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Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley Nurock Ted Freer Members of QRD consumer network

Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

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Page 1: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

Evaluating the impact of theQuality Research in Dementia (QRD)

Consumer Network on the Alzheimer’s Society’s

Research Programme

Shirley Nurock Ted FreerMembers of QRD consumer network

Page 2: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

QRD Involvement in research

• Brainstorming – research priorities

• Application review and prioritisation

• Award Panels

• Project Monitoring

• Dissemination

Page 3: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

AIMS

1) To determine the quality of the research funded

2) To determine value of consumer involvement in Alzheimer’s Society research

a) Compare pre and post 2000 QRD programme

b) Compare with an equivalent programme with no consumer involvement

c) Value for money

Page 4: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

QRD Evaluation Project

Phase I

Collection of publications and other outcomes from completed projects

Phase II

Postal evaluation of project output and outcomes by QRD consumer network and scientists

Page 5: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

EVALUATION CRITERIA

• Publication in scientific peer-reviewed journals using journal impact factors

• Results being used by other groups for policy, research and treatments

• Career development of researchers in dementia research and practice

• Increased awareness of dementia issues resulting from project

Page 6: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

DEFINING THE QUESTIONS

Q1. How well were the objectives of the research proposal met?

 

Q2. How do you rank the level of output from the project?

Q3. How much difference will this research make to people with

dementia?

1--------2--------3--------4--------5--------6--------7--------8--------9--------10

Consumers answer questions by marking on a scale of 1-10, where

1 is a high score, and 10 is a very low score

Page 7: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

RESULTSDiscrimination between

the three questionsfor same researcher

Q1. How well were the objectives of the research proposal met?

0

5

10

15

20

25

30

35

1 2 3 4 5 6 7 8 9 10

SCORE

RES

PON

SES

Q2. How do you rank the level of output from the project?

0

5

10

15

20

25

30

35

1 2 3 4 5 6 7 8 9 10

SCORE

RESP

ONSE

SQ3. How much difference will this research make to people with dementia?

0

5

10

15

20

25

30

35

1 2 3 4 5 6 7 8 9 10

SCORE

RESP

ONSE

S

Page 8: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

Researcher X

0

5

10

15

20

25

30

35

1 2 3 4 5 6 7 8 9 10

SCORE

RES

ON

SE

RESULTSQ3. How much difference will this

research make to people with dementia?

Researcher Y

0

5

10

15

20

25

30

35

1 2 3 4 5 6 7 8 9 10

SCORE

RESO

PNSE

Reseracher Z

0

5

10

15

20

25

30

35

1 2 3 4 5 6 7 8 9 10

SCORE

RESP

ONS

ES

Page 9: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

CONSUMER’S CONCERNS

• More informative final project reports

• Difficult to evaluate quality of output

• More information on what use was made of the results

• More information on grant holders subsequent activities

• Wider dissemination beyond scientific press

Page 10: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

FURTHER EVALUATION

Phase III

Consumer-enhanced scientific committees evaluate selected projects

Phase IV

External peer review of the scientific quality of research funded

Phase V

Independent evaluation of the impact of consumer involvement both internally and externally to the Alzheimer’s Society

Page 11: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

CONCLUSIONS

• This is an ongoing innovative study

• Stepwise development

• Consumers can evaluate output and quality

Page 12: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

Further Information

www.qrd.alzheimers.org.uk

Telephone QRD Office : 020 7306 0845

Page 13: Evaluating the impact of the Quality Research in Dementia (QRD) Consumer Network on the Alzheimer’s Society’s Research Programme Shirley NurockTed Freer

INFORMATION PROVIDED

• Short summary & conclusion

• Final Report documenting Publications & Abstracts with journal Impact Factors 

• Books and/or chapters 

• Conference oral & poster presentations 

• Further research resulting from project 

• Career progression of researchers