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Presentation by Elissa Coster of The Brain Tumour Charity at the London Cancer Children, Teenager and Young Adults Study Day, held on 25 July 2013.
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Introducing
The Brain Tumour Charity
Elissa Coster
Children and Families Worker
The UK’ s
largest
brain
tumour
charity
Merger of three
charities:
• Brain Tumour UK
• Joseph Foote Trust
• The Brain Tumour
Charity
Support
and
Information
Service
The Support & Info Line
Support and Information Service
Support and Information
Service
Information
Informatio
n Days
around
the UK
“Quote can go
here” Research
< 2%
£2.5million every year
= largest dedicated
funder of brain
tumour research
“Quote can go
here”
Research funded across
the UK
Raising awareness
• Longer diagnosis times
in the UK
• More children dying
and suffering from severe
life-limiting disabilities
• Based on research
with professional support
• Aim: Reduce average diagnosis time
from 12-13 weeks to less than five
headsmart.org.uk
Professional
partnerships
• HeadSmart is run by a partnership between:
• Supported by many other organisations:
• Shortlisted for BMJ award, highly commended by QiC:
The campaign
• Public and professional awareness
• Promoted and funded by The Brain Tumour Charity
• Disseminated by:
• The Charity
• Community Champions & volunteers
• We need more Community Champions in Scotland!
• Clinical Champions in every paediatric
neuro-oncology centre
The impact Average Symptom Interval
Pre-guideline
12-13 weeks
Pre HeadSmart launch
9.3 weeks
JUNE 2012
7.3 weeks
TODAY
6.9 weeks
Our incredible fundraisers
and supporters
Thank you
Find out more:
www.thebraintumourcharity.o
rg
Contact us:
0808 800 0004
