DSAA Today’s Family Connection

Planning for 2016 is already underway, so reach out to me directly ([email protected]) with ideas or to get involved. We could not do it without each of you!

Humbly yours,

in this issue2 Messages from President

and Assistant Director

3 2015 Buddy Walk

4 Adult Disability Medical Home (ADMH) Update

5 A New York City Buddy Walk Experience

6 Diff erent Ways to Donate to DSAA

8 Birthdays

10 DSAA Community Groups

11 More 2015 Buddy Walk

DSAA Today’s Family Connection

FoUrTH QUArTEr 2015

2221 Peachtree Road NESuite d-226Atlanta, GA 30309

P. 404.320.3233 F. 404.228.7475

[email protected]

Connect With Us

As this newsletter goes to print, DSAA staff is recovering from another amazing Buddy Walk.® This year’s event was the biggest and best yet! Funds raised from the walk are critical to DSAA’s operations, allowing us to continue to serve our families and provide programming and resources to the Down syndrome community.

Every year, I am humbled by the hugs and love that spread across the park as we come together to celebrate. New families meet what will become lifelong connections, old friends reunite and all around we showcase the power of acceptance and inclusion.

We say it again and again, but Buddy Walk — and DSAA — would not exist without the support of our amazing members, their friends and families, our vendors, sponsors and dedicated volunteers. We thank you from the bottom of our hearts for your continued involvement.

Recognition goes out to each and every person that helped us raise $200,000 this year! A special shout out to our top team and individual fundraisers who all rock.

FroM EXECUTiVE DirECTor VANESSA CHAMpLiN

Top iNDiViDUAL FUNDrAiSErS1. Todd Hartle $8,761

2. Tachi and Alyssa Hahn $5,350

3. Amber Wehr $3,095

4. Kris Keller Corn $2,245

Top TEAM FUNDrAiSErS1. Team Natey Boy $14,034

2. Wyatt’s Walkers $13,566

3. Laced up for Lucy $5,906

3. Callie’s Crew $5,965

pLATiNUM

SiLVEr — Th e RMN Agency

BroNZE

EXECUTiVE DirECTor

Vanessa [email protected]

ASSiSTANT DirECTor

Stephanie [email protected]

2015 DSAA BoArD

Edward [email protected]

Erenia Castillo [email protected]

John Ducat [email protected]

Todd [email protected]

Justin [email protected]

Lisa Newbern [email protected]

Jennifer SheranSECrETArY [email protected]

Clair [email protected]

Bess WinebargerSELF-ADVoCATE

Chris [email protected]

Can you believe Th anksgiving is around the corner, and our 18th Annual Buddy Walk Atlanta has already come and gone?! You know what they say, “Time fl ies when you’re having fun!”

Anyway that you look at it, this was our best Buddy Walk to date! Th is was my third Buddy Walk to work on, and it was just as exciting as the fi rst one. Our vendors are always so eager and happy to come back year aft er year because of the excitement and passion our families bring to the day. And I just wish we could take credit for the beautiful weather!

We were thrilled to bring back a lot of the same things as last year, such as the bouncy houses, Game Truck, Super Heroes and Sonny’s Bar-B-Q, but we were excited to add the photo booth and some new behind-the-scenes vendors to our event.

Another thing that always makes Buddy Walk such a success is our committed and enthusiastic volunteers! Th ey show up at 9:00 a.m. ready to help us setup for the event. Th ey stick around throughout the day to help serve food and drinks, manage the bouncy houses and lines at the Game Truck and photo booth. Th en at the end of the event when everyone is gone, they help us cleanup. Without them, we really could not have Buddy Walk,® and I would personally like to give a huge shout out to every single of one of them. Your dedication and commitment to Buddy Walk and DSAA is priceless.

I would also like to thank all of our sponsors. Th is is another thing that makes Buddy Walk happen. Without our sponsors, we couldn’t have awesome restrooms, tents, iPads for check-in and funds for the great stage and food. We truly appreciate all of them. Be sure to check out the full list on page 3.

And, lastly, I was so excited to have WSB-TV back as our media partner. Th ey are a valuable avenue for getting the DSAA story out to the rest of Atlanta, and I was honored that Mark Winne returned as our VIP emcee.

We’re already planning for 2016, so if you have ideas and/or think your company might want to sponsor, let us know by emailing me at [email protected].

FroM ASSiSTANT DirECTor STEpHANiE DoNLAN

2 | DSAA Today’s Family Connection | Q4 2015 844-DSAA-CARE | www.dsaatl.org | 3

2015 Buddy Walk

Wow — what a great day! Thank you to everyone who helped make Buddy Walk 2015 such a resounding success.

From our staff to our volunteers to our dedicated teams — everyone worked extremely hard to make this the best Buddy Walk yet. Every year I fi nd myself wondering how we will top ourselves the following year, and every year I’m amazed at how much more we are able to accomplish and how many more people we are able to reach. More than anything, the success of the Buddy Walk is a testament to the strength of our community and the unstoppable force of people uniting for a common goal. Th e Buddy Walk gives people an opportunity to get together and celebrate the wonderful capabilities of individuals with Down syndrome and the strength of those devoted to the cause and helping those in need. Th e staff , volunteers and participants take great pride in the Buddy Walk, and rightfully so — it’s a fantastic event.

Th anks again to everyone for all their help and support. I cannot wait to see what we can accomplish in 2016.

FroM prESiDENT JoHN DUCAT

2015 BUDDY WALk SpoNSorS

A big THANk YoU to our 2015 sponsors, we appreciate each of you!

— American Family Insurance, Mischel Pendleton Agency

— Children’s Healthcare of Atlanta, Sibley Heart Center Cardiology

— Howe Contracting, LLC

— Kiddo’s Clubhouse

— Kroger

— Meredith Hilton, Attorney at Law, LLC

— Peachtree Tents and Events

— Redfi n Atlanta

— Rodan and Fields, Tachi Hahn, Independent Consultant

— Team Depot/Th e Home Depot

— Xorbia Tickets

— 501st Legion

— AT&T Peach State Pioneers

— Auction Horizon

— Baseline Jumps

— Bowers Watch and Clock Repair

— Community BBQ

— Corporate Apparel and Promotions

— GameTruck

— Happy Tails

— Jay Memory

— Madison Shea

— Marietta Dry Ice

— S&L Entertainment

— Sonny’s BBQ

— Th e Food Movement

roUTE

A New York City Buddy Walk Experience by Whittney Moody, mother to Jude Moody

Our family was thrilled when we received word that our son, Jude, was chosen to be featured in Times Square for the New York City Buddy Walk. Jude was born March 13, 2014 at 35 weeks. We were able to bring him home on March 21st, which seemed so fitting since it was World Down Syndrome Day. Since Jude’s birth our family has been passionate about reducing the stigma of disability and raising awareness about Down syndrome.

We were so excited to travel with Jude and our other two children, Mikayla and MT, to New York City to participate in the Buddy Walk. We joined with many other families in Times Square to watch a video on the CNN jumbotron featuring over 400 individuals with Down syndrome. The excitement in the air was amazing, and we loved meeting other families from all over the country who were in NYC for the same reason

One inspiring family we met was from Pennsylvania. They adopted three beautiful girls from Russia, and all three have Down syndrome. We also met families from Massachusetts, California and Oklahoma.

One thing we have learned is that no matter where we go, the Down syndrome community is so open, supportive and encouraging. Our trip was filled with the usual tourist attractions from seeing the Statue of Liberty to visiting the 9/11 memorial and walking the Brooklyn Bridge; however, the highlight of the trip was seeing Jude on the Times Square Jumbotron and walking around Central Park with hundreds of other families who are on the same journey as we are.

Our clinic serves individuals and families of all ethnicities. We have patients from India and from Afghanistan. Several come with a family member that is new to the state of Georgia and are assisted in accessing a new system of care. We have a caring nurse who serves as our medical interpreter when our Spanish speaking families come to clinic and utilize an interpreter to translate their reports in their native language.

Our team collectively has over 80 years of experience in the fields of health and developmental disabilities. Our team members are on the forefront of education and research. We have presented at the Down Syndrome Medical Interest Group at the NDSC conference, the Georgia Chapter of the American Academy of Pediatrics, the All About Developmental Disabilities workshop and are selected by the NIH to develop standards of care for adults with Down syndrome. We met many of you at The Buddy Walk and hope to get to know you and your families.

From each of us on our team, we send you our regards for a wonderful holiday season. Please feel free to contact us with your questions and to set up an appointment at 678.595.4854.

Urban Family Practice Associates 2520 Windy Hill Rd, Suite 303 Marietta, GA 30067 Visit us at www.theadmh.org or www.facebook.com/theADMH

We listened to the families we serve and made the changes in health delivery and access of services to accommodate their needs. First and foremost, we are so appreciative of the backing of our partnerships with Urban Family Practice Associates, the Down Syndrome Association of Atlanta and Georgia Healthy Family Alliance. All believe in our mission to serve individuals with Down syndrome and other developmental disabilities using gold standard comprehensive care through the Medical Home practice concepts.

At this time we are serving six to eight patients per month with our Adult Disability Medical Home where we provide comprehensive wrap around services. Other families opt to make UFPA as their medical home and are monitored for primary care. Some families choose to continue with their own primary care physician and ADMH consults with that medical practice as needed. We know that individuals with Down syndrome are living longer more productive lives and our goal is to make each as healthy and productive as possible.

We see individuals ranging in age from 12 to 70 coming to us from far and near, with a variety of insurance but mainly Medicaid and Medicare. The issues vary from transitioning from pediatric to adult services, medication issues, obtaining care from a knowledgeable medical team, to educational, behavioral and long term planning.

With our patient permission, here are some of their stories.

BrandonBrandon had not had a comprehensive physical in some time and came to us for a physical to participate in Special Olympics. At age 23, he and his zmother were anxious for his community involvement. After a comprehensive physical assessment, our doctor identified a heart murmur that had not been previously detected. A referral was made to the adult congenital heart center where a serious

heart defect was discovered. With surgery now behind him, Brandon feels and looks much healthier and is now ready to move toward community based services.

MichaelA now 70-year-old man with Down syndrome came to our clinic with several medical issues accompanied by his sister and niece. Michael resides with them in their family home where he receives some health service supports. As part of his initial visit, we found out that Michael’s bedroom is on the second floor and his family members were carrying him up the stairs since he is unable to negotiate the stairs on his own. We worked with the family to obtain a lift and a hospital bed. We were even able to help with mobility issues and were able to get him out of his wheelchair and taking a few steps.

AlAl, age 16, lives with his grandparents. When he first came to us, there were complex medical and behavioral issues. After his initial assessment, our team came up with a behavior plan and provided guidance to his grandmother in regards to his educational placement, strategies and other IEP issues. The family was so pleased with his care that he has made UFPA his medical home, and the family has now received much needed respite care.

TenaTena moved to a residential facility after her mother passed away and has a loving relationship with her sister. Janet contacted us since it had been some time since her sister had a comprehensive assessment. When she came to our clinic she was indeed frail. We were able to obtain parts of her initial assessment, but we were unable to obtain several needed laboratory and x-ray evaluations. In order to meet her needs, we referred her to our collaborating contact at Emory University Hospital where Tena was admitted and obtained all the necessary testing. The family and ADMH received the necessary results and we have been able to come up with a treatment plan for her health concerns. We are also working with the family on long term planning issues.

Wesley and Bradley The moms of Bradley and Wesley have been friends since their boys were quite small. When the young men were ready to transition to the community, the moms created an environment in which the guys would be roommates with Wesley’s mom serving as house parent in a host home. They have recently relocated from South Georgia to Conyers and are busy in their communities. At ADMH, both

participated in a pilot nutrition program. Bradley’s medications were reviewed and adjusted and are now being tracked by our doctors. He has been encouraged to lose weight and has lost well over 20 pounds. Wesley’s medications have also been reviewed and adjusted. Both have made Urban Family Practice Associates their medical home and are comfortably involved in their community.

844-DSAA-CARE | www.dsaatl.org | 5

The Adult Disability Medical Home (ADMH) is nearing our first year birthday, and we are proud of our patient care and non-profit and board development.

Adult Disability Medical Home (ADMH) Update

4 | DSAA Today’s Family Connection | Q4 2015

(l to r) Marlene, Janice, Jeff, Andi, Kathryn and Manuela

Emory Down Syndrome Clinic Update

The Emory Down syndrome clinic is now accepting appointments with Dr. Talboy. Watch for more information in our next issue.

844-DSAA-CARE | www.dsaatl.org | 76 | DSAA Today’s Family Connection | Q4 2015

Different Ways to Donate to DSAADid you know you can donate more than just cash to DSAA? By DSAA board member Edward Bradley of Nobility Capital Group

You can donate many different types of property to charity. The amount of your charitable deduction for income tax purposes depends partly on the type of property you donate. The general rule is that your charitable deduction is limited to either 30 percent or 50 percent of your contribution base (your contribution base is generally equal to your adjusted gross income), depending on the type of property you donate and the classification of the charity as a public charity or a private foundation (although lower limitations may apply to contributions of capital gain property). Any amount that cannot be deducted in the current year can be carried over and deducted for up to five succeeding years (the carryover rule), assuming you continue to itemize deductions.

There are six general categories of property you can donate to charity.

— Cash — Long-term capital gain property — Ordinary income property — Tangible personal property, where the charity’s use of that property is related to the functions of the charity

— Tangible personal property, where the charity’s use of that property is unrelated to the functions of the charity

— Future interests in property

#1 – CASH This is the easiest item to donate to charity. If your charity is a public one, your deduction is limited to 50 percent of your contribution base. The value of your gift is simply the amount of cash donated. The carryover rule applies so that any amount that cannot be deducted in the current year can be carried over and deducted for up to five succeeding years.

#2 – LoNg-TErM CApiTAL gAiN propErTY Long-term capital gain property is property that would have produced a long-term capital gain if it had been sold rather than donated to charity. Remember, a gift to charity is not the same as a sale to charity. Capital gain is considered “long term capital gain” when property to which it applies has been held longer than 12 months.

There are two types of long-term capital gain property:

— Intangible personal property and real property, such as stock or land — Tangible personal property, such as a car, sculpture or jewelry

When you donate intangible long-term capital gain property to a public charity, your deduction is limited to 30 percent of your contribution base. The carryover rule applies. The full fair market value (FMV) of the asset is used to determine your charitable deduction.

Example 2-1Suppose you donate stock with a current FMV of $50,000 to a public charity. Ten years ago, the stock cost $15,000. The result is that the full FMV of the stock is deductible, limited by the percentage rules. If your contribution base is $100,000, your deduction for the present year is

$30,000 (30 percent of $100,000). You can then carry over and deduct the $20,000 balance of your available deduction in the following year.

Technical Note: There is an election you can make in certain situations that will increase your deduction limit from 30 percent to 50 percent of your contribution base. The catch is that you must then reduce the value of the gift by the potential gain. This election is useful if your income fluctuates widely from year to year and if the appreciation of the donated asset is small.

Example 2-2Suppose you donate long-term capital gain property to charity with an original cost of $9,500 and an FMV of $10,000 at the time of the gift. Assume your contribution base is $22,000.

Example 2-3If you don’t choose the election, the 30 percent limitation applies and your maximum allowed deduction for the year is $6,600 (30 percent of $22,000). You must carry over the remaining $3,400 ($10,000 minus $6,600) to the following year.

Example 2-4If you choose the election, the value of your gift ($10,000) must be reduced by the potential gain ($500). Your gift is valued at $9,500. However, you are then able to use the 50 percent limitation. Your maximum allowed deduction is $11,000 (50 percent of $22,000), and you can deduct the entire $9,500 in the given year.

Note that DSAA has a program set up with Vehicles for Charity if you do have a vehicle you’d like to donate. More information is found here: https://www.vehiclesforcharity.org/Donate/DSAA.html

#3 – orDiNArY iNCoME propErTY Ordinary income property is property that would have generated ordinary income (rather than capital gain) if the asset had been sold rather than donated to charity. Ordinary income property includes:

— Property held less than the requisite long-term period — Section 306 stock (stock acquired in a nontaxable corporate transaction) any gain recognized upon the sale of Section 306 is treated as ordinary income

— Works of art, books, letters, and musical compositions, but only if given by the person who created them or for whom they were prepared

— InventoryIf you donate ordinary income property to a public charity, your deduction is limited to 50 percent of your contribution base. However, the tax code does not allow you to deduct the full FMV of such a gift. Instead, your deduction is generally limited to your actual cost for the property, plus any adjustments such as improvements or depreciation. This figure is commonly referred to as your basis in the property.

Example 3-1Suppose Julie donates one of her paintings that she created worth $50,000 to an art museum. The result is that her deduction would be limited to her cost for producing the painting (canvas, paint, brushes etc.). She would not be entitled to a deduction for the painting’s FMV of $50,000.

Example 3-2Similarly, suppose you donate stock worth $25,000 to a public charity. You purchased the stock four months ago for $12,000. Because the sale of the stock would have resulted in short-term capital gain had you sold it instead of donated it, you can deduct only your basis, in this case, $12,000.

Tip: Gifts of substantially appreciated ordinary income property should be avoided, if possible, because your deduction is based on your basis in the property, rather than the FMV of the property.

Technical Note: An exception to this rule is when a corporation donates ordinary income property (such as inventory) to a charity that serves the ill, the needy or infants, and when the use of the property is related to the charity’s purpose. In such a case, the allowable deduction is equal to: (a) the cost of the asset, and (b) one-half of the potential gain in the property.

Example 3-3Suppose a pharmaceutical corporation donates $11,000 worth of medicine (inventory) to the Red Cross. If the cost of the medicine was $5,000, the corporation can deduct $8,000 ($5,000 cost plus one-half the $6,000 potential gain).

#4 AND #5 – TANgiBLE pErSoNAL propErTY Tangible personal property includes items such as cars, paintings, and jewelry. The IRS makes a distinction between gifts that will be used by the charity in a manner related to the charity’s functions and gifts that will not be used in a manner related to the charity’s functions.

Example 4-1If you donate a painting to an art museum for display, the use of your gift is related to the museum’s exempt functions. However, if you donate the same painting to the Red Cross, the painting is unrelated to the exempt functions of the Red Cross.

The rule is if the donated property is related to the charity’s functions, then your deduction is the fair market value of the property, limited to 30 percent of your contribution base. However, if the donated property is unrelated to the charity’s functions, your deduction is your basis (cost) in the property, limited to 30 percent of your contribution base. The carryover rule applies in both situations.

Example 4-2Let’s suppose you donate a collection of whaling harpoons to the Whaling Museum for display purposes. The collection has a basis of $2,000 but on the date of donation, it was worth $10,000. Assume your contribution base is $20,000. Because the harpoons will be used in a manner that is related to the museum’s functions, your deduction is based on the FMV of the property ($10,000) and capped at $6,000 (30 percent of $20,000) for the present year. The $4,000 balance can then be carried over and deducted in the following year.

Example 5-1However, if you had donated the harpoons to the Red Cross, your deduction would be limited to your basis in the harpoons ($2,000) because the charity’s use of the harpoons would be unrelated to its exempt functions. Because your maximum allowed deduction for the year is $6,000 (30 percent of $20,000), you would be able to deduct the entire $2,000 in the present year.

#6 – FUTUrE iNTErESTS iN propErTY A future interest is one that will vest in possession or enjoyment at some time in the future.

Example 6-1Suppose you donate an original painting to the local art museum, but stipulate that the painting is to remain in your home as long as you live. The result is that the museum has a future interest in the painting.

The general rule of charitable gifts is that the gift must actually be paid to the charity in cash or other property before the close of the tax year in order for the donor to be entitled to a charitable deduction for that property in that year. Therefore, a transfer to a charity of a future interest in property is not deductible until the charity has a free and clear right to possess and enjoy the property. The exception to this rule is when the gift of the future interest is in the form of a future interest in trust. Here, the future interest is tax-deductible when the gift is made even though the charity may not enjoy the gift for several years. The tax laws permit several types of trusts to be used for the purpose of making charitable gifts of future interests, including charitable remainder annuity trusts (CRATs), charitable remainder unitrusts (CRUTs), pooled income funds, and charitable lead trusts. If you comply with the requirements for formation of these trusts as set forth in the Internal Revenue Code and corresponding regulations, you can receive income, estate, and gift tax benefits.

Dylan AllenSophia AmirpourJamie AndersonJack AndersonStephan BilsonSara BoletBryson BostedtKristina BrewsterJonathan BrownBowman CaldwellJean CarrKholin Chen PhangJamaal CooperJenna DawsonEmma DymekMadisyn FosterAyoca FreemanTaylor FreemanAnnabella Lee GalamoreLogan Garner

Marti GriecoJohn GrossMaddie HarrisonWyatt HartleAnna HillKennedy HinesMelissa Hoff manHannah Marie KeithAndrew KernZaid KhaderMadeline KnoxIthan William KweiAJ LeverettEvan LongNoah James MaloneNathan MartinMargaret “Maggie”

MathesonMaya MathisDrew McClanahan

Tucker MitchellMolly MontgomeryZoe NelmsKevin NguyenCourtney OwensMarc PiccoloReedus RogersLandon ScholppAnari SekumadeKelvin StarksBryce StroudLukas TangMakayla ThomasCatherine (Cate) TyranAdam UtterbackChristian WatkinsMonte WattsZachary WillinghamElise Zylstra

Birthdays

Jeremy AhnLeonel AlvaradoEmma Madison AustinMalik Bajraktarevic Andrew David BarnesNatalie BroekerGriffi n BrownRachael CampbellTaylor Will CarterNoah Alexander ChrystalAngela ClarkJoe ClarkNevaeh CrowellKayla EvansJasmine FaichneyJayden GreshamAddie GunnellsKareem HakeemJohn A. Harvey IV

Matthew HayesJaydah HectorEmma Farrell HenleyTabitha HoggRachel HunterCasim I. JoynerJake KingClaire E. LanhamMegan MacArthurKevin MackeyJohnathan Lanning

MckinleyAdison ModlyMaya Corinne OliverKarynmarie PowellHaley PriceLinda RaschkeIsaiah Remoe-DohertyJoshua Roberts

Johnathan RobinsonAmy RogersCristian RogersChanel Saff oBrennan SharpRuss SilverJames Riley SmithArianna StevensRylan Grace TurpinGavin ViolanteKendra VongsavathJosh WarnerMyah Miracle

Warren-BullockJonathon (Alex)

WhitemanDonna WilliamsChristopher Yancy

NoVEMBEr

Gabrielle AllenBobby Aniekwu Jr.Sara BaumblattJeanne BondLou BontempoJordan CarterCaleb ChildersSlade Thomas CiappinaMichael CroftonMeredith CummingsPatrick Essen

Riley FleuryKasey FradyJohn GaoElizabeth GrinerZakk HarmonSteve HarrisonErin JarrellElijah KendrickShaelyn LottAmanda McGlaunBeth McMurry

Tracy MoonIan MurrayTammy OmolabiCynthia OutmanJoseph PageRiley PalmerJohn Michael PattonToby PresleyJackson PursleyBrandon Ramirez LeyvaRicky Reed

Dexter RhymesBrooks ShawRyan Stampfl iJonathan Chandler

SummerAshanti Ruby TaylorJessie Maddux TowsonYesenia Martinez

VelazquezAudrianna WilliamsMary Wood

oCToBEr

DECEMBEr


Happy birthday to Jackson Pursley (age 10), Natalie Broeker (age 7) and Wyatt Hartle (age 6)

gET FEATUrED

Share your photos for a chance to be featured in upcoming newsletters! Send a high-resolution JPEG or similar fi le with your child’s name, age and birthday by January 1to [email protected].

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oCT 1818TH ANNUAL DSAA BUDDY WALk

2221 Peachtree Road NESuite d-226Atlanta, GA 30309

SAVE THE DATE ViSiT www.dsaatl.org/calendar To rSVp

December 5 7–9 pm

Holiday Dance Marcus Jewish Community Center of Atlanta

December 6 2–4 pm

Holiday Party Mt. Paran Church, Great Hall

January 23 DSAA Q1 Birthday Party Gigi’s Playhouse

January 30 FOCUS/DSAA Conference Dunwoody United Methodist Church

February Education Day TBDTopic TBD

September Education Day TBDTopic TBD

October 2016 Buddy Walk TBD

DSAA Today’s Family Connection is a benefit of your annual membership. To renew or join today visit www.dsaatl.org

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DSAA Today’s Family Connection