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A museum and occupational therapy collaboration for youth with autism spectrum disorder Diana R. De Luca - MoS Ellen S. Cohn – BU Gael Orsmond - BU

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Page 1: A museum and occupational therapy collaboration for youth ... · A museum and occupational therapy collaboration for youth with ... at any time and any place within ... (using pictorial

A museum and occupational therapy

collaboration for youth with autism

spectrum disorder Diana R. De Luca - MoS

Ellen S. Cohn – BU

Gael Orsmond - BU

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Presentation Overview

• Science Museums and Occupational Therapy Programs as partners to

support students with special needs

• Autism spectrum disorders background information in the context of

museum environments

• BEST (Buddies Exploring Science Together) Partnership Program

▫ History/Background

▫ Goals

▫ Components

▫ Examples – Social Stories, student worksheets, activities, photos

▫ Outcomes

• Best practices for successful field trips for students with special needs

• Suggestions for partnering with other organizations

• Questions?

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What Science Museums Value • Design with specific learning goals in mind

• Interactive learning that promotes social interaction

• Multiple ways for learners to engage with concepts, practices and

phenomena within a particular setting

• Generalization of science learning

• Supporting participants to interpret their learning experiences in light

of relevant prior knowledge, experiences, and interests

• Connecting real life experiences to classroom learning

• Mapping exhibits to K-8 core science standards

National Research Council. (2009). Learning science in informal environments: People, places, and pursuits.

Board on Science Education, Center for Education. Division of Behavioral and Social Sciences and

Education. Washington, DC: The National Academies Press.

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Inclusion defined:

• Physically interact

with/perceive the space

• Cognitively engage with

the materials

• Socially interact with one

another

Reich, C., Price, J., Rubin, E., & Steiner, M. (2010). Inclusion, disabilities and informal science learning. A CAISE

inquiry group report. Washington, DC: Center for the Advancement of Informal Science Education (CAISE).

What Science Museums Value

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Museum of Science:

Philosophy of Inclusion

Social inclusion approach:

Seeks to create environments where individuals

with disabilities are welcome to fully participate

in activities alongside their non-disabled peers,

at any time and any place within the Museum

and throughout all of its offerings.

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What is occupational therapy?

The therapeutic use of everyday life

activities (occupations) with individuals or

groups for the purpose of enhancing or

enabling participation in roles, habits, and

routines in home, school, workplace,

community and other settings.

(AOTA, 2014)

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“Supporting health, well-being, and participation in life through engagement in occupation”

“ People need to be able or enabled to engage in

the occupations of need and choice…to

experience equality, participation, security,

health and well being”

American Occupational Therapy Association (2014). Occupational Therapy Practice Framework:

Domain and Process (3rd ed). American Journal of Occupational Therapy, 68 (Suppl. 1), S1-48.

What OT Practitioners Value

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(© AOTA, OTPF, 2014)

Occupational Therapy’s Domain

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The intersection of Museum of

Science and occupational therapy

Museum of

Science Occupational

Therapy

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Informal Science Learning

Learners who engage with science in informal environments:

• Come to generate, understand, remember, and use concepts,

explanations, arguments, models, and facts related to science.

• Manipulate, test, explore, predict, question, observe, and make

sense of the natural and physical world.

• Reflect on science as a way of knowing; on processes, concepts,

and institutions of science; and on their own process of learning

about phenomena.

• Participate in scientific activities and learning practices with

others, using scientific language and tools.

National Research Council. (2009). Learning science in informal environments: People, places and pursuits.

Washington, DC: The National Academies Press.

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Universal Design for Learning

• To support recognition learning, provide multiple,

flexible methods of presentation.

• To support strategic learning, provide multiple, flexible

methods of expression and apprenticeship.

• To support affective learning, provide multiple, flexible

options for engagement.

Rose, D. H., & Meyer, A. (2002). Teaching every student in the digital age: Universal design for learning. Alexandria,

VA: Association for Supervision and Curriculum Development.

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Universal Design for Learning: Museum

Exhibitions

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Universal Design for Learning: Museum

Programs

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Repeat and reinforce main ideas

• Explicitly state main idea

• Define program in “chunks”

• Create a content outline for visitors

Multiple entry points

• Use a planning pyramid

Physical and sensory access

• Generate concise phrases

to be delivered aurally

and visually

Some will learn

Most will learn

All should learn

Program Development

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Characteristics of Autism Spectrum

Disorders

1. Impaired social communication and social

interaction

2. Repetitive and unusual behaviors

3. Symptoms present in early childhood

4. Symptoms impair everyday functioning

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Difficulties in Social Communication

and Interaction

• With conversation, sharing interests, understanding and showing emotions, initiating interactions

• Using nonverbal behaviors to facilitate communication and interaction, such as eye contact or body language, fewer gestures and facial expression

• Developing and maintaining social relationships (beyond caregiver), including less imaginative play and sometimes lack of interest in others, difficulty adjusting behavior to different social contexts

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Repetitive and Unusual Behaviors

• Repetitive speech or motor patterns, use of

objects

• Insistence on routines, resistance to change

• Fixated interests

• NEW: over- or under-reactivity to sensory

input, or unusual interest in sensory aspects of

environment

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7 Senses

• Auditory (hearing)

• Tactile (touch)

• Visual (seeing)

• Olfactory (smell)

• Gustatory (taste)

• Vestibular (gravity and movement)

• Proprioceptive (muscles and joints)

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Sensory Under-Responsiveness

Unaware of or failure to respond to sensory stimuli

•Auditory ▫ Oblivious to sounds

▫ Appear deaf

•Tactile ▫ No response to pain

•Visual ▫ Walk through objects

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Over-responsive

(Sensory Defensiveness)

•Tactile: may avoid touching and crowds

•Auditory: may be reactive to noise

•Vestibular: may fear escalators or elevators

•Visual: may be overwhelmed by bright lights

•Olfactory: may find particular smells aversive

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Potential Challenges

• Overwhelmed by sensory experiences ▫ Distractible, difficulty regulating behavior

• Difficulty seeing the big picture ▫ Focus on minutiae, concrete

• Difficulty understanding social expectations

• Adherence to rules and routines ▫ Difficulty with transitions

• Difficulty with perspective taking ▫ Understanding another’s point of view

• Difficulty generalizing across settings

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Potential Strengths

• Highly knowledgeable about certain topics

• Excellent memory

• Your program may be related to a focused

interest

• May ask interesting questions

• May teach you something

• Well intentioned

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Potential Strengths: MOS unique

• Individuals impacted by ASD

▫ More likely than others to have greater aptitude

for analyzing or constructing rule based systems

to explain the world about them

• Particularly relevant for science, technology,

engineering, and mathematics (STEM) related

fields (Wei et al., 2013)

• MOS a highly interesting and motivating context

for students to socialize and succeed in a

community setting.

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Consultation with Professionals with

Expertise in Autism Spectrum Disorders

• Potential collaborators

▫ Occupational therapists

▫ Special educators

▫ Speech language pathologists

▫ Psychologists

• Trained to carefully observe and evaluate

human behavior in context.

▫ Observation of activity demands

▫ Checklist of sensory stimuli in environment

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Consumer/Patron Perspectives

• Involve parents of young children with an ASD

and/or individuals on the spectrum

• They can

▫ Help provide in-services and training

▫ Review materials and resources developed

▫ Be involved in evaluation of new exhibits

▫ Work as staff or as volunteers

▫ Be included on an advisory committee

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Examples of what we’ve learned from

observations at Boston Museum of Science

You “use your ears” to listen,

“not your eyes.”

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Example at Boston Museum of Science

Asked questions or spoke about topics that most

other children would consider inappropriate or

not of interest.

Are you old?

Are you going to die?

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Example at Boston Museum of Science

At the museum we noticed that children with an

ASD often got too close to other patrons when

waiting to gain access to an exhibit.

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Inclusive Practices in a Museum

• Simple language

• Visual images

• Simple demonstrations

• A range of levels of difficulty for interacting with exhibits

• Positive and achievable outcome within the estimated time that a student would spend at the exhibit

• Social story that families can read about the museum before visiting

Shepherd, H. (2009). Focus on practice: Inclusion and museums: Developing inclusive practice.

British Journal of Special Education, 36, 140-146.

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Staff Training

• Summer Program

• Overnight Program

• Eye Opener (2nd grade)

Program

▫ Elicit experience

▫ Myths/images

▫ Videos

▫ Sensory Profile

▫ Tips and Strategies

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Behavior Museum Example Tips & Strategies

Behavior/Social Skills

Ritualistic

questions

Upon arrival,

James seems

anxious and

repeatedly asks,

“What are we

doing today?”

•Prepare a simple schedule of the

day’s plan on cards, and review the

plan with the entire group at the

beginning of the visit.

•Review the museum rules before

entering the museum, and provide

frequent reminders throughout the

visit.

•Incorporate breaks into the schedule.

Tips and Strategies to Promote

Inclusion for People with an ASD

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Behavior Museum Example Tips & Strategies

Sensory Processing

May be sensitive to

intense stimuli

(light, sound,

movement, touch)

Amanda covers her

ears during the

electricity show.

•Let Amanda know there will be

loud noises during the

electricity show.

•Be aware of exhibits with

strong stimuli and crowded

spaces.

•Bring ear plugs if necessary and

map out alternative routes.

Tips and Strategies to Promote

Inclusion for People with an ASD

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Social Stories

• Short, personalized stories to teach children

with an ASD how to manage behavior ▫ Descriptive, perspective, directive and affirmative

sentences to describe activity

When it will occur

Who will participate

What will happen

▫ Effectively used in the following settings (Kokina & Kern,

2010)

Schools (both self contained and inclusive)

At home during homework time

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Social Stories

• Research documents their effectiveness in

helping children with an ASD (Kokina & Kern, 2010)

• Decrease inappropriate and undesirable

behaviors

• Play appropriately during free play

• Learn self monitoring skills

• Improve social interactions

• Participate in desired activities

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• The museum as a naturally occurring social context

• Exploring the MoS with Friends

• OT students co-lead after-school museum exploration

group for adolescents with an ASD

• Strengths Based: math and science

• Activities structured to facilitate social interaction

Mutual exploration of interactive exhibits

Building structures together

Fun with Friends

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Fun with Friends

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Program Goal:

To promote inclusion of middle school students

impacted by autism spectrum disorders at the

Museum of Science by providing opportunities for:

1. Naturally occurring science learning

2. Practice of social interaction skills in a

community setting

Buddies Exploring Science Together

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Buddies Exploring Science Together

• Strength‐based perspective

▫ Optimize the success

• Capitalize on the naturally occurring, community

context of the inclusive and accessible

environment of the Museum of Science, Boston

• Responsive to school partners’ needs:

▫ Curriculum

▫ Students’ abilities

▫ Scheduling

▫ Personnel resources

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Outcomes for students

• Engage in opportunities to learn about science

which connect to science learning occurring at

school and experiences in everyday life

• Socially interact in a naturally occurring

community setting

• Be interested and excited about science

• Feel included in a community setting

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Buddies Exploring Science Together

Occupational Therapy

1. Support students’ social

interaction skills

2. Increase students

knowledge and behavior

with regards to

community, behavioral &

social norms

3. Support students’ in

communicating intentions

& ideas to peers during

partner & group activities

4. Scaffold the entire field-

trip experience to

maximize opportunities of

success

Museum of Science

1. Support students’ to

learn about science

which connects to

science learning at

school & experiences in

everyday life

2. Increase students

excitement & interest in

science topics

3. Provide science learning

experiences beyond

what is possible in a

classroom setting

Classroom Educators

1. Provide context to

support students’

generalization of learning

2. Engage students in new

opportunities for social

interaction

3. Relate classroom

measurable curriculum

goals to museum learning

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Schools • Student learning & social goals

• Preparatory science learning

• Application & generalization of learning

to classroom & everyday life

Museum

of Science • Contextualized setting

for relevant science content

• Small group, interactive

learning environment

• Multiple entry points

• Self-directed learning time

Supporting

student science

learning & social

participation in a

community setting

Occupational

Therapists • Anticipatory Planning

• Analysis of activity demands

in context of MoS

• Scaffolding environment and

learning task

• Goal setting & reflection

• Direct facilitation of

social interaction

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Weekly Activities Primary

Facilitator

Explanation/Examples

Modified Social Story

at school

BU MSOT

Co-Leaders

• Anticipatory planning for field trip

• Symbolic modeling of behaviors

Goal Setting at School BU MSOT

Co-Leaders

• Students used adapted worksheets to select a social

interaction goal for that weekly visit

Schedule Review MOS Educator /

BU MSOT

• Each week, reviewed schedule with students for

museum visit

Intro & Warm-Up

Activity at MOS

BU MSOT

Co-Leaders

• Compliment your buddy (using pictorial cue sheets)

Science Learning

activity at MOS

MOS Educator • Activity related to science standards

• Planetarium show, making slime, star lab

Social Interaction

activity at MOS

BU MSOT

Co-Leaders

• Working together in “buddies”

• Exploring activity boxes; Navigate exhibits with peer

Sharing/Processing at

MOS

BU MSOT

Co-Leaders

• “Did you meet your goal?”

• “What was your favorite activity?”

Generalizing/

Applying at MOS

BU MSOT

Co-Leaders

• Discussion of other contexts where we can practice

social skills

Lunch at MOS All staff • Socialize with peers is cafeteria

Self-directed learning

time in MOS

MOS Educators/

Teachers

• Unstructured time for students to explore MOS

exhibits on their own (BEST Time)

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Program Features

Supporting Evidence

Social Stories to communicate preferred

behaviors expected at the MOS, read to

students prior to leaving Orchard Gardens

for weekly trips to the museum

Kokina, A. & Kern, L. (2010). Social story interventions for students with autism

spectrum disorders: A meta-analysis. Journal of Autism & Developmental

Disorders, 40, 812-826.

Scattrone, D., Tingstrom, D. H., & Wilczynski, S. M. (2006). Increasing

appropriate social interactions of children with autism spectrum disorders using

social stories. Focus on Autism and Other Developmental Disabilities, 21, 211-

222.

Review schedule of planned activities for

museum visit so students know what to

expect

Lequia, J., Machalicek, W., & Rispoli, M. J. (2012). Effects of activity schedules

on challenging behavior exhibited in children with autism spectrum disorder: A

systematic review. Research in Autism Spectrum Disorder, 6, 480-492.

Warm-up activity at MOS designed to

facilitate group member interaction and

build group cohesiveness

Schwartzberg, S. L., Howe, M. C., & Barnes, M. A. (2008). Groups: Applying

the functional group model. Philadelphia: FA Davis.

Goal-setting worksheets at the MOS used

to help students engage in self-directed

learning of specific social interaction

skills & set a specific goal for each weekly

visit

Agran, M., Blanchard, C., & Wehmeyer, M. L. (2000). Promoting transition goals

and self-determination through student self-directed learning: The self-

determined learning model of instruction. Education and Training in Mental

Retardation and Developmental Disabilities, 35, 351-364.

Copeland, S. R., & Hughes, C. (2002). Effects of goal-setting on task

performance of persons with mental retardation. Education and Training in

Mental Retardation and Developmental Disabilities, 37, 40-54.

Pictorial behavior boards at the MOS used

to review expectations

Bryan, L. C., & Gast, L. C. (2000). Teaching on-task and on-schedule behaviors

to high-functioning children with autism via picture activity schedules. Journal of

Autism and Developmental Disorders, 30, 553-567.

Participation in partner and small group

activities at the MOS, often working with

an assigned “buddy”

Mackay, T., Knott, F., & Dunlop, A. (2007). Developing social interaction and

understanding in individuals with autism spectrum disorder: A groupwork

intervention. Journal of Intellectual & Developmental Disability, 32, 270-290.

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Opportunities to practice skills with

different people (different weekly

buddies) to promote generalization

White, S. W., Keonig, K., & Scahill, L. (2007). Social skills development in

children with autism spectrum disorders: A review of the intervention research.

Journal of Autism & Developmental Disorders, 37, 1858-1868.

Follow-up discussions after partner

activities to reflect on whether or not

weekly goals were met

Mackay, T., Knott, F., & Dunlop, A. (2007). Developing social interaction and

understanding in individuals with autism spectrum disorder: A groupwork

intervention. Journal of Intellectual & Developmental Disability, 32, 270-290.

Group co-leader modeling of desired

behaviors for use during partner and

small-group activities

White, S. W., Keonig, K., & Scahill, L. (2007). Social skills development in

children with autism spectrum disorders: A review of the intervention research.

Journal of Autism & Developmental Disorders, 37, 1858-1868.

Positive reinforcement of desired social

skills and behaviors in the context of the

MOS

White, S. W., Keonig, K., & Scahill, L. (2007). Social skills development in

children with autism spectrum disorders: A review of the intervention research.

Journal of Autism & Developmental Disorders, 37, 1858-1868.

Naturally occurring science learning in

the context of the Museum of Science,

Boston

Braund, M., & Reiss, M. (2006). Towards a more authentic science curriculum:

The contribution of out-of- school learning. International Journal of Science

Education, 28, 1373–1388.

Wilde, M., & Urhahne, D. (2008). Museum learning: A study of motivation and

learning achievement. Journal of Biological Education, 42, 78–83.

Program Features

Supporting Evidence

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Today’s Plan

1. Warm Up Activity in Classroom

2. SuperCold Science Presentation

3. Group 1 – Take a Closer Look

Exhibit Exploration

Group 2 – Icy Penguin Design

Challenge

4. Switch

5. Goal Reflection in Classroom

6. Lunch in Museum Cafe

7. BEST Time in exhibit halls

8. Get back on bus to school

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Before the Visit: Establish familiarity & comfort levels

▫ Reach out

▫ The message:

You are welcome here!

This is a place for you!

We are committed to your success!

▫ Pre-visits to classrooms

▫ Social Stories, Photos, Expectations

▫ Pre-Visit Planning & Communication

▫ Repeat trips with students

▫ Additional adults: no caps

Inclusion: Sharing the message

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Tips for Field Trips:

Communication

• Working together with various players: ▫ Teachers – Student abilities, science learning goals

▫ Museums – Clearly describe activities and exhibit details

▫ OT Partners – Analyze demands of educational & social activities

• Shared understanding of goals & essential

program components ▫ Identify unique needs of students

▫ Flexibility & willingness to improvise in the situation of practice

▫ Access to contact information, including bus company

▫ Web portal for file sharing

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• Meet with partners to create a plan ▫ Explore the space beforehand

▫ Review schedule and plans for field trip

▫ Identify quiet and safe spaces for breaks

▫ Identify processes for students who may need additional support

or a break from museum activities

▫ Identify amenities: charging stations, closed captioning, assisted

listening, etc.

▫ Encourage partners in learning from each other

Tips for Field Trips:

Communication

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• Pre-Planning at school

▫ Social stories (about trips in general then

about the actual trip)

▫ Explanations

▫ Reminders (behavior boards and reinforcers)

▫ Pictures of the actual space

▫ Individual student calendar to track the date

of the trip

Tips for Field Trips:

Educator Strategies

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• Get Students Excited

▫ Read, write and research about museum visit

▫ Conduct internet research relating to science

content

▫ Plan out exploration route in exhibit halls

▫ Generate questions to ask museum educators

Tips for Field Trips:

Peak Students Interests

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Outcomes

“I’ve been teaching for 9 years and this is

the single most important thing that has

happened in my career in teaching as far

as having integration of community

outing, learning about curriculum, and

socializing skills.” ‐‐‐ Boston Public School teacher participant, 2014 BEST program

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Outcomes: Interest and Excitement Students expressed interest in science learning by asking and responding to questions • Live Animal Center: students asked the MOS educator about the kinds

of animals at the museum and how they are cared for • Super Cold Science live presentation: the MOS educator asked

students to name some hot and cold things Students replied with comments including “lava from volcanoes,”

“hot chocolate,” “ice cream,” and the “North Pole.”

Students expressed their excitement in science learning by making unprompted positive: • Comments such as “awesome” or “cool” while interacting with

exhibits and programs. When given time to independently engage with exhibits: • Students often spent long periods of time at individual exhibits

suggesting they were interested in using the exhibition thoroughly

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Outcomes: Inclusion

Students were observed engaging in science

through many hands-on elements:

▫ Using buttons, levers, and physically trying

activities like the swings and see-saw in Science

in the Park.

▫ “He loved the space capsule. He thought it

was the coolest thing in the world to go

inside. He usually doesn’t participate, but he

would go inside. The tornado where you could

climb in was great. Spinning things. The

hands-on has a bigger benefit to him.”

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Outcomes: Social Participation

“Behaviors that are characteristic

and expected of an individual

within a social system and

encompass the individuals’

engagement with peers and

friends and community members”

(Khetani & Coster, 2014, p. 731)

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Outcomes: Social Participation

• Taking turns at exhibit components

▫ Between two students from the BEST program

▫ Between a student from the BEST program and other visitors in the

museum

• Initiating social interactions with their peers and teachers

▫ One student asked a peer if he wanted to look at the planets exhibit

outside the Planetarium.

▫ Another student asked his teacher to join him in looking at an

interesting shell.

• Spontaneously shared his observation

▫ “These rocks feel real.”

• Spontaneously apologized to another student

▫ While exploring the bug drawers, a student from the BEST program

accidentally bumped another student.

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Outcomes: Social Participation • Selected items: teachers rated the students’ social behaviors on a

3 point scale

▫ School Function Assessment (SFA) (Coster et al., 1998)

▫ Children’s Communication Checklist-2 (CCC-2) (Bishop, 2006)

▫ Social Skills Improvement System (SSIS) (Gresham & Elliot, 2008)

before and after the BEST program.

▫ Nine out of 15 students demonstrated increased scores

▫ Skills that improved:

Participation in group activities,

Being flexible in adapting to unexpected situations,

Sharing materials with others

• The teachers’ perception of the importance of social skills changed

for the majority of the children

▫ Value of practicing social interactions and social conventions

in a community setting

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Outcomes: Belonging

Teachers value the Museum as a community setting ▫ “Our school is in the classroom 7 hours a day.

They’re in the classroom enough. As they get older, they need to get out. As they go to high school, they'll get out more, but why not start now?”

▫ “This surpassed anything that we could have done on our own in the community.”

▫ “I’m working with static four walls. Here, there’s way more opportunity for language. The students can describe things and ask people, ‘what did you like best?’”

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• Explore resources in your local community

▫ Public schools

▫ Specialized private schools for students with special needs

▫ University Occupational Therapy programs

▫ Advocacy Organizations

• Develop an understanding of the perspectives of each

partner

• Collaborate with existing programs

• Start small – Establish feasibility (Can it be done)

• Develop mechanisms for program evaluation and

measuring outcomes

Suggestions for Partnering

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Bandura, A. (1977). Social Learning Theory. New Jersey: Prentice Hall, Inc.

Bishop, D. (2006). Children’s communication checklist 2nd edition (CCC-2) manual. Minneapolis, MN:

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Braund, M., & Reiss, M. (2006). Towards a more authentic science curriculum: The contribution of out-of-

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Bryan, L. C., & Gast, L. C. (2000). Teaching on-task and on-schedule behaviors to high-functioning children

with autism via picture activity schedules. Journal of Autism and Developmental Disorders, 30, 553-567.

Copeland, S. R., & Hughes, C. (2002). Effects of goal-setting on task performance of persons with mental

retardation. Education and Training in Mental Retardation and Developmental Disabilities, 37, 40-54.

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