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Intellectual Disability & Personality Disorder Project Service Provision For Service Provision For People with People with Intellectual Intellectual Disability and SPIED: Disability and SPIED: Issues in Translating Theory Issues in Translating Theory into Practice into Practice Michelle Henwood Statewide Behaviour Intervention Service

Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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Page 1: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

Intellectual Disability & Personality Disorder Project

Service Provision For Service Provision For People with People with Intellectual Disability Intellectual Disability and SPIED: and SPIED: Issues in Translating Theory into Issues in Translating Theory into PracticePractice

Michelle HenwoodStatewide Behaviour Intervention Service

Page 2: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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Session Outline

SERVICE DELIVERY CONSIDERATIONS

A CASE EXAMPLE & SERVICE MODEL

QUESTIONS

Page 3: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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1. A conceptualisation of Personality Disorder in Intellectual Disability & Assessment Framework

2. An Intervention Framework

3. Translating theory into practice

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Service Delivery Considerations

Service ResilienceBreakdown & worldviewLong-term Service Set-Up: - stakeholder involvement

& agreement - documentation - communication - role clarity - robust systemic supportsService Recovery Plan

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Service Delivery Considerations

Duty of Care vs. Dignity of Risk- Informed consent? OPG ?- Senior management contract sign-off- Legal advice (DADHC & NGO)- Pressure off direct care staff

Minimising Risk- Short-term vs. long-term risk- Risk assessment- Risk Management Plan : built into

communication procedures & local service protocols eg. Hospitals protocol

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Service Delivery Considerations

Case Ownership by Disability Services- Providing a voluntary service to a

seemingly involuntary client- This group ARE our clients- Plans are still needed: maybe Case Plans

before IP’s.

Resistance & uncertainty re. new approach

- Staff training & involvement re. SPIED framework

- Shift to complement current practice with new way of thinking & conceptualising

- Patience, respect, perseverance, reassurance, & negotiation

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Service Delivery Considerations

Supporting Personal Boundaries

- Risk of blurred boundaries for staff & clients

- Supervision & support- Guidelines for consistency

Expect the Crisis / Expect the Recovery

- Relates to Set-Up expectations & undertakings (agreements)

- Give staff skills and training to respond to crisis (IPRP)

Page 8: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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So, how could this framework look within a

service model?

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WORLD VIEW“I will be abandoned”“I can’t trust anyone”

THEMES OF BEHAVING“If I’m in control no-one can hurt me”“Reject them before they reject me”

SYMPTOMATIC BEHAVIOURS- Physical aggression (punching,

pushing)- Theft (eg. food & clothing)- Property damage (own & others)- Self-harm (cutting arms & stomach)- Poor self-care & health management

A Case Example - Melissa

Page 10: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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A Case Example - Impact

SELF - PERVASIVE PATTERN FOR PAST 6 YEARS

Repeated placement in custody & released to new accommodationItinerant / homeless lifestyleNo significant relationshipsPhysical & mental health deterioration Frequent contact with police, mental health, hospitalsSerious risks associated with behaviours, health, & lifestyle.

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A Case Example - Impact

FAMILY & COMMUNITY MEMBERS

Family relationships broken downCommunity member injury, loss, & distress

SERVICES

Multiple service providers involved – inconsistent responses – unclear roles

Rarely able to implement because no contact – frustration & withdrawal of services

Functioning in “crisis mode” – huge drain on resources for every service involved

Page 12: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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Service Aims

• The initial goal is to create structure and predictability around the “crisis” nature of Melissa’s lifestyle.

• To offer a similar level of variety and stimulation to her current lifestyle whilst minimising risk to herself & others

• Work with Melissa’s itinerant behaviour by providing more than one “safe base”

• Facilitate increased predictability, safety, and eventually increased stability & connection to one identified “home”

Page 13: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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SERVICE MODEL for Melissa

NorthernRegion

SouthernRegion

CaseCoordinator& Clinician Sydney:

PrimaryResidence

Short Term

Secure Placement

Page 14: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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Short-term secure placement

NorthernRegion

SouthernRegion

CaseCoordinator& Clinician Sydney:

PrimaryResidence

Short Term

Secure Placement

Page 15: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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Primary Residence – Cluster Model

NorthernRegion

SouthernRegion

CaseCoordinator& Clinician Sydney:

PrimaryResidence

Short Term

Secure Placement

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Regional supports - Aims

Statewide contact with government departments

- Need for local & statewide protocols and agreements.

Safe bases & Relationships- Create a relationship with an organisation, not just one person.- Create a choice of safe bases : planned not emergency services.

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Regional Supports

-contact-office

-schedule

- contact-office

-schedule- respite

CaseCoordinator& Clinician -contact

-office-schedule

Short Term

Secure Placement

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Centralised Coordinator & Clinician

NorthernRegion

SouthernRegion

CaseCoordinator& Clinician Sydney:

PrimaryResidence

Short Term

Secure Placement

Page 19: Intellectual Disability & Personality Disorder Project Service Provision For People with Intellectual Disability and SPIED: Issues in Translating Theory

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“Phone a friend”

One phone numberToll free or reverse charges for Melissa & other identified services. Case Coordinator during business hours & Contact Persons roster after hours. Provision of support, schedule information, central communication point – streamlining & simplicity.

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In a nutshell …

There are many issues and barriers to translating theory into practice for this client group

It is very possible to do this with commitment, clarity, creativity, and understanding.

Acceptance that this is not a quick fix or an easy road is essential to achieving positive outcomes

This is just one example of how this intervention framework could be interpreted.

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Questions / Comments

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Michelle HenwoodStatewide Behaviour Intervention Service

[email protected]