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Establishing Establishing COPD Patient OrganizationsCOPD Patient Organizations
Mariadelaide Franchi, ICC Co-Chair, Italy
Artwork by: Pierluigi Diano, Micaela Mau
ICC Members
MissionMission
• To improve health condition, quality of life and life expectation of people with COPD, and to defend the rights of patients, their families and caregivers
• The Association must represents the opinions, views and thoughts of COPD patients
StrategyStrategy
Prevention• To promote initiatives to prevent the development of
the disease• To encourage the early and correct diagnosis • To ensure a better quality of indoor and outdoor air
Management and care
• To improve health condition and quality of life of patients, their families and caregivers
• To dispose of health services of high quality standard, corresponding to the needs of patients
• To ensure equal treatment worldwide
Priority: Priority: The partnership of doctor and patient in improving health
• Prevention and environment control
• Early and accurate diagnosis
• Personalized therapy plan
• Global approach to the patient
• Continuity of health and social assistance
CapabilitiesCapabilities
The ways to acquire capability are:The ways to acquire capability are:
• Support of a Scientific Committee• Partnership with Scientific Societies• Collaboration with the health Institutions• Participation to the definition and up-dating of the
COPD guide lines• Participation to scientific meetings• Networking with International, National and local
organizations
Main initiativesMain initiatives
• To provide services, responding to the needs, interest and expectations of patients
• To advocacy, at local, National and International level, to obtain public interventions in favour of COPD patients
• To promote information, education and prevention campaigns
• To encourage the scientific research
How to communicate with How to communicate with COPD PatientsCOPD Patients
• Help line
• Written Information
• Web site
• Awareness Campaigns
• Specific surveys
PartnershipsPartnerships
• Health Institutions
• Scientific Societies (Specialists, GPs, Nurses, Therapist and other health care professional)
• Other patients organizations
Code of ethics and conductCode of ethics and conduct
The Association should define a code of ethics and conduct, with the aim to ensure that all the decisions and activities are developed with transparency and independence towards all the stakeholders
Sponsorship and managementSponsorship and management
The Association need appropriate resources, human resources and financial support. From the beginning the Association should define a fundraising policy