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PREPARE MINNESOTA FOR ALZHEIMER’S 2020
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
WE HAVE COME TOGETHER
• Everyone can
prepare
Minnesota for
Alzheimer’s
• Alzheimer’s
impacts everyone
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
TO PREPARE MINNESOTA
Prepare Minnesota for Alzheimer’s 2020 is a statewide, voluntary collaboration that includes over 50 organizations and 130 individuals seeking to prepare for the budgetary, social, and personal impacts of Alzheimer’s disease by 2020.
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
FOR THE RISE OF ALZHEIMER’S DISEASE AND OTHER DEMENTIAS
The rise of Alzheimer’s disease and other dementias in Minnesota will bring enormous cost and burden to individuals with the disease, their families, caregivers, employers, communities, and Minnesota.
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
ALZHEIMER’S DISEASE
• Alzheimer’s is one type of dementia
that accounts for up to 70% of all
dementias.
• Alzheimer’s is NOT normal aging; it’s
a progressive, fatal, brain disease.
• There is a new case of Alzheimer’s
disease in the U.S. every 68 seconds.
• Of Americans aged 65 and over, 1 in 8
has Alzheimer’s, and nearly half of
people aged 85 and older have the
disease.
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
ALZHEIMER’S DISEASE
• In 2011, 70% of people with Alzheimer’s
lived at home with help from family
members.
• In Minnesota over 241,000 Minnesotans
were caring for someone with
Alzheimer’s, providing unpaid care
valued at $3.3 billion
• The physical and emotional impact of
caregiving is estimated to result in $148
million for Minnesota caregivers.
• One in seven people who have
Alzheimer’s live alone.
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
ALZHEIMER’S DISEASE
• Without change, the total cost of
care for Americans age 65 and
older with Alzheimer’s disease
will increase five-fold per year.
• In Minnesota alone, these costs
could reach $20 billion, most of
that coming from personal funds
and Medicaid dollars.
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
PREPARING MINNESOTA
Prepare Minnesota for Alzheimer’s seeks to:
1. Increase early identification and improve
ongoing care;
2. Sustain caregivers by offering them
information, resources and support;
3. Equip communities to support their
residents who are touched by the
disease;
4. Identify and invest in promising approaches
that reduce costs and improve care; and
5. Raise awareness, reduce stigma and
engage community.
EQUIPPING COMMUNITIES FOR THE IMPACT
Prepare Minnesota for Alzheimer’s has developed a Community Tool Kit to assist communities in becoming dementia capable so that they can support their residents who are touched by Alzheimer’s Disease.
DEMENTIA CAPABLE COMMUNITY
A dementia capable community is informed, safe and respectful of individuals with dementia and their families, provides supportive options, and fosters quality of life. Specifically, a dementia prepared community:• Ensures access to a variety of high-quality options
that improve mobility, housing, health care, supportive services, financial and legal planning and support, and advance care planning;
• Recruit volunteers and other community resources to respond to the needs; and
• Foster contribution, connection, and meaning for individuals with the disease and their families.
A TOOL KIT FOR DEVELOPING DEMENTIA CAPABLE COMMUNITIES
A tool kit is available and can be used for:• Convening key community leaders and
members to understand Alzheimer’s disease and other dementias.
• Assessing current strengths and gaps in dementia capability.
• Identifying community goals and planning possible ways to respond.
• Acting Together to pursue priority goals to foster community preparedness and dementia capability.
ASSESSMENT
Community
Awareness
Diagnosis, Medical Management and
Care
Information, Education, Planning
Community Supports
Local Government Planning
PMA 2020 is seeking “Action Communities” that will pilot the tool kit. This would entail the following activities :• Convene a community team of citizens to review the
tool kit and provide feedback as it is developed;
• Test the toolkit by assessing community needs and identifying possible goals the community might undertake to prepare for needs related to dementia;
• Take action in a focus area the community team chooses to undertake; and
• Provide feedback and participate in a survey/evaluation of the tool kit.
CALL TO ACTION
PREPARE MINNESOTA FOR ALZHEIMER’S 2020
PREPARE NOW
The rapidly increasing prevalence of
Alzheimer’s in Minnesota is an urgent
call for us to prepare our systems and
communities for the complex needs
related to the disease.
Learn more or participate in Prepare MN
for Alzheimer’s at
http://www.collectiveactionlab.com
Facts about Alzheimer’s disease are from 2011 Alzheimer’s Disease Facts and Figures (www.alz.org)