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Co-production and involving people – change
that works?
Laura Collins - Carer
Martin Quinn - Regional Lead on Personal and Public
involvement PHA
Maeve Hully - Chief Executive, Patient Client Council
Co-production and
Involving People –
Change that Works?
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Laura Collins
Family Carer
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Martin QuinnRegional PPI Lead
PHA
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What is PPI?
New term, not a new concept.
Personal and Public Involvement (PPI) is a
process whereby service users/carers and the
public are empowered and enabled to inform
and influence the commissioning, planning,
delivery and evaluation of health and social care
services in ways that are relevant and
meaningful to them.
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Policy and legislative contextPolicy
influencers - Health for all (2000) - WHO
- Wanless (2004/5) and Appleby (2005) Reports
- DHSSPS - PPI Circulars 2007 & 2012
- Quality 2020
- Putting Patients First and Foremost
- Transforming Your Care
Legislation - Equality legislation 1998
- Health and Social Care (Reform) Act (NI) 2009
- No decision about me, without me, DoH 2010
- Judicial reviews, growing body of case law
Public Interest - Francis Report 2013
- Donaldson Report 2013/14
- Human Rights Commission Inquiry 2015
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PPI roles & responsibilities
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Organisation Role
DoH Policy Lead, issuing formal guidance, setting priorities
PHA Policy Implementation Lead. Operational leadership,
consistency of approach, building capacity, develop training,
raising awareness, chair and facilitate the Regional PPI Forum,
develop PPI standards and undertake monitoring and provide
assurances to the DoH.
HSCB Ensure PPI is embedded into Commissioning, encourage
Family Practitioner services to adopt PPI approaches
PCC Promote public involvement, represent public interest,
challenge function
RQIA Independent assurances to DHSSPS re PPI structures
Trusts Organisational and governance arrangements to meet Statutory
Duty of Involvement
Other HSC
Bodies
Comply with / encouraged to adopt PPI
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Co-production definition
“A delivery model for health services, co-production is
based on the sharing of information and on shared
decision making between the service users and providers
(Bettencourt, Ostrom et al, 2002; Needham and Carr,
2009). It builds on the assumption that both parties have a
central role to play in the process as they each contribute
different and essential knowledge (Cahn, 2000).”
The Health Foundation, 2010
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Level of Involvement
Briege Quinn PHA & Rodney
Morton HSCB
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Personal
Volunteering g
Co-design
(Commissioning)
Co-Delivery
(Providing)
Social Capital
(Peer Led Service &
Social Enterprises)
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Bringing PPI and
Co-production together
• The PHA undertakes PPI using co-
production/delivery methodology.
• Examples are:
• HSC Regional PPI Forum
• PPI Standards
• PPI Monitoring
• Engage & Involve Training Programme
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•
•
•
•
Clare RaynerPast president of the Patients Association
Raising Awareness of Choking John Toal & Angela Crocker
Help Stop Choking
“Choking is when food sticks in your throat. You might cough or not be able to cough, speak or breath. If you can’t breathe you could collapse and you could die.”
“I have a learning disability, epilepsy, Cerebral Palsy and swallowing difficulties. I choked a few times and it scared me. I worked with Speech and Language
therapy to make changes to help reduce my risk of choking. I haven't choked since, I think my experience with Angela saved my life.
I want to share my story to help other people reduce their risk of choking.”
Hi I’m John
Before I did this work I didn’t realise choking was so serious. I would take big bigbites and my mum would say slow down your going to choke but I didn’t know
that I could die. This is me telling my story and how I feel being through it (choking), even if I help one person it will be fantastic.
Made my story into a DVD.
DVD available on eLearning training and YouTube.
The DVD helps empower service users
I had a very bad choke on lettuce. I don’t eat it now.
If I had known it was a hard food I might never
have choked.
My friend's brother died from a choke
when he went to live in a new house. We all need to know what to
do to help.
I used to eat all my food dry, now I take gravy and the food doesn’t get stuck in my throat
anymore.
We make sure everyone is quiet
during lunch to help John.
John doesn’t eat on his own anymore.
Secured funding from the BHSCT Health Improvement Consortium to create a website and mobile app
Comments
• Excellent project that could save someone’s life should be shared across trusts in all LD areas also brilliant for children
• Absolutely superb. Johns teaching was excellent he is obviously a choking expert
• Brilliant, great idea to have service users perspective
• Excellent presentation will help many people make better choices and others to better support individuals
• Great session, I didn't know lettuce was hard to eat. Put it on YouTube.
PPI
John is a real service user, talking about what matters to him. Listening to him talking about his experience brings the subject of choking to a human level. This project has given John a strong voice, helped him influence the NHS work and play a significant role in shaping services.
“Thank you for listening to this presentation about choking.I hope it helps you to think more about choking to try to stop people dying from
choking”.
CO-PRODUCTION IN
NORTHERN REGION
RECOVERY COLLEGE
AUDREY MONTGOMERY
ROSEMARY HAWTHORNE
BACKGROUND TO RECOVERY
COLLEGE
All courses must be co-produced and co-
facilitated
There is a physical base (hub) then courses
are taken out to different areas in the
community
BACKGROUND TO RECOVERY
COLLEGE
The college operates on mainstream college
principles (ie, prospectus, enrolment forms,
semester timetables.)
It’s for EVERYONE
There is a personal tutor (or equivalent) to
give information and offer guidance about
courses
BACKGROUND TO RECOVERY
COLLEGE
The college is not a substitute for traditional
assessment and treatments
The college is not a substitute for
mainstream colleges.
The college must reflect recovery principles
How did we go about co-
production
Steering group
Working group
Getting people with lived experience and
carers (PPI) involved
Ensuring Effective Co-
Production•Dignity and Respect for the views of all
•Inclusivity, Equity and Diversity to ensure everyone who
needs to and wishes to be involved is facilitated to do so
irrespective of culture, language, skills, knowledge and
experience
•Collaboration and Partnership Working which is respectful of
the views of others and based on constructive relationships
•Transparency and openness in interactions and
relationships.
Barriers to Recovery and Co-
production
Not understanding the ethos of recovery
Not understanding the ethos of co
production
Not actively listening
Not enough time for co production
Not enough time to develop relationships
Recovery and PPI
Recovery stories Book
Recovery DVD
Develop What is Recovery and Social
Inclusion
Recovery College Courses
Co-production and co-facilitation
Recovery College Courses
Co produced
Co delivered
Experts in own field
Equals in the room
Joint Decision Making
Benefits of PPI within the
Recovery College Reduces Stigma
Change in culture
Shared Learning Environment
Instils Hope
Joint decision making
Equality
Volunteering
Employment opportunities
Enhances personal recovery
Networking
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Group Discussion
Hosted by Martin Quinn
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