■ We publish a monthly e-newsletter with items of interest to the international brain tumour community and which is emailed to over 6,000 highly relevant recipients.

■ We collaborate with relevant government agencies, health professional organisations, pharmaceutical companies, cancer organisations, clinicians, research institutes and other patient advocacy organisations.

■ We encourage the establishment of brain tumour patient support groups in countries where they don’t yet exist so that no one who is living with a brain tumour feels isolated and forgotten.

■ We work towards a greater emphasis by research bodies on identifying causes of brain tumours and the development of more effective therapies as well as encouraging greater collaboration among researchers to reduce duplication.

■ We project manage the annual International Brain Tumour Awareness Week and the Walk Around the World for Brain Tumours.

■ We advocate for improved patient access to a multi disciplinary specialist range of services, including palliative care, rehabilitation and psychosocial support to ensure that such services are at all times appropriate to the needs of people living with a brain tumour, and their families.

■ We participate in international and national brain tumour and cancer conferences and often give plenary presentations at these meetings which highlight the patient and caregiver perspective.

■ We participate in a range of high level European initiatives for rare and less common cancers.

■ We instil a greater measure of hope in the global brain tumour community by celebrating the courage and achievements of brain tumour survivors.

Brain Tumour magazineThe IBTA produces and publishes Brain Tumour magazine each year, which is distributed free to members of the international brain tumour community located in 111 countries.

07/19

Contact usThe International Brain Tumour Alliance (IBTA)PO Box 244, Tadworth, Surrey, KT20 5WQUnited Kingdom

www.theibta.org

Email: kathy@theibta.orgTelephone: +44 (0) 1737 813872Fax: +44 (0) 1737 812712

@theIBTA www.facebook.com/theIBTAThe International Brain Tumour Alliance is a not-for-profit, limited liability company registered in England and Wales, registered number 6031485. Registered office: Roxburghe House, 273-287 Regent Street, London W1B 2AD, United Kingdom.

1Brain Tumour

Ballerina Anna Mott:

a brain tumour

left her paralysed

and blind.

But now she’s

dancing again.

This courageous and

inspirational young

woman shares

her story

PLUS: Stories from our international brain

tumour community: USA, Canada, UK,

Australia, Taiwan, Singapore, Croatia,

El Salvador and many other countries

n IMMUNOTHERAPY

FOR BRAIN TUMOURS

n ARTICLES ON

ADULT AND PEDIATRIC

BRAIN TUMOURS

n GBM AGILE TRIAL:

an innovative

approach to acquiring

new knowledge faster

GREATER COLLABORATION n GREATER KNOWLEDGE n GREATER HOPE

World Edition 2016/2017

Brain TumourYou are not alone on this journey...

n BRAIN TUMOUR

NEWS AND DEVELOPMENTS

FROM AROUND THE WORLD

n BRAIN TUMOURS

IN AFRICA

n IMPORTANT NEW

LOW GRADE GLIOMA AND

RARE PEDIATRIC BRAIN

TUMOUR REGISTRIES

1Brain Tumour

Proud mother Stefania Distante celebrates a very special Mother’s Dayand shares her inspirational story

PLUS: Stories from our international brain tumour community: USA, Canada, United Kingdom, Australia, Taiwan, Singapore, South Africa and many other countries

n LONG-TERM SURVIVAL IN GLIOBLASTOMA

an international study

n The SISAQOL initiative on

analysing patient-reported

outcomes and quality of life

GREATER COLLABORATION n GREATER KNOWLEDGE n GREATER HOPE

World Edition 2017/2018

Brain TumourYou are not alone on this journey...

n BRAIN TUMOUR NEWS AND DEVELOPMENTS FROM AROUND THE WORLD

n DRUG DELIVERY IN CHILDREN WITH BRAIN TUMOURS

n INTERNATIONAL LOW GRADE GLIOMA REGISTRY

n ALL.CAN INITIATIVE - STRIVING FOR GREATER EFFICIENCY IN CANCER CARE

1

Brain Tumour

n Barriers to accrual and enrollment in

brain tumour trials

PLUS:

Stories from our

international brain

tumour community: United StatesUnited Kingdom

Sub-Saharan AfricaAustralia, CanadaEurope, Taiwan

Japan, China, Indiaand other regions

GREATER COLLABORATION n GREATER KNOWLEDGE n GREATER HOPE

n How allied healthcare

professionals can help

n NCI-CONNECT and rare brain

tumoursn Report of the

Indian Society for Neuro-Oncology

(ISNO) annual conference

in Bhopal

Meet Yaron Butterfield:

writer, artist, scientist…

and 15-year glioblastomasurvivor

World Edition 2019/2020

Brain TumourYou are not alone on this journey...

n GLIOTRAIN and its

inspirational young

GBM researchers

n Navigating your way through a brain

tumour journey

Also inside…

www.theibta.org

A BRIEF OVERVIEW

INTERNATIONAL BRAIN TUMOUR

ALLIANCE

■ Greater Collaboration ■ ■ Greater Knowledge ■ Greater Hope ■

■ We strive for a wider public recognition of the specific challenges patients and families face in dealing with this devastating disease.

■ We encourage greater collaboration between the various brain tumour support, advocacy and information groups around the world.

■ We produce a major annual magazine called Brain Tumour, print 14,000 copies of it, send it for free to recipients in 111 countries and provide it to doctors, nurses, allied health care professionals, key opinion leaders and others at medical conferences around the world. ➤

Our WorkThe IBTA’s work is underpinned by the values of solidarity, equity, honesty, integrity, transparency and hope.

We place patients at the heart of all we do, celebrating their courage and achievements, sharing knowledge and experiences and working together for progress.

We are committed to strengthening the evidence base for patient-centred treatment and care, in particular through the telling of and promoting of people’s experiences.

We encourage and support established brain tumour patient organisations, we do not replace or supercede them.

Our VisionA world free from thefear of brain tumours.

Our MissionTo advocate for the besttreatments, information,support and quality of life for brain tumour patients, offering them, their families and caregivers hope - wherever they live in the world.

Our PurposeThrough facilitatingcollaboration within theglobal brain tumourcommunity we provide astrong and collective voicefor brain tumour patientorganisations acrossthe world.

Eighty-five participants from 29 countries attended the IBTA’s 2017 World Summit of Brain Tumour Patient Advocates in London, UK. Some of these participants are pictured above. Photo by MVF Studios.