FONDATION RENÉ TOURAINE

Improving the quality of health care for psoriatic patients

Developing national and international collaborations in the field of psoriasis

Members of the Psoriasis International Network Committee,From left to right:

C. Paul (France), L. Naldi (Italy), M. Bagot (France),C. Griffiths (UK), L. Kemeny (Hungary), T. Luger (Germany), L. Puig (Spain).

Hôpital Saint-Louis - Pavillon Bazin Tel: +33 (0)1.53.72.20.80 email: weboffice@psoriasis-international.org1, avenue Claude Vellefaux Fax: +33 (0)1.53.72.20.61 websites: www.fondation-r-touraine.org and www.psoriasis-international.org

75010 Paris France Join us on and

F O N D AT I O N R E N É T O U R A I N E

FONDATION RENÉ TOURAINE PSORIASIS INTERNATIONAL NETWORK

BoarD oF DIrecTorS

The Fondation René Touraine is supervised by a Board of Directors.This Board decides on overall strategy and budget.

president: l. Dubertret (France)General Secretary: a. Touraine (France)Treasurer: p. choël (France)

rightful members:

• Representative of the French Ministry of Home Affairs

• Representative of the French Ministry of Health

• Representative of the French Ministry of Higher Education and Re-search

• Representative of the General Director of the Assistance PubliqueHopitaux de Paris (Parisian hospitals)

members chosen for their competence in the fields related to theFoundation’s activities:

• Representative of the ESDR: M. Gilliet (Switzerland)

• Representative of the EADV: E. Tschachler (Austria)

representatives of the Founders:

• Prof. L. Dubertret

• A relative of Prof. R. Touraine

• One representative of a founding pharmaceutical industry

• One representative of a founding cosmetic industry

ScIenTIFIc BoarD

The Scientific Board decides to which candidates the Fondation RenéTouraine’s fellowships are awarded, as well as the organisation of theother scientific activities of the Fondation René Touraine.

president: I. leigh (uK)president-elect: T. luger (Germany)General Secretary: G. Tappeiner (austria)

psoriasis International network committee:president: C. Paul (France)president-elect: L. Naldi (Italy)members: M. Bagot (France), C. Griffiths (UK), L. Kemeny (Hungary), T. Luger (Germany), L. Puig (Spain)

Genodermatoses committee:president: J. Bauer (Austria)president-elect: C. Bodemer (France)members: L. Bruckner-Tudermann (Germany), A. Hovnanian (France),M. Jonkman (The Netherlands), S. Karpati (Hungary), I. Leigh (UK), J. Mellerio (UK), H. Traupe (Germany), G. Zambruno (Italy)

e-Dermatology portal committee:president: S. Aractingi (France)president-elect: P. Filipe (Portugal)members: L. Borradori (Switzerland), N. Dupin (France), M. de Rie (The Netherlands), G. Tappeiner (Austria)

FOUNDERS’ ASSEMBLY

The Fondation René Touraine is advised by the Founders‘ Assembly, gathering the industries who contributed to the Fondation René Touraine’sendowment. The Assembly is responsible for enlarging Fondation René Touraine’s influence sphere.

ABBOTT, BOOTS HEALTHCARE, CHANEL, FONDATION LEO, GALDERMA INTERNATIONAL, JANSSEN-CILAG, LABORATOIRES BAILLEUL, LABORATOIRES

BERGADERM, LABORATOIRES PIERRE FABRE, LABORATOIRES ROCHE, LABORATOIRES SÉROBIOLOGIQUES, LA ROCHE POSAY LABORATOIRE,

PHARMACEUTIQUE, L’ORÉAL, L.V.M.H., PFIZER, SCHERING-PLOUGH.

C. Paul

L. Naldi

SupporTInG TherapeuTIc proGreSSIn DermaToloGy

. Better assessing the patient needs

. Fostering health care networks to improve dermatological care

. Developing continuing medical education

. Fostering clinical and therapeutic research

who are we ?

. an international non-governmental, non-profit organization founded in 1991

. In memory of rené Touraine, who was at the origin of clinical and therapeutic dermatological research in France

. Gathering the instigators of the therapeutic progress in dermatology: dermatologists, researchers, patient associations, pharmaceutical and cosmetic industries and health authorities

F O N D AT I O N R E N É T O U R A I N E

FONDATION RENÉ TOURAINE PSORIASIS INTERNATIONAL NETWORK

F O N D AT I O N R E N É T O U R A I N E

FONDATION RENÉ TOURAINE PSORIASIS INTERNATIONAL NETWORK

The BurDen oF pSorIaSIS: a GloBal healTh challenGe

Psoriasis is a chronic inflammatory skin disease affecting 1 to 3% of the world population. It canbe very impairing and painful for the daily life of the patients. Other than the aching and the itching, psoriasis has often an impairing impact over the quality of life, bringing about frequentstigmatisation and social rejection, which is dreadfully experienced by the patients. Joints can bepainfully affected in a quick and impairing way, adding to the social handicap a functional handicap.Multiple co-morbidities are associated with psoriasis: hypertension, blood lipid increase, diabetes,fatty liver, arteriosclerosis, heart attack.

Many treatments exist but there is a diversity of clinical cases and of therapeutic strategies. Thedifficulty is to match the best treatment to the needs of the individual patient. To do so, centresof expertise on psoriasis have to be created and developed at both local and global levels, inorder to gather all the health professionals involved in psoriasis. That is why efforts should becontinued to foster a better health care for psoriatic patients, adapted to each economic and social context.

To help psoriatic patients from all over the world, the Fondation rené Touraine initiated in 2005the psoriasis International network.

how To SupporT The pSorIaSIS InTernaTIonal neTworK

a STraTeGIc place For coSmeTIc anD pharmaceuTIcal InDuSTrIeS wIllInG To upGraDe TheIr InvolvemenT In DermaToloGy

• The pIn congress: the perfect place to meet practitioners and experts on psoriasis from all over the world

• pIn: a great opportunity to support international therapeutic and clinical research in the field of psoriasis

• Tax Deduction: The status of public utility foundation gives right to a tax deduction of 60 % of the donation amount within a limit of 5 per 1000 of the company’s turnover, with the possibility of carrying forward over 5 years in case of deficit.

FOR PRIVATE DONATIONS

→ Help us save our skin !

Tax Deduction: Accordingto the French law, the status of public utilityfoundation gives right to a tax deduction of 60 % of the donation.

ToolS

a . FoSTer The DevelopmenT oF ThemaTIc pSorIaSIS ouTpaTIenT conSulTaTIonS In DermaToloGy DeparTmenTS all over The worlD

B . Develop naTIonal anD reGIonal pSorIaSIS neTworKS BeTween proFeSSIonalS, paTIenTS anD FamIlIeS

acTIonS

FoSTerInG ThemaTIc ouTpaTIenT conSulTaTIonS

→ In order to develop specific care as well as clinical and therapeutic research, it is necessary to be able to spend some time with each patient.

→ This is nearly impossible in classical polyvalent outpatient clinics. → Thus, it seems very useful to organise specific consultations for psoriasis in each department of dermatology. By this way, it is possible to talk with the patients, to fill in surveys, to initiate clinical and therapeuticresearch projects, to test new drugs and to develop clinical guidelines.

1 reGIonal conGreSS BeTween every InTernaTIonal conGreSS2012: 1st Latin American Congress of Psoriasis from November 29 to December 2, 2012 in Buenos Aires, organised by SOLAPSO - Latin American Society of Psoriasis

→ Psoriasis-International Network gathers 95 countries, of which 49 are registered on the website: • 32 patient associations + major patient federations (IFPA, EUROPSOand LATINAPSO);• 31 medical groups + 18 SOLAPSO countries (Latin American Societyof Psoriasis).

reGIonal pSorIaSIS neTworKS → SolapSo - gathering 18 Latin American countries→ pso maghreb - Algeria, Morocco, Tunisia→ psorasia-mD - Philippines, Malaysia, Singapore→ west-african psoriasis Group - gathering 11 countries → a pan-arab network on psoriasis is being developed in partnershipwith the PALD (Pan-Arab League of Dermatologist).

acTIonS

pSorIaSIS InTernaTIonal neTworK SurveyS

→ To learn more about the needs of the patients

• 1st survey in 2011 on the national organisation of psoriasis-related activities: answers from 50 countries

• 2nd survey in 2012 on the usage of methotrexate in the treatment of psoriasis: 490 answers from 65 countries

• 3rd survey in 2013 on the services provided to psoriatic patients available in dermatology departments

newSleTTerS & «FocuS on»

→ 4100 dermatologists and patient representatives receive our newslettersand Focus On.

every 3 yearS an InTernaTIonal conGreSS on pSorIaSIS

→ Main psoriasis congress in the world focusing on the practitioners

→ Special emphasis on the daily medical practice

→ Opportunity for national and regional psoriasis networks to exchange ontheir works

PSO 2007: 1013 participants from 65 countries, organised by the FrenchPsoriasis Group

PSO 2010: 1482 participants from 81 countries, organised by the GermanPsoriasis Group

PSO 2013: 4-7 July at Palais des Congrès, organised by PSONET - European Psoriasis Registries Network

plaque psoriasis

The 3rd Congress of the Psoriasis International Network - PSO 2010, organised by the German Psoriasis Group, was attended by almost 1500 participants from 80 different countries.

Goal 1

aT The local anD reGIonal levelS

IMPROVE THE QUALITY OF HEALTH CARE FORPSORIATIC PATIENTS AND THEIR ACCESS TO QUALITY SkIN CARE

ToolS

a . Develop an acTIve neTworK ThaT BrInGS ToGeTher DermaToloGISTS, paTIenT aSSocIaTIonS, InDuSTrIeS anD puBlIc healTh auThorITIeS

B . propoSe TopIcS oF reSearch In The FIelD oF pSorIaSIS

Goal 2

aT The GloBal level

PROMOTE INTERNATIONAL COLLABORATIONSTO DEVELOP CLINICAL AND THERAPEUTIC

RESEARCH IN THE FIELD OF PSORIASIS

www.pSorIaSIS-InTernaTIonal .orG (enG)

F O N D AT I O N R E N É T O U R A I N E

FONDATION RENÉ TOURAINE PSORIASIS INTERNATIONAL NETWORK

F O N D AT I O N R E N É T O U R A I N E

FONDATION RENÉ TOURAINE PSORIASIS INTERNATIONAL NETWORK

The BurDen oF pSorIaSIS: a GloBal healTh challenGe

Psoriasis is a chronic inflammatory skin disease affecting 1 to 3% of the world population. It canbe very impairing and painful for the daily life of the patients. Other than the aching and the itching, psoriasis has often an impairing impact over the quality of life, bringing about frequentstigmatisation and social rejection, which is dreadfully experienced by the patients. Joints can bepainfully affected in a quick and impairing way, adding to the social handicap a functional handicap.Multiple co-morbidities are associated with psoriasis: hypertension, blood lipid increase, diabetes,fatty liver, arteriosclerosis, heart attack.

Many treatments exist but there is a diversity of clinical cases and of therapeutic strategies. Thedifficulty is to match the best treatment to the needs of the individual patient. To do so, centresof expertise on psoriasis have to be created and developed at both local and global levels, inorder to gather all the health professionals involved in psoriasis. That is why efforts should becontinued to foster a better health care for psoriatic patients, adapted to each economic and social context.

To help psoriatic patients from all over the world, the Fondation rené Touraine initiated in 2005the psoriasis International network.

how To SupporT The pSorIaSIS InTernaTIonal neTworK

a STraTeGIc place For coSmeTIc anD pharmaceuTIcal InDuSTrIeS wIllInG To upGraDe TheIr InvolvemenT In DermaToloGy

• The pIn congress: the perfect place to meet practitioners and experts on psoriasis from all over the world

• pIn: a great opportunity to support international therapeutic and clinical research in the field of psoriasis

• Tax Deduction: The status of public utility foundation gives right to a tax deduction of 60 % of the donation amount within a limit of 5 per 1000 of the company’s turnover, with the possibility of carrying forward over 5 years in case of deficit.

FOR PRIVATE DONATIONS

→ Help us save our skin !

Tax Deduction: Accordingto the French law, the status of public utilityfoundation gives right to a tax deduction of 60 % of the donation.

ToolS

a . FoSTer The DevelopmenT oF ThemaTIc pSorIaSIS ouTpaTIenT conSulTaTIonS In DermaToloGy DeparTmenTS all over The worlD

B . Develop naTIonal anD reGIonal pSorIaSIS neTworKS BeTween proFeSSIonalS, paTIenTS anD FamIlIeS

acTIonS

FoSTerInG ThemaTIc ouTpaTIenT conSulTaTIonS

→ In order to develop specific care as well as clinical and therapeutic research, it is necessary to be able to spend some time with each patient.

→ This is nearly impossible in classical polyvalent outpatient clinics. → Thus, it seems very useful to organise specific consultations for psoriasis in each department of dermatology. By this way, it is possible to talk with the patients, to fill in surveys, to initiate clinical and therapeuticresearch projects, to test new drugs and to develop clinical guidelines.

1 reGIonal conGreSS BeTween every InTernaTIonal conGreSS2012: 1st Latin American Congress of Psoriasis from November 29 to December 2, 2012 in Buenos Aires, organised by SOLAPSO - Latin American Society of Psoriasis

→ Psoriasis-International Network gathers 95 countries, of which 49 are registered on the website: • 32 patient associations + major patient federations (IFPA, EUROPSOand LATINAPSO);• 31 medical groups + 18 SOLAPSO countries (Latin American Societyof Psoriasis).

reGIonal pSorIaSIS neTworKS → SolapSo - gathering 18 Latin American countries→ pso maghreb - Algeria, Morocco, Tunisia→ psorasia-mD - Philippines, Malaysia, Singapore→ west-african psoriasis Group - gathering 11 countries → a pan-arab network on psoriasis is being developed in partnershipwith the PALD (Pan-Arab League of Dermatologist).

acTIonS

pSorIaSIS InTernaTIonal neTworK SurveyS

→ To learn more about the needs of the patients

• 1st survey in 2011 on the national organisation of psoriasis-related activities: answers from 50 countries

• 2nd survey in 2012 on the usage of methotrexate in the treatment of psoriasis: 490 answers from 65 countries

• 3rd survey in 2013 on the services provided to psoriatic patients available in dermatology departments

newSleTTerS & «FocuS on»

→ 4100 dermatologists and patient representatives receive our newslettersand Focus On.

every 3 yearS an InTernaTIonal conGreSS on pSorIaSIS

→ Main psoriasis congress in the world focusing on the practitioners

→ Special emphasis on the daily medical practice

→ Opportunity for national and regional psoriasis networks to exchange ontheir works

PSO 2007: 1013 participants from 65 countries, organised by the FrenchPsoriasis Group

PSO 2010: 1482 participants from 81 countries, organised by the GermanPsoriasis Group

PSO 2013: 4-7 July at Palais des Congrès, organised by PSONET - European Psoriasis Registries Network

plaque psoriasis

The 3rd Congress of the Psoriasis International Network - PSO 2010, organised by the German Psoriasis Group, was attended by almost 1500 participants from 80 different countries.

Goal 1

aT The local anD reGIonal levelS

IMPROVE THE QUALITY OF HEALTH CARE FORPSORIATIC PATIENTS AND THEIR ACCESS TO QUALITY SkIN CARE

ToolS

a . Develop an acTIve neTworK ThaT BrInGS ToGeTher DermaToloGISTS, paTIenT aSSocIaTIonS, InDuSTrIeS anD puBlIc healTh auThorITIeS

B . propoSe TopIcS oF reSearch In The FIelD oF pSorIaSIS

Goal 2

aT The GloBal level

PROMOTE INTERNATIONAL COLLABORATIONSTO DEVELOP CLINICAL AND THERAPEUTIC

RESEARCH IN THE FIELD OF PSORIASIS

www.pSorIaSIS-InTernaTIonal .orG (enG)

FONDATION RENÉ TOURAINE

Improving the quality of health care for psoriatic patients

Developing national and international collaborations in the field of psoriasis

Members of the Psoriasis International Network Committee,From left to right:

C. Paul (France), L. Naldi (Italy), M. Bagot (France),C. Griffiths (UK), L. Kemeny (Hungary), T. Luger (Germany), L. Puig (Spain).

Hôpital Saint-Louis - Pavillon Bazin Tel: +33 (0)1.53.72.20.80 email: weboffice@psoriasis-international.org1, avenue Claude Vellefaux Fax: +33 (0)1.53.72.20.61 websites: www.fondation-r-touraine.org and www.psoriasis-international.org

75010 Paris France Join us on and

F O N D AT I O N R E N É T O U R A I N E

FONDATION RENÉ TOURAINE PSORIASIS INTERNATIONAL NETWORK

BoarD oF DIrecTorS

The Fondation René Touraine is supervised by a Board of Directors.This Board decides on overall strategy and budget.

president: l. Dubertret (France)General Secretary: a. Touraine (France)Treasurer: p. choël (France)

rightful members:

• Representative of the French Ministry of Home Affairs

• Representative of the French Ministry of Health

• Representative of the French Ministry of Higher Education and Re-search

• Representative of the General Director of the Assistance PubliqueHopitaux de Paris (Parisian hospitals)

members chosen for their competence in the fields related to theFoundation’s activities:

• Representative of the ESDR: M. Gilliet (Switzerland)

• Representative of the EADV: E. Tschachler (Austria)

representatives of the Founders:

• Prof. L. Dubertret

• A relative of Prof. R. Touraine

• One representative of a founding pharmaceutical industry

• One representative of a founding cosmetic industry

ScIenTIFIc BoarD

The Scientific Board decides to which candidates the Fondation RenéTouraine’s fellowships are awarded, as well as the organisation of theother scientific activities of the Fondation René Touraine.

president: I. leigh (uK)president-elect: T. luger (Germany)General Secretary: G. Tappeiner (austria)

psoriasis International network committee:president: C. Paul (France)president-elect: L. Naldi (Italy)members: M. Bagot (France), C. Griffiths (UK), L. Kemeny (Hungary), T. Luger (Germany), L. Puig (Spain)

Genodermatoses committee:president: J. Bauer (Austria)president-elect: C. Bodemer (France)members: L. Bruckner-Tudermann (Germany), A. Hovnanian (France),M. Jonkman (The Netherlands), S. Karpati (Hungary), I. Leigh (UK), J. Mellerio (UK), H. Traupe (Germany), G. Zambruno (Italy)

e-Dermatology portal committee:president: S. Aractingi (France)president-elect: P. Filipe (Portugal)members: L. Borradori (Switzerland), N. Dupin (France), M. de Rie (The Netherlands), G. Tappeiner (Austria)

FOUNDERS’ ASSEMBLY

The Fondation René Touraine is advised by the Founders‘ Assembly, gathering the industries who contributed to the Fondation René Touraine’sendowment. The Assembly is responsible for enlarging Fondation René Touraine’s influence sphere.

ABBOTT, BOOTS HEALTHCARE, CHANEL, FONDATION LEO, GALDERMA INTERNATIONAL, JANSSEN-CILAG, LABORATOIRES BAILLEUL, LABORATOIRES

BERGADERM, LABORATOIRES PIERRE FABRE, LABORATOIRES ROCHE, LABORATOIRES SÉROBIOLOGIQUES, LA ROCHE POSAY LABORATOIRE,

PHARMACEUTIQUE, L’ORÉAL, L.V.M.H., PFIZER, SCHERING-PLOUGH.

C. Paul

L. Naldi

SupporTInG TherapeuTIc proGreSSIn DermaToloGy

. Better assessing the patient needs

. Fostering health care networks to improve dermatological care

. Developing continuing medical education

. Fostering clinical and therapeutic research

who are we ?

. an international non-governmental, non-profit organization founded in 1991

. In memory of rené Touraine, who was at the origin of clinical and therapeutic dermatological research in France

. Gathering the instigators of the therapeutic progress in dermatology: dermatologists, researchers, patient associations, pharmaceutical and cosmetic industries and health authorities