONNECT UP FOR CAREGIVERS, FAMILY AND FRIENDS:2nd Wednesday of every month, 1 p.m.MoffittCancerCenter,Magnolia campus,5thfloordayroom,useelevatorC.

COPING WITH LUNG CANCERConnectwithotherlungcancerpatientsfromthecomfortofyourhome.Simplycall-intoparticipate.EveryWednesdaybetweenJan.11andFeb.15,2–3p.m.PleasecallHollyWilson,LCSWat813-745-3124orBrianaJoyce,LCSWat813-745-6558forinformation.

JOIN MOFFITT LEADERS TO IMPROVE THE PATIENT EXPERIENCE

The Patient and Family Advisory Program always invites new members.

Learn more about being a Patient and Family Advisor: Email Kim.Buettner@Moffitt.org or call 813-745-1390.

PARTNERS | FALL 20165

Forthepast20years,Moffitt’sMolePatrol®hasbeenalongsideFlorida’sfamousattractionslikebeaches,baseballstadiumsandBlueAngels.TheMolePatrol®isamobileskincancerscreeningprogrammadeupofateamofphysicians,physicianassistantsandnursepractitionersspecializingindermatologyand/orskincancer,aswellasregisterednursesandsupportstaff.Ifsuspiciousmolesorlesionsaredetected,patientsreceivefollow-uprecommendationsthattheycantaketotheirprimarycarephysicians,participatingaffiliateinstitutionsorMoffittCancerCenter.

TheMolePatrol®helditsfirstofficialeventatPier60onClearwaterBeachin1996andconductedannualscreeningeventsinthelate90’s.However,in2001theMolePatrolacquireda40-footscreeningbus,allowingtheteamtotravelthroughoutthestateandincreasethenumberofscreenings.TodaytheMolePatrol®currentlyconducts15-18freescreeningeventsayearandeventraveledtoPuertoRico.

TheMolePatrol®screenedJeffPearsonataRaysspringtraininggamein2012.Hehadafreckleonhisbackthathadchangedshape,butwasnotraisedanddidnotchangecolor.TheMolePatrol®physicianadvisedPearsontoseeadermatologistimmediately.Abiopsydeterminedthatthefrecklewasmelanoma,thedeadliestformofskincancer.Pearsonhaditremovedandsinceitwasintheearlystage,hedidnotrequirefurthertreatment.

Today,Pearsonisverycognizantofsunexposure.HeenjoyshikingintheFloridasun,buthewearsahatandsunscreen,whichhere-appliesconsistently.PearsonalsogetshisskincheckedonceayearandvolunteersatMoffitt’sSpringSwingsafetyeventsbysharinghisstoryandencouragingotherstogetchecked.

Since1996,theMolePatrol®hasscreenedmorethan15,000peopleandthousands,likePearson,requiredfurtherevaluationbyadermatologist.

Skincanceristhemostcommonformofcancer,withnearly5.5millionAmericansbeingdiagnosedeachyear.Melanomaisthemostdeadlyanddangerousform,butifdiagnosedearlyenough,aswithPearson’scase,theprognosisisusuallyexcellent.Themostcommonwarningsignsofmelanomaareanewspotontheskinoraspotthatischanginginsize,shape,orcolor.

I SPOTLIGHT ON…

Moffitt’s Mole Patrol Celebrates 20th Anniversary

Vernon Sondak, M.D. performing a free skin screening for Moffitt’s Mole Patrol ® at Pier 60 on Clearwater Beach.

“ Moffitt Cancer Center will continue to support skin cancer screenings and the Mole Parol will carry on despite reccomendations from the US Preventive Services Task Force stating there is not sufficient evidence that skin cancer screenings are beneficial. Moffitt believes strongly in the value of skin cancer screening, as does the American Cancer Society and the American Academy of Dermatology.”

– Vernon Sondak, M.D., Moffitt Cutaneous Clinic

Melanoma Screening: Vitally Important to Help Detect Cancer EarlyThe first step of melanoma screening is to perform thorough monthly self-examinations. After a bath or a shower, use a full-length mirror and a hand-held mirror to look over your entire body from head to toe, including less obvious areas, like your scalp, fingernails, genitals and the spaces in between your toes. Get familiar with your body, noticing birthmarks, moles, blemishes and other marks, and how they usually appear and feel. Each month during your self-screening, look for anything new, such as:

� A new mole that doesn’t look like your other moles

� A new skin-colored bump that’s firm to the touch

� A new flaky patch of skin that’s red or darker in color (the skin patch may be slightly raised)

� A sore that isn’t healing

� A change in the color, size, shape or texture of a mole

The second part of melanoma screening is a yearly professional examination by a dermatologist or skin cancer expert.

6PARTNERS | FALL 2016

WhenIfirstlearnedofmycancerdiagnosis,mythoughtswerefocusedongettingwell.Concernsregardingmyappearancewerejustnotonmyradar.Iwastoobusynavigatingthroughthenewworldoftests,scans,appointmentsandacronyms.Certainly,Iwasawaremytypeoftreatmentwouldcausehairloss,butmyhairwasanafterthought.

OnceIbegantreatment,andIbegantofeellikeacancerpatient,IdiscoveredthatIreallydidnotlikelookinglikeacancerpatient.WhenIlookedinthemirror,Isawareflectionthatresembledanalienexcept,Iwasn’tgreen.Myskinhadmoreofagrayhue.Ididnotwantthisillnesstobesoevident;Ididnotwantittoidentifyme.Butthemirrordidnotlie.Ilookedsick.Iwassick.Ofcourse,thereisnoshameisbeingsickorlookingsick.Itisjustthatforme,lookingsickmademefeelworse.

Themostobviousaspectofmycancerpatientappearancewasmyhair,orlackofit.MychildrenexpressedthedesiretohaveamomwithhairsoIworeawigmostofthetimeduringtreatment.Mydryanddiscoloredskinwasbathedinlotionsandadornedwithpowder.Ienlistedamakeupexperttoteachmehowtoapplyeyebrows.Ibecameskilledwithmyspecialeyebrowpencil.Initially,myweightplum-metedandmyclothingbecamebaggy.Thescalewasnotmyfriend.AnewmedicationregimencausedmyweightlosstoreverseandIgainedallmylostweightandthensome.Ineededstretchypantsandstillhatedmyscale.

Naturally,myfamilydidnotcarewhatIlookedlike;theyjustwantedmetomanagethesideeffects,feelbetterandmostofall,getwell.

I PATIENT’S PERSPECTIVE

Body Image, a Woman’s Perspective Jane Garland, Peer Visitor, Patient and Family Advisory Program

Mymantrathroughoutmyninemonthsoftreatmentwas,“Thisistemporary.”TherewasatimewhenIwasnotcertainIwouldlookandfeellikemyselfagain,butgratefully,Iwaswrong.Ittooksometime,butmyhairgrewback,myskinnormalizedandmypre-treatmentweightreturned.

AttheconclusionofmytreatmentIreceivedthegreatestcompliment.ItcamefromavolunteerwhowouldgreetmeeverytimeIarrivedforanappointment.Thisgentle-mansawmeatthestartofmyjourney,atmyworstandattheconclusion.Atmyfinalposttreatmentappointment,Icametothehospitalwithoutmywig;Iwassportingaboutaquarterinchoffuzz.Ittookamomentforthevolunteertorecognizemebutwhenhedid,hesimplysaid,"Youhaveanauraofhealthaboutyou."

Thisamazingcomplimentmademerealizethecommonmeasuresforbeauty,suchashairandweightaretrulynottheimportantaspectsofappearance.“Theauraofhealth”trumpsall.

PARTNERS | FALL 20167

Somepatientssaytheywon’tevenlookattheirbodiesandstrugglewithcommunicatingtheirfeelingstotheirspouseorpartner.Thisisanunderstandableresponse,butmaybecomeanobstacletoyourhealing.

Thiscanbeatimeofreconnectiontoyourbodyifyouallowit.Acceptancemayseempremature,butacknowl-edgingandhonoringthechangesinyourbodycanopenthatdoor.

Self-acceptanceisaprocessinvolvingpatience,kindnessandevenasenseofhumor.Clinicianledsupportgroups,peer-to-peerconnectionsandone-to-onecounselingarealsoavailabletoassistyou.Ifyou’dliketotalkmoreaboutthisissue,pleasecontactthesocialworkdepart-mentat813-745-8407formoreinformation.

I COPING WITH CANCER

Coping with Body/Image ChangesChristine Healy, LCSW, Oncology Social Worker

Atreatmentplanisoftenthefirstpriorityfollowingacancerdiagnosis.Patientsareofteninshockanddisbeliefandwanttomoveasquicklyaspossibletoremovethecancerfromtheirbodies.Lateronwhentheinitialcrisisisover,patientshavesaid,“Idon’trecognizemyselfwhenIlookinthemirror,”or“Iwon’tallowmyselftolookatthescars.”

Surgery,radiationandchemotherapyoftencausephysicalchangestothebody.Theemotionalscarscanbedeepandtroublingaswell,mirroringthefeelingsoftheuncertaintyofthefuture.

Beforecancer,yourbodywasyourbody.Familiarandloyalevenwithitsimperfections.Aftertreatmentitmayseemforeignanddeeplywounded.Thisbodythatyouoncetrustedmayhaveletyoudownwithadiagnosisofcancerandnowevenlooksunfamiliar.Ittakestimetoregainyourconnectiontoyourbody,letaloneacceptit.Visuallyyoumayhavechangedandnoticedadifferenceinyourphysicalsensationsandresponses.Thisiscompletelynormal.

Thesideeffectsofcancertreatmentsuchaschangesinskintoneandtexture,hairlossorweightgainorlosscanbedevastatingtoawoman’sself-esteem.Sheoftenseessomeoneinthemirrorthatshedoesnotrecognizeormaylooktiredormayhavelostherhair,butpatientswhohaveparticipatedinLookGoodFeelBetter®calltheprogramanemotionallifesaverbecauseithelpsthemregainasenseofnormalcy.

OfferedthroughanationalcollaborationofthePersonalCareProductsCouncilFoundation,theAmericanCancerSociety,andtheProfessionalBeautyAssociation,LookGoodFeelBetter®isdedicatedtohelpingwomenwithcancercopewiththeappearancesideeffectsoftheirtreatment.Thetwo-hourgroupworkshopisledbyvolunteerbeautyexpertswhoteachmakeupapplicationtechniquesandofferskinandnailcareguidance.Theyalsodemonstratehowtomanagehairlossusingwigs,

Look Good Feel Better®: A Program for WomenKyle Mobley, American Cancer Society, Senior Manager, Hospital Systems

turbans,scarvesandaccessoriesandshowavideofeaturingexpertadvicefromcelebritystylistStacyLondononstylingduringandaftercancertreatment.Eachpatientparticipatinginagroupworkshopreceivesafreekitofcosmetics,donatedbythecosmeticindustry,touseastoolstolearntechniquesduringtheprogramandtakehome.

LookGoodFeelBetter®isofferedtofemalecancerpatientsatMoffittCancerCenterthesecondTuesday,everyothermonthfrom10a.m.–noon.Toregistercall800-395-LOOK[5665].Formoreinformationandonlineresources,gotowww.lookgoodfeelbetter.org.

Formalepatients,apracticalguideisavailableonlineatwww.lookgoodfeelbetterformen.orgtohelpmenwithsomeofthesideeffectsofcancertreatment,includingskinchanges,hairlossandmore.

8PARTNERS | FALL 2016

I YOUNG ADULTS LIVING WITH CANCER

Fertility Preservation Option: Sperm BankingGwendolyn Quinn, Ph.D., Senior Member, Moffitt Cancer Center and Janella Hudson, Ph.D., post-doctoral fellow

Cancertreatmentislife-saving,butcansometimescauseadditionalproblemssuchassterilityorinfer-tilityinmales.Sterilitymeansnospermproduction.Infertilitymeansaproblemwiththespermsuchasalowcountorslowmovement.Manyyoungmenfacedwithsuchatimesensitivedecisionaboutwantingchildreninthefuturemayfeeldistressanddespair.

Thereareoptionstopreservefertilityformenundergoingtreatmentwhichmayimpairfertility.Theprimaryoptionisspermbanking.Spermbanking,orfreezingsemen(cryopreservation)isusuallydonepriortotreatment.Insomecasesitcanbedoneduringtreatment.Thetypicalprocessforspermbankingisforamalewhohasreachedpubertytovisitareproductivehealthclinicand

ejaculateintoaspecimencup.Thiscanalsobedoneathomeorinthehospital,butthespermmustbekeptwarmanddeliveredtotheclinicforstoragewithinafewhours.Someclinicsprovidekitstouseathome,andapreservingchemicalisincludedwithinthespecimencupandthekitismailedtotheclinic/lab.

Oncethespecimenisdeliveredtothelab,asemenanalysisisdone.Ifthesamplecontainsanylivespermcells,itcanbefrozenandstoredforfutureuse.Frozenspermcanbekeptforatleast30yearswithoutdamage.Formenwhoaretooillorunabletoejaculatethereareothertechniquesusedtoobtainsperm.Formaleswhohavenotyetachievedpubertythereareexperimentaloptionssuchastesticulartissuecryopreservation.

WhenamanisreadytousehisspermtheyarethawedandcanbeusedwithavarietyofInVitroFertilization(IVF)treatments.Thesuccessrateforpregnancywithpreviouslyfrozenspermvariesgreatlydependingonanumberoffactorsbutingeneralisaround75%.

Spermcryopreservationandtheyearlystoragefeesmaynotbecoveredbyinsurance.Thesefeesrangefrom$300to$700fortheinitialtestingandfreezingandabout$300ayearforstorage.Therearelocalandnationalprogramstoassistmalecancerpatientswithcosts.Feelfreetotalkwithamemberofyourhealthcareteamaswell.

For more information or to schedule an appointment with the USF Center for Fertility Preservation please call 813-974-1192. To learn more, visit the following websites:

American Society of Clinical Oncology www.university.asco.org/focus-under-forty

American Society of Reproductive Medicine www.asrm.org

Oncofertility Consortium www.oncofertility.northwestern.edu/

Livestrong www.livestrong.org/we-can-help/just-diagnosed/ male-fertility-preservation

PARTNERS | FALL 20169

I HEALTH & WELL-BEING

Moffitt International Plaza Flu ClinicMark Honor, Physician Assistant-Certified

TheFluClinicatMoffittCancerCenteratInternationalPlaza(MIP)wascreatedin2015toserveallMoffittpatientswithnewflu-likesymptoms(cough,runnynose,bodyaches,wheezing,lowgradetemperature)and/oranewrespiratoryillness.PatientswithflusymptomscanbeseenbyaMoffittprovideratMIPandavoidvisitingawalkinclinicoremergencyroom.Byofferingthistypeofcare,weareabletomanageillnessesthatmayaffectyourplannedtherapyorcurrentprogress.IfyouhaveflusymptomspleasecontactyourprimaryteamandaskthemtoscheduleanappointmentattheFluClinicatMIPforthesamedayornextdaytobeevaluated.

What to Expect as a MIP Flu Clinic Patient�Atcheckin,pleaseletthemknowyou

haveafluclinicappointment.

�Tolessenthechanceofspreadingthevirustootherpatients,you’llbeaskedtowearasmallmask.

�You’llalsobetakenrighttoanexamroomtoavoidthegeneralwaitingareas.

�TheresultsoftheappointmentwillbecommunicatedtoyourprimarycareteamatMoffitt.

�Yourprimarycareteamwillfollowupwithyouasneeded.

10PARTNERS | FALL 2016

MoffittMcKinleyOutpatientCenterisMoffittCancerCenter’snewestsatellitelocation.The207,000squarefoot,state-of-the-artfacilityislocatedlessthanamilefromMoffitt’sMagnoliacampus.Soonwewillbecelebratingourfirstyearofprovidingservices.Todate,wehaveprovidedcaretomorethan20,000patients.PatientandstaffsatisfactionsurveyscoresarehighandreflectiveofthecommitmentfromtheMcKinleyteamstocollectivelyprovidethehighestlevelsofserviceandcompassionatepatientandfamilycenteredcarebyputtingthepatientfirst.

Planningiscurrentlyunderwaytoexpandclinicalservicesforpatientsonthe6thflooroftheMcKinleycampus.ThisexpansionallowstheMagnoliacampustoexpandandgrowaswell.Aswecontinuetogrowandexpand,includingthepatientvoicewillbekeyinmaintainingourcurrentlevelofserviceandsatisfaction.ThePatientandFamilyAdvisoryCouncilhelditsJulymeetingattheMcKinleyOutpatientCenterwherepatientsandfamilieswereofferedatour.WealsoofferPatientandFamilyOrientationfortheMcKinleycampusincludinganoptionaltour.ThesesessionsareheldinthePatientandFamilyCenter,pleasecall813-745-2963formoreinformation.WeinviteallofourpatientstoviewourwayfindingvideosavailableonMoffitt.orgundertheLocations&DirectionstaborcomeseeMoffitt’sbeautifulnewcampusandvisitinperson.

MoffittMcKinleyOutpatientCenter10920N.McKinleyDrive,TampaFL336121-888-MOFFITT

“ I thought I would miss the Magnolia campus. But I realized it’s the people and not the building that create Moffitt for me. And all the Moffitt people that were in my world in the beginning, and still remain in my current world, moved to McKinley.

The McKinley campus offers so many enhanced features. The separate location for patients exiting the outpatient area and a central sign in location are great! The waiting room in the breast clinic is open, bright and yet private. Also, I love the cafe. When I sit in the cafe, I feel as if I’m sitting in a coffee house in an open shopping mall or in a down town location. It is warm and inviting. I can easily get lost in time; lingering over coffee and chatting with a friend. It provides an ordinary place of refuge and respite in an unordinary world.”

– Stephanie Hulbert, Peer Visitor, Patient and Family Advisory Program

I MCKINLEY OUTPATIENT CENTER HAPPENINGS

Moffitt McKinley Outpatient Center Celebrates Its First Year by Putting Patients First Vicki Caraway, Senior Director Ambulatory Nursing and Satellite Operations

PARTNERS | FALL 201611

ABCs of Home HealthBy Robin Leigh, LCSW, Oncology Social Worker

Patientsandtheirfamiliesoftenhavequestionsabouthowtoobtainnursinghelpathomewhenthepatientdoesnotqualifyforordeclinesanursinghomeplacement.Homehealthnursingcareispaidforbyinsuranceandmustbeorderedbytheoncologistorattendingphysiciantoaddressanidentifiedmedicalneed,suchaswoundcare.Thisiscalleda“skilled”need,meaningthemedicalneedrequiresvisitsfromaprofessionalnurse.Themedicalnecessityforhomehealthnursingcareisdeterminedpriortodischargefromthehospitalorclinic.Forhome-boundpatientswhoareafallriskorwhoareunabletoperformbasicpersonalgrooming,homehealthnursingaidevisitsmightbeorderedalongwithhomephysicaltherapyevaluationandtreatment.

Sometimespatientshaveanexpectationthattheywillreceivehomehealthfollowingahospitalstayandeithertheydon’tmeetmedicalcriteriaattimeofdischargeortheirinsurancedoesn’tcoverhomehealth.Anoncologysocialworkercanhelpyouexploreyourcareandfundingoptions.

Inmyroleasasocialworker,IoftenmeetpatientswholivealoneorItalkwithout-of-statefamily

memberswhowantassurancethattheirlovedonewillhavesomeoneinthehomefollowingahospitalstayorprocedure.Thisiscalledcustodialorcompanioncare.Companioncarecanmeetavarietyofnon-medicalneedsincludingpersonalsafetyandlightmealpreparation.Companioncareispaidforbypatientorfamily.Askyoursocialworkerforareferrallist.To speak with your social worker, please call 813-745-8407.

Check out our new blog featuring cancer-related information, health tips, patient stories and more.

Visit Moffitt.org/takecharge

EDITORIAL BOARD CO-CHAIRS, PATIENT & FAMILY ADVISORY COUNCIL: Ashley McGee, Debbie Phillips,

MANAGING EDITOR: Anne Bidelman

GRAPHIC DESIGN: Moffitt Strategic Marketing

EDITORIAL BOARD MEMBERS: Kim Buettner, Pam Duncan, Jane Garland (Patient Advisor), Nancy Gay, Christine Healy, Sean Powell, Helene Silverman (Patient Advisor), Christine Sobel, Ivette Virelles, Regina White

MOFFITT CANCER CENTER, TAMPA, FL | 1-888-MOFFITT | MOFFITT.org 11/2016

PATIENT AND FAMILY ORIENTATION

Connect with programs and services

Partner with your care team

Find your way around Moffitt

LEARN HOW TO:

• 30 minute orientation• Presented in English and Spanish• Scheduled Monday – Friday,

Call us! We'll find a time that works for you.

813-745-2963 | Orientation@Moffitt.org

• Walking tours on select days• View online at MOFFITT.org/Orientation• Receive a free messenger bag with

Moffitt resources and organizational tools.

PATIENT & FAMILY ADVISORY COUNCIL Joyce Austin, Jackie Beaushaw, Polly Ellinor, Ron Giovannelli, Patti Halula, John Harrell, Bruce Mackey, Ashley McGee (Co-chair), Barney Morris, Shani Parkin, Debbie Phillips (Co-chair), Mark Pizzo

Contact the Patient & Family Advisory Program at Kim.Buettner@Moffitt.org or 813-745-1390.