CANCER Preentation

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    CANCERHOW THIS DISEASE AFFECTS

    THE FAMILY

    By: Jose R. Santiago

    Manuel A. Lncara.

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    Through the course of your loved ones

    illness and after your loved ones death,

    you can expect your family to change,

    especially if youre caring for your loved

    one at home. Changes may be big or

    small, and they may be positive or not.

    Some things may not change at all.

    When youre thinking about how your

    family is adjusting, keep this in mind,

    family members are responding to two

    related challenges, to your loved onesillness and dying, and to the impact that

    caregiving has on the household. It can

    help to know what you may expect.

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    Here are some ways that your

    family may respond to your lovedones illness:

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    Members may have many feelings, sometimes all at

    once shock, denial, anger, sadness, fear,

    frustration, resentment, or even relief. They may

    ask, Why us?Some family members may have

    more complicated reactions that involve severe

    anxiety or depression. Some may withdraw if they

    feel afraid or depressed, or if they think they have

    nothing to offer your loved one. Some may seem not

    to react at all.They may hope for a cure even after

    aggressive treatment has stopped.

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    Each family member will cope with their emotions in

    their own way and at their own pace. Some may

    want to talk about your loved ones illness and their

    feelings when others arent ready. Some may not

    want to talk at all.

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    Young children may become angry, clingy, or

    withdrawn. They may have trouble working at

    school, playing, or sleeping. They may think that

    they caused your loved ones illness, and they may

    fear that other family members will also become

    sick and die. At different ages, children will have

    different concepts about the permanence of death.

    Teenage children may feel torn between their need

    to become independent and their need to be with

    your loved one. They may rebel or seek comfort, or

    both.

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    The patient and the patients spouse (or partner, or

    significant other) may have difficulty expressing love

    and support in the couples usual ways. Problems

    that existed in the relationship before the illness

    may become worse, or the couple may look past

    them now.

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    Whether your loved one is at home, in hospital, or in

    hospice, your familys routines, roles,

    responsibilities, and relationships will probably

    change. Family members have to deal with new

    expectations and learn to interact with each other

    in new ways.

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    Here are some ways that your family

    may respond to caring for your loved

    one:

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    Family members may take on new

    tasks as part of doing things that

    your loved one cant do anymore, or

    as part of caring for your loved one.

    A member who works outside the

    home may have to take on more

    household duties. Another member

    may have to take a job outside the

    home to help support the family.

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    Children and teenagers may have to

    cope with tasks and situations

    theyre not prepared for. Older

    children may have to take care of

    younger siblings. Adult children may

    be challenged to care for a parent

    and their children at once.

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    If some family members have too

    many new responsibilities or dont

    feel confident about their abilities,they may feel resentful, or

    overwhelmed. Members who dont

    get enough self-care and support risk

    BURNEDOUT.

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    Depending on your situation, these family

    activities may become especially challenging

    Making desitions

    Solving problems

    setting priorities and goals

    making short-term or long-term plans

    assigning caregiving tasks

    dividing household chores

    coordinating daily activities

    allowing for privacy

    expressing feelingsrelating to people outside the family.

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    Issues that affect the family unit may

    develop or get worse, such as:

    physical or mental health problems

    behavioral problems

    substance abuse problems

    difficult relationships

    financial concerns

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    When it comes to deciding about a

    loved ones care and treatment, for

    some families its clear who will make the

    decisions and what those decisions will be. For

    other families, there may be many options,

    conflicting opinions, and little experience in

    making decisions as a family unit. Family

    members may disagree about who will give

    care, how, and where, and who will pay.

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    Geographical distance can

    complicate things. Distant family

    members may feel guilty and

    frustrated if they cant be near their

    loved one. The members giving care

    on a daily basis may feel that othersarent contributing enough.

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    Many families become stronger and

    closer as they work together to care

    for there loved one. But some families

    may not. Geographical or emotional

    distance may limit contact between

    family members and their loved one,

    and care may be given more by professionals

    than by family.

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    COPING WITH CANCER RELATIVES

    Coping with cancer isnt easy, but there are

    things you and your family can do to adjust.

    Here are some suggestions:

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    Focus on your loved oneYour loved one needs your family to

    be an anchor in a sea of change. If

    confusion, conflict, or outright chaos

    threatens, bring your familys focus

    back to your mutual goal caring for

    your loved one. If you need help

    gaining perspective, a social worker,

    counselor, or spiritual advisor can

    help.

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    Get practical support

    Whether you need help with caregiving

    tasks, household chores, childcare, or

    anything else, getting practical supportis key to your familys ability to adjust.

    Support can improve your loved ones

    care,prevent caregiver burnout, and helpyour family make the most of the time

    remaining with your loved one.

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    Get emotional support

    If anyone in your family is having

    trouble adjusting to your loved ones

    illness, to caregiving, or to changes in

    family relationships, get professional

    help.

    Remember that your loved one may

    become unable to meet the familys

    emotional needs as a spouse, parent, or

    sibling as before. A social worker,counselor, spiritual advisor, or support

    group can help individuals or the whole

    family deal with emotional and spiritual

    concerns.

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    Take care of yourself

    Even with lots of help, caregiving can be

    physically and emotionally demanding for

    everyone involved.

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    Communicate

    Effective communication can have a

    great impact on your familys ability to

    cope with cancer and caregiving. Talk

    openly and regularly about important

    issues, such as your loved ones illness,

    your feelings about your situation, and your

    familys future. Make sure that you

    understand each others needs and

    concerns.

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    Practice group efforts

    If your family isnt experienced in

    working together as a team, you may have

    trouble making important decisions about

    your loved ones care and treatment. But it

    can help if you practice with smaller tasks

    (like planning a family outing or choosing a

    home care provider) before you face bigger

    issues (like making treatment decisions if

    your loved one becomes incapable, or

    making final arrangements.)

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    Take off your labels

    Sometimes families fix members in

    prescribed roles the practical one,

    the emotional one, the smart one,the rebel. If you can move beyond

    the limits of old labels, then you may

    discover new abilities, strengths, and

    ways to cope.

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    Be informed

    Learn more about your loved onesillness and how to give care.

    These sections in particular can help:

    Nutrition

    Practical Help for Basic Care

    Keeping Organized

    Planning Ahead

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    Be there for your loved one

    Your loved one may never talkabout cancer or dying, but makesure your loved one knows yourethere if youre needed. Say, Im

    here when youre ready to talk,orsimply, Im here.If your lovedone does open up, dont worry toomuch about saying or doing theright thing. Just be yourself. Justlisten. If you cant give your lovedone emotional support, findsomeone who can a friend,counselor, spiritual advisor, or

    support group.

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    Be there for your kids

    If there are children in your family, they need

    extra comfort and reassurance, especially if its their

    parent who is ill. Tell kids whats going on, encourage

    their questions, and give honest answers. Make sure

    they understand that they didnt cause your lovedones illness. Keep kids involved with your loved one

    it helps everyone feel less isolated and more cared

    for. Try to stick to the regular routine for school,

    playtime, meals, chores, and bedtime. Balance

    teenagersneed for independence with the familys

    need for involvement. Tell your kidsteachers about

    your situation. Ask other relatives, friends, and

    neighbors to help care for your kids and keep them

    company.

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    Be flexible

    Expect your loved one and your family

    to have good days and bad days. Try to

    have back-up plans and supports available.

    When family routines and rituals getdisrupted, be creative about how to

    accommodate your familys needs. If you

    cant cook your traditional family supper

    every Sunday, can you go out for brunchinstead? If the family cant get out for

    movie night, would renting a video work?

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    Set boundaries

    Your loved one may behave in ways

    that make it difficult for your family to

    cope, like becoming demanding or

    manipulative, or withdrawing from young

    children who need love and comfort. While

    you may understand your loved ones

    reactions, your family still deserves

    respect. If your loved ones behavior

    becomes unreasonable, consider having a

    family meeting with your loved one. Talkopenly about challenges you share and

    develop solutions. If that doesnt help, get

    support from a social worker or counselor.

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    Enjoy family time

    Regular family gatherings can meet

    practical and emotional needs. You can talkabout challenges and achievements, give

    each other support, and simply be

    together. If your family has a regular

    spiritual practice, try to stick to your

    routine, but be flexible if you need to.

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    Keep the love alive

    If its your spouse (or partner, or

    significant other) who is ill, physical or

    emotional changes may affect the usualways you express love and affection. But

    communication and creativity can help

    you adjust. Challenge yourselves to find

    new paths to intimacy.

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    In Conclusion:

    The call for a strategic approach, for coordination,

    collaboration and cooperation, serves as a catalyst for

    developing and implementing a professional and family

    strategy for cancer patient. This will ensure that the collectiveresources, expertise, knowledge and skills are strategically

    developed and applied to maximum advantage, to lessen the

    burden of cancer on each and every affected person.

    Thanks and be Blessed

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    Bibliography:

    American Cancer Society,

    www.cancer.org

    National Cancer Institute,

    www.nci.nih.gov

    http://www.cancer.org/http://www.nci.nih.gov/http://www.nci.nih.gov/http://www.cancer.org/