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Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Parkinson Disease Caregiver Training Program
Philosophy Goals Purpose of Training Outcome – expectations Certificate of Completion
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
What is Parkinson Disease?
A chronic (ongoing) and slowly progressive neurological (involving the nervous system) condition….medically classified as a
“movement disorder”The cause is unknown and there is no cure – treatments are to minimize symptoms and maximize functional abilities
***********************1.2 Million people in the US have PD
4.0 Million world-wide
Page 4
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Early Detection of Parkinson Disease
Initially, mild symptoms can come and go --
often mistaken for normal aging.
The most commonly noticed first symptom -- one-sided
shaking of the hand
25% do not have a tremor, but may feel --
Easily fatigued
Slow moving
Change in gait (walk) and balance
Page 4
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Hallmark Signs of Parkinson Disease
Hallmark Signs of PD include:
1.Resting tremor – when limb not in motion
2.Slowness – Bradykinesia
3.Rigidity – stiffness in limbs
4.Loss of balance, tendency to fall backwards
Page 5
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
What Caregivers Should Watch For
Difficulty arising from chair Difficultly changing position in bed Hands and fingers less mobile Muffled speech or low voice volume Shuffling gait – tendency to drag foot Reduced eye blinking Less frequent swallowing Anxiety and depression, difficulty concentrating Constipation, low blood pressure, sleep disorder
Page 5
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
What is Wearing-Off?
When symptoms begin to reappear or become
noticeably worse before it is time to take the
next scheduled dose of medication
******
Important to know this so you can adjust
therapy to provide better control of the
symptoms
Page 11
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Performing Caregiving Duties Yourself
You can receive training from:
Social service agencies
Hospitals
Community schools
The American Red Cross
Area Agency on Aging
Page 56
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Safety, Safety, Safety
“Among all age groups “falls” ranked as the second leading cause of unintentional injury deaths in the United States. Of those who survive a fall, 20-30 percent will suffer debilitating injuries that affect them the rest of their lives.” (National Safety Council, Report on Injuries in America, 2003)
FIRST PRIORITY IS SAFETY
Many accidents can be prevented
Ask a relative or friend to survey the home
Your comfort, convenience, and safety
are also important
• Leave a blanket, pillow, and phone on the floor. In case of a fall, the person can stay warm and call for help.
Page 60
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Dressing Someone with PD
Dressing is easier with a routine – don’t be rushedDress the person while sitting - lay clothes out in the order they will be put on – choose loose-fitting garments and avoid busy patterns if the person has dementia
Try adaptive equipment, such as a button hook, or Velcro fasteners
If a person is bedridden, avoid wrinkles in clothes and bedding.
Page 154
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Where to Borrow Equipment and Supplies
PD Support Groups, Salvation Army, Red Cross, Visiting Nurses Association National Easter Seal Society, Muscular Dystrophy Association, American Cancer Society, Charity organizations, churches, senior centers, leisure clubs
Never buy equipment from a telephone solicitor, a door-to-door salesman, or a person who calls on
you before the doctor or hospital discharge planner has told you what equipment will be needed.
Page 81
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Special Diet for Parkinson Disease
Protein management may be helpful for some patients with on/off motor fluctuations in response to levodopa.
Levodopa and protein interaction
Nutritional guidelines for those with PD
PD slows gastric mobilityMost benefit from taking levodopa on empty stomach
Page 197
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Basics of Exercise
Good fitness is made up of three types of exercise:
Stretching – always stretch before exercising.
Strengthening – in home or gym
3-lb easy grip weights are useful Aerobics – works heart and lungs as well
as large muscles
Page 209
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Preventing Back and Neck Injuries
To prevent injuries to yourself, get plenty of rest and maintain: optimal nutrition physical fitness / muscular strength good body mechanics a stress management program
Page 228
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Emergencies
Many injuries can be avoided throughpreventive measures
Once a serious accident or sudden illness is obvious, do not delay calling for help.
Make sure 911 is posted on your phone
Page 244
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Eating (3)
Eating Problems and Solutions
– Drooling - remind the person to swallow
– Spitting out food – offer/suggest small bites
– Difficulty chewing & swallowing
– Eating with fingers
Page 177
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Dressing Someone with PD
Dressing is easier with a routine – don’t be rushedDress the person while sitting - lay clothes out in the order they will be put on – choose loose-fitting garments and avoid busy patterns if the person has dementia
Try adaptive equipment, such as a button hook, or Velcro fasteners
If a person is bedridden, avoid wrinkles in clothes and bedding.
Page 154
Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.
Speech and Swallowing
Speech
Most people with PD have gradual decreases in voice volume or
ability to speak clearly
Targeted speech therapy programs (LSVT)
Singing – great exercise for the voice!
Swallowing
• Swallowing changes
• Swallowing evaluation
• Swallowing checklist
• How to improve swallowing
• Coping with drooling
Page 178