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THE POWER OF TWO8/21/2011

Timecode Video Dialogue01:00:00 OPENING CREDITS [MUSIC] 01:00:24 ANABEL

My name is Anabel Mariko Stenzel01:00:28 ISABEL

My name is Isabel Yuriko Stenzel Byrnes. We are twin sisters. We were both born with cystic fibrosis. The genes we share give us the same face, the same body, the same cough, the same hospital room.

01:00:47 THE POWER OF TWO [MUSIC]01:00:52 ANABEL

I’ve had two double lung transplants.01:00:55 ISABEL

I have had a double lung transplant. 01:00:58 [MUSIC] 01:01:14 ANABEL

We all our impacted by our disease, by our transplants, and yet, it’s really about what’s inside.

01:01:27 [MUSIC]01:01:37 ANABEL

It’s about people going for the gold, it’s about determination, making it to the end, no matter how fast or slow you are.

01:01:45 ISABELMissy, go!

01:01:51 ANABEL A person may have a disfiguring scar on the outside, but they have a liver that works, they have a heart that pumps, they have a lung that’s full of air and taking them across the swimming pool. It’s the internal

01:02:07 [MUSIC]01:02:13 ANABEL

No matter how bad things can seem, the hope of improved life can carry somebody through.

01:02:22 THE POWER OF TWOA TWIN TRIUMPH OVER CYSTIC FIBROSIS

[MUSIC]

The Power of Two - 2.

Timecode Video Dialogue01:02:53 ANABEL “ANA”

STENZELANABELWhen I think about my childhood with cystic fibrosis, there’s a lot of memories that naturally come to surface.

01:03:04 ANA ISA ANABELThe first ten years of our lives, we did do treatments, we did go into the hospital once or twice, but primarily, my earliest memories growing up were about cultural influences. My mother, being Japanese, really set the, the background for who I am as an individual, and how much the Japanese culture was infused into me.

01:03:28 ISABEL “ISA” STENZEL BYRNES

ISABELMy parents were so dedicated and supportive, and they did everything that they had to do to raise my sister and I well, but they also came from cultures where you didn’t talk about your feelings or you didn’t talk about what was inside of your heart. We didn’t express our emotions like that.

01:03:44 HATSUKO STENZELMOTHER OF ANA & ISA

HATSUKO Every hospitalization they experienced when they were young, I felt like I did something wrong. And it was very, very difficult.

01:03:57 ANABEL One of the things my mother taught me was the idea of Gaman, and Gaman is an Japanese word that means persevere, strength within. By the age of 11 we started to go in and out of the hospital more frequently, where it did start to disrupt school. It was not just a little vacation anymore, it was fevers, it was shortness of breath, chronic coughing, coughing up blood, which is a very common symptom of cystic fibrosis.

01:04:37 WASHINGTON, D.C.

DR. FRANCIS COLLINSDIRECTOR, NATIONAL INSTITUTES OF

DR. FRANCIS COLLINSCystic fibrosis has a name that’s a little off-putting, it’s a lot of syllables, a lot of people aren’t quite sure what this disease really is. Maybe they’ve heard of it, maybe they’re just heard it called CF. We all have two copies of each gene in our system, one from mom, one


Timecode Video DialogueHEALTHDISCOVERED CYSTIC FIBROSIS GENE

from dad. Cystic fibrosis is caused by misspellings in those genes. If you have two copies, and one of them isn’t working, but the other one is, you’re fine. But if you’ve inherited a misspelled copy from your mother and another from your father, so that both copies are not working, then you will develop cystic fibrosis. It is the most common, potentially fatal genetic disease, in northern European background individuals, but it occurs in others as well, as we see in the case of Ana and Isa.

01:05:29 ANA

EXCESSIVE THICK MUCUS

PROGRESSIVE LUNG DISEASE

ANABELOne of the main issues in cystic fibrosis is an imbalance of salt and water in cells, and that causes thick mucus. Thick mucus cases progressive lung disease. And ultimately respiratory failure.

01:05:45 ISABELThere is no cure for cystic fibrosis at this point, as your lungs become more damaged, the only hope for survival is lung transplantation.

01:05:54 DR. FRANCIS COLLINSOrgan transplantation is a critical part of current medical therapies for many conditions, CF being one example. And right now we have this terrible problem of a limitation in the numbers of available organs for those who desperately need them.

01:06:10 ANABELWhen you receive a gift as amazing as a transplant, there is some sense of obligation to give back. Nothing is possible if we don’t have health. And I’ve learned that more myself from personal experience than anything else. So now that I am healthy, I do what I can.

01:06:32 ISA ISABELWe’re representing the thousands of other people with CF, or people who need transplants, that aren’t able to go to Washington D.C.

01:06:42 DR. HOWARD KOHASSISTANT

DR. HOWARD KOHWe have thousands of people desperate for an


Timecode Video DialogueSECRETARY FOR HEATHDEPARTMENT OF HEALTH & HUMAN SERVICES

organ and desperate for a fighting chance at a normal life. Even though we are making progress, the numbers of people on the waiting list are going up, not down. This is our collective societal issue and everybody can make a contribution.

01:06:59 ANABELIn America, every day 19 people die because there is a shortage of organs.

01:07:04 DR. HOWARD KOHAdvocacy is the engine of change, for any issue in society, and particularly for public health. And the beauty of advocacy and the power of advocacy is it can start with one person. In this case, two people.

01:07:19 ANABEL We’re here on our fifth day of my 16th hospitalization, and her 20th.

01:07:27 CLERK20th?

01:07:28 ISABELYeah.

01:07:28 ISA ISABELBeing in the hospital really sort of sets in stone my abnormality. None of my other friends went into the hospital, so this was just my story and Ana’s story and we were the only ones going in and out.

01:07:42 ANABEL I think that in terms of growing up with a twin with cystic fibrosis, undoubtedly, it was transformative. When we started to get sicker, and we were in and out of the hospital several times a year. We started to build our own cocoon. We became our own confidantes, we became our best friends, our teachers, our personal therapists

01:08:05 ISABELOur peers became adult health care providers, rather than our peers at school. And that comfort level also made being in the hospital not so scary.


Timecode Video Dialogue01:08:19 ANABEL

I was a very emotional child, and writing gave me an outlet to express myself and to record what I thought would be a very short life.

01:08:34 ISABEL I think Ana’s the one that started writing and she just started to list things, list her medicines and list her doctors. And then gradually we started more of a diary format, we just started writing about all the memories we had about previous hospital stays.

01:08:55 HATSUKOThey were very, very special children, they had great motivation. I just encouraged them, whatever they were doing, that’s all I did.

01:09:07 REPORTEROut of boredom, Anabel and Isabel Stenzel say they started keeping a diary of their hospital stays, titled “Life at Kaiser.”

01:09:15 ANABEL “Life at Kaiser” was sharing with the world, what the patient’s experience was from the other side, from the internal side of being in the hospital.

01:09:26 REPORTERThe book is illustrated, including how to do certain procedures learned from experience, plus, tips on physical therapy of the chest.

01:09:34 ANABELI pound her back like this, to loosen secretions in the lung

01:09:40 ANABEL STENZELAUTHOR

ANABEL Throughout our hospitalization and throughout our experience with roommates, nobody really knows what cystic fibrosis is, and so with our book it teaches people what it is.

01:09:49 REPORTERAlmost startling is the frank understanding of what they face.

01:09:54 ISABEL STENZELAUTHOR

ISABELWhen we were little, we knew how bad CF could get, and we thought that we were very


Timecode Video Dialoguelucky cause we were twins, and we shared the disease by two. But now we know that it progresses, and so now we each get as sick as anybody else may get

01:10:11 ANABELI plan to do my best in school and get good grades and hopefully go on to college, and if I, like, if I last that long.

01:10:21 STANFORD UNIVERSITYSTANFORD, CALIFORNIA

[MUSIC]

01:10:38 ISA ISABELThis idea of Stanford, first occurred to us when we were about 14 years old. My parents said, this is where they do heart lung transplants, and we’re like wow, that’s like science fiction.

01:10:51 ANABELStanford is really the heart of, of us in many ways. We came here for college, and it opened up a whole new door of life for us, in every way, emotionally, medically, academically. Certainly there were fears, going to college, but those fears were minimized because we had each other. Little did we know that leaving for college is actually the most life saving, best thing that we ever did.

01:11:20 ISABELThroughout our four years pretty much, we were always a little bit outside of like the dorm partying, and the dating. That didn’t happen till senior year.

01:11:31 ANDREW BYRNESISA’S HUSBAND

ANDREWI fell in love completely independent of cystic fibrosis. She sat me down and, uh, she said, you know, I have an illness, and I have to do therapy every day with my sister, and I cough a lot, and I just wanted to let you know.

I think that you should follow your heart, and if they’re the right person, and the only issue is, well, they have a chronic illness, that that shouldn’t dissuade someone.


Timecode Video Dialogue01:12:05 PRIEST

Ladies and gentlemen, I present to you, Andrew and Isabel Byrnes, husband and wife. [APPLAUSE]

01:12:13 ANDREWAna I think, had, I don’t think, I know, had fundamental doubts and concerns about our relationship

01:12:21 ANABELAnd all of a sudden, this third person comes into the picture who takes Isa away to go to Napa Valley for the weekend, and she’s having fun, while I’m struggling thinking who’s gonna take care of me. Observing romantic relationships around me and observing love without ever experienced it myself, was not easy. But at the same time I was very happy for Isa, that she found someone and that there was this person who was so loving, so unconditionally accepting of our dynamic. We all grew together.

01:12:54 [MUSIC]01:12:58 ISABEL

At Stanford Hospital, once a month, there is a support group for people who are waiting for lung transplant and those who have received lung transplant. It’s a really dynamic, engaging, loving, open and tremendously hopeful environment.

01:13:16 ISABELWelcome everybody, this is a very special gathering of lung recipients, to be here to just talk to each other and get to know each other even more. I thought of this prayer flag project to give to Japanese donor families. They’ve never really been recognized, and I think it would be meaningful to share with those Japanese donor families how we feel about being recipients.

01:13:42 MALE LUNG RECIPIENTI received a heart, double lung transplant in 1997. It, the underlying cause of my transplant was cystic fibrosis, genetic disease. I still have


Timecode Video Dialoguecystic fibrosis it affects now my sinuses mostly, my pancreas, but my lungs have returned, I’m at 100 percent lung capacity.

01:14:05 ISABELGreat.

01:14:07 ANABEL As you can imagine, quickly we become very close, because the journey of lung transplant is a roller coaster ride, and it’s probably one of the most pivotal, challenging, life changing, existential experiences that any human being can go through.

01:14:28 FEMALE LUNG RECIPIENTI was very, I don't know if it was nervous, it was just all of these really mixed emotions about, you know, waiting for, for someone to pass away and hoping that they were gonna give that gift of life, and just praying for the family was really, really important to, um, to us and our family. If that person had not donated it could have, you know, ended very, very badly.

01:14:55 MALE LUNG RECIPIENTIt’s a, it’s a very sober thing to realize someone has lost their life, you know. But at the same time, I, they didn’t lose their life because I got my transplant, they would have lost their life whether I got the transplant or whether the lungs went in the ground.

01:15:14 ANABELEvery breath we take from the minute we’re born to the minute we die is about renewal. But when you have sick lungs and then you have a lung transplant, it’s a bigger level of renewal, and it’s about becoming alive again.

01:15:31 MALE LUNG RECIPIENT 02It is a completely different feeling to breathe with the gift of these donated lungs than it was to breath my entire life, because when I close my eyes and I breathe in, I feel like I’m in a sanctuary. You know. It’s just peace. And that’s new for me. And that’s awesome. It’s awesome. Even though I have to wear this mask for the next couple of months, it doesn’t matter, it’s


Timecode Video Dialogueawesome.

01:16:03 FEMALE LUNG RECIPIENT 02 I decided to write my donor family a letter about four months after my surgery. Um, and then six months later I received a letter from them. My donor is a male and his brother’s the one who wrote me and he called me his sister. And just to find out his name was very, I mean, I prayed day in and day out that I will be able to express my gratitude for what they’ve done for me and my family.

01:16:31 ISABELBreathing to me means that my husband can have me and he’s not a widow and breathing means I’m still with my twin and with my family Breathing means I can write a list of things I want to do and actually do them. So that’s really what breathing is to me, the possibility of so many things.

01:16:52 ANABELEveryone say breathe.

01:16:54 EVERYONEBreathe.

01:17:13 ANNA MODLIN ANNA[COUGHING] I have a very strict daily regimen and when I get up in the morning, the first thing I do is my airway clearance and my nebulizers, I use albuterol, which opens your lungs and allows you to take as deep of a breath as possible. You have to work hard at getting the stuff out and treatments are passive, you have to be pretty active to make it work for you. But once it’s done, then it’s like ah, I can breathe again.

01:17:46 ISA ISABELSo I’ve known Anna Modlin for 20 years now. The Modlin family means the world to me. I love them, you know, as much as I love my own family.

01:17:57 ANNAMy mom and I make a really good team in treating this disease and we actually have done


Timecode Video Dialoguethat my whole life, not just at the end stage part.

01:18:08 ROBIN MODLINANNA’S MOTHER

ROBINCF has been the center and Anna has been the center of my life and caring for her. It’s been a very intense experience of motherhood.

01:18:18 ANNAI’m a patient who’s been having more issues lately. I have my oxygen which I have to use 24 hours a day. These are my travel tanks, so each one lasts about four hours for two liters.

01:18:36 ISABELWhen Anna Modlin was nine years old, the gene for cystic fibrosis was discovered and I was 19 at the time and I said I promise you that by the time you’re 19, there’ll be a cure for CF, but unfortunately, that, that didn’t happen yet. And she’s 29 and she’s at the end of her life with CF. There’s nothing more for her. There’s no new medicine, there’s no cure there’s no gene therapy yet. So, the only hope for her now is transplant.

01:19:12 ANNAThat’s the hardest part, is that, no matter how hard I try and no matter what I do, how educated I am about the illness, it’s still gonna win. What I’m lucky about is that transplant is the option at the end, and when I was born, that wasn’t an option. And when I first grasped that reality, it made me, obviously, really sad, because the end of, it means it’s the end. You know, like before it, um, that would be it, there wasn’t something else. But now it’s so hopeful that there’s something on the other side. So I’ve kind of shifted my focus that all of this is worth it because I have to be strong to get through the surgery and then live a life that I want to live.

01:20:08 ANA ANABEL Anna Modlin has become one of the most important people in my life. We’ve travelled the road of this ugly disease together and watched it progress in ways that we have fought very, very hard to not let that happen. I feel like she’s


Timecode Video Dialoguea little sister in a way. Anna Modlin was my camper at cystic fibrosis camp and we would spend one week together every summer, side by side, becoming close friends

01:20:38 [MUSIC]01:20:42 ISA ISABEL

So, 11 to 24, I went to camp. It was that important to me. I made an effort to go every single summer and I would plan my hospitalizations before camp, so I’d be in good shape for camp, and make sure I didn’t get sick and so on.

01:21:01 ANABELThis was a very special place where we would go away to the mountains with about 100 other children with cystic fibrosis and we would be normal.

01:21:13 HATSUKOThat one week, they looked forward all year and they made great friends

01:21:20 ANABELIt was the most amazing coming of age beautiful experience in my life. I learned about music, I learned about expressing one selves, I learned about real Americans and what they eat and what they say, and what they do. And I learned about other children with cystic fibrosis and how they cope with it and how their families cope with it. And for the first time, it was like a curtain was lifted, and I saw the reality of my disease.

01:21:52 ISABEL Certainly there were children who were much sicker than I. Some that were barrel chested, and some that were on oxygen when they were seven years old, or tube feeding, or some were in wheelchairs.

01:22:05 ANABELThose were the kids that taught me wow, I better take this disease seriously. I better take care of myself. And it made me a wiser young teenager. It changed me.

01:22:18 [MUSIC]


Timecode Video Dialogue01:22:23 ISABEL

And there was an older girls cabin called the “Pink Ladies", and in a couple of years, all the "Pink Ladies" were gone. And I thought, wow, that’s what happens? Basically we’re all heading towards extinction, you know, these little cliques of friends, one by one, dies. I mean, what a sad existence. And then I realize, you know, those that did die, well, camp was the most important part of their lives, because for one week a year, they were normal.

01:22:56 [MUSIC]01:23:04 MICHELLE OLSON

1966-1999

KAREN BELL1971-1990

KELLY COLGAN1982-2003

CHRISSY MILLER1985-2006

TONY DIPROFIO1969-2003

ELIZABETH NASH1970-2003

SIOBAHN RYAN1982-2008

CHARLIE STOCKLEY1968-2006

EMILY HAAGER1983-2010

BOB FLANAGAN1952-1996

HAYLEY WESTER

ISABELI think, during our college years was a time where we started to lose friends to cystic fibrosis one after the other. Sometimes it was kids, sometimes it was older people. All around us, one at a time, our friends died, and that was a very overwhelming feeling. That’s the punishment for being the survivor. We have to feel the pain and the sadness and kind of the mystery of why did they go first, and we’re still here.


Timecode Video Dialogue1975-1998

SANDRA AYALA1982-1996

01:23:57 KERRY CANAVAN1958-2006

ISABEL I’m glad that I can remember them and honor them and I’m glad that I knew these people and learned from them and I learned from their families after they’re gone how to go on in the world when you have lost someone.

01:24:15 [MUSIC]01:24:24 ANA ANABEL

I never really had much expectation that I would live very long, or that my life would be so great. So when I found myself in very advanced stage CF I was really reflecting on what I had, and not what I didn’t have. I didn’t sit in a place of despair and lose hope. I think a lot of that had to do with the fact that transplant was offered to me. If I didn’t have transplant offered, then there would be nothing to do but prepare for one’s death. I was listed for a transplant in 1997 when I was 25 years old. At the time my lung capacity was about 30 percent so I was functioning on about a third of a normal lung.

01:25:10 ANABEL And most importantly, my day to day functioning was more impaired. For example, my big event of the weekend would be going to the market. I would go to the grocery store, get my food for the week, come home and just, that was it, I was exhausted, that’s pretty much all I could do.

01:25:26 ISA ISABELIt helped me to be able to help her, by making dinner or you know, taking the garbage out because she was too short of breath to do that. Those simple things, I was her partner in life, going through end stage disease together.

01:25:42 ON JUNE 13TH 2000, JAMES DORNWAS PRONOUNCED BRAIN DEAD.

ANABELThe call came June 14th, 2000, right in the middle of the year, right in the middle of the month, and in the middle of the night.


Timecode Video Dialogue01:25:53 MEMBERS OF THE

DORN FAMILY

KRISTIN DORNJAMES’S SISTER

KRISTIN We got the call in the middle of the night basically that we needed to be to the hospital. They asked us to donate, and we hadn’t decided, we decided that we were gonna make it unanimous, it had to be unanimous or it wasn’t going to happen.

01:26:06 BETH MARTINSONJAMES’S SISTER

BETHI don't know if you’ve ever been in a room where somebody’s brain dead, but they’re not there anymore. They’re gone. And you can feel it when you walk in.

01:26:17 KRISTINThere was no going back from that and he did not need his organs anymore. He was somewhere else completely, and why not give them to someone who needs them.

01:26:32 ANABELWe went to the hospital within two hours, that’s the time frame that you’re required to go to the hospital for lungs. I got checked in and they do all kinds of tests on me to make sure that I’m ready for surgery.

01:26:44 DR. NOREEN HENIGTRANSPLANT & CF DOCTOR OF ANA & ISA

DR. NOREEN HENIGThe individual who’s the recipient has to come in and be in good health and if you take their temperature and they have a temperature of 100, transplant’s called off. You know, so there’s lots of little things that can influence it. You have a little cold that day, it’s not gonna happen.

01:27:00 DR. SHAF KESHAVJEEHEAD THORACIC SURGERYTORONTO GENERAL HOSPITAL

DR. SHAF KESHAVJEETreating the lung in the donor is somewhat cumbersome, it takes time, we don’t have that much time, always, and there are a number of issues that make it challenging, possible but challenging. The standard way that we preserve organs for transplantation is we cool them down, by cooling an organ down, you slow down the dying process, so instead of it dying at 100 percent rate, it’s dying at five percent rate. So you’re still rushing, but you’ve got some time. That is what made


Timecode Video Dialoguetransplantation possible.

01:27:33 ANABELIt took a while for all the preparation to happen and for the donors lungs to be removed and flown by helicopter here to Stanford. It was a nine hour surgery. I woke up in the ICU and the first thing I thought is wow, I’m alive.

01:27:49 AIR LUNG DAMAGELATE STAGE CF1998

ANABELThroughout my life, I’ve probably had over 800 x-rays taken of my chest. My x-ray would look very white, like a cloudy day in the sky. Doctors would look at the x-rays and give kind of a sad sigh, and it wasn’t until later where I learned black is air and white is lung damage.

01:28:15 POST-TRANSPLANT2009

ANABEL Then suddenly I had a transplant and my x-ray was all black. And for the first time I was like wow, that’s air, and that’s only air. And I’m seeing the wires and the staples and all the medical technology that’s holding this foreign lung stapled in me, breathing for me.

01:28:37 ISA ANA ISABELWe have this twin thing, if she shows her scar, I’ll show mine, if I show mine, she’ll show hers, so it’s okay. We have nothing to be embarrassed about.

01:28:46 ANABELRight, so here we go. And you have to like excuse the super padded bra.

01:28:50 ISABELDo we take that off too?

01:28:52 ANABELAbsolutely, what would it be like if you just had a bra on. I don’t care. So, there you go. This is the transplant scar which goes under the breast bone and then these are the port a-cath scars where we had our infusions. And then I don’t think you can even see my chest tube scars, so I had some chest tubes as well.

01:29:13 ISABELSo these are chest tubes, they look like gunshot wounds and then my main transplant scar goes across here. I think mine is darker


Timecode Video Dialoguethan Ana’s just because keloid.

01:29:26 ANABELBecause I was born with a bowel obstruction I had surgery at three days of age. In 1972, the surgeons attitude was this baby has cystic fibrosis, she’s not gonna live very long, so we don’t need to make the scar pretty. And, yeah, it doesn’t really stretch, so that’s why it looks like I’m fat on the top and the bottom.

01:29:50 [MUSIC]01:29:58 ISA ISABEL

When I was first transplanted, one of my friends who was transplanted six years earlier, told me that when you go to special places blow bubbles, because you can honor your donor and you can see his gift in the bubbles.

01:30:12 ANABELAnd it’s a beautiful symbol of life, that life comes out of breath, and that life floats and is taken by the grace of wind, and it can take you in all different directions. It seems like throughout our whole life one of us has been strong when the other has been weak. And when we finally both had transplants we were finally both strong. And what a celebration. It was like the party was just beginning, and we had overcome this lifelong hard work of cystic fibrosis. And we were two kids in a candy store ready to make plans, run free, and have fun.

01:31:05 ISABEL We were free, we did anything and everything we wanted. We were just each other’s best friends.

01:31:12 [MUSIC]01:31:29 ISABEL

And it was such a fabulous adventure. We went to places we never dreamed we could go to. I’m nine months post transplant, I’m at the Grand Canyon at 7,000 feet elevation. I can’t believe I’m here.

01:31:44 ANABEL It was almost like pinch me, is this real? This sense that nothing would hold us back. It was


Timecode Video Dialoguemagical. It was redemption. When we started to speak to drug companies and doctors and nurses and conferences about living with cystic fibrosis people validated us and loved our story and wanted to hear more. That encouraged me that I had something to say.

01:32:12 ANABELIsa and I had decided to write a book more as our own sense of documenting our lives, we set out to organize our own book tour, by calling book stores, by calling cystic fibrosis centers, and driving across the country.

01:32:29 ANABEL We wanted to leave reflections of what we learned and what we experienced and the emotional and mental growth that cystic fibrosis gave to us.

01:32:40 WOMANIsabel Stenzel Byrnes and Anabel Stenzel. [APPLAUSE]

01:32:48 ISABELSo after two years, “The Power of Two” in English was translated into Japanese and became “Mirakuru Tsuinzu.”

01:32:58 REDWOOD CITYCALIFORNIA

When you’re running, you can hear your breath.That breath is your life. As long as you can breathe, there is nothing you can’t do.

ANABEL [SPEAKING JAPANESE]

01:33:16 ANABEL So we’re here 10 days before we leave to our trip to Japan, and we’re having a dress rehearsal of our speeches. Keep in mind that we’re half Japanese, so we speak half assed Japanese.

01:33:27 ISABELI think I just deleted all the extra medical things.

01:33:30 ANABEL


Timecode Video DialogueYeah.

01:33:31 ANABELInitially we had decided to go, just Isa and I, as a trip to go and talk about our book and maybe tour around, visit family. And then it completely changed into much more of a professional opportunity with more than 19 speeches that we’re giving, with 10 cities that we’re visiting, and I feel like the expectations are very high.

01:33:54 ISABELIt’s purely a cultural problem in Japan that organ donation is not popular.

01:33:59 ISA ANABEL And this is a country who has excellent medical care. And I know that the way that Japanese culture deals with death and transplant and organ donation is very different from us.

01:34:12 ISABELIt’s not fair that because we were born in America we had the chance to receive transplants. It’s not fair if we had been born in Japan we would have died of that disease. This is about dozens of people in Japan and in America who are kind of mobilizing us to go and be spokespersons for this cause.

01:34:36 ISABEL I’ve never been away for one month post transplant, and I’m healthy, but it’s still a little scary because I fear problems, of course when you’re far away from your transplant center it just, it gets scary.

01:34:49 ANABELWith any transplant patient we always take a long time to prepare for our trips. This is my repertoire of medications. After transplant its primarily pills. I do still have cystic fibrosis, um, I do still have plenty of gastro intestinal problems, to remind me that I have cystic fibrosis

01:35:07 ISABELSo, the TOBI, and the Ultrase, the enzymes, some of the vitamins I’m taking because of CF, and the rest are mostly immunosuppressant’s


Timecode Video Dialoguebecause of the transplant, but also medicines that I have to take to counter the side effects of those immunosuppressant.

01:35:25 ANABELI don’t this to stress me out so much that I get sick. To be honest, I’ll just do my best. I’m gonna do my best, I’m gonna enjoy and I’m gonna remember that most important it’s gonna be about having fun.

01:35:38 ISABELWe just realized we have to do exactly what we want, taking the appropriate precautions, and go and live.


When I’m in Japan, I love it there. It’s clean, people are kind, people are polite, they’re courteous. So I, I do go back with certainly nostalgia, fondness, appreciation of my mother and her family. But also a yearning for more. While Japanese culture undoubtedly has incredible strengths, there are certain aspects in the organ donation picture that are a little bit more difficult to understand.

01:36:49 [MUSIC]01:36:52 Please donate for heart

transplantation.Goal: 140 million yen$1.6 million U.S. dollars

MAN[SPEAKING JAPANESE]

01:37:03 ISA

UNITED STATES OF AMERICA307,000,00028,500

JAPAN127,000,000193

JAPAN

I ISABEL In Japan, if you need a transplant you have to wait a very long time, 20 years for a kidney, six years for a heart. Four years for a lung. This is because there are so few Japanese organ donors. In America, out of approximately 307,000,000 people. Nearly 28,500 organs were transplanted in 2009. When you compare that with Japan, which has a little less than half of the population of America, only 193 organs were transplanted in the same year. This places Japan at the bottom of the list of industrialized nations for transplant.

01:37:46 CHINA ISABEL


Timecode Video DialogueSome actually pay for the organ by going to China.

01:37:51 PAKISTAN

UNITED STATES OF AMERICAGERMANYAUSTRALIA GREAT BRITAIN.

ISABEL Or Pakistan. Some raise money to pay for medical expenses here in America. Unfortunately, Germany, Australia, Great Britain have closed their doors to the Japanese. They say you have the money, you have the technology, you find your own donors. We have friends who are raising money by standing on street corners with a box saying please give money for transplant

01:38:14 ANABEL It’s a situation I could never have imagined when I was waiting, cause at that point all I wanted to do was breathe, I couldn’t even imagine fund raising. It’s unbelievable what the Japanese have to go through

01:38:34 Today we welcome twin guests from the United States, Isabel Stenzel and Anabel Stenzel.

WOMAN[SPEAKING JAPANESE]

01:38:41 -Hello. ANABEL[SPEAKING JAPANESE]

01:38:41 -Hello. ISABEL[SPEAKING JAPANESE]

01:38:43 They are the Miracle Twins, famous among transplant recipients in the U.S. Their book has recently been published here in Japan, and now they’re on a speaking tour across the country. How is it going?

WOMAN[SPEAKING JAPANESE]

01:38:03 This visit is special. We’ve met people, spoken from our hearts, and shared complex feelings.

ISABEL[SPEAKING JAPANESE]

01:39:21 NATIONAL DIET OF JAPANJAPANESE

ISABELThe people in Japan have been extraordinarily receptive to our visit. And have planned


Timecode Video DialoguePARLIAMENT, TOKYO unbelievable amounts of engagements, and

we’re so thankful to them.01:39:37 TARO KONO

DIRECTOR GENERALLIBERAL DEMOCRAT PARTY

TARO KONOMy father had a Hepatitis C virus, he was a former Deputy Prime Minister, and former foreign minister. He was very famous. In 2001, he was hospitalized and doctors told us if we do the liver transplant, that’s probably the only way to have him live longer than six months. I gave a third of my liver to my father, so we decided to go public, even before the operation. And the operation was successful. So he’s now healthy. Wherever he goes, I mean, people know that he had a new liver, and he’s now very healthy. And then I realized, if we can do organ transplant operation from the brain dead people, we don’t actually have to cut the body of the healthy people.

01:40:35 [MUSIC]01:40:37 ISABEL

The Japanese believe that death happens when the heart stops. So the idea of the brain dying first, while the heart is beating, when a person is on life support, it’s very difficult to understand.

01:40:52 DR. TOMOAKI KATOASSISTANT PROFESSOR OF SURGERYCOLUMBIA UNIVERSITY

DR. TOMOAKI KATOIf you asked right now, do you really want to get a transplant, or do you want your child to have a transplant, most people would say yes. But if you ask the different question, such as, if your child is brain dead, would you consider organ donation, I can bet you the answer would be no in 80 percent, or even 100, close to 100 percent.

01:41:15 ISABELJapanese society has been sort of spoiled by a negative incident in transplantation in the 1960s.

01:41:22 Early this morning, the first heart transplantation in Japan was performed at Sapporo Medical

REPORTER[SPEAKING JAPANESE]


Timecode Video DialogueUniversity Hospital by Professor Juro Wada and 20 staff members.

01:41:32 DR. KAZUTOMO MINAMIDIRECTOR, CARDIOVASCULAR SURGERYNIHON UNIVERSITY SCHOOL OF MEDICINE

DR. KAZUTOMO MINAMII was a medical student as he performed the first heart transplantation in Japan. You know, he, he was my mentor, and I was very impressed. But, it’s a very big problem with that event in 1968 with Dr. Wada.

01:41:50 ISABELAfter the transplant occurred investigation found that this was not an ethical situation. The patient was not brain dead, and the patient who received the organ was not at the very end of his life.

01:42:04 DR. TOMOAKI KATOThere was very much of a big media coverage, when the recipient died at the end, and after the recipient died a lot of suspicion was raised from the public.

01:42:16 DR. SATOSHI TERAOKAJAPAN SOCIETY FOR TRANSPLANTATION

In addition to Dr. Wada’s role as a transplant surgeon he was also the one who pronounced the donor dead. This is a big violation of the rules.

DR. SATOSHI TERAOKA[SPEAKING JAPANESE]

01:42:30 Dr. Juro Wada was charged with two counts of murder.

1. Killing the donor by removing his heart.

2. Causing the premature

[MUSIC]


Timecode Video Dialoguedeath of the recipient with unnecessary cardiac transplantation

He was eventually acquitted.

01:42:46 DR. TOMOAKI KATOSo that was a big setback. From that time for almost, almost 30 years, there was no official brain deaths donors.

01:42:57 In 1997, a law was passed allowing organ donation from a brain dead person. Up to now, there have been 65 heart transplants, 63 liver transplants, and 59 lung transplants. In 10 years, this is all of the organ transplants we’ve managed to do. So, the number of people who can receive transplants is extremely limited. Many people could be saved through transplant, but die waiting for organs. That is the current situation in Japan.


01:43:45 ORGAN DONATION DECISION CARD

DR. TOMOAKI KATOThat law, in 1997, made it very strict was that you have to have the signed donor card. Prior to the brain death time.

01:43:45 DR. KAZUTOMO MINAMIIn America or Europe, you can give the donors without donation card, if the relatives say okay, we want. But in Japan, it was not allowed.

01:43:56 ANABEL There is a belief in Japan that all things from nature are perfect the way they are, and that means that your body, when it’s sick, and when


Timecode Video Dialogueit’s dying, is just the way that nature intended. And so taking an organ from someone who has died and putting it into someone who is sick, is totally against nature, and cannot be supported.

01:44:20 For Japanese people, it has long been thought that talking about death brings back luck. People don’t really think about what would happen if they were to die. Thus, the Japanese don’t often write wills. So, people don’t really say that they’d like to donate organs when they die. But as you know, all life comes to an end. So at some point we’re all going to be met with death. When we are met with death, organ donation is one of the choices we can make.


01:45:02 NAMIE NAKAZAWAJAPANESE TRANSPLANT ADVOCATE

My son’s name was Sotaro. His heart started to fail in Japan, and he needed a heart transplant. If he didn’t go to America, he would not have been able to get the transplant in Japan.

NAMIE[SPEAKING JAPANESE]

01:45:23 My son needs a heart transplant as soon as possible. We ask for your support. Please

MAN[SPEAKING JAPANESE]


Timecode Video Dialoguehelp him.

01:45:31 We reached our goal of $120 million yen- ($14 million U.S.) On December 5th, 2008, we went to America, and on December 10th, he passed away without receiving a transplant.


01:45:54 TARO KONODIRECTOR GENERALLIBERAL DEMOCRATIC PARTY

TARO KONOEvery year we had to listen to ten cases of donation from the brain dead people, so only less than one percent of people actually sign up. We need to change the law

01:46:08 Sotaro was not able to receive a surgery in Japan. So, when I thought of ways children could get a transplant in Japan, I worked on changing the transplant law, by collecting signatures and speaking to assembly members.


01:46:31 Please vote for the organ transplant law.

MAN 02[SPEAKING JAPANESE]

01:46:35 I am for.I am against.

PEOPLE[SPEAKING JAPANESE]

01:46:40 The total vote is 220. There are 138 supporters. Therefore the law has been passed.

MAN 02[SPEAKING JAPANESE]

01:46:55 In July 2009, the bill (plan A) was passed, which revised the transplant law.


01:47:07 ISABEL So this was a milestone law. This was a huge change for a country that has generally been against organ donation.


Timecode Video Dialogue01:47:14 ANABEL

Plan A, is allowing a different definition of brain death, as death, for families who choose organ donation at the time of a tragedy.

01:47:26 ISABEL It also would legally allow children who died and became brain dead to donate their organs.

01:47:32 TARO KONOSo now the door is open, are we going to enter the room, that’s the key issue.

01:47:39 DR. TOMOAKI KATOSo it’s really not the law anymore, it is really truly the Japanese people’s acceptance of organ donation.

01:47:58 JAPAN TRANSPLANT GAMESFUKUOKA, JAPAN

How is everyone? Yes, having energy is the best.

MICHIKATA OHKUBO

I am truly happy that many donor families are here today. It is wonderful how the number of donor families in attendance increases every year.

MICHIKATA[SPEAKING JAPANESE]

01:48:19 ISA ISABELI went to the Japan Transplant Games and it’s literally about 1/15 of the size of the United States Transplant Games, but the power was still there. In the beginning people were a little bit shy, Japanese style, and then within a few hours everybody opened up and just became a very bonded close knit community. People would ask, what kind of organ do you have and where are you from, and things like that. And we just felt a sense of family, immediately.

01:48:51 ANA ANABEL


Timecode Video DialogueEveryone at the transplant games in Japan can participate, not only the recipients themselves, but the donor families and the healthcare providers.

01:49:00 [MUSIC]01:49:06 ISABEL

At the welcome party I met a very dynamic donor father who sadly lost his daughter about nine years ago at the age of 27, and he loved to share his story.

01:49:21 This photo portrays the farewell party we had for my daughter Rie.

KAZUYUKI TANAKA DONOR FAMILY REPRESENTATIVE

She suffered from brain death due to an automobile accident. The doctor told us that she will not recover. So, we accepted her fate. At the age of 27, before she could even marry and have children, we wondered what the point of her life was. And the next thing I know, my eldest daughter told me that her sister carried a donor’s card. I asked her what it was. I soon learned that the holder of the card signifies their willingness to donate if they become brain dead. Seven of her organs are glistening like jewels throughout the country.

KAZUYUKI TANAKA[SPEAKING JAPANESE]


Timecode Video DialogueIn this way, Rie is not really dead. Therefore, we have no regrets whatsoever for signing this card.

WOMANGo Ana, go Isa!

01:50:36 ISABELIt was remarkable to swim alongside another Japanese lung recipient. I honor the Japanese more than the Americans in many ways, because they had to wait 17 years, 20 years for a kidney.

01:50:52 ISABELIt’s wonderful to just swim together with Japanese. We’re all doing our best.

01:50:58 ISABELIt’s such a celebration when we are near death and then resurrected by organ transplant.

01:51:06 ANA ANABELIt’s a very small community of people, but those people are rockets and those people are moving transplantation forward in Japan, amidst a lot of resistance.

01:51:17 [MUSIC]01:51:26 We are told that if we

were in America we would be considered heroes. Donor families are heroes there. That is what I have heard. But as of now, donors and their families are not valued in Japan.

KAZUYUKI TANAKA[SPEAKING JAPANESE]

01:51:44 ISABELAll of these people worked so hard and they’re so passionate, and they are the ones that are going out into their community, thinking strategically about how do we get this message out there, how do we get out there to care about organ donation.

01:51:59 Our lives were saved by ANABEL


Timecode Video Dialoguelung transplant. Today you are running or life. You are raising awareness for transplantation. You are showing Japan how wonderful organ transplantation is.

[SPEAKING JAPANESE]

01:52:26 ANABELWe were connected with people with chronic illness, we connected with donor families who were grieving, and I’m hoping that our presence in Japan influenced other recipients to come forward and say thank you, and to show donor families, look, you’ve done something great, and don’t be ashamed, it's okay. It’s okay, you did something good.

01:52:53 [MUSIC]01:53:25 Since you are twins

with the same disease, I am sure there are times when you are glad you have each other.

WOMAN

01:53:35 Of course. We are twins, so there is a bond


01:53:43 [MUSIC]01:54:00 We are twins, but in

reality there are four. Our donors are here too. So it’s double energy. Double, and double. We would like to convey that to the world. Life continues. Organ transplantation connects people beyond race.


01:54:27 [MUSIC]01:54:34 Death is always close

by and we don’t know if we will grow old

ANABEL[SPEAKING JAPANESE]


Timecode Video Dialoguetogether. So, I can’t believe the miracle we have today, being together as adults. We are still together and that is what is important.

01:54:57 [MUSIC]01:55:10 Ana and I truly support

all of your efforts to raise awareness about CF in Japan


01:55:21 CF BENEFIT CONCERTSENDAI, JAPAN

[MUSIC]

01:55:27 ANABELI’ve waited 37 years to meet another CF family in Japan. To see the Japanese people coming together as a community for charity, for purposes of learning from us how to advocate for the patients and families with cystic fibrosis, it shows they care. [MUSIC]

01:55:47 My son has cystic fibrosis.

TOMOAKI ADACHI[SPEAKING JAPANESE]

01:55:58 What’s his name? MAN 02 [SPEAKING JAPANESE]

01:55:50 Akihiro. He was diagnosed when he was 6 months old. It’s very rare among Japanese. A recent report by the Japanese government shows that only about 30 people have been diagnosed with CF in the last 10 years.

TOMOAKI ADACHIFATHER OF JAPANESE CF PATIENT

TOMOAKI ADACHI[SPEAKING JAPANESE]


Timecode Video Dialogue

We are not legally permitted to use drug treatments that are being used in Europe, the U.S. and elsewhere. So, the situation in Japan is similar to that of the United States 30 years ago. The majority of patients with CF die in their teens.

01:56:27 ISABELTo learn that Mr. Adachi’s son never went to middle school or high school, or college, that is a personal story that shows me how Japanese CF patients live

01:56:40 ANABELTo see the malnourishment, the lack of any kind of expertise and vision of health. It just broke my heart.

01:56:52 ISABELTonight, it struck me, that these people don’t really have the choice of lung transplant, and for a second it hurt, what right do we have to still be alive, why are we still alive when, you know, most of the world’s CF patients don’t live. And so I was reminded, what would I be like in my life if I had no choice of transplant.

01:57:17 ANDREW BYRNESISA’S HUSBAND

ANDREWSince I’ve been with Isa, she has nearly passed away twice. The first time was the day before her 30th birthday in 2002.

01:57:27 ISABELI had had a massive life threatening lung bleed. And I was put in the hospital, I was on a ventilator, I lost a ton of blood, my lung capacity just dropped like 15 percent. I became oxygen dependent. I remember bleeding in the middle of the night, and then coughing into this bin that was filled with blood. And then somehow the nurses and doctors left, and I was in the room in the dark, and I started just crying and crying,


Timecode Video Dialoguelike this is it. What a miserable existence, I can’t breathe, and I’m gonna bleed to death. And of course, then I start thinking, if this bleeding stops, I’m going to get listed for a transplant, I’ll be eligible, and then I’m gonna get a transplant, and then I’m gonna be like Ana, and be able to hike and run and swim, and I might die in the process, but at least I’m trying. I wanted more time because, yes, 30 is a good life span, but it’s not enough.

01:58:22 ANDREW BYRNESIn early 2004, Isa went to the hospital at Stanford and she just wasn’t getting any better. This was something we had never experienced before, this wasn’t the usual, get sick, go to the hospital, get well, and leave. And so over the ensuing days she was really unable to get up.

01:58:42 DR. NOREEN HENIGTRANSPLANT & CF DOCTOR OF ANA & ISA

DR. NOREEN HENIGIt was incredibly touch and go and there was really nothing we could do to make it better. It was just always about hanging on.

01:58:52 ANDREWThe focus at that time was her oxygen saturation, 100 percent is perfect, and then obviously down from there, and that was sort of the measure, because if her lungs were really, really damaged, then even if she’s able to breathe in, if she’s not absorbing it, it doesn’t matter. I remember that there was one time where the saturation levels were very bad. She was so out of it, and sort of childlike in a certain way and so the respiratory therapist and I told her, oh, it’s, we didn’t tell her what the numbers were, we said, oh, it’s really, oh yeah, you’re doing great, you’re doing great. And it sort of was that environment where you knew, you knew that it was, that she was gonna die. And you wanted her to, to feel as good as she could feel and you wanted to tell her that it would be fine.

01:59:45 [MUSIC]01:59:51 ANDREW


Timecode Video DialogueI mean, she had this sort of tone of voice that was just this ethereal, it was her, but it wasn’t her saying that there would, there would be a miracle. That day, people started to arrive, my parents started to arrive, her parents, friends, family, in the waiting room we dubbed it camp Isa.

02:00:09 DR. NOREEN HENIGThey hung these beautiful prayer flags that you associate with Mount Everest climbers all over, and people had written these incredibly personal notes, and just this incredible love and commitment to her.

02:00:29 ANDREWIsa started to sort of run in place, she was laying down on her bed, but she was running in place, and calling out names of people who had passed away, and Ana and I were sort of huddled in the corner holding each other and crying, because it would seem to be that this was going to be it. We were waiting and praying and hoping for a transplant, which was not likely.

02:00:51 DR. NOREEN HENIGShe was not the first person on the list, and I was kind of told that and my heart sank, you know, because it seemed to incredibly close and yet it was so far.

02:01:03 ANDREWWe were preparing for a funeral, but hoping for a miracle. In the mid afternoon of that day, I went in, and I think Ana had gone in kind of with me, and Isa started, I mean, of course since she had CF, you know, the stuff, the junk and mucus continues to build up in your lungs, and so that needs to be cleared out, but if you, if you’re basically just laying there, then you can’t cough it out. So they were trying to suction her and there was something that was not going well with that, and so the doctors came in and kind of ushered us out, ushered Ana and me out.

02:01:42 ANDREW


Timecode Video DialogueAnd before we left, Ana told Isa, it’s okay, you don’t have to fight anymore. And Ana and I got into a big fight in the waiting room about that because I said, no, she has to fight, she has to. She has to fight, we have to be together. As we’re fighting, we see these doctors coming down the hall, and they said, we have lungs for Isa.

02:02:17 ON FEBRUARY 4th 2004XAVIER CERVANTESWAS PRONOUNCED BRAIN DEADAS A RESULT OF A CAR ACCIDENT

[MUSIC]

02:02:22 ISABELTwo months before he died he told his mother, if anything ever happens to me, I want to be an organ donor because I want to help people. And so she knew that when he had his car accident. And when his brain death diagnosis came, they knew what he wanted.

02:02:40 DR. BRUCE REITZTRANSPLANT SURGEON OF ANA & ISA

DR. BRUCE REITZWhen she actually went to the operating room, there’s no doubt, she was just within 12 hours or so of death. This probably more than any case I can remember was one where we were right on the edge of going either way.

02:02:55 ANDREWIn the morning at about seven or eight, they told us that the lungs had arrived, and they were gonna start the transplant and I went home to sleep a few hours. And when I got back, she had been transplanted. Now granted, she had tons of tubes and she looked like she had been hit by a truck, but she was pink, and she was breathing. And she never would have been that way had she not had the transplant.

01:03:24 [MUSIC]02:03:51 ISABEL

These are my favorite pictures. So at Stanford Hospital, after a lung transplant, you are invited to see your own lungs as a way of closure to


Timecode Video Dialoguesee what happened to them and kind of understand physically why you needed a transplant. And so ironically the room is called the gross room. And two weeks after my transplant I was wheeled over there and I got to see these grotesque, brown, crumbled, sliced up, scarred lungs that were grossly oversized because I had been breathing so hard. If I can show you the pictures. These are the pictures of my lung tissue and the pathology report said no evidence of functional lung tissue remaining. So I really was at the end of my life. There was nothing more I could have done.

02:04:47 ISABELI still identify as being someone with cystic fibrosis, this disease got me to where I am. Because of CF I needed a transplant, because of CF I still take lots of medication, I still have to limit my choices in life so I can be healthy in the long term. I still have this impending cloud of doom over my head, of when am I gonna die.[MUSIC]

02:05:24 ISABELSince I’ve lived with cystic fibrosis for 38 years, I feel like I’m a professional patient. Hi, I have an appointment for my annual, Isabel Stenzel Byrnes

02:05:34 WOMANYour last name please?

02:05:35 ISABELStenzel Byrnes.

02:05:37 WOMANThis is for a transplant?

02:05:38 ISABELYes, lung.

02:05:39 WOMANJust one moment.

02:05:40 ISABELThanks.

02:05:45 WOMANYou can have a seat, we’ll call you back shortly.

02:05:48 ISABEL


Timecode Video DialogueOkay. Okay, thank you very much.

02:05:54 ISABELWhen you’re a patient, the most important thing for a doctor and a nurse and a respiratory therapist is that you trust them.

02:06:02 WOMAN 02Your oxygen saturation’s at 100, your pulse is 70. Follow me.

02:06:11 NURSE 01Nice and clean, that looks alright.

02:06:16 [MUSIC]02:06:33 NURSE 02

Okay, no problems with heparin, right? Push down, push down.

02:06:51 ISABELSo, Jim, I’m kind of nervous, I hadn’t had a PFT in five months.

02:06:57 RESPIRATORY THERAPISTWe’ll get it. Big deep breath in, blow it out, further, further, further. Breathe in quick. Looks good to me.

02:07:09 ISA ISABELI went to the doctor for the first time after Japan and for some unknown reason, my lung capacity increased seven percent, so it’s now 123 percent of normal. And I don’t understand that.

02:07:23 DR. SHAF KESHAVJEEHEAD, THORACIC SURGERYTORONTO GENERAL HOSPITAL

DR. SHAF KESHAVJEEWhen you see what happened to the twins you realize that it’s a phenomenal miracle. These two people who would have been dead of their underlying lung disease have been given a new life. Transplantation is actually a very abnormal, or unusual solution to the problem of organ failure.

02:07:41 ANA ANABELIn 2006 I was jogging and I felt a little tight like I was having asthma. So I called my doctor and said, something doesn’t feel right, and can I get checked, and it turned out that I had acute rejection.

02:07:55 DR. DAVID WEILL DR. DAVID WEILL


Timecode Video DialogueTRANSPLANT & CF DOCTOR OF ANA & ISA

So she got to the point where her lung function started to decline, she got sicker and sicker, and then she looked very much like she did before her original transplant.

02:08:05 ISABELWhen Ana went into rejection it was really traumatic, because we realized that this is all so temporary

02:08:13 DR. SHAF KESHAVJEEOur lungs weren’t programmed to be taken out of one person and put into another person. And so when you do that the recipient will always see those lungs as foreign. So your immune system attacks those lungs and slowly, slowly attacks them over time.

02:08:31 ANABELIt was like suffocating, it was, my body couldn’t adjust to it. When I lost 70 percent of my lung capacity in eight months, I met Trent, who is now my fiancé. He never knew that two months into our relationship he’d be pushing me in a wheelchair. It was that fast.

02:08:48 DR. DAVID WEILLSo then we made the decision to do a re-transplant on her and a re-double lung transplant.

02:08:53 ANABELOn July 13th, 2007, I was called for my second transplant. Majority of people don‘t get second transplants. You can count them on your fingers and toes, it’s pretty rare.

02:09:06 DR. BRUCE REITZTRANSPLANT SURGEON OF ANA & ISA

DR. BRUCE REITZThe second one was more difficult for us, and I think was probably more difficult for Ana as well. Her will to live, her motivation was sky high, and enabled her to be a second lung transplant survivor, which is an elite group, that’s for sure.

02:09:23 ISABEL It seems unreal that Ana got a second transplant, because she went downhill so quickly, got her transplant again and went uphill so quickly, and went on with her normal life. We


Timecode Video Dialoguelearned that there will always be fear about what comes next, but when you’re aware of that fear, you realize that you cannot let it immobilize you

02:09:56 EUGENEOREGON

ANABELHi

02:09:57 KRISTINHi.

02:09:59 ANABELGood to see you.

02:10:05 ANABELI think it’s always meaningful to come to James’s hometown. When I’m here I feel his presence. Obviously I don’t have his lungs anymore, so there’s some mixed emotion, there’s some, truthfully, some shame about what happened, that I lost his lungs, but they will always hold a special place in my heart.

02:10:26 KRISTIN DORNJAMES’S SISTER

KRISTINI know Ana feels guilt, I’ve seen it in her emails, I know that. And I’ve told her over and over and over, she shouldn’t feel that way, but, it’s something she has internalized and you know, I guess only she can work that out.

02:10:42 ANABELYou gave me the best six years of my life, and I will always remember that, even on my death bed, whatever happens in the future that I’ve lived so hard for James and I climbed mountains, and I breathed at the top of a mountain with his lungs, and I felt it go to my feet when I took a deep breath, and I was nonstop, I, I think I took two naps in six years.

02:11:12 BETH MARTINSONJAMES’S SISTER

BETHI mean, look at what she’s accomplished with James’s lungs when she had them. How could we feel negative over the fact that it was a biological thing, nothing that she had any control over, just like she had no control over the cystic fibrosis. We donated his organs with no strings attached. There’s more out there than we know, and James was her bridge to get to where she is now. Thank you. And that’s


Timecode Video Dialoguewhat God needed right then was for her to have that bridge.

02:11:53 [MUSIC]02:11:58 KRISTIN

It’s not that hard to do what we did, and that it makes a huge difference.

02:12:05 BETHThey used his heart, his lungs, both his kidney’s, his liver, his pancreas, and the eyes, the cornea of the eyes. So, a lot.

02:12:20 [MUSIC]02:12:23 ANABEL

And I think it’s a little bit, somehow she had learned the name. They had mentioned that they are in contact with Doni, the pancreas recipient of James who happened to live in Maryland. Within three days of reaching out to her, we had it planned to meet.

02:12:41 ANABELI think I’m gonna ditch the sunglasses. I like to see who I’m seeing.

02:12:46 ANABELI was actually not nervous at all, I felt very open to it. I didn’t have any expectations. I felt very positive that this would be something good.

02:12:58 ISABELI think Ana was excited to meet Doni Bell, I think it was such a great connection to just be reunited with another part of James’s legacy.

02:13:08 ANABELHello.

02:13:09 DONNIEHi.

02:13:09 ANABELAre you Doni?

02:13:10 DONNIEHi, how are you? I am. Are you Ana? Hi, nice to meet you.

02:13:14 ANABELThere was just a lot of acceptance. I was in a mood of just going with the flow and learning as much as I could about Doni


Timecode Video Dialogue02:13:22 DONNIE

I think I’m gonna swim, I am, I just got my medical waiver cleared.

02:13:24 ISABELAwesome.

02:13:25 ANABELGood.

02:13:26 ISABELThat’s great.

02:13:27 ANABEL It means so much to the Dorns to have both of us correspond with them, and know that a part of James has lived on.

02:13:34 ANABELI had no doubt that meeting you would be this very comfortable easy connection and then of course, having James’s spirit in us, just feeling like wow, you know, this is like another sister. And my name’s Anabel, this is Isabel, and here’s Doni Bell, you know.

02:13:53 ANABELIsa and I invited Doni to go with us to the National Donor Memorial in Richmond, Virginia.

02:14:00 [MUSIC]02:14:19 ANABEL

In a way it was like a pilgrimage to a Mecca, because this is the place where our country gives tribute to all the people who have said yes to organ donation. And it’s a place to memorialize and remember and honor their gift of life. To be at the National Donor Memorial with Doni was unbelievable. Not a day goes by that I don’t think of my donors.

02:14:47 ANABELI wish I had a piece of paper and a pencil, to sketch it. Yeah.

02:14:55 ISABELDoni and Ana are friends because of James, and so, here is this person who no longer exists, he died 10 years ago, but because of his gift, and because of his story, Ana and Doni now have a story together.


Timecode Video Dialogue02:15:11 [MUSIC]02:15:16 ANABEL

In a way, James represents both my donors, because my second donor, I have no idea about this person, at all. In essence, both of them are similar, they both saved my life.

02:15:28 [MUSIC]02:15:36 ANNA MODLIN

CF PATIENTANNA The day that I got the phone call that I was on the list, um, I looked at my cell phone and it said withheld, and withheld means that it’s from Stanford, and I was like, oh, this is it. So I answered it and, um, the usual woman that’s supposed to call you wasn’t in that day and so it was a different nurse, and she’s like Is this Anna, and I was like yes, and she’s like, well, it came through, and the only thing I said, I was like holy shit, and I was like oh my God, I’m so sorry, I’m so sorry. [COUGHING]

02:16:09 ROBINOh, let’s get the tissue.

02:16:12 ANNAMy health in the last year has changed pretty drastically. My cough has gotten a lot deeper with the more intense lung disease it’s just, I cough and cough and cough till I can’t breathe and then you turn up the oxygen, take a deep breath and it’s just, it’s so exhausting. Talk amongst yourselves.

02:16:37 ROBINOkay.

02:16:39 ANNAI had to switch my means of therapy from using the vest, which I did independently to percussion therapy, which is where I’m dependent on another person to beat on my back to loosen up the mucus so that I can cough it out.

02:16:57 ROBIN MODLINANNA’S MOTHER

ROBINWe have to really beat hard, it’s like beating on a ketchup bottle. And so we’re back again where we were in the beginning.


Timecode Video Dialogue02:17:04 ANNA

My life exists as CF, that’s all it is at this point, is just treatments and medicines and eating and sleeping, that’s pretty much it. So that’s how you know when you need a transplant.

02:17:19 ROBINA year ago today I don’t think I would have thought that we were at the place of, of transplant where we are today. I knew the transplant was gonna be in the future, and I knew it was our great hope, but I didn’t know that it was gonna come so soon.

02:17:46 ANNASo what it means to be on the list, how they figure out who gets a transplant, is you’re divided up, not only by your blood type, because the way that they match lungs is blood type, as well as size, and then in terms of that, then they also go according to your lung allocation score, and your lung allocation score is anywhere from zero to 100. But there’s a certain window, which is called the transplant window, which is where you are sick enough to need a transplant, but healthy enough to survive a transplant. So you’re a good bet, that’s kind of what they want.

02:18:23 ANNASo with my score of 37.7, blah, blah, blah, that’s right in that window, it’s right in the sweet spot where I’m just sick enough where I need it, but I’m definitely not too sick where I’m not gonna survive it statistically speaking. So that’s where I am on the list. Sitting and waiting.

02:18:46 ROBINSo, the idea that we’re gonna go into another chapter, and there’s gonna be no more CF lungs because that is the center of CF, that has to do with all the treatments and the coughing and, and that’s not gonna be there anymore, that’s, that’s a huge, huge change.

02:19:12 ANABEL Hello. How are you?

02:19:18 ANNA


Timecode Video DialogueNow that I’m listed, the whole support network has to be put in place, including my family and surrounding friends, and Ana and Isa have volunteered that they will be there in that network. I was not in an acceptance of my illness last year. I was really fighting it, and really embarrassed by it. And like I failed. It’s actually more hopeful now then when I was a little bit healthier.

02:19:45 ANABEL Right.

02:19:45 ANNACause there’s actually a chance.

02:19:47 ISABELGetting a transplant is all about redemption, so you’re working your ass off right now, and you’re tired, but you’ve got to do your treatments, and you’ve got to eat, and you’ve got to go to the doctor, and take care of yourself, work so hard, both Robin and Anna, but my prayer and hope is that you will be redeemed by this life, where you get to complain about being tired because you’ve just been traveling too much.

02:20:16 ANABELWe’ve paid our dues by dealing with end stage CF, where air is so desired, and when you work through that and then you get rewarded by transplant, you can always look back and feel like you climbed that mountain and that you paid your dues and nobody can ever tell you….

02:20:35 ROBIN (interrupting)You deserve every bit of goodness that’s coming to you.

02:20:37 ANABELExactly.

02:20:38 ROBINYeah, and you do.

02:20:39 ANNAWhen you’re listed you kind of feel like you’re straddling a fence, because you’re hoping to go to the other side of transplant and not have this anymore, but you’re still fighting the day to day


Timecode Video Dialoguestruggle, because you can’t let up until it’s time.

02:20:56 ROSE PARADEPASADENA, CALIFORNIA

[MUSIC]

02:21:14 ANABEL Being at the Rose Parade for the Donate Life float, it always reminds me what an incredible fortunate society we have to celebrate the gift of life on such a national and international level.

02:21:29 ISABELThere were so many different people decorating who were donor families, recipients, volunteers. There was a tower of all the flora graphs, all the faces of people who died and gave life to recipients like us. For the last three years I have dedicated a rose to my donor, and also to Ana’s donor, just as an act of celebrating this moment.

02:21:59 [MUSIC]02:22:12 ANABEL

When I saw all of the riders on the float, it tells me that this is a gift of life that many, many people are experiencing and it is so deeply emotional and so deeply shared as a ying and yang experience of grief and hope and love and sadness.

02:22:34 ISABELToday it seems so celebratory, even the donor families are celebrating that their loved ones are remembered and 40 million people will watch them on TV. Their loved ones physically died, but through donation they continued to live in the hearts and minds of all of us.

02:22:53 [MUSIC]02:23:11 ISABEL

You know, Xavier would be 24 years old right now. That’s the prime of his life, he is in the upmost health in his health, in his cells, he is still growing with me. Every joy I have, every sorrow I have, he’s part of that journey.

02:23:31 ANA ANABELKnowing that it’s gonna be 10 years since the


Timecode Video Dialoguepassing of James Dorn, I think about where would he be now. He would be 39 years old. And so there’s a lot of mixed emotions as I go into this new decade of thinking wow, I wouldn’t be here without James, and I wouldn’t be here without my second donor, I’ve gained 10 years of the best, most fabulous party of my life.


I always definite happiness as not wanting a moment to end, and definitely the day of my wedding was a moment of incredible happiness where I just wish that time could just stand still. It was an incredible reunion of many of my friends and family from all walks of my life, I felt fabulous. And then just to walk down that aisle and see Trent there, it was just so beautiful.

02:24:27 PASTORWe come here on this splendid day to witness the marriage of Anabel Mariko Stenzel and Trent Wallace Jr.

02:24:36 ANABELTruthfully it is an absolutely privilege, and it would not have been possible without my donor families.

02:24:44 ISA ISABELAna’s wedding was absolutely perfect, and for me, I felt so happy that finally she would have a chance to have what I’ve had. She’s been waiting to have a partner in life. Everyone at the wedding really understood what a milestone it was because Ana had survived.

02:25:06 [MUSIC]02:25:09 ANABEL

I told myself at 28 when I got my first transplant, that I would love to live half my years with CF and half my years with transplant. My wedding was the most amazing gift of the ten year mark that I could ever, ever imagine, 18 more to go. I have my hopes up high and my prayers in line that that will be possible.

02:25:32 ISABELThe wedding wasn’t just about Ana and Trent,


Timecode Video Dialogueit’s about spreading this yearning for more life in all of these families. Anna Modlin was very sick in the hospital a few weeks earlier, and really had kind of come to the sickest place of her life.

02:25:51 ISABELI couldn’t believe it. This is my friend who was so vibrant and alive just a few months earlier.

01:25:57 ANABEL For her to make the effort to come to my wedding and to put the oxygen on, I certainly have immense love for her and hope that she will pull through enough to get a transplant. And it scares me to think that she might not survive if an organ is not found.

02:26:15 After waiting on the list for 119 days…Anna Modlin received a double lung transplant.

There are currently over 110,000 Americans waiting for organs.

[MUSIC]

02:26:29 ISABEL Organ donation is an extremely complicated personal topic. But I do believe firmly both in Japan and America, that story telling is how you change people. Make them start thinking about what this issue is really about.

02:26:48 ISABEL Stories can make people truly understand what is going on in this small little segment of society. So that there can be change.

02:26:59 In 2010, there were thirty-twobrain dead donors in Japan.

Twenty-nine of them

[MUSIC]


Timecode Video Dialoguecame after the revised organ transplant law was enacted in July.

02:27:07 ANABELChange takes stories and change takes effort. Before I was very apprehensive of being so public, but now I see it as an opportunity to touch people’s lives.

02:27:23 Ana & Isa continue to breathe, live and thrive with their new lungs.

[MUSIC]

02:27:30 BEGINNING END CREDITSDirected & Produced by

Marc SmolowitzProduced by

Andrew ByrnesExecutive Producer

Chris KellyDirector Of Photography

Nickolas RossiEditors

Matthew SultanThomas Eugene Green

Art DirectorTimothy PalmerMusic Supervisor

Nicole Dionne,Primal Scream Music

Music byKyle Moorman

Tim EastonMusic EditorJoe Corcoran

Associate ProducerJennifer Schmidt

Special thanks to Anabel Mariko Stenzel and Isa Yuriko Stenzel Byrnes, whose kindness, patience, and willingness to open up their lives to the camera made this film delightful to

make.CREDIT ROLL

Associate Producers


Timecode Video DialogueNaomi Takeuchi

Dan Roth

Production ManagerMatthew Rome

Assistant Editor & Second CameraYasufumi Higuchi

Post Production Associate & Social Media CoordinatorKirsten Incorvaia

Assistant EditorYuko Inatsuki

Audio Post Production ServicesBerke Sound, San Francisco

Sound MixerMark Escott

Color FinishingGary Coates

Cinematographer, TorontoAaron Szimanski

Additional CinematographersMatthew Rome

Dana ShawCarl SturgessWilfred Galila

Assistant to the Director, JapanAshley Ryan Arnwine

Production Assistant, JapanChika Konishi

Production Assistants, Wilfred GalilaNorth America

David McAdamsDana Shaw


Timecode Video DialogueMarch StormCarl Sturgess

Nico Van den bergIan Wolfley

Web DeveloperJustin Mahon, Mahon Media

Graphic DesignMarcy Rye, Wire Media Communications

Megan Tingstrom

Fundraising & Event ConsultantsJill Shiraki

Don Spradlin

Music ClearancesDavid RichJanet Billig

Transcription ServicesAverbach Transcription

Legal ServicesLaw Offices of Jamie Cooperstein

AccountingEllis Brenner, C.P.A.

Fiscal SponsorshipSan Francisco Film Society Center for Media Change

With support from the San Francisco Film Society, San Francisco Film Commission &FilmHouse

SFFS LOGO] [SFFC LOGO]FEATURING

(in order of appearance)Anabel “Ana” Stenzel

Isabel “Isa” Stenzel ByrnesHatsuko Stenzel

Dr. Francis CollinsDr. Howard Koh

Carol Hutchison Wyatt


Timecode Video DialogueAndrew ByrnesAnna ModlinRobin ModlinKristin Dorn

Beth MartinsonJanice Compton

Dr. Noreen HenigDr. Shaf KeshavjeeChigusa Yamaguchi

Taro KonoDr. Tomoaki Kato

Dr. Kazutomo MinamiDr. Satoshi Teraoka

Namie NakazawaMichikata OhkuboKazuyuki TanakaTomoaki AdachiMitsutoshi AmbeDr. Bruce ReitzDr. David Weill

Doni BellElizabeth MillerCarol Barriger

Washington, D.C. Advocacy TourCorinna Dan

Rep. Mike HondaYul Kwon

Rep. Zoe Lofgren

Isa’s WeddingRev. D. Maurice Charles

Danielle MatthewCaroline Reese Snavely

Reiner Stenzel

Lung Transplant Support GroupBreanna Mompean

Dan LagasseJerry MacKay

Heather EmmertJoshua Mompean

Linda MacKay


Timecode Video DialogueLindsay MulicStacey Collver

Organ Donors of Ana & IsaJames Dorn

Xavier CervantesAna’s Second Donor (Name Unknown)

cystic fibrosis TributeSandra Ayala

Karen BellKerry Canavan

Kelly ColganTony DiprofioBob FlanaganEmily Haager

Christina MillerElizabeth NashMichele OlsonSiobhan Ryan

Charlie StockleyHayley Wester

cystic fibrosis CampersBryan AccursoJoe Batchelder

Allison BestTerry Bomar

Kristi BurnhamKelly ColganKelly Collins

Desiree ContrerasRachel Crocker

Julie Dias-ArcherAlisa Evans

Jenn Nelson HardisterLori Hickey

Katrina HowellDarren Johst

Dr. Jonah KramerSteve Kusalo

Kaeti Pierce LillibridgeDanny Martinez


Timecode Video DialogueNicole R. Meyeraan

Anna ModlinDave MooreJenny NelsonTerry Nelson

Stephanie PetersonJereme PierceScott Pinner

Siobhan RyanRosa Sanchez

Christen SchmallChristine Smith

Ana StenzelIsa Stenzel Byrnes

Sean TelfordTara Telford

Dr. Juro WadaJosh Wagner

Keegan WahlerAaron Waldrum

Japanese Transplant FundraisersSave Yuichi-Kun (Yuichi-kun wo Suku Kai)

Stanford Medical Center PersonnelJim Harvey

Mary MartelRowan (nurse doing vitals) 01:05:32:13

Rosie (front clerk) 01:05:27:17(nurse taking blood pressure)

(nurse flushing port - Angela?)

UNOS/National Donor MemorialJonathan Alford

Kimberly BetancourtGeorge Franklin

Lolly GilmoreMelissa P. LaneAnne PaschkeFreda Wilkens

Ana’s WeddingJennifer Bojanowski


Timecode Video DialogueJoi Spencer

Naomi TakeuchiTrent Wallace

Other AppearancesAkihiro Adachi

Rumiko AoyamaTazuko ArimaYuzo Arima

Patrick BairdCecilia BanuelasCarol Barriger

Rivian BellStephen BoyerCraig Buckser

Ian BullockLarry Byrnes

Margaret ByrnesGrace Chang

Michelle ComptonDonate Life Rose Parade 2010 Float Riders & Decorators

Christa FarmerFay Farrow

Britta HirschFranziska Hirsch

Pia HirschLillian Hom

Marilyn HomShamira Kotadia

Ben LaRoccaJane LoiselleTaka Maeda

Michael MarkmanTom Martin

Jessica MeyersMiyagi Gakuin Women’s University Choir

Doug ModlinSara Modlin

Rachael MoralesYushi Nomura

Melissa PetersonEverett Darius Rice

Robert Rohde


Timecode Video DialogueVirginia RosasAllyson Rupp

Andreas Ryuta StenzelNaomi TakeuchiMari Tanagawa

Rie UenoJulia WoolfTony Woolf

ATTENDEES AT THE FOLLOWING EVENTSGreen Ribbon Running Festival, Tokyo, Oct. 2009

Japan Transplant Games, Fukuoka, Oct. 20092010 NKF Transplant Games, Madison, WI, Summer 2010

Wedding of Ana Stenzel & Trent Wallace, June 2010Wedding of Isa Stenzel Byrnes & Andrew Byrnes, June 1998

SPONSORS & DONORSAngel Sponsor

Dr. Paul and Mrs. Hisako TerasakiTriumph SponsorXVIVO Perfusion

Hope SponsorsGilead Sciences

Chris Kelly & Jennifer CarricoFriend SponsorsFrancine Berry

Francine & Joel BionLarry & Margaret Byrnes

California Transplant Donor NetworkMolly & Bob Haslam

LifeStarsDavid McAdams

OneLegacyPerkins Coie LLPPhoton Creative

Reiner & Hatsuko StenzelSupporter SponsorsA-Med Health Care

APT Pharmaceuticals, Inc.Juichi & Yoko Arima

The Benrey FamilyJack Black & Tanya Haden

Theresa BoteilhoSally & James ChaMichelle Compton


Timecode Video DialogueAnn & Chris Creed

cystic fibrosis Pharmacy Inc. & Freedom PharmacyBrian & Pat Dowling

Ramona DoyleDPA Microphones

Judith DubinLaura Farach & Philip StrassleRobert Fram & Jeanne Blamey

GenentechTom & Terry Glennon

International Transplant Nurses SocietyJoseph Kanfer

Carelle & Mahmood KarimimaneshKatz Family Foundation

Ed & Kay KinneyReena KuyperKwality Media

Sandra Lee & John ChangMaja Lichtenfeld

Living Breath FoundationJim & Jane Loiselle

Cheryl & Michael MarkmanDavid & Martha Martin

MMT Holdings, LLCRobin & Doug Modlin

Thomas MoneJ.F. Oberlin University

Orrick Herrington & Sutcliffe LLPArdith & Mike Plimack

Dr. Ellen PorzigQuality Education Associates

Dr. Bruce & Nan ReitzDrs. Rick & Rosa Rosen

SafewaySteven & Gail Shak

Stanford Hospital & ClinicsRyuta Stenzel & Chie Yao

Nitin SubhedarTarget

Team Nor Cal, 2010 NKF U.S. Transplant GamesTesla MotorsAnn WilsonJulia Woolf


Timecode Video DialogueStanley Young & Hyun Sook Park

Other DonorsMarvin & Helen Adelberg

Alyse AdlerTodd Adler

Adult cystic fibrosis Center of JacksonvilleAnnie Aft

Cathy AkiyamaRoy & Julie Ames

Eugene & Soonyoung AnMary AndertonLaura Annick

Ellen AnselAnthony Diprofio Foundation

Anne ArnoldMary Austin

Michael & Cathy AydelottGregory BaigentElizabeth Bailey

Nancy BainDarrell & Darlene Batchelder

Vivien BenjaminMark & Deana Bergquist

Celia BernsteinSallie & John BestJosh Bettenhausen

The Black KeysDan AuerbachPatrick Carney

Ryan HarringtonIan Blackburn

Lisa BlochBlooming Rose Foundation

Jennifer BojanowskiLara BorowskiStephen Boyer

Brigitte Brady-HarrisBreathe California

Ellis & Julie BrennerSherry Bright

Art BrodyCraig & Heather Buckser

Jane Buechel & Zelek Herman


Timecode Video DialogueConstance Bullock

Linda & Tim BurksCraig & Jackie Burleigh

Kurt & Donna CaliaConnie Cameron

Jo Dale Carothers & Jeff RodriguezMargret Caruso & Ron Turiello

Deborah CasanovaLisa Cassinis

Howard ChangJennifer Chen

Theodore ChenChris ChiarelloStephen ChienCarol Chivers

Tiffany ChristensenJoanie Ciardelli

Cinnabar Hills Golf ClubKathy ClarkLeslie Clark

Einat & Jeff ClarkeMartin & Barbara Cleary

Dan & Jude ClementPatricia CollinsDiana ComptonCarol Conrad

Mary ConventoMary CoreyMolly Corey

Jennifer CornellEarle Crandall

David & Bonnie CummingsBarbara & Jim Curry

John DaigreLinda & Frank Damon

In honor of “my donor, Debbie”Richard DeNagel

M. Alexia dePottere-SmithDr. Julie DeschNicole Dionne

Christopher DraperKen Ebanks & Suzanne Abele-Ebanks

Brad Ellis & Eydie Alyson


Timecode Video DialogueBob Emmelkamp

Samuel ErnstDonna EstomagoNatalie ForoodWendy FengAlanah Fink

Kaye & Ray FitzsimonsKate Forrest

Ralph FrammolinoMaria & Aaron Frankel

Karol FranksJake Freed & Hiroko Nakamura

Pam FrerichsReri FujimuraRose Gilbert

Stuart Glauberman & Sheri Regal GlaubermanMichelle Gleeson

Gary GoberJon & Susan Golden

Susan & Raymond GoldenDanielle Goldstein

Eric Goodman & Julie GoldsteinThomas & Kathryn Green

Lisa GreeneMarcie Groesbeck & Bryan Hecht

Grossman & CotterDiana Guth

John & Dr. Jean HanleyCraig & Kari HansonJames & Terri Harrah

Christine HaskettHawaiian Donor Family Council

Robert HazyAndrew Henderson

David & Noreen HenigAnnette Hipona

Britta & Ed HirschEdward & Sally Hirsch

Katherine & Grant HollandCharles Hoopes

Don HorsleyHotel Kabuki

Rod & Linda Hsiao


Timecode Video DialoguePeter Hwang

Stephanie IseriCatherine IwakiAshley Jacobs

Catherine JacobsBill & Danielle James

Carroll JenkinsBurt & Mary Jones

Peggy JonesJulie Judge

Kabuki Springs & SpaD.J. Kaley

Charlie Kanturek & Cathy OlmoMarcia Katz

Barry Kendall & Mirit CohenJohn Kerner

Bradley KesdenLena Ketabgian

Linda KimKimpton HotelsJessica Klinger

James & Sandra KnoxTim KobayashiKerry KodairAlan KondoMartin Krell

Deanna KwongLila LaHoodLisa Landa

Alexander LapeyreDody Lapworth

LearnAboutWine.comLegacy of Life Hawai’i

Sally LieberNancy & Hal LonhartAlan & Helen Lowy

Linda LubeckJade Luber

Jerry & Linda MacKayMariko Magami

Maggie’s Miracle MakersJeffery & Karen Mallison

Dave Mandelkern


Timecode Video DialogueAnne Marsh & Nikole Neidlinger

Jessica MartensCasey Martin & Anna Modlin

Guillemette MartinTom Martin

Debra MarzakDavid Masci & Emily Leonard

Susan MastersIngrid Mathieu

Kayo MatsumuraMari MatsumuraThe Mau Family

Lowell MeadMed Systems

Betty MednickSarah Mellman

MicrosoftErik Milch

Amy MillingtonJohn & Kristine Mogen

Brenda MoreyRobert & Cheryl MossJill & Michael Murray

Mustard Seed Market & CafeJen MyronukAmy Nader

Carole NakamuraChristine Nash

James & Ann NashCharles NelsonTerry NelsonBelinda Ng

Mark NicollsHotel Nikko

Burr & Sue NissenEiko Nobel

Jeannine NobrigaJill Nolen

Michael & Judy NolenMelissa NordquistKelly O’ConnorStephen Ogden

Yasushi & Masako Ohnuki


Timecode Video DialogueGordon Owens

Chris & Lori PappageorgasRachel PearsonRobert Peirson

Daniel & Janie PerezBrian Perkins

Perkins Coie LLP (Madison)Barbara Peterson

Missy, Sara & Bill PetersonDave & Jane Pine

Judy PoutrePrinciples Group

Diana ReddyRenaissance Stanford Court Hotel

John RobertsStephen Robins

Ann & Rob RobinsonVirginia E. Rosas

Pat RoseEric Rosenblum & Titi Liu

Jannette RossJoe Ross

Marta & Vladimir RothHiroko Sakiyama

Brian & Vicki SchmanskeJennifer Schmidt

Mike & Sue SchmidtNanette Schneir

Sandy SchumacherGregory Shay

Clint SherbondyJill Shiraki

Judith ShmueliThe Simonsen FamilyDeborah Silverman

Marilyn SmartGeorge & Masako Smith

SpeeseesJoi Spencer

SPI West Port, Inc.Kamaldeep Tumkur Srinath

Ramji SrinivasanPeter Staley


Timecode Video DialogueStanford Taiko

Anthony StearnsMac & Kazuko Stearns

Louis SteeleJudith Stein

Lenore Stein & William WoodFlorian Stenzel

Robert & Rochelle StoneSunny Sun

Naomi TakeuchiJennifer Taylor-CousarEkkie Tepsupornchai

Graeme Thom“In memory of Thomas”Andrea & Lloyd Thomas

Monet ThomsonTotal Serenity & Rosalind Guerrero

Amy ToroEunice Tsai & David Scott

Linda UyechiSiri Vaeth & Geoffrey Dunn

Tiffany & Roger Van AlstAmy Van Zant

Roozan VarteressianStephen Venuto & Amy Paye

Volunteers In AsiaJosh Wagner

Marlene WagnerPrentiss Trent Wallace, Jr.

Gary WarburtonDr. David WeillGloria Welles

Judith & Alan WesterC. Ann White

Michael WickeyMarlene & Jeff Wine

Lauren WitcoffSharon Wong

Alan & Miyoko WoolmanGail WorkPaul YangRene Yco

Steven Yoda


Timecode Video DialogueDaniel Yost & Paul Brody

Russell ZukinCOMMUNITY PARTNERS

Asian Americans for Community InvolvementAsian Law Alliance

Association of Organ Procurement OrganizationsBlooming Rose FoundationBoomer Esiason Foundation

Breathe CaliforniaBreathing Room

California Transplant Donor NetworkChris Klug Foundation/Donor Dudes

cystic fibrosis Association of New Zealandcystic fibrosis Research, Inc.

cystic fibrosis Services Pharmacycystic fibrosis Worldwide

Cystic LifeDonate Life AmericaDonate Life Arizona

Donate Life CaliforniaDonate Life HollywoodDonate Life San Diego

Donate Life South CarolinaDonor Network of ArizonaElizabeth Nash Foundation

Genetic AllianceGolden State Donor ServicesJapan cystic fibrosis Network

Japan Transplant Recipients OrganizationJapanese American Bar Association

Japanese Cultural & Community Center of Northern CaliforniaJapantown Community Congress of San Jose

LifePoint, Inc.Lifesharing

Lung Transplant FoundationMiracles for Life

Oakland Fukuoka Sister City AssociationOneLegacy

Rock CF FoundationSecond Wind Lung Transplant Association, Inc.

Transplant BuddiesTransplant Recipients International Organization (TRIO)

TRIO - Akron/Canton, Ohio Chapter


Timecode Video DialogueUnited Network for Organ Sharing

United States Adult cystic fibrosis Association, Inc.Volunteers in Asia

ADVISORY BOARDCharles Baker

Wanda BershenDr. Jason ChristieAdam Dornbusch

Brad EllisDr. Sommer GentryElliott GreenbergerDavid Evan HarrisRep. Mike HondaDr. Tomoaki KatoDr. Marcia Katz

Chris KelleyYul Kwon

Dr. Susanna McColleyJillian MisrackThomas Mone

Michikata OhkuboCathy Olmo

Dr. Bruce ReitzJ.T. Rhodes

Dr. Dorry SegevTenaya Wallace

Beth Iams WellmanDr. Jeffrey WineKyoko Yoshida

FILMED ON LOCATIONNorth America

Bethesda, Marylandcystic fibrosis Foundation

National Institutes of HealthBeverly Hills, CaliforniaPaley Center for Media

Eugene, OregonFredericksburg, Virginia

Fremont, CaliforniaArdenwood Historic Farm

Hayward, CaliforniaChabot College


Timecode Video DialogueLos Angeles, California

Madison, WisconsinUniversity of WisconsinMenlo Park, California

Orrick, Herrington & Sutcliffe, LLPVallombrosa CenterPasadena, California

Rose BowlRedwood City, California

Richmond, VirginiaNational Donor Memorial

United Network for Organ SharingSan Francisco, California

AT&T ParkCrissy Field

Palace of Fine ArtsStanford, California

Stanford Medical CenterStanford University

Sunnyvale, CaliforniaToronto, Ontario, CanadaToronto General Hospital

Washington, D.C.Ben's Chili Bowl

Department of CommerceDepartment of Health & Human Services

Johnson & JohnsonLandmark E-Street Cinema

National MallU.S. Capitol

JapanFukuokaHakata

Fukuoka Community Sports CenterKawasaki

St. Marianna University School of Medicine HospitalKobe

Foundation for Biomedical Research & InnovationKobe Medical School

Riken Kobe Institute Center for Developmental BiologyKyoto

Nursing School of Kyoto Medical AssociationNara


Timecode Video DialogueTodaiji Temple

OkinawaTedako Hall

University of the RyukyusOsaka

Osaka University Medical SchoolSendai

Miyagi Gakuin Women’s UniversityTokyo

Akasaka Community CenterFriends Quaker School

Hosei UniversityJ.F. Oberlin University

Keio UniversityNational Diet of Japan

Orrick, Herrington & Sutcliffe LLPTokyo FM

Tokyo National StadiumYanagawa

Yanagawa canalsYokohama

ACKNOWLEDGMENTSActivision

Active VoiceMayumi Adachi

Annie AftHiroyuki Aihara

Nizam AliAkron Art MuseumAkron Film Society

Jane AlbrechtRick Allen

Stacy Alvarez-UnderwoodHaleh Ameli

Mikey AnthonyRumiko AoyamaJonathan Archer

Art Institute of California, San FranciscoAsian Law Caucus

Audee HolmanTiti Liu

Asian Pacific Islander American Health ForumLloyd Asato


Timecode Video DialogueDeanna Jang

Association of Asian Pacific Community Health OrganizationsCorinna DanJenn TamayoKim Aubry

The Austin Law GroupAlex Austin

AvalonMichael Aydelott

Alina AzizianMiryam Mora Barajas

John BarteltJohn BarterLee Becker

Norman BeilBelle Marie Winery

Jeff LazenbyLaurent Benchana

Benihana RestaurantBen's Chili Bowl

Adam BerkFrancine BionZane Blaney

Arianna BoccoLara Borowski

Breathe CaliforniaLinda Civitello Joy

Jim KernsDavid Low

Nicole VillanuevaJoe Brilliant

Caroline BrownBen BrunettiLinda Burks

David BurrutoValerie Bush

Brandon ButtrickLarry & Margaret Byrnes

Rupie Giles ByrnesJerry Cahill

California Transplant Donor NetworkAyanna Anderson

Kathy Clark


Timecode Video DialogueTrace’e Harris

Nikole NeidlingerCathy Olmo

Eugene OsborneGwenn Silva

Sharon SwainPaula Valle

Yu CaoCarol CapeceMarc Cellucci

Alan ChanHenry Chen

Jennifer ChiuChurchkey

Megan ScottDr. Linda Hawes Clever

David CohnPatricia Collins

Committee To Enable cystic fibrosis Treatment (Japan)Diana Compton

Michelle ComptonCongressional Asian Pacific American Caucus

Gloria ChanConstellation Wines

Mary ConventoCorporation for International Business

Jacqueline DalgleishJennifer CowanKaitlyn Crump

Barbara & Jim Currycystic fibrosis Foundation

Dr. Robert BeallMary DwightLaurie FinkDean Greer

Stephanie Krenrichcystic fibrosis Foundation Northern California Chapter

Cathi Connellycystic fibrosis Research, Inc.

Carroll JenkinsDavid Soohoo

cystic fibrosis Services PharmacyEdmond Grantham


Timecode Video DialogueDan Klein

Sherry Mirshahi TottenDataSafeR

obin LombardMary DavisAmy Dax

Trina DeakinJohn Dean

Micaela Gutierrez DelcamposJoy Demas

Rich DeNagelJulie Desch

Donate Life HollywoodChristopher Sariego

Tenaya WallaceBeverly Donelson

Katherine DoolittleSandi DuBowskiJack Dubowsky

Duxinaro Wine CompanyKat East

Vaughn EdelsonAndrea Eisenman

El Mundo Bueno StudiosEytan Elterman

Embassy of the United States of America In JapanHon. John Roos

Mieczyslaw BoduszynskiBart Cobbs

Mikako SanoPeter Emerson

Cendru EngstromSid Espinosa

Jonathan EstrinJennifer Fan

Holly FechnerPaul Feld

Kristina FelicianoAlanah Fink

Cathy FischerJoel FinkelsteinDavid FlemingKathleen Flynn


Timecode Video DialogueKathryn FlynnJörg Fockele

Kate FolbFoundation of Biomedical Research & Innovation

Dr. Koichi TanakaMichael Fox

Elena FrancoisElise Francois-BerkleyFriends Quaker School

Full Circle FundReri Fujimura

Ben FullerEmily Patzer Fuller

Jon FunabikiMary GanikosChris Geidner

Ginny GidiMiles GilburneCarol Gillespie

Jim GleasonClint Goldman

Amanda GoodwinBruce GottfredsonGPS Connections

Margaret BaggerlyNorma KropelnickiKate Sullivan Green

Reg GreenSam Green

Richard GrehanDan HabibLiz Hackett

Kenzo HakutaKeiko Harada

Miyoko HaradaJohn Wm. Hart III Insurance Agency

John HartSarah Legan

Daniel HeimpelJudith HelfandDiana Heppe

Laura Leigh HofrichterHomare Foods


Timecode Video DialogueMichiko Tanno

Office of Congressman Mike HondaMeina BanhMari MabenMike Nguyen

Jennifer Van Der HeideHosei UniversityKohei Onozaki

Naohiro TanakaMark Hovarth

Phoebe HowardHoward University Hospital

Dr. Clive CallenderTiffany Craggette

Daisy DiazR.J. Harris

Gabriel IveyLinda Idris Suleiman

Patricia TolsonScott Hoyt

Eric HymanKaori IkedaMorgan Ilika

Anne ImMichael Imbroscio

IntellisoundDavid Maier

Momoko IshidaIwanami Shoten Publisher

Reina AsabaMisako Oyama

Naoki Nicholas IwataJapan Donor Family Club

Yoko MazawaJapan Organ Transplant Network

Juntaro AshikariYoko Iba

Japan Tour VolunteersJapan Transplant Future Project

Noboru YamamotoJapan Transplant Recipients Organization

Shunsuke IsoMichikata Ohkubo


Timecode Video DialogueHiroshi Shimono

Japan Transplant Support OrganizationNobutoshi HaniokaKazuko Takahashi

Alex JenkinsJ.F. Oberlin University

Kurumi AdachiDr. Bruce Batten

Yukiko EbaraHideki Matsudo

Dr. Toshihiko MogiAtsushi NagaokaMasaya Usuda

Jack Johnson ToursAndy JohnsonMark JohnsonJennifer JulianNathan Kaiser

Sandy KajiyamaYuko Kakumu

Khalida KareemiBeth Kassalen

Yoshika KawaguchiCathryn Berger Kaye

Adam KeigwinKeio University

Dr. Etsuko SoedaJonathan King

Ed KinneyRichard KipnisNathan Kitada

Ro KhannaNathan KitadaJessica Klinger

Kobe International Medical FoundationTakao Hino

Kuninobu YajimaKobe University Graduate School of Medicine

Dr. Ai IsohisaYoshitaka Sakoda

Dr. Rie UenoMel Kotlyar

Wataru Kousaka


Timecode Video DialogueAshley Kravitz

Kristi Yamaguchi’s Always Dream FoundationKatie Kurtz

The Nursing School of Kyoto Medica AssociationLandmark E-Street Cinema

Sarah ArmstrongMichael Lapides

Lexi LebanRobert Lenhard

Sirr LessMichael LevinMichelle LewHalycon Liew

LifeStarsEileen Coccia

Marcie WaldronLive Artists Have To Eat

Clive PromhowsGina Locurcio

Office of Congresswoman Zoe LofgrenKathleen Collins

Pedro RibeiroSandra Soto

Monica SwintzMaggie Loiselle & Seth Keever

Delia LopezSara LopezIgor Lotsvin

Michael LumpkinLung Gathering Participants at 2010 NKF U.S. Transplant Games

Assemblywoman Fiona MaMahoko KuramasuLaurie MacMillan

Ted MallisonJenny MarshallJessica MartensDavid MartinTom Martin

Glen MatsukiMari MatsumuraTakashi MatsuokaShirley McAdams

Elise McCave


Timecode Video DialogueScott McCoy

Brandon McFarlandKathleen McInnis

Islay McLeodRick McKennaTony McNicolGreg McQuaid

Dr. Robert MendezKristine Meredith

Dawn MillerAmy MillingtonHiroki Minaki

Miraglia CateringMike MiragliaMari Miyachi

Miyagi Gakuin Women's UniversityDr. Tomoaki AdachiMisako HatayamaMegumi Miyazawa

Monona Terrace Community and Convention CenterRod MacDonald

Meg StatzAllan Moore

Rick MordesovichErika Moritsugu

Rear Admiral (Ret.) Kenneth MoritgusuJennifer Morris

Sean MuramatsuCarl Nadler

Carole NakamuraAugust Napoli

Jim & Ann NashChristine Nash

National Agency for the Advancement of Sports and HealthKazunori Azami

National Institutes of HealthJoe Balintfy

John BurklowMichael ErdosCalvin JacksonGretchen Wood

National Kidney FoundationDenise Devlin


Timecode Video DialogueStephanie Gross

Anthony GucciardoClaudia HenryGigi PolitoskiEllie Schlam

Dawn WilliamsJohn Nein

Joshua NelsonDamien Neuberger

Dee Dee NguyenSharon NicholsChristine Noke

Tamon NorimotoAnne Wyak Norris

The Nursing School of Kyoto Medical AssociationKazuko Tamai

Shigeko YamaguchiMelanie Nutter

Jessica OcheltreeMinoru OhmuraMasako OhnukiDennis O’Keefe

Rebecca O’KeefeOkinawa Social Welfare Association

Seiichi InohaOkinawa Times

Natsumi HirashimaOneLegacyRivian Bell

Elena de la CruzSabrina Ho

Georges Abou KhalilTom Mone

Christopher SariegoBryan Stewart

Tenaya WallaceKari Williams

Margaret WylieOrgans R Us

Dr. Jeff ShapiroOrrick, Herrington & Sutcliffe LLP

Gillian ArnoldNellis Freeman


Timecode Video DialogueStephen Venuto

Serge VerkhovskyDaniel Yost

Osaka University Graduate School of MedicineDr. Norihide Fukushima

Dr. Taigo KatoKarlina Ott

Daniel M. OwenRaj Padmanabhan

Mary, Seth & Reese PalmerBea Pangilinan

Perkins Coie LLPJeff Bowen

Kathleen BrieskeTruscenialyn Brooks

Al CornishLissa Koop

Michelle UmbergerSarah Walkenhorst

Sir WilliamsJeff Perlstein

Lilyanna PeyserArt PhelanRise Pine

Nate PinkstonHal PlotkinCarol PooleKip Pownall

The Prayer Flag ProjectMelahat RafieiOscar RamirezEmily Rhodes

Riken Center for Developmental BiologyDr. Douglas Sipp

Mary Ann RinkleffSteve Robins

Ann RobinsonKathryn Roethel

Corey RogersMace Rosenstein

Gabriel RothPeggy Saika

Junichi Sakamoto


Timecode Video DialogueSam & Silvia

San Francisco Film SocietyMichael BehrensSarah Cathers

Sara DosaHilary Hart

Steven JenkinsAthena Kalkopoulou

Graham LeggatRachel RosenLinda Tracey

Michele Turnure-SalleoMarlisha Walton

San Francisco GiantsErin Reilly

Roopal SaranJill SattingerJack Schaefer

Lola Mae SchaeferEmily Schaller

Brian & Vicki SchmanskeJ.P. Schnapper-Casteras

Ellen SchneiderJoanne Schum

Sandy SchumacherLiane Scott

Kevin SeamanNaomi SeligmanCourtney Sexton

Ronnie & Mandi SharpeKerry Sheehan

Maggie SheehanKristin Shelton

Linz SheltonAaron SiegelHonda Simon

Robert & Gabriel SimonDouglas Sipp

Matthew SlutskyPeter Slutsky

Candace L. SmithErik Smith

Rebecca Smith


Timecode Video DialogueMaura SolomonKelly Spruiell

Stanford Alumni AssociationClaudia Winkelman

Stanford Hospital & ClinicsLiat Kobza

Gary MigdolSara Mink

Nancy NevarezEric Williams

Stanford in WashingtonNell Selander

Stanford UniversityJack HubbardThomas StarrLisa SteidingToho Stella

Andreas Ryuta StenzelSt. Marianna University Hospital School of Medicine

Yoshimichi SunazukaAllison Stockley

Chris StoneAudrey Sasso Stout

Hiroki SuetsunaJennifer SuttlemyreMiwa & Kenji Suwa

Lea SuzukiSonya Swinton

Brian TackeSophie Tan

Michiko TanakaSachi Tanegashima

M’lis TarggartDr. Yusaku Tazawa

Team NorCal, 2010 NKF U.S. Transplant GamesJ.P. Tengco

Arienne ThompsonEmy ThurberLaura TillmanJanet Tobias

Tokyo ShimbunSawako KusanagiShinichi Tanaka


Timecode Video DialogueTokyo Women’s Medical University

Dr. Kayoko SaitoJason TongenTrader Joe’s

Transplant Recipients International Organization (TRIO) JapanYushi Nomura

Truman Van Dyke Co.Mike Groner

Kent HamiltonDeron Tse

Bob TwomeyKazuko Ueda

Uncorked Wine BarU.S. Department of Commerce

Secretary Gary LockeAzra Husejnovic

Esther LeeVictoria Tung

U.S. Department of Health & Human ServicesDinah BemboTara Broido

Jennifer BuschickRebecca LeeSophie Tan

University Health Network, TorontoNicole Bodnar

Laura BortolamiolPaul ChartrandChristian CoteGillian Howard

Alexandra RadkewyczAnnette Remmes

University of Missouri PressUniversity of the Ryukyus

Dr. Jiro FujitaDr. Maki TamayoseMabek Valdiviezo

Valley Expo & DisplaysKate Van Sprange

Video-Gram Participants in Hillsborough, Madison & Pacific PalisadesThe Village Recorder Studio

Venu VittaladevuniViva Transplantation


Timecode Video DialogueHarue Kimura

VIZ CinemaManami Iiboshi

Hiromi MakepeaceNorbert von der Groeben

Lois VossenStacey WagnerStephan Wahl

Marcie Becker WaldronKay & Eric Walker

Shiyo WatanabeLauren Wechsler

Stephen WeiswasserHolly Werlein

Veronica WetmoreEstelle J Willard

Lori Matoba WunXVIVO Perfusion

Chris JaynesMary Pohl

Luna YamatoKoichi Yamauchi

Yanagawa Kanko Kaihatsu Kabushiki KaishaKen YeagerSteve Yoda

Dr. Brad ZlotnickCaroline Zlotnick

MUSIC LICENSING DETAIL"Skyscraper"

Performed by Juliette CommagereWritten by Juliette Commagere

Used with permission of Half-Mexican Music (ASCAP)Courtesy of Aeronaut Records

"The Two Of Us"Performed by Tim Easton

Written by Tim EastonUsed with permission of Tim Easton (ASCAP)

Courtesy of Campfire Propaganda Records

“The Afterlife”Performed by Gus Black

Written Anthony Penaloza


Timecode Video DialogueUsed by permission Split The Moon (ASCAP)

Courtesy of Olinda Records

"Until It Kills You"Performed by Tim Easton

Written by Tim EastonUsed with permission of Tim Easton (ASCAP)

Courtesy of Campfire Propaganda Records

"Glass Off" Performed by Bangkok StartersWritten by Joachim Cooder & Sunny Levine

Used with permission of Zegma Beach Music (BMI) & Loverhino Music (ASCAP)Courtesy of Crouching Cood Hidden Soonhey Records

"Free To Be Me"Performed by Haroula Rose

Written by Haroula RoseUsed with permission ofPost Vinyl Music (BMI)

Courtesy of Haroula Rose

"Feel It Coming"Performed by Sara Melson

Written by Sara MelsonUsed with permission of Sara Melson (BMI)

Courtesy of Nettwerk Records

JAPANESE SONG

"Baby Come Home"Performed by Tim Easton

Written by Tim Easton Used with permission of Tim Easton (ASCAP)Courtesy of Campfire Propaganda Records

“What I do It For”Performed by Juliette Commagere

Written by Juliette CommagereUsed with permission of

Half-Mexican Music (ASCAP)Courtesy of Aeronaut Records

"Shape Of A Pocket"Performed by Pedestrian


Timecode Video DialogueWritten by Joel Shearer, Zac Rae, Joseph Karnes & Blair Sinta

Used with permission of Donkey Dog Music (BMI), Shearer Energy Music (ASCAP),Grumpy Beard Music (ASCAP) & Snaqtime Music (ASCAP)

Courtesy of Headwreckords Records

"Happy Endings"Performed by Sara Melson

Written by Sara MelsonUsed with permission of Sara Melson (BMI)

Courtesy of Nettwerk Records

"Celebration"Performed by Riverside City College “Marching Tigers”

Written by Robert Bell, Ronald Bell, George Brown, Eumir Deodato, Robert Mickens,Claydes Smith, James Warren Taylor, Dennis Thomas, Earl Toon

Used with permission of Warner Chappell Music Publishing

"The New World"Performed by Haroula Rose

Written by Haroula RoseUsed with permission ofPost Vinyl Music (BMI)

Courtesy of Haroula Rose

"Your Radio"Performed by Pedestrian

Written by Joel Shearer, Zac Rae, Joseph Karnes & Blair SintaUsed with permission of Donkey Dog Music (BMI), Shearer Energy Music (ASCAP),

Grumpy Beard Music (ASCAP) & Snaqtime Music (ASCAP)Courtesy of Headwreckords Records

"World"Written and Performed by Remy Zero

Used with permission of Nicole Dionne & Primal Scream Music (BMI)Courtesy of Primal Scream Music

FOOTAGE COURTESY OFDr. Tomoaki Adachi

John BarteltCalifornia Transplant Donor Network

Andy GordonMichelle Gutierrez

ITN Source


Timecode Video DialogueKNBC Channel 4 Hollywood

The Modlin FamilyNichiei Archives

NHK International, Inc.Shinshu TV

Anabel StenzelIsabel Stenzel Byrnes

Reiner & Hatsuko StenzelSturm Media & Communications

Naomi TakeuchiTelevision Kanagawa

Toho StellaTV Shinshu Broadcasting

PHOTOS COURTESY OFHoward Auzenne

Fatima AyalaJohn Bartelt

The Family of Karen BellBreathing Room

Michelle ComptonCynthia BroshiAndrew Byrnes

John and Lois CanavanEtsy & Sue Cochran

Kristy Collins and the Colgan FamilyThe Family of James Dorn

The Family of Bob FlanaganThe Family of Jade Frota

Glamour, Condé NastDolores & Peter Creede

Jill Crowley-ProulxDiane Haager and Family

Lori HickeyBritta HirschStuart Isett

Diane & Harold JohnsonJulie Judge

The Family of Bridget KleinYohei Kono Official Office

Adam LathamLifetouch Studios

Carmen MillerDoug & Robin Modlin


Timecode Video DialogueThe Family of Ross Moran

Jim & Christine NashNational Kidney Association

Chuck NelsonWanda OlsonLisa Rankin

Robert RohdeKelly SpruiellAnabel Stenzel

Isabel Stenzel ByrnesReiner & Hatsuko Stenzel

Allison StockleyKelly Stockley

Chad WestAlan & Judy Wester

Dennis WilliamsOTHER MATERIALS COURTESY OF

Mainichi ShimbunJapan Keizai (Economy) Shimbun

Fukushima MinpouYomiuri ShimbunTokyo Shimbun

Encoded in Dolby AC-3 - MAY BE DOLBY E DEPENDING ON DELIVERYVENDOR

02:33:50// END OF POWER OF TWO

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