abilityMagazine of Spina Bifida Hydrocephalus Ireland
Annual Conference 2014 Edition
positive life choicespresents
Chairmans Address & ContentsChairmans Address & Contents
Spina Bifida Hydrocephalus Ireland (SBHI)National Resource Centre: Old Nangor Road, Clondalkin, Dublin 22.Tel: (0I) 457 2329 Fax: (01) 457 2328 Lo-call: 1890 20 22 60Email: firstname.lastname@example.org Website: www.sbhi.ie
Ability magazine:Editor: Thelma Cloake Tel: 087-2883279 Email: email@example.com
A WORD FROM THE EDITOR:I would like to take this opportunity
to thank all those people whocontributed to the Abilitymagazine.
I hope you will enjoy readingthis issue.
Thelma Cloake Tel: 087-2883279 Email: firstname.lastname@example.org
Chairmans AddressAs this is the first magazine since Iwas elected chairman I would liketo thank you the members and thebranches for giving me thehonour of being your chairmanand for supporting me in thisrole. I hope that I can fulfil yourexpectations of me while I am inthis position.
I would like to take this oppor-tunity to acknowledge the workthat was done by George Kennedyand to take this opportunity to
wish him well in the future. The work of the organisation iscontinuing and we have just come off the back of a very successfulSHINE project which we got great feedback from. The PeerSupport Group continues to go from strength to strength and theFamily Support Workers and all our staff continue to be an integralpart of the work of SBHI.
The Saturday Club is also continuing to be a great success andthanks to Andrea for her tireless work in that regard.
The International Federation continues to provide support to us asa national organisation and we continue to be represented byThelma on that. The International Federation will be well repre-sented at our conference and there will be plenty of opportunitiesfor you our members to find out more about what they do.
I believe the conference has a great line-up this year and I have nodoubt that many will be inspired and motivated by the speakerswe have lined up.
I look forward to seeing you all at the conference and hope thatyou all enjoy this edition of the magazine and indeed theconference.
Frank Larkin, Chairman, Spina Bifida Hydrocephalus Ireland,
In this issue:l Chairmans Address l SBHIStaff List and
Contact Detailsl Packie Bonner Golf Classic
l Influenza (Flu)l 12 Marathons 12 Days
l Catherines Storyl SAP Volunteers
l Wheelchair Rugby 7sl World Spina Bifida & Hydrocephalus Day
l Double Celebrations for Seanl Positive Life Choices
My Say, My Way:Agenda & Biographies
l Educational Officer Updatel Special Needs Bank Account
l Me and My Backbonel SBHI Peer Support
l Eurordisl SHINE 2014
l Around the Countryl Orthopaedic Footwear Centre
SBHI Staff & ContactsSBHI Staff & Contacts
Name Post Phone & Email
Andrea Fox Reception 014572329 email@example.com
Linda Morrison Accounts 014572329 firstname.lastname@example.org
Katy McManus Administration 014572329 email@example.com
Sarah Jacobsen Family Support Worker:
Laois/Offaly; Longford/ Westmeath
Hazel McGeough Family Support Worker:
Cavan/Monaghan; Louth/Meath; North Co. Dublin
Katie Dunphy Educational Officer 014572329 0873792051
Clare Riordan Family Support Worker:
South Dublin/ Wicklow
Jane Mullane Family Support Worker: South East including
Waterford/Sth Tipperary, Carlow, Kilkenny, Wexford
Aine Harrington Family Support Worker:
Mayo, Leitrim, Roscommon, Sligo, Galway
Edel Browne Curran Family Support Worker:
North Dublin and Co. Kildare
Deirdre Gallagher Family Support Worker:
Louise Healy Manager Youth & Respite Services 014572329 0857119087 firstname.lastname@example.org
Helen Riney Youth & Respite Coordinator 014572329 email@example.com
Peter Landy Fundraiser 0877376351 firstname.lastname@example.org
SBHI STAFF LIST AND CONTACT DETAILSNational Resource Centre, Old Nangor Road, Clondalkin, Dublin 22
Phone: 014572329 Fax: 014572328 email@example.com
SBHI Orthopaedic Footwear CentreNational Resource Centre, Old Nangor Road, Clondalkin, Dublin 22
Phone: 014572326 Fax: 014056056 firstname.lastname@example.org Footwear Mobile 0868517518Contact: Karen Malone 014572326 email@example.com
Dublin Branch: Vickie Green, Block 5, Unit 2, Port Tunnel Business Park, Clonshaugh, Dublin 17
Phone: 018485227 Fax: 018485228 Email: firstname.lastname@example.org
SBHI Resource Centre:Alice Rajaratnam & Aisling Nic Eochaidh
Block 5, Unit 1, Port Tunnel Business Park, Clonshaugh, Dublin 17.Phone: 018487311 Email: email@example.com
Golf ClassicGolf Classic
A total of 32 teams took to the beautifulSmurfit course at the K Club on the 22nd ofAugust for our annual Packie Bonner GolfClassic.
The delightful weather matched the mood ofthe participants as they took to the course forthe 12.30pm shotgun start. The golferscommented on the fantastic condition of thecourse and enjoyed playing their 18 holesimmensely. There were two competitionsrunning side by side, the Packie BonnerPerpetual Trophy for qualifying teams and ourmain corporate competition.
After golf everybody returned to theclubhouse for our customary after golf mealand presentations. Our patron Packie Bonneracted as the master of ceremonies and spokevery highly of his involvement with Spina BifidaHydrocephalus Ireland and his reasons forsupporting the organisation. The lovely mealwas followed by an auction of donated itemsfor which there was great interest from thosepresent. We also had our customary blind rafflewhich was a great success on the night.
The Packie Bonner Perpetual Trophy was wonby the team: Donal Corbett, Brendan Casey,Liam Fitzgerald and Declan Keegan with ascore of 99 points. Donal also won the longestdrive competition with Joe Pardy picking upthe prize for nearest to pin.
The prize-winners for the corporate classicincluded:
l 1st Prize (105 points): Alan Murphy, JimODonoghue, Brendan Murphy & JohnBermingham
l 2nd Prize (104 points): Paul Boyle, TommyGrindle, Darren Delaney & Liam Delaney
l 3rd Prize (101 points): Eamonn Porter, DaveNolan, Paul OReilly & Tom Watters
l 4th Prize (99 points): John Kavanagh,Tommy Gaskin, Freddie Snow & EugeneWard
l 5th Prize (97 points): Fergal Britton, AidanGordon, Mark Doherty & Kieran Coffey
l 6th Prize (97 points): Paul Landy, KieranMescal, David Minogue & ConorODonovan.
SBHI wishes to congratulate the winners andthank all our participants and sponsors fortheir continued support of this event. n
PACKIE BONNER GOLF CLASSICK CLUB AUGUST 2014
Some of the groups who enjoyed the day
Influenza (Flu)Source: H.S. E.
Who is most at risk from flu?Anyone can get the flu but it is more severe inpeople aged 65 years and over and anyonewith a chronic medical condition. Chronicmedical conditions include chronic heartconditions, chronic respiratory disease,diabetes mellitus and immunosupression dueto disease or treatment. Pregnant womenhave also been found to be at increased riskof the complications of flu. These groups ofpeople are targeted for influenza vaccination.
Flu Vaccine Who should be vaccinated?Vaccination is strongly recommended for:
n Persons aged 65 and overn Those aged 6 months and older with a
long-term health condition such as Chronic heart disease Chronic liver disease Chronic renal failure Chronic respiratory disease, including
cystic fibrosis, moderate or severeasthma or bronchopulmonarydysplasia
Chronic neurological diseaseincluding multiple sclerosis, hered-itary and degenerative disorders ofthe central nervous system
Diabetes mellitus Down syndrome Haemoglobinopathies Morbid obesity i.e. body mass index
over 40 Immunosuppression due to disease
or treatment, including asplenia orsplenic dysfunction
n Children aged 6 months and older with any condition (e.g. cognitive
dysfunction, spinal cord injury, seizuredisorder, or other neuromusculardisorder) that can compromise respi-ratory function especially thoseattending special schools/day centreswith moderate to severe neurodevel-
opmental disorders such as cerebralpalsy and intellectual disability
on long-term aspirin therapy(because of the risk of Reyessyndrome)
n Pregnant women(vaccine can begiven at anystage ofpregnancy)
n Residentsof nursinghomes andother longstay institu-tions
n Carersn People with
regular contactwith pigs, poultryor water fowl. n
What is influenza (flu)?Influenza is a highly infectious, acute, respi-ratory illness caused by the influenza virus.Influenza affects people of all ages. Outbreaksof influenza occur almost every year, usually inwinter. This is why it is also known as seasonalflu.
How serious is flu?Flu is often self limiting with most peoplerecovering in 2-7 days. However, flu can besevere and can cause serious illness anddeath, especially in the very young and in theelderly. Serious respiratory complications candevelop, including pneumonia and bronchitis,to which older people and those with certainchr