3 level relation EPF – members, members to EPF, EPF to Member States

More credibility for EPF – use ‘grass roots’ info Speaking with one voice externally Open channel of communication – no hierarchy, regularity Different roles – European orgs –louder voice in Brussels– National

coalitiond – traction with national governments EPF catalyst for common projects among members and

dissemination point, sharing outcomes Stronger media relations

 

More consultation and feedback on the policy issues Use more examples from countries: disease areas to make

the policy case – helps members to argue at national level Info on upcoming policy consultation tracking system on the

website so that members can prepare to be involved: FLEXIBILITY

Guidance on EU funding opportunities : big administrationSpecific meetings on funding/helpdesk Transfer of policy experience/ good practice when an issue

rises at national level – chat room

Reguar policy updates from national coalitiion latest developments concerns

Specific presentaion from countries at EPF meeting - practical examples

Practical insight to support the theoretical input ‘ patient experts’

Resource for future planning, mapping similar needs from several orgs

More direct member to member links - inspiringEPF events Improve leadership skils, media comms skillsLink persons technical issues/ clusters of people /theme

Data and force to put forward our views – proactive• EPF is the driver, not backseat passenger• EPF – well known within the patients’ movement, with

politicians at country level• NATURAL AND AUTOMATIC POINT OF REFERENCE• Effective pool of expertise for all the members• Reinforce patient organisations in next progamming

period