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Community Based Participatory Research: Evaluating Processes and Outcomes. Nina Wallerstein, DrPH University of New Mexico [email protected] Malia Villegas, EdD National Congress of American Indians Policy Research Center [email protected] Community Campus Partnerships for Health - PowerPoint PPT Presentation
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Nina Wallerstein, DrPHUniversity of New Mexico
Malia Villegas, EdDNational Congress of American Indians Policy Research
Community Campus Partnerships for HealthHouston, April 18, 2012
Research for Improved Health: A National Study of Community-
Academic PartnershipsOverall Goal:
To examine the facilitators and barriers to effective community-academic partnerships to improve health and health equity in AI/AN communities and other communities which face disparities
Partners: (2009-2013)National Congress of American Indians Policy Research CenterUniversity of New Mexico Center for Participatory ResearchUniversity of Washington Indigenous Wellness Research Institute
Funding: Native American Research Centers for Health (NARCH V): NIH/Indian Health Service partnership
Three-Year Pilot: National Center of Minority Health and Health Disparities (2006-2009) (Wallerstein/Duran: PI)National Advisory Board (CBPR Think Tank)Literature Review (2003-2008): PubMed, Business Premier, Psych Info, SciSearch, Communication and Mass Media; Key Words: Community Based Participatory Research, CBPR, participatory research,
action research, participatory action research, participatory evaluation, community driven research, action science, collaborative inquiry, empowerment evaluation
From over 2000 articles, 287 reviewed, used to generate model characteristics
Internet Survey (Appropriateness of Characteristics)Development of Model (Wallerstein et al, 2008; Chapter
in CBPR and Health: Process to Outcomes, 2nd edition)
History
Research for Improved Health
Examples of items in MatrixThe political and social climate seem "right" for
starting a collaborative project like this one.I have a lot of respect for the other people involved in
this collaboration.I can talk openly and honestly at the Board meetings.
I am comfortable expressing my point of view.The partnership has been successful at preparing
tribal leadership.To what extent has your partnership strengthened
ATOD-related policies and regulations in the community?‘
The partnership positively influences community health.
Research for Improved Health
Specific aims: Describe the variability of CBPR
partnerships/projects Describe the impact of governance on CBPR
processes and outcomes Examine associations among partnering processes
and intermediate system/capacity and health outcomes
Identify promising practices, assessment tools, and future research needs.
Research for Improved Health Methodology:
Quantitative: Internet survey of 327 federally funded CBPR projectsKey informant interview surveys (PIs) to enhance recruitment and
validate dataCommunity Engagement survey of perceptions(Identified in 2009 RePORT data base & NARCH Projects).
Qualitative: At least 6 case studies of partnerships (originally 8)Examine similarities and differences across key contexts,
partnering processes, and outcomes Deepen interpretations of survey
Research for Improved Health Select Hypotheses
The more a CBPR partnership integrates local knowledge into the research, the greater likelihood the project will result in intermediate system and capacity outcomes, ie., cultural renewal, sustainability, community capacity, policy & practice changes.
The more a project is aligned with CBPR principles, the better quality of intermediate system and capacity outcomes.
The more there is resource-sharing, participatory decision-making and reciprocal learning, the better the capacity outcomes.
The longer the CBPR partnership has been in operation, the more the project will result in intermediate outcomes which lead to improved health outcomes.
Research for Improved Health Accomplishments since Fall, 2009
Application of the conceptual model to study designLiterature review publication: measurement tools and
constructs (Sandoval et al, Health Education Research) http://hsc.unm.edu/SOM/fcm/cpr/cprmodel/Instruments/CBPR-InteractiveModel/CBPRInstruments-Matrix/InstrumentsMatrix--abstract.pdf
Project code of ethics and integrity, protocols for student involvement, publications, & communications: Study website: http://narch.ncaiprc.org/
Variable Matrix (Pearson et al, 2011, CES4Health; Web availability of Interactive Model linked to instruments and to variables/measures: http://hsc.unm.edu/SOM/fcm/cpr/cprmodel.shtml
Research for Improved Health Case StudiesPersonal Involvement/MotivationContext Emphasized:
History of Community: in Research/Social Movements Partnership/Group Dynamics:
Governance/Approval Processes Facilitators and BarriersPowerTrust
Interventions or Policy EmphasisCBPR Research
Themes in FindingsContext Matters:
Historic trust/mistrust readily present Urban/rural access
Governance Matters: Tribal Sovereignty and community accountabilityStructural agreements and approvals vary
considerablyIdentity of Researcher(s) Matter:
Shared ethnic/racial identity enable bridging roleInterventions impacted by cultural embeddedness Partnership and Capacity Outcomes:
Community sustainability of interventionUniversity approval policies
Internet Survey DomainsContext : Community CapacityGroup Dynamics: Bridging
Alignment with Principles/Core ValuesTask RolesPower Dynamics/Decision-makingLeadership/StewardshipTrust
Intervention/Research: Partnership SynergyOutcomes
System and Capacity Changes: Policy/Quality/Access Changes in Power RelationsSustainabilityCultural Centeredness
Julie Lucero, 2012
Contact Information
Malia Villegas, Principal InvestigatorPrincipal Investigator, NCAI PRC NARCH Project
Email: [email protected]
Nina Wallerstein, Co-Principal Investigator, UNMQualitative Data Collection & AnalysisEmail: [email protected]
Bonnie Duran, Co-Principal Investigator, UWQuantitative Data Collection & Analysis
Email: [email protected]