Upstate New York Chapter

Focus on OutcomesA N N U A L R E P O RT • 2 0 0 3

The Upstate New York Chapter of the National MS Society presents its 2003 Annual Report with “A Focuson Outcomes.” Measuring outcomes, by designing and conducting evaluations to determine the level ofimpact a program has on its participants, is an essential component of innovative program delivery that isresponsive to individual and community need. Our efforts to improve high quality programs weresuccessful, as we were a recipient of the Pamela Cavallo Award. This prestigious award is presented annuallyfrom the National MS Society to Chapters that provide exemplary service in program delivery, advocacyand community impact. Other 2003 highlights include increased collaboration with community systemslocated throughout our 42 county area and enhanced development, special event and major gift fundraisingin an ongoing pursuit of our mission to end the devastating effects of multiple sclerosis.

The successes of the past year would not be possible without the dedicated donors, friends and volunteers.We are grateful for your support.

A Message from Chapter Leadership

James P. Ahearn Jay QuinnUpstate New York Chapter President Upstate New York Chapter Board Chair

Focus on OutcomesIn Spring 2003, Chapter support groups wereevaluated. The value of the groups in helping people managelife with MS, this life-long, unpredictable and ever-changingdisease, was supported by the following outcomes:

• 44% of participants attended the groupfor 5 years or more

• 32% attending 1 – 5 years• 24% attending less than 1 year

Attendees reported that through theirparticipation in the support groups:

• 100% indicated that the support groups they attendedwere relevant and helpful to them

• 95% of participants learned new information about MS• 92% used information from their group to make

decisions about managing MS and the effects of MS ontheir lives

• 91% had a better understanding of how MS affectsthem and their family

• 81% acquired information about resources that helpedthem or their families

President James Ahearn and Executive Vice PresidentSadie Briggs (center) with National MS Society PresidentGeneral Michael Dugan, USAF Ret. (left) and NMSS ChairEd Kangas (right) at the National MS Society Conference.

2003…was a remarkableyear of triumphfor the UpstateNew York Chapter.We were honoredin November atthe 2003 NationalMultiple SclerosisSociety’s NationalConference withthe Cavallo Award,which is given inmemory of PamelaCavallo, CSW, andher expansivevision of client andchapter programs.The Cavallo Awardrepresentsexemplary servicein the areas ofadvocacy,professional education, and programs that directly servepeople with MS and their families. The Award recognizesoutstanding program delivery, community impact, andadvancing awareness of the National MS Society’s mission,“to end the devastating effects of MS.”

“It was interesting andcomforting to hear othershave experienced the samethings with their MS.”

The Upstate New York Chapter Program Model

Skills/Strategies• Up-to-date MS disease and symptom

management information• Decision-making skills• Emotional support• Independent living skills• Long-term care planning• Employment consultations• Advocacy events/efforts• Solution focused strategies• Use of community resources• Social activities in the community for

the more severely disabledpopulation

• A social support network• Respite for family caregivers through

the recreation activities and MSAchievement Center

• Communication skills for families,non-professional caregivers, andhealth care providers

• Complex disease managementstrategies which include:• Analyzing obstacles to wellness

and independent living• Identifying options• Evaluating and developing plans

to modify or adapt to obstacles• Integrating plans into daily living

Activities• Support groups• MS education programs• Teleconferences• Independent living

programs• Health & wellness

activities• Consultations• Counseling• Community referrals• Advocacy• Intakes/updates• Family meetings• In-services• Lending library• Presentations and

conferences• Community recreation

Measurable Outcomes1. People with MS, their families, friends

and health care providers willdevelop and apply strategies formanaging the impact of MS onmental, emotional, and physicalwellness.

2. People diagnosed with MS and theirfamily and friends will develop andapply decision-making skills formanaging MS related barriers toindependence. (Examples of barriers-driving and transportation, MSsymptoms, cognitive challenges,employment, financial, andenvironmental.)

3. People diagnosed with MS and theirfamily and friends will increase theirsocial support.

4. People with MS, their families, friendsand non-professional care-givers willimprove their physical, mental andemotional health.

“I look forward to mysupport group. I alwayslearn something new!”

That provide That Lead To

Continuous program improvement is a high priority. In addition to surveys andquestionnaires administered to program participants, staff routinely assess client needsthrough participant and volunteer feedback. Staff involved in the collection of outcome datahave modified the outcome measurement tools that can be used with people whose MSsymptoms have resulted in communication challenges.

The Chapter remains responsive to the changing community environment and to theleadership and direction provided by United Way community-wide outcomes. Over the pastyear the Chapter has redesigned and strengthened its program outcomes to include theacquisition and application of knowledge, strategies, and skills that enable people with MS tomanage their disease more effectively.

Staff has implemented Chapter-wide program evaluation initiatives. Through their work inthe Rochester Effectiveness Partnership, evaluations of the Information & Referral service in2002 and support group services in 2003 were completed. Additional evaluation methodsinclude discussion and review of monthly program statistics, monitoring the “Best Practices”of national program guidelines and implementing as appropriate, and reviewing randomaudit call outcomes for continuous quality assurance.

Outcome results are reported and discussed regularly during individual staff supervisionmeetings, program team meetings and administration and Board of Directors’ meetings. TheChapter has two volunteer committees, Clinical Advisory and Chapter Programs, tomonitor and assess the quality of service delivery, review program outcomes, andrecommend program modification as per results. With this process, the programdepartment responds to the needs of participants, their families, and the community.

Daily Living…

“The Chapter offers wonder-ful programs and support tomany! Thank you!”

“The Chapter programs areinstrumental in helping melive with MS.”

Thank You To The United Way DonorsMr. Dennis J. AllisMs. Paula M. AmannMr. Jack AmphlettMr. Lawrence J. ArchambeaultMs. Barbara A. AshMr. Raymond B BaggsMrs. Mary Ann BakerMr. & Mrs. Michael BargmannMr. Robert BashawMrs. Diane BeamishMs. Pat BelairMs. Nancy J. BippesMr. David G. BoehmMs. Mary J. BoikeMs. Carole A. BondMs. Justine BoothMr. Mark BoucherMs. Sheila J. BoyleMs. Christal BrabhamMr. Christopher S. BreedMr. George P. BrooksMr. David L. BrownMr. Richard J. Buck Jr.Mr. Harry C. BurchMs. Karen L ByfieldMr. Gerald CaracciMs. Debbie CardonMrs. Marilou CatracchiaMr. George B. CeresiaMr. Marc ChampignyMs. Pat CharrosMs. Jessica ChichelliMr. John C. ClancyMs. Patricia A. CoffeyMr. Edward F. CollinsMr. Edward G. ConnollyMs. Patricia ConollyMs. Anne M. ConradMs. Mary Beth CookMs. Joanne M. CostaMr. Michael D. CroffMr. Robert CroffMs. Marjory CutaiarMr. Thomas F. D’AmbrosioMs. Sylvia D’AprileMr. Peter E. DavidsonMr. James DaviesMr. Ralph F. DeBergalisMr. Richard DegusMs. Melanie DeHavenMs. Barbara A. DeraMs. Marie E. DeveryMrs. Cheryl A. DillmanMs. Lucia DioguardiMr. Drew R. DuBrinMr. Thomas W. DudleyMr. Thomas J. DurkinMr. David G. EagleyMr. Robert L. Eckelberger Jr.Mrs. Christine R. EnglishMr. Paul E. FallonMr. James Fanning

Mrs. Lynda S. FeinsteinMs. Karen L. FinchMr. Peter FioricaMs. Michele FioravantiMs. Patricia A FitzpatrickMr. Allen M. FitzpatrickMr. Cornelius J. FloodMr. & Mrs. Tracy & Chris FlynnMs. Donna E. FrankMr. & Mrs. Gregory A. Franklin

& Jean H. McCrearyMr. Lloyd W. FreemanMr. & Mrs. Stephen & Joanne FrenchMr. & Mrs. Edward & Mary Ann FretzMrs. Beverly J. FrickMs. Pamela A. FrisbeeMr. Arthur FrisbeeMrs Patricia A. GalinskiMr. Philip GallelliMs. Ella D. GardnerMr. Jeffrey E. GarlandMr. Paul A. GatesMr. Thomas M. GiannoneMr. David J. Giesen Jr.Mr. John GigliottiMr. William S. GillanMrs. Donna J. GillMr. Timothy R. GlasowMr. & Mrs. Ricardo A. GonzalezMr. Jimmie L. GoodaleMs. Patricia A. GoodwinMrs. Merri L. GreinerMs. Kimberly GriffinMs. Martha GucheMrs Marie A. GulloMr. William J. HamiltonMr. Bruce HanatMrs. Deborah K. HarderMr. & Mrs. Andrew HarhayMr. Shawn P. HarringtonMrs. Teresa L. HavensMr. Dennis M. HayesMr. Donald B. HewittMs. Audra E. HigginsMr. Gary L. HinzmanMs. Cathy A HoercherMr. Richard H. HoweMr. Paul HowsonMr. M. Brian HughesMr. Richard H. HumbyMrs. Arleen HylandMs. Kathleen InghamMs. Barbara J. JarvisMs. Shari JeromeMr. & Mrs. Gordon & Kathryn JewettMs. Colleen JonesMr. & Mrs. Joseph JoppMs. Nancy JordanMr. John G. JoslynMrs. Bonnie L. KarstetterMr. James W. Keddell Jr.

Ms. Susan M. KerberMs. Sheila A. KingMs. Susan M. KingMs. Rozaliya KipermanMs. Mary Ann KleinerMr. Carl C. KleinMr. Michael KoernerMrs. Deborah J. KranslerMs. Julie KuhnMs. Margaret G KyleMs. Camille G. LaBrieMrs. Carolyn LaDieuMr. Kenneth D. LaDolceMr. Dwight B. LaDuMs. Georgia T. LambMs. Lindsay L. LancorMs. Martha F. LansberryMrs. Kathleen A. LappMr. Brian LaudadioMr. George LaureMs. Sherry LiebermanMs. Carol A. LighthouseMr. Michael LiPani Jr.Mrs. Rebecca L. LombardoMr. Gor LubbertsMs. Christine M. LutringerMr. Daniel F. LynchMs. Dianna D. LyndMs. Catherine MacConnellBrig. Gen. Thomas Maguire, Jr.Ms. Charlene L. MaloneyMs. Marie MammanoMr. Victor A. ManciniMrs Debra A. MantelliMs. Holly H. MartinMr. Douglas P. MartinMr. James T. MascaraMr. William R. MashewskeMs. Carol J. MaskiellMr. Dennis MassaMrs. Sylvia A. McBrideMr. Thomas P. McCarthyMr. Chris McDonaldMr. John W. McFarlandMr. John G. McMillanMs. Joanne D McNerneyMs. Lorraine J. McTarnaghanMrs. Margaret A. MeliMr. Michael MerullaMs. Christy MillerMr. & Mrs. Douglas & Jan MillerMr. Jacob E. Miller, Jr.Ms. Marcia L. MillerMr. Scott T. MillerMr. Richard W. MitchellMr. Vincent MohrMrs. Susan L. MorabitoMs. Kathleen K. MorganMr. William L. MoriartyMr. & Mrs. Michael MorleyMs. Jennifer E. MuhlMs. Susan M. Muir

Mr. Terry MurtaughMr. William M. MurthaMs. Debra NataleMr. Allan NataleMs. Rachel M. NatalMrs. Joyce S. Nichols-ClarkMr. William F. NortonMr. Paul J. Noto Jr.Mrs. Vickie A. NyhanMr. Timothy M. NyhanMs. Elizabeth A. O’BrienMrs. Andrea G. O’BrienMr. Randy J. OlthofMr. John A. OuimetMs. Cindy OwenMs. Colleen ParadisMs. Keva L. ParryMr. Joseph PatchinMs. Jodi PatenaudeMr. & Mrs. Mark & Denise PearsonMr. Luciano C. PestilliMs. Susan M. PfundMs. Cynthia A. PhillipsMrs. Rosemary PlataniaMs. Lisa M. PritchardMr. Raymond RahmlowMs. Cynthia RajMr. Eddie RamosMs. Lori E. RasMs. Bridgette ReesMs. Linda J. ReeseMs. Melissa M. ReynoldsMr. K. L. RichardmorrowMr. Steven F. RichardsonMr. Edward W. RichardsonMs. Cathleen M. RiehleMr. John E. RiethMr. Modesto RiveraMs. Conrada RiveraMs. Stephne RockowMs. Eileen RoepeMr. Kevin J. RohrMr. Bryan D. RomeiserMs. Christina A. RyanDr. Richard SatranMr. Stephen J. SatterMs. Helen M. SaxbyMrs. Diane L. ScheibleMr. Thomas A. SchwartzMs. Lorraine ScottMr. Michael ScozzaroMrs. Mary E. ScumaciMr. Murl L. SebringMr. Joe W. SecorMr. Patrick J. SennettMr. Deno SfikasMr. Norman R. ShortMs. Kimberly J SidoraMs. Kristen SimmonsMs. Jacqueline SimsMs. Elizabeth A. Sloma

Mrs. Deborah J. SmithMrs. Gail A. SmithMs. Kristen H. SmithMr. Steven SmithMr. & Mrs. Wayne SmithMr. Thomas R. SnyderMs. Marie P. SopranoMs. Laurie E. SparksMr. & Mrs. Richard D. SperdutoMs. Paula J. SpinelliMr. James StackMr. Brian J. StallMr. Wayne StephanMs. Eloise StevensMrs. Bernice C. StiddMs. Judith Barrett StraussMs. Lani D. StrebMs. Linda StrubleMr. & Mrs. Mark SuherMr. Joel TaddeoMr. George H. TannerMs. Cynthia B. TenhoopenMr. & Mrs. Douglas ThiemeMr. Richard L. TozerMr. Thomas N. TrevettMr. Robert VacantiMs. Susan B. VecchioMrs. Teresa E. VonBurenMr. Neil C. WaddellMs. Susan S. WalkerMr. Anthony P. WashingtonMs. Lisa Wasnock-JonesMr. Stephen M. WernerMs. Joanne WestmillerMs. Candice WhiteMr. Ronna WiesnerMs. Patricia A. WilliamsMs. Rosanne WordenMrs. Carol A. Yurkstas

A United Way Agency

$500 - $15,000Mr. Michael AsseltaMr. Tony AceeMr. Richard AdamsMr. James AhearnMrs. Donna AlbertMs. Janice AllenMr. Paul ArendsMrs. Carolyn ArgustMr. Keyhan ArjomandMs. Donna ArpinoMr. Thomas AsseltaMr. Michael BaldwinMrs. Robyn BallardMr. Thomas BallardMs. Susan BartowskiMr. Henry BatkoMs. Katherine BazarMr. Patrick BelairMrs. Becky BennettMrs. Cindy BerberickDr. Kathy BirkMs. Susan BlomenbergMr. David BolineMs. Kathy BolineMs. Rhonda Lea BossMr. David Brazda PoirierMr. Chris BrownMr. Sean BrownMr. Lisa BurnsMr. Marvin ButlerDr. Marilynn ButlerMs. Laurie CammanMs. Lisa CapizziMs. Faye CaseyMs. Rosemary CasteleinMr. John CasteleinMs. Donna CataleMr. Jeffrey ChafitzMs. Nancy ChappellMr. Thomas CiminoMs. Melissa ClarkMr. Stephen ClementsMr. Timothy ClementsMrs. Patricia CoatsMr. Michael CohenMrs. Martha ColburnMs. Laurie CookMs. Kathy CoutureMs. Patricia CummingsMr. Thomas CurtinMs. Laura DartMs. Lisa Marie DavisonMr. Peter DavisonMs. Linda DeanMs. Nancy DearstyneMr. Philip DefazioMs. Kim DenittoMr. Larry Dergurahian

Mr. Michael DeRoseMr. Richard DeSarraMs. Frank DipaolaMs. Charlotte DlugolenskiMrs. Shalyn DocousSr. Diana DolceMs. Linda DorseyMs. Sharron DowMs. Mary DunhamMs. Suzanne DurfeeMs. Dennis DurrantMr. Gary DykesMs. Carrie DykesMs. Ann EdwardsMs. Jane FarquharMr. William FarrellMs. Andrea FeldmanMr. David FerriterMr. John FinchMr. Michael FinnMr. Richard FinnieMrs. Nellie FioricaMs. Effie FishMs. Maureen FisherMs. Joan FlanaganMs. Beth ForteMr. Ryan FrankMs. Wendy FullerMs. Rebecca FussMr. Jeffrey GalmMs. Mary Ann GalmMs. Nadine GarofaloMr. Bill GervasioMs. Wendy GiangrassoMs. Carolyn GibsonMr. Christopher GollMs. Kimberly GoodrichMr. Brian GordinierMs. Kathryn GrabowskiMr. David GriffinMr. Steven GuglielmoMr. Jerome GurevMrs. Harriet HaaseMr. Neal HabermanMr. Stephen HakesMr. Joseph HamlinMr. Samuel HankinsMrs. Jennifer HansenMs. Maggie HavilandMs. Heather HawleyMs. Sara HenzeMr. Bruce HinckleyMr. Kenneth HinmanMr. David HinoMs. Stephanie HolmesMs. Susan HornMr. Joel HotellingMrs. Jeff HouckDr. Brenda IannucciMs. Maggie IannucciMs. Christine Inserillo

Mr. Debbie IuratoMs. Mercelle JacksonMr. Rich JenksMs. Theresa KaschakMs. Barbara KatzMr. Joseph KennedyMr. Charles KershawMs. Patricia KeyesMr. James KillenbecMr. Thomas KiltsMr. Philip KlinglerMrs. Carol KnappMs. Kelly KohlerMrs. Carey KohliMr. Michael KopchikMr. Christopher KotaryMr. Dave KrausMr. Gene KristMr. Paulo KrizanovskiMrs. Christine KuehnerMr. John LakeMs. Marianne LambMr. Thomas LancieMs. Jennifer LeeMs. Nancy LeeMr. Marvin LeviMs. Rachel LevyMr. Michael LohrMs. Janet LongMs. Helen LynchMr. Kevin MaierMs. Kathy MalteseMr. David MandyckMr. Steven MarshMr. Joe MartinMr. Gene MatoonMs. Tammy McClintockMrs. Jane McEachronMs. Kimberly McKenzieMr. Jeffrey MclaneMs. Catherine MeissnerMr. Klaus MeissnerMs. Lisa MeissnerMr. Richard MengelMs. Melissa MeranerMr. Eric MetzlerMs. Kim MillerMr. Michael MillerMr. David MillerMrs. Victoria MilneMrs. Elizabeth MontesanoMr. Daniel MooreMs. Kaye MorganMr. Garrett MorganMs. Georgena MuhlfeldMr. Gregg NamisnakMs. Sheri NicholsMs. Kirsten NielsenMs. Helen O’ConnorMs. Joyce OczkowskiMr. Steph Oppenheim

Mrs. Ann PackardMr. Lewis PalladinoMs. Teresa PaonessaMrs. Margaret PartykaMr. Benjamin PastelMs. Judith PearceMs. Linda PeavyMr. William PercivalMrs. Lauren PlanteMs. Christine PomeranzMr. Bruce PotterMr. Harold PrattMs. Nancy PrattMs. Barbara PrinzingMrs. Deborah PutortiMs. Patricia QuigleyMr. Barry QuinnMs. Kathleen QuirkMs. Cheryl RasiMrs. Suzanne ReardonMr. Douglas ReddenMs. Angela ReidMs. Melody ReynoldsMs. Marcella RicherMs. Phyllis Rifkin-RussellMr. Dottie RobertsonDr. Paul RomanoMr. Ronald RussellMr. Steve RussellMs. Sabrina Rosanna RuzzaMs. Lori SalamidaMs. Diane SansoneMs. Tara SaywardMr. William SchirmerDr. James SchusterDr. Steven SchwidMrs. Leonard SeelowMs. Larinda SeitzMs. Amanda ShawMs. Megan SheeleyMs. Susan SheeleyMr. Carol SherwoodMs. Laurie SiegelMr. Tim SilvaMs. Jennifer SimersonMr. Kevin SimmonsMs. Roberta SimpsonMr. Bradley SimpsonMs. Alison SinnottMr. Carl SlaterMrs. Mia SpadaMr. Antonino SpanoMs. Rae SteinbachMr. Stuart SternMs. Rose StilesMr. Howard StollerMs. Barbara SucherMr. John TerhaarMr. Joseph ThompsonMr. John ThompsonMr. Vince Thompson

Thank You To Our Event ParticipantsMr. Greg ThorpMrs. Joy ToppsesMs. Pat TormeyMrs. Mary Ann ToteMs. Lisa TrapaniMr. Terence TraversMrs. Margaret TrevettMr. Chuck TrombleyMs. Diane VanaukenMr. Jeff VandebergMr. Daniel VandeputteMr. Cindy VandornMs. Brooke VermilyeaMs. Kathleen VoergMs. William VoergMr. Henry WalckMs. Karen WaldronMs. Marjorie WallMs. Diane WardMs. Kate WeegarSr. Kathleen WeiderMr. Roger WelchMr. F. Earl WenselMr. Jerry WestcottMr. Warren WetzelbergMr. John WeylDr. Nancy WeylMr. Jack WilsonMr. Robert WiseMr. Thomas WitteMr. John WoodMs. Jennifer WoodMs. Danielle WoodsMr. Hugh WoodsideMs. Marybeth WoolseyMr. William YochumMr. Nancy ZaengleinMr. Roger ZaengleinMs. Cyndi ZagieboyloMs. Helen ZamboniMrs. Lori Zinter

Due to the overwhelmingsupport of our donors, ourdatabase is continuallybeing updated and somedonor information may beinaccurate.

Please contact the NMSStoll-free at 1-800 FIGHT MSwith any questions orcorrections. Thank you foryour understanding.

Thank You To Our Contributors

PLATINUM LEVEL$10,000 +Anonymous (1)

GOLD LEVEL$5,000 - $9,999Anonymous (1)Mr. and Mrs. Steve Modica

SILVER LEVEL$2,500 - $4,999Anonymous (1)Mr. & Mrs. James P. AhearnMr. & Mrs. Richard MengelMrs. Diane Nuccitelli

BRONZE LEVEL$1,000 - $2,499Anonymous (2)Mr. & Mrs. John AmarelMr. Adam BaroneMs. Sadie BriggsMr. & Mrs. G. Thomas ClarkMr. & Mrs. Thomas ClarkMr. John A. DeanMr. & Mrs. Andrew GallinaMr. & Mrs. Mark A. GraumenzMr. Austin HildebrandtMr. & Mrs. John E. N. Hume IIIMr. & Mrs. Louis IaconaMr. & Mrs. John IngallsMr. & Mrs. Thomas MaguireMr. & Mrs. Gilman Marshall

Ms. Jean McCrearyMr. & Mrs. Gilbert McCurdyMr. & Mrs. Richard PageMr. & Mrs. Robert SandersonMr. Fred SmithMr. James J. SmithMr. & Mrs. James T. Towne, Jr.Mr. & Mrs. Thomas TrevettMr. & Mrs. Eric WebberMr. & Mrs. Howard WebberMr. & Mrs. John Weider

SPONSOR LEVEL$500 - $999Mr. & Mrs. Richard KazelMr. & Mrs. Scott MarshallMr. & Mrs. Sarkis Nahabedian

PRESIDENT’S CLUB$250 - $499Mr. Donald C. AllenMr. & Mrs. Harold BurtMr. & Mrs. Joseph ButtiglieriMrs. Esther ChristensenMr. & Mrs. Andrew ColaruotoloMr. & Mrs. Rich CutriMs. Kathleen DellaPortaMrs. Thelma GlasnerDr. Burk JubeltMrs. Eleanor Kittle-IngalsbeMr. Richard C. LawtonMrs. Vivian LyttleMr. & Mrs. David McNairMr. & Mrs. Frank R. ShumwayMr. Donald P. WichmanMs. Sandra R. Williams

Thank You to our Members who have made an annual monetary commitment to aid our mission –“to end the devastating effects of multiple sclerosis.”

SPONSOR LEVEL$100 - $249Mr. & Mrs. Gerald ArchibaldMr. & Mrs. Tom ArgustMs. Cheryl AtkinsonMr. William BairdMs. Deanna BakerMs. Patricia BalenaDr. & Mrs. David BaumMr. & Mrs. Jeffrey BowenMr. Richard F. BrushMr. & Mrs. Norman BurchMr. & Mrs. Keith BurhansMr. & Mrs. William A. CarlsonMs. Leslie ChurchMr. & Mrs. C. Jack ChapmanMr. David B. ClarkMr. & Mrs. Frank CunninghamMr. Joseph A. D’AmicoMr. Alfred L. DavisMr. Donald J. DeSarraMr. & Mrs. Anthony DiLellaMr. & Mrs. Francis DlugolenskiMr. Martin DooreyMr. D. Craig EppersonMr. Jack ErdleMr. Eugene FaughnanMr. & Mrs. Alan FrishmanMr. & Mrs. Howard FrumMrs. Beverly GallowayMs. Pamela C. GearhartMr. & Mrs. David R. GiuntaMr. & Mrs Toby GoldMs. Kathryn GrabowskiMr. Warren Hasman

Mr. & Mrs. Dellas HenkeDr. Ruth E. HetlandDr. & Mrs. Jack HowittMayor William A. Johnson, Jr.Dr. & Mrs. Robert JoyntMr. Anthony KoscumbMr. & Mrs. James LabbMrs. June LatalMr. Samuel LemboMr. & Mrs. Robert LernerMr. David LeVantMr. & Mrs. Ray LinderMr. & Mrs. John LyndMr. Joseph G. MaccioMrs. Dorette ManryMrs. Eileen MorrellMr. Owen Mudge, Jr.Dr. & Mrs. James A. MylesMr. & Mrs. James OdorczykDr. & Mrs. John O’SullivanMr. & Mrs. Peter PizzutelliMr. & Mrs. Steven A. RothschildMr. & Mrs. John RowlandsMr. & Mrs. Donald RuehlMrs. Mary SchantzMrs. Robert L. ShraderMr. & Mrs. Paul SpecterMr. & Mrs. Frederick StahlMr. & Mrs. Douglas StoneMr. Len VanDerLykeMs. Beth Ann WalckMr. Christopher WheelerMs. Ronna WiesnerMr. Neal WiesnerMs. Patricia Wolfe

PILLARS OF SOCIETYThe following individuals have rememberedthe National MS Society through a bequest,gift annuity or other deferred gift:

Mr. and Mrs. James P. and Lorraine AhearnMr. Roger BirkMs. Ann BoshartMrs. Beryl DiLellaMs. Lois GoodmanMs. Arlene GoransonMs. Nancy NevinsMs. Robert OwensDr. Ludwig SteinMs. Sarah SweeneyMs. Sharon Tirrell

FOUNDATIONSASC Partnership Foundation, Inc.BiogenBirk Family FoundationThe Davenport-Hatch FoundationDorothea Haus Ross FoundationB. Thomas Golisano FoundationJones Christian FoundationNew York State Department of HealthThe Kilian J. & Caroline F.

Schmitt FoundationUnited Way of Broome CountyUnited Way of Central New YorkUnited Way of Greater RochesterUnited Way of Livingston CountyUnited Way of Northeastern New YorkUnited Way of Ontario CountyUnited Way of the Southern TierUnited Way of Wayne CountyWilliamsport-Lycoming Foundation

The National MS Society… One Thing People With MS Can Count On.

Board of Directors & StaffStaffJames P. Ahearn, CSW, ACSWBarbara J. Bennett, CPAJanalee L. Biondolillo, M.S.Amy L. BobbetteWendi BorschingStephanie Bradshaw, M.S.Tiffany L. BregeSadie M. Briggs, MPACharity Burnor, BSWDebra A. BushPaula EdwardsKaren Fitzgerald, CTRSCarmen Y. Garcia, MSWWhitney J. Garlock, M.S.C.Ellen A. HardyPatrick HarrisMegan KelvieKathleen MahoneyJeanne S. MarinoAndrea MartellottaTimothy D. McGowan, CSWSharon K. MenzStephanie Mincer, CSWJennifer MurinkaMichelle J. PrueStephanie A. SchifanoWendy B. Sullivan, CSWSusan T. Thomson-BinderCatherine A. TullochRosemary B. Zuck, CSW

Board of DirectorsOfficers:Chair: Jay W. Quinn, Jr.Vice-Chair: Kathy Birk, MDVice-Chair: Karen GallinaVice-Chair: Ellie Kittle-IngalsbeVice-Chair: Thomas MullerVice-Chair: Judith DunnVice-Chair: James Towne, Jr., Esq.Treasurer: Richard PageSecretary: Martin Doorey

Directors:Robert AugustChristine ChampmanRobert EdwardsElysa FerraraNan HildebrandtMarta Pat HughesRichard KazelGerald LeonardWilliam MackRichard Mengel, CPAJames Metzler, Esq.Diane NuccitelliRichard Satran, MDEileen Kuklis SmithJames SmithEric WebberKathleen Weider, SSJSandra WilliamsEric Zaenglein, CPA

MS Facts…• More than 400,000 people

nationwide live with thedevastating effects of MS.

• 75 percent of people withMS are women.

• Each week in the UnitedState 200 new cases ofMS are diagnosed.

• While there are manypromising treatments forMS, there is still no cure.

A portion of the funds are dedicated to National MS Society research which support MS centers in Rochester, Saranac Lake and Syracuse.For more details on how raised funds are allocated, please call 585.271.0801 or toll free 1.800.FIGHT MS.

What does the National MS Society do with the pledgesraised from the MS events you participate in?

Where The Money Goes…

60% of funds raised support programsand services in Upstate New York

Programs • EducationAffiliations with MS Clinical Facilities

PROGRAMS(84%)• Newly Diagnosed Programs• Information & Referral• Counseling & Coaching• Support & Self-help Groups• Education• Wellness & Fitness Programs• Recreation & Special Activities• Howitt House & MS Achievement Center• Affiliated Clinical Facilities in Albany, Rochester & Syracuse

MANAGEMENT & FUNDRAISING(16%)

40% of funds raised supportresearch, advocacy & programs

• MS Research Grants• Clinical Research Updates• Professional Resource Center for

Healthcare Professionals• Children’s Newsletter• On-line Internet Programs• Public Policy Department• Advocacy Support

TotalTemporarily Permanently

Unrestricted Restricted Restricted 2003 2002

SUPPORT AND REVENUE AND SPECIAL EVENTS:Support -

United Way $33,494 $394,462 $0 $427,956 $426,925Donations 188,044 315,759 0 503,803 285,339Direct marketing program (local and National) 159,969 0 0 159,969 143,491Legacies and bequests 144,714 210,000 0 354,714 528,185Grants 0 47,480 0 47,480 26,975Other 51,956 0 0 51,956 58,054

578,177 967,701 0 1,545,878 1,468,969

Revenue -Service fees 0 3,638 0 3,638 2,903Contract revenue 0 37,896 0 37,896 157,428Investment income, net 124,341 0 0 124,341 73,537

124,341 41,534 0 165,875 233,868

Special events 1,142,767 265,224 0 1,407,991 1,591,681Less: Benefit to donor expenses (190,652) 0 0 (190,652) (174,764)

952,115 265,224 0 1,217,339 1,416,917

Net assets released from restrictions -United Way 396,936 (396,936) 0 0 0Special Events 265,224 (265,224) 0 0 0Donations 315,759 (315,759) 0 0 0Other 76,678 (76,678) 0 0 0

1,054,597 (1,054,597) 0 0 0

Total support and revenue 2,709,230 219,862 0 2,929,092 3,119,754

EXPENSES:Program services:Research 273,060 0 0 273,060 214,906Client and community services 865,827 0 0 865,827 790,698Public education 801,010 0 0 801,010 901,694Day health 39,873 0 0 39,873 172,372

Total program services 1,979,770 0 0 1,979,770 2,079,670

Supporting services:Fundraising 391,547 0 0 391,547 342,288Management and general 116,685 0 0 116,685 87,346

Total supporting services 508,232 0 0 508,232 429,634

National program expense (exclusive of the 257,858 0 0 257,858 200,971 research component)

Total expenses 2,745,860 0 0 2,745,860 2,710,275

CHANGE IN NET ASSETS (36,630) 219,862 0 183,232 409,479

NET ASSETS - beginning of year 1,144,344 499,891 905,114 2,549,349 2,139,870

NET ASSETS - end of year $1,107,714 $719,753 $905,114 $2,732,581 $2,549,349

Financials National Multiple Sclerosis Society Upstate New York ChapterStatement of Activities and Change in Net Assets for the Year Ended September 30, 2003

(With Comparative Totals for 2002)Please contact the Chapter to request a copy of the full audit.

“I can’t say enough aboutall I have learned or thebenefits derived from thelovely people and friends Ihave made and met as aresult of these Chapteractivities.”

“The National MS Societyhas been invaluablethroughout my progressionwith MS.”

Chapter Headquarters:1650 South Ave.Suite 100Rochester, NY 14620

Phone: 585.271.0801Toll Free: 1.877.869.6677Or 1.800.FIGHT MS

Upstate New York Chapter

Albany Office:421 New Karner Rd.Suite 6Albany, NY 12205

Phone: 518.464.0630Toll Free: 1.800.922.9120

Binghamton Office:457 State St.Binghamton, NY 13901

Phone: 607.724.5464Toll Free: 1.800.640.7232

Syracuse Office:3532 James St.Suite 104Syracuse, NY 13206

Phone: 315.431.9993Toll Free: 1.800.733.5385

Thanks to significant advances in research, the FDA has approved several

treatments that may alter the underlying disease course of multiple sclerosis. Early treatment is

critically important. People with MS should consult their doctors about using one of these

FDA-approved medications and other effective treatments for the symptoms of MS.

If you or someone you know has MS, contact the National Multiple Sclerosis Society at

1.800.FIGHT MS or www.msupstateny.org