Zertifiziert nach KTQ

House 8 | The Huntington-Zentrum-Süd is located on the ground floor (unit N1)

Huntington-Zentrum-Süd

Seating facilities in the unit’s living room

Introduction

3 | Introduction

4 | Huntington’s Disease (HD)

6 | Drug Treatment Priorities and Nursing

8 | Treatments Offered

13 | Service

20 | A-Z of Services

23 | Contacts

Introduction

Huntington’s disease, first described in 1872 by the American physician, Dr. George

Huntington, is a relatively rare illness. According to estimates, it occurs at a frequency

of around 5-10:10,000. Two to four times this number are healthy carriers. In Germany

there are known to be about 8,000 sufferers.

For southern Germany (catchment area includes Bavaria, Baden-Württemberg, Thuringia,

Saxony and parts of Hesse and Saxony-Anhalt), with a wealth of experience of almost

15 years, the Huntington Centre’s 20-bed unit at the Klinik Taufkirchen (Vils) provides the

nearest, specialised, in-patient treatment centre for Huntington’s disease.

Taufkirchen (Vils) lies about 50 km north-east of Munich on primary road B 388, about

20 km from Erding or Landshut (B 15). There are local direction signs showing access to

clinical centre.

The wheelchair-friendly Unit N1, with direct access to the park, is located on the ground

floor of a hospital building (House 8) within the park-like grounds of the clinical centre.

Geronto-psychiatric wards are situated on the first and second floors of the house.

Patients are housed in 1- or 3-bed rooms, equipped with their own washing and toilet

facilities. Two rooms form the monitoring area for patients requiring monitoring. One of

these is specially padded for patients with severe motor restlessness. There is a living

room with an eating area and television as well as a smoking room for the patients.

Upon request, and in consultation with the resident treating physicians, we are happy to

advise you in advance of applying to your health insurers to cover the costs.

As an additional service, the clinic has an institutional outpatient clinic for counselling

outpatients from the local region and further afield. In view of the rarity of the disease,

for institutions involved in the further provision of inpatient and outpatient care, shad-

owing opportunities and external training are offered.

The hospital is supported by the municipal enterprise “Kliniken des Bezirks Oberbayern

(kbo-ku)”. IK: 260911251

2 3

Huntington’s Disease (HD) Huntington’s Disease (HD)

Huntington’s Disease (HD)

The cause of this inherited disease is the mutation (change) of a gene, which is located

on the short arm of chromosome 4. The disease affects men and women in equal

measure. Every carrier of the mutated gene will go on to develop the disease with 99%

certainty. Furthermore, this means that every child of a carrier has a 50% risk of having

inherited the mutant gene.

As a rule, the disease begins between the ages of 30 and 45 (although early and rarer

late manifestations are known), and runs its course for 15 to 25 years. Therefore, some

sufferers have already had children before symptoms of the disease become recognis-

able. Moreover, at the onset of the disease, those sufferers are often misdiagnosed due

to lack of information about HD in the family.

Imaging procedures show the brain to be smaller in volume overall, in particular, the core

areas of the basal ganglia (above all, the corpus striatum and caudate nucleus), which

regulate muscle tone, involuntary and coordinated movements and expression and

posture, are affected, as well as the frontal cortex (the fore-brain), which is responsible

for higher cognitive functions and controls drive and emotions.

The patients’ symptoms are very individual and often begin with psychological peculi-

arities. In the early stages, before the diagnosis has been made, sufferers are often not

aware of changes in themselves. Onlookers initially often regard irritability, nervousness

or stress as the causes of body twitching or jerking movements. Sufferers are often irrita-

ble, listless or moody, however, also sometimes overly exuberant. The reactive depression

that often occurs at the beginning of coming to terms with the disease can go hand in

hand with suicidal tendencies.

The involuntary movements initially perceived are often concealed as self-conscious

gestures; however, they can also be very erratic and pronounced. Grimacing or abnormal

movements of the lower jaw are evident (e.g. the masticator muscles and tongue may

be in constant motion). In some of those affected there are also oculomotor deficits.

Increased hyperkinesias when walking are also highly characteristic, so that the patients

soon become unsteady on their feet and need to be supported.

In contrast to the usual clinical picture, in the juvenile form of HD, also known as the Westphal

variant, one finds increasing stiffness and inhibition of movement, which, in neurological

terms, is similar to Parkinson’s disease. In this form of the disease seizures may also occur.

In general, the clinical picture is characterised by psychological and neurological disorders.

Examples of psychological/psychiatric symptoms

• Memory and cognitive impairment

• Disinterest and social withdrawal

• Hysterical behaviour

• Emotional instability with some aggressive outbursts

• Depression

• Listlessness

• Impairment of higher cognitive functions (e.g. judgement)

• Psychotic experiences

Examples of neurological symptoms

• Irregular, involuntary twitching

• Impairment of the muscles controlling swallowing, speech and chewing

• Contortions of the limbs, torso and head

• Grimacing

• Incontinence

• Reduced pain and temperature sensitivity

Autonomic symptoms range from hyperhidrosis (excess sweating) and weight loss to

cachexia.

Since the discovery of the genetic mutation responsible for HD, confirmation of a suspected

diagnosis of HD is now possible by means of a simple blood test (genetic test). Thanks to

the discovery of the HD gene, for persons at risk there is also the possibility of having a

molecular genetic analysis of their risk of contracting the disease, based on International

Huntington Association guidelines. As the decision to have the genetic test raises many

questions, in addition to other preconditions (minimum age 18 years; volunteering for the

test), genetic counselling and psychological support are necessary.

Because the psychiatric symptoms of HD are, in part, similar to those found in depres-

sion, schizophrenic psychoses and Parkinson’s disease, diagnosis on the basis of psycho-

logical symptoms can prove problematic, particularly when the family history shows no

evidence of HD.

4 5

Halesworth chair (Photo: R. Limpert)

Drug Treatment Priorities and Nursing Drug Treatment Priorities and Nursing

Drug Treatment Priorities and Nursing

To date, there is no known causal treatment that can cure the disease or reverse the dis-

ease process. However, holistically-oriented treatment aimed at the symptoms can have

a positive effect on the disease process for patients and for relatives alike.

The professional efforts are targeted at the resources and requirements of the patients,

which result from the stage of the disease as well as the possibilities offered by the

social environment. Particular emphasis is given to establishing a workable relationship

with sufferers and their families.

Drug treatment of the psychiatric and neurological symptoms described, based on case

history and an individual treatment plan, lies at the forefront of inpatient treatment. In

the event of accompanying medical disorders we collaborate closely with surrounding

hospitals.

The objectives of each treatment are developed with the involvement of patients, their

families and, if applicable, carers and mediating institutions, and are discussed in the

process. Here we allow ourselves to be guided by the possibilities and limitations of the

patients as well as the environment. As a primary objective, by strengthening self-initia-

tive and personal responsibility, we strive to slow the loss of physical, mental and social

skills.

Here the objectives are, among other things, reduced restlessness, improved swallow-

ing action, improved gait (e.g. through Triaprid and Tetrabenazine) and treatment of

the mental disorders (e.g. using antidepressives or neuroleptics). Through daily doctor’s

rounds, the course of the drug treatment is assessed with regards to indication, efficacy,

dose adjustment, tolerance and side effects. Basically, drug treatment is restricted to that

which is necessary.

The nursing care is based on a specially developed nursing standard for Huntington’s

disease, which encompasses all relevant problems of the clinical picture and offers a

wide selection of possible interventions.

Our nursing care may be regarded as relationship management. It takes into account the

balance between closeness and distance, activity and passivity. Attention to and accept-

ance of the sufferers’ immediate situation form the basis of the nursing philosophy.

The nursing activities are geared towards the everyday realities of life and are aimed at

achieving a satisfactory quality of living by means of, among others, promoting commu-

nication with patients, training of movement, development and consolidation of the cir-

cadian rhythm and maintaining control over the withdrawal of sufferers in the advanced

stages of the disease. Furthermore, the focus is on meeting the needs for a safe living

environment, for rest and stimulation as well as for a varied and nutritious diet, which,

due to disease-dependent requirements, consist of around up to 6,000 kcal.

The nursing care measures are supported by suitable, specific medical aids such as, for

example, the special Huntington chair (Halesworth chair) from Kirton Healthcare (-->

Service), walking frames (--> Service), padded beds and padding in the toilet area and

washing facilities in the room.

Quality assurance is ensured by weekly consultant’s rounds and discussions between the

treatment team and the senior physician, supervision and multidisciplinary team case

conferences.

6 7

Hip bath with side entry

Treatments Offered Treatments Offered

Treatments Offered

Patients come to us in all stages of the disease or contact us. We can offer a comprehen-

sive programme that is tailored to meet their needs. As an overview, we have published

a summary of the treatments offered by the unit.

Even before it comes to hospitalisation, family members, people seeking advice and insti-

tutions can obtain information about the clinical picture and about the services offered

by the unit.

In discussions locally, questions such as “Will I be subjected to human genetic screening?”,

”What effect will a positive diagnosis have on my life and family planning?” or “How can I

deal with the illness?” form the focus of individual consultations. The unit physician and/or

psychologist are available to answer those questions. Appointments can also be arranged

with the clinic’s medical director and founder of the Huntington Unit, Prof. Matthias Dose

(appointments made through the office on (Phone +49 8084 934-212).

As part of outpatient treatment (our institutional outpatient department is permitted by all

health insurance companies) psychological examinations of cognitive performance, e.g. in

relation to fitness to drive, ability to concentrate and remember, are possible. Alongside this,

social and educational counselling services can be used to answer questions regarding, e.g.

continuation of employment (disabled person’s pass), sick leave or making pension claims.

Endeavours are made to forward needs-based services locally (e.g. outpatient psycho-

therapeutic and/or neurological support and (pension) advisory centres.

In the case of hospitalisation during the early stages of the disease, the focus lies on drug

treatment of the psychological disorders (e.g. depression and anxieties), of movement

disorders and cognitive losses. We also offer scientifically proven treatments that delay onset

of the disease or slow disease progression. Further emphasis is placed on speech therapy and

physiotherapy support, clarification of the fitness to work (nature, extent) as well as determin-

ing resources. By means of the treatments offered, such as occupational and art therapy (e.g.

in the areas of wood, metal, gardening, cookery groups), ergotherapy, sport music and relaxa-

tion, the patient’s own interests should be added to and, in a relaxed atmosphere, they should

provide suggestions for meaningful structuring of the day within the home environment.

If necessary, a consultation takes place with regard to social security, e.g. disabled

person’s pass, recommendations of day care centres, secondary institutions and services

(meals on wheels, welfare centres) and social-psychiatric services in the patient’s home

region but also regarding rejoining the workforce. A big part is played by presenta-

tions offered to carers and family members. From the medical side, with the help of a

neuropsychological diagnosis by the psychologist, the need for the introduction of legal

assistance is ascertained.

For patients in the advanced stages of Huntington‘s disease, in addition to drug treat-

ment, nursing care is a priority. In addition to psychiatric and neurological treatment,

value is placed on the treatment of accompanying medical symptoms or other diseases.

Ergotherapy, physiotherapy and speech therapy are used as treatments to activate and

improve movement, speech and swallowing processes. The current care situation is as-

sessed and is adjusted if necessary (recommendations for medical aids, such as Rollator

( Service), Halesworth chair ( Service), dietary supplements ( Service) and nursing in

care facilities).

Beyond the individual treatment, institutions involved are advised on the clinical picture

and on dealing with specific behaviour and family members are given advice on coping

with progression of the disease.

8 9

Snoezelen room – waterbed Snoezelen room – oil wheel

Treatments Offered Treatments Offered

Basal Stimulation® in nursing care Snoezelen – conjuring up a smile

The concept of Basal Stimulation uses the simplest and most basic ways to reach another

person and to get through to them. Basal Stimulation can be regarded as stimulating

patients to develop without placing demands on them. Through this means of looking at it,

the dialogue between the sufferer and the carer is key. This can be achieved using speech,

non-verbal communication but also using touch, movement or breathing.

The target group for Basal Stimulation in nursing includes, among others, people with diso-

rientation and impaired perception, but also people with neurological impairment such as in

the case of those suffering from Huntington’s disease. In working with Huntington patients,

Basal Stimulation enables structuring of the confusing plethora of stimuli for sufferers, to make

them understandable and to seem less daunting. For example, using vibrations nurses can

reach patients where language is no longer able to penetrate. At the same time, vibrations can

support body awareness because sufferers lose their physical boundaries due to the continuous

changes in physical sensations. Therapeutic washing and stroking serve the same purpose.

All Basal Stimulation in nursing treatments offered serve to enable the Huntington patient

to improve sensations of self and to reduce restlessness, and to thereby ensure relaxa-

tion for a time or to recreate, as far as possible, the lost active perception of multi-sensory

environmental information, albeit only partially.

Originally, the word “Snoezelen” came from the Dutch and means “to sniff” and to

“doze”. This method of relaxation and sensory stimulation was developed there.

Our goal is not only to ensure the greatest possible treatment success to Huntington

patients, but also to contribute to their feeling of well-being throughout their entire stay.

We offer a white room, since this colour permits variable illumination. It has a heated

waterbed with a canopy over it that can be illuminated, a waterfall light curtain, three

mirrored water column lights, a lighting effect wheel, an oil wheel, a luminous hemi-

sphere and sound system.

In different situations the Snoezelen treatment is intended to be helpful, useful and

versatile. By means of this room, we have created a comforting atmosphere for our pa-

tients, with the possibility to relax. Away from the daily routine, the intention is to create

positive experiences and adventures here. This also provides an opportunity to retreat,

particularly during longer periods of hospitalisation.

This room plays a very important role in crisis intervention. In this context the nurse

works with aspects of Basal Stimulation®, for which she has a special qualification.

10 11

Snoezelen room – water columns Snoezelen room (Photos: R. Dengler)

Service Treatments Offered

In principle, drug treatment should be supported by this therapy. As patients come to us

with different symptoms and problems, the Snoezelen is adjusted to suit each individual.

During the Snoezelen, the stimuli chosen are offered, which improve the ability to per-

ceive and experience even in those patients who are heavily care-dependent. 

Snoezelen should be enjoyable for the user and, in the best case scenario, should conjure

up a smile.

Snoezelen is fully integrated into the unit’s daily routine. No matter what the time of day

the room is accessible to and usable by everyone.

Service

Hospitalisation is associated with many changes and some sacrifices. In order to make

the stay in our hospital pleasant and therapeutically meaningful for you or your relatives,

we have drawn up a short list of instructions below. Should you have any additional

questions, the unit’s staff will be pleased to assist you on Phone +49 8084 934-242. On

the day of admission, patients should arrive at the unit before 2:00 p.m.

Within the context of the treatments offered, activating therapy and maintaining

maximum independence in the various areas of life take precedent. During the day, as

far as possible, patients participate in the therapies prescribed by the physicians. For this

reason, during hospitalisation you will require everyday clothing, leisure and sportswear.

The laundry should have name tags whenever possible.

Towels and flannels are supplied by the unit. Should personal laundry not be washed by

family members due to, for example, great distance from the place of residence, for a fee

we offer a laundry service as part of the occupational therapy.

For patients who are admitted due to Huntington’s disease, sturdy footwear is recom-

mended (e.g. running or training shoes with Velcro fasteners, sandals with ankle straps).

Open shoes, which do not provide the foot with adequate support, are unsuitable.

12 13

Service Service

As part of the sports therapy, during the summer months we offer “swimming” at the

Taufkirchen Waldbad (outdoor pool with hot water pool). We recommend, therefore, that

you bring swimwear with you.

Money may be deposited in the trust of the house for patients. There is also the possibil-

ity of leaving money for the patients in trust at the unit up to a certain amount.

By giving the patient’s name and the purpose of use you may transfer money to the fol-

lowing accounts:

Bank für Sozialwirtschaft (sort code: 700 205 00, A/C no.: 8 890 400)

Kreis- und Stadtsparkasse Erding-Dorfen (sort code: 700 519 95, A/C no.: 200 535)

For smaller purchases there is a kiosk available at the hospital. Other shops are about

5 minutes’ walk away (clothing, food, drugstore, opticians).

For € 5 per day a telephone and television can be installed in the patient’s own room. It

is also possible to watch television in the living room and smoker’s room. Patients can

be reached over the patient’s telephone on Phone +49 8084 934-8010 (payphone in the

unit’s corridor).

The unit doctors can be reached on Phone +49 8084 934-305 or via the unit room on

Phone +49 8084 934-242. Due to patient admissions, consultations, examinations and

ward rounds we ask for your understanding that a contact person will not always be

available immediately.

The senior physician, Prof. Matthias Dose, is available to talk to daily between 8:00 and

8:30 a.m. or 1:30 and 2:00 p.m. on Phone +49 8084 934-212.

Taking into consideration the unit’s large catchment area and the resulting long travel-

ling distances, there are no fixed visiting times at the unit. However, please note that

participation in a treatment takes precedent and, therefore, particularly during unan-

nounced visits, waiting times should be allowed for. Please talk to our staff.

During your admission, please bring along the prescription for hospitalisation from your

referring physician. If your place of residence lies outside the districts of Erding and Freis-

ing, and if an ambulance is required, some health insurance companies can sometimes

be awkward regarding reimbursement of transport costs because the nearest hospital

should have been considered. Therefore, obtain a declaration to meet transport costs

from your health insurance provider in advance. Should statutory health insurance com-

panies create problems during the reimbursement of costs for treatment at the Hunting-

ton-Zentrum Süd, the advice centre of the AOK Bayern (Bavarian health insurance fund)

can provide advice (Phone +49 89 630030).

14 15

Munich

Stuttgart

Garmisch-Partenkirchen Innsbruck

Lindau

Nuremberg Regensburg

Passau

Burg- hausen

Salzburg

DeggendorfCzech Republic

Landshut

Erding

Munich Airport

Haag

Rosenheim

Mühldorf

Dorfen

Taufkirchen (Vils)

Velden Vilsbiburg

A 92

A 94

A 95

A 96

A 8

A 8

A 93

A 9

B 15

B 12

B 388

Service Service

How to reach us Advice on the purchase of medical aids

Taufkirchen (Vils) lies at the junction between primary roads 15 (Landshut-Rosenheim)

and 388 (Erding-Passau). You can see the main access routes on the map. You will find

links to route planners on our websites in order to plan your individual journey.

Using public transport, Taufkirchen can be reached by bus or taxi. From Munich you can

take the S -Bahn S6 to Erding, then bus route 561 or 562 to Taufkirchen. Alternatively,

take the train from Munich (East) – Mühldorf to Dorfen. There, take RVO bus route 9403

in the direction of Velden to Taufkirchen bus station. You can get detailed departure

times at www.mvv-muenchen.de

We have had very good experiences with the medical

aids we employ. We are, therefore, pleased to pass on

the details of where to buy them from:

The walking aid we use for immobile patients is the

RCN Walker GW 130 from the manufacturer

RCN-Medizin- und Rehatechnik

Hauptstraße 4

55471 Sargenroth

Phone +49 6761 4158

Fax +49 6761 12974

Web: www.rcn-medizin.de

E-Maill: info@rcn-medizin.de

We recommend the GW 130 pictured because this has

side supports that strengthen the chair and prevent it

from tipping over. You can obtain current prices from the

manufacturer.

On the right: Toilet and shower chair; wide design with

anti-tilt protection

The Halesworth chair, with which our patients are

integrated into unit life, can be ordered directly from the

manufacturer:

Kirton Healthcare Group Ltd.

23 Rookwood Way, Haverhill

Suffolk, CB9 8PB, England

Phone +44 (0) 1440 705352

Fax: +44 (0) 1440 706199

Web: www.kirton-healthcare.co.uk

E-Maill: info@kirtonhealthcare.demon.co.uk

Detailed product information may be obtained by fol-

lowing the “Adult Seating” link.

Parkplätze

Bräuhausstr.

Veldener Straße

Bräu

haus

str.

Parkplätze

Park

plät

ze

Haus 3a

Haus 2

Haus 1

Haus 4

Haus 4a

Haus 6/6a

Haus 5

Haus 7

Haus 8

Haus 34

Haus 32

Haus 31

Haus 33

Haus 9Haus 10

Haus 11

Haus 18

Haus 19

Haus 17

Haus 12

Haus 14

Haus 15Haus 16

Haus 13

Gutshof Gutshof

Wasserschloss

Haus 3b

Map of the grounds

16 17

Service

A subsequent model was developed under the name Omega (06/04).

Contacting Kirton is very easy. Via email, for example, you can enquire how production

is progressing or find out when delivery will occur. The chair costs around €1,700 and an

additional fleece cover about €150 (as of 02/04). A recommendation from the treat-

ing physician, who prescribes this chair as a medical aid (in the sense of taking part in

community life, stabilisation of drug treatment to prevent falls etc.), is advantageous for

obtaining reimbursement from the health insurers. Please note that the chair is (still) not

contained in the catalogue of recognised medical aids. The NRW as well as the Bavar-

ian State Associations of Deutsche Huntington-Hilfe (German Huntington Help) have

purchased a few chairs to be loaned out. Please contact the DHH centre in Duisburg

(?0203-22915) to enquire about current availability and terms and conditions.

Some health insurance providers have however already approved the chair in the contest

of individual claims settlements (we know of two grants for use in the home and one for

use during hospitalisation – as of 02/04).

On request, we will send you information documents about the chair, a sample order fax

as well as some helpful arguments to use when applying to the health insurers. If you

have any questions regarding this, please call us on ??08084 934-242.

For patients with severe motor restlessness we recom-

mend padding around the bed and, if necessary, the

toilet and washing area. Here we like to work with one

of the local interior decorators. Please contact us for

more details.

On the left: Examples of padding

Supplementary dietThe increased calorific requirements due to Huntington’s disease must be met. A bal-

anced vitamin- and nutrient-rich diet is important. If a conventional diet is insufficient or

if a PEG feeding tube has been inserted, we recommend a liquid supplementary diet. If

necessary, the doctor will attest to the increased calorific requirements of our inpatients

and outpatients and will inform the relevant health insurer about the supplementary diet

(e.g. Fresubin® and Nutrison®).

Persons currently making claims for assistance with living costs may be granted an ad-

ditional greater needs payment (§ 23 (4) BSHG · German Federal Social Security Act).

On the Huntington Zentrum’s website you will find sample forms, which you can discuss

with a doctor you trust.

Advising institutions (in-house training and shadowing)Often there are uncertainties about the clinical picture, about dealing with the behav-

iours of patients or regarding nursing care. We want to bring you closer to our philoso-

phy of “If it helps it’s allowed” and, upon request, we can offer you in-house training in,

for example, using behavioural therapy to deal with individual behaviours or in the key

points of nursing care. We request the current terms and conditions from the unit man-

ager, Mr. Limpert, on Phone +49 8084 934-242. He has already given presentations in

many institutions. We are pleased to arrange in-house observation/shadowing sessions

for institutions. Here you will learn about the operation of the unit and, on request, get

to know the treatments offered. On request, and at a cost, we can reserve a room in the

staff accommodation block for you.

Rooming-in/overnight accommodationWhen medically indicated and when the costs are met by the appropriate health insurer,

family members can be accommodated in the patient’s room. There is an apartment avail-

able for family members from overseas in the staff accommodation block adjacent to the

clinic. Please contact our staff member, Mrs Geilersdorfer, (Phone +49 8084 934-319) to

inquire about the current price of accommodation (bed and breakfast; direct payers).In

addition, the tourist information office in Erding (Phone +49 8122 558488) can provide

information about accommodation in the local area.

More information

Service 18 19

A-Z of Services

Apartment for accompanying personsOvernight accommodation during visits;

please ask for the currently valid room

price (B&B, direct payers)

Occupational therapyWorkshop facilities with materials includ-

ing fabric/sewing, handicrafts, ceramics,

wood, metal, leather and paper; life skills

training (cooking and shopping training);

out-group, newspaper group;

Handicrafts available: masonry, garden-

ing, painting, electrician, metalworking,

dispatcher and catering

ErgotherapyCognitive stimulation, perception training,

coordination as well as practical life and

social skills, orientation training, writing

and endurance exercises, practising

behavioural sequences

Cognitive trainingTraining of attention, concentration,

learning and memory skills as well as

skills in planning and taking action

PhysiotherapyPhysiotherapy focuses on training of pos-

tural control, balance and coordination

training and learning falling techniques.

In the advanced stages of the illness, the

therapy concentrates on tonus regula-

tion, respiration therapy and relaxation.

Various concepts and techniques are used

in the treatments, for example, Bobath,

Hanke E-technique, Schaarschuch-Haase

releasing therapy, McKenzie and FBL

Art therapyStimulation of individually tailored

creative development; mediation of non-

verbal expression; stimulation through

colours and shapes; introspection stimu-

lus; art therapy biography work

Speech therapyTraining of voice and speech functions,

optimisation of the respiratory, phonation

and articulation functional circuits;

Treatment of chewing and swallowing

disorders

Music therapyTargeted training of communication abil-

ity through the medium of music; music-

therapy-based relaxation options promote

self-awareness and the ability to relax;

expression of one‘s own feelings through

the instruments used

Psychological supportPsychotherapy offered in individual and

group sessions for coping with disease,

promoting and acquiring skills, improving

psychosocial skills;

use of relaxation techniques, e.g. auto-

genic training and muscle relaxation;

Neuropsychological diagnosis;

Preparation of behavioural therapy plans

Rooming-inFor relatives upon request when cost are

met by heath insurance company

Pastoral care (on request)Help with coping with illness; personal

assistance with feelings, questions and

doubts

Social counsellingWith assessment of the social case his-

tory, motivational work and, if necessary,

arrangements for continuing treatments;

social counselling (Spectrum); disabled

person’s pass, workplace counselling,

e.g. attempts at reintegration, help with

claiming pensions, planning continuing

care (meals on wheels), day care, care

facilities;

Advice to institutions about clinical pic-

ture and cover for medical aids

Sports therapyObjectives: maintaining and improving

physical well-being; training of circulatory

and respiratory function, mobility, body

posture and balance; Increase in social

contacts depending on disease stage

Methods: stretching exercises, swimming,

apparatus fitness training, posture exer-

cises and lifting exercises while sitting on

exercise mats and passive exercises

A-Z of Services A-Z of Services 20 21

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Therapy Timetable Ward Contacts

| Phone

Prof. Matthias Dose is the hospital’s medical director and

is a psychiatrist and psychotherapist. He is spokesman on

the scientific advisory board for Deutsche Huntingtonhilfe

(German Huntington Help) as well as a member of the World

Federation of Neurology’s Huntington research group.

| +49 8084 934 212

Dr. Ralf Marquard, senior physician and psychiatrist | +49 8084 934 307

Ward physician | +49 8084 934 305

Psychological care | +49 8084 934 449

Limpert Roy, unit management

(Mon, Wed and Fri from 12:30 – 1:00 p.m.)

| +49 8084 934 242

Social counselling | +49 8084 934 269

| or +49 8084 934 242

For outpatient clarification and consultation,

our institutional outpatient department is available

| +49 8084 934 455

WebsitesPlease visit the hospital’s website | iak-kt.de

Please send us an email should you have any questions

or comments: | huntington.station@iak-kt.de

Please also visit the Deutsche Huntingtonhilfe | dhh-ev.de

(German Huntington Help), where you will find other links

to websites in English.

You can obtain up-to-date scientific information at | www.hdbuzz.net

22 23

© k

bo-IA

K KT

Apr

il 20

12

kbo-Isar-Amper-Klinikum Taufkirchen (Vils)Huntington-Zentrum-Süd (unit N1)

Bräuhausstraße 5

84416 Taufkirchen (Vils)

Germany

Phone | +49 8084 934 242

Fax | +49 8084 934 510

E-Mail | huntington.station@iak-kt.de

Web | iak-kt.de

Web | huntington-sued.de

Bank details: Bank für Sozialwirtschaft | Sort code: 700 205 00 | A/C no.: 8 890 400

Kreis- und Stadtsparkasse Erding-Dorfen | Sort code: 700 519 95 | A/C no.: 200 535

Authors:Prof. Matthias Dose is the hospital’s medical director and is a psychiatrist and psycho-

therapist. He is spokesman on the scientific advisory board for Deutsche Huntingtonhilfe

(German Huntington Help) as well as a member of the World Federation of Neurology’s

Huntington research group.

Rudolf Dengler (BBA) – nursing manager and long-standing unit manager of the

Huntington Centre.

Carsten Rapsch – the unit’s former graduate social pedagogue.

Michele Schuierer – unit manager of the Huntington Centre from 2005 – 2010.

Roy Limpert – unit manager of the Huntington Centre.

Monika Lackner – nurse and Basal Stimulation® specialist.