Memory Day Missouri State Capitol. 2 Facts to Know National 5+ million Americans are living with Alzheimer’s Every 67 seconds, another person is added

Memory Day

Missouri State Capitol

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Facts to Know

National•5+ million Americans are living with Alzheimer’s •Every 67 seconds, another person is added •6th leading cause of death

Missouri•110,000 people have Alzheimer’s •130,000 by 2025•$4 billion, the value of unpaid care by family caregivers

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Memory Day Agenda

11:00 Buses arrive at the Capitol

11:00-2:00 Group visits to legislators

12:00-1:30 Box lunches, 3rd floor rotunda

2:00 – 2:20 Memory Day Ceremony, 1st floor rotunda

2:20 Group photo on south Capitol steps

2:30-2:45 Departure

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2:15 Photo Session South Capitol Steps

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Missouri Legislature

Republicans have a “super majority” in the Senate and the House

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Group Visits

Groups are organized by Senate district • Everyone will be assigned to a group with a group

coordinator • Entire group makes the Senate visit• Small groups may make visits to Representatives,

depending on the size of your group

For each visit, there should be a designated spokesperson(s) • Constituent• Individual with a compelling personal story

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Visiting With Your Legislator• State your name, where you are from, and that you are a

constituent• You are speaking today on behalf of the

• Missouri Coalition of Alzheimer’s Association Chapters

• 110,000 individuals in Missouri with Alzheimer’s and their families

• Share your personal story • Make the pitch

• 3 minutes

• 3 points

• 1 page summary

• Close by asking for support • Follow up with a thank you

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1st Public Policy Priority

Fully fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families

$450,000 in the budget for the Department of Health and Senior Services (HB10)

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$450,000 for Alzheimer’s grants that provide respite care assistance

What:•Alzheimer’s grants provide critical respite care assistance to help families care for a loved one at home•70% of people with Alzheimer’s are living at home because of the support families provide•The value of unpaid support provided by these Missouri families is more than $4 billion •Families cannot do it alone

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Respite offers choice and flexibility to Missouri families caring for a loved one at home

Who: •Families receive up to $500 annually •Person with dementia must live with the caregiver seeking respite assistance •Families select the care that best meets their needs

• Respite: Home care, adult day services, short-term respite at a residential care facility

• Supplies: Incontinence, nutritional, medical equipment•Available across the state•Priority to those in greatest need

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Alzheimer’s is a long and costly disease and caregivers need support

Why: •110,000 people in Missouri have Alzheimer’s •6th leading cause of death and has no cure•Disease trajectory is lengthy, spanning 8 to 20 years. Individuals will require steadily increasing assistance•Caregiving is stressful – physically, mentally, and financially

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Respite assistance could save the state millions

Why:

•Missouri spends more than $158 million* annually to care for people with Alzheimer’s in nursing homes •99% of families surveyed stated that respite assistance helped them keep their loved one at home, delaying the move to a nursing home •Delaying nursing home placement for just one month for 800 respite families could save the state more than $2 million in Medicaid nursing home costs

*SFY 2011, Missouri Alzheimer’s State Plan Task Force, Interim Report

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How this works

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Memory Day Ask

Three committees must approve this funding:

• House Appropriations Committee for Health, Mental Health and Social Services

• House Budget Committee

• Senate Appropriations

Fully fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families

$450,000 in the budget for the Department of Health and Senior Services (HB10)

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House Appropriations-Health, Mental Health, and Social Services

Representative Party District

Marsha Haefner (Chair) Rep. 095: STL

David Wood (Vice Chair) Rep. 058: Morgan, Moniteau, Miller

Michael Butler Dem. 079: STL

Courtney Allen Curtis Dem. 073: STL

Keith Frederick Rep. 121: Phelps, Pulaski

Jeanne Kirkton Dem. 091: STL

Bonnaye Mims Dem. 027: Kansas City, Jackson

Jim Neely Rep. 008: Caldwell, Ray, Clay, Clinton

Holly Rehder Rep. 148: Scott, Mississippi

Becky Ruth Rep. 114: Jefferson

John Wiemann Rep. 103: St. Charles

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House Budget Committee


Tom Flanigan (Chair) Rep. 163: Jasper

Scott Fitzpatrick (Vice Chair) Rep. 158:Lawrence, Stone, Barry

Sue Allen Rep. 100: STL

Justin Alferman Rep. 061: Osage, Franklin, Gasconade

Marsha Haefner Rep. 095: STL

Kurt Bahr Rep. 102: St. Charles

Cloria Brown Rep. 094: STL

Eric Burlison Rep. 133: Greene

Kathie Conway Rep. 104: St. Charles

Lincoln Hough Rep. 135: Greene

Caleb Jones Rep. 050: Cole, Cooper, Moniteau, Boone

Nick King Rep. 017: Clay

Shelley Keeney Rep. 145: Perry, Madison, Bollinger

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Jeanne Kirkton Dem. 091: STL

Jeremy LaFaver Dem. 025: Kansas City

Donna Lichtenegger Rep. 146: Cape Girardeau

Kirk Mathews Rep. 110: STL, Franklin

Gail McCann Beatty Dem. 026: Kansas City

Kevin McManus Dem. 036: Kansas City

Jeffrey Messenger Rep. 130: Greene

Craig Redmon Rep. 004: Knox, Adair, Schuyler, Scotland, Clark

Karla May Dem 084: STL City

Genise Montecillo Dem. 092: STL

Caleb Rowden Rep. 044: Randolph, Boone

Robert Ross Rep. 142: Texas, Howell, Phelps, Pulaski

Kathryn Swan Rep. 147: Cape Girardeau

Stephen Webber Dem. 046: Boone

John Rizzo Dem. 019: Kansas City, Jackson

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Senate Appropriations

Senator Party District

Kurt Schafer (Chair) Rep. 019: Boone, Randolph

Ryan Silvey (Vice-Chair) Rep. 017: Clay County

Dan Brown Rep. 016: Phelps, Pulaski

Mike Kehoe Rep. 006: Cole, Gasconade, Maries, Miller, Moniteau, Morgan and Osage

Mike Parson Rep. 028: Benton Cedar, Dallas, Hickory, Laclede, Pettis, Polk and St. Clair

David Pearce Rep. 021: Caldwell, Carroll, Howard, Johnson, Lafayette, Livingston, Ray and Saline

David Sater Rep. 029: Barry, Lawrence, McDonald, Stone and Taney

Rob Schaaf Rep. 034: Buchanan, Platte

S. Kiki Curls Dem. 009: Jackson

Jamilah Nasheed Dem. 005: St. Louis City

Gina Walsh Dem. 013: St. Louis County

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2nd Public Policy Priority

Protect seniors against financial exploitation

Senior Savings Protection Act

SB244 and HB636

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What: •Provides financial industry professionals with a path to voluntarily reach out to state agencies and family members when they suspect their senior clients are being exploited•Allows them to refuse disbursements for up to 10 days so the state may review the situation•Protects the growing senior population to ensure more are able to fully utilize savings they have built throughout a lifetime

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Missouri’s senior population is rapidly growing

Who: •Including the growing number of people with Alzheimer’s who may be vulnerable to financial exploitation•110,000 people in Missouri have Alzheimer’s. That number will grow to 130,000 by 2025 •Nationally, it is estimated that seniors loss $2.6 billion annually because of financial exploitation

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SB244 and HB636 give professionals the tools they need to help protect senior investors

Why:•Financial professionals are often the first to identify suspected financial exploitation •Currently, they can not risk potential liability for holding suspect disbursements or breaching industry privacy obligations by reaching out to family members or the state. This bill addresses these concerns•Bill supporters include leaders in the financial industry and other senior advocacy groups•If passed, it will make Missouri a national leader in senior investor protection laws

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Memory Day Ask

HB636 sponsored by Representative Barnes (Jefferson City)

• House Banking Committee

SB244 sponsored by Senator Schmitt (Kirkwood)

• This bill has not been assigned to a committee



HB636 and SB244

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House Banking CommitteeRepresentative Party District

Sandy Crawford, Chair Rep. 129 Laclede, Dallas

Jeff Pogue, Vice Chair Rep. 143: Oregon, Shannon, Reynolds, Dent

Jack Bondon Rep. 56: KC, Cass, Bates

Wanda Brown Dem. 57: Cass, Benton, Bates, Henry

Don Gosen Rep. 101:STL

Alan Green Dem. 067: STL

Dave Hinson Rep. 119: Franklin, Washington

Bill Kidd Rep. 020: Jackson

Mary Nichols Dem. 072: STL

Bill Otto Dem. 070: STL

Craig Redmon Rep. 004: Knox, Adair, Schuyler, Scotland, Clark, Lewis

Noel Shull Rep. 016: KC

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Questions

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Alzheimer’s Service Grants

R: I serve on the Budget Committee. Remind me, what is the appropriations request and what is it used for?

AA: We are asking for $450,000 for Alzheimer’s grants that provide respite care assistance.

These critically important funds support Missouri families caring for a loved one at home that has Alzheimer’s or a related dementia.

The request is in the budget for Health and Senior Services (HB10).

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R: You mentioned that this respite program can save the state money. Please explain that to me.

AA: Missouri spends more than $150 million annually to care for people with Alzheimer’s in nursing homes. 99% of the families in this program stated in a recent survey that respite assistance helped delay nursing home placement.

If nursing placement was delayed by just one month for the people in the respite program, the state could save more than $2 million in Medicaid nursing home costs.

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R: Do you have suggests about where the state can get this money?

AA: Representative, as a volunteer with the Alzheimer’s Association I do not know the answer. I do know about the heroic sacrifices families make caring for their loved ones at home and the $4 billion value of that uncompensated care.

Additionally, when respite helps families keep their loved ones at home for a longer period of time, the state saves dollars paying for Medicaid nursing home care.

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R: I don’t serve on the budget committee so I can’t help you with this request.

AA: Representative, we ask that you talk with your colleagues that serve on the appropriations and budget committees. Let them know how important this program is to the families in your district.

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R: I know the Governor withheld respite funding for this year. What is the status of that funding?

AA: We are extremely pleased that the funding has been released and will provide respite assistance to the more than 350 families currently on the waiting list.

I’d like to talk about funding for next year. Can we count on your support to ensure funding is in the budget for this critically important program?

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R: I am not familiar with the Senior Savings Protection Act. What specifically does the legislation do?

AA: When a financial industry professional suspects that their senior client is being exploited, this legislation gives them the tools to slow down the process and investigate.

It allows them to refuse disbursements for up to 10 days so the state may review the situation.

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R: So why is the Alzheimer’s Association supporting this?

AA: 110,000 people in Missouri have Alzheimer’s. That number will grow to 130,000 by 2025. We want to ensure that protections are in place for individuals that may be vulnerable to financial exploitation including those with Alzheimer’s and related dementias.

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R: What other groups are supporting this legislation?

AA: Leaders in the financial industry including Wells Fargo, Edward Jones, and SIFMA, the national trade association. Additionally, the Area Agencies on Aging and Silver Hair Legislature have made this a priority.

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Chapter Services

R: At times, I get calls from constituents who are struggling with the care of a family member with dementia. What support services are available?

AA: The Alzheimer’s Association offers a comprehensive array of services including our Helpline that provides support to families 24/7/365.

If you have a constituent in need, know that we are always available to offer support.

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What we are asking for:

Support Senior Savings Protection Act

SB244 (Schmitt) and HB636 (Barnes)

Fully Fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families

$450,000 in the Budget for Department of Health and Senior Services (HB10)



HB636 and SB244

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Together, we are making a difference!

Thank you!

Documents

Memory Day Missouri State Capitol. 2 Facts to Know National 5+ million Americans are living with Alzheimer’s Every 67 seconds, another person is added