CRY Update Magazine - Issue 40

Brochure Update

Issue 40

CRY Unit 7 - Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LRTel: 01737 363 222 Fax: 01737 363 444

Web site: www.c-r-y.org.uk e-mail [email protected]

CRY Patrons: John InverdaleRob Andrew MBE, Jeremy Bates,Ian Botham OBE,Mark Cox MBE,Nick Gillingham MBE, Rob Jones MBE, Professor WJ McKenna,Sir Steve Redgrave CBE,Professor Michael Vincent.

CCardiac

RRisk in the

YYoung

CCoonntteennttss

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Anyopinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor, or its Officers. Articles pertaining to health relat-ed topics are FOR INFORMATION ONLY. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention ofany products or procedure should not be considered as an endorsement for said product or procedure.

Many thanks to Tim Woolley at Press Craft, Lithographic Printers, for all all his advice andsupport in subsidising the printing of this update. With his help we have been able to reduceour printing costs while significantly improving the quality of the finished product.

CRY Representatives1 Meet Alastair Paterson

Newsletters and Reports2-4 Newsletter - Alison Cox the Chief Executive5 Steve`s Report6 Mat’s Report

My London Marathon7 My London Marathon by

Kids for CRY by Julie Tanner8 Julie’s Interview with 9 Wordsearch / Jokes10- Kids for CRY Fundraising

CRY Fundraising21-2628,293034-39

In memory of 112027 31 32 33 40

Raising Awareness 414243 44 45 464748 4950 51 52535455565758 59 60 61 626364 65 6667 68 69 Bulletin Board70 Back Cover ‘God’s Lent Child’

James was our first child and when we try to describe him now, he sounds

typical of many young people: cheerful, positive, his greatest enjoyment in

life was having fun with his friends. He got into quite a few scrapes. We

were typical parents, concerned that his carefree disposition led him away

from making the most of his potential. As one of his school friends put it, he

was not exactly chained to his desk. He went to Bristol University and

gained a Masters in Geology. Though he wasn't particularly partial to the

academic side of university, like most students he more than made up for

the slog with a hilarious social life.

Towards the end of his time at Bristol he surprised us by announcing that

he had applied to go into the RAF. One of our friends commented, "He's

supposed to be interested in things in the ground, not things in the air!" When we look back on it though, it wasn't sur-

prising: the toys, books and pictures he drew as a child show his imagination was engaged in this direction. We were

pleased that James had such a clear idea of what he wanted to do. We were delighted when he was accepted for initial

officer training, subject to a satisfactory outcome from cardiac investigations into his heart murmur. We were not worried

about this. It had been twice investigated in his childhood and was felt to be insignificant. He was duly given a clean bill

of health again.

Now he changed. Showing self discipline previously quite alien to his character, he set about achieving the physical fit-

ness he would need for his rigorous training. Luck seemed with him: he really wanted to fly fast jets and was accepted

to train as a navigator. Turning up at the car park for the first time at RAF Cranwell, he had the good fortune to meet

Claire, who was to become his girlfriend. His sense of humour and love of adventure stood him in good stead as physi-

cally, mentally and emotionally he and his fellow recruits were tested to their limits. We were proud parents when they

ripped the white bands from their hats, signifying that they were now Officers of the RAF, and threw their hats in the air,

at their graduation parade.

James now started to train as a navigator, and we kept our fingers crossed for him in February, 2002, when he would be

told the type of aircraft he would be operating. His cup ran over when it turned out to be fast jet, though he knew that at

any time in his further training he could be "chopped" if he didn't come up to scratch. There was one particular module of

the training that concerned him and he told us he would be happy when he had passed it. When he was told that he would

have to retake this module, his attitude was surprisingly robust. He felt supported, he knew how to rectify his weakness-

es and he seemed confident. We last spoke to him as he was heading for the bar, jubilant, after his successful retake.

Two days later Claire phoned to say that James, who had been due to visit her at a neighbouring RAF base, had col-

lapsed an hour previously whilst playing football. The local hospital refused to give her any information about his condi-

tion. He had, in fact, died almost instantly despite the valiant efforts of his friends, trained in resuscitation, to revive him.

Three and a half years have elapsed since then, the world is a different place to us and we are different people. Like all

of you who have been through this experience, there is hardly a moment of the day when our loved one isn't in our minds

at one level or another. There is no longer that punch of terrified agony and disbelief when we think of James; in fact we

are aware that he has returned to us in another way. He is still part of our family, we all think of his reactions, facetious

remarks and comments, even his advice, about what is going on. We are almost always very happy as we think of him.

We are most proud that he was a person without malice and a good friend. He wasn't given to analyzing life's traumas

but, in his own way, would cheer us up when we were down. (When his sister was upset at splitting up with a boyfriend

he marched her into the kitchen and pulled a large box of ice cream from the freezer with the order, "Now eat all of this!")

Sometimes remembering is not enough, but we now expect the profound sadness that comes at anniversaries and

Christmas and have found ways of coping. We will always be grateful for the privilege of having James in our lives for 24

years.

We are blessed with 2 other children, Douglas and Amanda. Douglas has run the New York and London marathons to

raise funds for CRY. Amanda , "Divvi McThickster" as James (affectionately!) called her, faced difficult memories on

admission to Bristol University, shortly after James's death and is making a success of her life and studies. We are

immensely proud of them both.

From the moment James died we yearned to understand the mystery of his death, which we now understand, was prob-

ably from Long QT syndrome and to share our grief with others who had had the same experience. A ray of light, follow-

ing his death, was when we discovered CRY. We have felt at times frustrated and inadequate in our inability to contribute

much to CRY's objectives and to understand Long QT. It troubles us that since James was to undergo cardiac tests any-

way and was moving into a career with conditions that could trigger an arrhythmia in those susceptible and where his

own sudden death could endanger so many others, that additional testing could not have been included. Our greatest

wish would be to identify a simpler means of diagnosing this and the other elusive conditions, that lead to sudden death

in young people.

Cardiac Risk in the Young | 1

Alastair & Stephanie with Douglas, Amanda & James

MMeeeett oouurr RReepprreesseennttaattiivveess::

OOuurr ppaarrlliiaammeennttaarryy rreepprreesseennttaattiivvee

AAllaassttaaiirr ppaatteerrssoonn

Issue 40

2 | Cardiac Risk in the Young

IIssssuuee 4400 NNeewwsslleetttteerr

bbyy tthhee CChhiieeff EExxeeccuuttiivvee

Issue 40

Issue 40 Cardiac Risk in the Young | 3

RReeppoorrtt ffrroomm MMaatt WWiillssoonn

CCRRYY SSccrreeeenniinngg MMaannaaggeerr

TThhee CCRRYY CCeennttrree ffoorr SSppoorrttss CCaarrddiioollooggyy

Issue 40 4 | Cardiac Risk in the Young

tthhee bbeerreeaavveemmeenntt ssuuppppoorrtt ddaayy 22000055

Elijah

Bill

Greg

Sanj

Mary

Lunch TimeRainbow Club

Supporters

Greeting Team Display

Supporters

RReeppoorrtt ffrroomm


If you would like an A4 or A3 copy of any of the pages in this update (printed in colour & laminated) please contact the office

My stories

The CRY website continues to grow, and once again I have some new webpages to bring to your attention.

First of all, the CRY homepage - www.c-r-y.org.uk - now has a facility that will enable you to set the CRY web-

page as your own homepage. Just underneath the picture of Steven Redgrave you will see a button that lets you

do this.

The CRY homepage is also carrying a number of new and exciting articles. We are delighted to announce that for-

mer England rugby international Simon Halliday is organising a massive fundraising event for CRY in March 2006. You can read all

about his event at www.c-r-y.org.uk/simon_halliday_bath_half_marathon.htm

New member of staff Mark Fox will also be undertaking a big fundraising challenge for CRY in March 2006, as he heads out to the

Sahara Desert for a 9-day sponsored trek. You can read more about his preparations for this event at

www.c-r-y.org.uk/mark_fox_desert_trek_before.htm or www.justgiving.com/markfox

Continuing the fundraising theme, CRY has broadened its relationship with the event organisers Skyline (who do all the administration

for our parachute jumps, etc) and can now offer two new 'free' fundraising events - Peru Trek and Iceland Trek. You can read about

these - and all CRY's other 'free' fundraising events - at www.c-r-y.org.uk/free_fundraising_events.htm

As you probably know by now, young CRY supporter Julie Tanner has compiled a book of celebrities' favourite quotes, with proceeds

from sales of the book going to CRY. You can read some background about the book, and find details about it at

www.c-r-y.org.uk/julie_tanner_book.htm

A new addition to the 'CRY in Parliament' section of the website, is that each member of CRY's APPG now has their own webpage,

for recording their involvement with CRY. If you go to www.c-r-y.ork.uk/parliament.htm and scroll down the page, you will find all

the APPG members listed on the right hand side of the page. If you click on a member's name, you will go to their personal CRY

page. For example, Dari Taylor MP's page (www.c-r-y.org.uk/dari_taylor_MP.htm) is full of media articles and pictures - not surpris-

ing as she is the APPG Secretary and one of CRY's most vocal supporters in Westminster!

10th Anniversary

CRY in Parliament

2005 London Marathon

Surgery Supporters Club

Event write-ups

Website Report from Office Manager - Kerry Gray

Julie’s Interview

with

DM

8 | Cardiac Risk in the Young Issue 40

Cardiac Risk in the Young | 9Issue 40

Can you findthese words?

AuthorAuthoressLiteracyClassicNovelFictionLibraryPublisherRead

TThhee TThheemmee ffoorr tthhiiss UUppddaattee ii ss ,, BB oo oo kk ss !!

SS BB DD HH OO YY EE CC YY LL SS PP CC JJ QQ RR KK II CC FF EE AA UU PP UU AA DD SS AA GG RR RR EE BB EE RR AA SS RR II OO EE OO TT LL BB EE AA EE LL HH SS NN HH II II RR LL TT EE TT AA TT SS TT LL SS CC II VV UU XX EE HH VV UU MM HH LL OO AA YY BB RR KK LL AA JJ EE NN FF ZZ NN OO II TT CC II FF RR

WWOORRDDSSEEAARRCCHH

DIA

LA

GA

IN b

y R

ON

NU

MB

ER

CH

INE

SE

GO

LF

by H

OLIN

WO

N

O N L Y J O K I N G b y J u l i e

TH

E H

AU

NT

ED

HO

US

E b

y H

UG

O F

IRS

T

BR

EA

KFA

ST

IS R

EA

DY

by C

RIS

PB

AC

ON

DO

N’T

FA

LL

by E

ILE

EN

DO

VE

R

MY

AU

TO

MO

BIL

E b

y I

ON

AK

AR

R

TR

YA

ND

TR

YA

GA

IN b

y P

ER

CY

VE

RE

HO

W T

O B

EC

OM

E A

MIL

LIO

NA

IRE

by

RO

BIN

BA

NK

S

died on 30th September

2004 he was just 18, from


Pupils of Shire Oak School (A Science

College) in Walsall, individually held fund

raising activities and have donated

£245.87 to CRY. Roy Ball was asked to

the school to collect the

donation, "the pupils found his talk extreme-

ly informative". Della Shipton Head of Year 8.

"Please find enclosed a cheque for £350. This money is part of the funds raised by the classmates of Jamie

Bucknell who sadly died suddenly in 2001. They undertook a sponsored assault course and some of the

money went towards a sculpture for Jamie - a permanent reminder at the school. These

classmates are now about to embark upon university careers and working lives and I know that they are

thinking very much of Jamie at this time. We respect the work you do enormously and hope that in some

small way this cheque will be of help to you." Jane Collins (Teacher of English)

"Please find enclosed a cheque for £90 donated in memory of my late son Jonathan David Casey, who

died suddenly on November 14th 2003, aged 27 years.The cheque is donated by Holywell High School,

where Jonathan attended between 1987 & 1994. The school have indicated that they will include

Sudden Adult Death in the Health and Social Care lessons to raise awareness around pupils" Mrs. D.Blythin Mother of the late Jonathan Casey.

"I am pleased to say that our middle section have recently

held another mufti day and have raised

£339.97 for the Scott McCollin Memorial

Fund, which I am delighted to enclose."

Michelle Appleby Charity C0-ordinator.

"I write enclosing a cheque for £851.58 in memory of Ben Newton.

This money was raised following our second Memorial Football Match

played on 13th February 2005. This year "Nick's team"

(captained by Ben's brother) won which was a fair result

as "Ben's team" won last year. I hope this sum can help

make a difference." Jean Heading Chatteris Town Youth

Football Club.

"Please accept this donation of £50 on behalf of Step By Step Dance Studio.The funds were raised from

our first very successful Christmas show held at Areley Kings, Stourport over the weekend of 18/19th

December. I was a fellow pupil and friend of Robert Poyser for many years and I am very pleased that I

can help by donating money into such a caring and thoughtful charity." Claire Boulton - Dance Teacher.

IInn mmeemmoorryy ooff jjaammiiee BBuucckknneellll

IInn mmeemmoorryy ooff bbeenn nneewwttoonn

IInn mmeemmoorryy ooff jjoonnaatthhaann ccaasseeyy

IInn mmeemmoorryy ooff ddaavviidd eeaassttllyy

IInn mmeemmoorryy ooff rroobbeerrtt ppooyysseerr

IInn mmeemmoorryy ooff ssccootttt mmccccoolllliinnIInn mmeemmoorryy ooff AAnnddrreeww BBaallll

Sudden Cardiac Death Syndrome, the patholo-

gist said he had a channelopathy. We know

you will put this to good use. It would be truly

wonderful if a complete cure could be found.

The shock and pain left behind by the loved

ones is indescribable." Linda Eastly (Mrs)

"Please find enclosed cheque for £750

which we have received from our son's

school The FitzWimarc School,

Rayleigh. The school had a charity

week and have donated the money in

memory of our son David Eastly. David


"Please find enclosed a cheque for £300, a

donation from the students of Great

Marlow School after a fundraising event

was held within the school". B Smith (Mrs)

The pupils, staff and friends of King's House

School Junior Department, Richmond,

Surrey have raised an amazing £2000 at

their Christmas Fair.

"We are delighted to be able to send you a cheque in the sum of £157.50 as a donation.

The children and families of St. John's School sponsored us to take part in the 40th

Porthcawl Christmas Morning Swim. We braved the cold and duly took part. The children

and their families have been very generous and we were very grateful that the soaking

was worth it!. Please accept the donation with the best wishes of the school, the pupils

and their families" Mrs. A Rogers & Mrs. H. Evans (swimmers)

The children of Banners Gate Infants and Nursery School, Sutton Coldfield

collected money for CRY. They chose CRY because the mother of one of their

pupils had a young relative who died recently with S.D.S. Each year the school

holds a Harvest Festival Charity. The children decorated Harvest envelopes

and put any spare money into them. The envelopes were then emptied and

they were used to decorate the assembly hall. John and Ursula Bick kindly col-

lected the cheque on behalf of CRY. They were invited to the morning assem-

bly "Many of the colourful envelopes were still on display when we visited, we

greatly admired the art-work and the effort that had gone into them. We truly enjoyed our morning at Banners Gate

School" John and Ursula Bick. The event raised £250

"Each year at Stokes School we hold a

party for the local Senior Citizens and, as a

thank you, they make a collection which

they donate to the school to use as we

wish. We like to give this money to a charity

and, as CRY is our designated charity this year, we are

pleased to enclose a cheque for £56" G. SmolinskiInterim Head Teacher.

The West Sussex Youth Music Awards was held on 13th

March at Bognor Regis. Each year they sponsor a differ-

ent charity and this year they chose to sponsor CRY in

memory of James Millard who died suddenly in his sleep.

The event raised a total of £390.50

bbaannnneerrss ggaattee iinnffaannttss aanndd nnuurrsseerryy sscchhooooll

sstt.. jjoohhnn’’ss sscchhooooll

ggrreeaatt mmaarrllooww sscchhooooll kkiinnggss hhoouussee sscchhooooll

ssttookkeess sscchhooooll iinn mmeemmoorryy ooff jjaammeess mmiillllaarrdd

St. Margaret's School in Hampstead, London have raised

£1,300 at their Summer Fair, CRY was suggested to them

by Marlene Ziu.

sstt mmaarrggaarreett’’ss sscchhooooll

ggrreeeenn sstt’’ GGrreeeenn PPrriimmaarryy SScchhooooll

"I am writing to you on behalf of Green Street Green

Primary School & Home Association. Our School holds three non-uniform days a year to raise

money for charities chosen by parents, staff or pupils. One of the parents, Nichola Parker, sug-

gested your charity as a deserving recipient of our fundraising having received help and support

from your organisation following the death of her brother. I am therefore delighted to enclose a

cheque for £217 on behalf of the children, parents and staff of our school." Janet YoungHonorary Treasurer.


"Keelie Palmer celebrated her 18th birthday on 29th May and in memory of her brother Shaun she organ-

ised and held her party on the 27th May which would have been Shaun's birthday. Keelie had the

'Missing You' song by Puff Daddy, that was played at Shaun's funeral, played as a tribute to him.

Keelie's birthday raised £95.

Pennyman Primary School held an end of

term sports day and sold drinks, tea, coffee

crisps etc. and raised £200 for CRY. Mandi

Blake's son Luke was presented with a

cheque at the last assembly.

"I am pleased to be able to enclose a cheque for the sum of £210 which the girls of Ashcombe House

would like to donate to CRY. Our Charities prefect, Georgia Barson, particularly wished to support your

charity and organized a quiz which took place at our Open Day"

Ann Williams Ashcombe House Mistress.James, Jessica and Laura Firth had lots of fun selling CRY wrist bands at their school and raised £100.

Aldwickbury School have sent a donation of £700.45p.which represents collections taken after their school

Christmas Concerts. "The boys are aged 4 to 7 years and the theme of our production this year was Christmas

Lights. We particularly chose your charity because Sebastian English was the nephew of one of our teachers here and

we were all sadden by his sudden and untimely passing.I know that our donation will be put to good use"

J.A. James Head of Pre-Prep.

"Please find enclosed a cheque for £100 for Ian’s

memorial fund. It is from Amy Posthill aged 10 from

St. Cuthberts R.C. School. Amy held a Tombola Stall

at school for CRY in her last week at primary school.

Amy's dad works with Kenny and has done fundrais-

Leysland High School in Countesthorpe, Leicester have

held a Charities Afternoon, the money they raised was

divided between two charities, CRY

receiving £872.06.

"We did a Health Week at school and

as Mrs. A. Wilson is a volunteer worker

and a friend of our school and an active

supporter of your charity, we wanted to raise some

funds in Jimmys memory." Wendy Young School

Administrator. Usworth Colliery Primary School,

Washington, Tyne & Wear donated £220.89

Issue 40

Pupils of years 10 and 11 at Queen Elizabeth's

Grammer School, Faversham, Kent has raised

£200 for CRY.

lleeyyssllaanndd hhiigghh sscchhooooll

"After an end of year charity ball between our school and St. Mary's School Colchester, we had agreed that any profit

raised would be divided and donated to a charity that was relevant to our school. We had chosen CRY because one of

our previous students was at risk and collapsed on the school playing fields; he was taken to hospital but sadly never

recovered.The ball was a great success and we made a profit of £200, half of which was ours to donate to you, we hope

you can put it to good use. A fantastic time was had by all." Asher Heigham - Joint Head Boy.

IInn mmeemmoorryy ooff MMaannddii bbllaakkee

IInn mmeemmoorryy ooff sseebbaassttiiaann eenngglliisshh

qquueeeenn eelliizzaabbeetthh’’ss ggrraammmmeerr sscchhooooll

Kate Bradley and Russell House, students of

Wadebridge School in Cornwall have raised

£50 in memory of Tabitha from the sale of

greetings cards.

IInn mmeemmoorryy ooff TTaabbiitthhaa SShheeppllaanndd

ing himself for us. Amy did not tell her parents what

she was doing she just walked in then gave them a

lot of silver and said this is for CRY! Her

parents should be proud of her, we were delighted at

this gesture." Maralyn and Kenny Bowen.

IInn mmeemmoorryy ooff jjaammeess wwiillssoonn

sstt mmaarryy’’ss sscchhooooll,, ccoollcchheesstteerr

IInn mmeemmoorryy ooff iiaann bboowweenn

IInn mmeemmoorryy ooff sshhaauunn ppaallmmeerr


Sarah died at the age of 29 years on the 18th of August 2000,

of an undetected heart condition called Arrhythmogenic

Cardiomyopathy. To see her you'd have never thought there'd

be anything wrong with her. She was so fit and active and

went to keep fit at the gym and also did yoga. She loved life,

and she lived life to the full.

She achieved so much in her life. She gained 9 "O" levels, as

well as "A" levels, and went on to Birmingham University. At

the time of her death, she was an office manager for a compa-

ny called P.D.C. Brush in Crewe.

Sarah loved watching her beloved Arsenal Football team, and

also drawing, sketching, and painting - and she had an "A"

level in Art. She loved listening to many of her CDs and

singing to them, and even did a few karaokes and won some

prizes as well. She was our life, and our hearts broke into a

thousand pieces the day she died. She had everything to live

for, it seems so unfair she was taken from us. We love and

miss her terribly.

She collapsed at work just outside the main office on a Friday

afternoon around 4.30pm. At 4.10pm I'd been talking to her

on the phone and said me and Ian would see her in town on the Saturday morning. She said she was fine, and I went

on my way to work for 5.30pm.

Then my husband Harry received a call from her boss, who told him the best he could what had happened. Sarah's

boss arranged a taxi to take Harry to Leighton Hospital in Crewe and he'd meet him at A & E. My husband phoned my

supervisor, and she rushed me and Ian (Sarah's brother) there. The police had to go to break the news to my other

son Lee and he was in a terrible state.

When we arrived at the hospital, Harry was coming out of the Resuscitation Room with a nurse, and he said Sarah's

heart had stopped and doctors and staff were trying to revive her. We just couldn't believe what was happening to our

lovely daughter. The nurse took me to see her, while they were trying to get her back. It was like a bad dream and

was I wondering when I was going to wake up - only to find nothing happening.

The doctors tried for an hour, but it was all in vain. Even they were all upset, we were told, as you can imagine you

would be. At her funeral, three managing directors came from Belgium to attend. Her boss said they'd never been to

a funeral for someone so young who had worked for them. She was thought of so fondly by them, everybody who met

her loved her - all her friends and colleagues came as

well. The chapel was packed and some were outside

too.

My eldest son Lee who is 33 years old, ran the London

Marathon in memory of her and raised £2000 for CRY.

We were so proud of him (his first ever run) and now my

other son Ian, who is 18, is running the 2006 London

Marathon (his first) for her too. I'm sure she is so proud

of them.

When we lost Sarah we, we just didn't lose a daughter

and sister. We lost our best friend as well. But I know

she is still with us, looking down on us, only a heart beat

away and by our sides until "we all meet again", and

we're still proud of her.

CRY is a fantastic organisation and we are proud to

belong to the charity. Sarah would be too.

iinn mmeemmoorryy ooff ssaarraahh jjaannee jjoohhnnssoonn

OOuurr FFuunnddrraaiisseerrss


"I have enclosed cheques for the sum of £910 as a donation for CRY, it

is in memory of my daughter Pamela Mackenzie. All money raised was

through family, friends and neighbours selling football cards and also

handing in everything from brick-a-brac to clothes for a car boot sale

we were doing.” I have spoken on the phone to a few members of the

CRY staff but as yet have not given many details regarding my daugh-

ters death. Pamela Mackenzie was aged 23 at the time of her death on

Sunday 24th August 2003, she left a little boy named Kyle who was

then 2 years old. She was a very loving daughter to my husband and

myself and a great and loving mum to Kyle and a loving sister to her

sister Tracy and Brother in law Frankie. She was a very happy person who was liked by everyone and loved her job

as a nursery nurse. She was also a very fit person and had no illness whatsoever. Pamela had been out with her

boyfriend and stayed overnight at his house, we got a phone call at 4.05 on Sunday morning from her boyfriend saying

he was waiting for an ambulance as Pamela was not right and he thought she had taken some kind of fit. We arrived at

the hospital five minutes before the ambulance but Pamela had already passed away, although the doctors still tried to

save her, but it was just too late. The cause of death was down as unascertained but when we got the post mortem

report it was stated Cardiomyopathy, something we had never heard of. My doctors explained that she would not have

felt a thing as it would have happened so quickly but also that it was normally genetic, so we have all been screened

and were all clear although my wee grandson attends the hospital again this November, as with him being so young he

will get screened every couple of years. As you can imagine it has been a terrible time for all the family and something

that is always on our minds. We all miss her so much and hope that with all your good work something positive can be

achieved. Thank you" Mrs. M. Mackenzie

IInn mmeemmoorryy ooff ppaammeellaa MMaacckkeennzziiee

A donation has been received for £110 from Mrs K Jeffries in memory of Malcolm Jeffries.

IInn mmeemmoorryy ooff mmaallccoollmm jjeeffffrriieess

"I enclose a donation of £72 in memory of my husband, Dave Sanger, who died in July 2001 of SADS. I held a

'Phoenix Trading' cards and gift wrap evening and a percentage of sales has been donated to ourselves."

Pam Sanger.

A donation of £130 has been received by Mr Brian Duck in memory of his mother Mrs Edith Duck, for CRY.

IInn mmeemmoorryy ooff DDaavvee SSaannggeerr

IInn mmeemmoorryy ooff EEddiitthh DDuucckk

Mrs. Pam Smith of Blaby, Leicester has donated, in lieu of flowers, £897.64 in memory of her late husband, Mr.

Geoffrey Alan Smith.

IInn mmeemmoorryy ooff ggeeooffffrreeyy aallaann ssmmiitthh

"Please find enclosed cheque for £100.55 for Ian's memorial fund. It is from Norman Evans M.B.E.

Norman is well known in the Town as he sits in his wheelchair on the High street every day playing his

accordion. All money given to him he gives to charities. He has just been awarded an M.B.E. for all his

charity work. I was pleased to think he thought of CRY for this money this time." Maralyn Bowen

A donation of £125 has been received from Huntsman PU, in memory of Ian.

iinn mmeemmoorryy ooff iiaann bboowweenn

A donation of £165 has been received in lieu of flowers from the funeral service of Mrs. Marian Cox.

IInn mmeemmoorryy ooff MMaarriiaann CCooxx


"Enclosed is your donation (£1000) raised by the RAG Committee 2004-05. All our volunteers have worked extremely

hard all year to be able to send you this cheque and we hope that it goes some way in helping you to achieve your goals.

Whether you are selected as a nominated charity for next year or not, we would be delighted to hear from you in the future

about any fundraising or volunteering projects you would like us to be involved in" James Regal RAG Co-ordinator.University of Exeter Guild of Students.


Lloyds TSB at Douglas Isle of Man have raised £595.60 over the

past two months from Dress Down Days "and hope this will be of

some benefit to the charity". Erin Guy.

Kyle Hanson has carried out a 500 mile row

and a 500 mile cycle and raised £100 for CRY.

"I accepted a cheque on behalf of CRY from my cousin David

Cobley who wishes it to be donated to the CRY charity. The

enclosed cheque is for £1000." Vera Looker

Mr. Nigel Barnes has donated £155 in lieu of floral tributes at the

funeral service of his late father Mr. Alfred Barnes.

Mary Peters and friends at the Liverpool University Trampolining Club held a "sponsored Bounce Event" and raised

£412.50 for CRY.

Allders of Portsmouth have sent a donation of £250. "As Allders

has ceased trading, the charity fund has been wound up and CRY

was chosen to receive one of the final donations." Alida CliftonFundraising Co-ordinator and Treasurer.

"A number of colleagues have put forward CRY

for a flower wrapping collection Valentines

2005. I am pleased to enclose a cheque for the

sum of £200. Congratulations" Gary Eardley-Store Manager.

Accenture (UK) Ltd. have donated £100 to

CRY.

Heart and Music Charity Gala Performance was held at Devonport Playhouse on 30th June and 2nd July."I am pleased

to tell you that the final total profit from the production was £5000, which we have split evenly between The Stroke

Association and CRY. I am therefore thrilled to be able to send you a cheque for £2,500 as a donation towards your valu-

able work." Rob Tremaine, Producer.

"I enclose a cheque for £200 for your charity.The money was raised

with sponsorship when I took part in the 150 mile coast to coast

bike ride. Money came from friends, family and staff at Wearside

Magistrates Court." L. Hodgkinson.

Mrs. Vera Camilla Greenwood deceased direct-

ed that "after the special bequests, any money

that I leave to be given to any worthy charity".

On the instructions of the executor, £4000 was

donated to CRY.

Gary Barker from Dalry Ayrshire, completed the

West Highland Way Walk (95 miles) from

Milingavie (?) to Fortwilliam on the 18th May

2005.and raised £162 for CRY.

Kathy Moyle held a coffee morning on 23rd

July. Kathy gave out literature and sold CRY

merchandise raising £142.50.

"On Sunday 10th July I took part in the Great North Walk. I discov-

ered CRY last year and decided to continue to sponsor the charity

for this years walk. Please find enclosed a cheque for £200."

Lynsey Blade.

hheeaarrtt aanndd mmuussiicc cchhaarriittyy ggaallaa -- ddeevvoonnppoorrtt ppllaayyhhoouussee

rraagg ccoommmmiitttteeee

ggrreeaatt nnoorrtthh wwaallkk ccooffffeeee mmoorrnniinngg

aallllddeerrss -- ppoorrttssmmoouutthh

wweesstt hhiigghhllaanndd wwaayy wwaallkk

ccooaasstt ttoo ccooaasstt bbiikkee rriiddee

550000mm rrooww aanndd ccyyccllee

ddaavviidd ccoobblleeyy

fflloowweerr wwrraappppiinngg

iinn mmeemmoorryy ooff aallffrreedd bbaarrnneess

llllyyooddss ttssbb

aacccceennttuurree

iinn mmeemmoorryy ooff

vveerraa ccaammiillllaa ggrreeeennwwoooodd

lliivveerrppooooll uunniivveerrssiittyy ttrraammppoolliinniinngg cclluubb

"After a very successful memorial tribute to our late daughter Kay we are

pleased to enclose two donation cheques for your funds for the sum of

£1359.56. The Whiteman Dance Academy held a dance tribute to Kay -

'REFLECTIONS' , in association with the City Technology College Kingshurst,

where Kay studied.

"After a very successful memorial tribute to our late daughter Kay with a 7-a-side football competition on the 28th May

2005, we are pleased to enclose donation cheques for your funds for the sum of £2092.75p. The money was raised by

a Raffle, Disco, Donation Cheques and Food Sales, and was attended by Mr. & Mrs. Bick of Tamworth on the evening

disco. The Club Hosting the event was "Dot Hayward - The Pavillions Sporting Club - Kingshurst, Birmingham."

Jacqueline and Kelly Wilson.

A further £26 has been received from the sale of pens at the event.



Issue 40

Mrs Eileen Elliot has sent in a cheque for

£280 in memory of her stepson David

Elliot. This was raised from a lucky dip raf-

fle, organised at Christmas, with the help

of colleagues from the Education

Department of County Hall, Durham.

"During 2004 the players

at Calderfields Golf Club,

Walsall have unwillingly,

unwittingly or unskilfully

played into the Lady

Captain's Charity Bunker

and the donations given

for this misdemeanour have amounted to £267.90.

"Please find enclosed cheque for £100 for the general

fund, in memory of Robert. It's the proceeds

from two car boot sales I did late last year"

Diane Tolley."Please find enclosed cheque for £138

being the proceeds from 2 Car Boot Sales

and small change collection from Robert's sis-

ter Angelas" Diane Tolley (Robert's Mom)

Mr. Richard Dougherty approached NTL regarding their

community award. "I'm delighted to tell you that your appli-

cation for a NTL community award has been

successful. I'm a firm believer in supporting

associates who are giving something back

to their local community or charitable causes.

I'd like to thank you personally for what you have done to

date in support of Cardiac Risk in the Young" Virginia

Budd On behalf of the Community Fund Panel NTL. NTL

donated £250.

IInn mmeemmoorryy ooff HHeelleenn LLuukkee

IInn mmeemmoorryy ooff jjaammeess DDoouugghheerrttyy

iinn mmeemmoorryy ooff ddaavviidd eelllliiootttt

IInn mmeemmoorryy ooff rroobbeerrtt PPooyysseerr

IInn mmeemmoorryy ooff KKaayy WWiillssoonn

Mr Ventress has sent a donation of £100 for the Nicholas Thorne Memorial Fund.

"Thanks….On Saturday 21st May St. Josephs Association held their Annual Summer Fete, and it was a

great success. There were all sorts of stalls and even a football tournament for the children in Key Stage

Two. All the proceeds from the toy stall went to the charity CRY (Cardiac Risk in the Young) because a

former pupil Nicholas Thorne died of an electrical instability of the heart.

His brother Dean also attended St. Joseph's he now attends St. Bede's. Nicholas' sis-

ters Charlotte and Amy are at St. Joseph's now with Charlotte in year 6 and Amy in

Reception. The parents Eunice and Robert are very grateful to the association for a

cheque of £250 pounds."

IInn mmeemmoorryy ooff nniicchhoollaass tthhoorrnnee

"Congratulations on achieving the Framework Chapter 8

on Arrhythmias and Sudden Cardiac Death. I enclose a

cheque for £100 in memory of my daughter Jane Maxine

Coe, who died in 1997, cause of death

unascertained.Good luck with future projects."

Ann Armstrong

IInn mmeemmoorryy ooff jjaannee mmaaxxiinnee ccooee



A cheque for £2,100 was given to Alison, by John Lundy, at the Ireland Postacard Launch, representing

money raised at various fund raising events.

John Lundy's fund raising for 2004 has raised £8945.

We have received £4046 from John Lundy for Aaron Lundy's memorial fund. This was raised by

various fund raising events.

Andrew’s Aunty and Uncle, Cecilia and

Shaun O'Connor have donated £100 in

lieu of flowers for the anniversary of

Andrew on the 10th May.

"Please find enclosed a donation of £250

from the friends of the late Huey Lewis"

Paul Mansbridge.

IInn mmeemmoorryy ooff aaaarroonn lluunnddyy

Cheques have been sent in via Marjorie

Scott, totalling £113, for the Mike Scott

Memorial Fund. They came from Carol

Gamble (£20) and the North York Moors

National Park (£93) respectively.

"Please find enclosed a cheque in the sum of

£420 for the John Marshall Memorial Fund

resulting from the Durley Hall staff's fund-

raising efforts last year." Joan Mitchell.

"I am pleased to say that the

committee has agreed a donation of £250

in support of fundraising activities for this

worthwhile charity" Don Evetts CommunityService Chairman. Lions Club of

Maidenhead.

"Please find enclosed a large cheque for

£4,300, because my committee has ended.

I will of course carry on raising awareness

for CRY and do what I can on my own! It

is a shame that the committee had to end."

Kay Linnington.

IInn mmeemmoorryy ooff iiaann WWiilllloouugghhbbyy IInn mmeemmoorryy ooff mmiikkee ssccootttt

IInn mmeemmoorryy ooff hhuueeyy lleewwiissIInn mmeemmoorryy ooff aannddrreeww bbllooww

IInn mmeemmoorryy ooff jjaammeess mmaarrkkhhaammIInn mmeemmoorryy ooff jjoohhnn mmaarrsshhaallll

"I enclose £548, this money has been raised by one of Ben's friends, James Salter-Boyden of Doddington

participating in a recent parachute jump for your Charity in Ben's memory. Unfortunately James has been

unable to take part in two Memorial Football Matches so I feel that this is his way of assisting your

Charity in memory of Ben" Jean Heading, Chatteris Town Youth Football Club.

IInn mmeemmoorryy ooff bbeenn nneewwttoonn

Fundraising has already started with Jonathan’s friends.

They have been so supportive to the family and have

sought raise money and awareness about CRY.

Jonathan’s friends organised a memorial football match

and family fun-day back at the beginning of June 2005

and raised £2400.00. The team have also put in place a

charity shield for both football and golf in memory of

Jonathan, and we hope to run the events year on year. I

personally would like to thank each and every one of the

boys for their support, especially Andy, Phil and Mike who

helped organise the match and family fun day. I would

also like thank everyone that donated prizes and bought

raffle tickets in order to make the fundraising a success.

IInn mmeemmoorryy ooff JJoonnaatthhaann ppiicckkeerr

Jeff Morland and his 'team' in the

North have been fund raising again

and have made a donation of

£30,000.

IInn mmeemmoorryy ooff lleevvoonn mmoorrllaanndd

IInn mmeemmoorryy ooff kkeevviinn ssaayyeerr

A donation of £1,744 has been received from Eve Sayer,

this represents half the money raised at a refreshment

area at The Bergh Apton 2005 Sculpture Trail.



Gill Weston has sent in a cheque for

£2,000. This money was raised at the

Sandhurst Boys Football Club in

memory of Lewis Marsh.

IInn mmeemmoorryy ooff lleewwiiss mmaarrsshh

IInn mmeemmoorryy ooff aannddyy ggaarrdd

A donation of £275.50 has been received from the St. James Surgery, Essex, which comes from the pro-

ceeds of their Christmas raffle.

Mrs. S Vousden of Little Clacton has held a jumble sale and raised £100.

We have received, via Caroline Gard, a cheque for £2000 representing fundraising carried out throughout

last year by the Chelmsford Ladies Golf Committee.

Caroline Gard has forwarded £700 raised from the July ECG testing in Colchester.

IInn mmeemmoorryy ooff WWiilllliiaamm WWhhiittttaakkeerr

A donation has been received for £153.32 from Mason

& Stokes Funeral Services, this being donations received

at Mr Whittaker's funeral service.

"Please find enclosed the sum of £525. Our seven year old grandson, Jack Ladley, died suddenly while on holiday in

Spain nearly three years ago. His totally unexpected death devastated the family. The diagnosis was "Heart Attack". I

recently celebrated my sixtieth birthday so I asked for donation to CRY instead of presents. I am delighted to send you

these cheques to further your work into this very distressing problem." Thia M Hughes

IInn mmeemmoorryy ooff ggeeooffffrreeyy JJaacckk LLaaddlleeyy

A charity night was held at Stanley Social Club in Bootle. This included

raffles and auctioning a signed Everton Shirt. £600 was raised and John and

Theresa Burke have donated this in memory of their son Gary. Ruth Lowe

represented CRY and collected the cheque at the Aintree Public House

Bootle in June.

"We are a Sunday Football League based in Liverpool and each season we

play a charity match. Previously known as the Formers Shield the trophy was

renamed the Robbie Murphy Memorial Trophy in memory of a player who

sadly died after one of our league games in 2002. We take a collection at the match and at our league meeting and

Robbies family asked us to donate to Shelter the following year. Last year we donated to Alder Hey Childrens Hospital.

In January 2005 Gary Burke from Wood Street F.C. unfortunately died during a training session. Normally the charity

match is between the league winners and the McDonnell Cup winners (incidentally renamed after Peter

McDonnel killed at Hillsborough 15/4/89) but as the cup winners had left the league we invited Wood Street

to take their place. The match officials very kindly waived their fees which were then included in the col-

lection which was also swelled by raffling one and auctioning another of the match balls from the finals.

Wood Street F.C. on behalf of The Burke Family, have asked us to donate the £275 cheque to your organ-

isation. We hope it will come in useful to further your work to help Cardiac Risk in The Young.

iinn mmeemmoorryy ooff ggaarryy bbuurrkkee

"Please find enclosed a cheque for £350, which is a donation from my company to CRY. We obtained this money from

the saving we made last Christmas by not sending out Christmas cards to our customers. CRY is very special to

myself because my own son Andrew Mark Croxson died at the age of 24 on April 10th 1999 due to sudden adult death

syndrome. Andrew it seems was a classic case being a sports person and very healthy and had in fact been playing

football the day of his death. My youngest son Timothy does have a heart defect but is under the hospital and it

appears he will now lead a normal life, he is now 22. My other son aged 27 appears to be perfectly healthy. We hope

this donation will help in some small way in the work you do in making people aware of this disease. "

James Croxson, William Croxson & Son Ltd.

iinn mmeemmoorryy ooff aannddrreeww mmaarrkk ccrrooxxssoonn


Issue 40

"Please find enclosed cheques, which have been donated to

CRY in memory of my dear son Ben Thomas, who was so cruel-

ly taken away from us on March 24th this year. Ben died sudden-

ly whilst football training at the very young age of 14. Following

a post mortem, Ben was diagnosed with a congenital coronary

artery anomaly, which had gone undetected since birth, despite

him undergoing numerous tests throughout his short life at vari-

ous hospitals. Ben's school have been extremely supportive and

have held various fund raising events in honour and memory of

Ben. I lost my dad twelve years ago and my mum sixteen

months ago, but as you've probably heard time and time again,

nothing, but nothing can prepare you for the loss of your dearly

loved child. Many thanks for your kind support" Joanne CarterA donation of £898 was made.

Quotes from 'A TRIBUTE TO BEN CARTER’

'"I remember Ben as a young boy who liked to live life to the full. Ben was a valued member of the tutor group; he had

a good circle of friends that he could rely on and just as important - who could rely on him. A great team player and

leader. He stood as form rep in years 7 and 8.”

“I watched Ben grow in confidence and maturity over the 2½ years , what a great transformation! He was an absolute

delight to have in the tutor group, greatly loved and sadly missed by all" Gen Mitchell - Ben's form Tutor and SubjectLeader of Languages.

"What can you say about Ben? He was a star, a talented young man, a privilege to teach and a friend. He was a born

leader who oozed confidence. Ben viewed failure as a stepping stone to improve himself.”

"Whilst in France I looked up at the night sky and saw him. He was the brightest star in the sky because he had an

infectious enthusiasm for life that rubbed off many other students. If you had 1,000 oranges and took the zest, you

would still be nowhere near the zest for life and sport that Ben had." Chris Steele - Subject Leader of PE.

"Ben was our goal keeping hero and he was fearless. During an end of season treat last year the team went to the

Crocky Trail. While there Ben decided to leap the brook at its widest point and to the amazement of the large crowd

who had gathered to see him "fall in", he made it with ease. Where Ben led the others tried to follow, most without suc-

cess.”

"Ben was not only her son but also a friend to her and not many mums are in a position to say that about their 14 year

old son. He was a precious and loving son, brother, grandson, nephew, great nephew, cousin and friend to many. He

was a fun loving young man who loved life, had a great sense of humour, with a passion for sport and who was an

inspiration to others" Ben's Mum (Joanne Carter).

IInn mmeemmoorryy ooff BBeenn tthhoommaass ccaarrtteerr

Gemma Abinett, lost her fiancé Andrew Parr to a sudden heart attack. She gave an interview about what happened to

Andrew to The National Magazine Co. Ltd. They said they would like to donate some money to the cause and Gemma

asked that it be for Andrew's memorial fund. The amount donated was £100.

A donation of £45 has been received from the Harris School PTA Brass Band for the Andrew Parr Memorial

Fund.

Ruthe Lowe has held a car boot sale and raised £100

Mr. & Mrs. Hamm from Preston, who are friends of Ruth Lowe, recently celebrated their Golden

Wedding Anniversary and asked for donation instead of presents. CRY was one of their chosen chari-

ties

IInn mmeemmoorryy ooff AAnnddrreeww PPaarrrr




Issue 40

Julia Morgan, James's Grandmother and Joanne Morgan, James's Aunty have sent in a donation of £815. The money

was raised during an evening of Sacred and Christmas Song which they organised and was held in December at

Christ Church, London SE9. Barclays have donated £407.50 through their matched funding scheme. James's mother,

Teresa Jackson, has donated a further £2000

IInn mmeemmoorryy ooff jjaammeess jjaacckkssoonn

"Once again our friend Alan Bain the Proprietor of the "Sandyback Inn"

Tamworth held a Mr. Strongman competition for CRY and raised

the sum of £253.80. John and I attended we helped out with

the hot-dogs and beefburgers; collected empty glasses and

passed the collecting boxes around. It was a great day, despite

a little rain and everyone cheered the competitors along with great

gusto." John and Ursula Bick

IInn mmeemmoorryy ooff ddaavviidd bbiicckk

"Please accept the following donation in memory of Daniel Edward Hall (17th March 1982 - 14th May 2000).

Daniel was parted from his immediate family of Suzanne, Tony, Sarah and Rachel so suddenly and sadly

in Bideford, Devon. Daniel's Family, Grandparents, Godparents, Uncles, Aunts, and Cousins all still miss

him, and it is hoped this donation will help others in his name. QA (IT Services Limited) for whom I work

hold a 'charity-dress-down' day each month, and ask for worthy nominations. I proposed CRY as the

charity to benefit from the collection on 1st April. The donations were generously made by my friends,

colleagues and staff in QA.

IInn mmeemmoorryy ooff ddaanniieell eeddwwaarrdd hhaallll

Samantha Pangborn has sent in a further donation of £1,000 in memory of her beloved husband, Simon,

who died unexpectedly in July 2004.

"It gives me great pleasure to enclose a cheque for £577.91 to add to Simon's memorial fund. On

Saturday 9th April, we held a quiz night to raise funds for "Simons Arrows" - our under 11's football

team, and CRY. We usually have 2-3 of these a year and always have a fantastic evening - lots of laugh-

ter and healthy competition! - With the added bonus of raising money for two causes very close to our

hearts. Simon always enjoyed being with friends, and would be thrilled, I know, that his memory lives on in

this way." Samantha Pangborn.

IInn mmeemmoorryy ooff SSiimmoonn PPaannggbboorrnn

"My name is Karin Herslow, and I am living in Sweden. I am writing this because a young relative of mine, Cecilia

Barriga, tragically died of an undiscovered heart disease a month ago. There are some of us, her relations in Sweden,

that would like to donate to your organisation. It is some sort of comfort that there is an organisation like CRY, and I

appreciate very much the help I am given by you." Karin Herslow. A donation of £200 was received.

"At Persimmon Homes (Essex) we have decided to channel all our fundraising efforts into raising money for your

charity, CRY. This is in memory of Karl Ashcroft, a young man from Colchester who worked in the construction

industry. I have pleasure in enclosing £760 which resulted from a staff auction of used white goods." Linda McKenzie,

Miss S.L. Kirby of Leicester has donated £210 in lieu of floral tributes, at the funeral of her son, and in memory of,

Liam Daniel Beeson

iinn mmeemmoorryy ooff kkaarrll aasshhccrroofftt

iinn mmeemmoorryy ooff lliiaamm ddaanniieell bbeeeessoonn

iinn mmeemmoorryy ooff cceecciilliiaa bbaarrrriiggaa

IInn mmeemmoorryy ooff ttiimmootthhyy rreeaadd


Steven Smith held a 'HOD-ATHON' on 22nd December

in memory of his son Max. We walked from his home,

to his place of work with a fully loaded hod of bricks.

His sponsorship raised £1346.64, including £218.64

donated via his web page "Little Star'.

IInn mmeemmoorryy ooff mmaaxx ssmmiitthh

"Please find enclosed a cheque for the sum of

£832.87. This money was raised at the annual

Waltham Forest Youth League charity event. Our son

Grant Mills, played for Crownfield F.C who are a

member of the Waltham Forest Youth League, Grant

played for Crownfield from the age of 8 - 15 years old.

Sadly Grant's loss had a devastating effect on all the

members and players and it was therefore decided that

this would be a fitting tribute to the memory of Grant."

Mr & Mrs T Mills.

IInn mmeemmoorryy ooff GGrraanntt MMiillllss

"I enclose a cheque for £300 donated by friends and family of Benni D'Arcy Esposito, who died peacefully in his sleep

at the age of 33 years from Wolfe-Parkinson-White Syndrome on 4th January 2005. Benni suffered from this illness

from birth but led a full and happy life until his sudden death. He was an artist and lecturer at the Duncan of

Jordanstone College of Art in Dundee." Elizabeth D'Arcy.

IInn mmeemmoorryy ooff bbeennnnii dd’’aarrccyy eessppoossiittoo

"Thanks for all the information you sent me regarding

cardiac failure in the young after the recent loss of our 15

year old son Matthew. It's such a shock that he just went to

football practice as he did every week and 1 hour later he

was dead. We would like to donate the £420 collected in

lieu of flowers to your charity" Ian & Debbie Hill.

IInn mmeemmoorryy ooff mmaatttthheeww hhiillll

"Please find enclosed a cheque for £300 raised in memory

of our son Adrian by the Landlord of The Ivy House Inn,

Halifax, Mr. Peter McNamara. Adrian died suddenly on April

21st 2003 aged 34. Adrian is sadly missed by all." ChrisRegan.

IInn mmeemmoorryy ooff aaddrriiaann rreeggaann

"Please accept the enclosed cheque for £366 this money has been raised by the members of St. Mellons

Golf Club. The Captain John Davies has requested that this money be donated to the CRY charity which

John has a personal interest in, having lost his grand daughter a number of years ago whilst training for

inclusion in the British Olympic Swimming Team" John Critchley

IInn mmeemmoorryy ooff llaauurraa mmoossss

Clifton Rangers Youth Football Club and held a

6-aside football tournament in memory of

Dominic, and raised £1000.

IInn mmeemmoorryy ooff ddoommiinniicc OO''LLoouugghhlliinn

A further £344.50 has been raised by Pete and Barbara Jackson and Friends

for the SRC Ben Thorn Cycleothon 6, making a running total of £8614.65.

"My niece Katie ran the London Marathon this year in memory of her cousins

Ben and Bary (my sons) and her uncle Tony (my husband). She raised £1222

which together we decided to share between CRY and St. Barnabas, our local hospice who cared for Gary

so well. Please find enclosed cheques for £616 in memory of Ben Thorn." Veronica Thorn.

Katie has sent a further £65 from sponsorship.

IInn mmeemmoorryy ooff bbeenn tthhoorrnnee

Mrs. Jane Tirimo has donated £100

in memory of her daughter Klara.

IInn mmeemmoorryy ooff kkllaarraa ttiirriimmoo

Mrs. J. Read has donated a further £200 in memory of her son Timothy.

oouurr ffuunnddrraaiisseerrss

Sunday 17th April 2005 was at once one of the greatest and one of the

toughest days of my life. A year of committing to it; six months of training

(starting another month on top of that with my caffeine and alcohol ban!); all

the fundraising and publicity; standing in Greenwich Park an hour before the

start and knowing our bid was just then being shown on national TV; the thrill

of 26 solid miles of very vocal support; all the races that had led up to this

and the injuries that came with them (including shin splints that looked to

have come too late to heal in time); the knowledge that thousands of pounds

rested on running, walking, hobbling or crawling to that line halfway down

The Mall; my first London Marathon was always going to be a day I could

never forget.

The biggest reason the events of that day would be burnt on my mind, was

the reason I was there in the first place, and the one thing I had thought

about every day for a year and a half, sometimes constantly and always last

thing before I tried to go to sleep at night. My sister Jane had gone to bed

one Friday evening and never woken up the following morning. Only 35 and

apparently very fit and healthy, Jane had simply died in her sleep.

It made no sense, and still, 18 months on, we do not yet know for sure exact-

ly what happened. As a family, we now know a lot about these conditions, but that Saturday morning in November

2003, nothing had prepared us for what was happening.

Everyone experienced this differently: hearing the worrying news that then became devastating. For me, I heard the

phone ringing at 7.30am and couldn’t work out why anyone would call at that time.

All I could think was that the rugby World Cup quarter-final had just started and perhaps the New Zealand boyfriend of

my sister Katie, who had come up to stay with us, was calling because they’d scored a great try against South Africa. I

wouldn’t mind getting out of bed if it really was a good try. Instead, it was my mum and she sounded dazed. She said

that Jane was unconscious. Knowing that Jane was so fit, I tried to reassure her it would be alright and wondered if I

could go and help her husband Edwin look after the children while she was being treated. When I called Edwin, he said

she was not breathing and had no pulse. Katie and I were out the door a minute later. We had not yet left Cambridge

when my wife called to tell me Jane had died

It took a long time to get close to some kind of explanation as to why she had suddenly died, as each test ruled out

another possibility but shed no light on the probable cause. We began to hear about Sudden Death Syndrome, but with

the post mortem giving no real cause and the coroner inexcusably offering an impossible trigger for her sudden death,

it would take months of testing of all the closest family members to point towards a cardiomyopathy as the reason for

her sudden death. As we found out more, her years of occasional blackouts fitted a pattern.

While we were finding out all about Sudden Death Syndrome, we soon came across the charity Cardiac Risk in the

Young, who provided a lot of help and support to us as a family, particularly at the bereavement support day in London,

where we met other families who knew how we felt better than anyone else could. By this time, Katie had found out

that CRY had a team of runners with guaranteed entry to the London Marathon if they pledged to raise enough money.

Once she decided to enter, I knew I had to do it too, to honour Jane and help raise money and awareness for CRY, to

try to prevent other families from going through what we had.

Unlike Katie, who was five years younger and a lot fitter, I had a lot of work to do to get in shape. I started with a self-

imposed alcohol and caffeine ban and a concerted effort to cycle everywhere. I found a 24-week training plan for

beginners, starting slowly and soon picked up the pace until we ran a 10K race on Boxing Day. With the first anniver-

sary of Jane’s death coming up at the beginning of November, October had been a tough month. But as November

started and so did the training, it became a focus for my grief and gave me time to think while running. By trying to

channel my attention into something that could help others, it was a means of coping.

I started fundraising early on, as I was determined to get the maximum out of this effort for the charity. My first tip to

fundraisers, would be to make sure rich and generous friends start off any new sponsor form - particularly if they are

competitive enough to try to outbid each other. I had raised over £300 in my first afternoon. I could then see people

given that same sponsor form later who maybe thought they might give £5 but, on seeing amounts over £50, decided

to stretch to £20. Also, make sure you start any new group of potential donors with the one you expect to be the most

generous. Everyone else will match their total.

I also knew that I wanted to get the maximum exposure possible, partly to attract even more sponsors but also to take

the opportunity to tell as many people as I could about these heart conditions, to try to prevent further tragedies. I

wrote to various local media, press and television, giving all the relevant information, and highlighting possible angles

to the story. By an extraordinary coincidence, my wife was expecting our second child on the day of the London

Marathon itself. This gave a positive angle to the story and a way into the much more serious issues. Just before

Christmas, our local ITV channel, Anglia, got in touch to ask if they could do the story. They filmed and interviewed

MMyy LLoonnddoonn MMaarraatthhoonn

IInn mmeemmoorryy ooff jjaannee aalllleenn

bbyy PPhhiilliipp AAlllleenn

Katie, Edwin and me and the story, a full three-minute feature, went out on every news bulletin one day in January.

This then led to other things. The next day at my son’s nursery (kidsunlimited in Fulbourn), a lot of the staff said they

had seen the TV news and wanted to help. They soon thought of putting on a mini marathon for toddlers and pre-

schoolers at the nursery to raise awareness, and hopefully money, with the parents. This would later lead to even big-

ger things.

Meanwhile, the training was intensifying, with some longer runs in January up to 16 miles. It was about then that I

heard from CRY about the chance to run the marathon in their large foam heart costumes. As I had decided to try to

get maximum exposure, I had to do this, even if it meant an added burden for my first marathon. Steve Cox at CRY

assured me I could give the costume a try in training and not be committed to doing the marathon in it if it was all too

much. He suggested I try runs at 5am to avoid being seen. I opted for the opposite, picking busy times to be seen by

as many people as possible. I knew exactly why I was running in it and wanted as many people to spot me as possi-

ble. I also put my fundraising web address in large letters on the front and back, to publicise it.

My first race in the heart costume was the Sussex Beacon Half Marathon in Brighton in February. I ran with Katie and

we stuck together all the way (except around the 10-mile mark into the wind on the cliff tops, where the heart caught

the wind like an airbrake and trying to sprint got me barely above walking pace). We crossed the line together in 1 hour

56 minutes, which surprised us both. Determined as ever to publicise our run, I had sought out the local radio station

that was covering the race and my interview was on Juice FM the next day. Katie had also got in touch with her local

paper, the Daily Echo in Bournemouth, and had a full page spread, including her web address, which led to some large

donations.

Running in the costume was not too bad. It was awkward at first because your arms are pushed out at funny angles by

the foam, making it hard to swing them as you normally do when running, but I soon developed an upper-body waddle

that did the trick. I was sure the marathon would be no problem. In fact, it took some of the pressure off because if I

was going slowly, I could blame the costume but if I was running without it, I would have felt the pressure to run faster

than I could cope with.

I wrote to lots of different companies to ask for sponsorship. Almost all wrote back to say they didn’t sponsor individuals

but did already donate to chosen charities. One such letter though did bring a four-figure donation from a company that

didn’t want to be named because they don’t normally do that. It was only a family link that persuaded them to find the

funds on this occasion.

By this time Katie and I had far exceeded our minimum pledge level and had thousands of pounds, and expectation,

riding on us. That was when the long training miles and an excessively fast second half of the Flora London Half

Marathon around Silverstone combined to give me severe shin splints. With only a month to go, I began intensive

physiotherapy, with laser treatment, manipulation and ice baths three times a day to try to make sure I got to the start

line. It was then that I began to realise just how much this whole process had focused my grief and how devastating it

would be to have to pull out. One way or another I had to cover that distance on foot and complete the marathon for

Jane.

I had one last avenue to try to publicise our run. I knew that the BBC would feature stories on charity runners during

their BBC1 coverage of the London Marathon on the day. I needed to get in touch with BBC Sport and eventually got

through the switchboard to the production manager of BBC Grandstand. I told her my story, emphasizing the picture

opportunity of the toddlers running the mini marathon and me in the heart costume with them. Before long, it was

arranged that champion athlete Colin Jackson would come to Cambridge to film it and interview me. [Download clip]

This gave it enormous clout and guaranteed the story was sure to be aired on the day. Colin was superb all day and

great with the children. All I had to worry about now was the 26 miles ahead of me two days later.

I won’t go into the race itself in too much detail. My experience of the day was probably much like many others, at least

until the blistering heat made running in the costume even more of a challenge. My wife, watching at home and fortu-

nately not giving birth (although I was on the mobile all the time to check), even managed to spot Katie and me filing

through with thousands of others at the start, and the banner the family had made for us (right), which was in full view

on the screen for ages. Katie ran with me for the first 10 miles but we then agreed she should not be held back and

run at a comfortable pace for her. The spectators were great and, if ever you needed a lift, you just had to run along

the side of the road having high-fives with the crowd.

The one part of the race that I had expected to be emotionally tough was at mile 25 opposite the London Eye. When

Jane died, she had been due to go to London that day with Edwin and go on it for the first time. Having worried what

seeing this landmark on the day would do to me, it passed uneventfully as I was prepared for it.

Then I turned into Parliament Square. Big Ben struck three. I had nearly finished the race that was the culmination of a

year’s focus and six months of hard training, all of which had given me a channel for coping with Jane’s death. Now it

was nearly over, the emotions hit me hard and I ran the last mile in uncontrollable floods of tears for my big sister. Two

years older than me, she was the one I had known all my life and living without her now is so hard. The fact that I have

now reached 35, the age at which she died, and, like her, have just had my second child in the spring makes this an

emotionally tough time. I see all that she is missing out on.

Katie and I both finished fine, slower than I would have wanted but I’ll see about that next time. This time was for Jane

and finishing was the most important thing. In the end, the fundraising brought in lots of sponsorship. The mini

marathon raised over £1,700. Between Katie and me, we jointly raised over £10,500. The most important thing was

that we honoured Jane by doing it and it seemed fitting that we got to tell the whole country about Jane’s death and

just how much she means to us. One of the hardest things about Sudden Death Syndrome, unlike many other condi-

tions that cause an early death, is that we never got to tell her all this before she died, at least not in so many words. I

hope that in spirit she knows this now.


RRuunnnniinngg ffoorr ccrryy

Issue 40

"My daughter and I chose to run the Great Manchester Run in support of the charity CRY. It was the first time we both

had done such an event and as such it was also a challenge. We both completed the 10 KM successfully, myself in 1

hour 11 mins and my daughter in 1 hour 7 mins. As a university student in Edinburgh, my daughter, short of money,

decided to wear a tape recorder and heart monitor for a medic friends Cardiac Project and was duly given remuneration

for doing so. Immediately, the Professor, who was supervising the scheme, after reading the results, contacted my daugh-

ter, who was diagnosed with a condition

called Wolff-Parkinson-White Syndrome

(WPW). This is a heart defect which if

untreated could have potentially serious

implications. After further tests she was

admitted into the Royal Brompton and

Harefield Hospital for a heart operation

carried out by Dr. J.R. Clague which was

designed to cure this condition by a

procedure called radio frequency

ablation. I am glad to say that the seven

hour operation was a complete success,

although she had to undergo seven

"burns" to eliminate the condition. We

were lucky to have found out about her

condition which could have led to her

dying just by chance. She had been born

with this condition and no one had diagnosed it before until the Professor had analysed the results. We are thankful to

all who helped us find out about my daughter's heart condition hence the reason for choosing to run the Great Manchester

Run to raise awareness through CRY and help other young people who have this condition but are unaware of it, as was

my daughter. We send our best wishes and congratulate all who work for CRY and hope that our contribution will help

in some way to further the splendid work of this charity." John Bowden and Fiona Bowden.

ffiioonnaa aanndd jjoohhnn bboowwddeenn -- ggrreeaatt mmaanncchheesstteerr rruunn

David Bloomfield has raised £900.59 on behalf of CRY by running the Adidas Flora London half

marathon. "I first became aware of CRY after the amazing support which you offered the family

of Jane Allen (a family friend) who suddenly passed away during her sleep in 2003. Like so

many of the tragic stories on your website Jane was just 35 and showed no previous signs of

cardiac abnormalities. I completed this year's London half marathon in 1 hour 50 minutes and 14

seconds. Despite being unsuccessful in my application for this years full London marathon, I

hope to take part in next years event and would be very keen to raise some more money for CRY. I hope that the

money I have raised will go some way in helping CRY to fund some of the numerous worthwhile programmes in opera-

tion and to raise awareness of Cardiac Risk in the Young." David Bloomfield.


Cathy McLean has entered the Glasgow 10k run for CRY and raised £402. As part of the Barclays

Community Programme, Barclaycard have matched fund this donation and we have received £400.

Barclays is one of the top three corporate contributors to the community in the UK and our total support

reached £32 million in 2004. I am delighted that we were able to add the funds raised by this event and

to contribute to your valuable work at this time."

IInn mmeemmoorryy ooff ccllaaiirree bbeeeerr

Rachel Lander from Sidcup took part in a sponsored run and raised £241 for CRY.

Chris Jowett ran in the Dublin Marathon and raised £251.50 for CRY.

dduubblliinn mmaarraatthhoonn

ssppoonnssoorreedd rruunn

Fiona and John ready, willing and able

rruunnnniinngg ffoorr ccrryy

Great North Run for Vicky Johnson in aid of C-R-Y

run by Richard Woffendin

We would like to thank Richard for running the great north run in memory

of our darling daughter Vicky, whom we lost in aug 2003 to sudden death

syndrome, Richard the fianc'e of Vicky and dad to Shannon their beautiful

daughter aged now 2 1/2 yrs old. Richard was determined to finish the run

and wore with pride the sketch of Vicky on his back, he said, from

his decision to do the run "that it was for Vicky and he would finish the run

in her memory , and as he ran around the course all that kept him going

was that what he had promised to do ", and it was all for Vicky to benefit

CRY ,he wore the CRY t-shirt and that kept him going ..quick calculations

on the sponsorship adds to just over £400.

“Please find enclosed a cheque for £175 for Joe Spivey's Memorial Fund.This was kindly raised by one of

Joes fellow students, who ran the Leeds Half Marathon last year in Joes memory.His name is Simon

Bartram he is now a teacher at St. Ingnatius Primary School" Kathleen Spivey.

IInn mmeemmoorryy ooff jjooee ssppiivveeyy

"My younger cousin, Pamela McKenzie died from cardiomyopathy two years ago, aged 23. Since then some members

of the family have had car boot sales where we have all cleared out as much as we could to help. Someone in the

family suggested we run the womans 10k Britannic Asset Management race in Glasgow for the charity too. This was a

little daunting as none of us has ever even jogged before but we kept thinking of Pamela and knew we could do it.The

race took place on 15 May 2005, from Bellahouston Park in Glasgow. There were 12,000 women there. We ran

through parts of Glasgow, Pollok Park and back to Bellahouston. We were all so nervous, but having trained really

hard up to the day, we all finished and in good time. It was a fantastic day. The atmosphere was truly amazing and

doing this for charity was even better.I would like to say we had a wonderful time doing this and know that all the

money raised will be put to good use. I am so proud of my medal and know Pamela would be too. We miss her so

much but doing all of the really does help. Thanks." Amanda Meechan. Amanda raised £460, and this was matched by

her employer Boots the Chemist with a further donation of £460.

iinn mmeemmoorryy ooff vviicckkyy jjoohhnnssoonn

iinn mmeemmoorryy ooff ppaammeellaa MMcckkeennzziiee

lleess ggaarrddnneerr lloonnddoonn mmaarraatthhoonn

"Please find enclosed a cheque for £100 from AEGON UK Services Limited whom I work for and they kindly agreed to

sponsor me for the 2004 Great North Run." Jeremy Welch.

"I have previously run the London Marathon on behalf of CRY, the last time in

2000. Having gained a place in my own right in 2005 I was encouraged to

gain sponsorship for the event. Please find attached a cheque for £712.50. I

would request that £237.50 is paid into each of the following Memorial Funds:

Les Gardner

Ian Bowen Fund Dominic O'Loughlin Fund Laura Moss Fund

Issue 40

Pete Surtees raised £501 for CRY

after he took part in the Cardiff

Marathon.

Mr. T. J. Ingham has entered the

Great North Run on behalf of CRY

and raised £216. "My son - Thomas,

greatly enjoyed the run and the

spectacle of the day, thank you"

J. Hingham (Mrs)



rruunnnniinngg ffoorr ccrryy

“Two years ago we lost Scott, a 20 year old member of our family. He died suddenly of heart disorder

called Sudden Adult Death Syndrome (SADS). We’ve discovered is a term for undiagnosed heart condi-

tions, which can cause sudden and unexplained cardiac death in the young.

Scott died of one of the conditions called Long QT for which none of the family were aware of.

We orgainised a childrens Rainbow Fun Run on the 28th May 2005. It was a 5km run around Willen Lake to

raise funds for CRY’s campaign in Scott’s memory and to make people aware of this condition.

Received from Rainbow Fun Run £2589.80”

Melanie Haynes has raised £263 by holding a Fun Run.

Jade Shorter completed a Fun Run at Milton Keynes, which was organised by June Dollard, she raised £586.72. Her

employees, the Royal Bank of Scotland Milton Keynes are going to match this donation by £500.

Further sponsorship of £188 has been received from Linsey Short and Pandora Ford.

Claire Baker took part in the London Marathon to raise money in memory of her twin sister Vicky’s

partner, Justin Carmen, who died four years ago at the age of 26 of Hypertrophic Cardiomyopathy,

which he had no idea he had. Justin was a very fit and healthy postman with two children, Ben now

aged 7 and Charlotte aged 13. They had just returned to their home on the Isle of Wight after visiting

their family in Sutton for the weekend, Justin was on the computer when he got home, then about

9.15pm he just collapsed, Vicky was there with him when he died. The children are now having regu-

lar genetic screening. Claire then went on to raise more money and awareness at the David Lloyd

Health and Fitness Club in Epsom where Claire is the Gyms studio Co-ordinator. On Sunday the 28th

May they held a family fun day where Claire and her work colleagues ran extra classes in palates,

aqua aerobics and legs, bums and tums classes and not forgetting the Kelser bikes.

They also had a Raffle, Face painting, Magic Tricks and a Barbeque. June Dollard

and Lyn Nesbitt also came along on behalf of CRY with a raising awareness table to

help out. At the end of the fun day at David Lloyd, Claire raised a massive

£2345.33. Claire would like to thank all her colleagues and the members for the

help and

support in making this all possible, and a special thanks to David Lloyd for allowing

them to use his club.

iinn mmeemmoorryy ooff jjuussttiinn ccaarrmmeenn

iinn mmeemmoorryy ooff ssccootttt mmccccoolllliinn

We would like to thank the Milton Keynes

Citizen newspaper for the Pictures and

coverage of our Rainbow Fun Run.

sskkyyddiivviinngg ffoorr ccrryy


Camilla Neate of Stane in

Stafforshire has completed a

Skydive and raised. £202.32.

Charlotte Spackman from Uxbridge, carried out a

Tandem Parachute Jump, also in memory of Adam.

Charlotte has raised £207 from her jump. Charlottes

local pub The Vine, in Uxbridge, Middx., raised

£1270 by setting up a 'collection box' in the name of

CRY.

Terry Furlong from Lancing, West Sussex completed

his Accelerated Free Fall Parachute Jump and

raised £166, which he donated to CRY.

Kirstie potter enjoyed a skydiving experience and

has raised £784.02 for CRY Kirstie 's employer the

Bank of Scotland have donated an extra £300 to

the total of her sponsorship

Anne Bellworthy of Whitenap, Romsey has carried out

a Tandem Skydive and raised £115 for CRY.

Nurana Syeda from Kingston upon Thames,

performed a Tandem Parachute Jump and

raised £120 Nurana Syeda and Naomi Sutton

has send in a further £185.

Richard Hughes from Kettering, performed a

Tandem Parachute Jump in memory of Adam. and

raised £120

Jake Sweeney from Failsworth, Manchester

has carried out his AFF parachute jump.

Jake raised £145 for CRY.

Kerry Gasior enjoyed the experience of a

Tandem Skydive and made a donation of £105.

Lisa Donnelly enjoyed the experience of her tan-

dem parachute jump in memory of Adam and

raised £120. Lisa has sent a further donation of

£617.

"Thanks for a wonderful experience as well as

for making it worthwhile to overcome a child-

hood fear!" Naomi Sutton from Ashford Middx.,

who raised £494

Joanne Danbury of Clacton on Sea has executed a

Tandem skydive and has donated £100 to CRY..

Mitin Bhalsod from Northwood, Middx. Executed

a Tandem Skydive and donated £130 to CRY.

Anthony Hoyles from Southampton executed

a Skydive for CRY and his sponsorship has

raised £215.

Danielle Parker of Frinton on Sea has performed a

Parachute Jump and donated £100.

iinn mmeemmoorryy ooff ppeetteerr rreeyynnoollddss


Pete died suddenly on 13 October 2004. The shock, and despair his family, girlfriend

and close friends feel cannot be expressed fully in words. Pete was an outgoing and

lively 27 year old who lived his life to the full. He was a ‘natural’ at most sports and

extremely fit. A black belt in Tae Kwon Do, he also played football and was a regular at

the gym where he thoroughly enjoyed weight lifting. In 2003 he completed the Stroud

half marathon and also came third in the Tae Kwon Do British Championships held up in

Birmingham. There was no sport Pete didn’t enjoy and had recently become skilled at

snowboarding and climbing. For several weeks leading up to Pete’s death he was

experiencing spells of dizziness, especially when he was training at the gym. Over a

number of years he had also experienced the odd heart palpitation or two, some lasting

for just a short time, and some lasting longer. With never a day’s sickness in his life,

he unfortunately ignored these warning signs until it was too late. The evening before he

died he went to the gym as usual, following which he telephoned his girlfriend Becky to

say he was experiencing heart ‘flutters’, dizziness and had a ‘burning’ throat.

Pete was found dead the next morning lying at the bottom of his bed as if he was asleep.

As a family, we ask ourselves ‘WHY’.

Why did such a loving and fit son/brother pass away at such a young age?

Why were we not at his side when he probably needed us most?

Why did he not visit his GP?

We found out about CRY shortly after Pete died, and read about all of the other young lives that have been lost in such

a similar way. The contact we have received from the team has helped us to stay sane. We waited six weeks for tests

to be completed – all came back clear so we will never really know why and how Pete died. All the symptoms point to

his heart but we are told it is difficult to test for heart defects once a person has died. Now that Pete had gone, our

lives are on hold. We are unsure of how we will go on, and what to do now. Our only focus is to ensure Pete didn’t

die in vain. We can’t help questioning ‘What if we knew about SADS and it’s symptoms? We would have made him

go to the Doctors.’ It seems that even a majority of the Medical Profession are unaware of it though. We will never be

able to bring him back, but we can hopefully help to save others by making them more aware of SADS, working with

CRY and helping to get the correct procedures in place for such deaths. Fundraising and awareness has already start-

ed. Pete’s brother Andy runs a Tae Kwon do club, and has access to 50 Instructors in the Southwest so is contacting

them, Pete’s girlfriend Becky works in PR and has a lot of contacts in the Bristol area, and Andy’s girlfriend is a

Personal Trainer in Gloucestershire. Together with Pete’s mum and dad, we will be spreading the word and raising as

much as we can.

Pete’s Family

."Please find enclosed donations totalling £700 received from a variety of sources following the death of our son Peter."

Mr and Mrs Reynolds.A donation of £594 has been received for CRY at the funeral service of Peter John Reynolds at Westerleigh

Crematorium on 26th November 2004.

"My sister Katie Feltham organised a dress down day at Bristol-based AXA Sun Life. Her team raised £100"

Becky Feltham (Pete's partner)."My sister Katie Feltham has been baking lots of cakes and has sold them to colleagues at Bristol-based AXA Sun

Life. She has raised £160 and I enclose a cheque to be added to Pete's Memorial Fund."

Becky Feltham (Pete's partner)

ffuunnddrraaiissiinngg iinn mmeemmoorryy ooff ppeetteerr

IInn mmeemmoorryy ooff PPeetteerr RReeyynnoollddss

oouurr ffuunnddrraaiisseerrss


"I wrote to you some weeks ago to let you know of a forthcoming charity event arranged by myself and my friends

Anne and Rob Place owners of the Sun Inn Public House in Newbottle, Tyne and Wear. My husband David died sud-

denly of a heart attack in December 2003 aged 34 years. He had been ill for a couple of weeks but had no idea it was

a heart related condition which could have been treated had it been detected sooner. It was an absolute terrible time

for both family and friends. David was the life and soul to all of those who knew him, so a big void was left behind in

our lives when he died. The only consolation is that David lived his life to the full and lived for the day and never put

off for tomorrow. We will never get over David's loss and the void that he has left behind. But as people in similar cir-

cumstances would agree, life has to go on as best we can. I have for well over a year now received free voluntary

counselling on a weekly basis from one of your dedicated councillors. I would like to take this opportunity to thank her

so much for her kind words and comfort when I needed it. I don't think she realises how much she has actually

contributed towards me feeling better and I know if I need her she is always there as a valued friend and a very special

person. With this in mind we found it only fitting to raise as much money as we possibly could towards the Charity that

has helped me and my family towards putting our lives back on track. On Sunday

29th May 2005 some 250 personal friends and work colleagues participated in the

days events which included a football match, darts and pool tournaments, raffles,

karaoke and auction etc. It was a tiring but very worthwhile day which is reflected

in the amount of money which we raised. The day allowed each and everyone of

us to reflect on David's life whilst at the same time raise money towards a very

worthy cause. I would like to take this opportunity to thank Anna and Rob, and all

their staff for their hard work prior to and on the day itself. Also all of those people

who contributed towards the days events and helped to raise such a substantial

amount of money.We do hope the money raised will go some way towards you

achieving your objectives.Again, to all those involved with CRY thank you for all

your support." Deborah Chance and Family. Total Raised £3110

Nigel and Jenny Cole have forwarded £253.50 representing the first donation from the Mayor of Eastbourne charity

sponsorship 2005/2006. Nicola and Adam Shergold have raised money, via their website, in lieu of presents for

their wedding day, they have raised £1111.67.Nichola's employees The Royal Bank of

Scotland have made a 'match giving' donation of £500 "We are delighted to help those

community groups, schools and charities where our staff are already making an important

contribution in their own time"

Bill and Carol Jones, have donated £170 in memory of

their grandson Richard, after holding a 'race-night' held

in April.

iinn mmeemmoorryy ooff rriicchhaarrdd bbeetthheellll

Alex, David’s daughter presenting the trophy to thewinning team

iinn mmeemmoorryy ooff ddaavviidd cchhaannccee

iinn mmeemmoorryy ooff jjeerreemmyy ccoollee

"On Saturday 28th May, a group of people

completed a 75 mile sponsored cycle ride

for CRY in memory of Adam. The

enclosed cheque for £765 is the amount

raised by Eric and his son Carl Adamson."

Julie Donnelly.

"Please find enclosed a cheque for £545 which I received in sponsorship for

completing the West Highland Way Walk. This sponsorship money is for

CRY in memory of Colin Doyle.The photo shows myself (on the left) and

Gary Barker (who also completed the walk for CRY). We are

looking at completing the Great Glen Way next year and if all

goes will I would like to raise more sponsorship for CRY".

Patrick Shea

iinn mmeemmoorryy ooff aaddaamm ddoonnnneellllyy

iinn mmeemmoorryy ooff ccoolliinn ddooyyllee



"Please find enclosed a cheque for £1286.

We were lucky Tesco let me have the car

park to hold a car boot sale which raised

£1226 also Tesco's gave a donation of £30

the girls on checkout raised £30 by not

sending cards at Christmas." Jane Howard.

IInn mmeemmoorryy ooff sstteewwaarrtt hhoowwaarrdd

"Enclosed cheque £140.

The money was raised by

the staff of this Department

as part of their recent

'Dress Down Friday'. On

one Friday each month staff

are encouraged to dress down and make a contribution

to a nominated charity. Your charity was nominated by a

member of my staff Anna Dasey to receive the money

donated from our most recent event in memory of her

son-in-law Paul William Marrs. Paul died suddenly last

year, in his mid thirties, following a heart attack, having

had no previous health concerns affecting his heart.

Since then Anna and her family have been closely

involved in supporting your charity.We hope that the

enclosed donation will be us useful contribution to the

work that your charity undertakes." Derek Sears CO4

Disclosure Service, New Scotland Yard.

"Please find enclosed a cheque for £568.29 which has

been raised at a quiz night that I have held. As you are

fully aware, I raised these funds in honour of my husband

Paul's memory. This amount will be matched by

Barclays Bank increasing to £1136.58" Phyl Marrs.

IInn mmeemmoorryy ooff ppaauull mmaarrrrss

A donation of £500 has been received from Mrs. S.

Minister, in lieu of floral tributes at the funeral service of

her late husband Graham Wilfred Minister.

IInn mmeemmoorryy ooff

ggrraahhaamm wwiillffrreedd mmiinniisstteerr

Mrs. Betty Carter and Mrs. Cheryl Arnold of Wells in

Somerset held a garden coffee morning in Wells and

raised £130.

IInn mmeemmoorryy ooff jjoosshhuuaa mmoorrrriissoonn

"Please find enclosed cheques to the

value of £1405 for CRY. This money was

collected at the funeral of our son, Oliver

Montague, who died of Long QT at the

age of 8½ months on 27th January

2005.As you can see from the photo,

Oliver was a vey happy, smiling baby. He

always had a huge smile and a flash of

his big blue eyes ready for anyone he

met, and his smile melted hearts.

Everyone who was lucky enough to meet

Oliver has been affected by his death, and

I think this is apparent by the incredible

amount raised at his funeral.Oliver was

diagnosed with long QT at 3 weeks old.

We were told to carry on and treat him as

normal, and we were both determined that

Ollie should be able to get out

and experience what life has to

offer. He enjoyed going out to

parent and toddler group, doing

Music with Mummy classes and

spending time outside in the

countryside. Providing he was getting

out and meeting people (and having

plenty to eat!) he was very happy.We

are planning to host an 'end of summer'

ball in Oliver's memory in September to

raise some more money for CRY, so we

look forward to sending you some more

money then!We would like to take the

opportunity to thank you for your help

and support in the first months after

Oliver's death. He remains dearly loved

and very missed little man. We are sure

that the monies raised in his memory

will go to good use and hope they will

help to prevent other people going

through what we have"

Piers and Keri Montague

IInn mmeemmoorryy ooff oolliivveerr mmoonnttaagguuee

Sandra Morland has taken part in a sponsored walk and

has so far raised £210

IInn mmeemmoorryy ooff lleevvoonn mmoorrllaanndd

"I enclose a cheque for £840. Mr. & Mrs Lee organized a sponsored pool day 9am - 9pm.They lost their son Johnathon

around 2-3 months ago. He had Wolf Parkinson White. He was poorly at birth and received checks from the hospital

until the age of 3 years.The consultant told them that their child would grow out of the condition and received no further

checks. They were never told at the age of 3 that he had WPW, so you can imagine how devastated they are feeling

not only for the loss of their child but also to find out that something could have been done about this condition.They felt

that they wanted to do something and after I had told them all about CRY, gave them booklets and information about

yourselves they decided to donate the money to you." Julie Hatton.The event was held at the Magnet Public House

IInn mmeemmoorryy ooff jjoohhnnaatthhoonn lleeee



We have contacted you before, shortly after our daughter Philippa died suddenly on 5 July 2003. The post mortem

result was death by natural causes unknown, however, at the inquest last year we were told that Philippa had a mass

of fatty tissue around the right ventricle of her heart (ARVC). She had not shown any signs of there being a problem

prior to her death. On the evening of her death we had been for our usual evening walk, leaving Philippa at home in

her room watching TV, her usual cheery self and on our return home we called out "Hello", got no reply and assumed

she had fallen asleep after a hard day's work as a trainee hairdresser in a busy salon. When we went up to bed about

1 ½ hours later, she was lying on her floor, headphones on - CD player still going, she looked as if she was asleep but

on trying to wake her to tell her to get in bed we realised that she was cold and her lips blue. We called an ambulance

and we tried to resuscitate her but it was obviously too late, she was pronounced dead on arrival at hospital. She was

17 and three weeks short of her 18th birthday which she was excited about. Her sister Jeny is two years older and like

Philippa was adopted, we do not know of the birth family history of Philippa so were unaware of any heart disease in

her family. Jeny, of course, is not a blood relative but they were always very close as sisters. We made every effort to

inform Social Services in case they thought it necessary to inform Philippa's natural mother in the circumstances. We

all miss Philippa terribly and only now feel able to write this letter and sort out the money side of things. The cheque

for £551.90 represents the donations in lieu of flowers (we requested family flowers only at her funeral).Our cheque for

£385 represents: a refund of her holiday we booked for her 18th, money from the sale of her flute, a donation from her

grandmother, one from grandma's hairdresser and some money from us. We would like to donate these cheques in

memory of our beautiful daughter Philippa Susan Harbour." Ann & Steve Harbour, and Jeny.

IInn mmeemmoorryy ooff pphhiilliippppaa ssuussaann hhaarrbboouurr

IInn mmeemmoorryy ooff bbaaddiirr aall--cchhaallaabbii

A cheque has been received, via Dr Al-

Chalabi, for £150 from BMC Properties &

Management Limited.

The Garston Taekwondo Club once again raise funds for

CRY. (£200) on their Annual Taekwondo 'Fun Night'." We

always have a good turn out with both Students and

Friends putting their 'Hearts and Souls' into the evening,

which everyone seemed to enjoy.Hopefully this will con-

tinue in the future" Master Dave Sealey

IInn mmeemmoorryy ooff kkiimmbbeerrlleeyy ssttaacceeyy

"We are enclosing a donation in memory of our son, Gregory Palmer, for his birthday.We have appreciated your work

in raising the profile of sudden unexplained deaths in your people" Janet Palmer. Mrs. Palmer donated £200.

IInn mmeemmoorryy ooff ggrreeggoorryy ppaallmmeerr

Jackie Johnson has been fund raising throughout 2004 and the final total raised was £2475.08. in memory of

Vicky. The Davenport family of the Aesthete Stud in Owston Ferry, Doncaster held a show in 2004 and

raised £932. Clare Gladding of Fairytasia Faries raised £444.44, Amanda Howard of Maynards Faries

raised £448.71 and Shirley MacKillop of Weefarytales raised £192.31 through their websites. Jackie has

again committed to raising funds for CRY in 2005.

IInn mmeemmoorryy ooff VViicckkyy JJoohhnnssoonn

"I am walking the whole of the South Downs Way at the end of May in memory of Sean Ratcliffe who died last year at

the age of 9. He had Jervell and lange-Neilson Syndrome. " Anne Rees The amount raised so far is £910 (17/5/05)

IInn mmeemmoorryy ooff sseeaann rraattcclliiffffee

We have received a cheque for £175 in lieu of floral tributes at the funeral service of Mark Houghton

"Please find enclosed a cheque for the amount of £1,000 which has been raised by friends and family of Ashley

Livesey, namely 'Team Ash'.The funds were raised by participating in many different events such as organised bike

rides, 10k runs, parachute jumps, and a benefit night, all during 2004. As you are aware we lost Ashley our 15 year old

son in March 2004 to a sudden adult death syndrome whilst he was running in a cross country event representing his

school. We have recently attended the inquest into what happened to Ashley, and after all the evidence and the pathol-

ogist report the coroner recorded the reasons as unascertained but as this particular coroner has had to record this in

other similar cases and apparently as the law has recently changed he would record the causes as S.A.D.S. which

adds some weight to what we are all campaigning towards." Gary and Julie Livesey



IInn mmeemmoorryy ooff mmaarrkk hhoouugghhttoonn

IInn mmeemmoorryy ooff aasshhlleeyy lliivveesseeyy

“I emailed your charity a little while ago following the sudden death of my son Russell Talbot aged 17 on December

21st 2004, the result of the inquest found he died from Myocardial Fibrosis and confirmed it fell under the banner

SADS.I promised to send you the money raised in lieu of flows so please find enclosed cheques" Greta Sargeant. The

total donation was £1006.

IInn mmeemmoorryy ooff rruusssseellll ttaallbboott

"I am a line dance instructor, and after the death of my daughter, Aine, I set up a

fund raising appeal at our All Ireland Finals the year before last sponsoring two

memorial cups in her name. The aim is to raise money for charity. The first year

it went to diabetes, because I was still unsure as to what happened to Aine.

Then last year the charity had to go to the south of Ireland, and we raised money

for Crumlin Hospital Dublin. The AGM was held last year and I put forward CRY,

and it was passed and so this year we are raising the funds for yourselves. I am

delighted"

A total of £3,700 has been raised at the 2005 All Ireland Line Dancing Finals.

Aravon McCann

IInn mmeemmoorryy ooff aaiinnee MMccCCaannnn

Shocked that his skills were caught on camera! ‘Jazz Hands’

Beware the hair



"I would like to donate the collection made at my late husband's funeral to CRY. Having read articles, since Andrew's

sudden and unexpected death, I feel that it is appropriate. Andrew was 38 years old when he suddenly collapsed and

died instantly with the cause of death being Acute Cardiac Failure and Calcific Aortic Stenosis, which had been a result

of undetected rheumatic fever when he was about 5 or 6 years old. Andrew had been a long distance runner since the

age of 12, being consistently successful for the Wrexham Athletics Club during his school years and then competing for

Wales in the army as a seventeen year old soldier where he came 3rd in the event.Andrew left the army after a short

time and stopped competing in races but continued to keep himself fit by going for runs in the evening between 5 and

8 miles. He would cycle to work daily even if the car was available purposely to keep himself fit as in the last year or

so he was finding his running more difficult. Eventually he found he had to stop for a few minutes as his chest would

tighten and his legs would go "dead" Once he had rested for a few moments, Andrew could complete his run. In the

end Andrew went to see his GP who did various tests and sent him for a chest x-ray. Everything came back clear and

the GP gave Andrew an inhaler to take 15 minutes before his run, putting is down to asthma. Andrew was to go back if

he felt things did not improve. Regrettably, Andrew never went back to see his doctor, assuming that his age was part-

ly to blame for his fitness.Sadly on 19th January 2005 Andrew went out for a run but returned about 15 minutes later

saying that he had found it too difficult. He was talking to me in the living room (still standing) about the Man Utd

match on the television when he said calmly "I feel dizzy". He fell to the ground and died instantly.When I discussed

the Post Mortem results with the consultant he was amazed that Andrew had been able to be so fit with his condition

as one of the heart valves was so tight he had been running on only two valves and that we would probably not have

considered doing an echo test is he had seen a patient, as he would not have believed that someone would be able to

continue to run these distances with these heart problems. He did state that the symptoms that Andrew had were the

exact symptoms of the Calcific Aortic Stenosis. This makes me very sad that this wasn't looked into as the reason for it

seems to be - of you are fit and healthy, you can't possibly have a serious hear problem.Andrew leaves behind myself,

Ceri, and two young son's, Callum, age 9, Same age 4. It still does not seem real, I don't know if it ever will.I was

pleased to find this charity as I wanted the donations to go to a charity that would have meant something to Andrew

and may have made a difference to him if it had been around when he was younger.I hope this gift helps to make a dif-

ference." Mrs. Ceri Ridgeway

IInn mmeemmoorryy ooff aannddrreeww rriiddggeewwaayy

"I am a member of the W.I. and last week we had our Autumn Council Meeting at which we were fortunate

to have as one of the speakers our National Chairman, Mrs. Barbara Gill. During the lunch hour I spoke

to her and have subsequently written to the Editor of 'Home and Country', the W.I. magazine, and I hope

that sometime in the future there will be an article on CRY. I so hope so - I am doing my best to 'spread

the word'. It especially grieves me that youngsters are not checked for heart problems because the

grandchildren of my brother from Weymouth, who are at present temporarily resident in America, were

checked soon after they joined their new schools.Since I visited Cheltenham I have had a birthday, and I am

enclosing cash I was given in lieu of presents. In addition I unexpectedly won a prize in the 100 Club of Marshwood

School, the smallest school in Dorset. I am enclosing that money and adding a little more to it.Good luck in all your

efforts" Pamela Puley.

IInn mmeemmoorryy ooff mmaatttthheeww bbaaiilleeyy

Ickenham Churches' Womens' Group, Ickenham, Middlesex, have made a donation of £280 as a first contribution to

the Matthew Wilkin Memorial Fund."The money was raised at our "Summer Sale" on 16th August which

included plants, cakes and afternoon teas. The afternoon was well attended and gave us the opportu-

nity to hand out leaflets promoting the work of CRY" Diana Holland (ICWG Leader)

IInn mmeemmoorryy ooff MMaatttthheeww wwiillkkiinn


IInn mmeemmoorryy ooff lloouuiissee wwoorrtthh

"I enclose a cheque for £1,600, collected on Louise's behalf, from friends and their colleagues at Fujitsu in

Liverpool.

"Louise had an evening and weekend job at the Novotel Hotel and she was down to work on the

evening of Tuesday June 1 last year. Louise was in a really buoyant mood as she had been out with her

friends the night before and had a great time. Before starting work, Louise sat chatting to her mum in the

conservatory of their home then decided to go to bed for a lie-down before work and asked her mother to

wake her in time. At 5.20pm, Sue entered her daughter's bedroom and - as she stood at the foot of her bed, and with a

mother's intuition - she knew her fun-loving daughter was dead.

"I just looked at her and I knew in my heart that she was dead. I shouted for Ken and he started to give Louse com-

pressions while I rang for an ambulance. Paramedics arrived and worked on Louise for some time to try to resuscitate

her and then they took her to hospital where they carried on working on her, but they could not revive her. At 7pm that

evening, they pronounced her dead. Louise was a bright and bubbly girl and we were more like friends than mother

and daughter as we shared the same sense of humour. She did really well in her GCSE's at Balshaws High School

and was doing brilliantly with her A-Levels at Runshaw and had just started looking at universities where she was plan-

ning to study International Business. She was a popular teenage and the house was always full with her friends.

Everyone commented on what a nice and mature young woman she was. She had her whole life ahead of her and

now it has just gone" Sue Jarvis (Louise's mother)

We arranged for a 'Louise Worth Award for Citizenship' to be presented at Balshaw's CE High School where Louise

was Deputy Head Girl. It will be awarded for the second time on Thursday 17th November, at the annual Prizegiving

Evening.

Runshaw College, where Louise was studying 'A' levels, have asked us if we would like to present a cup in her name

at their Prizegiving in December. It is to be the Louise Worth Award for Community Action and given to a young person

who has helped with fundraising or setting up initiatives to improve the locality in some way. The College are very

keen to help preserve Louise's memory and have suggested that they have a Louise Worth CRY Appeal on an annual

basis to help raise more funds." Sue Jarvis

"I enclose a cheque for £500 made out to CRY, from the fundraising that was held at Runshaw College, where my

daughter, Louise Worth, had been an 'A' level student.I understand that one of the DJ's on ROCK FM had picked up on

this and mentioned Louise and CRY on their show. This network covers the whole of Lancashire. I did not hear this

myself but some of Louise's friends passed on the message.I apologise for the lack of technical jargon in the article.

When I was first interviewed for the article I previously sent, I was quoted as saying those things quite out of context.

This article was written without talking to me and I have since the original interview, read up rather more on the subject,

so I hope it doesn't read too badly." Sue Jarvis

I am enclosing a cheque for £300 for CRY. On 23rd July, Jim and I had a joint 60th birthday party and we

said that we didn't want any presents but suggested that if people wanted to give us something they

should give us a monetary gift in memory of our son, Phil - so that's where this money has come from."

Barbara and Jim Holland.

IInn mmeemmoorryy ooff pphhiill hhoollllaanndd

"Well it's a year ago when I last wrote to you when my son Colin (Forder) and his friend James (Marjibanks) held a

charity football match in memory of Colin's friend Kevin and James friend Matt, this event has now taken

place again (Sunday August 28th) with all their friends and families getting together to raise money for

CRY and the Royal Marsden Hospital where Matt died of a rare form of cancer.We had a Tombola and a

raffle and the football game with Colin's Team of Kevin's friends and James Team of Matt's friends, this

year it was a draw 1-1 and we had beautiful weather and a friend and I put on a buffet for everyone to

enjoy afterwards.I am enclosing a cheque to go to The Kevin Sayer Fund for £260 and hope we can do the same next

year" Mrs. S. Forder.

IInn mmeemmoorryy ooff kkeevviinn ssaayyeerr



IInn mmeemmoorryy ooff RRoobbeerrtt LLaammpplloouugghh

A donation of £500 has been received from Mrs L J Walker, Charitable Trust, in memory of her grandson, Robert

Lamplough.

Andrew Cumming, James Lawson, Georgie Maynard and

Jake Civardi all ran in the New York Marathon and have, to

date, raised an amazing £6,648.20 through sponsorship.

Georgie Maynard has sent a further donation of £150 after

the New York Marathon in memory of Robert Lamplough.

Josie de Souza, Chime Communications Plc, has sent in a

cheque for £100. This represents sponsorship for the

Andrew Cummings marathon team.

Alex Clayton has sent in donations amounting to £2,560 for

the Robert Lamplough Memorial Fund.

A donation of £300 has been received, via Alex Clayton,

from the J Liddell-Simpson Charitable Trust, for the Robert

Lamplough Memorial Fund.

"Please find enclosed £1322.06. This was a result of a charity event that took place at the Tandoori Parlour,

Thundersley, Essex. The event was a sell out 5 days before it took place amassing to 200 people attending. The

evening was in memory of Jade Ryan from Hullbridge, Essex who passed last year with SADS at the age of 12 at her

school during a PE lesson. As you can imagine this has had a massive impact on the community as well as the school

where many children watched Jade collapse. The evening was hosted by Faye Harrison my dearest friend and started

with a live band, Lunar Garden whilst guests helped themselves to an Indian buffet. We then held an auction with

prizes from famous TV mediums and then the test of the evening was devoted to an evening of clairvoyance by a great

medium Ronnie Buckingham and I. Unfortunately we were so busy that no pictures were taken! The evening was an

absolute success and Daren and Sandra, Jade's parents, were overwhelmed as was Jades three brothers and two

sisters. I am proud to have been part of the fundraising and hope that this contribution will help towards your fantastic

charity." Nicky Allan Miss

IInn mmeemmoorryy ooff jjaaddee rryyaann

"Please find enclosed for £710. The Inner Wheel Club of Frome held a Harvest Festival

Service, and afterwards an Auction of the produce and gifts that were given, and they

raised the above amount. Which is fantastic!Before the service I was asked to say a

few words about CRY. The President Hazel Shaw, then told the congregation that

although she did not know Julian, she knew a lot of my family, and when she became

president she knew exactly which charity she would choose for her year in office, which I

thought was lovely." Shirley Wort

"Please find enclosed cheque for £200, this cheque was presented to me by "The Woodlanders' who

are an amateur group from a nearby village, who every year puts on an Old Time Music Hall show,

they always raise approx. £3000, and this is shared out to various local charities/schools/clubs etc. So

I was delighted when they chose CRY (Julian's Memorial Fund) as one of the charities this year."

Shirley

IInn mmeemmoorryy ooff jjuulliiaann wwoorrtt

After the race, still smiling!

Before the Race, looking worried.

Raising Awareness week

Newspapaer Articles:

‘I Say All Kids Should Have Their Hearts Checked...’ - The Evening Standard 04.07.2005‘Death By Alarm Clock’ - The Daily Express 31.05.2005‘Testing Reveals Disease in Sister’ - The South Wales Evening Post 24.05.2005‘Grandmothers Artistic Tribute’ - The Littlehampton Gazette 21.10.2004‘Why Did He Die’ - The Guarduan 17.05.2005‘Fit and Healthy, Yet Heart Infection Claimes Teenager Nicholas’ Life - The Ulster Star 06.05.2005‘The Grieving Family Who Live in Fear...’ The Sunday Express 12.06.2005‘Scott’s Relieved Just to be Alive’ - Football First 15.07.2005‘Highlighting Plight of Sudden Cardiac Arrest’ - The Tyrone Times 06.05.2005‘CRY Charity Launches Fund in Memory of Sebastian 15’ - The Haslemere Herald 25.02.2005‘Charlotte’s Memory Lives on in Campaign’ - The Sheerness Times Guardian 17.02.2005‘Expert in Warning on Hidden Heart Defects’ - The SouthWales Evening Post 08.01.2005‘Plea Right From the Heart’ - The Evening Gazette (Middlesborough) 01.10.2004‘Tragic Teens Parents Join Heart Campaign’ - The Tamside Advertiser 16.12.2004‘Sendind a Postcard Could Help Save Lives’ - The North Wales Chronicle 04.02.2005‘Father and Son CRY out For Support’ - The Chronicle (Coleraine) 04.05.2005‘Heart Attack Boy is Campaign Face’ - The Surrey Mirror 24.02.2005‘Tragic Young Victims of Cardiac Disease’ - The Thanet Extra 01.03.2005‘Dying Young: Can we Prevent Sudden Heart Failure?’ - The Evening Star

‘Why Sports Plays with Young Lives’ - The Telegraph(Derby) 03.02.2005‘Gift Could be a Life Saver’ - The Lancashire Evening Telegraph 02.03.2005‘Tribute Dinner is Boost for Charity’ - The Sunderland Echo 28.01.2005‘A Charity Star Turn’ - The Evening Chronicle(Newcastle) 05.05.2005‘Golfers Drive to Help Fund’ - The Kettering Evening Telegraph 25.05.2005‘CTC Dance Tribute for Kay’ - The Solihull Times 11.02.2005‘Fundraisers go Hot on the Trail’ - The Frome and Somerset Standard 12.08.2004‘Race Staged in Perfect Weather for Ducks’ - The Frome and Somerset Standard 28.10.2004‘Freinds and Family Help to Boost Fund’ - The Sunderland Echo 16.02.2005

raising

awareness


RRaaiissiinngg AAwwaarreenneessss WWeeeekk


Newspaper Article and photo received, Sue scanned articles.Helena held events in

Castlederg and Omagh Town Centre, her awareness day went very well with local

children's entertainer and writer Tom Sweeney visiting the stall to show his support.

The local newspapers also attended. Helena raised £25.

"On Sunday 12th June we organised the "Adam Donnelly Memorial Football Match at Crown Woods

School in Eltham. Adam's old school team (St. Thomas More) played Adam's old football team (Riefield

F.C.). The rain thankfully held off for the day as we had a Barbeque and Bouncy Castle in the school

grounds as well. Both teams wore their specially printed t-shirts for the match and the game itself was a

good, fair game. St. Thomas More eventually won the match 6-1. On Friday 17th June we organised a

coffee morning at Our Lady of the Rosary Parish Hall, Sidcup. This was extremely well attended and we had lots of

help from the UCM (Union of Catholic Mothers) who all baked wonderful cakes for the day and made all the teas/cof-

fees.The £900 is the amount we made at these 2 events - much more than I expected to make so we are extremely

pleased and thankful for all the support we were given." Julie Donnelly.Julie also raised from sale of merchandise

£180.On Saturday June 18th Adam's sister Sian (age 13) completed a sponsored swim at Colfe's Leisure Centre in

Lee. Sian swam 3,000 metres in 1 hour 8 minutes which was well below her target of 90 minutes. Sian raised

£362.50.Adam used to work at Colfe's Leisure Centre Lee as a lifeguard so they kindly agreed to let Sian use the pool

there to do her swim, and they kindly put a collection box in their reception area and collected a total of £92.50

Mary Abraham held her Raising Awareness Table at Sainsbury's Supermarket.

Mary raised £260 from during Raising Awareness Week and from a strawberry

tea Garden Party.

Lyn Nesbitt and June Dollard held a Raising Awareness Table at the Milton Keynes

Shopping Centre on 15th June. They found that people were rather too

busy doing their shopping to want to look at the stall, but they made sure

that a lot of leaflets were distributed, and because they also combined the

event with a Tombola they raised £276.

IInn mmeemmoorryy ooff aaddaamm ddoonnnneellllyy

IInn mmeemmoorryy ooff ssccootttt mmccccoolllliinn

" I was quite pleased with how the day went. I had lots of people asking questions,

gave out all the leaflets and only 12 were thrown away (cleaners at Centre picked

them up!) Quite a few people said what a wonderful thing CRY was doing as

every week they heard about someone who had died from SADS in newspapers

or TV." Margo Wright. Margo also held a Tombola and raised £200.

IInn mmeemmoorryy ooff mmaannddii bbllaakkee

IInn mmeemmoorryy ooff pphhiilliipp aabbrraahhaamm

IInn mmeemmoorryy ooff pprrooiinnnnssiiaass mmcceellhhiillll



Sir Tom Finney came to the Raising Awareness Stall held by Ruth

Lowe at Booths Supermarket in Preston. They raised £415 by peo-

ple guessing the weight of the cake donated by a local bakery.

"After initial difficulties in trying to obtain permission to hold the stall near by home in London, I finally man-

aged to get permission to have it outside my parents local Sainsbury's in Guildford. This turned out to be

the best location after all as we had a lot of interest from people on the way in to do their supermarket

shopping.My mother and I held the stall on Friday, so the good

weather helped, and we ended up staying there for almost 7

hours. During this time we gave away a lot of CRY literature. We

also managed to sell some of the merchandise, they were mainly a

good way of attracting people's attention to the stall.An average of about 5 peo-

ple/minute who passed the stall throughout the day, therefore over 2000 people

will have passed us during the whole time we were there - a lot of whom

stopped to find our more, so I think we were successful in increasing aware-

ness of CRY and its work." Clare Allen Clare raised £129.10

2"I held a stall for a few days during your 'Raising Awareness Week' in memory of Ricky & Jason. I had a collection

box on my table and collected £97.22. I had leaflets left which have been distributed around local libraries, also

enclosed order for car stickers. I was happy to help" Caroline Harvey.

"Please find enclosed a cheque for £1,400 raised during the awareness week in memory of our son, Lee

Stables aged 22 yrs." We found that because we filled the balloons with helium and gave them to passing

children, the parents stopped to find out what was going on and 99% of the time either bought something

or made a donation" Sharon, Phil and Toni.

"In Memory of Edward Patrick Beatty who died in his sleep aged 19 years. Also Lloyd

Swain who died in his sleep.Thursday night we loaded up my husband's work van ready

for the Awareness stall Friday. I had asked Pam Lloyd's mum if she would help and she

arrived early Friday morning. My daughter Laura said she would help set up the stall, but

ended up staying till the end. Pam was a God send as the workmen set up the stall, she

promptly asked if we could have more table space to set up the Bric a Brac we had taken

to try and raise more money. It was a glorious sunny day our canopy matched the CRY display my sister Maureen

arrived and started handing out the CRY literature. How did the day go? Mixed feelings some people did not want to

know, but others showed an interest. Selling Bric a Brac helped to get people to the stall.Awareness was what it was

all about and if I only got through to ten people that day it was all worth it for Edwards. Enclosed cheque for £166.37"

Pauline Beatty.

IInn mmeemmoorryy ooff rriicckkyy aanndd jjaassoonn


IInn mmeemmoorryy ooff lleeee ssttaabblleess

IInn mmeemmoorryy ooff eeddwwaarrdd ppaattrriicckk bbeeaattttyy && LLllooyydd sswwaaiinn

IInn mmeemmoorryy ooff aannddrreeww ppaarrrr



The staff, children and parents of Cardinal Newman Catholic Primary School in Hersham, Surrey held a fund raising

and awareness week for CRY at the end of June. This formed an integral part of the school 'Health and Fitness' Week

and activities included a whole school 'exercise to music' afternoon, a 'walk to school' day in which 250 children partici-

pated, sports events, dance and gymnastics, aerobics and a 'name the giant heart' competition (the winning name was

Beattie the Happy Heart).Deputy Head Teacher Steve Tindall also organised a CRY awareness stall at the school PFA

Fun Day on June 11th. Several hundred parents and friends visited the stall during the day, giving donations and tak-

ing away CRY leaflets.CRY Representative Edwina Farrow attended a special whole school Assembly during the week

to talk about the work of CRY and present the children with pin badges and CRY wristbands. The whole week was a

fantastic experience thoroughly enjoyed by the whole school and we managed to raise £607 for CRY in memory of

David Longhurst.

IInn mmeemmoorryy ooff ddaavviidd lloonngghhuurrsstt

IInn mmeemmoorryy ooff llyynnddsseeyy bboowwee

Angela found that people who knew her, and knew about

her daughter were keen to support but older people were

not really interested and some of them had the attitude it

didn't affect them. She found people were interested in

reading the Quarterly Update. Angela raised £105 for

CRY.

Anna raised awareness by attending her monthly

'Dance Event' wearing her CRY T shirt. She had a lot

of interest and was able to tell everyone about CRY.

IInn mmeemmoorryy ooff tthhoommaass mmuullqquuiinn



For CRY's 10th anniversary we had 2 awareness raising days in Colchester town centre

in memory of Carl Ashcroft and Andy Gard. On the Friday Carl's mum Juliet and his

youngest sister Chelsea had a stall, then on the Saturday Caroline and Cathy Gard

shared the day with Marian and Julie Tanner. We gave out leaflets to passers by and

generally talked to anyone who paused to look at the stall.Juliet and Chelsea worked

really hard to set up the stall ,decorating it with balloons and posters and generally mak-

ing it look really interesting bright and very eye-catching. We spoke to loads of people

and gave out plenty of leaflets over the 2 days. All the best, Caroline Gard

Margaret held a Raising Awareness Stall at the Ballyeaston Vintage Tractor Rally,

she found that people who visited the stall were sympathetic, interested and sup-

portive. The photograph shows: James Gault, Murray Elliot, Alan McAnally,

Deputy Lord Mayor, Steven Bowes, Club Official, Margaret Gault, Lucy Bowes.

Helen held her Raising Awareness event at Cheshire

Workshops, she found the response was generally good

and that quite a few people had already heard of CRY or

read stories.

"My employers Sainsbury's were very happy to donate a cheque for £250, and I've enclosed one for £100. My manag-

er was very interested to hear about CRY, especially as it coincided with their healthy kinds vouchers.Christoper died in

1992. "It was not until I 'phoned Alison, after reading a paper cutting about a girl who died in similar circumstances, that

I got to know all about Christoper's problems. They didn't know how he survived to twenty-four, not only did he play

football but he was a keen swimmer, and ran the cross country races for his school. He had gained his mile swimming

badge and up to gold for his survival badges. He never had a day off school, or work, - he was a jeweller.I have found

the information from CRY very helpful. Its not been easy, the last few years have been difficult. I have just finished

over two years of counselling, which has helped greatly.In May 2006 Anthony (Christopher's brother) and his fiancé will

marry in the same local church as Christopher, fifteen years to the day almost! The cycle goes on!" Ann French.

"We had our stall exhibiting leaflets etc during part of our village open gardens afternoon dur-

ing which approximately 90 people passed through our garden. Some people expressed an

interest and we explained our connection with CRY. The most popular piece of literature

appeared to be small general leaflets all about CRY but something of everything seemed to

go. A few people made donations into our collection box." Anne Jackson

"We are members of Balornock Bowling Club in Glasgow. We held a Charity Bowling Day on

Sunday 12th June, 2005 including other bowling clubs and it was gratifying to know that others

were wanting to know more about Cardiomyopathy." Julie and Alan Colligan. Julie raised £750

on the day.

Sara was unable to obtain a location to hold her

Raising Awareness Table, but she distributed our liter-

ature to her Church, Library, G.P's etc.

HM Prison High Down in Sutton kindly agreed to make the tablecloths for our Raising Awareness Week. Officer Robin

Willis, who is responsible for the textiles workshop, was extremely pleased with the hard work of the prisoners who

enthusiastically finished them all in time, and to a very high standard.

ssttaallll iinn aaiidd ooff ccrryy

IInn mmeemmoorryy ooff jjaammiiee ggaauulltt

IInn mmeemmoorryy ooff cchhrriissttoopphheerr wwhheeaattlleeyy

hhmm pprriissoonn hhiigghh ddoowwnn iinn ssuuttttoonn

iinn mmeemmoorryy ooff aanntthhoonnyy wweeaavveerriinn mmeemmoorryy ooff ddaavviidd

iinn mmeemmoorryy ooff aannggeellaa ccoolllliiggaann

iinn mmeemmoorryy ooff ccaarrll aasshhccrroofftt && aannddyy ggaarrdd

16 | Cardiac Risk in the YoungIssue 40

Alison organised an arrangements of CRY literature at

her children's 'Mouse House Nursery'. Three days a

week she stayed at the nursery giving out leaflets and

answering questions parents had.

Phyl Marrs held a quiz night to raise awareness for CRY

and in honour of her husband Paul's memory. Phyl had

made a donation of £568.29

IInn mmeemmoorryy ooff ppaauull mmaarrrrss

On 9th June Vera Looker held a Raising Awareness Staff at the Cascade

Shopping Mall in Portsmouth. Vera found that some people were

extremely interested and others did not want to know. She was supported

by the Lord Mayor of Sparshott and his wife.£15.53 was kindly donated on

the day.

Shirley Wort held her event at Frome

library where she found the staff were

very helpful. She invited Mr. David

Heath, MP for Frame and Somerset

Lillian Little held a table outside

Sainsbury's Supermarket in Redhill. She

had a lot of interest and overall was very

pleased with the response, all the litera-

ture was taken.

Caroline held a Raising Awareness Table at her local M & S Store and

also at a car boot sale. The car boot sale raised £200."On the whole I

found the public response to be very good. We spoke to parents of a

17 year old girl who has been unwell. She has collapsed a few times

and doctors can't find anything wrong. The parents aren't giving up and

after a long chat they went away with plenty of literature because a heart condition

has been mentioned" Caroline Cox.

224 Squadron held a fund-raising day on the 25th June 2005 to raise

money for The Army Benevolent Fund (ABF) and Cardiac Risk in the

Young (CRY). It is with great pleasure I can inform you the total amount

of money collected was £2000. A great effort from all willing volunteers.A

car wash was held at Picton Barracks, Carmarthen and a bedpush was

carried out in the following towns: Fishguard, Haverfordwest, Narbeth,

Saint Clears and Camarthen.The car wash raised £386.96The bed push

raised the following:

Bucket 1 = £573.21

Bucket 2 = £632.53

Bucket 3 = £407.30

The following personnel carried out the tasks as listed below:Money collection - Sgt Matthews, Cpl Corp Fitzsimmonsand L/Cpl Beynon.Money counters - Maj Coombes, Capt Edwards, WO2 Mudd and SSgt Charlton." NA COOMBES TDtacsc OC 224 Sqn.

IInn mmeemmoorryy ooff mmiicchhaaeell llooookkeerr

IInn mmeemmoorryy ooff jjuulliiaann wwoorrtt

nnoorrtthh wwaalleess ffuunndd

June and Lyn Nesbitt also held a Raising

Awareness Table at the David Lloyd Health

and Fitness Club in Cheam as part of the

event being held by Clair Baker in memory of

Justin Carmen.

IInn mmeemmoorryy ooff ssiimmoonn ccooxx


IInn mmeemmoorryy ooff jjuussttiinn ccaarrmmeennIInn mmeemmoorryy ooff ggaarryy lliittttllee


RRaaiissiinngg AAwwaarreenneessss

Issue 40

Printed with Permission of The Evening Standard 04.07.2005



Issue 40

Printed with Permission of The Daily Express 31.05.2005



Printed with Permission of The South Wales Evening Post 24.05.2005

Issue 40



Printed with Permission of The Littlehampton Gazette 21.10.2004 - The Evening Post 22.12.2004



Issue 40

Printed with Permission The Guardian 17.05.05



Issue 40

Printed with Permission of The Guardian 17.05.05 - The Ulster Star 06.05.2005



Printed with Permission of The Sunday Express 12.06.2005



Issue 40

Printed with Permission of Football First 15.07.2005



CCRRYY’’ss PPoossttccaarrdd CCaammppaaiiggnn

Issue 40

Printed with Permission of The Tyrone Times 06.05.2005, The Eastbourne Herald 01.04.2005




Issue 40

Printed with Permission of The Haslemere Herald 25.02.2005




Issue 40

Printed with Permission of The Argus 11.04.2005 - The Steyning Herald 24.02.2005 The Sheerness Times Guardian 17.02.2005




Issue 40

Printed with Permission of The South Wales Evening Post 08.01.2005




Issue 40

Printed with permission of The Evening Gazette (Middlesbrough) 01.10.2004



ccrryy’’ss ppoossttccaarrdd ccaammppaaiiggnn

Issue 40

Printed with Permission of The Tameside Advertiser 16.12.2004 - The Sheerness Times Guardian 24.02.2005The Post Reigate, Redhill and Horley 23.02.2005




Issue 40

Printed with Permission of The North Wales Chronicle 04.02.2005 - The Northern Echo 01.10.2004



CCRRYY’’ss ppoossttccaarrdd ccaammppaaiiggnn

Issue 40

Printed with Permission of The Chronicle (Coleraine) 04.05.2005




Issue 40

Printed with Permission of The Surrey Mirror 24.02.2005




Printed with Permission of The Thanet Extra 04.03.2005 - The Thanet Times 01.03.2005



Issue 40

Printed with Permission of The East Anglian Daily Times 13.09.2004



Issue 40

Printed with Permission of The East Anglian Daily Times 13.09.2004



Issue 40

Printed with Permission of The Telegraph (Derby) 03.02.2005



Issue 40

Printed with Permission of The Congleton Chronicle 18.03.2005 - The Lancashire Evenig Telegraph 02.03.2005The Frinton and Walton Gazette 25.03.2005


Raising Awareness Fun

Issue 40

Printed with Permission of The Sunderland Echo 28.01.2005 - The Somerset Standard 13.01.2005The Witney and West Oxfordshire Gazette 29.09.2004



Issue 40

Printed with Permission of The Evening Chronicle (Newcastle) 05.05.2005 - The Harrow Times 07.04.2005


RRaaiissiinngg AAwwaarreenneessss FFuunn

Issue 40

Printed with Permission of The Kettering Evening Telegraph 25.05.2005 - The Evening Star (Ipswich) 11.04.2005The Evening Chronicle (Newcastle) 19.04.2005 - The Express & Star (Wolverhampton) 31.03.2005



Issue 40

Printed with Permission of The Solihull Times 11.02.2005 - The Watford Observer 24.09.2004 - The Express 29.09.04



Issue 40

Printed with Permission of The Frome & Somerset Standard 12.08.2004



Issue 40

Printed with Permission of The Frome and Somerset Standard 28.10.2004 - The Bognor Regis Guardian 09.03.2005The Surrey Comet Kingston Borough 27.04.2005


Printed with Permission of The Suderland Echo 16.02.05 - The Flintshire Evening Leader 04.01.2005The Bognor Regis Observer 31.03.2005

"Our Price records are offering a new service to anyone holding a charity event that incorporates a

raffle or auction. Our Price has a catalogue of varied memorabilia items that can be acquired for

such events. The pieces include music memorabilia, film memorabilia, sporting memorabilia - and

more. In return for supplying up to four items for an event, Our Price will keep 50% of the final sale

value / raffle proceeds from each item, with the other 50% going to charity. To see the items in the

Our Price memorabilia catalogue go to www.ourpriceplc.com. If you would like to find out more

about how this scheme works, please contact Kerry in the CRY office @ [email protected]"

Overseas challenge events are one of

the most successful fundraising

initiatives to have been introduced to

the UK in recent years and due to

popular demand Skyline are now increasing their exciting range of overseas fundraising events.

From cycling across Peru to braving the heat by trekking across the desert, Skyline gives you the opportunity to raise

thousands for CRY. Interested? Then contact the CRY office for more details.


BBuulllleettiinn BBooaarrdd

Issue 40

If you would like CRY to

consider any item for

Bulletin Board please email

(including your item)

through to Mark at:

[email protected]

Please bear in mind when organising fundraisings that it

would be brilliant if you could takephotos of your great day. It is

also essential that when you writein to the office, that you clearlystate how much was raised, bywhom and if it’s for a specific

memorial fund.

Please give me a call oremail me if you have anysuggestions on how youwould like the content ofyour future fundraisingpages to be laid out .

Best wishesMark Fox

RING FENCED FUNDRAISING

Please remember that unless you notify us and get the necessary documentation and confirmation from the office for“ring fenced” fundraising before you start a fundraising venture, all funds raised will be used for CRY Core Funding.

Retrospective “ring fencing” is unfortunately just not possible. CRY cannot be responsible for any “ring fenced”fundraising unless it has been authorised.

“Ring fenced” fundraising is for specific projects only. After the successful conclusion of the authorised project,fundraising will be directed again to CRY Core Funding.

Because of the appeal of certain projects, some will have a waiting list.

London MarathonEvery year, CRY have a numberof Golden Bond Charity Placesavailable for any willing person totackle the infamous event. We also welcome any ‘own runners who would like to raisemoney for CRY.

For more details please contactthe CRY office

"If you sell items on eBay, it is now possible to donate a percent-

age of the sale value to CRY. When listing an item to sell, the

page that asks you to set the starting price for bids on your item,

also now has an option to 'donate to charity'. Click here and fol-

low all the instructions, and you will be able to select CRY as

your charity of choice. The 'eBay for Charity' scheme was pilot-

ed by the BBC's Children in Need appeal, and is now open to all

charities that register for the scheme. If you have any queries

about how this works, please contact Kerry in the CRY office at

[email protected]"

I’ll lend you for a little while a child of mine, God said,

For you to love while he lives, and to mourn for when he’s dead

It may be six or seven years or forty-two or three

But will you, till I call him back, take care of him for me ?

He’ll bring his charms to gladden you, and should his stay be brief,

You’ll always have his memories as a solace in your grief.

I cannot promise he will stay, since all from earth return,

Bur there are lessons down below, I want this child to learn.

I’ve looked this whole world over in my search for teachers true,

And from the folk that crowd life’s lane, I have chosen you.

Now will you give him all your love and not think the labour vain

Nor hate me when I come to take this lent child back again ?

I fancy that I heard them say” Dear God, Thy will be done,

For all the joys this child will bring the risk of grief we’ll run.

We will shelter him with tenderness, we’ll love him while we may,

And for all the happiness we’ve ever known, we’ll ever grateful stay,

But should the angels call him much sooner than we’d planned,

We will brave the bitter grief that comes, and try to understand”.

This beautiful poem was handed to Tony and Evelyn Sayer

as they entered the church for the funeral of their son, Kevin, on 4 April 1995.

Eighteen year old Kevin died on the night we left Norwich after our first player/public screening.

We hope it’s words comfort you and bring you peace.

God’s Lent Child

Documents

CRY Update Magazine - Issue 40