From Information to Action: Using an From Information to Action: Using an Interactive Website to Access Data Interactive Website to Access Data from the National Survey of Children’s from the National Survey of Children’s HealthHealth

Christina Bethell, Ph.D.Christina Bethell, Ph.D.The Child and Adolescent Health Measurement InitiativeThe Child and Adolescent Health Measurement Initiative

What is the Data What is the Data Resource Center?Resource Center?

A website that delivers:A website that delivers:

– Hands-on, user-friendly accessHands-on, user-friendly access to national, to national, state and regional state and regional datadata from the 2001 NS- from the 2001 NS-CSHCN and the 2003 National Survey of CSHCN and the 2003 National Survey of Children’s Health (NS-CH)Children’s Health (NS-CH)

– Technical assistanceTechnical assistance by email/telephone and by email/telephone and onlineonline materials, such as examples of data materials, such as examples of data use by states and links to related websitesuse by states and links to related websites

– Education Education -- thru e-updates, e-facts & in- -- thru e-updates, e-facts & in-person, telephone, and online workshopsperson, telephone, and online workshops

What are the What are the Data Resource Data Resource Center goalsCenter goals??

• Provide centralized, user-friendly Provide centralized, user-friendly interactive access to standardized interactive access to standardized national survey findingsnational survey findings

• Build common knowledge, Build common knowledge, capacity, and passion for using capacity, and passion for using data to stimulate and inform data to stimulate and inform system change locally and system change locally and nationallynationally

Nat. Survey of Children’s Health

HOMEPAGE

www.nschdata.org

Data Resource Center for Child & Adolescent Health

www.childhealthdata.org

Nat. Survey of Children w/ Special Health

Care NeedsHOMEPAGE

www.cshcndata.org

What features What features are available?are available?

• LearnLearn about the surveysabout the surveys

• Search and compareSearch and compare national, state, national, state, and regional survey results for subgroups of and regional survey results for subgroups of children (age, race, sex, income, insurance children (age, race, sex, income, insurance and health status, etc.) and health status, etc.)

• Get resourcesGet resources and idea on how to and idea on how to report your findings in a valid and report your findings in a valid and effective mannereffective manner Get expert helpGet expert help – by – by e-mailing us your questions, plus get links to e-mailing us your questions, plus get links to other data sets and resourcesother data sets and resources

What other What other features are features are available?available?

• DownloadDownload cleaned, labeled state-cleaned, labeled state-specific national survey datasets with specific national survey datasets with pre-constructed indicators and pre-constructed indicators and additional variables (SAS & SPSS)additional variables (SAS & SPSS)

• Sign up Sign up for regular e-updates and “e-for regular e-updates and “e-facts”facts”

• Find out Find out about and access the latest about and access the latest publications, reports & abstracts using publications, reports & abstracts using the national survey datathe national survey data

Data Search Data Search “RECIPE”“RECIPE”

SELECT GEOGRAPHIC AREA of interest

(e.g. State, HRSA region, Nation)

STEP 1

A) SELECT a TOPIC

B) SELECT a QUESTION within topic area

C) Click “Next” to view RESULTS

Click “COMPARE SUBGROUPS” to

compare results for selected question

STEP 2

STEP 3

Click on “COMPARE STATES” to compare results w/

another STATE or REGION

Click on “COMPARE STATES” to compare results w/

another STATE or REGION

OPTIONAL STEP

OPTIONAL STEP

Thinking about ways data Thinking about ways data could be usedcould be used

• Identifying/documenting needsIdentifying/documenting needs– How many children in your state have what How many children in your state have what

needs?needs?– How does data support what you’re hearing How does data support what you’re hearing

from the field (providers, families, other from the field (providers, families, other agencies)?agencies)?

• Building partnershipsBuilding partnerships– What partners could use this data: Public What partners could use this data: Public

Programs, Health plans, Hospitals, Providers, Programs, Health plans, Hospitals, Providers, community groups, faith based community groups, faith based organizations?organizations?

– How can you share data to support common How can you share data to support common efforts, improve care?efforts, improve care?

Additional ways data might be Additional ways data might be used:used:

• Educating PolicymakersEducating Policymakers– What are key policy issues for your state ?What are key policy issues for your state ?– What programs need what information?What programs need what information?– What data could help them learn about child What data could help them learn about child

health needs?health needs?

• AdvocacyAdvocacy– Are there key pressure points in program Are there key pressure points in program

budgets or priorities coming up?budgets or priorities coming up?– What methods would be most effective in What methods would be most effective in

presenting your case? presenting your case? – How could you use data in Fact Sheets, How could you use data in Fact Sheets,

Testimony, the media, along with family Testimony, the media, along with family stories?stories?

• Grant Writing Grant Writing – How can you use data to strengthen your How can you use data to strengthen your

proposal?proposal?

Visit soon!Visit soon!

• National Survey of Children with Special National Survey of Children with Special Health Care NeedsHealth Care Needs

www.cshcndata.org

• National Survey of Children’s HealthNational Survey of Children’s Health

www.nschdata.org