Meeting the Needs of Aging Persons with Developmental ...elderaffairs.state.fl.us/doea/ARC/05b_Module_2_Aging_and_DD_Systems.pdfMeeting the Needs of Aging Persons with Developmental

Meeting the Needs of Aging Persons with Developmental Disabilities

Cross Network Collaboration for Florida

Aging and Developmental Disabilities Systems

Module 2 Based on ADRC training developed by:Kathleen M. Bishop, Ph.D., and Ron Lucchino, Ph.D.

Purpose of Module 2

Develop an inclusive referral and intake systemyProvide overview of aging and developmental disability networksdevelopmental disability networksIdentify commonalities and differences

ADRC Training 2

Purpose of Module 2

Understand Florida eligibility criteria for developmental disabilities servicespFoster cooperation between networks

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Referral and Intake

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C R f l O tCross Referral Outcomes

Referral provided by developmental disability and aging networksy g gA seamless integrated systemInclusion of all agenciesInclusion of all agenciesExpanded referral network for early crisis interventioncrisis intervention

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Referral Sources – Aging Network

Senior centers/nutrition programsAdult transportation programsp p gHome health agenciesDay care/respite programsDay care/respite programsCompanion agenciesAssisted living facilities/nursing homesAssisted living facilities/nursing homes

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Referral Sources – Developmental Disability Network

Agency for Persons with Disabilities (APD)( )For-profit and not-for-profit private disability service providersdisability service providersCenters for Independent Living N i hb f il f i dNeighbors, family, friends

ADRC Training 7

Referral Sources - CommunityHealth care practitionersHealth care practitionersFuneral homes

l d l f lHospital and long-term care facility discharge planners

d l d l fFirst responders including police, fire department, and ambulancel f hPlaces of worship

Hospice

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Intake - Access Care Options

Determine for caregivers and older adults with developmental disabilities:

Service needs related to aging Service needs related to disabilityPast and current history for services Availability of services

Coordinate to assure no duplication of services

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Meeting the Needs of Aging Persons g g gwith Developmental Disabilities


Aging Network

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St t f th A i N t kStructure of the Aging Network

Administration of Aging (AoA)Older Americans Act (1965)Older Americans Act (1965)

Florida Department of Elder Affairs (DOEA)State Unit on Aging (SUA)State Unit on Aging (SUA)

Area Agencies on Aging (AAA)Community providers of aging services Co u ty p o de s o ag g se ces

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Structure of the Aging Network-Structure of the Aging NetworkDOEA

Serves 624,000+ elders and their families annuallyfamilies annuallyDesignated by AoA as the State Unit on AgingAgingContracts services to Area Agencies on Aging (AAAs) – private, non-profitAging (AAAs) private, non profit organizations

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Structure of the Aging Network -AAA

Coordinate aging services through a network of providerspDesignated by DOEA within a Planning and Service Area (PSA)and Service Area (PSA) Eleven PSAs divided by counties

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DOEA PSA Map

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AAA as ARC/ADRCAAA as ARC/ADRC

Creates linkages between aging and disability communitiesOffers information and assistance on community resourcesProvides access to public and private long-term care servicesStreamlines screening and eligibility determination for public services

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Aging Services

Information and Referral Elder Helpline (800-963-5337)Elder Helpline (800 963 5337)

Case managementIn home supportsIn-home supportsNutrition assistanceCaregiver training and respiteAlzheimer’s disease screening and day

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Alzheimer s disease screening and day care

Eligibility for Aging Services

AgeFrailtyFrailtyResourcesF diFunding

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Contact ADRC (http://www.agingresourcecentersofflorida.org)

ADRC Training 18


Cross Network Collaboration for FloridaCross Network Collaboration for Florida

Developmental Disabilities Network

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Structure of the DevelopmentalStructure of the Developmental Disability Network Federal Administration on Developmental Disabilities (ADD) p ( )mandated servicesFlorida’s Agency for Persons with g yDisabilities (APD) – separated from Dept. of Children and Family Services in 2002004Private providers

ADRC Training 20

Structure of the Developmental Disability Network - APD

Central office in TallahasseeThirteen Area Offices in FloridaThirteen Area Offices in FloridaOne Regional OfficeA d R i l Offi di id d bArea and Regional Offices divided by counties

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Contact APD OfficesContact APD Offices (http://www.apd.myflorida.com/area/)

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History of Florida’sD l t l Di bilit N t kDevelopmental Disability Network

1900 t 1960 D l t f l1900s to 1960s: Development of large institutional care facilities1980 D i tit ti li ti1980s: De-institutionalization

Inclusion in families and communitiesF d iFocus on supports and services

1990s: Expansion of Medicaid waiver d f il tand family supports

2000s: Focus on person-centered h

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approachSelf-directed services

Functions of APD

Serves Floridians with developmental disabilitiesdisabilities Partners with local communitiesCoordinates with private providers

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Functions of APD

Assists to identify the needs and individual expectations of persons with developmental disabilitiesMaintains a waiting list for services of approximately 20,000Contracts with support coordinators and

h dother community providers

ADRC Training 25

Services of APD

Serves approximately 50,000 Floridians with developmental disabilities and their pfamiliesServices include –Services include

Support coordination for servicesTransportationTransportationSupported living and employmentAd lt da p og ams

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Adult day programs

Developmental Disabilities Resources in Florida

Florida Developmental Disabilities Council (www.fddc.org) – publications:

Planning AheadPeople First Language/Disability Etiquettep g g / y q

Able Trust (www.abletrust.org)Family Care Council (www fccflorida org)Family Care Council (www.fccflorida.org) Family Network on Disabilities ( f dfl )

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(www.fndfl.org)

Developmental Disabilities Resources in Florida

Florida Alliance for Assistive Services and Technology, Inc. (www.faast.org)gy, ( g)FDLRS - Florida Diagnostic & Learning Resources System (http://fdlrs com/)Resources System (http://fdlrs.com/)CARD – Center for Autism and Related Disorders (www centerforautism com)Disorders (www.centerforautism.com)

ADRC Training 28

Meeting the Needs of Aging Persons with Developmental Disabilitieswith Developmental Disabilities


Developmental Disabilities Eligibility Criteria

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Florida’s Service Eligibility Criteria g yfor Developmental Disabilities

RetardationCerebral palsyCerebral palsyAutismS i bifidSpina bifidaPrader-Willi syndrome

Chapter 393.063(9), Florida Statutes

ADRC Training 30

Eligibility Criteria for APD Services

One of the five disabilities identified by Florida StatutesU.S citizen or resident alienPersons must be domiciled in the State of Fl idFloridaDetermination of residency through a Florida driver license school records utility billdriver license, school records, utility bill, employment information, rental or mortgage statement

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b l d d b f 8Disability diagnosed before age 18 ADP determines eligibility by:Testing and diagnostic workupReview of school or medical records, if ,available

Documentation of life-long (not ocu e tat o o e o g ( otpsychiatric) impairment or dysfunction

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Adults with developmental disabilities may move up the waiting list for y p gservices by meeting the crisis criteria as defined by Florida Statutes:Homelessness Aging caregiver can no longer provide care

d lf hA danger to self or others

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Medicaid eligibility through Department of Children and Families Services provided through a waiver or within an Intermediate Care Facilitywithin an Intermediate Care Facility (ICF)

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Florida’s Service Eligibility Criteria g yfor Developmental Disabilities

The following five definitions have been paraphrased from Florida’sbeen paraphrased from Florida s statutes. The specific statute is listed under each definitionunder each definition …

ADRC Training 35

Definition of Retardation

Significantly sub-average general intellectual functioningDifficulties with adaptive behavior across the lifespan –

Personal independence Social responsibility expected of age,

lt l d itcultural group, and community

Chapter 393 063(31) Florida Statutes

ADRC Training 36


Definition of Cerebral Palsy

A group of disabling symptoms of extended durationResults from damage to the developing brain that may occur before during orbrain that may occur before, during, or after birthResults in the loss or impairment ofResults in the loss or impairment of control over voluntary muscles


ADRC Training 37


Definition of Autism

With age of onset during infancy or childhoodIndividuals with autism exhibit:

Impairment in reciprocal social interactionp pImpairment in verbal and nonverbal communication and imaginative abilityA markedly restricted repertoire of activities and interests


ADRC Training 38


Definition of Spina Bifida

A birth defect where the spinal cord is not covered by tissuey

Chapter 393.063(35), Florida StatutesChapter 393.063(35), Florida Statutes

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Definition of Prader-Willi Syndrome

Inherited condition characterized by:Poor muscle tonePoor muscle tone Failure to thriveObesity usually at 18 to 36 months of agey y gMild to moderate mental retardationCharacteristic neurobehavioral


ADRC Training 40

Disabilities Not Covered in APD Statute

Learning disabilitiesAsperger's syndrome – One of the p g yautism spectrum disorder classifications with an average to above average intellectual functioningDown syndrome – unless meets criteria for retardation as defined by Florida Statutes

ADRC Training 41

Epilepsy



Commonalities and Differences Between the Networks

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Commonalities Between the Networks

Provide services in least restrictive environmentOperate a coordinated service systemSupport consumer self determinationSupport consumer self-determinationAddress needs of older caregivers

Caregivers are the most likely area for bridging

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Commonalities Between the Networks

Similar aging needsWaiting lists for servicesWaiting lists for servicesMany services are not entitlementsS i i iti d b li t dServices prioritized by client needsEmpowered by the federal government to provide services

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Differences Between the Networks

Eligibility criteriaRegulations and mandatesRegulations and mandatesService provisionS iService areasOrganizational structureAgency structure and process

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Differences Between the Networks

AgingADRC Structure –

Developmental DisabilityADRC Structure

private non-profit organizations

DisabilityAPD Structure –government agencyg

Language/acronymsCase managers

government agencyLanguage/acronyms

Support coordinatorsgAging Resource Centers (ARCs)

Support coordinatorsArcs – also known as Association for R d d Ci i46

Retarded CitizensADRC Training

Area Comparison Maps

ADRC Training 47

Summary of Module 2

Aging and disability networks share commonalities that can build collaborationUnderstanding eligibility criteria for services can help match consumer needs to available servicesCaregiver is often the bridge for collaboration between the networks

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Exercise

ScenariosSee handout for scenarios and questionsSee handout for scenarios and questions

Group discussionQuestionsQuestions

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Documents

Meeting the Needs of Aging Persons with Developmental ...elderaffairs.state.fl.us/doea/ARC/05b_Module_2_Aging_and_DD_Systems.pdfMeeting the Needs of Aging Persons with Developmental