CONFERENCE FACULTYJustin N. Baker, MD, FAAP, FAAHPM

Chief, Division of Quality of Life and Palliative CareAttending Physician, Quality of Life ServiceDirector, Hematology/Oncology Fellowship ProgramSt Jude Children’s Research Hospital

Andrew L. Chang, MD Medical Director, PediatricsScripps Proton Therapy Center

Steven DuBois, MD, MSAssociate Professor of PediatricsUCSF School of MedicineUCSF Benioff Children’s Hospital

Jeffrey I. Gold, PhD Department of Anesthesiology Critical Care MedicineChildren’s Hospital Los Angeles

Debbie Hitt, BSN, RN, CPHONPediatric Nurse CoordinatorHematopetic Stem Cell TransplantCity of Hope Medical Center

Julie Jaffray, MD Children’s Center for Cancer and Blood DiseasesChildren’s Hospital Los Angeles

Edna Klinger, BS, RN, CPHON, CHTC, BMTCNBMT CoordinatorBlood and Marrow Transplant ProgramHyundai Cancer InstituteCHOC Children’s Hospital

Etan Orgel, MD, MSAssistant Professor of Clinical Pediatrics Jonathan Jaques Children’s Cancer Center Miller Children’s and Women’s Hospital Long BeachChildren’s Center for Cancer and Blood DiseasesChildren’s Hospital Los Angeles

Trish M. Peterson MSN, RN, CPNPPediatric Nurse Practitioner, HematologyChildren’s Center for Cancer and Blood Diseases Children’s Hospital Los Angeles

Kasey Rangan, MSN, RN, CPNPPediatric Nurse PractitionerLIFE Survivorship & Transition TeamChildren’s Center for Cancer and Blood DiseasesChildren’s Hospital Los Angeles

Amanda M. Termuhlen, MD Professor of Clinical Pediatrics, Keck School of Medicine of the University of Southern CaliforniaMedical Director, Jonathan Jaques Children’s Cancer CenterMiller Children’s and Women’s Hospital Long BeachInpatient Medical DirectorPediatric Hematology Oncology BMT, Children’s Hospital Los Angeles

Debbie Toomey, MSN, RN, CPNP, CPONPediatric Nurse PractitionerLeukemia and Lymphoma ProgramCity of Hope Medical Center

Joetta D. Wallace, MSN, RN, NP-C, CPON, CHPPNProgram Coordinator, Pediatric Supportive and Palliative Care ServiceMiller Children’s and Women’s Hospital Long Beach

Audra D. Wilford, MA Chief Hope Officer, MaxLove ProjectDirector of Student Life, Saddleback College

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7:15 Registration and Continental Breakfast

8:00 Welcome/Introduction (Scarlett Czarnecki and Tas Ahmad)

8:05 ”Introduction to Proton Radiation Therapy” Andrew L. Chang, MD

BREAKOUT SESSION #1

9:00 “AYA Palliative Care: Integrating ‘Clinical Pearls’ for a Complex Patient Population” Justin N. Baker, MD, FAAP, FAAHPM

OR9:00 “Weird, Wild and Wonderful” Challenging Hemoglobinopathies for the Hem/Onc Nurse” Trish M. Peterson MSN, RN, CPNP

9:50 Break/Coffee/Exhibits

BREAKOUT SESSION #2

10:25 “Cytotoxic and Novel Therapies for High-Risk Neuroblastoma” Steven DuBois, MD, MS

OR10:25 “Is There Something You Forgot to Tell Me? Fertility Cryopreservation Options for AYA’s with Cancer” Debbie Hitt, BSN, RN, CPHON Debbie Toomey, MSN, RN, CPNP, CPON

11:15 Brunch/SCAPHON Raffle (must be present to win)

BREAKOUT SESSION #3

12:45 “The Influence of Body Fat on Leukemia Outcomes” Etan Orgel, MD, MS

OR12:45 “Pediatric Cancer Survivorship: What the Bedside Nurse Needs to Know” Kasey Rangan, MSN, RN, CPNP

1:35 “Pain Management and Sickle Cell Disease: A BioPsychoSocial Approach to Care” Jeffrey I. Gold, PhD

2:25 Closing Keynote Address: “Investing in Hope: Deploying Every Child’s Superpowers with Quality of Life Care” Audra D. Wilford, MA

3:20 Closing/Raffle Grand Prizes/Evaluations/CEUs (Scarlett Czarnecki and Tas Ahmad)

NOTE: Please indicate your choice of Breakout Sessions on the opposite side of the registration form.

ThURSDAY, MAY 14Th

7:15 Registration and Breakfast

8:00 Welcome/Introduction (Scarlett Czarnecki and Tas Ahmad)

8:15 Opening Keynote Address: “Spotlight on Social Media: #Balancing Professionalism” Joetta D. Wallace, MSN, RN, NP-C, CPON, CHPPN

9:15 “Haploidentical Hematopoietic Stem Cell Transplants: An Innovative Transplant Approach for Improving Patient Outcomes” Edna Klinger, BS, RN, CPHON, CHTC, BMTCN

10:05 Break/Refreshments/Exhibits

10:50 “Hemophilia Basics: A Better Understanding of a Serious Bleeding Disorder” Julie Jaffray, MD

11:40 Presentation of Kathy Ruccione Founders’ Award for Excellence in Pediatric Oncology Nursing and SCAPHON Scholarships

12:00 Lunch on your own

1:30 SCAPHON Business Meeting (Scarlett Czarnecki)

1:45 “Relapsed Hodgkin Disease: More Chemotherapy May Not Be Better!” Amanda M. Termuhlen, MD

2:35 “Ewing Sarcoma: Clinical Presentation and Therapy” Steven DuBois, MD, MS

3:25 Break/Refreshments/Exhibits

4:00 “Self-Care for the Healthcare Provider: Fostering Personal Growth and Well-Being” Justin N. Baker, MD, FAAP, FAAHPM

4:50 Closing/Evaluations/CEUs (Scarlett Czarnecki and Tas Ahmad)

5:00-6:15 SCAPHON Happy Hour Reception and Door Prizes

CONTiNUiNg EDUCATiONApproved by the California Board of Registered Nursing, Provider No. 10530 for 12.0 contact hours (Day 1 6.0 hrs, Day 2 6.0 hrs). No partial CEUs will be given. CEUs will be distributed at the end of the day(s) for which you are registered.

COURSE OBJECTiVES

1. Identify benefits and risks of healthcare professionals’ use of social media and discuss APHON’s position statement regarding social media in the workplace.

2. Discuss the potential advantages and disadvantages for a patient receiving a haploidentical hematopoietic stem cell transplant.

3. Understand the signs and symptoms of hemophilia and identify the diagnostic tests and treatments.

4. Describe new targeted therapy of emerging immunotherapy, and the role of autologous and allogeneic stem cell transplant for relapsed Hodgkin disease.

5. Understand the epidemiology, clinical presentation, and multidisciplinary treatment approach for patients with Ewing sarcoma.

6. Recognize what triggers personal stress and burnout and develop a self-care plan that reduces stress, fosters personal growth, and well-being.

7. Understand the types of pediatric cancers that can benefit from proton radiation therapy.

8. Describe the effect of body fat on survival and toxicity in pediatric leukemia and explore supportive care avenues for obesity-targeted interventions.

9. Discuss common long-term side effects associated with pediatric cancer treatment and common questions families may ask during treatment.

10. Identify initial therapy for patients with high-risk neuroblastoma and relapse strategies.

11. Describe fertility options available to Adolescent and Young Adult (AYA) patients prior to starting therapy.

12. Describe the complexities of integrating palliative care in the AYA population and practical approaches for communication.

13. Identify key strategies designed to increase understanding of acute and chronic pain management in the sickle cell patient population.

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Tas Ahmad, BSN, RN, Conference ChairpersonScarlett Czarnecki, BSN, RN, CPHON, CCRP, PresidentAlison Bell, DNP, CPNP, CPHONSharon Bergeron, BSN, RN, CPONJennifer Blaney, BSN, RN, CPONLauren Bristow, MSN, RN, CPNPBarbara Buchbinder, BSN, RN, CPONBecky Dolman, BSN, RNShawna Esarey, BSN, RN, CPONDennis Gonzales, BSPT, RN, CPONDiane Grade, BSN, RN, CPONCasey Koerner, MSN, RN, CPHONHeidi M. Kristall, BSN, RN, CPON Cat Lim, BSN, RNDebi Mankame, MSN, RN, CPONDeborah Marino, BSN, RN, CPONErin Morris, BSN, RNAnne Nord, BSN, RN, CCRPDonna Quiroz, BSN, RN, CPONCourtney Rogers, BSN, RN, CPONLynn Schubert, BSN, RN-C, CPONSusan Shannon, MSN, RN, CPNP, CPON

hYATT REgENCY NEwPORT BEACh1107 Jamboree Road

Newport Beach, CA 92660, USAA block of rooms has been reserved for the conference. These rooms are limited and available to conference participants at a room rate of $170 per night + $19 optional resort fee to include premium internet, 2 bottled waters, golf greens, bike rentals, shuttle service and local calls per day. Complimentary guest room internet is included. Availability of rooms at this rate is not guaranteed after April 22, 2015 or when reserved block is filled. Group rates will be available May 13th through May 16th provided there is availability. Self Parking is complimentary and Valet Parking is $34 per night. For reservations, please call 1-888-421-1442 and ask for the SCAPHON rate. To make reservations online, go to:

Booking Website:https://resweb.passkey.com/Resweb.do?

mode=welcome_ei_new&eventID=11659619

Hotel website: http://www.newportbeach.hyatt.com

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BREAKOUT SESSiONSRegister in advance for the

Breakout Sessions on Friday, May 15th.

Please select one topic to attend in each Breakout Session.

9:00 A.M.BREAKOUT SESSION #1

(Choose only one)o “AYA Palliative Care: Integrating ‘Clinical Pearls’ for a Complex Patient Population” Justin N. Baker, MD, FAAP, FAAHPM

o“Weird, Wild and Wonderful” Challenging Hemoglobinopathies for the Hem/Onc Nurse” Trish M. Peterson, MSN, RN, CPNP

10:25 A.M. BREAKOUT SESSION #2

(Choose only one)

o “Cytotoxic and Novel Therapies for High-Risk Neuroblastoma” Steven DuBois, MD, MS

o “Is There Something You Forgot to Tell Me? Fertility Cryopreservation Options for AYA’s with Cancer” Debbie Hitt, BSN, RN, CPHON Debbie Toomey, MSN, RN, CPNP, CPON

12:45 P.M. BREAKOUT SESSION #3

(Choose only one)

o “The Influence of Body Fat on Leukemia Outcomes” Etan Orgel, MD, MS

o “Pediatric Cancer Survivorship: What the Bedside Nurse Needs to Know” Kasey Rangan, MSN, RN, CPNP

CONFERENCE PLANNiNg COMMiTTEE Southern California Chapter of The Association of Pediatric hematology/Oncology Nurses

PRESENTS

The Twenty–NinthRegional Conference on

Pediatric HematologyOncology Nursing

MAY 14th and 15th, 2015

hYATT REgENCY NEwPORT BEACh

Newport Beach, California

Kedrion Biopharma

The Leukemia & Lymphoma Society

Loma Linda University Children’s Hospital

MaxLove Project

Miller Children’s and Women’s Hospital Long Beach

MolnLycke

Novartis Oncology

Novo Nordisk, Inc.

Octapharma USA, Inc

ONCC

Pfizer

Rady Children’s Hospital, San Diego

Sanofi

SeventyK

Sickle Cell Disease Foundation

Sigma Tau

UCLA Health

Walgreen’s

Accredo Health Group, Inc.

AccuVein

Baxter

Bayer Healthcare, Inc.

Beads of Courage

Biogen Idec

BioScrip Infusion Services

BTG International, Inc.

CareFusion

Children’s Hospital Los Angeles

CHOC Children’s Hospital

City of Hope

Cookie Lee Jewelry

CSL Behring

Ethicon, Inc.

Grifols

ICU Medical

Jazz Pharmaceuticals

Jesse Rees Foundation

SUPPORTERS AND EXhiBiTORSThe following have generously contributed to

the support of SCAPHON educational activities:

COMMUNiTY SERViCE PROJECTThis year SCAPHON is supporting BookEnds, a non-profit organization based in Southern California, who recycles children’s books and places them in schools and youth organizations in need of books in underserved areas. They are looking for quality, gently used children’s books appropriate for infants to kids 18 years of age. Your donations will be collected at the conference and will be presented to a representative from BookEnds.