A NNUALREPORT 2012Hope for a better tomorrow.

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LYMPHOMA CANADAOUR MISSION

HOW WE DO IT

OUR STRUCTURE

We empower lymphoma patients and the lymphoma community through education, support, and research.

Lymphoma affects many people, from patients, family and caregivers, to medical professionals and researchers. Lymphoma Canada connects and empowers this community. Together we are promoting early detection, finding new and better treatments, helping patients access those treatments, learning lymphoma’s causes and finding a cure.

We are Canada’s only national organization focused entirely on lymphoma.

A registered charity, we are led by a volunteer board of directors drawn from the lymphoma community. Our board includes lymphoma patients and medical and research professionals. A small, dedicated staff brings expertise in program implementation, communications, fundraising, and administration. We are guided by expert members of a Scientific Advisory Board. Lymphoma patients across the country help organize, and participate in, education events, support groups, and online forums.

Lymphoma Canada operates in both official languages, with staffed offices in Ontario and Quebec and a volunteer presence across the country.

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8600 Canadians will be diagnosed with lymphoma in 2013 and yet, in spite of this prevalence, an overwhelming majority of Canadians do not understand that lymphoma is a type of cancer. Lymphoma Canada works tirelessly to build awareness of and to support those affected by this prevalent disease.

As we refl ect on our recent accomplishments, we are proud to have made great strides towards achieving our goals. We are delighted to share, in the pages of this Report, some of the highlights of the work recently undertaken by our dedicated staff and volunteers.

We expanded our patient education initiatives to include an online education program for family doctors;

We launched the fi rst comprehensive Lymphoma Patient Survey, for which we received input from 90 patients. The important and directive results of this Patient Survey will be included in our fi rst Report Card on Lymphoma in Canada which we will release later this year;

Our advocacy efforts were bolstered by the strength of the collective patient voice as we successfully convinced the Government of Ontario to join with other provinces and fund access to Rituxan (rituximab) in combination with Fludarabine-based chemotherapy for patients with a recurrence of follicular lymphoma; and,

We made an unprecedented grant of $450,000 to Sunnybrook Hospital’s Odette Cancer Centre and the Princess Margaret Hospital Foundation to fund lymphoma research.

No refl ection on our recent accomplishments would be complete without saying thank you to the formidable Romeo De Gasperis with whom we worked to host the most signifi cant fundraising event in Lymphoma Canada’s history in June 2012. We are sincerely grateful to Mr. De Gasperis, his family, his friends and the countless others who helped us to raise $2.25 million at a Tribute Dinner in his honour.

The year ahead promises continued positive momentum. Thanks to the support of creative marketing and advertising design agency Lowe Roche, Lymphoma Canada will launch its fi rst advertising campaign in the months ahead. This campaign is designed to educate Canadians on the signs and symptoms of lymphoma, leading to earlier diagnosis and better outcomes for patients—the greatest accomplishment of all.

Thank you for supporting Lymphoma Canada.

EXECUTIVE LETTER

Paul WeingartenChair, Board of Directors

Sue RobsonExecutive Director

LYMPHOMA CANADAOUR MISSION

HOW WE DO IT

OUR STRUCTURE

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The early detection and diagnosis of lymphoma is critical to ensuring successful outcomes for patients. In order to facilitate early diagnosis and to help medical professionals recognize symptoms earlier, Lymphoma Canada collaborated with mdBriefCase, Canada’s foremost online continuing education provider for physicians, to develop an online continuing education course called, “The Early Detection of Lymphoma in Primary Care.” This new course, which became available at the end of June 2012, teaches physicians to review the incidence and prevalence of lymphoma in Canada, describes the clinical manifestations of lymphoma, discusses approaches to the early recognition of lymphoma in clinical practice, and focuses on the role of the primary care provider in the follow-up of patients with lymphoma.

An overwhelming percentage of General Practitioners from across Canada have completed this course, and post-course survey results indicate that more physicians were likely to screen for lymphoma in a patient with persistent lymphadenopathy following completion of the course.

Lymphoma Canada is committed to working to educate all groups within the lymphoma community and is working to build similar programs for nurses to be better informed about the signs and symptoms of lymphoma.

MEDICALCOMMUNITY

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In June 2012, those living with non-Hodgkin lymphoma received positive news about another new treatment for lymphoma. A trial that included 549 patients with certain types of immune system cancers showed that patients treated with Bendamustine and Rituxan lived more than three years longer without any progression of tumours, when compared with patients treated with Rituxan and chemotherapy, currently the most commonly-used treatment for the disease.

Bendamustine has recently been approved for use by Health Canada, but it will now be up to the individual provinces and territories to decide whether they will publicly-fund this drug.

Lymphoma Canada is putting its advocacy efforts to work again to ensure that Canadians have access to this important and promising treatment option.

CANADIANASSOCIATIONOF NURSES INONCOLOGY AWARDIn 2012, the Lymphoma Canada Award of Excellence in Patient Advocacy was awarded jointly to Patricia Murphy-Kane and Cindy Murray, both from Toronto, Ontario.

Patricia, a Clinical Nurse Specialist in Palliative Care and Cindy, a Clinical Nurse Specialist in the Transfusion Clinic, both at Princess Margaret Hospital in Toronto, have been recognized for their tireless support and impactful work in advocating for early palliative care referrals for patients with lymphoma.

Ms. Lorraine Martelli-Reid, President of CANO, accepted the award on behalf of Patricia and Cindy.

BENDAMUSTINE

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Lymphoma Canada produced three new videos: Alive Again (to share patient stories of hope), Someone In My Family Has Cancer (a video to help explain a cancer diagnosis to children), and an educational video with Dr. Pierre Laneuville about the newly approved lymphoma treatment, Bendamustine. All three videos are available at www.youtube.com/LymphomaTV.

In addition, Lymphoma Canada and its patient-centric programs were featured in an article in The Chronicle Healthcare Marketing which is distributed to 7500 managers

and executives in the pharmaceutical, biomed, biotech and hospital services industries in Canada and profiled in New Evidence in Oncology, a magazine for healthcare clinicians that showcases scientific data, research, and perspectives from key opinion leaders in the field of oncology from around the world.

Lymphoma Canada hosted the inaugural Living Well With Lymphoma Patient Education Event in Toronto on World Lymphoma Awareness Day.

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JANUARY 25, 2012LYMPHOMA 101

Patients and caregivers joined Lymphoma Canada, Wellspring Centre and special guest speaker Dr. John Kuruvilla for this informative discussion about new and novel therapies in treating lymphoma and how to make educated decisions about clinical trials.

Halton Peel Wellspring Centre, Mississauga, Ontario

FEBRUARY 1, 2012WATERLOO SUPPORTGROUP MEEETING

Lymphoma Canada supported the Waterloo Group at HopeSpring Cancer Support Centre to host this evening for patients and family members. Special guest speaker for the evening was Karen Van Rassel of the Lymphoma Coalition.

HopeSpring Cancer Support Centre, Waterloo, Ontario

APRIL 1, 2012“HOPE ENDURES”AN EVENING OF HOPE

An Evening of Hope provided an opportunity for lymphoma patients to share experiences with others dealing with cancer, as a patient, a caregiver or a friend. Keynote speaker and Team Canada hockey legend Paul Henderson, spoke of his experiences with cancer, and the way the lessons he learned about leadership, teamwork, and commitment during his hockey career have helped him overcome the very difficult challenges associated with fighting lymphoma.

North Bramalea United Church, Brampton, Ontario

MAY 2, 2012WATERLOO SUPPORTGROUP MEEETING

Dr. Ronan Foley from the Juravinsky Cancer Centre spoke to patients and family members about lymphoma subtypes and new and emerging treatments.

HopeSpring Cancer Support Centre, Waterloo, Ontario

MAY 25, 2012LYMPHOID CANCEREDUCATION FORM

This full-day education event was held at the Jewish Community Centre on West 41st Ave in Vancouver BC. Lymphoma Canada was a proud sponsor of this event.

Vancouver, British Columbia

SEPTEMBER 15, 2012WORLD LYMPHOMAAWARENESS DAYLymphoma Canada increased the scope of its initiatives in support of World Lymphoma Awareness Day in 2012. In particular, Lymphoma Canada expanded its social media activity to engage in widespread conversation with the lymphoma community and to share information about lymphoma and education and awareness initiatives around the world.

APRIL 19-21, 2012CLL LIVE 2012

Lymphoma Canada hosted a three-day international educational conference about chronic lymphocytic leukemia (CLL) to provide patients with up-to-date information about clinical trials, treatment options, and information about advocacy efforts as well as networking opportunities for patients and their caregivers.

Embassy Suites, Fallsview Hotel, Niagara Falls, Ontario

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“We put a very ambitious fundraising goal of $1.5 million for this event and I am thrilled to say we beat it. In fact, thanks to your generosity, I’m thrilled to announce that this dinner raised $2.25 million. Thank you for supporting Lymphoma Canada.”- Romeo De Gasperis

On June 11, 2012, the Embassy Grand Convention Centre in Toronto, Ontarioplayed host to a remarkable event. Thanks to Toronto businessman Romeo DeGasperis, Lymphoma Canada raised $2.25 million in support of lymphoma research at a Tribute Dinner in Mr. De Gasperis’ honour. The event was attended by more than 1,200 friends, family and business associates of the De Gasperis family and others from the broader lymphoma communi ty. Mr. De Gasperis has been diagnosed with lymphoma twice, but has been cancer free for several years.

Proceeds from this event enabled Lymphoma Canada to fund criticallymphatic cancer research with a grant of $450,000 to Sunnybrook Hospital’sOdette Cancer Centre and the Princess Margaret Hospital Foundation.

Lymphoma Canada would like to thank Mr. De Gasperis and hisfamily and friends for their leadership and generosity.

ROMEO DE GASPER ISTRIBUTE DINNER

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APRIL 30, 2012

A unique fundraising event offered guests and clients an opportunity to receive professional haircuts by talented stylists and raised more than $2,000 for Lymphoma Canada.

La Rose Men’s Hairstyling Hair-Cut-a-ThonEtobicoke, Ontario

JUNE 11, 2012

This extraordinary fundraising event was the largest and most successful fundraisier in Lymphoma Canada’s history. Thanks to the support of Romeo Dr Gasperis, the organization raise $2.25 million in support of lymphoma research.

Tribute Gala in honour of Romeo De GasperisToronto, Ontario

JUNE 23, 2012

The 2nd Annual Lemonade Stand is organized by Jenna Zaracoff and her family in memory of their father and husband, Stewart Zaracoff, who died in 2010 from Non-Hodgkin lymphoma.

Jenna’s 2nd Annual Lemonade StandThornhill, Ontario

AUGUST 2, 2012

The 2012 Par for the Cure event was a great success. We were delighted to welcome hockey legends Bob Nevin, Johnny Bower, Wilf Paiement, or Pierre “Pete” Pilote to join in the golf and celebration. As a twist on the traditional “Closest to the Hole” contest, we offered the highest bidder the opportunity to drop a bucket of balls from a helicopter and raised additional funds for lymphoma research.

Par For The Cure Golf TournamentMaple, Ontario

FUNDRAISING EVENTS

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BOARD OF DIRECTORS

dR. joe ConnoRS,md

Clinical Professor, University of British Columbia;Chair, Lymphoma Tumour Group, British Columbia Cancer Agency

dR. iSabeLLe benCe-bRuCKLeR, md fRCPC

Hematologist, Associate Professor of Medicine, Member, Blood and Marrow Transplant Program, Ottawa General Hospital Campus

dR. SPenCeR gibSon,Phd

Associate Professor, Manitoba Institute of Cell Biology, Department of Biochemistry and Medical Genetic, University of Manitoba

dR. maRy goSPodaRoWiCZ,md fRCPC fRCR (hon)

Professor and Chair, Department of Radiation Oncology, University of Toronto, Chief, Radiation Medicine Program, Princess Margaret Hospital

dR. KeVin imRie,md fRCPC

Physician-in-Chief, Sunnybrook Health Sciences Centre, Vice-Chair, Education, Department of Medicine, University of Toronto, Professor of Medicine, University of Toronto

PauL WeingaRTeRcHairtoronto, ontario

miKe joyCevice cHairmississauga, ontario

aLySSa buRKuS RoLfpast cHairoakville, ontario

john SuTheRLandtreasurerHamilton, ontario

niCK ioZZosecretarYtoronto, ontario

dR. LauRie Sehndirectormississauga, ontario

TeRRy CReighTondirectortoronto, ontario

LoRing gimbeLdirectorcalgarY, alberta

anWaR KnighTdirectortoronto, ontario

amy maRaonedirectortoronto, ontario

dR. haRoLd oLneydirectormontreal, quÉbec

dR. RaLPh m. meyeR,md, fRCP(C)

Director of the National Cancer Institute of Canada (NCIC) Clinical Trials Group and Holder of the Edith Eisenhauer Chair in Clinical CancerResearch at Queen’s University

SCIENTIFIC ADVISORY BOARD

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Sue RobSonexecutivedirector

Tanja Loebdirector of operations

and programs

jan CoLemannational

office manager

Vaughan Reidnational

development manager

TRaCey-ann CuRTiSregional manager,

quebec

ChaRLene Raginmarketing and

communications coordinator

LYMPHOMA CANADASTAFF

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100+donaTionS

Alan SzpindelJoe AchonRichard FlomenBarry ReznickDiane BrownTony MoranoMary GardimanPerry CerviniLouis KavanaughA. PaarJohn MiniaciFrank AntonacciMichael FioriniJack WinbergAldo GottardoDomenic AngaranSam CiccoliniJenny CocoJim d’Angelis

Lymphoma Canada thanks all our generous donors for their gifts.We are grateful to count you among the community of supporters who are

making it possible for us to provide information, help, and hopeto the lymphoma community across Canada.

John PellegrinoPeter R. WalkerRoberto MangoniLarry MurrayDavid ChuiRemo D’AngeloFrank CundariAngelo De GasperisPeter SchutMark SpektorRiouxCulnanGowersBurtonLorenzKaren BeauregardMirella DwyerLisette VopniRoberta McBrideJoseph LebovicMary CerneccaDr. Wilf Steinberg

Gino BellisanoJenny CocoAnne WaltonMike SchwengerMark VanDen NoortScott MacdonaldDouglas N. SweetappleRenee GomesMike RiceLeah SimonTony FudaWalker PontieroAnthony DiBattistaBarry FeinerRosario P. RuscicaEugene VarratiDr. Michael CrumpArt SaccocciaJason SpenarRichard GambinAlan GreenbergPeter Rizzo

Jeff DaviesBlair SeeleyTerri Tino Marco Muzzo Michael CiccoliniSamuel ZimmermanFrancine PomerantzTony Pacitto PaszkiewiczMitlyngChoiGallagherHughesMacdonaldLoida GriffinsHarperSamia CerviJim DeAngelisN. TotinoAldo GottardoNick IozzoBenny Soscia

Abida Usman CooperPannolinoMcKeanRolfCreightonSorialAntenucciJacksonBlairSorialAntenucciJacksonBlairCunninghamMongilloBernardMurraySantelliMooreFratiaGiraudy

HirdDavisBettsFraserMaghirangSpearsKellyMcKayAllanTerry MareeRon ParsonsFrank HuotCourtenay TrudelHadj ZoubirNicoletteGuy MarasJohn & Patricia GouinlockGiancarlo Morrone Damiano Peluso Arthur DalfenDiana

Stanley StankiewiczMarion MercierMichael Penny

m a j o R g i f T d o n o R SDeena and Armand RealeSilvio DeGasperisCosmo Mannella

LYMPHOMA CANADADONOR RECOGNITION

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Ricardo GugliettiGeorge FrankfortNicole MelansonViola WalshKathy BedardLisa GaudetJohn SloanBarry LutesRobert H. AlbeeSharon HopkinsJohn ChessmanTelesat Mark & Maria NicollFrances MacDonaldRebecca FrivaltMike CollCatena PizzoKim KoteffJessica Kabbe KronfliWilliam PodgerErnest & Sandra DubkowskiRuth WhiteJuliane McTavishElaine BurbridgeLorraine RicardDaniella & Patrick McDonaldSusan TrowbridgePeter BrautiRonny BourgeoisCindy Jacquard Tom & Louisa HoyPasqua PizzoJohn Di PoceFritz & Gisela ZiebenhausJoe & Mafalda DoniaMary & Bill StrackbeinLisa Sarrkman LeevyDebbi SchantzDeborah McDonaldAnna HolancinTom & Gillian GordonRichard & Diane JohnsonCatherine Dennis-BrooksLeah CavanaughLarry GagnierGeorge QuesnelleSandra Jones

Shirley LimPeter HeilemannGeraldine MiniellyEunice J. McArthurJim LyleMaryAnne DibellaJacqueline JohnstoneCynthia A. RileyJoan FordSusan Young Steve HeilemannKevin MoyleCharis KelsoEvelyn StoneRoss & Faye GordonBridget SweeneyRick WrayNancy Young Heather & Philip RaczynskiTony & Karen NagyMargaret SpenceWalter & Muriel ReynoldsBill & Fran LainsonBob & Linda FlemmingJune BattenMrs. PfeifferJune BrayLinda Leggett Alf TizzardSarah RileyGerhard BosPauline YoungKarl & Anna MatlaRoss FraserLeonard & Mary LeeKarin ScotlandDonald LiddleJack ZangariIrvin HounsomeRichard & Diane GrimmSophia & Michael KulhaJodi BenLinda SielskiHalton Region Police AssociationDarlene MorrisonJulie McDonaldMay Bowles

Eldred DalgarnoPatricia & Pierre ChampagneExcie & Wayne MilesBrenda & Clifford LoebMaryAnne SaintMarlene MorrisonDaniel BoyneSheila OlesenKevin ShackletonElizabeth PotvinDeborah & Stephen NicholasJason French Eva ChanIrene WestSamuel CormierRemond PoirierMarthe LavoieElisabeth PoirierRomeo ThibodeaultMarie CadieuxLouis BiourqueGery WouelletJoanne RobineauYvon CormierDave WhittonC. PeterJean Eudes GaudetJacques CyrRosa ConstablRonald BabineauGilles ChasseMarc NadeauBill ColletteMarc AlbinJean-Robert DaigleGeorges BastaracheMireille DubeGisele EminMurielle LeBlancMaureen PryzmantEileen BlumensteinPatrick Mulcahy Elizabeth CornacchiaDeanna McTaggartBarbara Adamson Brenda GrantMary Lynn Novak

Sol WassermuhlSteven MenkesGarry WatchornJames KennedyFrank GiordanoBrian WoodZayen SarkissianNick ManzoneDino MartelliRobert Ignagni Ray RakicMario RomanoMassimo ArduiniPaul ManchisiVictor & Bruno TesanMarco DicarlantonioDr. Peter PowersJames BlackhallFrancoise ShoreErnestine McElroyDeirdre DuguayDenise BeaulieuJoan SquiresDavid Beaulieu Bernice & Nate LeipcigarShane BaghiWilliam DaniellImelda Esporlas-JewerRobert RochonCaroline CutzKatharine SvobodaMario HenriquesDeanna McTaggartGary BallAntonio PizzoJoan HammondPatricia HookeyFrank DelorenzisSergio BozikovicMike GallagherJoe Maio Edward SorbaraChristopher Forte

TRIBUTE DINNER

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ASSETS

LYMPHOMA CANADASTATEMENT OF FINANCIAL POSITIONAS AT DECEMBER 31, 2012 | DECEMBER 31, 201 | JANUARY 1, 2011

CASH & CASH EQUIVALENTS

AMOUNTSRECEIVABLE

SALES TAXRECOVERABLE

PREPAIDEXPENSES

$657, 292

$564, 001

$ 1,003,572 $ 21,914 $ 144,914 $ 47,701 $ 7,472 $1, 225, 573

DEC

312

012

DEC

312

011JA

N 01

2011

EQUIPMENT(NOTE 4)

$ 486, 627 $ 554 $ 56,891 $ 92,954 $ 20,266

$ 411,127 — $ 24,700 $ 94,750 $ 33, 424

CURRENT ASSETS EQUIPMENT

L IABIL IT IES & NET ASSETS

ACCOUNTS PAYABLE & ACCRUED LIABILITIES

DEFERREDREVENUE

UNRESTRICTED

$657, 292

$564, 001

$ 11,093 $ 75,808 $ 1,113,672 $ 25,000 $1, 225, 573

DEC

312

012

DEC

312

011JA

N 01

2011

MEMORIAL RESEARCH FELLOWSHIP

$ 52,520 $ 244,150 $ 335,622 $ 25,000

$ 53,788 $ 172,750 $ 312,463 $ 25,000

CURRENT L IABIL IT IES NET ASSETS

TOTAL

TOTAL

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ADMIN/OVERHEAD

FUNDRAIS ING

AWARENESS

EDUCAT ION & SUPPORT

RESEARCH

PROFESS IONAL FEES

$ 183,764

$ 507,079

$ 250,785

$ 447,876

$ 537,240

$ 168,540

LYMPHOMA CANADAALLOCATION SUMMARY

7111 Syntex Drive, Suite 351Mississauga, Ontario L5N 8C3Head Office: 905.822.5135 Toll free: 1.866.659.5556

Charitable Registration Number: 87346 1040 RR0001

info@lymphoma.ca

@LymphomaCanada

/LymphomaCanada

www.lymphoma.ca