Embed Size (px)
Citation preview
HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington’s disease care and research.
HDSA currently has 29 Centers of Excellence across the United States. At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.
To locate an HDSA Center of Excellence near you please visit www.hdsa.org/coe.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families.
HDSA was founded in 1968 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications in 1967 when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.
Contact UsPhone: (800) 345-HDSA
Email: [email protected]: www.hdsa.org FAMILY IS
everything
CONTACTING A
SOCIAL
(800) 345-HDSA I
What is a Social Worker?Your first call…A social worker is a healthcare professional that seeks to improve the quality of life and well-being of individuals, families, groups and communities through direct practice, research, teaching and addressing everyday problems for the benefit of those affected by Huntington’s disease.HDSA social workers are hired either by an HDSA Center of Excellence or by an HDSA Chapter or Affiliate.All HDSA social workers are licensed in social work and ready to assist you and your family with your needs.
To locate social workers in your area please visit www.hdsa.org/sw.
General Questions
Where is the closest support group?
What can I expect at a support group?
How can a support group help me?
How can I find local resources?
How does one inherit the HD gene?
What does it mean to be at-risk for HD?
Where can I get genetic testing and what can I expect?
How can I find my local HDSA Chapter or Affiliate?
How do I get involved in advocacy?
Where can I learn more about research?
How to sign up for clinical trials?
How do I find a doctor with HD knowledge?
Visit www.hdsa.org to find support groups,
publications, caregiver info,research news & much
more!
A Social Worker can help you with:
In-services for the long term care facility or home health agency caring for your loved one with HD
Locating local resources & mental health services in your community
Finding your local health and human services office
Applying for disability Accessing clinical trials
for HD Identifying options for
long term care placement Explain Advanced
directives, POA, Health proxy
Hospice/palliative care services
End of life issues
