Art 1 – UN Charta of Human Rights Art.2 - EU Charta of Fundamental Rights

The Right to Life

Treaty of Lisbon – It is our responsibility to protect life WHO – Health represents a matter of safety and

security WATCH – Non-recognition of pain represents a violation

of human rights HEALTH COMMISSIONER DALLI – Oct 15,2010 - The ultimate objective of EU is to have patients treated

well in their own countriesHEALTH COMMISSIONER DALLI - April 3,2012The time has come for the implementation of EU strategies in the field of health

Charter of Fundamental Rights of the European Union

Article 35 "A high level of human health

protection shall be ensured in the definition and implementation of all Union policies and activities".

Romanian Constitution

Article 34 The State is obliged to guarantee the

sheltering of healthcare

In reality - GDP in EE countries 3.5-6 max

- (as compared to 9-10 in E15) - Low Priority for health in public sector

- (allocation 6-10% as compared to 15-20 in E15

- Life expectancy in EE countries 65-75(as compared to 80-85 in E15)

- Low incidence of cancer and yet high mortality

Reality

Per capita, Romania has the lowest medical expenses within the EU member States

Poland – recently lengthened the waiting time for deciding on Thalidomide treatment

Bulgaria – absence of novel treatments

Target Self-Governance of the Health system

Collaborative approach Patients Organizations Doctors/Hospitals Scientific Researchers Industry National Health Govt. Institutions

MAIN INSTRUMENT /FACILITATOR/PARTNER

EU HEALTH COMMISSION AND EU LEGISLATIVE BODIES Legislative Acts clearly formulated

(too many “” EU member states may and very few MUST””)

Strategic planning for health system based on sustainable objectives

More meaningful STATEMENTS

EU CHALLENGES

Establishment of a new EU legislative framework in the field of health

Directives not recommendations Harmonized health for all EU member states Mandatory standards in the field of health for all

EU member states Higher budget allocation Fair access to medical treatment and

medication Reducing inequity in health and access

to health care

Presently

Cross Border Health Care Directive Leaves a lot of freedom to MS

Patients must advocate for the best

transposition of it

Is it feasible

OBJECTIVES

Information Advocacy at the national level

Patients’Empowerment

Advocacy at the EU level

TARGETS OF MYELOMA EURONET ROMANIA

Empowerment of the patients Respect and dignity The right to decide Improvement of Quality of Life Access to fair medical treatment

ROMANIAN HEALTH SYSTEM Lack of Infrastructure :

Equipment

Decent remuneration of medical corp

Medication

Insufficient hospitals /beds

Lack of information

ACCESS TO THE ROMANIAN HEALTH SYSTEM HINDERED BY

Economic difficulties/crisis Small income Ignorance of patients’ rights Lack of patients’ information Poor management Non involvement of

patients‘organizations in the decision making proces

Status vis-a-vis other EU MS

Lack of harmonization with other EU member states

Lack of support from Pharma Companies

Lack of support from civil society

CAUSES AND IMPACT

CAUSES : The lowest GDP within EU

IMPACT: Great Differences

Research HTA Access to novel treatments for cancer

I, Viorica Cursaru DO NOT have a I, Viorica Cursaru DO NOT have a financial interest/arrangement or financial interest/arrangement or

affiliation with one or more affiliation with one or more organizations that could be perceived organizations that could be perceived

as a real or apparent conflict of interest as a real or apparent conflict of interest in the context of the subject of this in the context of the subject of this

presentation.presentation.