HappyAirfor ChronicRespiratory Disease

Registered in EIP AHA Integrated Care B3 Action Group

EducaxAirPara pacientesrespiratorios crónicos

Proyecto Educaxair dentro del EIP AHA Integrated Care B3 Action Group

1. Lovexair and Industry

- Our vision- Our team- Our ICT partner- Our partnering network- Connected with partners priorities- Our heritage with Industry, Pharrma &

established projects

2. Service Model: HappyAir

- What is & Where is HappyAir now?- When & Where?- HappyAir: areas of engagement- HappyAir in each stage

- FAQs

INDEX

1. Lovexair and Partners

OUR VISION

The Foundation actively participates and is working focused on the 2020 strategy, helping to supply solutions and tools to improve health and quality of life for people with chronic respiratory disease. We are working for the community affected which includes: patients, familymembers, care-givers, doctors and healthcare professionals who are interested in new roles in m-health care.

Lovexair aims to complement the healthcare services from a patients perspective, reinforcing areas that need closer attention. The challenge is to implement a strategy that supports the medical profession through programs and activities developed for different stages in the detection, prevention and management of respiratory disease.

Generate value in chronic -care: respiratory diseaseGenerate value in chronic -care: respiratory diseaseEIP Active & Healthy AgeingEIP Active & Healthy AgeingFP7/Horizons2020FP7/Horizons2020

OUR TEAM• CEO & FounderShane Fitch established Lovexair Foundation to offer umbrella support to the community affected by respiratory

disease (patients, care-givers and healthcare professionals). Works transversally in international networks (EIP AHA, Alpha-1 & COPD Global, the PAC of the ELF/ERS & the European COPD Coalition).

● Institutional Relations & Media Rosa Siles Moreno amongst other posts, has served as Director Institutional Relations in the Ministry of

Health, Social Services and Gender Equality & as an advisor to vice-presidential government dept. .Natalia Quintela has more than 10 years experience in communications in various sectors: finance, tourism,business.

& event organization, nationally & internationally in the healthcare sector.

• PhysiotherapistsJordi Vilaró & Begoña Jiménez: support researchers; Eva Maroto, Raúl Escudero,Anna Ferrán & Cecilia

Fueyo: physiotherapists specialised in cardio respiratory, pediatric and occupational therapy.

• IT DepartmentAurora Ferrándiz: advisor and expert in ICTs & Integral solutions for Healthcare providers, has participated in the

definition, production and operation for a wide variety of IT projects in Telecoms, Electronic & Administration.

• Communication Department Leonor Pérez ,Victor Gascón & Jose María Barandarián: consultants specialised in business & Institutional

communication, media and social networks, graphic design- supporting organisations in the healthcare sector.

Lovexair also relies on the expert guidance of members in their Advisory Board & Patient Advisory Group.

For the platform and m-solution we have been workingwith Persei Healthcare in Spain. Their experience inIT health, trusted networks, choice of arquitecture,security, ecosystems and vision for m-Health with patient participation fitted with our requirements.

Persei Apps facilitate the patient follow-up,support the physician in decision-makingprocesses & allows for improved managementof each pathology through educational Programs and Big Data algorithms.

MOBILE HEALTH:

OUR ICT PARTNERSPECIALISTS IN e-HEALTH SOLUTIONS

CONNECTED WITH

PARTNERS’ PRIORITIES

We want to make a significant impact on healthcare delivery with patient centricity:

• Providing solutions and co-creating innovative m-Health products to prevent and help to improve the quality of life and wellness of those affected by respiratory diseases.

• Supporting healthcare professionals and public services, collaborating with industry to provide low-cost solutions for this community.

• Creating awareness in Society, expanding health education to empower patients and offering other solutions close to home, in the community, for people affected by chronic disease.

OUR HERITAGE WITH

INDUSTRY, PHARMACIES & ESTABLISHED PROJECTS

Identifying patients with COPD in Primary Care Centres in the IDEPOC Campaign

• Co-design and development for a nationwide education campaign to raise awareness, build an informed network of educators to support families and deliver materials to improve diagnosis and management in children with asthma.

• Sharing HappyAir program across patient organization networks to encourage best practices and help support newly developing organizations who may benefit from shared resources and disease-management tools, understanding ethics, patient engagement and future clinical benefits in the m-health era.

• Raising awareness internationally in COPD through the 1st Global Summit held in Spain. Aim to improve understanding of the impact of lung disease, build patient leadership capabilities, connect with KOLs and partnership networking across the international community in new countries across the globe.

• Raising awareness in Pharmacy networks for spirometry testing, education on disease management, and support training to improve outreach to local communities affected by respiratory disease.

2.Service Model:

HappyAir

A new web-based service which enables:

• Patients to share their progress or outcomes with their clinician and educator/coach

• Clinicians to make quicker decisions regarding care pathway priorities/interventions

• Patients to be more involved in their care, make more informed choices and enhance adherence levels

• Our partners’ network to support the healthcare system, improving safety, reducing costs and aiding in the delivery of better chronic care management

•Future R&D resource base based on clinical data input by patients for patients with their consentment

WHAT IS

HAPPYAIR?

• Portfolio of education materials + training manual for educators ( in production) ✔

• Dedicated micro-web with access to information on the service, downloadable education materials +app, communication amongst the community of users (soft launch) �

• Training program for first-wave of educators drafted✔

• Contactcenter solution for tele-care guidance due for launch 2016-2017✔

• IT solution for clinical study in 3 leading Hospitals in Madrid & App (betaversion in progress) �

• Clinical study launched February 2016. First phase results due November 2016

• Program ready to implement in regional pilots + engaging partnering with pharmacy network +HCP support ✔

We will begin to offer the service directly to users in 2017 and are now looking for partners for scaling-up the service.

WHERE IS

HappyAir NOW?

Begoña Jiménez Reguera(principal researcher: Doctorate)Qualified in Physiotherapyspecialised in respiratory careTeacher in University CEU San Pablo , Madrid

Jordi Vilaró Casamitjana(Director of the Thesis)Qualified in Physiotherapy, specialised in Respiratory CareResearcher in Pulmonary Rehabilitation & Resp. Physiotherapy & ICTsTeacher at University of Ramón Llull , BarcelonaCoordinator SEPAR

Eva Maroto López(Fundación Lovexair)Qualified in Physiotherapy, specialised in Respiratory

RESEARCH TEAM

STRUCTUREControl GroupConventional rehab programRotuine controls post-rehab

Intervention groupConventional RehabHappyAir program presential & virtual complementary to rehabMonitoring using the Lovexair App & Educator serviceRoutine controls post-rehab

CENTRESHospital Universitario Fundación Jiménez Díaz (Madrid)Pulmonary PhysicianDr. Luis Seijo MacíasRehab teamDra. Gloria Bermejo Fernández

University Hospital La Princesa (Madrid)Pulmonary PhysicianDr. Julio Ancochea & Emma Vázquez, Masters (resident)Rehab team

Hospital Clínico San CarlosPulmonary Physician: Dr Miriam Callé

Hospital XII de Octubre (Madrid)Pulmonary PhysicianDra. Virginia PérezRehab teamDra. Lourdes Juarros & Marta Sánchez

OBJECTIVES• Monitor adherence in patients using ICTS & App who have

received a rehab and education program based on HappyAir model and using HappyAir platform

• Evaluate if use of ICTS in the service model of HappyAir improves patients adherence to a daily care plan post rehab and lengthens the positive effects by receiving this service.

MEASURABLE VARIABLES• Adherence. Physical Capacity-Building. • Reduced Number exacerbations & Quality of Life• Quality of Life

WHEN & WHERECLINICAL STUDY AND POST-PILOT SERVICE DELIVERY

HappyAirA COMPLEMENTARY SERVICEAREAS OF ENGAGEMENT

Direct communication via educatornetwork +platform+telecare supportallows more effective and efficientpatient self-management

CARE SUPPORTIN EACH STAGE

Generate value in chronic -care: respiratory disease EIP Active & Healthy Ageing FP7/Horizons2020

HC professionals candesign & deliver specificprevention programs via theplatform+ educator network

Prevention

Education

Educators + care-givers guide patient in personalprogram with disease specifics: presential + virtual, workshop Sessions, home-visits, tele-care services + CRM tools

Self-care management

Improved clinical care

Monitoring & Follow-up

Improves integral treatment & medication capabilities across chronic-disease, comorbidities and diagnosis specifics. Gives a better picture of the patients’ overall health status.Enables new therapies+treatment interventions

Direct access to patient activity. Interconnected HC professionals & educators for better patient evaluation, feedback and adjustment on specific programs.Doctor’s recommendations to improve response to patient events.

FAQsHOW DOES HappyAir HELP YOU?

• HappyAir offers a service which benefits patients in their disease management through a structured network of healthcare professionals to provide real-time data on patient outcomes in self-management & biomonitoring

• Partnering with IT Companies expert in clinical data management facilitates the data collection and storage to contribute to a pool of high quality data for BigData analysis supported by additional research advice+ education in the patient environment through the educator network.

• Benefits insights of this real time data in an anonymised format in line with data protection regulations

NEUTRALITY: WHY USE OUR PLATFORM?

• We can bridge the gap that exists between the patient community with healthcare authorities public and private, HCP and third parties in different industries to ensure the communication and engagement with patients is:

transparent appropriate satisfies ethical standards in codes on conduct brings about positive results for all – mutual benefit