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CUMBERLAND and
PERRY COUNTIES, PA NEWS
P. 1 - Membership article w plea P. 2 - Program schedules, Board
Roster, and membership solici-tation
P. 3 - Notice of phone conference about employment
P. 4 - Various notices P. 5 - Article about PPI in Harris-
burg, article about NAMI’s Exec Director on Nat’l Com-mittee
P. 6 - Article about First meeting of ISMICC
P.7- Information about Health Care battle that still looms
P.8—9 Bonus pages for email recipients
Sept 21st-Support Meeting in Carlisle
Sept 26th-Board Meeting
Oct 5th– MH/IDD teleconference on
employment
Support Meeting on West
Shore
Oct 6th-Candlelight Vigil in New
Bloomfield
Oct 16th-Support Meeting in Harris
burg
Oct 19th-Support Meeting in Carlisle
SEPTEMBER MEETING
NAMI PA of CUMBERLAND and PERRY COUNTIES
THURSDAY, SEPTEMBER 21, 2017 at S.T.A.R.
253 Penrose Place, Carlisle, Pa.
7:00 —8:30 Support Meeting
P.O. Box 527 Carlisle, PA 17013
https://namicppa.org/
Message line number:
240-8715
NAMI CP of PA needs your membership now. Changes in NAMI processes over the last 3 years have eroded our actual membership. The maintenance of our membership roll data has been moved to the NAMI national. We used to keep track of our own members and jog renewals in the first quarter of each year. Though the national always granted member-ships for a year from the date of joining, we considered memberships as being effective for a calendar year. This enable us to jog our members for renewals in the first quarter of each year.
The new membership model has many advantages. Members have greater assurance that they are on the rolls with the national organization. A full year from the anniversary date of membership is a fairer deal for members.
The disadvantage to the new method is that our affiliate does not have the staff to jog for renewals that may need to happen throughout the year. The national does not have the same level of connection to members as we have as an affiliate, particularly for those who do not have an email associated with their name membership with the national.
Your membership is very important. Going into 2018 it may be required in order for you to receive this newsletter by email. A robust membership increases the volume of our voice to local, state, and national policy makers. Membership dues are the part of our budget that can support activities other than the newsletter and education programs that are funded by the county MH office.
It is important that everyone take responsibility for their own membership renewal. Please send in a membership application or renewal now. If you are already on the rolls your membership will be extended. If you have been receiving this newsletter but have not been a member, become a member now to strengthen our family.
Duplication and distribution of this Newsletter is made possible by the MH/IDD Board of Cumberland/Perry Counties
Inside this issue:
NAMI NEEDS YOUR MEMBERSHIP NOW !
NAMI is the largest nationwide, grassroots membership organization devoted to improving the lives of those affected, directly and indirectly, by serious mental illness. NAMI is comprised of family members, friends and consumers.
Volume XX, Issue 9 September 2017
Calendar:
Contact Us:
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NAMI Pa. Cumberland/
Perry Counties
P.O. Box 527
Carlisle, PA 17013
https://namicppa.org/
Message line number:
240-8715
Officers:
President:
Kathleen Zwierzyna 717-877-7214
Vice President:
Thom Fager
Treasurer: Stephen
Zwierzyna
Secretary: Maureen
Baumgartner
Board of Directors:
Laryssa Gaughen
Sarah Roley
Dolores Stevens
Tonia Milliken
Publisher:
NAMI Pa. Cumberland/ Perry
Counties
Editor: Taylor P. Andrews
243-0123 or 243-1645
SEPT. 2017 Vol. XX No. 9
What: Support Group Meeting When: Meets 3rd Thursday of each month Location: STAR (253 Penrose Place Carlisle, PA 17013) Time: 7:00 pm up to 8:30 pm there will occasionally be an edu-
cational program. When there is an education program it shall run from 7:00 PM until 7:50 PM, and the support meeting shall follow at 8:00 until 9:00 PM
Sept. 21, 2017 7:00 up to 8:30 PM—Support Meeting
WEST SHORE SUPPORT GROUP
Meets at 6:30 PM on the 1st Thursday of each month at St. Timothy’s Lutheran
Church, 4200 Carlisle Pike, Camp Hill, PA. There may be an education program 1x
per quarter. Call Hazel at 737-8864 for information.
Oct 5, 2017
6:30 to 8:00 PM—Support Meeting
support
DAUPHIN COUNTY SUPPORT GROUP [Assoc with NAMI PA Dauphin County]
Meets at 7:00 on the 3rd Monday of each month at the Epiphany Lutheran Church
at 1100 Colonial Rd., Harrisburg, PA. Contact Marge Chapman at 574-0055 for more
information.
Oct 16, 2017
6:30 to 8:00 PM—Support Meeting
$40.00 For an individual
Membership includes membership in NAMI [national] and NAMI PA, and Subscriptions to The Advocate,
The Alliance, and NAMI PA C/P News.
$60.00 For a Household
A Household consists of two or more people living at the same address. A Household has one vote, and
will receive one copy of subscriptions.
$5 - $35.00 For “Open Door” membership
Anybody can opt to join as an open door member. Dues are any amount that can be afforded. This
option is available so that membership is not denied due to financial hardship. Open door members are
regular members with all the privileges and powers of membership including all subscriptions.
$75.00 For Professional Membership
A Professional member shows support for the mission and goals of the organization. Upon request, NAMI
PA C/P will provide multiple copies of our newsletter for the waiting room of Professional Members.
Make Payment to: NAMI CPPA
Send Payment to: NAMI CPPA , Box 527, Carlisle, Pa 17013
JOIN NOW TO BECOME PART OF THE NAMI FAMILY
Memberships submitted now will extend for a year
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OCD SUPPORT GROUP
ENCOURAGING, INFORMATIVE, MEETINGS FOR PERSONS WITH OCD AND THEIR FAMILIES AND FRIENDS
Third Monday of each month - 6:30 p.m. ‘til 8:00 p.m.
Trinity Evangelical Lutheran Church, 2000 Chestnut St., Camp Hill, PA 17011
PROFESSIONALLY FACILITATED - FREE OF CHARGE
(this is not a NAMI group)
NAMI Cumberland and Perry Counties needs
Individuals who will become ac-tive with NAMI as
Teachers [Family to Family or Peer to Peer or other signature programs]
Support Group facilitators
Speakers for Speakers’ Bureau
Board Members
Program coordinators
Event Planners
If you are interested you should contact one of the Board Mem-bers or Officers listed on Page 2
Step Up and make our Community even stronger.
5
READY to Stop a Revolving Door
Everyone talks about stopping the revolving doors of poor mental illness outcomes. Now a Pennsylvania psychiatric facili-ty has demonstrated a winning approach to slowing one of them: rehospitalization. The Pennsylvania Psychiat-ric Institute in Harrisburg slashed its 30-day psychiat-ric readmission rate in half - from 20% in 2013 to 10.4% in 2015 - with a toolkit called the Discharge READY Program. The bene-ficiaries were high-risk pa-tients with substance use risk or other co-morbidities, 40 or more outpatient visits per year and at least one inpatient or partial-hospitalization admissions. Five Key Steps The Agency for Healthcare Research and Quality (AHRQ) devel-oped a model on which the READY program was based. The program incorporates five key steps:
A nurse introduces inpatients at high risk for 30-day read-mission to the program before being discharged.
After agreeing to participate in the program, each patient is scheduled for five weekly phone calls by a nurse.
The calls begin 48 to 72 hours after the patient goes home.
During the calls, the nurse reviews discharge instructions and assesses any issues that might require additional support.
Together, the nurse and the patient develop an action plan for each week. In addition to reducing readmission to the hospital - a primary measure of outcome - the approach produced high patient satisfaction: Patients rated their experience as 9.21 out of 10, on average, from 2013 to 2015. "Using the toolkit has been a win-win for everyone - patients, health care staff, and family members," Theresa Terry-Williams, the Institute's chief nursing officer, said in a case study pub-lished by AHRQ ("Pennsylvania Psychiatric Institute Slashes Re-admission Rates with AHRQ-based Discharge Program," May 2017). The regional benchmark for readmissions for behavioral health providers in the Northeast region of the country is 10.9%, the case study reported. The 30-day federal benchmark for readmis-sions is 10% or less. Prior to implementing the program, the Institute had a higher 30-day readmission rate than three other acute-care facilities in the region. The success of the program reduced its rate to below the federal benchmark.
Doris A. Fuller
Chief of Research and Public Affairs
References:
Agency for Healthcare Research and Quality. (May 2017). (Pennsylvania
Psychiatric Institute Slashes Readmission Rates with AHRQ-based Dis-
charge Program. US Department of Health & Human Services
Mary Giliberti Appointed to Federal Serious Mental Illness Coordinating Committee 8/16/2017 NAMI Chief Executive Officer Mary Giliberti has been selected to serve as a non-federal member of the Department of Health and Human Service’s Interdepartmental Serious Mental Illness Coordinating Committee. The committee was established pursuant to the 21st Century Cures Act of 2016 to provide guidance to Congress and relevant federal agencies about advances in research and access to services for people with serious mental
illness (SMI) and youth with serious emotional disturbance (SED). The committee is also charged with providing specific recom-mendations on how mental health services for adults with SMI and children with SED can be better coordinated. “I am honored to have been chosen to participate in this important committee as a representative of NAMI and its members: individuals and families affected by mental illness,” said Mary Giliberti. “I will be listening to our members and bringing their input to this critical work to shape federal priorities for improving mental health services for those with the greatest needs. I look forward to keeping our community informed as the committee’s work progresses.”
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“10-10-10”
(Sept. 7, 2017) Health and Human Services Secretary Tom Price used those numbers to open the inaugural meeting of the Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC) and to explain why he made serious men-tal illness a top HHS priority. Ten million Americans live with serious mental illness every year. Those Americans live 10 years less than the broader population, according to SAMHSA estimates. And citing the Treatment Advocacy Center’s re-search, Secretary Price noted the final 10: ten times more Americans with serious mental illness are in jails and prisons than in psychiatric hospitals. It is difficult to overstate the potential this committee has to be different than other initiatives we’ve seen from SAMHSA in the past. Chief of which is how it was created: it was born out of landmark bipartisan legislation that recognized the federal government was failing the severely mentally ill. Consequently, the ISMICC is expressly focused on severe mental illness and the needs of the most severely ill. It also meets at the Health and Human Services agency and is led by the newly appointed Assistant Secretary for Mental Health and Substance Abuse, Dr. McCance-Katz – giving the committee added federal credi-bility. And finally, it includes us! Treatment Advocacy Center Executive Director John Snook is one of 14 non-federal mem-bers of the committee. The first meeting served to ground the committee in the seri-ousness of the crisis and the urgent need for solutions. In fact, the first report out of the committee to Congress is due this winter. Although this is a tight timeline, we are encouraged that the committee isn’t looking to shy away from important issues. In fact, the committee has already committed to taking up vital topics like assisted outpatient treatment (AOT), the
need for more hospital beds, decriminalizing mental illness, addressing HIPAA and up-dating civil com-mitment stand-ards.
The Treatment Advocacy Center will be your voice on this com-mittee, but we need to hear from you. In the coming weeks and months, we will be soliciting comments and recommenda-tions from our supporters as to the issues we should be de-manding action on and the solutions we must champion. To-gether, we will finally reshape the federal government’s re-sponse to severe mental illness and achieve Dr. Torrey’s vision for lasting reform. We can do it; we’ve already taken the first steps!
Doris A. Fuller
Chief of Research and Public Affairs
IF YOU HAVE INTERNET ACCESS and IF YOU ARE NOT CERTAIN OF YOUR MEMBERSHIP STATUS
GO TO https://www.nami.org/ and
EITHER JOIN OR RENEW YOUR MEMBERHIP WITH NAMI and
CREATE AN IDENTITY ON THE WEBSITE and
SEE THE TERRIFIC INFORMATION THAT IS AVAILABLE
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Health Reform Bill (Again)
Just a few months ago, we were celebrating the defeat of
health reform efforts that would have left millions without in-
surance and cut insurance protections for millions more. Enter
Senators Bill Cassidy (R-LA) and Lindsey Graham (R-SC), who
just introduced legislation to repeal and replace the Affordable
Care Act (ACA).
With any health reform bill, NAMI asks the simple question,
“Will Americans have more mental health coverage and better
care?” For the Graham-Cassidy bill, the answer is unequivocally
no.
While the Graham-Cassidy bill is being promoted as offering
more flexibility, it will make it harder for people to get psychi-
atric medications, case management, and mental health ser-
vices—and other people with mental illness will lose their cov-
erage entirely.
The Graham-Cassidy bill:
Allows states to drop the requirement to cover mental health care. Today, Exchange plans are required to cover essential health benefits, which include treatment for mental health and substance use conditions. Under this bill, each state will have the freedom to drop or change these requirements, putting mental health benefits at risk.
Shifts Medicaid funding to a “per capita cap” sys-tem. Shifting to per capita cap funding (a fixed amount of funding per person) may sound reasonable, but would not keep up with growth in costs and needs. This will force states to cut Medicaid services and eligibility, which will harm children and adults with mental illness.
Effectively ends Medicaid expansion. One in three people covered by Medicaid expansion plans lives with a mental health or substance use condition. Under this bill, Medi-caid expansion will be converted to a smaller, temporary block grant that states could use for health coverage or any other health purpose, with no guarantee of mental health coverage.
Reduces help to purchase health insurance. Block grants will provide a fixed amount of temporary federal funding to replace insurance subsidies, severely cutting federal help for people to buy insurance. This will leave many peo-ple unable to afford the coverage they need for mental health treatment.
Want to take action? Below is an a sample social media post
that you can use.
FY 2018 Budget Update
The federal fiscal year ends Sept. 30th, but Congress has passed
a continuing resolution that will fund the government
through Dec. 8, 2017. By that time, they will have to pass a 2018
budget—or extend the continuing resolution. If they don’t ac-
complish this, there will be a government shutdown.
NAMI is advocating for Congress to support vital mental health
research, programs, services and supports. In some 2018 budget
proposals, the Mental Health Block Grant was reduced by $142
million, but NAMI advocated for a House amendment that suc-
cessfully restored block grant funding. Rep. Tim Murphy (R-PA)
also offered amendments that passed the House to fund several
programs that were authorized, but not funded, in mental
health reform (21st Century Cures Act):
Early childhood mental health Pediatric tele-mental health Mental health and substance use workforce grants Crisis response and inpatient bed registries The Mentally Ill Offender Treatment and Crime Reduction
Act (MIOTCRA) which provides grants for criminal justice-mental health programs, like mental health courts and CIT training.
NAMI on the National Stage
Mary Giliberti, NAMI’s CEO was appointed by U.S. Health and
Human Services (HHS) Secretary Tom Price as 1 of only 14 non-
federal members of the Interdepartmental Serious Mental Ill-
ness Coordinating Committee (ISMICC). The ISMICC is a new
federal committee established by the mental health reform pro-
visions in the 21st Century Cures Act of 2016.
During the inaugural meeting, Sec. Price identified serious men-
tal illness as one of HHS’ top 3 clinical priorities (along with
childhood obesity and the opioid crisis). This is a historic first in
terms of elevating the priority of mental illness in the federal
government.
What you can do:
1. Send an alert to your members
2. Tweet 3. Post on your Facebook page
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PSYCHIATRIST SHORTAGE IN AMERICA
(Aug. 14, 2017) More Americans than ever before are receiving
mental health treatment, including individuals with serious
mental illness, however, as more individuals are seeking treat-
ment, the shortage of psychiatrists to administer this care is
only intensifying.
In an article published in Forbes magazine, Bruce Japsen re-
ports that the United States lacks enough psychiatrists to treat
the increasing number of individuals now seeking treatment
due to the growing proportion of Americans who are now in-
sured. (“U.S. psychiatrist shortage intensifies,” Forbes, June 6,
2017)
Rural America is disproportionately affected by the psychiatrist
shortage, with 77% of counties classified as medically under-
served in mental healthcare. The Bureau of Health Workforce
Health Resources and Services Administration estimates that
3,500 more psychiatrists are needed to meet the demand, in-
creasing to 6,090 by 2025.
Japsen writes the paucity of psychiatrists has resulted in a spike
in health care costs as individuals with mental health needs
seek needed care in costly emergency rooms. The Treatment
Advocacy Center has long documented the consequences of
lack of treatment for individuals with mental illness, including
criminalization, homelessness, fatal encounters with law en-
forcement and suicide.
The shrinking psychiatric workforce only increases this phe-
nomenon. According to a 2017 report by the National Council
for Behavioral Health, the “aging of the current workforce, low
rates of reimbursement, burnout, burdensome documentation
requirements and restrictive regulations around sharing clinical
information necessary to coordinate care” are some of the
causes of this shortage.
Knowing the difficulty in retaining high-quality psychiatrists, a
recently released Substance Abuse and Mental Health Services
Administration report states that 92% of mental health treat-
ment facilities offer supervisor case review processes to pro-
mote employee retention. However, without new incentives
for psychiatrist workforce development and reducing burden-
some regulations and confidentiality restrictions, the shortage
of psychiatrists and consequent deficiency in psychiatric care
will continue.
“The lack of access to psychiatric services across the health
care service delivery field has been a cold, hard reality for dec-
ades,” according to NCBH. However, the recent confirmation of
Dr. Elinore McCance-Katz to serve as the assistant secretary of
mental health and substance abuse is a glimmer of hope for
individuals with serious mental illness and their families. For
this first time ever, serious mental illness will be a priority area
of focus for a government organization.
We are pleased to have been accepted into the Boscov's Friends Helping Friends event this year! The event benefits non-profit organizations, including our NAMI affiliate; it is scheduled for Tuesday, October 17, 2017. We will be offering these 25% off Boscov's Shopping Passes for $5.00. The passes can be only used during the event. Boscov's will be providing special sales, free refreshments and chances to win prizes on that day. Our affiliate will benefit from your purchase of the Shopping Pass ($5.00). We will bring passes to our support meetings, educational programs, Board meetings, and other events. We will also accept mail orders and we'll gladly deliver passes if requested. Thank you for helping us with this fundraiser!
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Obsessive-Compulsive Disorder (OCD) and Obsessive-Compulsive Personality Disorder (OCPD)
Obsessive-Compulsive Disorder (OCD) and Obsessive-Compulsive Personality Disorder (OCPD) are similar terms for two very differ-ent mental disorders. Because of the similarity in name, the two are often mistaken for the same thing. In order for people to re-ceive the best possible treatment for what they’re experiencing, it’s important to know the difference between OCD and OCPD. Obsessive-Compulsive Disorder is a mental illness that involves unwanted thoughts (obsessions) and/or actions (compulsions). Frequently, someone living with OCD experiences both. The intru-sive obsessions are typically disturbing to the person and cause significant anxiety. He/she engages in repetitive actions or mental acts like counting in order to dispel the obsessions. These compul-sions consume a significant amount of time, and together with the
obsessions, can severely limit someone’s life. Obsessive-Compulsive Personality Disorder, on the other hand, is classified as a personality disorder. Personality disorders are long-term patterns of behaviors, thoughts, and emotions that disrupt life and relationships. OCPD is about an excessive need for orderliness and control. It can be perceived as extreme perfectionism, stub-bornness, and inflexibility. A rigid adherence to rules, details, order, and schedules prevents someone living with OCPD from fully living life and participating fully in relationships. Understanding the difference between OCD and OCPD will lead to the right treatment approach to help people take back their lives.
OBSESSIVE-COMPULSIVE PERSONALITY DISORDER TREATMENT
Obsessive-compulsive personality disorder treatment typically in-volves a multi-pronged approach with includes psychotherapy, medi-cations, and relaxation exercises. For OCPD treatment to succeed, the therapist must establish a strong working relationship with the client. This is sometimes difficult because people with obsessive-compulsive personality disorder tend to want to control the therapist and the session circumstances. An experienced therapist will know how to get through this protective shield of control and other obsessive-compulsive personality disorder symptoms and build a mutually trusting therapeutic relationship. Treatment for Obsessive-Compulsive Personality Disorder
Treatment for obsessive-compulsive personality disorder focuses on helping the client become aware of his or her thought patterns and how they influence emotions and behaviors. Since most people with OCPD do not have a strong awareness of their emotions, developing this awareness is the first step. Ultimately, the goal is to equip the client with new coping skills and adjust thought patterns to increase quality of life. Obsessive-compulsive personality disorder therapy approaches for treatment of OCPD include: Psychodynamic therapy – this therapeutic technique is insight-oriented. The therapist helps the person with OCPD identify his per-ceptions of certain situations and examine why not having control over these situations causes so much worry. The goal is to help the client develop a stronger sense of self-awareness. By integrating talk therapy into the sessions, the therapist can demonstrate to the client to accept that everyone, including him, makes mistakes and that this makes him human. For example, the practitioner may detail a situation where excessive control actually results in ignorance regarding intimate relationships, ultimately leading to inefficiency and failure; exactly what the individ-ual with OCPD tries to avoid. Since people with the disorder usually criticize themselves harshly, the therapist also facilitates modification of this tendency. Cognitive behavioral therapy (CBT) – this approach to obsessive-
compulsive personality disorder therapy examines a client's thought patterns and how they affect his responses to various circumstances. The therapist then teaches the client new skills and techniques for modifying the thoughts that lead to the negative behaviors and emo-tions. The patient can also use these new tools to derive more enjoy-ment from interpersonal relationships and recreational activities ra-ther than focusing so heavily on work. Both of these psychotherapy methods seek to give the client insight and tools to reduce rigid expectations and enjoy a higher quality of life. People with OCPD may also benefit from learning obsessive-compulsive personality disorder self-help skills, such as relaxation and meditation. This involves using specific breathing and relaxation tech-niques to reduce the intense sense of urgency and stress common in those with OCPD. Obsessive-Compulsive Personality Disorder Medications
The FDA has not approved any specific obsessive-compulsive personal-ity disorder medications, but will prescribe them to reduce symptoms from co-occurring mental health conditions. People with OCPD fre-quently struggle with anxiety and depression that interferes with eve-ryday life. In these cases, antianxiety drugs or antidepressant medica-tions can offer relief and allow the client to become more fully en-gaged in therapy. Obsessive-Compulsive Personality Disorder Prognosis
The prognosis for obsessive-compulsive personality disorder tends to be better than the outlook for other personality disorders. Ironically, the rigid adherence to moral codes and need to maintain control pre-vents a major complication common to many of the other personality disorders – drug abuse. Left untreated, people with OCPD may develop anxiety and depression due to social isolation and anger management issues. Obsessive-compulsive personality disorder treatment can help those suffering from the condition, but success requires a commitment to recovery and sticking to the therapist's instructions.
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Place
Stamp
Here
NAMI CUMBERLAND and PERRY COUNTIES PA Enclosed is my membership or my tax deductible donation (check or money order)
Payable to NAMI CPPA - mail to PO Box 527, Carlisle, Pa. 17013
___Individual membership [$40] ___Household membership [$60] ___Open Door [5$] ___Professional membership [$75]
___ New member or ____Renewal
NAME:_____________________________________________________________________________________ Date__________
STREET:__________________________________________________________________email:___________________________
CITY:____________________________________________STATE_____________ZIP_________________
COUNTY:____________________________ PHONE ( ) ______________ Email ___________________________________
CUMBERLAND and
PERRY COUNTIES NEWS
P.O. Box 527, Carlisle, PA 17013
