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End-of-Life Care: A Novel ApproachShawnette AdamsMay 8, 2013

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Problem Statement In a 2012 study of Californians’ attitudes and experiences

with death and dying, 60% of respondents said that making sure their family is not burdened by tough decisions about their care at the end of life is “extremely important.”

Yet 56% had not communicated their end-of-life wishes to the loved one they would want making decisions on their behalf, and only 23% said they have their wishes in writing.

41% of Californians said they had too many other things to worry about right now

39% said that they or their loved one didn’t want to think about death or dying.

Resource: http://healthcareexperiencedesign.com/eolc/

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Problem Resolution Goals Promote awareness and create a

compelling experience that leads to greater activation and more people communicating their preferences by having a conversation, and completing an advance directive

Target non-activated people, and help take a person from pre-contemplation to contemplation, or contemplation to action.

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Problem Resolution Prototype Website Main Aspects

1) Why plan for end-of-life care? 2) Learn how to plan for end-of-life care? What

materials and information needs to be provide? 3) Take action by completing the form and

obtaining the proper signatures

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Design Aspects Language Choice State Choice Live Chat and FAQ Online Completion or Manual

Completion ‘What If’ Video Scenarios Learning How to Complete Directive Take Actions to Complete Directive

Including official signatures

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Design Walkthrough The following slides will discuss aspects

and specific details of the website prototype.

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Medically Mindful Homepagea. Language Dropdown – Translate the website and advance directive form into the selected language.

b. State Dropdown – The state chosen will populate the website with that state’s officially or most commonly approved healthcare directive. c. Navigation Buttons – These buttons indicate where the user is in the process.

d. Information Area – This area describes the 3 main parts of the website and the content of each part. The Go To buttons also navigate to the steps displayed in section c.e. ‘Chat with a Consultant & FAQ’ Button – This button will allow the end user to chat live with a consultant in the selected state about the advance directive process and to access the FAQs that are available.

f. Sharing Area – The buttons in this area will allow the end user to share this page with friends and family members via Facebook, email, and Twitter.

a.b.c.

d.

e.

f.

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‘What If’ Scenario Pagea. Main Video Area – This video in this area will swap with those in the ‘Learn More’

b. Learn More – The state chosen will populate the website with that state’s officially or most commonly approved healthcare directive.

c. Events You May Already Plan For – These buttons indicate where the user is in the process.

d. Next Step Area – This area describes the 3 main parts of the website and the content of each part.

d.

a.

b.

c.

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Learn More Page – Tab 1a. Choosing Healthcare Agent Tab – This tab provides information necessary to go about choosing a healthcare agent for the directive. b. Bottom of the Choosing Healthcare Agent Tab – The bottom of the scroll pane has two buttons that 1) allow the end user to either go directly to the directive form to choose a healthcare agent or 2) view the next tab, Deciding Healthcare Choices.

b.

a.

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Learn More Page – Tab 2a. Deciding Healthcare Choices Tab – This tab provides information of which decisions will need to be made, such as life support treatments and autopsy choices.

b. Bottom of the Deciding Healthcare Choices Tab – The bottom of the scroll pane has two buttons that 1) allow the end user to either go directly to the directive form to select healthcare choices or 2) go to Step 3, which is begin filling out the directive from Part 1.

b.

a.

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Take Action Page – Part 1a. Print Blank Directive Button – This button allows the end user to print a hardcopy of all parts of the directive, as well as the signature forms that accompany it. This allows for manual completion of the form rather than entering the information online.

b. Part I of the Directive – Part 1 is the first section of the directive where the end user will enter the information for the healthcare agents of their choosing. At the bottom of the page, the end user has the option to clear the information that has been entered on the page or go to Part 2 of the directive.

b.

a.

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Take Action Page – Part 2a. Part 2 of the Directive – This button allows the end user to print a hardcopy of all parts of the directive, as well as the signature forms that accompany it. This allows for manual completion of the form rather than entering the information online.

b. Bottom of Part 2 of the Directive – The bottom of the page consists of 3 buttons. 1) Back to Part 1 takes the end user to the previous page, 2) the end user can clear the text entered on this page or 3) Go to Part 3 takes the user to the third page of the directive.

b.a.

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Take Action Page – Part 3a. Part 3 of the Directive – This part of the directive allows the end user to enter their name, address, and date, print the form the sign it. b. Bottom of Part 2 of the Directive – The bottom of the page consists of 6 buttons - 1) Back to Part 2 takes the end user to the previous page, 2) the end user can clear the text entered on this page or 3) print all 3 sections of the directive. 4) In addition, the Final Step for the end user is to print either the Witness Form or the Notary form. One of those pages are required to ensure the directive is official. 5) The Nursing Home Form button allows the proper form to be printed and signed, then the end user must submit it to the director of the nursing home.

b.

a.

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Take Action Page – Witness Forma. Witness Form – This form provides directions concerning the requirements to be an advance directive witness. There is space for 2 witness as required to make the directive official

b. Bottom of Part 2 of the Directive – The bottom of the page consists of 4 buttons - 1) the end user can clear the text entered on this page, 2) the user can print the witness form, 3) the user can view the Notary Form if they decide that they do not have 2 appropriate witnesses and 3) the user can complete and print the Nursing Home then submit it to the director of the nursing home.

b.

a.

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Take Action Page – Notary Forma. Notary Form – This form provides directions to have a Notary Public sign the form. b. Bottom of Part 2 of the Directive – The bottom of the page consists of 4 buttons - 1) the end user can clear the text entered on this page, 2) the user can print the notary form, 3) the user can view the Witness Form if they decide that they do not want to use a Notary and 4) the user can complete and print the Nursing Home then submit it to the director of the nursing home.

b.

a.

16Take Action Page – Nursing Home Form

a. Nursing Home Form – This form provides directions to have a Notary Public sign the form. b. Bottom of Nursing Home Form – The bottom of the page consists of 4 buttons - 1) the end user can clear the text entered on this page, and 2) the user can print the notary form.

b.

a.

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Conclusion Website Prototype

3 Main Aspects Reasoning for planning Learn how to create a directive Take action and complete the directive

Meets Problem Resolution Goals Takes end user from pre-contemplation

to contemplation to action.

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Thank You for Your Consideration this Design Solution to improve End-of-Life

Care Preparation!